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Thank you so much for sharing with me! I can relate to everything you said, and I'm glad that you have made it to the hopeful stage. Getting a type 1 diagnosis isn't fun, but it was so important for me to feel like I finally had some control over my health outcomes. Sending you so many good vibes as you adjust to your new reality <3

Yes! It's so simple and so key to understanding what we're dealing with. I encourage everybody facing a diabetes diagnosis to ask for a c-peptide test :)

It is really nice to have that algorithm helping out! I spend a lot less time thinking about my blood sugar now :) I hope the transition goes well for you!

Thank you! I have fun making these :)

Wow, you've been through a lot, Bill! Thanks for sharing your story here. Congratulations for living well with this beast of a disease for so many years 😄

Thank you so much for telling me your story! It's a really scary time when you're not feeling well and waiting on answers from the doctor. I hope your appointment on the 18th went well and you got the answers you needed. Pumps aren't totally accessible yet for the vision impaired, but with some of their mobile apps, you might be able to do more than you would think independently. I almost exclusively use my tslim mobile app for day-to-day use. You might just need some help adjusting settings on the pump itself. Hang in there as you settle into your diagnosis. I know you've got this 💙

Yes, absolutely! It's really about the lack of insulin, not necessarily the blood sugar number.

Thanks so much for your kind comment and encouragement. I'm glad your diagnosis was more straightforward! There are a lot of nuances to this disease, and it makes sense that doctors would want to consider factors like age, weight, and genetics. It's always helpful when they are open to unexpected answers, though! I hope you're doing well :)

It’s not always that easy for everyone. It’s amazing for her that her A1c is so good, but portraying her as some kind of “example” for other people with T1 perpetuates the very harmful stereotype of good vs bad “diabetics”. All people with T1 want to have good control, but there are a lot of factors at play. If your A1c isn’t always optimal, it’s not because you are a “bad diabetic”, or “noncompliant”. Good care should not shame or patronise patients, but be empathetic and supportive.

@@sadmisterguna That's a bit absurd! Many of the "factor at play" are crappy advice and, (a bit tongue in cheek here), many official "resources" like the ADA recipes online, LOL! They are insane. Aiming at some goal does not mean that one should make moral judgements on those that can not achieve them. THAT is a problem, but not the goal of normal A1c itself. And of course it's hard. been there done that! That does not invalidate the benefit of an aspirational, optimal goal. Approaching it without a rigid, absolutist mentality is more emotionally balanced for sure.

@@grumpyinbrooklyn6347 I would not call the notion of compassion and supportiveness in patient care absurd…? It’s the way you phrased your initial comment that rubbed me the wrong way: saying that people with T1 diabetes “SHOULD aim for such optimal control” implies that you think they DON’t, due to lack of effort or “compliance”. That is simply not the case. The many factors that I mentioned go far beyond “crappy advice” and include depression, anxiety and other mental health issues which are common in people with chonic conditions, learning disabilities, diabetes burnout, brittle diabetes, lack of education, poverty, lack of access to healthcare, stress due to work or family pressures, etc etc. All of these can lead to less than optimal outcomes. The last thing a person that, on top of their diabetes, is already struggling with these problems needs is someone judging them and telling them they simply need to try harder.

@@grumpyinbrooklyn6347 @sadmisterguna I truly agree with both of you here. I don't think there's such a thing as a "good diabetic" or "bad diabetic." Our outcomes are so dependent on the education we receive and resources available to us. There is absolutely no way I would have a <6.0 A1C without a CGM, and it helps that I now use an algorith-based pump so I get to be somewhat on autopilot. I was also probably experiencing some honeymoon help from my pancreas during the time when this video was made. Finally, I'll share that keeping my A1C in the low 5's took a big toll on my mental health! I had to be so focused on tight control that a lot of other things in my life were pushed to the side. It is definitely possible for most type 1's to have positive health outcomes with the right info and tools, but that doesn't mean that it's a moral failing or a character flaw if someone is struggling. We're all in this together.

@@brewbolusrepeat1146 Yes, sometimes people attribute intents that are just not there, maybe triggered by previous bad experiences. I think most of us have been shamelessly gaslighted or patronized by a provider, or friends and relatives, for example. And good luck trying to have "truly normal" BG/A1c while actively fighting a nasty infection or a course of steroids, both of which are 100% out of our control and not "our fault." Blame and shame are not the goal and are toxic. My issue is with an officially indoctrinated defeatist attitude and "institutionalized" low expectations as standard of care frequently FORCED on us! I had to fight tooth and nail to be "allowed" to pursue my diabetic goals. That should be malpractice but they get away with it because the system is rigged that way! We are not just "numbers" on a statistic!

I just came back to the comments on this video after MANY months away, and I really hope you were able to get answers and help. Let me know how you're doing if you feel like it!

Yeah, it's really scary how poorly it was all handled. That's my hope for sharing the story too. I was in the dark when it happened to me, but maybe others experiencing symptoms like mine will see this video and be better informed going into their appointments than I was.

Mindy, I'm sorry it took me so long to see your comment! Thanks so much for sharing your story. When we have the slower onset of symptoms as adults, it's so easy to attribute them to other things. I'm glad that you finally found the cause, and it sounds like they got you the proper blood tests and answers pretty quickly! Hang in there. The first several months can be a bumpy road, but you'll find your stride soon. Check out the Juicebox Podcast if you haven't already!

Hi, David! Thanks for your kind comment 😊 it’s nice to be in a good diabetes groove, although it was a roller coaster throughout my move! Wish I would have recorded more about managing my blood sugar through that whole process. Hope you’re doing well!

@@brewbolusrepeat1146 My numbers are much better now that I'm on toujeo. Endo appt next week.

@@davidp9820 Excellent! I really loved Toujeo over Lantus when I was on injections for a while between pumps. It kept me steady longer. Good luck with your endo appt!

Haha, that's an awesome idea! Thanks for your comment :)

Thank you, David! I've obviously been away for quite a while, but I'm considering recording some updates soon. Glad you liked my videos :)

So glad to hear that you have a great doctor and are continuing to get answers and make improvements! I've come to understand that I most likely have LADA (sometimes called type 1.5, but it's basically slow-onset T1). That may be something you're interested in researching as your insulin needs increase. It does make a huge difference just getting on the long-acting! I highly recommend checking out the Juicebox Podcast if you haven't ever listened to it. The private facebook group has several lists of episodes that will help you figure out where to start 💙

Hi, Angel! The Omnipod only uses fast-acting insulin. I use Humalog in mine, but you could also use Novolog, Fiasp, or whichever fast-acting insulin you typically use. You no longer need a long-acting insulin like Lantus because you get a steady drip of basal insulin from the pump instead.

I've really struggled with how to respond to that doctor. I feel like I probably should contact him at some point just so he knows how dangerous his presumption was, but I also don't want to be too petty about it 😅I've learned so much about the importance of advocating for myself with doctors! Thanks for commenting, and I hope you are staying safe and well 💕

@@brewbolusrepeat1146 i understand but he put your life in danger if you were my sister or friend family i would definitely make sure he knows the importance of giving patients the right tests and diagnoses but I hope that you are doing well

@@brewbolusrepeat1146i’m glad that you’re doing well now. i think that your story (and mine and so many, many others, especially girls and women) illustrates that doctors or anyone who says get off google are off the mark. research, explore, fire any doctors who make judgements without knowledge, and stick with a doctor who’s willing to research and explore. doctors don’t have infinite knowledge, but you do of your own body. as for sending a note to the doctor who (i’m sorry, but…) screwed you, it would not at all be petty - it just may save someone’s life in the future.

Thank you so much, Linda! I really appreciate your kindness 🙏🏻 Good luck to you as you keep moving forward! 💙💙💙

That's so exciting, Linda! Thanks for leaving a comment to let me know you enjoyed the video. I've got another video that I put up before Christmas about decorating and changing my pod- maybe something for you to watch while you prepare to start in Feb 😊

I'm glad you found it helpful! :)

Yay!!! So exciting :D

Aw, I'm glad it was helpful to you, and I hope your transition to the pump goes smoothly :) I'm really liking the Omnipod now that I've settled in with it. I'd love to hear what you think once you have it!

Thanks, Emma! I'm glad you found some useful information in it :) It's all a bit overwhelming at first, isn't it? Wishing you all the best as you journey down this road <3