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Power assist is such an individual thing - for me, I needed the lightest possible option because I live alone, go out alone, and I have to break down my chair every time I put it in the car, so, after exploring all the options out there, I determined that a SmartDrive was the right fit for me (and you can in fact go backwards with a SmartDrive on your chair, it just won't push you backwards), but I know other people where their needs and options are different, and so they went with the power assist wheels. It just depends on the person. What type of chair and power assist did you end up going with? I've got an Aero Z and SmartDrive (my next chair, which I can get next September, will probably be a ZRA, because I need the weight reduction that titanium will give me).

Excipients, dyes, fillers in meds, both OTC and prescription, often tend to cause more problems for some people than just about anything else. The irony and stupidity, of putting that stuff in meds for people that are hypersensitive, is just stunning.

Finally making some progress with getting a diagnosis, got a rheumatology referral for the first time! I’m nervous but optimistic, been navigating this since October

I enjoy your videos

i hope in 2024 you are doing well

I have eds and I'm a quadriplegic and ms. I can definitely recommend the quantum edge 3 stretto with eye level. It has a much smaller wheel base. I also have the spirit autofold. Both are really good chairs

Did you experience gas or anything?

I also had a mild odor and light bleeding the second week. Hoping it’s not an infection but won’t know until til tomorrow. But it’s so uncomfortable sleeping because it feels like an ocean in my belly

Thanks

Does putting the salt in capsules help with bowel irritation . I've been straight up licking salt or dissolving it in water. It alleviates pots symptoms, but it has a bowel flush effect that feels unhealthy long term.

Thank you

Thsnks for this video. I am 6 wks post op but still in pain and uncomfortable. And sooooo tired! Dr says I am healing fine but recovery has been much harder than I envisioned!

Thank you for sharing. I'm having mine next month . 😢😢😢..I'm so worried and scared 😢

When you get older it's worse to get one.

I love you❤❤

I have loved all of your content, I’m excited to see more and you’re especially relatable. You’ve got this 😎.

Salam, I am from Morocco, I am married, I have a child, I have intestinal paralysis, I visited more than one doctor and I did not find it. I have lost a lot of weight. My psyche has always been destroyed. I always feel full and heavy and vomit.

So I have EDS and POTS as well and am trying to find somewhere to get fitted for a wheelchair in my area, this video was super helpful in giving me an idea of what I want to get. But I noticed you wear ring splints, and I do as well, has that interfered with using a wheelchair for you or damaged the splints at all? I use oval 8's right now but am waiting on getting some metal ones with insurance and I would hate to spend money on them and they get messed up. Thanks!

Thank you for explaning the diffrence between the chairs and what they are able to do

At last. Someone else who gets excited about receiving an Amazon package 📦 lol. Thank you again for making this brilliant video xxxxx ❤

I’ve had fibromyalgia for over 20 years and slow swimming is the best exercise, that’s if you have any bloody energy to do it. I have gastroparesis too and apparently it’s gastroparesis that gives us night sweats. Big hugs and thank you so much xxxxxx ❤

I don’t know where you live, but there is a dysautonomia specialist in Toledo, Ohio. They have an incredible program. I haven’t been there yet, but I got really fortunate to find a neurologist who has patients who have been treated. It’s unfortunately, treatment came far too late for me. I have just a few years left to live because I developed restrictive lung disease from chronic atelectasis (partial to full lung collapse). I was diagnosed at 13. I’m 53. Don’t let them tell you it’s all in your head. Don’t let them tell you it’s nothing.

I had key hole surgery

I had a Hysterectomy 23rd March I felt awful for the first and 2nd day Had to stay at my mums Shoulders felt sore not feeling great !

Thank you for sharing April 8 was my surgery date best thing I ever did!!!

do you have any tips for those looking into getting a wheelchair for EDS and POTS?

I have a friend with this syndrome. ❤️ You are so brave. ❤️ I am cheering for all of you warriors who wake up and face this everyday.

I'm having a hysterectomy next week I hope my recovery goes as smoothly as yours did

I have a tilt table for the second time in two days

Just got my custom wheelchair on Wednesday! The frame is neon pink and it is a Tilite as well. I have a power assist too! :-) Love your channel. :-) I have a lot of the same conditions as you.

Hi

Thanks for sharing. I'm almost two weeks post op. It's good to see others journey.

Foul odor, blood or spotting I would run to the doctor!!!!!!!!!!!

Did you have the gardasil vaccine by chance?

Brilliant and I love your dog. I have a dog. She lives with our house rabbit! He has his own here called rabbit special needs he pretty cute. This is fantastic and really interesting thankyou

You'r strong. Eat healthy food to stay health and be safe. Hope you'r getting better. I'll Pray for your health. Love from Malaysia😘😘

wow. well you are inspirational and lovely to watch. much love

I hope you get some relief and comfort! I just started making videos about my struggle with EDS and other health issues!