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Glad you like them!

You're so welcome!

So I literally am listening to this video on loop right now. And I just have to say, listening to you describe your experience, is soooooo so validating. I think I must have developed POTS much earlier in life than I originally thought, because all of the things you describe in the beginning, I’ve been dealing with since I was 10, 11, or maybe 12 years old? It is incredible and mind boggling to hear how common these symptoms are in others with pots. I thought I was crazy for years. Seriously. I’ve dealt with so much shame for not being able to do things others do. Or to just go to sleep at a normal time. Or for being a night owl, and exhausting myself. Or for needing 10 hours of sleep. I wasn’t diagnosed until last year at 27 years old. This has been a struggle for well over a decade for me and you just made me feel so much better. Thank you again for this video.

you're welcome! reach out if you'd ever like to chat. l.bttr.to/I33oS

@@autumnhamm9381 so glad to hear you found validation. It took years for me to figure things out and my desire to help save others time, energy, and frustration. reach out if you'd like to chat

you're welcome! so glad it's helpful

you're welcome! reach out if you'd ever like to chat. To give you hope- you're going to be an amazing asset to those in the community with your experience and training.

It depends on where the individual is in their journey. With walking the body is vertical against gravity making the autonomic nervous system and cardiovascular system work harder to pump blood back up to heart and brain - this can be fatiguing. The structure of walking can help along with improving muscle tone and using compression. Most autonomic rehab starts individuals with lying or seated exercises to help the body accommodate gradually. Reach out to chat if you have any questions: l.bttr.to/I33oS

@@thrivingwithpots thanks!

Glad it was helpful!

Thanks for your feedback. Took some time off over the summer - stay tuned for more videos 😊

for some vaccine or post infection, symptoms appear to mimic dysautonomia - BP and Heart rate are regulated by autonomic NS. Seeing a specialist to get assessed is very helpful. Addressing kidney function may be something to explore too as involved in regulation of aldosterone production and also fluid balance in the body - which when imbalanced can lead to symptoms

For some the compression on the brainstem area with chiari can cause POTS - met a few with chiari with this presentation before surgery if needed. Surgery helps some as takes pressure off the area where nerves involved in heart rate regulation are located. Surgery is a stress on the body in and of itself so symptoms can develop pos and it can take time for the body to shift out of a stressed state. Hang in there! If you'd like to chat sometime you're welcome to reach out calendly.com/meghan_varner_guide2resilience/discovery-call

You're welcome! It's doable to learn how to thrive ❤

find a physician that knows how to diagnose POTS - Primary care doctor can however it is typically a cardiologist or neurologist. There's a Poor Man's Tilt Table test that can be done in a standard doctor's office (must be done properly with initial resting lying down then measure BP and heart rate at set times when sit up, standing). However getting full autonomic testing is typically helpful to understand the full picture of what is going on with the autonomic system

@@thrivingwithpots thank you!!

I have not made a specific video about that ...yet. I have mentioned in one video that for some around 10% or so salt can make symptoms worse. Just like autonomic nervous system changes can lead to POTS, the autonomic nervous system can remodel with symptoms changing over time (seen in quite a few individuals). Mold itself can be a neurotoxin and cause POTS like symptoms or increase them (I experienced an increase in my POTS symptoms 2 few years ago due to a mold exposure issue. Removing yourself from the mold allows time to detox from it (some need extra detox support) so your symptoms can change or improve in my experience. Salt is not the only thing to help POTS it's commonly used to increase blood volume and retain the fluid intake. The amount one needs can also change. Deficiencies in other nutrients involved in energy production and electrolytes involved in fluid balance can contribute as can the nervous system shifting into a stressed state. Sounds like eating more salt may register as putting body into stressed state. If you'd like to chat more : calendly.com/meghan_varner_guide2resilience/discovery-call?month=2024-08

@@koalalah thanks for your feedback. I am sharing this information in intention to help others and give hope. No one is forcing me to say anything however I have said things many times to clients I've worked with. Some of the earlier videos I was rather nervous as video is different than in person. If you have any other feedback I encourage you to email me rather than post it here: meghan.varner@guide2resilience.com

Thanks for your comment. I've seen that helpful for some I've encountered. However some don't see much difference as not the primary cause - more nervous system dysregulation at night and during the day based.

@@thrivingwithpots it takes 3 to 6 months of heavy supplementation to recover from severe deficiency.

​@@Rssident I understand yes. I am just pointing out that thiamine deficiency is not the only cause of symptoms and for some even after a year plus of supplementation they continue to have challenges. There can be other contributing factors to nervous system dysfunction that typically need to be addressed. I do not talk about supplementation on this particular channel as focused more so on nervous system regulation.

Sorry to hear you are navigating those conditions. I was referred to see a geneticist. Typically it's a geneticist or rheumatologist that diagnoses.

@@thrivingwithpots thank you for answering my question. Did you have any physical symptoms of EDS? Thanks again

@@MyFriendPeter yes for most of my life. Depending on the subtype of EDS, there are blood tests to confirm. At present the most common hypermobile subtype is based on clinical exam as no specific mutation is confirmed yet. Happy to chat more if you'd like: calendly.com/meghan_varner_guide2resilience/discovery-call

Thank you. I will look at booking a session when I am up to it

I'm sorry you feel that way. Navigating POTS can be overwhelming at times. This video is not meant to take the place of a dietitian's advice. It is meant as guidance to understand fatigue after eating that many with POTS struggle with. If you'd like to chat more you're welcome to reach out here: calendly.com/meghan_varner_guide2resilience/discovery-call

@@saren6538 to what list are you referring?

Yes great comment. Keeping your own dietary needs in mind along with others at the table is important. I've found cooking a basic plain dish like chicken and everyone adding their own seasonings helpful - addresses taste preferences and wanting more or less salt or spice. I started measuring out my salt by the tsp each day about 400 mg in a gram, 4 grams in a teaspoon) to sprinkle on foods. Do you have a way you get your salt in?

@@thrivingwithpots I'm still trying to get my diagnosis so I'm not trying to overload myself with salt in case I don't have it. I do have ALL of the classic symptoms including a positive on the poor man's tilt table test (getting my first cardiology appointment within the next few days) but If I do need to increase my salt I was going to continue eating my favorites like picklesand olives and probably switching my table salt to a pink himalayan salt. I struggle a ton cause I'm currently homeless so my food intake is difficult since I can't cook (microwave and fridge occasionally)

​@@jessicalingo4346yes waiting to get your diagnosis confirmed and guidance from your treating physician in sodium intake is important

@@thrivingwithpots it sucks super bad when your waiting to get the diagnosis cause you are in full effect of the symptoms that can be very difficult. Ya you can do research on what to do in the mean time but you don't want to change too many things cause if it's not the issue (like the salt intake) it can be damaging.

lol true! My mom has high blood pressure & can’t have a lot of salt but I have pots & need salt 😅

In my journey, I had periods of my hair falling out and panic attacks actually. Hair falling out can be due to a myriad of reasons - stress and malabsorption and gut imbalances were mine. I was not aware of being in a stressed state so often... When the body is in a stressed state, digestion and absorption are not prioritized - energy reserves are impacted. In my learning about the nervous system, high heart rate can trigger panic attacks as the body is physiologically signaling panic shifting into sympathetic fight or flight- blood flow to the brain changes and communication can be affected ( by blood flow and nervous system state). There are ways outside of medication to train the body to physiologically shift into a more neutral or calm state that I walk clients through. Happy to chat if you're interested. calendly.com/meghan_varner_guide2resilience/discovery-call

Can these adrenaline rushes be most of the day everyday for months at a time? It seems like it calms down around bed time for me. I am losing so much weight

@@juliaarambula3153 yes from my personal experience and those of clients I've seen. The adrenaline surges appear to occur with the body perceives stress - with POTS something like a change in position, prolonged standing, heat exposure, foods, low blood sugar, mental stress. The sensation of calming down around bedtime may be worth exploring - is it a calm or a state of exhaustion from being in a high adrenaline state during the day? Happy to chat if you'd like calendly.com/meghan_varner_guide2resilience/discovery-call?month=2024-06

That's a nice brand. I used to use a lot of Orgain Vegan shakes. Switched to blending my own with Epic or Truvani.

Postural Orthostatic Tachycardia Syndrome. It's a condition of autonomic nervous system dysfunction in which heart rate increases by 30 BPM (40 BPM if under 18 yo) when changing from lying to sitting or to standing and stays sustained 5 minutes or more for majority of those diagnosed.

That's a great question for your physician to further clarify. Dysautonomia International has studies cited on their website regarding medications used for POTS. I've seen it used in some with POTS with adrenaline surges. Sending signals of calm or safety to the body to shift out of alarmed state -slow breathing, somatic work, working with a professional to address traumas can be helpful there from my observation

That's great you figured that out. It took a while to figure out which ones worked best for myself and learning about how medications affect you is definitely a part of learning to thrive. As I am a PT and health coach I focus on the other non medication areas that help POTS so don't discuss medication directly on this channel.

curious, have you tried tapping into slow paced breathing?

You're very welcome! Good to hear it was helpful for you. As I mentioned it's taken years on my own journey to figure things out even knowing how beneficial exercise can be as a PT myself. It's finding that sweet spot that fits your body and its ability to recover. Reach out if you'd like to chat sometime.

sorry to hear that. I have had a few clients with similar challenges. The body can rewire with time. Reach out if you'd ever like to chat calendly.com/meghan_varner_guide2resilience/discovery-call

Long Covid or the shot aren’t the only reason people develop POTS or Dysautonomia. I’ve never had Covid or the vaccine. I developed POTS after wisdom teeth removal.

@@SinCityBluffrat yes, POTS has multiple different causes from physical trauma, viral, to some genetic component - the common piece is dysfunction of the autonomic nervous system

Myself and my daughter both got this from civid vaccines

Sorry to hear that. I've had a few clients with similar experiences. It's interesting how the nervous system responds

It's a process to find the movement your body tolerates. Often it starts with movement in a reclined position as I mention in the video. Reach out if you'd like any support - calendly.com/meghan_varner_guide2resilience/discovery-call

In my experience personally living with POTS and with clients, yes. Cleaning, cooking, laundry etc are all physical activities - called independent activities of daily living in PT world - and stress the body. That stress isn't bad necessarily, just need to condition the nervous system and cardiovascular system to respond to them well, just like with exercise. You gave me an idea for another video!

Stress can be a trigger for adrenaline surges as the body naturally releases cortisol and adrenaline when stressed. When the autonomic nervous system is dysregulated with POTS a little stress goes a long way I've found. Finding ways to bring the body back into a state of regulation can be helpful. You may like my videos about breathing to help POTS symptoms and mindfulness for POTS

ruclips.net/video/DjAMwK3QOng/видео.htmlsi=Pwutz67H2uE15M-k

B1 for sure

@@shoshishararecordingsshosh1501 hell yeah!

Yes. Both POTS and IST are connected to autonomic nervous system dysfunction of heart rate regulation. They are triggered differently typically - POTS by changes in position, IST by physical, mental or emotional stressors. With IST you can have a high heart rate even lying down. Management is often similar. Bringing the autonomic nervous system back into a more regulated state can be helpful. Reach out if you'd like to chat more sometime calendly.com/meghan_varner_guide2resilience/discovery-call

At this point it's starting to get triggering whenever one of these videos says "ask your doctor or healthcare provider"

thanks for your comments

@@thrivingwithpots have you read about the new study that shows improvement by stimulating the vagus nerve 2x/day with a TENS unit connected? It’s promising research.

@@jennifermcmillan9518 yes I think I know the study you're referring to. It points out the connection between the vagus nerve stimulation and regulation of heart rate and other symptoms associated with POTS. I've had some clients try stimulators and like them. The vagus nerve can be stimulated and trained to engage with resonance frequency breathing as well - no stimulator used - which is helpful as once learned you can call on it whenever and wherever you need it including post exertion. At first you're training the baroreflex (BP control that influences heartrate) and releasing acetylcholine with exhale; with time vagal tone control of heart rate and BP improves. I'm a fan of the breathing approach more so as training the vagal brake to engage and let go which is how it physiologically functions vs stimulating it to engage and engage. I talk about it more in this video: ruclips.net/video/bVQhS7u-o8Q/видео.htmlsi=KLQky1800hp5wMzY The in other ways too - some somatic work targeting it can help some individuals as well - some I mention in this video and others. It's finding the combination of things that work for you!

Yes many I've worked with have shared similar experiences. The heart itself can be fine - it's the autonomic nervous system's regulation of it that is affected. As I mention, I also have EDS and POTS and it has taken years to figure out the interconnectedness of them and their affect on the nervous system. My hope is to shed light and give hope so others don't feel as lost as I did. Depending on the areas, it appears more doctors are becoming familiar with dysautonomia after viral infections

I was lucky. My dr’s wife had pots and he sent me to a cardiologist. The cardiologist knew about it as well and diagnosed me right away. Unfortunately there are other doctors I have come across and act as though it’s a mind condition not a physical one.

@@NicoleToner-k3d that's great you got diagnosed quickly for many it takes multiple years. nervous system dysregulation (being in a persistent sympathetic activated state or shifting into shutdown) is involved in POTS so the "mind" ie brain piece is an important part in managing symptoms but not necessarily all of it.

What do you do to prevent that? I feel ok during the day but get these surges at night. My heart goes tachycardia but not higher than 120. I go under cold water. It's so scary. Glad to hear your heart is healthy. I'm going to start eatting Greek yogurt at night. Maybe the protein will help

@@kristinshelton5958 often with clients feeling ok during the day they may not notice their body is stressed during the day - stress sticks to us and carries into the night. I work with clients to help them learn how to shift out of stressed state into regulation during the day and establish a bedtime routine that helps shift the nervous system into parasympathetic state before sleeping to help. I've seen having electrolytes before bed and adding a cold cap (if heart rate doesn't dip super low) helpful along with different breathing techniques. Reach out if you'd like to chat more! calendly.com/meghan_varner_guide2resilience/discovery-call?month=2024-09

You're very welcome 🤗 My hope is to help others not struggle for as long as I did trying to figure things out

Please check out my website here under my offerings: www.guide2resilience.com/program

so glad to hear this resonated with you! I was there myself for many years. I hope the tips I shared are helpful for you! reach out with any questions

@@thrivingwithpots Thank you so much!!!

Glad it was helpful! Reach out if you'd like more!

@@thrivingwithpots I will for sure! I really like what you are doing in your webpage.

I'm sorry to hear you are struggling. Addressing nervous system regulation has been helpful for myself and clients with the adrenaline surges

All thoracic to mid lumbar. Happy to chat more. Check out my calendar here: calendly.com/meghan_varner_guide2resilience/discovery-call