![Darcy's Hysterectomy Journey](/img/default-banner.jpg)
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Darcy's Hysterectomy Journey
Добавлен 4 апр 2024
Endometrial Hyperplasia: My Story of a Total Hysterectomy at 59. Since I found very few videos that covered not only my condition, my age, and weight, I wanted to share my store in hopes that it can help you, too.
What's in My Hospital Bag and Comfort Box for my Total Hysterectomy
After a lot of research on YT...and figuring out what seemed practical things to buy for preparation for my overnight hysterectomy surgery and recovery at home, I'm sharing what I'll be using in case it helps you down the road.
These are Amazon affiliate links:
Weekender Bag by Gitbab: amzn.to/3W8nYNm
Belly Binder: amzn.to/3Qb3gbP
Microwaveable Heating Pad amzn.to/3QenQrT
Reusable Hot and Cold Packs: amzn.to/3w3ktNu
Laptop Desk: amzn.to/3Us2YQf
Smooth Move Tea: amzn.to/3UtdnLq
Mint Medley Tea:
Insulated Coffee Cup: amzn.to/49OLt19
Stripey Sleep Shirt: amzn.to/4d3JBnZ
Robe: amzn.to/49LeuuG
Arnica Montana (homeopathic for bruising): amzn.to/4b4UVyl
99 Problems and a Uterus Isn't One Pillow Cover: amz...
These are Amazon affiliate links:
Weekender Bag by Gitbab: amzn.to/3W8nYNm
Belly Binder: amzn.to/3Qb3gbP
Microwaveable Heating Pad amzn.to/3QenQrT
Reusable Hot and Cold Packs: amzn.to/3w3ktNu
Laptop Desk: amzn.to/3Us2YQf
Smooth Move Tea: amzn.to/3UtdnLq
Mint Medley Tea:
Insulated Coffee Cup: amzn.to/49OLt19
Stripey Sleep Shirt: amzn.to/4d3JBnZ
Robe: amzn.to/49LeuuG
Arnica Montana (homeopathic for bruising): amzn.to/4b4UVyl
99 Problems and a Uterus Isn't One Pillow Cover: amz...
Просмотров: 839
Видео
What My Pre-Op Visit for a Total Hysterectomy with Oophorectomy Was Like
Просмотров 8563 месяца назад
What happened during both my pre-pre-op and Pre-op meetings at the hospital getting ready for my Total Hysterectomy with Bilateral Salpingo Oopherectomy surgery. If you have experience of what your pre-op was like....or answer that burning question...what will/did you miss about not having a uterus any longer ... share it with us!!
Am I at Risk for Cancer? My Visit with a Gynecological Oncologist
Просмотров 1,9 тыс.4 месяца назад
I have Simple Endometrial Hyperplasia without Atypia - and had a visit with a gynecological oncologist this week to talk about my hysterectomy options and my risk of this being cancer. I'd love it if you would share your stories about what a hysterectomy was like for you. #endometrialhyperplasia
Life-Changing Decision: Hysterectomy Over 50 for Endometrial Hyperplasia
Просмотров 4,7 тыс.4 месяца назад
Sharing my endometrial hyperplasia journey that is leading to a hysterectomy for those of you who don't fit the typical hysterectomy story. I'll be 60 years old this year, am obese (which caused the endometrial hyperplasia, and found there wasn't a lot out there that told my story - so I'm sharing with you in case you need to feel a little less alone in the world. No matter what - you are not a...
How did it go?
Thanks again for sharing your story. Would like to hear how recovery is going. My surgery date is coming up soon.
Thank you for sharing your story, my case is similar to yours but I'm in my late 40s. Hope to see more of your videos.
Hope you are well!
I just found your videos on dehydrating. I’ve learned a lot. Then I saw your videos about your medical issues. I’m praying for you.
Thanks so much!
All I can say is take it easy after your surgery , some days you will feel very tired and other days won’t be as bad , just look after yourself , you are the most important person in your life and your family depend on you , best of luck with it all
Looks like you are well prepared for your hospital stay and recovery. I'm praying for a fast and complete recovery. As a retired nurse who has also had a total hysterectomy, I found the belly band didn't help as much as I thought it would. Also it restricted my ability to take a deep breath. It is very important to cough and deep breath to help your lungs recover from the anesthesia and prevent pneumonia.
It has helped me when walking - I don't wear it any other time. Otherwise, it's off, and I'm using my spirometer to make sure!
I've had the same surgery, but I left one overy so I wouldn't have to take hormones. This was in 2018 and I was much happier with no periods.
Hello,Glad you're doing better after your surgery. I am having a hysterectomy with 1 ovary removal in 3 weeks.Wondering if you had to go on any hormone replacement therapy afterwards? Do you feel any different with just having 1 ovary since its been a few years? Feeling scared abt everything.
After suffering from severe endometriosis for a good 5-10 years with several surgeries to help prolong the inevitable. 10yrs ago at age 35 i had a total hysterectomy. I was super scared and in a lot of pain which it was turning into cancer. I’m super blessed that i was able to have 2 kids. I was so blessed that i got it done. I also want to say please do the BRACA test. Breast cancer is brutal.
I’m here to support you Darcy 😊 Rest and recover. Drink a lot of fluids. Walking helps surgical gas. Use a pillow pressed to your belly if you need to cough or sneeze. Praying for a good result from your surgery and a full and fast recovery.
Loooooong time follower on your other channel. Darcy I wish you a full recovery and blessings for your health overall! Thank you for sharing all this. ❤ I have a suspected diagnosis of endo it’s been frustrating and painful. God bless you!
Hi, Darcy! I had the same diagnosis as you did, but this was 27 years ago when I was 45. Back then, my doctor was also a surgeon, so I wasn’t referred to a gynecologist. I felt so much better after the surgery was over, but it did take a few weeks for me to get back to normal. Unlike today, laparoscopic surgery wasn’t really a thing, so I had the old fashioned surgery. I hope your recovery goes smoothly and that you feel better very soon. ❤
Thank you!
I had completely finished menopause by age 45, but in Nov 2016, I began having regular monthly periods again at age 62. They varied from very light to very heavy. In Aug 2017, my period lasted 3 weeks and was very heavy and very clotty. It really scared me, so I made an appointment with an ob/gyn and saw her the first part of Sept 2017. She did a blood test called a CA 125, which checks for cancer markers. Nationally accepted normal is a reading of 40, but mine was 200. She immediately sent me for an ultrasound, and the lady doing the test said that I had a very large growth on my right ovary and made me promise to get it taken care of as soon as possible. My ob/gyn immediately got me into an oncologist in Dallas, specializing in ovarian cancer. The oncologist saw me a few weeks later and said he was 95% sure I had ovarian cancer, but he thought we had caught it in time and that I probably wouldn't need chemo, but I did need a complete hysterectomy. I saw him on a Wed and he did my surgery 5 days later, first thing Mon morning. After surgery, he said the growth was the size of a softball, but he was pretty sure he had gotten it all and didn't think I would need any more treatment. Twenty four hours later he came back to my room and said the pathologist had already texted him, even though all the testing was not finished. I was diagnosed with Stage 1A, clear cell carcinoma of the ovary, a rare and very aggressive form of ovarian cancer. I would need to take 18 infusion chemo treatments (through an iv) and I had to take them once a week. Every third week, I had to take 2 different infusions. I was allowed 3 weeks to recover from my hysterectomy, then I started chemo once a week, the middle of Nov 2017. Our drive to the oncologist was an hour and a half one way, and the day I had 2 infusions, it took all day. Between the long drives to and from Dallas every week, trying to recover from surgery, and all the chemo treatments, I was absolutely exhausted the whole 6 months. My hysterectomy was done with an incision from my public bone to just above my belly button. I had dissolvable stitches inside and 57 staples outside. In May 2018, I was declared cancer free and in remission. My CA 125 has stayed under 10, which is considered the baseline. This May 2024 will mark being in remission for 6 years. It has taken those 6 years for me to finally recover from all the chemo, but I am finally getting close to being my old self. In 2018, I was diagnosed with papillary thyroid cancer and severe gallbladder disease. I had half my thyroid and my gallbladder removed that year, and in Nov 2023 I had to have the rest of my thyroid removed and started thyroid hormone treatment. My eyelashes and eyebrows didn't come back after chemo and the thick, corkscrew curly hair that I had came back very, very thin and straight. I don't care though. I am so very, very blessed and thankful that I am feeling so good! My husband and I have a small fruit garden with strawberries, blueberries, blackberries, and a peach tree. We have 3 small greenhouses and an outside veggie garden that we fill with plants that we grow from seed. I hot water bath/pressure can, freeze, make jam, and dehydrate. I turned 70 last month. During your surgery and recovery, don't think about what if..., but instead be thankful every day for all the good in your life and only focus on the positive. There will be a little while when you will hurt and feel bad, but every day that passes is one day closer to being well again. My thoughts and prayers are with you, and I wish you only the very, very best! You can do this! ❤❤❤
I had a radical hysterectomy when I was 52. I had endometrial cancer. They tried so many different ways to control pain & bleeding. I feel like they made it worse. I knew surgery was inevitable. It took longer than it should have for them to diagnose cancer. Anyway, I was cut hip to hip and they did an exploratory. I had so much scar tissue that my ovaries were fused to the outer wall of my uterus. I ended up in the hospital for 5 days because of some minor post op issues. I honestly didn't feel like recovery was that hard. I did have radiation but they didn't require chemo because it was contained. It has been 9 years and I am now dealing with prolapse. The hysterectomy was the best surgery I ever had!! I no longer had pain, wasn't afraid to leave the house due to bleeding mishaps etc. I never did hormones afterwards. My gyn was anti hormones due to breat cancer risks. I did take estroven (over the counter). It was great for night sweats and hit flashes! Just an FYI- I have had 3 other robotic surgeries in the past 5 years. I have always been given the body wash at my pre-admission testing. Feel free to ask any questions.
Thanks - and I'm glad yours turned out so well!
Definitely work wirh someone on your pelvic floor once you are fully recovered. Bladder prolapse occurs more often after a hysterectomy. Wishing you all the best and a speedy recovery.
I think you are past surgery now. Still praying for your swift and comfortable recovery. I live in the Denton area so if anything you need help with, please reach out to me.
I was about to wish you good luck, Darcy, and then in reading the comments, the procedure itself is already done. Woo hoo! Now for recovery which it sounds like it's going really well so far! I'm elated about that and you're so prepared, I know the next couple of weeks will be ok! You take it easy and we'll all be here when you get back. ❤❤❤💜💜💜
Thank you!
Atta girl! ❤🎉
After years of ovarian cysts, I had a total hysterectomy at the age of 34. I am 66 and have never had regrets. As a former surgical patient and RN, please follow the instructions/restrictions. No trophy for moving or working too early. Praying for a smooth and quick recovery!
Trust me...I'm trying to follow them to the 't'. I had a nerve block that made the first day and a half almost a breeze....now it's worn off :D But I am taking it very easy.
Been thinking about you all morning. Prayers that you are without much pain and things are going well.
Thanks! It went well, and now the healing starts.
I had robotic assisted surgery and had very little pain. Even when I started laughing and couldn’t stop. I wore my robe over a nightshirt home. No pants for a while. Get used to wearing your nightwear for a while. At least it will be comfy. Rest and walk are your only tasks. Walking and breathing deep will keep your lungs clear. The belly band won’t be necessary if it is just a few incisions. If a full incision is needed you will need the band. I hope surgery and recovery go very easy for you.
I could have used it on the way home I think, And because I carry a lot of extra weight in my front, the weight of it is pulling at things, so I'll wear it as I start to walk longer the first few days if it helps at all.
You are in my thoughts, Darcy. All things will go great. Take your time healing , we all will be around after and will be here when you're ready to come back. GOOD LUCK , sending all my love.
Thank you, Tammy!
I had a total hysterectomy at age 42 after having 6 children. That was 34 years ago and I haven’t regretted that decision at all. The pain and bleeding I expect had me to the point of being very anemic and exhausted. All I can say, every day is like a spring day ever since. ❤prayers for an easy recovery.
Even in the pain....the change is remarkable freeing :D
💖💖💖💖I am praying for you my friend!!!!💖💖💖💖
Thanks so much, Molly! It turned out much better than I hoped (a nerve block I didn't know I was getting gets all the credit). Home now and resting. All the menfolk are taking good care of me!
@@myhysterectomyjourney Oh my gosh, this makes my heart so very, very happy! Tons of prayers answered! And you raised you boys so well (all of them! - Russell too! 🤣😂)
HAHAHAHAHA! :D
Is this scheduled for overnight hospitalization? How many days will you be in the hospital? Where did you get the longer stripped shirt?
Yes, one overnight - I don't know if it's normal for her to do, or if she thought I was higher risk and kept me. So I was in a little over 24 hrs. I left a link to it in the description box. It's really comfy!
I had mentioned earlier the first time you get up in the hospital is the worst. But really, it gets much better quickly. I had the surgery 42 years ago. I think it was before laparoscopic surgery was the thing. But I had much endometriosis so the surgeon had to work to get my other organs "unstuck" to the mess. I had the smile type cut. It took years before I had any sensitivity to feel things near the incision because so many nerves were cut. I would realize in the morning while doing my daily shower and teeth, I would find myself leaning against the bath countertop to the point I should have felt that pressure,but I didn't even realize I was pushing so hard on the incision area unless I happened to look down. There was just no feeling. Also for years and years after surgery, I could be just sitting around or standing around in no pain whatsoever when I would suddenly get such a quick sharp pain in my lower abdomen, it would cause me to almost fall to the ground in pain. And I never had any warning it was about to happen. A medical doctor friend years later told me it was "surgical pain" and not uncommon after major surgery. And yes she agreed it was just about the worst pain in the world. Now at 74 I can't remember having that for about 10 years. But I wanted you to know, if you get it, nothing is wrong and don't think it's something that must mean there's another thing wrong.
Turns out, the first time getting up the 2nd day after meds wore off..that was the hardest. I actually did really well getting up and around - a nerve block that I didn't know I was getting gets all the credit in the world. It made the last 2 days much easier than I thought they would be! And thanks for sharing!!
Your post op recovery will depend on if it is done vaginally or with abdominal incision. Mine was done all vaginally and post op there was little pain. I also have the big container of generic miralax. I got it for after a surgery. It is supposed to be gentle to your system and you should not get dependent on it. You are well prepared. You might not need all those things in the hospital. They tend to have what ever you need. You might be doing a lot of sleeping as the anesthesia wears off and you might not feel like doing much. A day and a half will go fast in the hospital. You’re fortunate that you have someone to fetch things for you. I live alone and have to do things myself no matter how hard it is. It forces me to be active. Good luck and speedy recovery. I love that you are doing videos of your experience. It will help someone down the road as they prepare for the same thing. I didn’t miss having painful cramps, big blood clots, periods lasting for a week before I had the continuous bleed from the fibroid. I was glad to get it all removed. I was of an age where I should have stopped having periods but it was still happening. Haven’t missed it at all!
It was robotic, so everything was pulled out vaginally, and I have 4 small incisions. Most of what I bought was in hopes to make home life easier. I'm glad your experience was good, too!
Wow! You are prepared. I was 41 and I was so stupid. My doctor even told me that I needed to take it more seriously. I figured I’d get home and maybe a bit slower than normal but no big deal. Big deal! Whew it knocked me for a loop. Getting out of bed was horrendous. My roommate in the hospital had surgery for cancer and she was in pain. So that helped me to practice getting out of bed so I could go give her an ice cube or whatever and then I’d go walk the hall. I walked and walked. I perfected the get on the side and just roll kind of off the bed but not quite. You will find it I’m sure. So thankful you have a husband who will be helping you. That is wonderful. It sure looks like you are good to go. I did have a belly band with my surgery and I even held myself on my abdomen when walking. That incision went from side to side and I didn’t want it breaking open. So just be very careful. I recommend you stay home for at least a couple of weeks. It is tempting to get out and about as soon as they let you but then you will likely overdo it. Sending you big hugs and,prayers. 🙏💙
I am taking 3 weeks 'off' but I'm sure I'll be back at the desk doing things (I'm doing a slow eating dinner now at the desk - more comfie than the chairs, so that's why I'm answering comments now). But I'm definitely follow all that advice about taking it easy!
The gas they put into you can be very painful and it will naturally rise up in your body. So when you’re reclining you can put your arms up on pillows on each side to help the process.
Surprisingly, I haven't dealt with any of the gas pain at all!
Anytime you have blood work there is a chance of a false reading. I don't think it happens often but it does happen. Last summer I was a my PCP for my 6month checkup. I have to have labs done the week before. Well last July my doctor was going over my bloodwork with me and he stop tilted his and said, "Hmm" Something about my thyroid numbers was off. He rolled himself over to his laptop and did some checking. I have never had any abnormal thyroid numbers in the last 8 years. I retested the next day and it was normal. When he called to tell me it was fine, he said, "Sometimes it happens. I'll note it in your records and if it happens again we'll do so testing, until then...we will treat it as a one off test." In January's bloodwork it was normal. So for surgery, the second stick is a good thing. 👍
YAY! Sometimes mistakes are good news! Glad it wasn't anything.
I will be sending positive vibes your way. I am 14 years post hysterectomy. It was honestly so much easier than I ever thought. You are so prepared. I am the same way. It gives so much comfort. The pillow will feel SO GOOD. My truth is that the gas pain in my shouler was SO MUCH worse than hysterectomy pain. The GasX did not work for that. But getting on the floor on all fours face down bum up and letting it roll uphill really did!
WOW - I'm surprised you could do that! Surprisingly, I've had no pain from the gas at all! Quite thankful!!
@@myhysterectomyjourney so thankful you aren't having gas pain! Hopefully the rest is doing well too!! 💙🍀 (Grab your pillow so the following laugh doesn't hurt) yeah, that position was quite difficult but hubby helped in the up and down... And honestly by patting my back during! 😂😂 still have no idea why that even worked since my shoulders aren't connected to the "exit" LOL. Dr said that tissue is porous and gas can penetrate. IDK if THAT is true. But I do know the exit helped! 😂😂😂
Yep - all that gas pumped into your abdomen has to go somewhere - and travels everywhere it can! I'm sure the back patting was helpful! Just like with babies!