Ovacome - the ovarian cancer charity
Ovacome - the ovarian cancer charity
  • Видео 78
  • Просмотров 121 601
Talking to children about an incurable diagnosis
This Ovacome webinar with Kate Wells, Family Support Service Lead at the Ruth Strauss Foundation (RSF), deals with talking to children about an incurable diagnosis.
Kate covers the following topics:
- Why is it important to tell and involve children and young people?
- How do children understand and process information and emotions at different ages?
- What stops us from talking to children?
- A guide to starting these conversations
- Support and resources available
Kate will also share information about the Family Support Service at the Ruth Strauss Foundation.
ruthstraussfoundation.com/
If you have questions about the topics discussed, get in touch with Ovacome on 0800 008 7054 or visit www.ova...
Просмотров: 15

Видео

Understanding BRCA in the Jewish Community
Просмотров 4121 день назад
Having Jewish ancestry puts you at much greater risk of developing certain cancers, including ovarian. In this webinar, Lisa Steele, CEO of Chai Cancer Care, explains what you need to be aware of regarding BRCA genes, including the new NHS England testing programme. Chai Cancer Care provide specialised support for those in the Jewish community affected by a cancer diagnosis. If you have questio...
Travel insurance after an ovarian cancer diagnosis
Просмотров 84Месяц назад
This Ovacome webinar with Fiona Macrae gives tips and points to be aware of when buying travel insurance after an ovarian cancer diagnosis. Fiona Macrae is a professional insurance broker with over 20 years' experience. Following her own diagnosis, she founded InsuranceWith in 2010 with the aim of providing affordable travel insurance for people with medical conditions. If you have questions ab...
The Green Kitchen: sustainable shopping, eating, cooking and cleaning hacks
Просмотров 114Месяц назад
In this webinar, we discuss cost-effective, everyday sustainable eating and kitchen tips and tricks, including: Shopping, growing and foraging for food in a sustainable way Zero-waste food storage alternatives Sustainable cookbooks and recipe websites Saving energy (and money) while preparing food Reducing food waste Natural cleaning products and recipes …and more! The webinar is led by Imo Sim...
The Gifts of Nature
Просмотров 27Месяц назад
In this webinar, we hear from Sarah Jordan about the health and wellbeing benefits of nature and green space. She gives practical ideas of how you can connect with nature for your own wellbeing, even if you live in a city. This session is part of Ovacome's sustainability series. Sarah Jordan is an environmental psychologist and Green Space for Health Programme Director. If you have questions ab...
Understanding germ cell ovarian tumours
Просмотров 992 месяца назад
This Ovacome webinar gives an overview of the diagnosis and management of germ cell tumours, as well as ongoing research into this rarer type of ovarian cancer. Professor Michelle Lockley is a medical oncologist, specialising in the treatment and clinical investigation of ovarian cancer. Professor Lockley held Cancer Research UK (CRUK) Clinician Scientist and CRUK Advanced Clinician Scientist F...
The genomics of rare ovarian cancers with Dr Terri McVeigh
Просмотров 1094 месяца назад
In this webinar, we discuss the genomics of rare ovarian cancers This webinar is led by Dr Terri McVeigh and Dr Terri McVeigh is a Consultant Oncogeneticist at The Royal Marsden. If you have questions aabout topics raised in this webinar or ovarian cancer, get in touch with Ovacome on 0800 008 7054 or visit www.ovacome.org.uk/ To browse our upcoming webinars and events, visit www.ovacome.org.uk...
Rarer genetic changes in ovarian cancer with Dr Terri McVeigh
Просмотров 954 месяца назад
In this webinar, we discuss Rarer genetic changes in ovarian cancer This webinar is led by Dr Terri McVeigh and Dr Terri McVeigh is a Consultant Oncogeneticist at The Royal Marsden. If you have questions aabout topics raised in this webinar or ovarian cancer, get in touch with Ovacome on 0800 008 7054 or visit www.ovacome.org.uk/ To browse our upcoming webinars and events, visit www.ovacome.org...
Sustainable healthy eating on a budget when you have ovarian cancer
Просмотров 655 месяцев назад
This Ovacome webinar gives an overview of eating healthily and sustainably on a budget, and with a diagnosis of ovarian cancer. This webinar is led by Rachel White, Specialist Oncology Dietitian. Rachel takes us through her advice for healthy eating on a budget, including using leftovers and shopping smartly. If you have questions about diet and ovarian cancer, get in touch with Ovacome on 0800...
Q&A with retired wellbeing coach Samixa Shah
Просмотров 366 месяцев назад
Samixa Shah, a retired pharmacist and wellbeing coach, was diagnosed with stage 4 ovarian cancer in May 2012. She had always made self-care and wellbeing a priority in her life and this became even more important after the cancer diagnosis. Samixa used her coaching skills to help manage her wellbeing during treatment. Samixa went back to work as a wellbeing coach on a phased return after 7 mont...
Looking after your wellbeing after an ovarian cancer diagnosis, with retired wellbeing coach Samixa
Просмотров 756 месяцев назад
Samixa Shah, a retired pharmacist and wellbeing coach, was diagnosed with stage 4 ovarian cancer in May 2012. She had always made self-care and wellbeing a priority in her life and this became even more important after the cancer diagnosis. Samixa used her coaching skills to help manage her wellbeing during treatment. Samixa went back to work as a wellbeing coach on a phased return after 7 mont...
Q&A on managing cancer-related fatigue, with occupational therapy lead Maria Denise Pessoa Silva
Просмотров 856 месяцев назад
Maria Denise Pessoa Silva is Associate Lead for Therapies and Professional Lead for Occupational Therapy at the Royal Marsden Hospital, where she has worked for the past 7 years. She has a particular interest in rehabilitation, fatigue management, and palliative care. She remains active in her practice by publishing articles and book chapters, and teaching students, healthcare professionals and...
Managing fatigue after an ovarian cancer diagnosis
Просмотров 1726 месяцев назад
Maria Denise Pessoa Silva is Associate Lead for Therapies and Professional Lead for Occupational Therapy at the Royal Marsden Hospital, where she has worked for the past 7 years. She has a particular interest in rehabilitation, fatigue management, and palliative care. She remains active in her practice by publishing articles and book chapters, and teaching students, healthcare professionals and...
Q&A with oncology dietitian Selin Ramadan
Просмотров 726 месяцев назад
Selin Ramadan is an Australian dietitian who has worked across many sites and specialisations in dietetics. More recently she has moved to London and is working as an oncology and thoracic dietitian at Guys hospital with experience across lung cancer, gynaecological and breast cancers, and urological cancers. In this Q&A interview, we put our community's questions to Selin: Is a plant-based die...
Diet and ovarian cancer, with oncology dietitian Selin Ramadan
Просмотров 3216 месяцев назад
Selin Ramadan is an Australian dietitian who has worked across many sites and specialisations in dietetics. More recently she has moved to London and is working as an oncology and thoracic dietitian at Guys hospital with experience across lung cancer, gynaecological and breast cancers, and urological cancers. Selin spoke at Ovacome's London Health and Wellbeing Day in March 2023 about diet and ...
Lynch syndrome and ovarian cancer
Просмотров 1307 месяцев назад
Lynch syndrome and ovarian cancer
Living with loss: grief after diagnosis and treatment (with BSL interpretation)
Просмотров 1098 месяцев назад
Living with loss: grief after diagnosis and treatment (with BSL interpretation)
PARP Life
Просмотров 548Год назад
PARP Life
What are borderline ovarian tumours?
Просмотров 4,8 тыс.Год назад
What are borderline ovarian tumours?
Prehabilitation: preparing your mind and body for cancer treatment
Просмотров 307Год назад
Prehabilitation: preparing your mind and body for cancer treatment
Recognising grief and managing loss
Просмотров 97Год назад
Recognising grief and managing loss
Supporting someone with an ovarian cancer diagnosis
Просмотров 263Год назад
Supporting someone with an ovarian cancer diagnosis
Professor Charlie Gourley on rarer subtypes of ovarian cancer
Просмотров 1,6 тыс.Год назад
Professor Charlie Gourley on rarer subtypes of ovarian cancer
The era of individualised treatment in ovarian cancer, with Professor Sean Kehoe
Просмотров 914Год назад
The era of individualised treatment in ovarian cancer, with Professor Sean Kehoe
The effectiveness of bevacizumab (Avastin) and related trials
Просмотров 3,9 тыс.Год назад
The effectiveness of bevacizumab (Avastin) and related trials
Recognise the signs and symptoms of ovarian cancer
Просмотров 4,3 тыс.2 года назад
Recognise the signs and symptoms of ovarian cancer
Recognise the B.E.A.T. signs of ovarian cancer
Просмотров 822 года назад
Recognise the B.E.A.T. signs of ovarian cancer
Genetic testing with Dr Terri McVeigh
Просмотров 6312 года назад
Genetic testing with Dr Terri McVeigh
What is HRD (Homologous Recombination Deficiency) and how does it impact ovarian cancer?
Просмотров 4,2 тыс.2 года назад
What is HRD (Homologous Recombination Deficiency) and how does it impact ovarian cancer?
Top tips for managing anxiety, with Dr Maria Hughes
Просмотров 1832 года назад
Top tips for managing anxiety, with Dr Maria Hughes

Комментарии

  • @angelsnadalsorolla5242
    @angelsnadalsorolla5242 21 день назад

    I mis knowing how to breath when I squish button, or other parts of mig core

  • @Lisa_BisaRN
    @Lisa_BisaRN 26 дней назад

    Very helpful.

  • @nellamendez4609
    @nellamendez4609 Месяц назад

    I was diagnosed with ovarian germ cell cancer when I was 19 and had to undergo chemotherapy. Now, at the age of 21, I have been in remission for about a year and a half. I wanted to express my gratitude for the informative video you posted on the topic. It has answered many questions that my doctors couldn't or wouldn't provide me with about my cancer and treatment. Despite being the one undergoing treatment, I was often told that I was too young to understand. Thank you so very much.

  • @True-Striver
    @True-Striver 3 месяца назад

    My father was in BEVACIZUMAB for about 6 months for every 15 days now he is restarting the drug after 4 months. How's the expected response ❓

  • @wendycampobasso4351
    @wendycampobasso4351 3 месяца назад

    So happy for you!

  • @ErikaAlvarez-jn4mj
    @ErikaAlvarez-jn4mj 3 месяца назад

    In 2012 at 28 yo I had stage 1c serous BOT. Had salpingo oophorectomy. In 2017 at 33, I had a reoccurrence and at the time of diagnosis found out that I was 6 weeks pregnant. CA125 was also elevated. I decided to wait to deliver my son and had complete hysterectomy in 2018 at 34 years old. I’m curious if there are any cases of a 3rd reoccurrence?

  • @navbharat1443
    @navbharat1443 5 месяцев назад

    Hope you are doing well now 🙏

  • @ousmanbajinka2896
    @ousmanbajinka2896 5 месяцев назад

    I would like to inhibit CDK2 with CVT313 to dephosphorylate the MBYL2/CCL2 axis in EOC…… However, I could not any similar protocol to downregulate this oncogene..?

  • @yogeshgavali1227
    @yogeshgavali1227 5 месяцев назад

    Ca 125-101 Ca19. 9-199 Cea-103 Borderline overian musions tumer historectomy done... Dr said from ogdscopy and colenoscopy all are normal but my que is why tumer marker then not decreasing

  • @LadyinPacific
    @LadyinPacific 5 месяцев назад

    Thankyou for explaining the calcium and muscle connection. I was diagnosed with ovarian cancer stage 4B and had lost alot of weight and muscle mass from 79kg to 45kg. I've been given calcium and vitamin D3 to take daily.

  • @navbharat1443
    @navbharat1443 6 месяцев назад

    Will trace ascites disappear with the right chemotherapy

  • @mjbi
    @mjbi 7 месяцев назад

    very clear presentation and concise and succinct answers to questions, great Doctor! I mean there were hardly any 'may be' / 'it depends' / etc. type answers. thanks Doctor!

  • @winniethepuuh6969
    @winniethepuuh6969 7 месяцев назад

    Great talk! Can you send me the pdf slides??

  • @LadyinPacific
    @LadyinPacific 8 месяцев назад

    I was diagnosed with ovarian cancer 4 months ago and a pigtail catheter was inserted into my abdomen by a interventional radiologist under anesthesia. My husband drains the accites at home. I'm on to my 4th chemo therapy and the accites has greatly reduced. Before chemo 8 litres of accites was usually drained every two to three weeks. Now its 1 litre every 3 weeks. Also my blood pressure is monitored at home during drainage as once it starts to go low the drainage is stopped.

    • @nimunguronald8286
      @nimunguronald8286 5 месяцев назад

      God will heal you I'm glad My sister has just been diagnosed with adenocarcinoma stage 3 on 15th December 2023 she's developed ASCITES 3 days later now we haven't started the treatment u're story has given me much hope I'll pass to her as we fight together

  • @viorelscrob6391
    @viorelscrob6391 10 месяцев назад

    My mom has adenocarcinoma seruos ovarian cancer. ..but i don't know if she has the BRCA mutation ...

  • @anglophils645
    @anglophils645 Год назад

    (Please note that Tamoxifen does nothing for most ovarian cancers. Only a small minority of ovarian cancers have an estrogen aspect. Tamoxifen, an estrogen-blocker, will only help estrogen-sensitive ovarian cancers.)

  • @football_recipe
    @football_recipe Год назад

    Hi, I diagnosed with borderline serous ovarian tumour stage 1A . Cyst was 12cm and it has removed by unilateral ophractomy. Cyst removed intact . Please guide us it serious? For now they put me on 3 month follow up .please guide They suggest me 3 month

    • @MrMargey
      @MrMargey 10 месяцев назад

      Can I have your number my wif did same as yours border line serious tumor

    • @football_recipe
      @football_recipe 10 месяцев назад

      Where are you from

    • @MrMargey
      @MrMargey 10 месяцев назад

      @@football_recipe I'm from north east India

    • @football_recipe
      @football_recipe 7 месяцев назад

      What doc diagnose and what they said what to do

    • @abdulrahimsayed7252
      @abdulrahimsayed7252 7 месяцев назад

      My wife also same problem please gave me any info about that

  • @Theflowoflove
    @Theflowoflove Год назад

    Dear Sue, sending you love strength & hope.

  • @Theflowoflove
    @Theflowoflove Год назад

    Dear Jackie, thank you so much for sharing your story. Hopefully you are doing well still & coping the best you can. You have been through so much & are so brave as well as amazing. It isn't just the cancer, it's so often the highly questionable bedside manner that causes so much unnecessary stress & trauma to the sufferers as well as their families. There needs to be training in place, it's been going on for too long. I send you so much love peace & hope.

  • @ramprahladprahlad9934
    @ramprahladprahlad9934 Год назад

    Good explanation

  • @janerichardson7553
    @janerichardson7553 Год назад

    Thank you so much for the really helped to understand things

  • @taylorpresley4604
    @taylorpresley4604 Год назад

    I have Stage 3 Serous Ovarian cancer and my only symptom was frequent urination and an occasional pain by my hips. This cancer is so sneaky!

    • @Manos-de-Piedra
      @Manos-de-Piedra 10 месяцев назад

      How are you now?

    • @Manos-de-Piedra
      @Manos-de-Piedra 10 месяцев назад

      Hope you are fit healthy and well

    • @vanessaanderson8919
      @vanessaanderson8919 10 месяцев назад

      2017 OVARIAN CANCER SURVIVOR, STAGE 1A GERM CELL. MINE FROM BREAST CANCER ♋

  • @emmarriner3430
    @emmarriner3430 Год назад

    Thankyou so much for sharing your story. I have searched the internet and not found another story so honest and detailed. Praying you stay in remission.

  • @monicag6715
    @monicag6715 Год назад

    Ovarian clear cell 1A 1 surgery Refused chemo and 2nd surgery Ca 125 - 799 (before surgery) Ca125 - 32 (after)

  • @angelalunin7994
    @angelalunin7994 Год назад

    I am suffering with ascites wake up with terrible heartburn. Gone through half bottle of gaviscon. Any help. I have had 2 drains. Wish there was a more comfortable way to remove fluid.

  • @sadiebestdogever4982
    @sadiebestdogever4982 Год назад

    She did such a great job explaining everything. So clear and thorough. Thank you Mary!!

  • @kanwalkazi6810
    @kanwalkazi6810 Год назад

    Thank u so much for the story Mary , really impressive

  • @fionadeacon4384
    @fionadeacon4384 Год назад

    Brave lady. Glad your mum was insistent to get you looked at. Quite a traumatic story x

  • @anastasiascala2216
    @anastasiascala2216 Год назад

    ❤️

  • @shetlandsheep3081
    @shetlandsheep3081 Год назад

    I hope Sue is still well, and send solidarity from a fellow OC patient.

  • @maritkristianehauganwick7721

    So beautiful lady ,any follows up🙏

  • @missophelie3781
    @missophelie3781 Год назад

    How about endometriosis and pelvic lame ascites?

    • @OvacomeCharity
      @OvacomeCharity Год назад

      Dear Miss Ophélie, Thank you so much for your question. It would be really helpful to know a little more about the information you require. Please get in touch with us via support@ovacome.org.uk and our support team will be happy to help. Best wishes, Sorcha Ovacome Support

  • @shetlandsheep3081
    @shetlandsheep3081 Год назад

    Thankyou so much for this livestream, as an endometroid ovarian cancer patient it can be dispiriting when every question seems to be answered with “we dont really have any data” or “the trials didn’t break that down”, so it is brilliant to hear about the work that is going on and planned, and the knowledge that is being learned about these rarer cancer types. Thankyou.

  • @shetlandsheep3081
    @shetlandsheep3081 Год назад

    Thankyou so much for a fascinating and informative webinar! And nice to hear endometroid ovarian cancer being mentioned as I rarely find any info on it anywhere. If I could ask any questions it would be the following 1. CA125 isnt diagnostic hence screening doesnt work - is that the case at all levels of CA125 or is there a level (eg mine was over 1000!) where actually it pretty much is going to be cancer? 2. Do we know if bowel cancer screening programmes have reduced the incidence of ovarian cancer which has spread to the bowel (or vice versa if that is a possible pathway)? 3. Is there any more definitive work on whether phytoestrogens in food are beneficial for oestrogen receptive ovarian cancer patients (as they seem to be for breast cancer patients I think from research) bc eating them makes the body think “ive got enough oestrogen” or harmful because they might theoretically have an effect on the body as if they were oestrogen. Thinking of the soy, flax type foods. Thankyou!

    • @OvacomeCharity
      @OvacomeCharity Год назад

      Dear Shetland sheep, Thank you so much for your positive feedback on the video posted and for sharing some questions. I hope the following information is helpful. 1. A raised level of CA125 is an indicator that more follow up investigations may need to take place to identify the cause of the rise. This is because CA125 can be raised due to many conditions, and some people have a naturally higher level of CA125. You’ll see that this booklet on CA125 from a US- based charity called The Foundation for Women’s Cancer explains that “the number itself does not correlate with how much disease a person has”. www.foundationforwomenscancer.org/wp-content/uploads/FWC-CA-125-Levels-Your-Guide.pdf 2. At the moment we are not aware of any link between bowel cancer screening and diagnosing ovarian cancer. 3. This factsheet from the British Dietetic Association explains that “Comprehensive reviews by the European Food Safety Authority, World Cancer Research Fund and the World Health Organisation all conclude that soya foods as part of a healthy balanced diet are safe”. www.bda.uk.com/resource/soya-foods.html A member from our expert advisory panel has written an article on this subject in one of our previous magazines that you may find useful. Here is a link to that particular magazine edition and you can find the article on pages 10 and 11. www.ovacome.org.uk/Handlers/Download.ashx?IDMF=11175f32-cdf7-48ed-b897-1715690ace41 Please don’t hesitate to get in touch if you would like any further information or if there’s anything else we may be able to help with. Our support lines are open Monday- Friday between 10am and 5pm on 0800 008 7054 or 07503 682 311, or send us an instant message through the pink box on the right-hand corner of our website: www.ovacome.org.uk. Best wishes, Sorcha Ovacome Support Team

  • @rinty04
    @rinty04 Год назад

    Thank you for sharing.. Lovely lady..

  • @manumolathelmathew9399
    @manumolathelmathew9399 2 года назад

    Thank you

  • @pearllee601
    @pearllee601 2 года назад

    🙏😢😭😭

  • @Amesaleh71
    @Amesaleh71 2 года назад

    Is this okay to share on Let's Talk Hope?

    • @OvacomeCharity
      @OvacomeCharity 2 года назад

      Hi Ameena, of course, you are very welcome to share this with Let's Talk Hope! Best wishes, the Ovacome Team

  • @Katie-hy5ec
    @Katie-hy5ec 2 года назад

    Lizzie is excellent. Wish she was my personal trainer. :o)

  • @Alex-yk5rj
    @Alex-yk5rj 2 года назад

    Please I am Bangladesh help me

  • @Alex-yk5rj
    @Alex-yk5rj 2 года назад

    ovacome Which country? Is managed from

    • @Alex-yk5rj
      @Alex-yk5rj 2 года назад

      Please

    • @OvacomeCharity
      @OvacomeCharity 2 года назад

      Hello Alex, Ovacome is a UK charity, so the information that we provide is based on UK guidelines. If you would like to speak to our team, you can call +44 800 008 7054 or email support@ovacome.org.uk . Costs may be incurred if you call our telephone support line from outside the UK - if you send the team an email they can set up a video call with you to avoid telephone charges. Best wishes, the Ovacome team

  • @queencat59
    @queencat59 2 года назад

    I just found this video, thank you. Hopefully I can get some guidance. My current doctors here are not helpful in the least.

  • @lanaritchie7184
    @lanaritchie7184 2 года назад

    Thank-you for the information it was so helpful I've been having o.c symptoms for a couple of years but was putting it down to my fibromyalgia and going through the menopause I'm waiting for an ultrasound scan and doing my ca125 blood test tomorrow but now I'm having an all over body itch its driving me crazy..but any way I wanna wish you all the best lovely lady x

  • @shetlandsheep3081
    @shetlandsheep3081 2 года назад

    Thankyou for your story - as a fellow Stage 1C (thanks to having a nurse for a partner), I feel for you xxx

  • @ppflanagan
    @ppflanagan 2 года назад

    Clear explanation of Ovarian Cancer growth and the treatments. Thank You!!

  • @justjoannaeverydayhappenin2938
    @justjoannaeverydayhappenin2938 2 года назад

    Thank you for your story Mary. You have given me so much hope. As I write this I have tears in my eyes. I was recently diagnosed with stage 3 Ovarian with mets to my Omentum. I have had 1 cycle of chemo so far with 3 more to follow. Possible HIPEC is next. May a Higher Power watch over us all.

    • @akshatsharma5265
      @akshatsharma5265 2 года назад

      Are u fine now? Even I'm suspected of this disease

    • @justjoannaeverydayhappenin2938
      @justjoannaeverydayhappenin2938 2 года назад

      @@akshatsharma5265 ​ I am in remission. Thank you for your asking. My last chemo was beginning of December. I had 6 cycles. I still receive IV med every 3 weeks but not chemo. My labs are normal at this time including CA 125. PET scan to follow in February.

    • @akshatsharma5265
      @akshatsharma5265 2 года назад

      @@justjoannaeverydayhappenin2938 glad to hear that! Did you start getting your hair back?

    • @justjoannaeverydayhappenin2938
      @justjoannaeverydayhappenin2938 2 года назад

      @@akshatsharma5265 Yes It is about 2" long and came in white so I dyed it light brown. I still wear a wig or cap tho in public.

  • @andreabrowneyes3534
    @andreabrowneyes3534 2 года назад

    Thank you

  • @mamapapa4336
    @mamapapa4336 2 года назад

    Im.a senior.now 62 years old

  • @mamapapa4336
    @mamapapa4336 2 года назад

    Mam help.me im belong to a poorest family pls help.me mam.i.havyoma 09425191301 thank u mam.