Видео

You're Welcome! Yeeeessss! I completely have been there! The week before my surgery I literally bought everything I thought I might need so I would be prepared...even though some of it I wasn't going to use until after a couple months (due to having a bag first). Prayers to you! It will be tough but it will turn around after you heal and get used to it!!

@@rosierosehealth3138 thanks for the reply... One question I have when you have an opportunity is whether you'd have the jpouch surgery again knowing what you know now and having been through it already, or do was life easier/simpler with the stoma?

@@Toronto.real.estate absolutely. I would definitely have it again. It was the best decision I ever made. I got used to the stoma, but having a J Pouch is much better. Easier. Of course, be prepared to have some hiccups. Everything won’t be perfect right away. And you basically have to re-learn how to use your body again. Going the bathroom with a Jpouch feels different muscle wise. But once you understand what makes it work, it gets easier and faster. My BIGGEST tip is to recognize what triggers issues (i.e. butt burn, leakage, watery stool, swelling). Once you know STICK to the things that you KNOW won’t trigger any issues.

@@rosierosehealth3138 thanks for your insight... happy to hear your recovery has gone well and that you have no regrets. Happy holidays!

I'll preface this by saying that I still have an ileostomy and haven't had my takedown yet. I've been taking Naturelo multi vitamins which is whole food & organic and have found that it has really helped with keeping my energy level pretty high & consistent. I purchased it via Amazon, it comes in male & female versions, and I've been using the 4 pills per day version, as opposed to the 1 a day version. I also take a vitamin D supplement which includes k3 to assist with absorption. I get it from Amazon as well, and it's made by CanPrev.

@@Toronto.real.estate Thanks so much I appreciate you 🙏🏽💕

I've been taking Pink Stork Liquid Prenatal. I'm not prego...but this has been golden for me as it's a little extra which I need since my ilieum is compromised. So i've had great success with being able to absorb this one.. It's a Whole Food Blend + Iron + Zinc + Vitamin C + Elderberry + Biotin. Always helps with my energy, especially when i'm super fatigued. I just get mine off Amazon! Here's a link: amzn.to/31VsTnJ

💯 💯

Working on it! You should see one in the next week!

666newcastle hey! I’m sorry you’re going through that! Your metabolism will eventually slow down to match your digestive system so you’re not going as much. Also you really need to look at what you eat. That was the thing that solved most my problems. Cheese or any kind of dairy really, makes my output runny and non stop. I become a poop machine. So I cut that out. I also found out nuts (except peanuts) no matter what form they’re in (butters, mills, raw) are the most painful thing I can ever do to my booty. It makes me swollen so I’m constantly having to go since I can’t get everything out in one sitting. AND it feels like shards of glass coming out of me. I don’t know if it’s an enzyme thing or what. So I cut those out as well. There’s some other things but I found those were my main problem. What you eat is everything. It sucks not being able to eat like the rest of the world. But I’m fine sacrificing those things so I can feel normal. Everything also gets better with time. I now only get up on e in the middle of the night and sometimes not at all!

Well, it's been about 18 months since I had my take-down surgery. I'm doing pretty well with the j-pouch! Those first few months were definitely rough at times, but I definitely felt myself improving gradually, month-by-month. I can now go ten to fourteen hours between restroom breaks. It's not necessarily comfortable, but it's definitely doable, which makes my job as a paramedic far easier. I can eat pretty much whatever I want, within reason. I've only had "butt-burn" once, and that was about a month after the surgery. It was absolutely awful, but only lasted a few days, thankfully. The hardest part was between the second and the third surgery. That loop ileostomy was kind of a nightmare. A lot of my issue was because I have a fairly hair belly, and shaving it was difficult, due to the potential for irritation. I developed a blockage two days before I was scheduled to have my take-down, which was really just bad luck. That significantly complicated things. Over all though, I am doing very well now.

Jerry Rice . Hi Jerry, I’ve had a j pouch for 32 years.. Had the colectomy at age 26 and j pouch couple of years later. Now been without a colon longer than with one. I had problems with fistula for a while but past that now pretty much. Keeping the anastomoses open is the secret so that you can empty the pouch easily and completely before work. I have a tapered plastic instrument that I insert every couple of weeks to stretch the anastomoses. I eat my evening meal at least 12 hours before I rise in the morning, paralyse my bowels with Imodium after I empty my pouch in the morning, and eat sparingly during the day.

@@mitseraffej5812 What’s the plastic tapered instrument you use for keeping the anastomoses open?

@@mrtinku-labradorbeaglemix5223 Not sure what it is called, a surgeon gave it to me. It’s about 4 inches long and maybe 3/4 inch diameter at widest point. I think it is purpose designed for this so I guess a colorectal surgeon could get you one.

WoW. My Dad was considered in the statistics. 6 generations back has been hit with Gardner's Syndrome. I'm 29 yrs and still wake up to a mess ☺️

Erika Vazquez don’t worry! You will! Your metabolism has to adjust. Your metabolism is still going it’s normal rate for a full digestive system...when you now only have HALF a digestive system. So things are going through you way too fast right now. Absorption is hard. Your metabolism WILL adjust. I ate a little meat with every meal to slow things down. It probably took me 4 months to gain my weight back!

❤️

Ppp9

CT B you’re welcome! I’m so glad to help!!

@@rosierosehealth3138 It's interesting when going on jpouch.org too there's sometimes somethings people can to prevent the problems with butt burn, maybe not within the first year as some do find that the body will adjust to it, but then others don't (not sure myself why it doesnt sort itself out) there's a few things people can take to help prevent especially if its particularly bad without even needing any cream barriers as such. There's a great one I've found from that forum of people with an Ileo Pouch is really a great resource, also then the things like fibre suppliments (soluble though as its that which helps bulk things up as such) and big time don't always listen to a doctors is a big thing I've found myself all around really :)

For helping stopping the actually alkali based stools as such which is what it quite essentially is, there's things like pepto bismol I think its called sometimes works for some, its to prevent it from yeah eroding skin tissue when it comes out of the anus quite essentially again, like if there's some tears inside the anus (which can cause fissures) that becomes hugely painful, it's like using salt on an open wound its just hugely painful and respect anyone that has problems with that, I have myself but as I am in the adjustment phase still holding back from doing much about it other than really using an upturned shower head after I go to the toilet and then using something like usually an emollient cream as it'll probably dry out which will make it crack and it'll then cause stinging. A typical in the US I think fibre suppliment of course being Metamucil does have a generic name begins with a P but Metamucil itself is hugely expensive over here in the UK, so using a generic form is a heck of a lot cheaper like our own individual brands, it's quite essentially or they are branded seperately as such, doesn't always work but think there's about three different forms that other ones may work for some people. Do find this whole thing really interesting (alaki is probably a better term for that ph scale, you want to be trying to either get the body to adjust itself to as neutral as possible when it comes out, thats what the large bowel would have done, but since you don't have that thats where the problem comes from). This may explain it better than what I am doing here lol jpouch.org home > Forums > J-Pouch Forums > General Discussion > Butt Burn it has this post here: "I was told that butt burn is due to excessive alkalinity in the stool after removal of the colon. The body either adjusts well or not over time. To treat the problem you must identify the problem. I don’t think it’s diet. It’s likely excessive alkalinity in the stool. Have a pH test done on the stool. Then you will have your answer and can treat accordingly. You gotta remove guessing and speculation from the equation, which is what I am hearing here. Let science tell you what’s going on. " Shame I can't directly link it to be fair but its exactly what a user on there said (is essentially almost what I said myself but then they went into more of how the body adjust to it sometimes with some over time, like I am leaving it as such the way it is with me since adjusting it by using a medication might hinder my body from adjusting so it'd prolong the time it'd ake to naturally adjust as such).

Also there's this huge myth going around well with most of us I'd have thought (I knew this when reading the prescription label on the product itself) when my skins particularly bad I never use ordinary like shower gels or anything of that sort I use what I have been prescribed with which is called Cetraben (there's others of the same kind like a common one being called Oilatum but that tends to be quite expensive if bought privately here they're called really as a replacement for showergels and soaps called Soap Substitutes but it rarely happens now anyway.

Try adding to your food journal how the food was prepared. I can eat french fries that have been baked in the oven but not deep fried. Sometimes preparation is the key not just the food.

Yacir Torres hi! I used to take it when I had Ulcerative Colitis. I read a lot on it and found from other people that it helps to minimize my bleeding. But I also discovered that it’s a natural antibiotic. I was sooo terrified before my surgery..that if I get I get a jpouch that I would possibly suffer with pouchitis. I read so many horror stories about pouchitis and how people would have to be on antibiotics permanently. I didn’t want that. So, since I already had olive leaf extract at home..I decided to take it everyday just in case. I have not had pouchitis yet. Hopefully won’t.

Rosie Rose thanks I will try it I had my pouch 3 months ago and my body is having a hard time adapting to my j pouch im having stomach cramp and the part where my stoma was still in pain. But what it bother me the most is the sensation of going to the bathroom i don’t kwow if you experienced those issues how long did take you to adapt to your pouch

Gutsy Talk I just have my j pouch 2 months ago and my body still hasn’t adapted to the j pouch im still having stomach cramps and still have a lot of pain where my stoma was how long did it take you to adapt to your pouch

Yacir Torres after my j pouch surgery I had to be hospitalized twice because of severe pouchitis. Eventually my surgeon diagnosed me with chronic pouchitis and I now take flagyl antibiotic everyday since February. As far as adapting and stoma pain, it took me about 3 months to fully adapt to the pouch. And the pain and scar where the stoma was can take a long time to heal. It's been 7 months for me and it's just starting to fully heal. Just remember as time goes on you will get more better and normal. I'd say give it at least a year to fully heal, but you should fully adapt after a few months. Let me know if you have anymore questions. Take care friend 😃

Gutsy Talk thanks I really needed to talk to someone about it I’m having a hard time recovering.

Yacir Torres no problem man. I'm happy to help and answer any questions you may have. I was also scared and confused after my surgery.

Gutsy Talk Hi Gutsy sorry to bother you again but I’m having a hard time recovering from my last surgery it’s been 4 months already.im having some issues. I’m having butt burn so badly and the part where my stoma was still in pain. Did you had the same issues after last surgery and if you did after how long did they went away

Dustin Riddell thank you!!! And I’m glad I can help! Email with questions anytime!

Rosie Rose what's your email and do you have a Skype I'd love to Skype u and ask a few things

The Hot Stomato thank you!!! Yes!! Try it!!! Let me know if it makes a difference for you! 💗💗💗

congerzak1 you’re so very welcome!!!! 💗💗💗

KuyyQ

If it's because of surgery it shouldnt be longer than a week in my own experience really it shouldn't certainly take months for the bowel to get back to normal, a month tops.

I hope you are going better.