Видео 111
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7:31

Getting up from a seated position when I can’t get up on my own

4:48

Getting up a step when you cannot walk up a step with limb girdle muscular dystrophy

2:44

Walking with LGMD 2023

6:19

Daniel Ferguson Foundation Dinner Fundraiser Talk

18:36

The Moth GrandSlam Story

7:52

My first power chair 2024

December 20 2024:
I’m 47 years old. Diagnosed with lgmd2A in 1995 at the age of 17.
I got this Quantum Edge 3 power chair in August 2023. It was in December of 2022 where I noticed I was getting weaker physically. I didn’t want to be stuck in a scooter waiting to get a power chair so I started the process. It took 3-4 months from filing the paperwork with insurance until I got the chair.
If you’re noticing it’s getting harder to move around then I suggest you start the process of getting a chair. You don’t have to use it all the time and it doesn’t mean the disease is winning.
Since I got this chair it has brought so much more freedom and less worry when going out.

Видео

7:31

Walking with LGMD in 2024

Просмотров 69314 дней назад

I’m 47 years old. Diagnosed with LGMD2A/R1 in 1995. I’ve lived with this condition for nearly 30 years. In this video I’ll share with you how walking is compared to years past, what’s changed and how I handle that.

Getting up from a seated position when I can’t get up on my own

4:48

Getting up from a seated position when I can’t get up on my own

Просмотров 7 тыс.Год назад

August 10, 2023: in this video I show you how I get up when I can’t get myself up. I’m 46 years old, diagnosed with limb girdle muscular dystrophy since 1995. I lost the ability to get myself up without assistance about a year ago. So, for 32 years I was able to be independent. What happened was the muscles in my back weakened to where I wasn’t able to lift my head up to the desk or table top a...

Getting up a step when you cannot walk up a step with limb girdle muscular dystrophy

2:44

Getting up a step when you cannot walk up a step with limb girdle muscular dystrophy

Просмотров 9 тыс.Год назад

July 20, 2023: 46 year old man, diagnosed with limb girdle muscular dystrophy in 1995 at the age of 17. I had lost the ability to walk up stairs on my own roughly 10 years ago. In order for me to go up or down stairs I need to be “piggybacked”. I’ve used this method for 10 years . However, in the past few years I’ve noticed it is causing a strain on my shoulders when I’m being carried up or dow...

6:19

Walking with LGMD 2023

Просмотров 6 тыс.Год назад

July 12 2023: in this video I am 45 years old, diagnosed with limb girdle muscular dystrophy 28 years ago at the age of 17. In just the past two years I have seen a drastic change in my physical health. When I walk I’m not landing heel,ball,toe but instead the entire foot is landing on the ground at once. I show in this video when I’m trying to walk like everyone else does, I can do a slight he...

Daniel Ferguson Foundation Dinner Fundraiser Talk

18:36

Daniel Ferguson Foundation Dinner Fundraiser Talk

Просмотров 526Год назад

On June 23, 2023, I gave a talk at the Daniel Ferguson Foundation Dinner Fundraiser in Sydney, Australia on the struggles of living with Limb Girdle Muscular Dystrophy. It was an honor to share how LGMD changed me over time. Thank you to DFF family for having me! Please visit: www.dffoundation.com.au to learn more about what they are doing to help support those living with all types of LGMD by ...

7:52

The Moth GrandSlam Story

Просмотров 1,2 тыс.Год назад

On June 15, 2023, I competed in a Moth GrandSlam competition against 9 other story tellers. The theme for the night was "Big Breaks". I did not win but sharing stories about my life with muscular dystrophy and how it has impacted my life is my way of spreading awareness and hopefully some inspiration to those who listen to it.

5:19

2021 LGMD Stretching Video (Part 4)

Просмотров 3,9 тыс.3 года назад

In this final stretching video I share how frustrating stretching can be. I was told that I would have to stretch every day for the rest of my life when I was in my twenties in order to keep my body working properly. When told that I would have to stretch forever, I was devastated. I thought stretching would lead me to a place where I wouldn’t have to stretch once I “arrived”. But now, almost 2...

6:19

2021 LGMD Stretching Video (Part 3)

Просмотров 2,5 тыс.3 года назад

Part 3 of 4 stretching videos: I am 44 years old diagnosed with limb girdle muscular dystrophy since 1995. These stretches are part of my daily routine. When I don’t stretch, I notice the difference in my movements-they’re more rigid and robot like. These stretches are good for the hamstring, quads, lower back, IT Band, groin.

4:45

2021 LGMD Stretching Video (Part 2)

Просмотров 2,4 тыс.3 года назад

In part 2 of 2021 LGMD stretching I share more stretches for the groin, lower back and neck. Again, go at your own pace and breathe. Doing these stretches you should feel good not in pain.

5:08

2021 LGMD Stretching Video (Part 1)

Просмотров 9 тыс.3 года назад

Stretching video part 1: In the stretching videos, 4 in total, I share what stretches I do everyday. Just want to say here that I am not a physical therapist or doctor so don’t take my stretches as stretches that will be good for you. Try them, go slow and see how you feel after doing them. I’ve been doing these stretches just about every day and I notice the difference when I don’t stretch. Fl...

2021 Walking with Limb Girdle Muscular Dystrophy

6:56

2021 Walking with Limb Girdle Muscular Dystrophy

Просмотров 11 тыс.3 года назад

July 18 2021: In this video, I am 44 years old. I was diagnosed with limb girdle muscular dystrophy in 1995, at the age of 17. Over the last 26 years, I’ve noticed a huge difference in my walking. In this video, I share what has changed over the years and how I deal with these changes.