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PFS Network
Добавлен 22 ноя 2020
Serious and irreversible disease occurs in some young people after as little as one dose of finasteride, a drug marketed to treat hair loss. This is currently termed Post-Finasteride Syndrome. There is currently no effective treatment.
PFS Network is a registered charity. Our objectives are to raise awareness regarding this devastating condition and support molecular-level diagnostic research in PFS patients. This will enable effective screening for those predisposed to this debilitating condition, and effective treatments for the many already suffering.
Learn about important upcoming research here: pfsnetwork.org/donate
Every person is irreplaceable. Everyone deserves to make an informed choice when it comes to their health.
Thank you for your empathy and support.
PFS Network is a registered charity. Our objectives are to raise awareness regarding this devastating condition and support molecular-level diagnostic research in PFS patients. This will enable effective screening for those predisposed to this debilitating condition, and effective treatments for the many already suffering.
Learn about important upcoming research here: pfsnetwork.org/donate
Every person is irreplaceable. Everyone deserves to make an informed choice when it comes to their health.
Thank you for your empathy and support.
Juan says he has "suffered a lot" after taking the 5-alpha-reductase inhibitor saw palmetto
Juan shares his experiences taking saw palmetto, a 5-alpha-reductase inhibitor commonly taken for hair loss, and the persistent side effects he suffers after discontinuation.
Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurological, and sexual side effects that persist and progress after stopping finasteride. The condition occurs primarily in younger men who have taken the drug to treat hair loss. There is currently no effective treatment for this disease.
PFS has a disastrous impact on patients, their families and their friends. It often causes disability, isolation and suicide. Every person is valuable, and everyone deserves to make a fully ...
Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurological, and sexual side effects that persist and progress after stopping finasteride. The condition occurs primarily in younger men who have taken the drug to treat hair loss. There is currently no effective treatment for this disease.
PFS has a disastrous impact on patients, their families and their friends. It often causes disability, isolation and suicide. Every person is valuable, and everyone deserves to make a fully ...
Просмотров: 2 562
Видео
Marko says post-finasteride syndrome is "like being put to jail for a crime that you did not commit"
Просмотров 3,2 тыс.9 месяцев назад
Marko shares his experiences taking finasteride, a popular hair loss drug, and the persistent side effects he suffers after discontinuation. Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurological, and sexual side effects that persist and progress after stopping finasteride. The condition occurs primarily in younger men who have taken the drug to ...
Molecular Biologist Dr Alfonso Urbanucci Discusses Post-Finasteride Syndrome and Upcoming Research
Просмотров 3,7 тыс.10 месяцев назад
Alfonso Urbanucci, PhD is Group Leader and Senior Research Fellow at the Faculty of Medicine and Health Technology at the University of Tampere, Associate Investigator at the Center for Molecular Medicine Norway, and currently Project Group Leader at the Institute for Cancer Research at Oslo University Hospital. Dr. Urbanucci has published a series of papers on the molecular effects of androgen...
Accomplished Molecular Biologist Nadine Hornig Discusses Post-Finasteride Syndrome
Просмотров 4,8 тыс.11 месяцев назад
Nadine Hornig, PhD is Principal Investigator at the Institute for Human Genetics at University Medical Center Schleswig-Holstein and Kiel University. Dr. Hornig conducts research in the areas of molecular biology, genetics, epigenetics, and endocrinology and was recently published in the distinguished journal Nature for her paper, "Formin-mediated nuclear actin at androgen receptors promotes tr...
Carlos says he is "unable to feel" and life is "meaningless" after finasteride
Просмотров 4,9 тыс.Год назад
Carlos shares his experiences taking finasteride, a popular hair loss drug, and the persistent side effects he suffers after discontinuation. Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurological, and sexual side effects that persist and progress after stopping finasteride. The condition occurs primarily in younger men who have taken the drug to...
Tom's life has fundamentally changed for the worse after experiencing Post-Finasteride Syndrome
Просмотров 4,9 тыс.Год назад
Tom shares his experiences taking finasteride, a popular hair loss drug, and the persistent side effects he suffers after discontinuation. Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurological, and sexual side effects that persist and progress after stopping finasteride. The condition occurs primarily in younger men who have taken the drug to tr...
Bastian "could not provide informed consent" to the dangers of hair loss drug finasteride
Просмотров 6 тыс.Год назад
Bastian shares his experiences taking finasteride, a popular hair loss drug, and the persistent side effects he suffers after discontinuation. Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurological, and sexual side effects that persist and progress after stopping finasteride. The condition occurs primarily in younger men who have taken the drug t...
Blake describes disturbing physical and neurological changes after taking finasteride for hair loss
Просмотров 7 тыс.Год назад
Blake shares his experiences taking finasteride, a popular hair loss drug, and the persistent side effects he suffers after discontinuation. Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurological, and sexual side effects that persist and progress after stopping finasteride. The condition occurs primarily in younger men who have taken the drug to ...
"My life will never be the same": Erik's describes how Post-Finasteride Syndrome destroyed him
Просмотров 11 тыс.Год назад
Erik shares his experiences taking finasteride, a popular hair loss drug, and the persistent side effects he suffers after discontinuation. Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurological, and sexual side effects that persist and progress after stopping finasteride. The condition occurs primarily in younger men who have taken the drug to t...
Finasteride caused persistent side effects in trials. 20 years later men are still mostly unaware.
Просмотров 6 тыс.2 года назад
Learn more: pfsnetwork.org Drug manufacturers, regulators and hair loss companies have long maintained that finasteride, a popular hair loss drug, is safe. And despite mounting evidence to the contrary, they claim there is no proof it can cause side effects which persist even after stopping the drug. In this video, we break down the explosive findings from a 2019 Reuters investigation which dis...
Conall’s Finasteride Story and suicide: “I cannot believe I go to a grave to visit him”
Просмотров 7 тыс.3 года назад
Learn more: pfsnetwork.org Mary Gould discusses the experiences and tragic death of her son Conall who suffered persistent and progressive side effects after brief use of the drug finasteride, a popular hair loss drug. Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurological, and sexual side effects that persist and progress after stopping finaster...
The many lives irreversibly destroyed by the hair loss drug Finasteride
Просмотров 12 тыс.3 года назад
Learn more: pfsnetwork.org Finasteride is a popular drug marketed to young men for male pattern baldness. In our latest podcast series, patients, their loved ones and clinicians speak about the devastating impact Post-Finasteride Syndrome has had on their lives. Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurological, and sexual side effects which...
Aksh says every part of his life is ruined after using Finasteride
Просмотров 8 тыс.3 года назад
Learn more: pfsnetwork.org Aksh shares his experiences taking finasteride, a popular hair loss drug, and the persistent side effects he suffers after discontinuation. Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurological, and sexual side effects that persist and progress after stopping finasteride. The condition occurs primarily in younger men w...
Aksh’s Finasteride story: If you can’t have sex it’s hard to have relationships
Просмотров 3 тыс.3 года назад
Learn more: pfsnetwork.org Aksh shares his experiences taking finasteride, a popular hair loss drug, and the persistent side effects he suffers after discontinuation. Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurological, and sexual side effects that persist and progress after stopping finasteride. The condition occurs primarily in younger men w...
Author says life has become ‘survival’ for men with Post-Finasteride Syndrome
Просмотров 4,1 тыс.3 года назад
Learn more: pfsnetwork.org Mary Payne discusses her experiences being with a partner who suffers from Post-Finasteride Syndrome. Researching the issue for a book, she has interviewed many patients as well as surviving family members of those who suffered with PFS and tragically committed suicide. Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurolog...
Mary Payne on Post-Finasteride Syndrome: Your entire body is under assault and you cannot function
Просмотров 2,2 тыс.3 года назад
Mary Payne on Post-Finasteride Syndrome: Your entire body is under assault and you cannot function
Mike says warning label for Finasteride is ‘ridiculously slight’ and his life is ruined by 1mg
Просмотров 6 тыс.3 года назад
Mike says warning label for Finasteride is ‘ridiculously slight’ and his life is ruined by 1mg
Mike’s Finasteride Story: It’s not “you’re you, with side effects on top of you”, it’s body horror
Просмотров 3,2 тыс.3 года назад
Mike’s Finasteride Story: It’s not “you’re you, with side effects on top of you”, it’s body horror
Patrick ‘wishes he had never taken Finasteride’ after years of persistent sexual dysfunction
Просмотров 3,6 тыс.3 года назад
Patrick ‘wishes he had never taken Finasteride’ after years of persistent sexual dysfunction
Patrick’s Finasteride Story: “The memory loss I can cope with…The sexual dysfunction is killing me”
Просмотров 2,2 тыс.3 года назад
Patrick’s Finasteride Story: “The memory loss I can cope with…The sexual dysfunction is killing me”
Ardalan feels ‘lobotomised’ from Finasteride’s persistent adverse effects
Просмотров 2,8 тыс.3 года назад
Ardalan feels ‘lobotomised’ from Finasteride’s persistent adverse effects
Ardalan’s Finasteride story: You have this regret, everyday, that you took the pill
Просмотров 1,8 тыс.3 года назад
Ardalan’s Finasteride story: You have this regret, everyday, that you took the pill
Men discuss Finasteride's side effects: “You could be fine, or it can ruin your life overnight”
Просмотров 1,5 тыс.3 года назад
Men discuss Finasteride's side effects: “You could be fine, or it can ruin your life overnight”
Men devastated by Finasteride’s persistent side effects say it could happen to anyone
Просмотров 4,3 тыс.3 года назад
Men devastated by Finasteride’s persistent side effects say it could happen to anyone
Dr Michael Irwig discusses his research on Post-Finasteride Syndrome, harrowing patient experiences
Просмотров 8 тыс.3 года назад
Dr Michael Irwig discusses his research on Post-Finasteride Syndrome, harrowing patient experiences
Dr Michael Irwig on Post-Finasteride Syndrome: I’ve had patients tell me they’d rather not be alive
Просмотров 3,3 тыс.3 года назад
Dr Michael Irwig on Post-Finasteride Syndrome: I’ve had patients tell me they’d rather not be alive
9 doses of hair-loss drug Finasteride destroyed Professor Daniel Stewart’s life
Просмотров 4,4 тыс.3 года назад
9 doses of hair-loss drug Finasteride destroyed Professor Daniel Stewart’s life
Daniel’s Finasteride Story and suicide: “Finasteride had destroyed his mind and his body”
Просмотров 4,4 тыс.3 года назад
Daniel’s Finasteride Story and suicide: “Finasteride had destroyed his mind and his body”
Post-Finasteride Syndrome: The Devastating Human Cost Of A Hair Loss Drug
Просмотров 6 тыс.3 года назад
Post-Finasteride Syndrome: The Devastating Human Cost Of A Hair Loss Drug
why you never trust the medicine of a whiute man
Accutane did the same to me, ghosted like you men, told it was always anxiety,
wtf is this bs xd.... scammers
They are professional victims. Praise Kevin Mann at haircafe.
totally made up. there's no evidence of your symptoms. go see a psycologist
@@davidefaccin1895 i have devastating psysichal and neurological damages. Anxiety doesn't cause this hell
why the fuck you took finasteride in the first place? you got a full head of hair. these stories are total nonsense, you convinced yourself you got ill from a pill and now you are blaming it. this is totally made up and fake
Ahahahahah you know nothing
@@davidefaccin1895 Thank you Davide Faccin, you are very important, even roaches have their usefulness in the ecosystem.. bring controversy and activity to the channel, thus boosting the algorithm... It's a form of populism. You bring low level discussion but lots of emotions. You also reveal another aspect of the whole picture around the fact that finasteride/dutaster users are more and more aware of the syndrome before and while on the drug. You develop all sorts of guilt complexes and fear that they project on sufferers. In all probabilities you'll join our ranks sooner than later and participate in the combat. They'll be interesting to listen to then.
this is all lies , i have been on 5arinhibitors for years and it all have been perfect ....if you are losing your hair (male or female) go at least on finasteride ... dont listen to this people .. dont lose time and money on bs
I just got a prescription for Finasteride yesterday by my doctor. After seing thsese videoes, I will never touch this. Thank you.
Any of you boys tried carnivore??
full head of hair tho brother hahaha. Keep up the fight, mate!!
It can happen to actually more than anyone. I've been knowing that PFS existed for almost 20 years, never accepted Propecia (even though doctors may have firmly insisted!) and resisted taking SSRIs all my life. At 45, I get from a single pill of fucking ASHWAGANDHA. Someone come with an explanation please. The pump gun is ready for them doctors and pharmacists, just saying.
Even when Propecia'll be out the market there'll still be cases, as many endocrine disruptors are causing it : it even seems any anti-androgen or serotonergic drug is triggering it, from SSRIs to Accutane, and many SUPPLEMENTS (ASHWAGANDHA, Lion's Mane, Saw Palmetto). In the post-Covid world it seems to be exploding. It's an emerging disease I'm under shock to it was identified 20 years ago and still 0 recognition, 0 government implication in the research. Research financed 100% by patients and their families.
Thanks for speaking up mate, I'm in the same neck of the woods and know what you're going through. You're a strong man and I wish you nothing but the best. You're not alone and not to be blamed in the slightest, it's an insecurity so many men have to deal with and this drug is pedaled in a very predatory way. You look well with a shaved head, hopefully the cycle will break for you and you're keeping well.
Mitch's one of these guys who acted on behalf of a 1000 of us who did nothing to improve our cause & spent years spreading dispair and lament. I don't know his exact role in the creation of the network but if there were at least a dozen like him the cause wouldn't be where it's been for years. I mean, putting a US charity together and scientific projects centred on the AR by microbiologists on the top of their fields - I understand most of you fuckos don't know better but at least shell 100 bucks a year to the network, shut your mouth and learn. I mean action. The least you can do is make your family shell a one time 2-3000 bucks a year and learn the word "spirits". The cure for this isn't a question of years, it's a question of how far you're paying for the research to happen.
can someone eplain to me why you dont just take steroids? if its really destroying your life why dont u just take a low dose to replace what you've theoretically lost? or is it because this is completely psychosomatic?
If it were that easy there wouldn’t be these videos.. you don’t think these people haven’t tried any and everything to recover? Sometimes steroids do nothing and in some cases make people with pfs worse, maybe you should use the few brain cells that you have
The samples sent to your lab as of last quarter 2024 are penile skin fibroblasts? I thought it was blood samples so I was finding it surprising. Everyone sending 100 dollars immediately guys. Cut the bullshit. Have some dignity. You're not PSSD sufferers automating a 7 dollar payment a month. Pay 100 now, thonk of how shelling 400 a month next year or a 5000. All of us. All of us shelling something significant. That's the only way.
I'm so glad there are a few doctors out there fighting for us--having PFS and reading all of the studies/articles declaring PFS to be psychosomatic and delusional is such a frustrating and isolating experience. I'm 23 y/o with no history of mental disorders and I have to take cialis just to get an erection, and other stuff to boost my libido. I'm glad awareness of PFS is slowly building so people can make an informed decision before Hims or Keeps throws pills in their face.
Bruh funny thing is he have full head of hair in his 30s and why start finasteride😂 and even without it looks perfectly fine 😂
Mitch bald as hell
George, my experience has been quite similar. I thought Id put it out there that I also had elevated prolactin levels after taking it and i also got gyno (the least of my worries), although it returned to normal.
Grant get on finasteride. You can still save your hair. Lmk if you need advice bro.
@@mexicancookie7622 Finasteride gave me gyno and a slew of other symptoms. Why tf would I get back on it
@@grantmartin2002 how did you administer it? Intranasal is the best to reduce sides
BAAAAAAAAALD. Enjoy your non-existant sex life
You are Just a bunch of weak minded assholes. You failed in Life and are blaming a pill for It . Fuck you
😂😂😂😂
Finasteride turned me into a monkey!
Took finasteride for 4 years and never had an issue .
My brother smoked for 20 years and never had an issue 👌
Notice how all doctors don’t believe this is real. It’s almost like if you are scientifically literate you don’t believe in PFS but if you have an iq below 90 you believe in PFS.
Wow I was scheduled for 3k grafts transplant and I am SO nervous about finesteride. I work in the medical field (Doctor of Physical therapy). I work in a hospital setting and know how docs will prescribe meds like nothing and see patients pass away and on to the next one. I don't mind the procedure but I will not take oral drugs. I hate drugs and hope I can be off all of them. Good luck and hope you know you possibly saved me from hell.
After watching the discussion, I feel like I need to tell my story. Maybe someone might find hope in it. I fist took finasteride back in January 2018, I only took it for three days. I immediately started noticing changes. It started out with mild headaches, to feeling a loss of libido. I immediately stopped the medication and was back ok for about a week, whereafter I experienced this typical crash. I was hospitalized for a month during this period. I had severe brain fog, depression, feeling a disconnect between the brain and the dick, no sensitivity on the tip of the dick, no morning wood, when I would be able to come there was no sensation of having an orgasm in the brain. During the worst time at the start I also had no appetite, insomnia, ... After about a month, things started improving. Slowly I was starting to feel more like myself again. The recovery definitely went in ups and downs. After about 1,5 to 2 years I was fully recovered. I did not try anything and felt like I had to trust my body's ability to recover first. Now, im not saying that this is what you should do. At the time I was just to scared to do things that would be make it worse or prohibit my body to heal. I can say that going to the tanning salon during the winters definitely helped for me at improving my overall mood, and further taking care of your body, eating healthily, exercising. I think it's important to realize that almost all the people that do recover never come back to speak about it. So there are many more recovery stories that are just not being shared. For anybody going through this hell right now, I wish you a lot of courage and strength. Please don't lose hope, take it day by day and don't give up. within a year you might find yourself in a different situation. I'm sorry that this happened to both you and me.
I remember Mary was already very active on forums about this issue when I was going through PFS in 2018-19. I was only 21 and it actually meant a lot to me. I also shortly spoke to Mary and she listened to my story. Thank you for all you are doing, it has unmeasurable value.
to add, I fully recovered after about two years. I only took the medication for three days which is crazy. But even after such a short treatment, I experienced the typical two week period where everything went back to being ok after quitting, to then undergo the crash. This then persisted for a month I would say and afterwards the symptoms became gradually better.
This might be strange, but for me going to the tanning salon during the winter helped alot. I had severe side effects back in 2018 that persisted for 1,5 years. I believe im fully recovered now, luckily. It might be the case that vitamine D is important for recovery, or I just naturally recovered with time. I had both physical and cognitive side effects, from loss of libido, severe brain fog, depression, lack of focus, loss of sensation in the tip of the dick, no morning wood, no arousal when I would be able to come. I wish everybody that is going trough this a lot of courage and strength, my story definitely shows that full recovery is possible. Most importantly don't give up, you are not alone!
Makes me think that anyone with a talent for writing, like Mitch (kidding), could and should write a book about this... Even a small essay. It's your duty if you witnessed this. Anyone witnessing this owes it to humanity to bear witness.
Blake Well
Powerful video that makes a lot clear in just over 3 minutes. Many thanks to those who worked on it❤. Let's hope that this video will be shared and create more awareness.
Pfs propoganda is crazy 😂😂
It's a real thing that happens to real people unfortunately. It is extremely terrible.
gotta get the news out that this is no joke.
Lmfaoooo
Mitch is so salty his hairline got destroyed, now his whole life mission is to make sure everyone else looks awful lol.
Lmao
Mitch why did you stop making these videos? They are comedy gold
I took finasteride and three months later I herniated a lumbar disc. That means finasteride causes back problems right? Lmao
Help finasteride turned me into a cat! Please trust me this is real!! I’m not lying at all.
Bottom tier crisis actors. Took my morning finasteride while watching this video.
It's real. It sucks, but it is. I pray you don't get sides buddy.
@@grantmartin2002 I won’t lol
We need to make it a habit to update what were are doing to feel better
Terrible ruined my life
Don't give up. I also have this been suffering for 9 months now
It's revolutionary that these videos are recorded. How a man in his right mind would chose to take Finasteride after seeing that? These videos have to keep being recorded until there's hundreds, thousands of them. And your role is to keep sharing them every where, on X, on reddit... To family and friends... Even to the media.
thats why i throwed my finasterid in the trash can... even if these cases are rare, its still real and i wont ever touch it.... thanks to those videos... it cannot be healthy to supress a natural hormone in your body...
Keep in mind millions of people take finasteride, i would guess the majority only suffer mild side effects. Pfs is still rare and some will take the risk for their hair. Just like people smoke even if there’s a chance to die in lung cancer from it for example
I mean basically that's so vile... From the industry to do this to people and defend themselves as they do : pay for cheap research to call sufferers mad, pay for cheap youtubers (trolls basically like this hairy guy) to keep promoting Finasteride and attack sufferers... Lol that's troll tactics, like Russia's... Crass and low level research... Troll research )))
Lmao they got you too. Stay bald.
Wtf I was thinking about taking it. Is it real? I mean, are not these people influenced by the side effects and generating nocebo effect?
Can Nocebo Effect last for 10 years? If it were Nocebo, the sides would be stopped once you stop taking the drug right. Why doesn't that happen?
Hi is that resolved?? Hows your health now
I took it for 4 months, barely no side effects. Then I mixed it with isotretinoin because of acne. For a short time I had an ed, but a few Days later the side effect were cone. So I dont know if i should start again when im off on isotretinoin.
Very clear case of nocebo
This guy has devastating physichal damages!
You know NOTHING
@@Adrem37733nah he’s right
I have also been trapped in hell for over 3 years but I have PSSD syndrome 😢😢😢
I know you from X hahahahah
FMT.
Big pharma is garbage and to the people that deny that this is real I ask the question: How can you be 100% sure? No one should be surprised that damaging drugs sometimes get past the FDA because the FDA is run by people and people are not perfect.
Because we have critical thinking skills and can see right through this bs. It’s okay buddy let the smart people do the big boy stuff from now on.
@@mexicancookie7622 You know what your right dude!!!!! I was being so silly!!!!! All the drugs are perfectly safe!!!!!!! IN FACT! You should go take benzos for a while and then cold turkey I'm sure you will be fine!!! I for one would never want anything bad to happen to you LOLOLO, blessings brother.
@@TheAjmos took my morning finasteride while reading your reply. Hope you get help with the schizophrenia.
@@mexicancookie7622 Yeah you will prolly be fine. But your braver than me brother!!! I'd never chance it with all those spooky rumors LOL.