Видео

I am lying in bed right now. I am having the worst week, thus far, of my life, living with Fibro. I am now 60 yrs.old. The onset and diagnosis of it was when i was 27 yrs.old. I am so phucking tired of this sh!t! I feel so bad that i can not understand how having this extreme amount of pain and suffering hasn't caused my body to just give up. My skin is so sensitive to heat and cold, fabrics, and touch. I feel like i have a fever. All of my joints and muscles hurt. I have so many places on my body that are so TENDER. My neck and upper back are on fire. Last week i went to the chiropractor to get an adjustment. Bad decision!! It hurt me so much. I had made an appt.with a massage therapist. I had to cancel it. It would have been excruciating for anyone to touch my muscles. My shoulders, my back, my hips, my outer knees and my feet. I like to be in the dark when i don't feel well. I have had to disappoint my family so much because of this damn condition. When i am having " CRAZY " pain, all i can do it try to make myself as comfortable as possible and try to sleep and rest til i can have the strength to do the basics. The pain can make me feel nauseous. I could power - through in my 30s because i had 3 daughters to raise. I used to enjoy working in the yard. Now i will have to have bed rest for a week following any normal activity that people do. My husband passed away three yrs ago. Now i am a widow who lives alone. I have no help. I will continue taking care of myself like i have always done, until i give out. I also have stage 4 kidney disease. I am a Christian. I just call out to the Lord, just to please help me. If i couldn't be able to do that, i would have no hope. Having a flare up is like putting your life on hold until it subsides. They ( the medical doctors )for the majority, have no clue about what can really help. I have done it ALL! THEY say its not progressive as you age. I disagree 100 percent. I would not ever wish this condition on my very worst enemy, if i had one. I think that mental trauma has a direct effect on the body. Its like trauma is stored up in my body. I see a great therapist so she helps with those things but i think that ptsd is brutal to the body and has some long lasting effects. I have had some trauma that i just tried to move on from. Out of sight, out of mind... Whatever it may be. That never works, unfortunately. All i can say is just do the best you can. If others don't like it or think its not enough, let it be. If they had to spend one hour in your shoes they would be begging you to give them their shoes back, guaranteed. Nobody knows what it is like to have Fibro, if they have never had it. That also includes medical doctors.

Fibromyalgia has made me hyper focused on stretching. Now I am as flexible as a cheer leader

I smoke pot for my fibromyalgia but makes my back hurt extra. Helps everywhere else, hurts my back.

I just came across your page today. Thank you for sharing your journey. I was just recently diagnosed and have been dealing with this since catching COVID in January of 2022. I finally found a daily medicine that helps me some. The fatigue is another thing and I suffer from the dark circles under my eyes. You showed putting eye mask on, can you share what brand?

Girl, thank u so much for posting. I’m having one of those days, shaking and nauseous today from Fibro pain. It’s nice to feel not so alone in this. ❤

I have watched several of these videos and non of them have leg pain? I wake up stiff with severe leg pain and cannot walk or move. has anyone experience this? or shoulder pain so bad that your hole arm hurts and cannot move it at all from the pain

Angee, the algorithm sent me one of your cleaning videos today. Probably because I like to watch them! Anyway, I think you would do well with the Flylady cleaning system. I recommend Diane in Denmark’s channel. She has some playlists that are great and timeless. You could start with the 31 baby steps if you like.

Just want to clarify, I incorrectly said I was on painkillers, but what I meant was my fibromyalgia med that killed the pain: Lyrica. I was on Lyrica at the time I filmed this video, and eventually stopped because of side effects such as weight gain. I am now taking Nortryptaline and my fibro is under control. I am aware that painkillers don’t do much for fibromyalgia and I’m sorry I didn’t catch that mistake in editing. ❤

I take Lyrica or Pregabalin. Only thing that kills the pain. I don't know why you are taking pain-killers because FMS is not affected by opioids/traditional pain killers. They don't work, but Lyrica does, and not the same side effects. If you have not tried it, it's worth it-just in case it works for you.

It's so bad it's hard for me to drive too far😢

Thank you so much for the reply to the eye masks , and these videos xx

Hello What is the brand name of the eye masks and where to get them.please. Many thanks

Girl I loved the way you said Fatigue!

You made me feel better because I struggle to do small things and before I got chronic back pain I was on the go all the time. Now if I get up and take my medication and wash that is a triumph. It is hard to explain to others who are not in chronic pain. I mean where do you start. I feel like an apology before most people coz I can't do the things they do and I did and amongst all that I have to try to find my own way. Got seriously depressed last year after having to put my cat down from cancer aged 14 years and then in 2022 being hospitalised because of a pulmonary embolism and I was in end stage heart failure at the time. Such an almighty shock. My heart failure is much better with medication and under cardiologist care. I am so grateful for that and I am just getting out of the cycle of severe depression which was rooted in all the things I can't do and the financial stress of being chronically ill. I am just coming out of that now and I have to learn my life is completely different now and learn to adapt. Thank you. I am glad I found your channel . Keep going ❤️

Wow well done you for pushing through! I thought you were going to just lie in bed…. I feel your pain I have fibro chronic fatigue osteoarthritis and inflammatory arthritis…. How long do you air fry chick,peas? X

Niacin flush is worth the researching. It doesn’t resolve all my fibroid symptoms but it sure helped out a lot. To do this correctly I match same amount of niacin to glycine so 300 mg of each taken at the same time 3 times per day with fatty food. However I take the last dose before 7pm so that it doesn’t interfere with my bedtime routine.

Hey. I hope that U r ok?

I love you

I use eye cool gel masks for my burning feet and palms, just freeze it and roll it gently please. I burst in tears seeing somebody understands this specific fibromyalgia pain

I get pain all around my head. Not a headache although I get a lot of headaches and migraines, but the head itself. Painful and sensitive when touching, or even when the head is down on the pillow.

Send you a big fat Hug. I also have fibromyalgi

Hey just started following , When do u put new vids out please

HUGE achievement getting yourself out of debt congratulations!

I take 10 mg of Amitriptyline at night and my pain is totally gone! I almost had to quit work because of no sleep and so much pain. I thank God for answering my prayer and I'm so grateful. I hope this helps someone. Keep the faith and never give up.

Hi , new sub. I found you on insta, and wasn’t sure what was wrong, but felt like I could relate somehow. I have a screwed up back and have had neck surgery, rotator cuff surgery, and two (R) hip replacements that have dislocated 3 times! I get it! Pain is so difficult, to never have a break!! It dulls but NEVER goes away! I love the idea of the aqua therapy, I’m just worried about getting in a pool, and not having the strength to get back out, due to no strength in my back and legs. I have Neuropathy in my (R) leg. You have given me the idea to try. I just don’t want to fall or be embarrassed, that I can’t get back out, but I know it would help with the terrible muscle spasms that never stop. Thank you, for your encouragement, even though you don’t know me. I understand you so much, when you said you like to go to bed I was so surprised. That’s a true blessing. Bedtime is the worst time of day, for me!Most nights I get maybe 1-2 broken hours to sleep and I am awake again due to pain. The pain med makes me wide awake, but if I don’t take it I will never fall asleep either. It’s a double edge sword. I would love to be encouragement to you somehow! Sometimes, just having a listening ear from someone that doesn’t know you personally helps a lot, but I mainly keep to myself. It really designated with me when you were talking about cooking or standing to complete it! My life savers are my instapot and the air fryer. Because I don’t have to stand and wait or babysit most of the time! I hope you have a good weekend and look forward to help encouraging you in the future! Thanks 🙏 for bringing the water exercises up, you didn’t know it but it was very helpful to me. I’m going to try, if you can at least I can give it a shot! You never know where good things will come from! Wishing you all the best and know there is always something bright about everyday, even sometimes we can’t see it or feel it! Hope to talk to you soon and watch some of your other videos. God bless you❤️

I love thrift stores ,we call them charity shops here ,but hey same thing , I love a good rummage, U can pick some great expensive looking things up And clothes ,i love it when i find makes i carnt usually afford ,

I do the toilet roll holder works brilliant

Brilliant well done u , U got this

Don't over do things tho sweet One wall ,one day ,rest in-between

Hi lovely Ur so so right The kitchen is the room ,that takes forever There allways so much more to do , It's the room that takes at least 4 days to deep clean , If u add the pantry and utility longer My cleaning rule for a spring clean ,is 1 wall a day , Means every thing on that wal All along gets cleaned Cubourds/ draws emptied and cleaned even on top Every thing in them gets cleaned and put back , All Cubourds doors cleaned ,ect , And allways go along with 3 bags 1 for keeps ,1 for rubbish ,1 for charity , This works for me ,takes longer ,but so satisfying

I have fibromyalgia!💜Do you mind sharing what medication you use? I have gabapentin and hydroxychloroquine

I am a 29 yrs boy same disorder n my life drestoy what a this a disorder treatment

Who else gained weight and lost their hair with fibromialgia?.. weight gain even makes the pain in my shoulders and legs worse and my depression worse .. the depression makes the brain fog and lack of concentration worse but despite all of these symptoms The FATIGUE is the worst..oh if only i had energy.

Covid made mine worse.I could ride a bike before covid now I have to walk with a cane.I suffer from vertigo and dizziness every day.

When I have leg pain where I cant sleep it helps to sleep in the floor.The medicine Mirapex helps with restless leg and pain.Also tramadol and advile helps.What pain medicine do you take?

Today I was like u dear I couldn’t get out of bed till 1 in afternoon,take care ❤

Same about the decaf. Even decaf makes everything better. I relate to your pain. I’m sorry you have to live with this too. 😢❤

Love the idea of adding pasta to the chilli to stretch it out!

Hi. I got 2 tri sum ov theez. Thankz

Hi. How r U doin? Im nu 2 ur channal? I like ur vlogz. i hope that u r filin wel., U & Peppor! Hope 2 c U sooon. I didnt c tha link 4 tha glovz. Did I mis it? I waz hopen thay wood help mi handz 2. Thankz c u lator🐈‍⬛🐈‍⬛

Hi. Wow Im soo happee 4 u. Pleez 4giv mi spelin. I reellee kant help it. Thank u 4 ur understandin

I too need to purchase a sleep machine . They are so expensive ! I finally have enough money to purchase one . I too have chronic fatigue and fibro . With the sleep apnea . Hopefully I'll feel better with mine as well . Glad to learn that it worked well for you . Give Pepper a hug from me .

Love the ear rings . Lol . I would so wear them ! Pepper is a true darling !

I love love love thrifting . I thrift everything . With the exception of undergarments. All my furniture is second hand . Love you kitty .

Im an avid thrifter . 95% of my clothes and apartment furniture and accessories are thrifted

I've just discovered your videos . Now I'm doing a video marathon . I find your videos interesting and relaxing . Thank you . London Ontario Canada

I'm a 66 year old low income diabetic senior . I can't eat potatoes , pasta dishes , bread . These carbs raise my blood sugars . Most of my diet consists of protein and vegetables . I just cringe in frustration when I buy produce . Let alone meat .

XOXO FOR KITTY

I always end up forgetting to wash my floors . Kitty is so sweet . ♡♡♡♡♡

Love love love your glasses on you .