Do You Need Surgery for Craniocervical Instability (CCI)?
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- Опубликовано: 28 дек 2020
- Do You Need Surgery for Craniocervical Instability? - Craniocervical instability - also called Cranial Cervical Instability, CCJ instability, and other terms - is called the "invisible disease" and is characterized as a laxity of the ligaments surrounding the c0 - c2 of the cervical spine.
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Download your copy of CCI 101: Understanding Craniocervical Instability and the Road to Recovery here -------- 👉 centenoschultz.com/CCI-101/
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Are you suffering from CCI and would like to see if you're a candidate for the PICL procedure?
Start by filling out this form -------👉 centenoschultz.com/candidate-...
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Learn more about the CCJ Instability Institute at Centeno-Schultz Clinic here: centenoschultz.com/craniocerv...
#craniocervicalinstability #cci #centenoschultzclinic
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Please watch: "Cervical Disc Replacement Movement vs Normal Disc"
• Cervical Disc Replacem...
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If you have medical questions, please feel free to drop us a line here: centenoschultz.com/contact/
Wish you had earlier appointments !
Thank you gentlemen. I sent you a message and look forward to hearing from you.
What is the percentage of it working in Eds patients
@@everydayyoutuber4695 did you ever get a answer? For treatments up to $14,000 each, I would like to know before I send more doctors to Europe.
@@americangirl6582 no
As an ER nurse, still it took two years to finally get diagnosed with cervical instability. All of these weird symptoms now make sense. It's too bad that most specialist are not familiar with this condition as they should especially when forward neck posturing with cellphone use is going to have many seeking answers.
I thank God for Dr. Google, RUclips University, an outdated PDR, not falling into the opioid crisis, a DMX, a recent thin slice MRI, and myself for not accepting being misdiagnosed. This is as eye opener as I search for appropriate treatment. Thanks for your valued information.
Thank you Patricia. I'm glad you were able to get a proper diagnosis. You are your best health advocate.
your symptoms
Are you better now?
Why are these treatments only for the rich? I have been bed and housebound since age 32 with very severe cervical and thoracic spine issues. It took me all of these years to finally get a cci diagnosis, "severe" stenosis, bone spurs cutting into nerves in my neck etc. All I ever wanted to do was have a life and go back to work after a thoracic spine surgery in 2011. Ithought it was going to solve my neck issues but it never did and I worsened and now found out I have been dealing with CCI, untreated lyme disease and mold toxicity that drove me out of the only place I had to live and be bedbound.
My life is completely destroyed. I haven't lived since 2010. Not a day. No marriage, children and career for me. I am in level 10 pain constantly. I either have to go into a medicare nursing home because I now lost my home ( and honestly I rather die than be stuck there like this unable to get myself out) and have no caregiver to help me. I had an appointment with these guys last year to get an estimate because whilst I probably NEED the surgery after a lifetime of my neck being like this and worsening everyday, I am scared to death of surgery and I cant even have it right now because I have no where to recover and no one to care for me after. No friends or family.
My hopes to live were dashed when Centeno Shultz quoted me a $10,000 figure to just do this the FIRST time.
I cried and begged to the doctor that I need this but I have been on disability thanks to all these undiagnosed issues since 32. I am 44 now. I asked if I could please do a payment plan or could they please do SOMETHING to help me asI truly dont have much time on this earth. I lost all my savings because I lost my home and have had no where to live and I cannot sleep in anything but a bed. In 2 weeks I get kicked out of this hotel where I had been bedbound in a neck brace trying to hold my head up from crushing my spinal cord and nerves.
I am heartbroken. Because I am on disability and cant come up with the money for this I deserve to die or risk surgery in the future which I feel could very likely make this worse? Do you guys have any heart?
Why can't the people who are MOST ill and Disabled access this?? Why charge SO MUCH? A truly disabled person with this condition cannot afford $10,000 for ONE treatment that just might help their suffering and maybe give them a chance to regain a life that ended at age 32?? I am in constant level 10 pain and cannot even think to help myself and all I have is myself and I cannot advocate anymore than I have. I am too sick and in too much pain. My entire spine is on fire and I cannot even move my neck in any direction. I am so terrified that I am going to die on the street soon in my trusty ol neck brace that really doesn't even help much with the pain.
I really needed to do this and now may have to consider assisted suicide alone in another country or risk ending up in a US nursing home at 44 which will probably kill me with all my other conditions.
I am so disappointed and sad. This is NOT fair or right. This might have allowed me a chance at life. One I very much deserve to have back.
Im in a very similar situation.
@@El_Superhombre_Blanco I'm sorry. No one should be without access to care due to financial restraints. Especially if it's life saving.
@@ahmadalali1571 no, still very very unwell. Still can't get access to the help I need. They didnt even respond to my comment. No humanity left in this world.
Thank you for asking tho.
@@ahmadalali1571 Thanks. I wish that were true but it hasn't been for me. There is really no solution for me it seems.
I have unusually severe structural and connective tissue problems specifically in my upper body. I feel my spinal cord being compressed and my brain stem. It's always catching on something and meanwhile bone spurs or something are digging into it. I cannot move my head in any direction. I have very severe thoracic outlet syndrome, cranial cervical instability and TMJ disorder. I am constant level to 8 to 10 pains and no one will give me pain meds so I can at least have some quality of life. I don't even know if that's possible because I cannot move my body from the shoulders up. at all. My head and neck doesn't move. it's stiff and stuck in one position. My jaws an face and head hurt constant from all the nerve compression and muscle contractions that never stop. I also have Lyme disease, chronic fatigue syndrome severely and mold toxicity that made me homeless from severe mast cell reactions that were killing me.
I'm dying in my car and I'm in excruciating pain and can't move. I had my own home and a good job and it was all gone at 32 because that's when all this spine stuff disabled me. I'm 44 now. My life is over and again, my only option left to end it all is assisted suicide because these doctors care more about the almighty dollar than helping the most severe cases, like mine.
Thanks for asking.
@@0220LMB I wish you were in my country, india. Every essential health care service is provided by government for absolutely free.
And even if you want to raise more money for your complicated treatment, you can easily get it 1000$ in day by crowdfunding.
Btw well wisher of you health.
I was certain that CCI was skull+C1 and AAI was c1+c2. I've also heard that chiropractic is contraindicated for those of us with EDS.
Thanks. Very informative
My first set of doctors diagnosed me with traumatic onset chiari.
Whole time I was telling them it was my neck.
ADI: 5.6MM
CAA: 114°
Grab oaks: 18.7mm
Very interesting, I have full body experience, I'll say it's Scarey / Crazy. Well needed information thanks. E
I had a head injury in 2020 from a metal gate, since then I've been having all these symptoms starting with terrible dizziness, confusion, brain fog, constant panic attack's, internal tremors, neck pain, headache's, Insomnia, balance problems, vision problems, muscle weakness, sound sensitivity which has gotten so worse that I cannot tolerate any loud sound.
Now it's been 5 months I've been having constant GRINDING neck pain, terrible tension HEADACHE'S with every movement, having facial pain with sinuses and internal tremors have become sooo worse. Did CT SCAN, it showed intervertebral disc space of C4/C5 slightly narrowed, Reduced cervical Lordosis suggestive of muscle spasms and Mild cervical spondylosis.
But I've been feeling that I have CCI but doctors don't take it seriously and referring to a phycologist, I get alot of horrible panic attack's from all the noise sensitivity 😢
Most doctors have no idea about CCI. If you think you have it get a consult with Dr Centeno.
In 2017, i got into a car accident. I didnt even think of it at the time, but thats around the time when all of this started. First shoulder pain, which my doctor diagnosed as thoracic outlet syndrome. I did hours of physical therapy but the exercises never felt good. I could never achieve incremental strength growth, and after countless hours of physical therapy, i felt weaker than ever before. Around the same exact time i started getting acid reflux every single day, no matter what i ate. I spent the past 4 years exhausting every resource Kaiser had to fix this feeling of total instability and disfunction in my body in so many different ways and areas. Now weve moved onto UC Davis. I was a Cal Poly student but had to come home my senior year of college because the pain was too much. The brainfog has me feeling like an alien. Its crazy. Life did not used to be like this. Looking back the accident didnt seem major but this seems exactly like what i have, down to a tee. I believe i have vagus nerve impingement. My TMJ joint is micro misaligned. My head feels heavy all the time, and the literal only time i get relief is when im horizontal in bed, all weight off my neck and spine. It seems so obvious to me that this is my disorder.
Hi Peter,
Don't stop advocating for yourself. Please look into non-surgical orthopedic clinics in your local area or if your schedule, allows please contact us in our Denver office.
I am also a cal poly student and looking for diagnosis/treatment for CCI! It’s definitely hard to find treatment and accommodations in the central coast. I hope you are doing a little better when you see this.
@@reinaknowles8987 i got diagnosed with CCI by dr centeno 2.5 months ago. I think i followed you on instagram if you have any questions or want to msg me
@@peterlevis4130 are you currently receiving treatment?
@@marionharris5952 yes
I slipped on ice some time back and since then my daily life is horrible, I'm constantly fighting with myself to stay on ballance I feel like I'm falling at least 5 times a day, my neck and jaw hurts,I have bad visual disturbance and my heart races at times sending me into horrific panic attacks, I'm self employed and need pay all my bills to provide for my kids and wife, I cant afford to take time of, Ive been for xray, mri, blood test, deficiency tests, heart tracer, and still everything was clear, my Dr looks at me as if I'm crazy when I explain my symptoms, I'm nearly crying writing this as I believe this is what I have. Where do I go from here, I live in UK and feel hopeless.
Hi I’m also same and live in uk
My Dr has now refusing to help me further
There's a lot to cover. Go here and read this book: centenoschultz.com/cci-101/
It's a free download. Also, find our CCI group on Facebook. You may or may not need the procedures we offer.
Im going through the same exact thing
Try prolotherapy or ligaments specialist
Or atlas orthogonal adjustment
Have you considered other conditions that mimic the exact same symptoms as CCI? I've been suffering from very much the same symptoms as CCI for 9 years now, and my previous diagnosis was CCI (among others prior to that). However, another neurologist underwent special imaging tests with intrathecal dye and it turned out that I have multiple thoracic level CSF leaks, one of which is the so called CSF Venous fistula and thus the cause behind my occipital pain and heavy head sensation while standing or sitting.
we dont seem to have anyone in the uk to help us with these symptoms
How do you look for basilar invagination verses cci/aai? I don't see the McRae, Chamberlain, or McGregor measurements on your site
They are not the only Clinic that is doing this and doing it appropriate and right dr. Ross Hauser from the caring medical neck Center in Fort Myers Florida is one of the top guys in the country doing this he has people flying in from around the world coming to see him I'm one of his patients
absolutely not they dont inject alar and transverse like centeno clinic does
Hauser doesnt do the PICL procedure that he is talking about
Ross Hauser is a fraud
What is the picl treatment consist of
@@michellemustari498 Ross Hauser is a big scamster...don't take treatment from him
Loving that CalPoly Dad shirt!!
To the guy who attributed Hauser and Caring Medical. You’re wrong about that. Hauser didn’t invent it. Centeno-Schultz (Regenexx) invented Stem cell treatment, PICL and so much more. They are the best in the country with CCI treatment and possibly the world. Do your research.
What's the difference between this injection and prolotherapy?
Can ear congestion-pressure be a symptom? I have a very stiff lower neck- in my traps. I also get what feels like pinched nerves throughout my spine. Might last a few days and then resolve.
Hi Rooted Rotor,
Symptoms vary from patient. I definitely recommend making an appointment with your local clinic or call our office if you are in the greater Denver area. You'll need an in person exam to formulate a proper treatment plan
Hi, I have Chiari Malformation, Cervical stenosis c4,5 & 6 area, I was to have a scan with movement to diagnose CI. I live in Scotland and had to travel 4 and a half hours to the hospital for scan (which my headaches and body pain and fatigue etc hates) when I got there, I just got 2minute flexion scan and 2 mins extension scan with no movement and lying flat. Waited 8 months for results which I had the 9 hours round trip to be told I didn't have Instability. I said I didn't have the scan with movement and the doctor just grunted. I will be getting Chiari op hopefully soon and then op for stenosis, my question is with the crossover of symptoms how do they know that my problems are not from instability as I read instability can only be diagnosed with scan with movement. Michelle
Sorry to hear this, I’m in a similar boat in the uk. I had to travel to Barcelona and need a lot of surgeries which I can’t afford and the doctors here just dismissed the findings. I fought to get them to scan me in motion as it makes no sense to be static in the scan but it’s just tumbleweeds with the NHS. Sorry you are going through this, you’re not alone x
I probably need this. I had a parachute accident in the Army, and C1 rotates forward and to the left for me all of the time. I have low lying cerebellar tonsils as well. My neck is so f*cked up along with the rest of my spine. But this C1 thing shuts off my life-I see double, want to die, feel nauseated, can’t sleep, feel like I’m being stabbed in the skull, etc. I have to see the chiropractor twice per week and also massage and/or acupuncture. I’m a mess.
How are you healing?
How are u doing now?
Sorry you're going through this. I hope you are feeling better now. How was it diagnosed did a cervical mri see it?
Yo help me too i cant even leave the house get enough fentanyl to take us to the next stage. Chiropractors can make things worst
I dont know who you are but i relate to this so much and i have resources that can help you. The chiari institute and Dr. Paolo Bolognese diagnose and save peoples lives just like you. I know because i talked to a person who had a very similar story and his life was saved through 2 major surgeries, one Lumbar, one Neck fusion. theres Hope. I Promise. I am a patient in his system and i was going thru the LLCT diagnosis as well as CCI and others. Dont give up, i suffer everyday as well but i havent.
How about atlas orthogonal adjustment
I did NUCCA it really helped me a lot but I have a heavy head and the adjustments started to not hold after about a year and a half so unfortunately I'm going to have to try this now.
Does cervical instability cause exercise intolerance? Anytime I try to exercise the day after I can barely move and feel so weak and irritated.
Yes it absolutely does
Did I understand things right from one of the ppl commenting here that you charge 10,000 a shot? If so, that’s criminal!
You say doing injections for treatment. What exactly is getting injected?
Good question and yes inquiring minds want to know.
Hi doc , can a neck traction cause cci trauma ?
Hey can we connect? I too have CCI
I've read that immobilisation using a neck brace for several months can be an affective conservative treatment method for alar ligament injury
Have you ever found this to be the case?
Yes, possibly. Ligaments end up getting tighter and stiffer when immobilized 24/7 for a couple of months. There was a case study I read where a patient had a small tear in his alar ligament that was managed with rigid collar bracing for close to a year. The last MRI he got showed healing up the ligament
@@deeppatel1150 I think you are from india. Please help me I think I have cci bit how to get it diagnosed
@@031shubhrajitporel2 I'm from the U.S. actually
It can cause more problems because due to immobilisation the muscles and tendons degenerate even more because they are not being used which can worsen the instability.
@@031shubhrajitporel2 i am from India brother 🥺
Is anyone else experiencing tinnitus?
I had cervical fusion five and six and seven 2017 and I’m now having problems with instability can I be helped?
Hi Vivian. while scrolling down comments came across your comment and I was wondering the reason you had the cervical fusion surgery and why are you having instability problems after having it done? Sounds like you had a successful procedure done, but maybe your recovery time is taking longer(?) How are you doing now? Hoping youf find the help you're looking for. Best wishes for a complete and full recovery. 🙂
Regards
To answer your question yes I wil need surgery because I cant afford a $9,000 injection let alone several $9,000 injections.
Gee l don't require Cervical Spine Instability... just require PRP INJECTIONS 💉 OVER HERE IN AUSTRALIA 🇦🇺.
IF U GUYS CAN FLY OVER HERE BECAUSE I CANT FIND A SPECIALIST(S) HERE IN AUSTRALIA FOR THESE INJECTIONS.
LAST 68 MONTHS HAVE BEEN A NIGHT MARE 🌙 😴
Do any of u guys suffer with pain in neck and shoulders
Hi Westside KAsper,
We definitely can help patients with neck and shoulder pain.
We invented it. 😂 Dr. Ross Hauser at Caring Medical, he invented it and he’s been doing this for years! Look him up!
I never put comments on youtube videos but as a neurosurgeon I must say I'm disappointed with this video. My strong advice to anyone with hints of CVJ/CCJ instability is to consult a neurosurgeon and AVOID any manipulation whether chiro or physiotherapy.
Hello sir, well I'm just hunting for the right answers. I have recently undergone a C5/6 spinal fusion in 2022 but I now have bad balance or equilibrium issues, or at times like now my brain feels like it's being pushed or have butterflies in the belly sensation at times, or my head feels like the skin crawling sensation also. There are days where I have these headaches, neck aches, my eyes hurt, and then my mouth feels like pressure on my gums at times so does the feeling in my lips. Pain shoots in the deep inner ear like nerves or something. But I'm looking for true help and remedy.
As a patient, my strong advice is to not have surgery unless absolutely necessary. I have not had neck surgery, judging from my several wrist/elbow surgeries, I will never let a surgeon touch something as crucial as the neck. Surgery is barbaric and surgeons never actually practice informed consent.
As a Mom with scoliosis and a 21 year old with scoliosis, joint laxity, POTs, non epileptic seizures, many many many symptoms, I will NOT take her to a chiropractor to just mess around with this EXTREMELY FRAGILE part of her body. My God. I can just imagine her lying on the table looking up at me saying, "I can't feel anything below my neck..." These guys seem pretty casual about what is essentially your lifeline.
@@chrisl418 Depends on the chiropractor. Any decent, ethical chiro would insist on imaging, and might still never touch her neck, all without you saying a word. Surgeons on the other hand...