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Thank you. Most, if not all, information about Ataxia out there is not correct because everything is funded by the FDA and big pharma. It's all about money and just remember a healthy person is not good for business.

@ Amen

@@mabubaker1745 shivering, like tremors?

Yes

Backwards fall frequently

@@mabubaker1745 b2 and CoQ10 together twice a day can help: Vitamin B2 & CoQ10 for Tremors? | Is CoQ10 Worth The Hype? ruclips.net/video/q1jOgsNX2vs/видео.html

@ keep doing it because it’s working the nervous system

Thanks

Good morning and welcome.

@@debrasmith6747 very very hard. But it gets better overtime. This was impossible 2 years ago

Okay. Thanks

@@debrasmith6747 take your time. Make things perfect no matter how long it takes. Speed will come over time, naturally.

welcome

@@debrasmith6747 makes such a difference! But most people think it’s unhealthy which is just 100% wrong

@@debrasmith6747 there is but it will take time and it’s not easy

@@debrasmith6747 just keep working at it and if you fall just keep doing it. Eventually you’ll get it

@@debrasmith6747 you’re welcome

@@debrasmith6747 I know it’s hard but the more and more you stay active and you stop you then will feel like something is missing in your life.

@@Mazeisaspace thank you

Okay

@@debrasmith6747 I think I have something very close but thank you for the idea. We will record something today about it specifically and it will be published in a couple weeks

This will also help: ruclips.net/video/YQ1EbBQFHTA/видео.htmlsi=RhXgmGS_CWn8gS3r

@@debrasmith6747 you’re welcome. Yeah stretching longer is harder but worth it

Haha. Thank you!

@@debrasmith6747 I’m sorry. I know you have been told you’re going to stay the same or get worse. That’s not true, if you have the right advice and do the right exercises you don’t have to.

@@debrasmith6747 I understand that. It might look easy now but I started with not even being able to move. It took years

Wow you stand up wit😅falling over and your balance is great while standing still. Do you loose your balance when getting up from standing? My balance is so off I still haven't found help with my Ataxia 😢

@@godmadethedonkeytalkjuliem8404 trust me, I don't have any footage, but I couldn't stand at all, barely move, and doctors all said I will remain the same and get worse. What you are seeing is over 3 years of work that anyone can do, but most people don't because they're told it's not possible or it's too hard. It's very very hard. I still fall all the time, but I would say 95% is on my own because I consistently push my nervous system to the limit.

@@swissmoon99 thank you

@@simonscott5104 whatever it’s programmed to believe/do

@@debrasmith6747 very hard but doable

@@stevepolk6166 thank you

@@debrasmith6747 actually it’s definitely a lower body and balance exercise. Limited upper body. Not to help the upper body.

Very true. I wanted to help encourage people because everyone gets told they can't do something, and most of the information out there about Ataxia is just wrong. People believe it though for some reason. I'm trying to change that. It doesn't have to be all doom and gloom.

Thank you. Yeah, pushups are much more difficult now, but they get better little by little. At a snails pace haha. Food/diet is HUGE! Probably the most overlooked thing, and most people do not pay attention to it unfortunately.

PT will only get you so far. To go further it's up to you

@@Mutant_Potential thank you very much! I hope I can help. Unfortunately, I didn’t record anything when I was in a wheelchair but I’m trying to cover everything.

@@Living_With_AtaxiaYou covered more than enough!! 💪🏽💪🏽🔥

@@Mutant_Potential thank you

Walking is extremely good. If you can, try to work with a prowler/sled because it will really stress the nervous system which anyone with Ataxia or neurological condition really needs. The prowler/sled is extremely hard to the point you will want to quit but don't. It does wonders and you will be thankful in the long run.

Good job as always sorry I am just getting to watch this. Like I have said before amazing. I have researched the NAF and etc. sites start a fight of my own when I feel better I will make some or many calls to see what else can be done I want to join your journey. Thank you I am so glad I found your site. I heard you talking about what you eat. Are you on a special diet? ❤😊 God bless

@@shirleyjones-hy2jr Thank you! Yes, I'm on the carnivore diet. It is the best way to eat by a mile and especially good for the brain and nervous system: ruclips.net/video/2mnPKhjVBw4/видео.html We want to help because most of the information out there is just wrong: livingwithataxia.vids.io/

Great! Thank you!

@@xinruchi328 there’s nothing special and whoever says there is, is completely wrong and wants to sell you something. The best thing to do is have my trainer see where your at and go from there: livingwithataxia.vids.io

@@larryfederspiel7373 use them but try not to use them. I couldn’t even do stairs but constantly tried. You really have to force your body to do it overtime. You’ll eventually get it. It will take time. Don’t rush it and be careful

@@debrasmith6747 I get it. Thank you!

@@deborahtofflemire7727 it helped me at first with tremors. Not necessarily with balance. I just use them now because it provides a better exercise. You can try wrist weights and see it may help but most likely not.

@@debrasmith6747 you’re welcome

@@stepantymofiychuk thank you

@@loriporter7364 I’m sorry 😢. I know it’s hard but you can get a little better. Unfortunately, I would say 99.9% of people have been told they’re stuck or going to get worse. That’s only true if you don’t do anything. That’s why my trainer and I are officially launching LWA (Living With Ataxia) on October 15 because the information given is just horrendous. It’s a company where we will have exercise programs for all populations, not just those with Ataxia. We will have personalized exercise programs and nutritional counseling with access to us for questions, feedback, instruction, etc. I wish I had someone doing what I am but I had no one and I was one of those people that was told I will stay in a wheelchair.

@@trail.blazer you’re absolutely right. People don’t know what it is for the most part, and I’m trying to also tell people to stay away from sugar. It’s really bad for the brain, among other things, but sometimes it goes in one ear and out the other. I’m trying to come up with a way to explain that anything that ends with “OSE” is usually some type of sugar.

@@javenanderson4517 I’m sorry. The sooner you start exercising the better. We can help you. Just email me at lwataxia@gmail.com

@@serenachen4520 what you see in this video is my trainer, Danny. I always wear the Living With Ataxia shirt