![Noura Costany](/img/default-banner.jpg)
- Видео 154
- Просмотров 269 142
Noura Costany
Добавлен 22 авг 2013
Noura Costany is a writer and creator. She is a healthcare advocate and a Cushings Disease Survivor!
Follow on Tik Tok and Instagram at : @chronicallyyours_
linktr.ee/NouraCostany
Read more about Noura's Journey at Bio News! Link in my link tree!
Follow on Tik Tok and Instagram at : @chronicallyyours_
linktr.ee/NouraCostany
Read more about Noura's Journey at Bio News! Link in my link tree!
Видео
Weird Symptoms that could be Cushings Disease
Просмотров 1,1 тыс.Год назад
Weird Symptoms that could be Cushings Disease
How to Support your Chronically Ill Friends
Просмотров 169Год назад
How to Support your Chronically Ill Friends
Which labs are off with Cushings Disease?
Просмотров 546Год назад
Which labs are off with Cushings Disease?
Support and Communication for those with Chronic Illnesses
Просмотров 5582 года назад
Support and Communication for those with Chronic Illnesses
How To Reach Me When I'm Not on YouTube
Просмотров 2853 года назад
How To Reach Me When I'm Not on RUclips
Cushings Disease Post Op and Dealing with Mental Health Issues
Просмотров 7713 года назад
Cushings Disease Post Op and Dealing with Mental Health Issues
Cushings Disease - Tapering Off Steroid Medication
Просмотров 1,4 тыс.3 года назад
Cushings Disease - Tapering Off Steroid Medication
Cushings Disease - Ketoconazole and Hydrocortisone
Просмотров 1,3 тыс.3 года назад
Cushings Disease - Ketoconazole and Hydrocortisone
Thank the Lord my endo dr diagnosed me with cushing 2 weeks ago, having surgery in 3 weeks. Sorry you all are having trouble with finding a good endo dr.
I did the midnight salivary cortisol test it was 0.071 my dr said that is normal but i have moon face the buffalo hump and my labs are crazy off i have gained 25 pounds in 3 weeks..Im lost over what to do next
hey beautiful i just wanna thank you a lot for your positive words i rlly needed to heart it , you are such a wonderful and strong person keep up ! btw uu look amazing may allah bless you !
Your channel should be called Calorically Yours 💀
I have a pituitary cyst but they won't do surgery to help me. I've been having crazy symptoms, I have both high and low prolactin levels. They keep telling me since your prolactin levels are normal you're fine. I don't want to live on migraine medications for the rest of my life. 😢
😂😂😂 I cant... i think we should just deny fat "people" from hospitals and basic needs, just let them go out on their own
My next step is the cortisol urine test . What surgery did you go for?
Hi Noura. My name his Marie, Am from Montréal, Québec, Canada ( the city where Céline Dion his born). So am a french Canadian, i can write in english, but please forgive me in advance if i make mystakes, i will try my best. I have watch your videos, and am happy that youtube sugest me your name when I was doing my rechearch about Cushing. Today, was the day that i had my first appointement with an Endocrinologis. She give me the test urine 24hours, saliva and dextramethasone test. Like you, my first suppression test end with result "under the normal". My family doctor didnt understand, and told me ( in july) you dont have Cushing. Here in Québec, if you want to see a spécialist doctor, like endocrinologis, your family doctor have to " convince" him to give you an appointement, that you are " probably" a case for him, because they dont see nobody, just them who they choose, they dont spend time with you if its not serious....So, You, Yes You Noura, change my destiny!!!! Because I have watch your video, the one who you teach us how to do the tests when its cyclic Cushing, the one that you tell that its take you 8 endocrinologis before the one find that you have cyclic Cushing....So, I talk about you at my family doctor, and I am make him watch your video 😊 And because of you, he décide to fight for me, and ask to the "centrale appointement bureau of the spécialist doctor, that i had my first suppression test who résult " under the normal " BUT he really insist to describe my physical changes, all the symptômes i have since 3 years now... So, you have convince my family doctor, and he finaly convince an Endocrinologis to give me an appointement!!!! And guess what, he his the one who said that we gonna investigate because" in his point of view, maybe i have cyclic Cushing desease..." I did' nt have to talk about this possibility, he had name it by his self! So now, after 3 years of being in the dark and suffering, see my body and my healt falling appart, i now have i little bit of hope! And i have a start for an answer, and I have an Endocrinologis who accept to treat me! And all this because of you!!! You are a beautiful person, and with your big heart you share crucial informations, that probably saved my life! And i dont joke, beacause i now have a heart condition, and severe osteosporosos, end with a diagnose last week of severe spinal stenosis, l4 l5, and a neurosurgeon will operate me in emergency probably this week or the other after, because my spinal ( i dont know the name, in french we say "moëlle épinière ") its too skeeze, i have risk to paralyse... Anyway, you know the drill, so many problem with this Cushing syndrome... So, i know its a big message, but I wanted to say thank you, thank you so much. You make a différence in my life, we are far away, but I keep you in my pray, and am happy that i foud your video! Take care of you and thank you and big hug from Canada 😇
17 lbs is amazing! 😮
Oh. Thoughts on one of the home cortisol tests just to see how it turns out?
Are you pituitary? Adrenal? Just wondering if you have the clavicle pads? Mine seem to swell/flatten out. They were definitely swollen when I had a urinary cortisol which I now know is a low. My buffalo hump 😤 is kind of flat right now as are my clavicle pads. Trying to decide if that may be a good indication to approach my Dr again
Also. Oh7? Did I hear that right? What impact does that have on the UC? I know I was not given a tablet
I had to take prednisone for over a year and got the striae pretty bad, worse than what you showed here. That was about 20 years ago, haven't been to a beach or swimming pool ever since lol
Having a phobia is having a fear of something. Ain’t no one scared of you
'Fatphobia' is the “irrational fear of, aversion to, or discrimination against obesity or people with obesity
@@Chronicallyyours_ discrimination? Doctors tell the truth. They don’t try to make you feel better
@@Chronicallyyours_I don't think hating is the same as fearing
@@Noobeh3191read the definition
Have you ever heard of Islamophobia? It’s not like people are scared of Muslims or Islam it’s people disrespecting them and doing other hateful things.
Bro they are just trying to help you by not being obese ok? You should take advice from doctors who are more educated and smarter than you. So what if they body shame you? All you have to do is lose weight and you lose the risks of diabetes and more. Its like when someone says stop vaping because it is bad for you and you refuse and still vape.
Hi. I have a brain tumor that caused weight gain and was misdiagnosed, which almost killed me. When I found a doctor who treated the TUMOR and not the WEIGHT, I lost 50 pounds. Please be mindful of the fact that you don't know everything, and maybe, just maybe, you should explore my page for more information before being incredibly rude.
@@Chronicallyyours_ ok look i get it, it may be rude ok? But like i aint tryna be rude im tryna tell yall that being obese or severely overweight can lead to multiple long term health sickness. I also did my research about overweight and it kills almost 300k people. Im just saying that its really bad for you. Also what are you trying to say? You lost 59 pounds? Thats good but im saying that if you wanna be obese then im ok with that but just be mindful about the long term health risks. Thank you
@@Random_Stuff462you didn’t read my comment. I have a tumor causing weight gain. That’s why I couldn’t lose weight until I got diagnosed. Stay off my page you’re not a nice person
@@Chronicallyyours_Hope you’re doing better now ❤❤
@@Chronicallyyours_ when your diagnosed with something it means you have it. Also for your comment the doctor treated the tumor but not the weight? Ill be at least grateful for it but for the weight you said you lost 50 pounds which is good. For the tumor part the doctor treated it because you said that you wanted it to be treated and they can’t fix the weight problem because its not what you asked for and you have to make another appointment. Also i clearly stated i wasn’t trying to be rude.
Can you be me? I think we look alike
Kill me
Im being tested for cushings as i have some symptoms and very high cortisol levels.
Losing weight reduced mine by like 50%. I still need a lipo though.
What helped you with buffalo hump ? Mine has gotten so big it’s giving me neck issues I struggle to lose weight
So how do u get rid of hump
The depression/anxiety is constant
Hii , i read your story on google , what happened to your 2nd tumour?? you got it removed or are you on medications??
@@savleenkaur7160 currently treating medically
@@Chronicallyyours_ why are you not getting it removed?? I just want to know coz i m having same prblm
@@savleenkaur7160 so since they already took out a part of my pituitary the surgery is riskier. We’re evaluating all the time but my doctor felt like my Safest option was medication
I have a gynicoligist appointment the 3rd September because my doctor doesn't want to take me seriously. I have symptoms...and 5 doctors refused testing. And all of them told my to try keto and workout. 🤦🏻♀️🙄
❤
fatphobic and proud
My sentiments exactly
YOU ARE HARD TO PLEASE. Sorry there is NO other way to put this, lost the weight or it could cost you your life.
How are you doing now? I'm old-ish and I'm dealing with this now.
I have to say (js bc its on my mind lmao) that i think it’s easier to make fun of fat ppl which is why skinny ppl get made fun of *less* and why nobody really talks abt it (nt really related js had to say it)
But obesity increase significantly the risk to get tumors. Its the same way with smokers; smoking can cause lungcancer. Not all smokers gets it, but it does increase the risk. What your saying here is that it is wrong for the doctor to point out the smoking issue but instead focus on the lungcancer?
My weight gain was CAUSED by the tumor. after the tumor removal, I lost 50 pounds.
@@Chronicallyyours_ That's fine, it was out of your control then. But for most people, they are fat because they are lazy.
How long is the recovery? I got diagnosed and scared to death to go through surgery.
Im just thinking that I have it. I have each and every symptom. Was it hard to be diagnosed?
@TiaKruimel yes very difficult to get the proper diagnosis. I went to a few doctors and explained these rare symptoms I am going through. I was told by them that I am fine and my result looked normal. As I am looking myself in the mirror, I see that my appearance does not seem normal. I figured something was up and made an appointment with an endocrinologist. After every process has been completed, like blood samples and cortisol, mri. I finally got the diagnosis, and surgery is required to treat it.
@@TiaKruimel I am afraid to go through the process.
@@AdamQ.-qp8wz Oh goodness!! Okay, I know you will be fine!!! I’m so happy you finally got the diagnosis and just think about how hard you worked at it!! I’m happy for you. I have an appointment tomorrow and requested a cortisol test. I’m on the first step! You are going to be okay and better even now knowing how hard you worked for yourself!!!! ✌️🩵 Thank you for the info!! 💜
I really needed this video today
Hoping you’re doing well these days! Your videos are very helpful to me right now. I would love to chat if you ever have time, but I hope you’re out there enjoying life and feeling better 🙏
I’ve had 3 abnormal tests so far, every one I’ve done is abnormal. A high blood 2 years ago, ignored. A high blood recently and then a 24hr urine which was also high. But I don’t look like I have cushings so.. I’m not sure if they are going to agree to look into it for me..I have to wait to hear back from specialists but Im used to being dismissed after all this time so I’m so nervous it’ll happen again now. I’ve been suffering for years 😭 I’m so hopeful that maybe this is the answer, finally
Can you please do another update. It is so hard to find information and I'm terrified.
Like you, I had chusting syndrome and it was a difficult process. I had surgery on the pituitary gland and thank God I am fine now. How is your condition now? I have a lot of mobility in my intestines and extreme constipation. Have you had it too?
Omgg is that the kuffiyeh print 🇵🇸🔻
Hi there baby how are you doing today. Hope you are doing well miss you
Hi there how are you
Can you have a buffalo bump from overweight instead ?
Love to send you a quick thank you
Love it 2 and delicious chest
Amazing beautiful n sexy n cute and funny and delicious 😋 😍
Today is my birthday so happy to meet you
Can you tell me more about cortisol drop causing a period? Is this a known thing? Cause i've noticed when i'm calmer it comes.
Im sorry to hear about your story . Do you remember what your am cortisol level was? I been having weird symptoms and my cortisol levels in the was 6.5 and when i just did the blood test the level was 20.9 mcg at 12 p.m . Kinda worried now
Great advice! I will add, 3T *or 7T MRI if you can get it.* 😅
omg ive never been approved for a 7T BUT YES! If you can ABSOLUTELY! Thanks for adding
Is there any way I can talk to you? I messed up my tests and I am in a really bad spot. I am on my second endo. My regular doctor caught it. I have a confirmed MRI.
So i no longer have the dark spots or hump but i feel like garbage. I also have multiple high mornings but my 4 10 to 11 pms were low e exept 1. And my urines have been normal
Ketoconazole: that is an antifungal ...isnt it?
Hi Noura! I recently discovered I have a tumor on my pituitary gland and I’ll have surgery soon, I been watching videos of former Cuchies 😅 and yours pop out in my feed, I been watching some of your videos but after watching this I’m wondering, do the surgery really help? 😅 is not only you, other girls in their videos talk a lot of the effects after the surgery, so I’m scare 😣 is it worth it? ☹️ Btw thank you for all the very informative content you have, is been very helpful to prepare myself! 🫶