ERPublishing
ERPublishing
  • Видео 47
  • Просмотров 4 997
October 19, 2024
October 19, 2024
Просмотров: 606

Видео

Mi Sirena
Просмотров 138 месяцев назад
Poema: @EstrellaGuancheCanaria Voz y fotos: @CharoGosp Modelo: @when.we.are.vast Logo creation: @Sean Cavill2024 Mi Sirena: Ya no te veo por estos parajes, ni tenaz, ni deslumbrante. Moviéndote como una sirena, cegadora y acongojante. ¡Ven! ¡Acércate! Quiero verte a la luz que nos brindan las estrellas. Eres una ninfa marina, misteriosa, oculta, divina, eterna. Con humildad pido, que esta noche...
Tormento
Просмотров 6011 месяцев назад
Tormento Del silencio oigo los chillidos, del dolor ahogante y maldecido que me despierta antes del amanecer con gemidos y con aullidos. Dolor que rompes mi mente con ladrillos rotos de la arrogancia. Te escucho. Pero con poca atención. Porque ya no te tengo compasión, ni tu llanto me revienta a estas horas tan tempranas, la amargura interna que me roba el corazón. El tormento ahora es más prof...
Surgery: Failed Shunt
Просмотров 17011 месяцев назад
Update on my May VA shunt surgery. It has barely been six months and this new shunt has failed again. My body seems to be in the small group that loves obstructing the end of the tubing not allowing the free flow of intracranial fluid. Time to look for new alternatives and move forward, as difficult as this may be.
Lumbar Puncture Procedure, December 2023
Просмотров 105Год назад
After yet another Lumbar Puncture procedure for IIH, results show that the VA shunt placed during the May surgery is not functioning correctly and further procedures are required. These news have been difficult to take. Please join me in a discussion of the present situation.
Return
Просмотров 35Год назад
After a hiatus, I have decided to share with you not only the joy of 'getting better' but also the bumps on the road and the fall backs. Here I am again to give anecdotes and stories that may make you laugh, think, or perhaps even shed a tear. As always, many hugs to all of you!
IIH: Cough
Просмотров 94Год назад
My coughing attacks continue and getting worse. This saga is becoming a real issue and one that was completely unexpected and leaving specialists speechless. I am truly being tested physically and mentally. An interesting phase in my life and yet another outcome of a VA shunt that was completely surprising to me.
IIH: FeelingBetter
Просмотров 53Год назад
After a difficult VA shunt surgery, recovery has been arduous. With an accidental nicked nerve in my throat during the operation I am having a hard time speaking and swallowing. Coughing has been developing which is causing quite a struggle. But all and all I am so happy to say that I see a light at the end of the tunnel. I am still living with this insidious condition: IIH, but better than bef...
Una Respiración
Просмотров 21Год назад
Hoy estoy pidiendo 1 respiración dedicada a mi dolor crónico diario. Se practica en muchas tradiciones, en este caso se atribuye al Budismo. Algunos llaman a esta práctica Tonglen. ¡Siempre agradecida!
Breath for Pain
Просмотров 47Год назад
The Buddhist practice of Tonglen has been long practiced for the aid of suffering for one person and for the world. Here I ask for one breath to help me in my continued suffering. Thank you!
Pain
Просмотров 97Год назад
After my IIH VA Shunt surgery headaches and dizziness have returned. With a nicked nerve in the throat seriously damaging my vocal cords and impeding me from swallowing properly, I am quite frustrated. Yet, my old headaches returned, waking up in such pain again has really done me in. This chronic pain of pseudotumor cerebri coming back, on top of everything else is not something I ever expected.
IIH: VA Shunt Hospital Stay
Просмотров 580Год назад
Idiopathic Intracranial Hypertension: Ventricular-Atrial Shunt Surgery introduction and description of my hospital stay.
¡Sorpresa! 🥳 (Subscríbete para que no pierdas ninguno de mis videos)
Просмотров 48Год назад
¡En español! 😃 Sorpresa pq ya me han dado el alta 🥳 🥳 Gracias a todos por su apoyo y cariño. Un abrazo muy, muy fuerte 🙏🏼💗💗🌷
Shunt Surgery Update
Просмотров 125Год назад
Shunt Surgery Update
De camino al hospital
Просмотров 60Год назад
De camino al hospital
Day of VA shunt surgery
Просмотров 159Год назад
Day of VA shunt surgery
Thank you! 5/2023
Просмотров 76Год назад
Thank you! 5/2023
Bienvenidos a mi vida!
Просмотров 156Год назад
Bienvenidos a mi vida!
Morning Haircut Hello
Просмотров 66Год назад
Morning Haircut Hello
Welcome to my path to surgery!
Просмотров 313Год назад
Welcome to my path to surgery!
22 Headache Update
Просмотров 36Год назад
22 Headache Update
Would you have this surgery for your headache?
Просмотров 783 года назад
Would you have this surgery for your headache?
IIH: Is it foggy brain or meds?
Просмотров 243 года назад
IIH: Is it foggy brain or meds?
En Este Momento
Просмотров 123 года назад
En Este Momento
19: Do you suffer from Cluster Headaches?
Просмотров 364 года назад
19: Do you suffer from Cluster Headaches?
18: Have you ever experienced occipital neuralgia?
Просмотров 4344 года назад
18: Have you ever experienced occipital neuralgia?
17: Do you have COVID-19 symptoms & Pseudotumor Cerebri?
Просмотров 774 года назад
17: Do you have COVID-19 symptoms & Pseudotumor Cerebri?
Video 16: Lumbar Puncture - Results (5/5)
Просмотров 1034 года назад
Video 16: Lumbar Puncture - Results (5/5)
Video 15: Lumbar Puncture - Medical (4/5)
Просмотров 54 года назад
Video 15: Lumbar Puncture - Medical (4/5)
Video 14: Lumbar Puncture - Patient services (3/5)
Просмотров 94 года назад
Video 14: Lumbar Puncture - Patient services (3/5)

Комментарии

  • @songoftheblackunicorn666
    @songoftheblackunicorn666 2 месяца назад

    John

  • @Mika-n7s
    @Mika-n7s 2 месяца назад

    Girl😂

  • @Tla81
    @Tla81 3 месяца назад

    I had a VA shunt 11/2022 after having a VP shunt(2of them both had broke open and the last also tore a hole in one part of my intestines)for almost 40 years. I am 6q now. Spine had osteoporosis, so no more in that area. I hope you are doing better. Me, I am but did loose about two years though. Mine is programmable with 5 levels of drainage. I am at a 3. Dr did an external drainage to see how much extra fluid I produce. In a 50 hours of monitoring and draining, I produce a little over 2 liters of fluid. I still have good days a foamed rough days. Especially if it’s going to rain within the next 12 hours. Also about 4 pm, pressure builds up just before draining, I will feel my pressure building. When it does drain, I will have a small cramp in my heart. When I had my last VP shunt, too much fluid was drained off, my brain tried to herniated down my spine. I had a donor’s heart sack placed like a hammock to hold up the brain. I’m doing pretty good. I have to use a wheelchair because of my imbalance due to two of my ventricles are collapsed, one fully open and one partial collapse. Shunt is in the partial one so it too wouldn’t fully collapse. I hope you are doing better. My thoughts and prayers are with you.

  • @Baudilaire
    @Baudilaire 5 месяцев назад

    Had mine yesterday. The procedure was painful, and the headache is awful.

    • @ERPublishing
      @ERPublishing 5 месяцев назад

      I am so sorry to hear of your experience and hope you feel better really soon! 🙏🏼🌷 Please remember that the only recovery for a low pressure headache is laying down completely flat and hydration. Sending positive vibes!

    • @Baudilaire
      @Baudilaire 5 месяцев назад

      @@ERPublishing thank you, I’ve been more on my side but will go on my back. I hate coffee but I’ve had 2 and it’s relieved it some.

  • @Lovemy60to70era
    @Lovemy60to70era 8 месяцев назад

    Thank you for your input into this matter. I am seeing my neurologist next month and ask her if I have this after suffering for months.

  • @Pavel_Franta
    @Pavel_Franta 9 месяцев назад

    hey hey, occipital neuralgia owner here 😎 brianfog from chronic pain is my old good friend 😁 wish you best with surgery. Btw i have it for 5 years and i am pretty confident to say maaaybe i will get rig of it naturaly (still testing) If i guasha my neck, use denneroll for neck/middle back spine curve, press triggerpoints and take care about my stress, then suddently all tension from my neck and shoulders go away and occipital neuralgia is gone for.hours and sometimes days. I do my routine for 10days only and having promising results.

  • @YourDailyHopeandEncouragement
    @YourDailyHopeandEncouragement 9 месяцев назад

    I recently stumbled upon your RUclips-recommended video about the lumbar puncture procedure, and I must say, I was impressed by how smoothly you conveyed your message. Your emphasis on human creativity, inspiration, and imagination truly aligns with the themes of my channel. Like you, I strive to provide hope and insights to my audience. Your unique perspective and clear delivery convinced me to subscribe. Keep up the excellent work!

  • @silverspartan2000
    @silverspartan2000 10 месяцев назад

    Just had a lumbar puncture today and found your video. I hope all is going better for you now! I don’t have any headache (actually kinda feels better because I had pressure that was high and they lowered it some) but geez my back is killing me haha

  • @dinawalsh3988
    @dinawalsh3988 10 месяцев назад

    Just curious, have you ever looked into the SOURCE of the pain which also could be your upper Axis or Atlis being misaligned from the surgery. Or even possibly an old neck injury. It's something that you could check into that wouldn't run into alot of money. Ya never know it may correct your symptoms. If you haven't done this yet you can look into an upper cervical chiropractor. It's turned out for myself after experiencing many weeks of chronic sinus problems and really bad cluster headaches that I had a misaligned atlas that was pressing on the transgeminal optic nerve. Doctors can be a bit misinformed because they are only addressing and treating symptoms of pain and this will never work. It could very well be a simple misaligned Axis that is pressing on the transgeminal nerve ganglia.

    • @ERPublishing
      @ERPublishing 10 месяцев назад

      Hello, thank you so much for your suggestion. I have been treated by a chiropractor for several years. At this time an osteopath is helping with my pain considerably. Supposedly there are some issues in my neck but nothing that the chiropractor could directly improve. Although you bring up a good point that I plan to research. And, I am so glad that it has helped you! 🙏🏼🌷

  • @StayWokeTarot
    @StayWokeTarot Год назад

    We're with you Emma! Sending so many hugs and lots of healing energy!💫

  • @erinmalley3958
    @erinmalley3958 Год назад

    Love you Emma❤ I will be watching for your update. Erin

  • @StayWokeTarot
    @StayWokeTarot Год назад

    Keep singing! And we'll sing with you! Thinking of you and sending healing energy!

  • @Yana_M88
    @Yana_M88 Год назад

    Emma, you are so alive😊youuuu so coool. Yana

  • @BachPhotography
    @BachPhotography Год назад

    Great to hear! My Granddad is having a VA shunt in a couple of weeks, its nice to be able to see that yours was a success

  • @gretakrans
    @gretakrans Год назад

    Eres tan bella. Holding your hand.

  • @StayWokeTarot
    @StayWokeTarot Год назад

    Emma...you will make it. Rest. Meditate. We're here! Thinking of you and supporting you!❤️❤️❤️

  • @Jeandy767
    @Jeandy767 Год назад

    Emma, I feel for you. I know how much you love to talk and I am with you. If for whatever reason they told me to not speak it would be devastated. But I know you will get through this. You are a strong and resilient woman. I love you and I will continue to pray and give you good energy.

  • @StayWokeTarot
    @StayWokeTarot Год назад

    I'm so sorry about the headaches in the morning, but your positivity is amazing! Keep going! You have a cheering section! Thank you so much for the update!

  • @ericgarcia9560
    @ericgarcia9560 Год назад

    🎉🎉🎉 So happy for you!!!

  • @gretakrans
    @gretakrans Год назад

    Respiro y te envío sanación. Te bendigo

  • @gretakrans
    @gretakrans Год назад

    Emma. Tu voz siempre se sentirá en nosotros. Dios siempre te dará el foro para que tu mensaje llegue Siempre. No lo dudes. Eres luz y amor!

  • @kelmac6076
    @kelmac6076 Год назад

    Aw Estrella my heart breaks for you and your arduous journey. ♥️ You are a brave strong soul. I envision you healthy and whole. Big sweet hugs 🤗

  • @StayWokeTarot
    @StayWokeTarot Год назад

    Thank you so much for the detailed explanation. And my heart went out to you when I saw you in pain. Oh my gosh. How in the world did the surgeon nick your vocal cords? Sending you so much love and healing. Take care of yourself! And hello to V!

  • @insanemomoffive
    @insanemomoffive Год назад

    So happy to see you are home healing! Thank you so much for sharing your story. You have such a gentle honesty about you through all the suffering. It truly is amazing to see. Sending you all the love I can to help with the strength to adapt and go forward on your journey.. 💕

  • @reinaldolopez4204
    @reinaldolopez4204 Год назад

    Eso profesora!! 🎉🎉💪🏻💪🏻

  • @Lera_New
    @Lera_New Год назад

    You are beautiful, even right after a surgery! ❤️

    • @ERPublishing
      @ERPublishing Год назад

      Awwww!! You are the best Lera! 🥰🥰

  • @Jeandy767
    @Jeandy767 Год назад

    I’m glad to see you are alright. Praying for a speedy recovery.

    • @ERPublishing
      @ERPublishing Год назад

      Te adoro mi querida Jeandy! Despacito pero voy... 🙂

    • @Jeandy767
      @Jeandy767 Год назад

      @@ERPublishing take all the time you need! Love you!

  • @SuzettePlank-Bergonzini
    @SuzettePlank-Bergonzini Год назад

    Hi Emma, Sending you Love and Prayers1

    • @ERPublishing
      @ERPublishing Год назад

      Hi Suzette, Thank you so much for all your love and prayers! Hugs!

  • @StayWokeTarot
    @StayWokeTarot Год назад

    Sending you love and healing! Greetings from Rashunda in Switzerland (hello to Vin)!

    • @ERPublishing
      @ERPublishing Год назад

      Vin smiled when I gave him your greetings Rashunda! Thank you so much for your energy and healing. It is definitely working. I so appreciate it. Btw, by your username, are you a Tarotist? The reason why I ask is because I am, so I am just curious. Thank you again!

    • @StayWokeTarot
      @StayWokeTarot Год назад

      @@ERPublishing I didn't know you were a tarotist also! It's so good to meet like minds!

  • @OlgaAdler-d9b
    @OlgaAdler-d9b Год назад

    Fingers crossed for you, Emma!

    • @ERPublishing
      @ERPublishing Год назад

      Thank you so much my dear Olga! Things looked doomed for a bit there but all is good now and I am so happy. I truly believe that it is thanks to all the great energy coming my way 🙏🙏

  • @donnaavery2814
    @donnaavery2814 Год назад

    Praying for a successful surgery and speedy recovery. Sending hugs.

    • @ERPublishing
      @ERPublishing Год назад

      Thank you so much Donna! Your prayers are being answered and I am so happy. Please keep them coming as they are working. 💗

  • @cristinaizquierdo9999
    @cristinaizquierdo9999 Год назад

    Vaaaaamos Emmita!!

    • @ERPublishing
      @ERPublishing Год назад

      Mi Cristinita, ya estoy en casita! Ya voy mejorando. Pasito a pasito. Esto no es nada facil pero voy. Siento toda la energia que se me esta mandando. Es precioso! 💘💘

  • @gretakrans
    @gretakrans Год назад

    Deseandote todo lo mejor!

    • @ERPublishing
      @ERPublishing Год назад

      Gretchen, eres un amor! Gracias por estar siempre conmigo 💖

  • @brandijacques9036
    @brandijacques9036 Год назад

    Sending love and support and all my positive energy! You’ve got this!! ❤

    • @ERPublishing
      @ERPublishing Год назад

      My dearest Brandi, thank you so much for all that positive energy! I really think that I made it through because of it. Many hugs!

  • @Jeandy767
    @Jeandy767 Год назад

    Everything will be okay. I have you in my prayers and you will be in my thoughts all day long. Lots of positive vibes and energy.

    • @ERPublishing
      @ERPublishing Год назад

      Thank you so much Jeandy! Te siento. Ya ingresada. Tu fuerza me apoya a seguir y luchar. Muchísimas gracias! Te quiero mucho 💗 💗

  • @cuccuworld
    @cuccuworld Год назад

    Sending love ❤️

    • @ERPublishing
      @ERPublishing Год назад

      Muchísimas gracias! El amor mueve el mundo. Un abrazo muy fuerte 🙏🏼🌷

  • @i.k9391
    @i.k9391 Год назад

    Sending healing vibes for your journey

    • @ERPublishing
      @ERPublishing Год назад

      That's all I need to feel nurtured and cuddled. This is will be OK. Keep it coming. Thank you so much! 🙏🏼 🙏🏼 🌷

  • @ruthlussier6157
    @ruthlussier6157 Год назад

    Emma I will be following you! I’ve been, and will continue, to pray for you, your medical team, and Vin. I also have myasthenia Gravis. Love and blessings to you, Ruth

    • @ERPublishing
      @ERPublishing Год назад

      Awww! My heart goes out to you. Let me ask, I had an apheresis before surgery, 2 treatments, to minimize crisis. They seem to have given me more energy. Do you have any experience with this? I plan to talk about it more in the future 😊

  • @anamelian6140
    @anamelian6140 Год назад

    Ánimo me uno en oración por tu intervención que el señor ponga su mano Y Maria Santísima cómo madre, cómo mujer interceda por ti y por los enfermos ❤.... Qué hayen consuelo y qué por medio de las manos de los médicos salgas y tengas buena y pronta recuperación, Ánimo ❤.

    • @ERPublishing
      @ERPublishing Год назад

      Qué Dios te oiga, y la Santísima virgen también. Confío mucho en ella y la siento muy cerca. Gracias por tus palabras y consuelo. Y el recordarme lo q es verdaderamente importante 🙏🏼🙏🏼🌷

  • @EVADGAR
    @EVADGAR Год назад

    Siempre en mi mente y mi corazón ❤❤❤

    • @ERPublishing
      @ERPublishing Год назад

      Te quiero mucho churry! 💗💗💗

  • @kelmac6076
    @kelmac6076 Год назад

    <3 Estrella sending you oooodles of positive vibes and I witness you healthy and strong <3

    • @ERPublishing
      @ERPublishing Год назад

      Seeing myself through your eyes. Bless you 💗💗🌷😊

  • @Lera_New
    @Lera_New Год назад

    My thoughts are with you! ❤️❤️❤️

    • @ERPublishing
      @ERPublishing Год назад

      Thank you so much! From my heart back to yours 🌷💗💗l

  • @floribelmerced
    @floribelmerced Год назад

    ❤❤❤Fuiste un ángel para Kaleb. Ahora lo seremos para ti. Las mejores vibras!!!!! Allí estaremos ❤

    • @ERPublishing
      @ERPublishing Год назад

      No tengo palabras para explicar lo que Kaleb significó en mi vida. Solo espero haber dado mi granito de arena, lo mejor que pude. Muchisimas gracias por todo el apoyo y el amor! 🌷🌷💗

  • @daryrodriguez8485
    @daryrodriguez8485 Год назад

    Idiopathic intracranial hypertension occurs when pressure inside the skull increases for no obvious reason. Deseandote exito en tu procedimiento y mucha salud.

    • @ERPublishing
      @ERPublishing Год назад

      Totalmente cierto. Muchisimas gracias Dary! Asi llevo mas de 30 años desafortunademente. Un abrazo

  • @gretakrans
    @gretakrans Год назад

    Celebro tu valentía y tu dulzura. Abrazo tu ser. Envío mucha energía de amor y sanación para ti.

    • @ERPublishing
      @ERPublishing Год назад

      Eres un amor y un ser muy especial Gretchen! Muchisimas gracias!

  • @iliasfadil4212
    @iliasfadil4212 Год назад

    a lot of toughts and thinkings with you ! ❤

    • @ERPublishing
      @ERPublishing Год назад

      Thank you so much my dearest Ilias! Hugs 🌷🌷🙏🏼🌟

  • @reinaldolopez4204
    @reinaldolopez4204 Год назад

    Usted es una guerrera, le enviamos un fuerte abrazo!! 💪🏼💪🏼

  • @insanemomoffive
    @insanemomoffive Год назад

    My thoughts and my heart are with you, my amazing friend. ❤️

    • @ERPublishing
      @ERPublishing Год назад

      Thank you so much Marion! Things keep going downhill, so we're on top of it 😊

  • @miguelsousinha2613
    @miguelsousinha2613 4 года назад

    You are a warrior!! Has been the fight of my life!! I was so desperate that I went for a new treatment in South Africa. I am from Portugal and for 10 years I was CH Chronic, having up to 8 attacks a day, everyday of the year. I did several head surgeries where 7 small arteries were closed and more than 20 pain spots were also treated with superficial low electric shocks directly in the pain spots. All those spots are like numb now, and I don't feel any pain. I am now 1 year pain free. The doctor who cured is Elliot Shevel and his clinic, The Headache Clinic. I spoke about my experience with several sufferers and many of them are against my doctor treatments. I can only speak about myself, it worked for me, he saved my life. I don't take any preventing medication or O2. I just don't have attacks anymore. Feel free to contact me, despite of the fact I think I am cured now, my thoughts are always linked to this curse. miguelsousinha instagram miguel-sousinha@outlook.com

    • @ogechiagada6213
      @ogechiagada6213 3 года назад

      Could you go into detail of what worked for you?

  • @craigslistmademerich5451
    @craigslistmademerich5451 4 года назад

    Hope 1 day you will feel better. Suffering the same problem I appreciate you making this video.

    • @ERPublishing
      @ERPublishing Год назад

      Thank you so much! I hope you feel better very soon also.