My Melanoma World
My Melanoma World
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  • Просмотров 451 702
Ep 4 Katie and Leah
Ep4 Katie and Leah
Today we addressed some of the commonly asked questions, based off of @aadskin1 website (check it out, you can find all of the frequently ask questions)
Here are some of the questions we spoke about in our live today.
1. Does spf lose strength?
2. What type of spf should I use?
What’s the difference between UVA and UVB rays? What is the difference between rays?
3. Is a high number SPF better than a low one?
4. Can I use sunscreen I bought last summer or do I need to purchase a new bottle? Does sunscreen expire?
GIVEAWAY DETAILS
How they won? Q: true or false: are cream spf good for dry skin?
So excited for our giveaway winners. @dear_chronic_pain and @p.marie.jones1831
Thank you s...
Просмотров: 86

Видео

World Cancer Day 2024
Просмотров 1455 месяцев назад
World Cancer Day 2024
10 for 10 on my Cancerversary
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10 for 10 on my Cancerversary
Real Life w/melanoma ep4 #mymelanomaworld #melanoma #cancer
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Real Life w/melanoma ep4 #mymelanomaworld #melanoma #cancer
Hair Loss Awareness Month
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Hair Loss Awareness Month
Live Chat with Leah!
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Live Chat with Leah!
What I wore on my Cabo Cruise
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What I wore on my Cabo Cruise
I have Fibromyalgia
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I have Fibromyalgia
My husband
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My husband
Did I have a brain reoccurrence?
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Did I have a brain reoccurrence?
My 16th surgery coming soon!
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My 16th surgery coming soon!
Real Life w/Melanoma ep3
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Real Life w/Melanoma ep3
Ranting! I have to sometimes!
Просмотров 481Год назад
Ranting! I have to sometimes!
Meet Chelsey | Ohyouresotough
Просмотров 204Год назад
Meet Chelsey | Ohyouresotough
Let’s talk! Dr appts and stuff!
Просмотров 5162 года назад
Let’s talk! Dr appts and stuff!
Acure in Sight | Danet (social media mngr)
Просмотров 1832 года назад
Acure in Sight | Danet (social media mngr)
CEO of Desert Cameo Apparel
Просмотров 772 года назад
CEO of Desert Cameo Apparel
L.U.V. Apparel | CEO Erica Sullivan
Просмотров 782 года назад
L.U.V. Apparel | CEO Erica Sullivan
CEO of Love Sunbody | Dr Terry Zickerman
Просмотров 672 года назад
CEO of Love Sunbody | Dr Terry Zickerman
Casey | Stage IV Melanoma Warrior
Просмотров 5222 года назад
Casey | Stage IV Melanoma Warrior
CEO of Tri Sirena Apparel | Stefani
Просмотров 702 года назад
CEO of Tri Sirena Apparel | Stefani
How my melanoma began
Просмотров 83 тыс.3 года назад
How my melanoma began
Not always strong
Просмотров 2853 года назад
Not always strong
James Anthony & BCC
Просмотров 493 года назад
James Anthony & BCC
Meeting a Melahomie
Просмотров 2023 года назад
Meeting a Melahomie
Post Brain Surgery
Просмотров 4993 года назад
Post Brain Surgery
“Hey Alexa, open skin check?“ |skin check 101
Просмотров 2703 года назад
“Hey Alexa, open skin check?“ |skin check 101
I have a BrainTumor | Part 2
Просмотров 3,2 тыс.3 года назад
I have a BrainTumor | Part 2
I Have a Brain Tumor | Part 1
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I Have a Brain Tumor | Part 1
What’s Been Happening?
Просмотров 6503 года назад
What’s Been Happening?

Комментарии

  • @tayoriginal4067
    @tayoriginal4067 13 дней назад

    I was just diagnosed today with melanoma, and the dermatologist cut it out, but I'm headed to Markey on the 30th of July. I'm so scared. Thank you for sharing your story.

    • @MyMelanomaWorld
      @MyMelanomaWorld 12 дней назад

      @@tayoriginal4067 I hope you are able to get a strong doctor that will help support you and take care of your health. If you have questions, reach out, be your own advocate and lean on family/friends! Also don’t use google for info. stick with real credible sources.

  • @claireenright9935
    @claireenright9935 Месяц назад

    You are incredible! ❤

    • @MyMelanomaWorld
      @MyMelanomaWorld Месяц назад

      Thank you so much! 😊

    • @MyMelanomaWorld
      @MyMelanomaWorld 14 дней назад

      @@claireenright9935 thank you for saying that, very kind

    • @claireenright9935
      @claireenright9935 14 дней назад

      @@MyMelanomaWorld so true though. It’s not easy to share what is so scary in your life and it gives people hope 💛 I hope you are well 🩷

  • @Queenwraith
    @Queenwraith Месяц назад

    Is she died?

  • @BarbaraHolroyd-tw1xc
    @BarbaraHolroyd-tw1xc Месяц назад

    Talking,,,,,not on ..

  • @nextsteps
    @nextsteps 2 месяца назад

    🙏 congratulations🙏 Your Story is Your Superpower

  • @Jorden.Florence
    @Jorden.Florence 2 месяца назад

    I've nearly died from boredom let alone melanoma

  • @bethmarsh1491
    @bethmarsh1491 2 месяца назад

    Background talking is so distracting!!!!!!!!

  • @stuff4u111
    @stuff4u111 2 месяца назад

    The "but what if they did?" Just hit different. I watched this like 10 million times!

  • @mrigazio
    @mrigazio 2 месяца назад

    I’m curious to know if you have had to deal with lymphedema after lymph node removal. I’m going to check your other videos.

    • @MyMelanomaWorld
      @MyMelanomaWorld 2 месяца назад

      I had a little issues with it but months later I haven’t had any more problems

  • @mrigazio
    @mrigazio 2 месяца назад

    Thank you for sharing this. Your mole story reminded me of mine: weird eraser sized mole appears, then gets itchy & bloody, raised off the skin. I’m Stage 3 & having my 3rd surgery next week. I’m glad for everyone like you sharing info & educating others. There’s a lot of misinformation and sadly judgement out there.

    • @yug15.
      @yug15. 4 дня назад

      which immutherapy u give

  • @lesliembjones
    @lesliembjones 2 месяца назад

  • @lcvebcmbs
    @lcvebcmbs 2 месяца назад

    omg that “BUT WHAT IF THEY DID” that was IMMACULATE.

  • @jemilavenner-walcott7210
    @jemilavenner-walcott7210 2 месяца назад

    you dropped a pin! could i have it???

  • @pine_percs932
    @pine_percs932 2 месяца назад

    I wish she would release this version as "mad tv"

  • @lilsad5126
    @lilsad5126 2 месяца назад

    How many times have I watched this Yes ✨

  • @minvelseskanal876
    @minvelseskanal876 2 месяца назад

    The background noise is very annoying

  • @Rainingcatsndog
    @Rainingcatsndog 2 месяца назад

    I’m curious, what your symptoms were that led you to know the melanoma had metastasized to the brain?

    • @MyMelanomaWorld
      @MyMelanomaWorld 2 месяца назад

      Hi! Good question. My left side of my body had issues. I would have something in my hand and drop it uncontrollably. I had speech issues but most of all MY HEADACHES were inconsolable. The pain of those is what led me to the ER for a brain mri!

    • @Rainingcatsndog
      @Rainingcatsndog 2 месяца назад

      @@MyMelanomaWorld Thank you for responding! I had melanoma last year. They did the excision and that was it. No checking of lymph nodes, no oncologist. I feel like my case wasn’t taken serious. Skin checks every three months but I’ve been having headaches everyday for three weeks now and occasional tinnitus like noises in my head. The pain is in a different spot all the time. I have an appointment Thursday but I have a feeling they will procrastinate getting me an mri.

    • @MyMelanomaWorld
      @MyMelanomaWorld 2 месяца назад

      You can always get a second opinion! That is something a lot of people do, especially when it comes to dermatology appts. Wishing you the best and I hope you’re safe from further skin cancer cases!!

    • @Rainingcatsndog
      @Rainingcatsndog 2 месяца назад

      @@MyMelanomaWorld thank you so much! You as well! ❤️

  • @MadisonBriggsArtchick
    @MadisonBriggsArtchick 2 месяца назад

    My father who is 86 was just diagnosed with Merkel cell carcinoma. At the same time, he was also diagnosed with his second squamous cell carcinoma. I had never even heard of Merkel cell carcinoma. Turns out it is extremely aggressive and rare. My father is scheduled for surgery on May 15. 😅I am his caretaker so I am taking him to all his appointments. I have had two biopsies in the past for skin cancer, but they came out negative. I did not take care of myself. Did a lot of tanning when I was younger and including in tanning beds. I am almost 66 so that was a generational thing. I’m so sorry you dealt with this as a young person. Thank you for providing all of awareness that you are. May you stay strong and healthy for years and years to take care of your family and enjoy your life.

  • @cristinaescobar3164
    @cristinaescobar3164 3 месяца назад

    Hi i'm sorry for what happened to you I have a personal option to make, Google is not the same as 2005 Google no have lots of information and RUclips people personal experience can help you to find out things in my experience thanks to Google and RUclips I found out my daughter had leukemia because my daughter pediatric didn't believe it she said I was negative about my suspicion we went to the emergency room because the pediatric didn't do nothing and hospital yes the confirm my daughter had leukemia so basically I safe my daughters life by searching.

  • @iSheree
    @iSheree 3 месяца назад

    I am a 32 year old cancer patient, it’s not melanoma, but just having cancer and treatment puts me at risk of other cancers. I also have a family history of skin cancers, everyone in my mums side of my family from age 40 and up, all have skin cancer. This video is a wake up call, I don’t wear sunscreen unless I am actually spending time outside. Most of the time, I am indoors because I am disabled and bedridden. If I go out, it’s to the car and off to the hospital most of the time. I have never really thought about how the sun rays still get on me anytime I go out, even if I am not spending the day out going to the beach or something. So you have helped me and given me the best chance to prevent melanoma. I am also going to get this strange mole on my toe checked. I want to say thank you. I hope you’re doing okay. ❤

  • @Medpasser0357
    @Medpasser0357 3 месяца назад

    stage 4 here since 3-13-13 still getting clear scans every year... cannabis !!!! the miracle drug that big Pharma dont want you to know!!!!! "Never Give Up"...

  • @Medpasser0357
    @Medpasser0357 3 месяца назад

    😘

  • @drakepassage4255
    @drakepassage4255 3 месяца назад

    I have a friend who has been battling stage 4. And yes, many of those who she considered "close friends" have abandoned her. And yes her family really does not really comprehend what she is going thru. They see her condition as something chronic, rather than a struggle for life.

  • @dantimber
    @dantimber 3 месяца назад

    I am so sorry you went through this. It's tough. Fortunately there are many new melanoma treatments and vaccines on the horizon. Best to you. 🙏

    • @MyMelanomaWorld
      @MyMelanomaWorld 3 месяца назад

      There are so many from the beginning days of my battle! Thankfully I have been cancer free for a decade now and advocate for melanoma.

  • @pamhampshire1804
    @pamhampshire1804 3 месяца назад

    What is the name of the app that will help me keep track of any changes?

  • @rmcgarra7
    @rmcgarra7 3 месяца назад

    See a Dermatologist at least once a year...have them check the top of your head....

  • @lyndseyreed949
    @lyndseyreed949 3 месяца назад

    I don't have melanoma but I've been binge watching your videos. You're so strong and I wish the very best for you. ❤ (Also, super random but you remind me so much of Mira Sorvino.)

    • @MyMelanomaWorld
      @MyMelanomaWorld 3 месяца назад

      Thank you for supporting me and for learning about skin cancer through my content!! I am very grateful for those who take part in all they can with my story!!

  • @scottjackson163
    @scottjackson163 3 месяца назад

    I greatly appreciate your video. I’m “watching” a couple of places that have already been treated (cryotherapy) by a dermatologist. ❤

  • @donnalynn12
    @donnalynn12 5 месяцев назад

    A culledypupbhelps

  • @Will_b83
    @Will_b83 5 месяцев назад

    I was in a really bad wreck when I was 19. I had more broken bones in me from it than not…but considering I went through a windshield I’m lucky to be alive. The damage was so extensive that my left collarbone and one of my ribs did not heal correctly because they were not set back properly. So for the next ten years everything just hurt…people who haven’t lived with constant pain simply don’t understand what it does to you mentally…it got to the point where I wouldn’t leave my home. I finally went in and had two back to back surgeries to correct these issues and life’s been far better since. I don’t know what’s going on with you, but I’m sorry that you are in constant pain…I let mine lead to a pretty bad pill addiction that I had to beat before I could even do said surgeries. I hope you find the answer to your situation.

    • @donnalynn12
      @donnalynn12 5 месяцев назад

      Dogs rock...Lol

    • @MyMelanomaWorld
      @MyMelanomaWorld 5 месяцев назад

      Thank you for sharing. You’ve certainly overcome so much. Addiction has gone through my family and I can’t imagine still how difficult that must’ve been. I have long term damage from my extensive cancer treatment and 17 surgeries over the years. So pain has just been a huge factor in my recovery in survivorship. I also have been diagnosed with fibromyalgia, chronic pain and fatigue, neuropathies, nerve damage and inflammation ect. The list keeps growing….so sleep has been one hard time after another.

    • @Will_b83
      @Will_b83 5 месяцев назад

      @@MyMelanomaWorld thank you…I’m glad to hear you survived your cancer treatment…and so sorry to hear it did so much damage.

  • @millieloves2
    @millieloves2 5 месяцев назад

    Saving

  • @gailbenes4583
    @gailbenes4583 5 месяцев назад

    Thank you for this video. I found out two weeks ago a spot on my back was melanoma, stage 2. I go in on Feb 14th to have surgery. Wish me luck. The spot was on my back and my husband never noticed and of course I couldn't see it. On my back was odd because it has not been exposed to the sun since the early 80s. When I was younger we layed out all the time, no sunscreen, etc. I guess it catches up with you. I had a full body scan because of other spots I wanted checked out. I kept putting off. Glad I finally went or the cancer would have gone unnoticed. I pray you continue to be melanoma safe.

    • @MyMelanomaWorld
      @MyMelanomaWorld 5 месяцев назад

      So glad you’ve been proactive and got this location checked out. We just didn’t know then and sadly so many still don’t or look the other way, “that won’t happen to me!” Let’s hope things go smoothly for you going forward, sending my best!

  • @chaunceybuddy1116
    @chaunceybuddy1116 6 месяцев назад

    I love what you have to say but the TV in the background makes it hard for me to attend with the competing noise.

    • @MyMelanomaWorld
      @MyMelanomaWorld 6 месяцев назад

      It’s my daughter and she was trying to be quiet. We did our best with the location that we could in our house

  • @Rodmic-hd9pn
    @Rodmic-hd9pn 6 месяцев назад

    The people in the background are annoying

    • @MyMelanomaWorld
      @MyMelanomaWorld 6 месяцев назад

      It’s not annoying when it’s my daughter

    • @Rodmic-hd9pn
      @Rodmic-hd9pn 6 месяцев назад

      I’m so sorry I shouldn’t have said that.

  • @41NGM
    @41NGM 6 месяцев назад

    Big congrats!!❤❤❤

  • @lyndakollar3588
    @lyndakollar3588 6 месяцев назад

    Congratulations on your 10 years CF milestone🎉

  • @mistysedillo4450
    @mistysedillo4450 6 месяцев назад

    Thank you, I am stage 3...you give me hope❤

    • @MyMelanomaWorld
      @MyMelanomaWorld 5 месяцев назад

      I am thankful to be able to help and spread awareness, only hoping that someone like yourself finds some peace in my story. Sending you my best, everyday!!

  • @GarethSewell1982
    @GarethSewell1982 6 месяцев назад

    Congratulations, inspirational. Any tips? ❤️

    • @MyMelanomaWorld
      @MyMelanomaWorld 6 месяцев назад

      What tips are you looking for? Maybe I can narrow some down

    • @GarethSewell1982
      @GarethSewell1982 5 месяцев назад

      @@MyMelanomaWorld anything you have done which you feel has got you this far? Diet, exercise, sleep etc… 👍

  • @corinnayorke2422
    @corinnayorke2422 6 месяцев назад

    Congratulations, doesn’t begin to express how wonderful this news is!! Celebrate every single moment!! It is a miracle! You are a miracle! You have been given a gift! You are using this gift to bless others, to educate others, to support others! My husband was given months to live after his Melanoma diagnosis, and he is now coming up to year 6!! We live with hope with each passing day, week, month, year! Life has taken on new meaning! Yes, it was hard, yes, not everyone could walk with us through the journey, but as a family we got through it and still do. My husband has also been released, no more scans, oncology visits, or treatment appointments and no lab visits. That was even hard to accept, because it became a comfort to know what was happening. But we got use to that as well with time. A new normal. Now each day we wake up and accept the gift of life for today! Yes, we are always a little on guard, watching. But that’s a good thing! I watch him closely and he gets skin checks. But we choose to live and not worry. Worry would be such a waste of the gift we have been given. It isn’t always easy, but we try. It is so very sad to know too many still pass away from Melanoma. It’s cruel. But the medical community is making progress and lives are being saved. Education and early detection is still so important. You are getting this message out to the world! Thank you!! 10 years is reason to celebrate! I am just so happy for you! Blessings to you and your family! Live your best life, Love, and continue to do everything you are doing to bring awareness and to give hope! ❤❤❤❤❤❤❤

  • @janinealexa567
    @janinealexa567 6 месяцев назад

    CONGRATULATIONS!! 🎉

  • @suzannearsenault3342
    @suzannearsenault3342 6 месяцев назад

    Yees Dear, you should realy write a book🤩👍🙏🙏🙏

  • @suzannearsenault3342
    @suzannearsenault3342 6 месяцев назад

    Bravo .. ❤️👍 sending you lots of love 💞 xoxo

  • @m.s.2291
    @m.s.2291 6 месяцев назад

    Trank you for your videos. I’m 35 and found out about melanona 3 months ago.Luckily its stage I. God bless you,stay healthy❤

  • @nikebautista6240
    @nikebautista6240 6 месяцев назад

    I will have myself check tomorrow. I have a odd looking mole that unexpectedly appeared few years ago and still worries me. I hope it's not melanoma.

    • @MyMelanomaWorld
      @MyMelanomaWorld 6 месяцев назад

      Hoping for positive results. Glad you’re going to get it looked at! Sending my best!!

  • @johnathanabrams8434
    @johnathanabrams8434 6 месяцев назад

    Rich people havent a clue what pain is

  • @ballroomdancer02
    @ballroomdancer02 8 месяцев назад

    Thank you for educating us.

  • @sandiegolivingmagazine3897
    @sandiegolivingmagazine3897 8 месяцев назад

    I thought melanoma didn't itch. God bless you. I just had a recurrence. I had 12 primary tumors in 2019.

    • @MyMelanomaWorld
      @MyMelanomaWorld 8 месяцев назад

      Yes it can and is a symptom of some moles that can be cancerous. It didn’t itch right away but when it started to and it bled when I scratched it, I knew it was avoidable to not get to the dermatology

    • @MyMelanomaWorld
      @MyMelanomaWorld 8 месяцев назад

      www.skincancer.org/early-detection/self-exams/

  • @hopeseeker2023
    @hopeseeker2023 8 месяцев назад

    Why did you lose people around you? Did you withdraw or did people just back off and leave? 😮. I thought most sunscreens contain carcinogens themselves. Do you use a special kind? This was 2 years ago but popped onto my feed. I pray all is well today.

    • @MyMelanomaWorld
      @MyMelanomaWorld 6 месяцев назад

      I don’t know, people couldn’t handle my cancer I guess

  • @jojo710
    @jojo710 8 месяцев назад

    Heart breaking…RIP beautiful lady. My beloved sister Kimmie survived 18 months. 😢