Megan Ford
Megan Ford
  • Видео 60
  • Просмотров 10 742
Guess I Spoke Too Soon?… Update to Previous Update
Whoo lawd! Watch the previous update, then watch this one (filmed 3 weeks apart). #Epilepsy
Просмотров: 250

Видео

Long Time Coming… 2023 Update
Просмотров 90Год назад
Hey y’all, haven’t posted in a while. I’m doing well. Nothing is ever perfect, (especially in the world of #epilepsy) but baby, I’m still here!!!
My Life and Vaccine Updates
Просмотров 1453 года назад
Get you a booster story on my life since my last (and final!...?) surgery while I head on over to get my Pfizer vaccine booster shot.
Post *the last* Surgrey
Просмотров 1533 года назад
This shit hurts. On every level. Now...we heal. God's has got me.
Surgery #9... I. Can't. Talk.
Просмотров 1263 года назад
I have a long distance just to can to be as flexible of, how explicitly, so am I could as l long as I would to usually all I am. God, please, be in my place. Amen. #InsularEpilepsy #IntractableEpilepsy #Restropesection #MemoryLoss
My 🙏🏾 LAST 🙏🏾 Surgery... is gon look like this?
Просмотров 1033 года назад
Looked up what an "awake craniotomy with resection" (trimmed for time)... and my subsequent reaction. WTF? Never find out how the sausage is made. Sigh. Oh well... 6 days to go. #Epilepsy #IntractableEpilepsy #InsularEpilepsy
What's Next with Me and My Brain
Просмотров 903 года назад
Outpatient follow up after my 2nd SEEG... I have some good news and some bad news. Good news? My nails are bomb af. Bad news? Just watch. I realized I wanted to say more here, then I forgot what I was going to say. Oh wells!!! Stay safe out here. We ARE still in the middle of a panorama. #SEEG #InsularEpilepsy #ComplexPartialEpilepsy #InsularResection #Yikes
2nd Surgery of 2nd Round (SEEG)
Просмотров 4733 года назад
My brain is a bitch baby. Stereo EEG... again
Pre-Surgery Visit for 2nd Surgey of 2nd Round (SEEG) for Punk Ass Epilepsy 🙄
Просмотров 593 года назад
This is just thoughts and ramblings. Please keep me and my friends mentioned in your prayers. I need to buy a new turban from the beauty supply. PLEASE BELIEVE I am NOT taking my luxurious wig with me for surgery. I have to remove my nails too. that can wait til the 13th before my mandatory Covid test. I have to be there at 5am on the 15th. LAWD! At least my Daddy is taking me. He's up before r...
I have an update, and I did a thing.
Просмотров 913 года назад
The Chronicles of Nah, man: The seizures, the surgeries, and the lacefront. 😂
Neuropace Removal Surgery Update
Просмотров 2133 года назад
I'm sleepy af.... and in a house robe and my bonnet, and do not give a damn about it. Neuropace implanted and removed in less than 3 years. More surgeries to come. Oh, and we moved into a rental home (with no carpet, thank God)!!! if I'm going to be stuck inside, let it have more room than my tiny apartment had! I'll unpack more when this medicine wears off. The edges behind my edges are gone!
Surgery #1 (Round 2)
Просмотров 783 года назад
#RNS #Neuropace #NoLongerIRobot #ForNow
Groundhog Day for My Brain
Просмотров 484 года назад
The 1st surgery this go round is Nov. 3 (see previous video). Then... pretty much the same 3 surgeries I had Nov. 2017, Feb. 2018, and Mar. 2018, but for the other side of my brain for the 2020. sigh...
Not as simple as I thought ...
Просмотров 864 года назад
Neuropace battery replacement... and extra bullshit.
Another Brain Surgery?
Просмотров 1264 года назад
Another damn brain surgery... (recorded on my IGTV for @meganfordtough on 9/28....just now getting around to putting on RUclips 10/12. I talk with my neurosurgeon 10/15) I dunno yall. I jus don't know.
Epilepsy Surgery Hair Journey
Просмотров 564 года назад
Epilepsy Surgery Hair Journey
Sick AF... but FOR WHY THOUGH?!!?!
Просмотров 644 года назад
Sick AF... but FOR WHY THOUGH?!!?!
Update 2-17-20
Просмотров 764 года назад
Update 2-17-20
More Uncertainty... Merry Christmas!
Просмотров 504 года назад
More Uncertainty... Merry Christmas!
Plasmapheresis for Autoimmune + Epilepsy = One Long, Itchy, Nauseous Week
Просмотров 754 года назад
Plasmapheresis for Autoimmune Epilepsy = One Long, Itchy, Nauseous Week
Emergency EMU Stay 2019 - Day 1
Просмотров 594 года назад
Emergency EMU Stay 2019 - Day 1
Back to Square One? Ain't This Bout a Bitch.
Просмотров 824 года назад
Back to Square One? Ain't This Bout a Bitch.
October 2019 Update aka When will this shit get better so I can enjoy life?
Просмотров 625 лет назад
October 2019 Update aka When will this shit get better so I can enjoy life?
A year+ later... follow up & check in
Просмотров 965 лет назад
A year later... follow up & check in
Random Appointment for Random Autoimmune Encephalitis
Просмотров 726 лет назад
Random Appointment for Random Autoimmune Encephalitis
3 Months Post-Op Follow-up
Просмотров 2486 лет назад
3 Months Post-Op Follow-up
Neuropace Surgery Aftermath
Просмотров 5726 лет назад
Neuropace Surgery Aftermath
Surgery #3: Neuropace Implant
Просмотров 2116 лет назад
Surgery #3: Neuropace Implant
Are we done yet?
Просмотров 936 лет назад
Are we done yet?
My Random Adventures in Random Other Health Issues
Просмотров 176 лет назад
My Random Adventures in Random Other Health Issues

Комментарии

  • @derekmarshall6427
    @derekmarshall6427 День назад

    💜I posted videos on my RUclips channel like you @derekmarshall6427 In my PLAYLIST ***STEREOELECTROENCEPHALOGRAPHY*** Of course other people will be like wth does that mean??? Eating & sleeping on my back is the worst besides the boredom💜

  • @derekmarshall6427
    @derekmarshall6427 День назад

    My head does hurt but not even close to the amount of pain i was anticipating. Only 1 seizure on the night of day #2.

  • @derekmarshall6427
    @derekmarshall6427 3 дня назад

    💜Thank you for the words of encouragement. I just woke up from the procedure may 2 hours ago! Yes my head hurts but when I open my mouth too wide,, OMG then my head feels like it's being squeezed at my temples with pliers. I'm gonna my updates on my RUclips video like you did. I'm not going anywhere anytime soon!😂 💜

  • @dannydinh2378
    @dannydinh2378 Месяц назад

    Your video helps so much. My gf is the one under going seeg surgery today 9/16/24. Her mom is with her while Im working but watching this helps me get through these rough and confusing times.

  • @iananttila
    @iananttila 3 месяца назад

    So you liked it too! The results of mine concluded where the primary area of seizures were occurring which was a nonsurgical location

  • @dianamartinez-tg8yo
    @dianamartinez-tg8yo 6 месяцев назад

    😢😮😮I’m scared of my surgery

    • @MeganFordTough
      @MeganFordTough 6 месяцев назад

      I want to tell you don’t be scared, but I know it is a scary thing, and your feelings are so valid. This was just me talking through my experiences but honestly, I remember the itching from an allergy I’ve developed to EKG adhesive was more of a nuisance than the scars with each surgery I’ve had. I pray the best for your body and a sense of peace for your mind. 🙏🏾🙏🏾🙏🏾🙏🏾

  • @dianamartinez-tg8yo
    @dianamartinez-tg8yo 6 месяцев назад

    Omg I’m worried for my surgery on the 29th 😢this month of May..

  • @dianamartinez-tg8yo
    @dianamartinez-tg8yo 6 месяцев назад

    Omg that’s how I feel 😢

  • @dianamartinez-tg8yo
    @dianamartinez-tg8yo 6 месяцев назад

  • @dianamartinez-tg8yo
    @dianamartinez-tg8yo 6 месяцев назад

    I’m going thru my first sEEG surgery in 3 weeks and it’s been 11 years dealing with convulsions,focal seizures coma,anxiety stress depression and I’m scared as hell cuz I wanna be better for my kids 😢

  • @mxtuizum
    @mxtuizum 7 месяцев назад

    Hi, thank you so much for your videos ! My daughter is going in for an SEEG and I’m trying to understand it more ! I’m wondering if you noticed any effects to your mind after the SEEG ?

  • @vannevers
    @vannevers 9 месяцев назад

    Thank you for sharing your experience. I am headed for SEEG at the end of the month and I am grateful to see what I am getting myself into from someone who did it too.

    • @MeganFordTough
      @MeganFordTough 9 месяцев назад

      I pray all goes smoothly for you. And I definitely made these videos because I felt the same way. Marketing medical videos were not giving me a raw, honest look into what I was getting myself into.

  • @nube110
    @nube110 Год назад

    😢😢😢❤❤❤,megan me duele tu dolor ,mi ❤ y mi oración a Dios estan contigo,que paso con tu cirugía?no funciono,?yo tambien estoy pasando por algo como tu ,tengo RNS pero no esta funcionando, siguen mis convulsiones.

  • @cheetara25
    @cheetara25 Год назад

    I am happy to hear that you’re improving sis! 🙏🏾🙏🏾🙏🏾

  • @trojuanhenderson6062
    @trojuanhenderson6062 Год назад

    💚💚 continue pushing through Meg!

  • @theresamaleady7721
    @theresamaleady7721 Год назад

    Long time no see how are you megan you much better

  • @theresamaleady7721
    @theresamaleady7721 Год назад

    Hi Megan youre looking very well how is your epilepsy

  • @nube110
    @nube110 Год назад

    Megan ,bendito Dios que bueno verte otravez ,y saber que estas mucho mejor,te comprendo todo lo que ha pasado y aun estas pasando ,yo también tengo epilepsia de los dos lobulos temporales, me han hecho 3 cirugía y no pudieron hacerme una recesión, porque perdería mi memoria y el habla,lo que pudieron hacer fue implante del RNS system, esperando que me ayude,quisiera saber si ati te lo pusieron y si te ha ayudado, te deceo lo mejor de este mundo,que Dios envíe sanidad sobre ti y te guarde,besos y abrazos ati y tu niña,.mi corazón ❤️ contigo.,disculpa que escriba español.

  • @nube110
    @nube110 Год назад

    Meghan saludos ,espero estes muy bien con el favor de DIOS, dime por favor como te va con RNS,yo apenas 1 mes me lo pusieron.

  • @shannonashely5552
    @shannonashely5552 2 года назад

    Heyy. I would love to talk to you I'm actually getting this done on Wednesday. I couldn't find you on fb. Please get back to me

    • @MeganFordTough
      @MeganFordTough 2 года назад

      Please feel free to DM me on instagram! @MeganFordTough

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    How are you Meagan? How is life treating you? It is great to see you again. How are the seizures going?

  • @kellymyers5597
    @kellymyers5597 3 года назад

    After 14 days in the hospital and nothing showed up on my SEEG, they basically threw in the towel and added another prescription. Its very discouraging.

    • @MeganFordTough
      @MeganFordTough 3 года назад

      I was down in the dumps for a while (until my brain got wonky at the last second). SEEG isn't inherently painful, but the surgery and the waiting and the electrodes. Blah. I hate that for you. If they do decide to try again, I hope they find more activity, soon.

  • @kylenolff987
    @kylenolff987 3 года назад

    Thanks for calming those of us who await our turn. It’s quite terrifying.

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    How is life treating you after all these stereo eegs? Hope you are not having anymore seizures

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    You brave lady Megan Ford good luck

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    God I love you girl so darned brave

  • @slmartinek
    @slmartinek 3 года назад

    That seems really sad considering this seems the beginnings of some awfulness.

  • @slmartinek
    @slmartinek 3 года назад

    Hi! I've just found your videos and you are so strong! I am going to have a SEEG around the beginning of September. The videos seem to show what it's really like. I have not received much info but have educated myself through you tube

    • @MeganFordTough
      @MeganFordTough 3 года назад

      Thank you. I hope everything goes smoothly for you. Prayers up!

  • @cheetara25
    @cheetara25 3 года назад

    I’m praying for the best. Your language is fine. I’m proud of you and hoping for the best in your healing. I love you Sis!!!!

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    You seem positive Megan I'm so sorry to see your eye is swollen hope you won't have anymore seizures. Is this the last surgery? God bless

    • @MeganFordTough
      @MeganFordTough 3 года назад

      I am not letting them cut on me anymore, and thankfully, a week later, most swelling has gone. Hope for no more seizures. 🙏🏾

    • @theresamaleady7721
      @theresamaleady7721 3 года назад

      @@MeganFordTough that's great news hope it goes well for you my lovely hope you become seizure free

  • @Julian-cf4pb
    @Julian-cf4pb 3 года назад

    Is that scar from RNS?

    • @MeganFordTough
      @MeganFordTough 3 года назад

      No. They took the RNS because it didn't work. Went in an did a reception after. So... her I am.

    • @Julian-cf4pb
      @Julian-cf4pb 3 года назад

      Oh man that sucks. Im sorry to hear that. I had a rare tumor removed and I was home the next day and walking and talking. Im still having seizures so they're going to put the RNS in me. I hope everything works out well for you. You're an inspiration to my journey as well. Thank you for posting.

    • @MeganFordTough
      @MeganFordTough 3 года назад

      @@Julian-cf4pb I am glad they got out the tumor is gone, and I hope that the RNS works for you well. 🙏🏾

    • @Julian-cf4pb
      @Julian-cf4pb 3 года назад

      You've been a part of so many procedures, and you still stay so positive. Thank you again for having the courage to share with us. I hope you find some resolution on your journey.

  • @Pureharvestent
    @Pureharvestent 3 года назад

    Got you covered!

  • @mz2much2809
    @mz2much2809 3 года назад

    Oh wow, so scary and your so blessed to go through everything to get right. Prayers go up for ya everyday, Epilepsy Soldiers💜hospital stays and effects are a lot as well- yes ma’am its a sweet treat💅🏾to yourself. Get some rest and you’ll feel so much better, as time pass it’s just a process you went through God has you🙏🏾 prayers for your docs too💜

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    You are such a brave lass Megan got a dog there with you

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    Do you have these seeg alot of the time Megan? You are very brave

    • @MeganFordTough
      @MeganFordTough 3 года назад

      This was my 2nd (and hopefully last).

    • @theresamaleady7721
      @theresamaleady7721 3 года назад

      @@MeganFordTough I feel for you hunni you are very strong yes I hope this is your last seeg. It must be awful having seizures. How are you doing these days?

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    Once you get control of your seizures Megan you will get to enjoy life with your daughter don't give up

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    Why are you having the SEEG again? Can't the nursing staff let you sleep Megan?

    • @MeganFordTough
      @MeganFordTough 3 года назад

      My autoimmune disease and epilepsy are causing worrisome seizures. They were going to have to replace the Neuropace battery anyway, so we took this time. Everything is good.

    • @theresamaleady7721
      @theresamaleady7721 3 года назад

      @@MeganFordTough you are a very inspirational young woman I hope everything goes well for you. And those punk ass epilepsy are gone

    • @MeganFordTough
      @MeganFordTough 3 года назад

      @@theresamaleady7721 thank you!!

    • @theresamaleady7721
      @theresamaleady7721 3 года назад

      @@MeganFordTough you are most welcome my dear I'd like to get to know you

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    Isn't that neuro pace doing anything for you? Are they going to help you? You shouldn't have to go through seizures at all. You need your life without them. You are such a brave lass

  • @mz2much2809
    @mz2much2809 3 года назад

    Many prayers for you Megan❤️SEEGs are no fun, but your strong and everything is gonna get better. Be safe and Blessed💜

  • @Julian-cf4pb
    @Julian-cf4pb 3 года назад

    Stay warm. Your sunny disposition is inspiring. I wish you well during your seeg. You'll come out of this with much more clarity, and a better course of action.

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    Be strong now you hear?

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    Good luck you brave young lady let's hope this can stop your seizures love your hair style

  • @Julian-cf4pb
    @Julian-cf4pb 3 года назад

    What were your side effects when it came to having a resection done?

    • @MeganFordTough
      @MeganFordTough 3 года назад

      After 3 years of SEEG>Laser Ablation>Neuropace Implantation... I got worse. The seizures (small but painful, and having 1-5 clinical a day/~3000 non clinical per), pain on the side that I never had before (funny, it started in March when everything shut down for Covid). Anyway, 2 or 3 more hospital stays, and this nor my autoimmune therapy was working, increasingly getting worse. My epileptologists (at UTSW and Mayo Clinic), my neuroummunologist, and neurosurgeon settled here. The resection isn't set in stone. Just the next step if they take another step.

    • @Julian-cf4pb
      @Julian-cf4pb 3 года назад

      @@MeganFordTough Again thank you sharing your experiences with us. It certainly seems like an arduous process. Im sure your immune system certainly made it worse for you. I wish you well in life and any future procedures you undergo.

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    Love you you brave lady

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    Have they given you the results you needed to hear? You are a beautiful person Megan I feel for you and hope they get you under control soon. You don't deserve these seizures at all

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    Good luck girl

  • @theresamaleady7721
    @theresamaleady7721 3 года назад

    You are looking really well what op did you have? So glad you do look really great

  • @Julian-cf4pb
    @Julian-cf4pb 3 года назад

    Why didnt you do those exams before implanting the RNS? I thought they were required before surgery.

    • @MeganFordTough
      @MeganFordTough 3 года назад

      I did do them. Well MRI and PET scan instead of MRI and MEG scan. I'm assuming MEG and PET are similar. And had all the correct surgeries. And for some reason I got worse. And ran the battery down in 2.5 years, and instead. I explain all that in previous videos. So they did surgery to remove the RNS so they could do a MRI and MEG and see where there's still remnants of the leison on my insular cortex. They did a laser ablation last time. This time they're going to do a SEEG, an open craoniotomy and resection, and POSSIBLY put back the RNS, possibly add another. I got the testing before. This is a different beast, so I got it done again.

    • @Julian-cf4pb
      @Julian-cf4pb 3 года назад

      Thank you for taking the time to explain your experiences with us. It is very much appreciated. I wish you nothing but the best. Good luck with any future procedures.

    • @MeganFordTough
      @MeganFordTough 3 года назад

      @@Julian-cf4pb 2 or 3 more surgeries in the coming months. Thanks for watching. I just searched when I was preparing for the first surgery, and saw maybe 2 people talking about it, and not in depth. I needed details. So here we are. Paying it forward. Thanks for prayers going forward.

    • @nube110
      @nube110 Год назад

      Megan ,siento todo lo que esta pasando, yo estoy situación parecida me hicieron SEEG y después me pusieron El RNS,hace 15 días dime si ati te funcionó ,me da mucho dolor de cabeza.bendiciones espero DIOS estés bien.

  • @osato5382
    @osato5382 3 года назад

    🙏🏿🙏🏿🙏🏿

  • @brittanynicoleprice
    @brittanynicoleprice 3 года назад

    🙏❤🙏❤🙏❤ Your hair and your wig both look great! I pray for your healing and for your peace. May God restore everything you feel you have lost. Praying for a loving godly man thats worthy or you and for your daughter to hear the lords will as to what college to go to and a successful academic career for her. Thank you Lord for healing, peace amd and your perfect plan. Strengthen our faith in you when the storm comes.

    • @MeganFordTough
      @MeganFordTough 3 года назад

      I can't tell you not to be nervous, because I'm nervous about my Feb 15. SEEG, knowing good and well I have a more extensive surgery to follow... but.... DON'T BE NERVOUS!!! We raised babies and got them into college (acceptance letters are rolling in for my kiddo) and we do it on all of these meds. I will pray for you and your surgery, and that the RNS truly helps you. I wish you all the best! And my wig appreciates the love. :) We got this!!!