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UCandPSC
Добавлен 9 сен 2012
I was diagnosed with Ulcerative Colitis (UC) in 1995. I was then diagnosed with Primary Sclerosing Cholangitis (PSC) in 2009. I started this video series to document my journey for removal of my colon and eventual Jpouch. I had 3 surgeries performed from Sept 2012 to April of 2013.
Video 43-Update on Jpouch and PSC-Jan 8 2015
FINALLY I've made an updated video to explain how things are going with my Jpouch as well as a quick update on my liver disease PSC.
Просмотров: 5 675
Видео
Video 42-Tribute Video Intro-May 3, 2014
Просмотров 8079 лет назад
I just found this video I made back in May of 2014 where I explain and introduce the TRIBUTE video I made back in May of 2014. I had originally posted the TRIBUTE video here on my youtube channel but due to copyright issues for some of the music I used, it appears they removed it. I have it posted for you to view on the VIMEO site at: vimeo.com/94321936 Please check it out!
Video 41-Pouchitis Update-Mar 4-2014
Просмотров 6 тыс.10 лет назад
3 weeks after being diagnosed with pouchitis I provide a quick update on how things have changed...for the better!
Video 40-Health Insurance-Feb 20 2014
Просмотров 89910 лет назад
Just wanted to discuss a little bit of my experience with my health insurance in the United States before and after the Affordable Care Act changes.
Video 39 Jpouch Update Feb 12 2014
Просмотров 1,5 тыс.10 лет назад
Instead of having a clinic appointment with my GI doctor, he wanted to do a routine scope of my pouch since no one has looked at it since it became active in April of 2013. I describe the procedure and the findings which I was quite surprised at.
Jpouch 8 month update-Video 38
Просмотров 3,5 тыс.10 лет назад
Just a quick 8 month update re: my Jpouch, although not much has changed. Also a reference to a friend's website about HIS experience with UC and a colectomy in the '70s. Here is his you tube link... ruclips.net/video/XbfXxQMk7DI/видео.html And finally, I'm planning on making a sort of "tribute" video for those of us dealing with and going through this CRAZY process but the video would also (ho...
PSC Update-Video 37
Просмотров 2,6 тыс.10 лет назад
I had my annual follow-up with my Hepatologist re: my liver disease (PSC) and I discuss my appointment with her. I also give a quick update re: my Jpouch. In addition, I talk about how these 2 diseases have affected my outlook on life.
Jpouch-Video 36-5 1/2 month update
Просмотров 3,2 тыс.10 лет назад
It's been 5 1/2 months since activation of my Jpouch and 1 year this week since I had my colon removed! I discuss how life with my Jpouch is going and some tips/tricks I've learned along the way. I can't BELIEVE what a difference a year makes!
Video 35-13 week Jpouch update
Просмотров 1,8 тыс.11 лет назад
Almost 3 1/2 months after having my ostomy taken down and using my Jpouch, I discuss how things are CONTINUING to improve! I also answer a couple questions I've been getting. As always, feel free to email me anytime at ucandpsc@gmail.com
Video 34-J pouch-8 week update
Просмотров 13 тыс.11 лет назад
I discuss how things are progressing with my J pouch since I last posted at 4 weeks out. Overall, things continue on an upward trajectory!
Trailer
Просмотров 3,7 тыс.11 лет назад
If you've just come across my channel, here is a very short video to let you know what you're in for! I was diagnosed with Ulcerative Colitis in 1995 and didn't think much about it, but in 2012, for various reasons, I decided to have my colon removed. It was then, that I thought about starting this channel to document my journey of colon removal, temporarily living with an ileostomy and finally...
Video 33-1 month Jpouch update-May 6
Просмотров 4,3 тыс.11 лет назад
It's been 4 weeks since my ostomy takedown and "activation" of my Jpouch! I discusss ALL aspects of my progress so far.
Video 32-1st week of Jpouch use-April 16, 2013.
Просмотров 6 тыс.11 лет назад
It's been a little over 1 week since my ostomy takedown and almost 1 full week of using my Jpouch. I discuss my experience so far.
Video 31-Apr 10-2 days post ostomy takedown
Просмотров 22 тыс.11 лет назад
2 days after takedown of my ostomy, I discuss my bowels waking up and the "ups and downs" I went through on this day starting to get used to my Jpouch!
Video 28-Apr 8-Immediately post ostomy takedown
Просмотров 4,8 тыс.11 лет назад
Video 28-Apr 8-Immediately post ostomy takedown
Pre-Op for ostomy takedown-Video 26-Apr 3-2013
Просмотров 4,3 тыс.11 лет назад
Pre-Op for ostomy takedown-Video 26-Apr 3-2013
Video 25-Update and TIPS for living with an Ileostomy-Mar 28-2013
Просмотров 2,8 тыс.11 лет назад
Video 25-Update and TIPS for living with an Ileostomy-Mar 28-2013
Ulcerative Colitis-Colectomy/Jpouch-Video 22-My first 2 weeks home after surgery #2
Просмотров 3,2 тыс.11 лет назад
Ulcerative Colitis-Colectomy/Jpouch-Video 22-My first 2 weeks home after surgery #2
Ulcerative Colitis-Colectomy/Jpouch-Video 23-2 week follow-up following 2nd surgery
Просмотров 95111 лет назад
Ulcerative Colitis-Colectomy/Jpouch-Video 23-2 week follow-up following 2nd surgery
Ulcerative Colitis-Colectomy/Jpouch-Video 21 2nd surgery hospital stay
Просмотров 1,6 тыс.11 лет назад
Ulcerative Colitis-Colectomy/Jpouch-Video 21 2nd surgery hospital stay
Ulcerative Colitis-Colectomy/Jpouch-Video 20-Jan 17, 2013-2nd surgery 1st bag change
Просмотров 61 тыс.11 лет назад
Ulcerative Colitis-Colectomy/Jpouch-Video 20-Jan 17, 2013-2nd surgery 1st bag change
Ulcerative Colitis-Colectomy/Jpouch-Video 19-Jan 14, 2013-2nd surgery Post Op
Просмотров 3,1 тыс.11 лет назад
Ulcerative Colitis-Colectomy/Jpouch-Video 19-Jan 14, 2013-2nd surgery Post Op
Ulcerative Colitis-Colectomy/Jpouch-Video 18-2nd surgery PreOp-Jan 11, 2013
Просмотров 1 тыс.11 лет назад
Ulcerative Colitis-Colectomy/Jpouch-Video 18-2nd surgery PreOp-Jan 11, 2013
Stealth Belt for Colectomy-Video 17-Dec 19.MPG
Просмотров 9 тыс.11 лет назад
Stealth Belt for Colectomy-Video 17-Dec 19.MPG
Do you still have your ostomy bag or were you able to get a reversal ?
Ulcerative colitis is such a nasty condition and often having a stoma makes life a lot better in the long term.
I have mine 4 8 yrs now I have a inverted stoma pretty small right above my belly button wish it was more yo the side but I had a blocked n have no colon have only sm intense; .dealing with the leaks n gas n bloating n the different noise of the gas But your heathly n thT all that matters.
Love your videos. The bag trick is awesome. I had my surgery back in October so I’m new to this. My surgery had a lot of complications and my stomach is on the inside and not out. One trick I learned with the powder is to turn the bottle right side up so sir fills the top of the bottle and squeeze the bottle to blow off the extra powder. I also found using a hair dryer once everything is on helps seal the flange with the rings to me. Thank you for your video.
Great job! And a good informative video.
YEs have everything prepped to go. I had mt wafer/ring pre cut .Adhesive remover is best. They taught me to take the bag off first. Then take the wafer/ring off then get the skin clean. As the skin starts to dry Check for sore or red skin around the stoma. I used a skin cream for the redness. There is a powder which is to alleviate any odour and you put a small amount in the bag. Then repeat the process, Wafer/ring warm it up to help the adhesive get sticky, apply it to you. Have the bag ready to go, Put the seal on then put the bag on. Its all about practice and confidence. Always take a grab bag with you when you go out juts in case you need to change anything.
Does it get moisture
Anche io ho la stomia dal 30 marzo 1988 coraggio
You can order spray adhesive remover very easy to peal it off Then you can use a bottle spray with water. spray around it to clean your skin and stoma. Don't be afraid to use water bottle spray. Then pat it with dry paper towel or mini fan so around the stoma is totally dry. Do not pour the powder to your stoma . Only to your irritated skin . If you accidentally pour to your stoma make sure spray water because if you don't and once the powder it gets dry your stoma will bleed. Then after that you use the skin barrier so your skin won't irritate. There's also a lubricant to put inside the bag easier to empty your bag
THANK YOU what a wonderful EXAMPLE you are for teaching the world that this is NORMAL
The vented bags stink up the room- good luch
Thank you so much for your words.. and how you explain everything In detail. I just had my ileostomy bag removed after 2 months. I had a terrible bad time with the bag since my stoma was retracted and there were leakedge every day.. but had questions about after thus surgery and you touched on them really nice.. thank you for your words and information.
Brawo za odwagę. Szanuję i podziwiam za nagranie tego filmu. Mój syn ma 8 lat urodził się z przepuklina oponowo - rdzeniową i choruje na jelito neurogenne i pęcherz neurogenny.
2021 had part of my bowel taken out,next will be this thank you for the video I'm kinda freaking out about all of this. 👍
As my partner had an Ileostomy and then we really had to learn alot about preparation of the skin , skin care, why so many leaks ( particularly in men?) THE HAIR GROWTH pushes the flange out so you need to keep the area shaved and extremely clean , plus , there are SO many products. Ask as many questions as you need to and keep asking
Thank you sharing this good info. May I share this with my family member who just had surgery? Goldie
Hi It looks like it's been 2 years since this video. How about an update? It really looks painful to peel it off your skin. The other commenters said there is spray to help with that. I hope you have found it. I have also read that you can use a opaque bag, not transparent. What is the advantage of this one you have instead of the opaque? Thanks for the video, you are brave to do this and very helpful to us all.
It's been 11 years since he did the video. I didn't check to see if he had newer videos on the channel. LetsTalkIBD is a young married woman, who has this kind of content and much more, which is a current channel. I just came across this for things to be grateful for. I have different struggles, and very glad it isn't these one. All the best to those that have to deal w/ all this. Glad there is better alternatives these days than what there used to be.
Muchas gracias por estar a qué otras personas puedan hacer sus cambios de bolsa, saludos desde Ensenada BC México...❤
I had my entire colon removed recently, UC. Sending you all love and strength 💜
Thanks for the upload, & sharing your journey. It’s very helpful to me, I’m waiting to have a permanent ileostomy, no J-pouch for me or any other options. What I would like to point out is how healthy you’re looking in this video, it’s certainly made all the difference. For me I’m having to spend 24 hours a day in bed with immense fatigue and pain, I can’t wait to get my life back. You have given me hope & faith and eased any worries I have, so thank you 🙏 ❤ and congrats for getting where you are, it’s not easygoing that I can see 😅🎉
Wow that was brave
КОМУ ЭТО ДРОЧ ИНТЕРЕСНА?
ТЕБЕ САМОМУ ПРИЯТНО ? ТЕБЕ НЕ СТЫДНО СНИМАТЬ ЭТУ ЕБУРЛУ КАК ТЫ? СРЕШ
I don't like touching my stoma or my pouch so I always use disposable gloves. If you are a germaphobic I would suggest you do the same.
We ( my best friend the stoma)are going every day together shower . He like s it. Sounds strange maybe , but he saved my life.
Before my ostomy I was having bloody stool and the urge to go a lot everyday but could never actually go and sometimes it would hurt
Please i need help ! Its 26years now that i have not been able to poo, except i use excessive laxative. It seems my inner rectum or the inner anus contracts whenever i have the urge and i tried to push poo out in the toilet, but the poo will not pass out.😢 And after a long months i go to the toilet push and the poo goes out easily without the use of any laxative, that sometime happens maybe in just a day in several months of no poo at all..😮 Over the years have tried all Kindly advice on what to eat vegetable, fruits, fibre but all abortive no positive result. Please i need advice on what to do, so i can move on with my life.. living life in this trauma is serously fustrating my life
You need to take a smart pill test and sitzmark test
😢❤ Iam glad you do ok 👌 thow
I have a colostomy bag due to me almost dying of diverticulitis
Those bags be stink like hell
Explain what you mean?
Thank you for sharing and being so open and informative. I'm considering this procedure if my current biological treatments do not work.
How many days could you keep it on if you didn't want to change it?
7 dias no máximo. Mínimo 3.
That shit be stink as fuck
She had a glove touching that
Definitely worth the money...
Thanks for your video. I got an ileostomy as well. And yes I got lightheaded too. Just have to take it easy. You did a great job. Take care😊
one last video would be awesome :) . I'm getting 2nd surgery done in december and takedown hopefully in march next year
Had my colostomy takedown on Friday everything he was saying was pretty much my same experience except I was on water right away and I did not need very much pain medicine just tylonal actually but glad to say everything is going smoothly 😊 I was really nervous about having another surgery before this but truly you do not need to worry yourself trust your body and pat yourself on the back for coming this far !!
Sir j pouch surjery effect by sexual relationship
I could recommend some suggestions for long term care of the pouch. Dr. Scott Willmen Please contact me
Your video is so instructive and explained so nice . Enjoyed it .. thanks so much I’m seeing this video as I’ll be to the process soon and I have heard horror stories but I don’t want permanent bag right now ., want to try my options so thank you
Congratulations! I’m hoping to have my ostomy reversed this summer, had it since January 5th and I hate it! So happy for you! Keep us updated!
how did it go? I hope everything is going well with the j pouch for you, my takedown is this friday and I'm very nervous
Helpful videos many years later, in hospital after takedown surgery this week.
Ask for adhesive removal spray
I have tried these and they do not work because once it gets heavy with output, there is no clip to keep it”locked” and so you will end up having lots of leaks
I wonder how this guy is holding up hope all is great and much improved
I was wondering the same thing.
I know it's a long time since you had yours done I'm 5 weeks away from my takedown surgery and your videos have been so helpful. Could you give me any dietary tips for my first few weeks
I have a Stoma bag. Doing ok with it. 👍
Much needed. Me: Joe, UC diagnosed 2004. Total colectomy next Thursday. Wish I could ask you questions!
Tq for the video..it reallly helps my sisster to understand how colostomy works....shes like 2 week after surgery....she had a colostomy beg with her.....usally im the one that help her change the stoma bag and clean the area and the perimal surface ...but now that back to work...she had to do yhe thing her self....i will share this video to her ....so she could learn how to take over her stoma care by herself...anyway...tq and stay healthy..