A moving tale of resilience - the story of KDSP

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  • Опубликовано: 2 окт 2024
  • "We were made to believe, with all our conviction, that our daughter's life was not worthy of living..." says Ali Allawala, reflecting on the trauma that he and his wife Farzeen faced soon after the birth of their first daughter, Alaiyah.
    Alaiyah was born with a diagnosis of Down syndrome.
    "When everybody gave up hope on her... she fought back," says Ali, as he recounts the inspirational tale of resilience that is manifested not only in Alaiyah's life, but also in the Karachi Down Syndrome Program - which Ali and Farzeen co-founded in 2014.
    KDSP provides various services for children and adults with Down syndrome - and guides their caregivers into ensuring that their development and integration into 'typical' society does not suffer because of the stigma associated with the genetic condition.
    Watch this interview to listen to the entire story, how KDSP operates (04:48), (07:03); and the cycle of emotions a parent goes through on this unique journey (08:06).
    -
    [Correction]: The subtitles at 9:00 say 'carrier typing,' whereas the name of the testing procedure is 'karyotyping'
    #Downsyndrome #Awareness #KarachiDownSyndromeProgram
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Комментарии • 37

  • @charliee4343
    @charliee4343 4 дня назад

    This man is so gentlmann, he is so well educated and so well brought up❤

  • @saeedasg8550
    @saeedasg8550 4 года назад +9

    This man is really positive about Life, everybody life. Please keep on such great work in Pakistan.

  • @hafizjamil7040
    @hafizjamil7040 2 года назад

    Ending was really very emotional
    Literally

  • @nasimakhtar923
    @nasimakhtar923 Год назад +1

    I myself has a down syndrome baby n i can relate to each n every word u said as Dr's here told us the same thing that our child life is not worth living n did t carry out her surgery as well.... She is a 5 now just with the prayers her life is going or as Allah blessing... I really want to know if u have any branch in lahore to guide is.... I have enrolled my daughter in a special school no n i really want to see her going to normal school.... Can u plz guide me... Thks

  • @mamug9277
    @mamug9277 Год назад

    الحمدللہ میں مطمئن ہوں

  • @samrafarooq830
    @samrafarooq830 3 года назад +1

    Pain in his eyes.....
    I can understand
    Only those parents with special children can understand

  • @FatimaZahraHassan
    @FatimaZahraHassan 3 года назад +2

    This is so inspirational. Great work !

  • @SandhyaMathew
    @SandhyaMathew 8 дней назад

  • @hmazari8622
    @hmazari8622 3 года назад

    Good bhai

  • @rupagaidhane4004
    @rupagaidhane4004 Год назад

    Ky aap hamari mdt kr sakte h please

  • @samiawaqas2045
    @samiawaqas2045 3 года назад

    ASSALAMUALIKUM my 16 month old son has DS and we live in Sweden because of all facilities our son is living a very normal and healthy life ALLHAMDULLILAH

  • @Cattycattycat
    @Cattycattycat 2 года назад

    Proud of you Ali. Aaliya is truly blessed to have such parents and you are blessed to have her that she brought such a change in your and so many people's lives

  • @alishahzad6990
    @alishahzad6990 3 года назад

    Y school kana hy

  • @arjub9431
    @arjub9431 3 года назад

    What a beautiful message…
    This guy and others like him are the reason why I still believe in goodness.

  • @maryamshahzadi1321
    @maryamshahzadi1321 4 года назад

    Great work you are doing kdsp is a right platform for these kids from haya qureshi's mother ,a member of kdsp

  • @samrafarooq830
    @samrafarooq830 3 года назад

    Epic statement
    We cant control everything in life

  • @hafizjamil7040
    @hafizjamil7040 2 года назад

    Meri beti ko bhi down syndrome hai

  • @hafizjamil7040
    @hafizjamil7040 2 года назад

    Kya multan me apka koi center hai?

  • @Fabihareels
    @Fabihareels 3 года назад

    Mri beti dairrh month ki h or wo down syndrome h. .. kia aap mri hlp kr skty k me apni beti ki behtreen tarbiyat kese kr skti???

    • @amirawan8078
      @amirawan8078 3 года назад

      In lahore children hospital is doing a best job for this purpose my daughter is slso down syndrome and i goes there for check up of my daughter.

  • @hmazari8622
    @hmazari8622 3 года назад

    Love you #KDSP

  • @amirawan8078
    @amirawan8078 3 года назад

    I have a daughter of down syndrome .Her age is 11 month now.l wants some guidance now.In lahore children hospital is doing best work for down syndrome children.But l am searching the parents who has facing these stages plz contact with me.

    • @muhammadhunain1592
      @muhammadhunain1592 Год назад

      Ab aap Ki Beti chalti ha mashaAllah?

    • @zainabbutt9990
      @zainabbutt9990 Год назад

      Plz guide US Multan mai koi Institute hai jo bachoun ko train kr saky ur dosra kdsp c ksy contact kr sakty hain

  • @sohaibahmed4705
    @sohaibahmed4705 2 года назад

    Kia ye sirf Karachi my ha

  • @adeelahmadchishti265
    @adeelahmadchishti265 3 года назад

    ☹️🌠

  • @hmazari8622
    @hmazari8622 3 года назад

    #SarahMazari

  • @zoyamalikart
    @zoyamalikart 3 года назад

    ♥️♥️♥️

  • @quranknoledge1527
    @quranknoledge1527 3 года назад +1

    Hats off to all those who love their motherland and trying to bring about changes in our society as a whole due to their heart wrenching life experiences.

  • @nailakhurram1986
    @nailakhurram1986 4 года назад

    Kdsp sirf karachi me he?
    Kiya Rawalpindi ya Islamabad me nhi?

    • @mohammadmallickmbbsmd7968
      @mohammadmallickmbbsmd7968 4 года назад +1

      There is a treatment for Down's Syndrome that reverses the symptoms and allows the child to appear and grow like normal. The genetic defect can not be reversed, but the expression can be suppressed with this treatment. Please contact me if you have a child with this disorder. WhatsApp 03333008106.

    • @muhammadziaulhaq12
      @muhammadziaulhaq12 2 года назад

      @@mohammadmallickmbbsmd7968 Please elaborate.
      Is it possible that you are claiming about.

    • @muhammadziaulhaq12
      @muhammadziaulhaq12 2 года назад

      Have u got any institute in Islamabad for DS children?

  • @shahidahassan1244
    @shahidahassan1244 2 года назад

    Very informative knowledge

  • @ammarakram7119
    @ammarakram7119 3 года назад

    A true inspiration, Pakistan needs more people like Mr. Allawala! The initiatives you've taken and the work you've done is phenomenal. God bless.