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Sarcoma UK
Великобритания
Добавлен 28 июн 2013
Sarcoma UK is the only charity in the UK focusing on all types of sarcoma. Sarcoma is cancer of the bone or soft tissue. It can develop anywhere in the body. 10 people are diagnosed with sarcoma every day in the UK.
Our RUclips channel is here to showcase some of the amazing challenges that our wonderful supporters take on in support of Sarcoma UK and to raise #sarcomaawareness.
To find out how you can fundraise for Sarcoma UK or for information or support please visit sarcoma.org.uk.
Our RUclips channel is here to showcase some of the amazing challenges that our wonderful supporters take on in support of Sarcoma UK and to raise #sarcomaawareness.
To find out how you can fundraise for Sarcoma UK or for information or support please visit sarcoma.org.uk.
Natasha McGlinchey "Get it Checked"
PE teacher and mum-of-two Natasha was diagnosed with metastatic myxoid liposarcoma in 2020, over a year after her visit to her GP when a sports therapist pointed out a lump in Natasha’s leg and advised her to see a doctor. Natasha now urges people to go to their GP if they notice a lump anywhere in their body.
Просмотров: 97
Видео
Patients need a plan.
Просмотров 515 месяцев назад
This general election, we’re speaking with One Cancer Voice and asking all political parties to commit to a long-term cancer strategy. One Cancer Voice is a coalition of over 50 charities working on behalf of the one in two people who will get cancer in their lifetime. Today we are calling on all political parties to commit to supporting a long-term cancer strategy to improve cancer outcomes in...
Amelie's Story - four years on
Просмотров 1,6 тыс.6 месяцев назад
Back in 2020, we introduced you to six-year-old Amelie Callanan from Surrey. Amelie had been treated for Ewing sarcoma and had her left leg amputated above the knee just four days after her sixth birthday. For the Sarcoma UK Glitter Ball 2024, we caught up with Amelie and mum, Emma, to see how they are doing.
Sean Tilson reads 'Legacy in Every Step' for World Poetry Day
Просмотров 858 месяцев назад
Sean's mother died when he was just 14 years old. Despite this loss, Sean has learnt to embrace life and is determined to make a difference in the lives of those affected by sarcoma, a rare cancer that develops in bone and soft tissue. Legacy in Every Step In the silent halls of memory, where shadows softly fall, Stands a warrior, brave and tender, answering life’s call. My mother, a beacon of ...
Closing the Care Gap. Richard Davidson, Chief Executive, Sarcoma UK on World Cancer Day.
Просмотров 789 месяцев назад
As millions around the world mark World Cancer Day, we can pause to reflect on how far we have come in the battle against the awful disease and look towards the future. Sarcoma UK’s Chief Executive Richard Davidson delivers a message thanking supporters for helping to raise awareness of the devastating disease and raising money to fund vital research and provide support to patients and their fa...
Roger Wilson CBE on Sarcoma UK's 13th birthday
Просмотров 12810 месяцев назад
'Sarcoma UK is modest about leading the way, about showing the way, but I have no hesitation in saying that we are having an important influence in the global sarcoma community.' As Sarcoma UK reaches its 13th birthday, our founder, Roger Wilson CBE, shares his thoughts on how far we have come with your help. Thank you for your kind words, Roger. We join you in thanking the patients, fundraiser...
Darrell McDonald talks synovial soft tissue cancer and his book, Straight Red
Просмотров 36111 месяцев назад
Darrell McDonald’s journey with synovial soft tissue cancer began on his 40th birthday in June 2020, amid the challenges of the COVID-19 pandemic. Despite initial struggles in getting diagnosed, scans revealed the presence of sarcoma in Darrell’s neck, brain, and lungs, making it incurable. He faced the difficulties head-on, undergoing extensive chemotherapy and targeted CyberKnife radiation. T...
Double your donation with the Big Give Christmas Challenge
Просмотров 2911 месяцев назад
Help us raise £30,000 in the Big Give Christmas Challenge and keep our Support Line there for everyone who needs it this winter. £5 pays for 50 people to text the Support Line…The Big Give Doubler turns it into 100 texts. £35 funds 30 calls to the Support Line…The Big Give Doubler will make that 60 calls. We give £500 to each sarcoma support group… the Big Give Doubler means we can do even more...
Sarcoma UK Christmas Carol Concert 2023
Просмотров 204Год назад
You are invited to join us for a magical evening of Christmas festivities and cheer. The evening will be filled with carols and readings from supporters, some of the UK’s best-loved actors and joyous performances from musicians and singers. Ellen Williams Caroline Sheen Enchorus Johnny Ball Sandra Dickinson Mark Osmond Dr Bambang Atmaja The Reading Spring Gardens Brass Band and more to be annou...
Sarcoma - Medical student education animation
Просмотров 1,1 тыс.Год назад
Sarcomas are rare cancers that originate in bone and connective tissue. There are around 5,300 people diagnosed every year in the UK. There are over 100 subtypes of sarcoma, which fit into two main types: soft tissue sarcoma, and bone sarcoma. This video covers key aspects of sarcoma (both soft tissue and bone), including the symptoms, diagnosis, and treatment. You can read more about our work ...
Gerald Jones, Labour MP for Merthyr Tydfil and Rhymney, raises sarcoma at PMQs
Просмотров 507Год назад
Gerald Jones, Labour MP for Merthyr Tydfil and Rhymney, raises sarcoma at PMQs
The Sarcoma UK Support Line. Here for anyone affected by sarcoma.
Просмотров 278Год назад
The Sarcoma UK Support Line. Here for anyone affected by sarcoma.
Global guidance for surgical during and beyond the pandemic: Sarcoma UK supports CovidSurg.
Просмотров 1082 года назад
Global guidance for surgical during and beyond the pandemic: Sarcoma UK supports CovidSurg.
Diagnosed with Soft Tissue Sarcoma? Support is Here.
Просмотров 3,2 тыс.2 года назад
Diagnosed with Soft Tissue Sarcoma? Support is Here.
Could artificial intelligence make sarcoma diagnosis more effective?
Просмотров 1492 года назад
Could artificial intelligence make sarcoma diagnosis more effective?
Diagnosed with GIST? Support is Here.
Просмотров 6032 года назад
Diagnosed with GIST? Support is Here.
How can genomics transform sarcoma treatment?
Просмотров 3302 года назад
How can genomics transform sarcoma treatment?
Diagnosed with Bone Cancer? Support is Here.
Просмотров 4582 года назад
Diagnosed with Bone Cancer? Support is Here.
Gareth and Zoe talk about the impact of a terminal sarcoma diagnosis
Просмотров 7 тыс.2 года назад
Gareth and Zoe talk about the impact of a terminal sarcoma diagnosis
Watch the 2021 Christmas Carol Concert for Sarcoma UK
Просмотров 4812 года назад
Watch the 2021 Christmas Carol Concert for Sarcoma UK
How to support someone with sarcoma
Просмотров 1,4 тыс.3 года назад
How to support someone with sarcoma
Meet Amelie, Uma and Andrew: three different people - one unusual cancer - sarcoma.
Просмотров 5533 года назад
Meet Amelie, Uma and Andrew: three different people - one unusual cancer - sarcoma.
Yes! Valuable information. Push for thorough examination.
Worth paying for an mri to avoid waiting lists, if you need a referral from GP ( which I do not agree with, not like they are paying) then demand one. I did this for my hip with out a referral, turned out the supposed bone spur and useless physio from hosital could not be further from reality, Hip was a total mess, had to pay for total hip replacement money did not have but least I knew and it was a relief from endless pain, It would of been a 2 yr wait, no one should every have to live in pain and be pushed into a wheelchair, the £385 I paid to get answers was worth every penny. Dont let them fob you off, guessing is no good you need evidence!
My sister is 7 years old she had stage 4 soft tissue sarcoma in her leg , it saperated only to her lungs, doctors told us 0% chance to heal im so sad
We're so sorry to hear about your sister’s diagnosis. It must be incredibly hard to cope with such news. Please know that we're here to support you and your family during this difficult time. If you ever need someone to talk to or more information, our Support Line is available, more info at sarcoma.org.uk/supportline 💙
My friend was lucky because we both work in an orthopedic ward, he had this pain on his left knee instead of going to his GP one of the Senior Registrar requested for an X-ray that’s when he found out that he has stage 1 Sarcoma , his still alive and kicking 20 years after this diagnosis..
It's great to hear that your friend is doing well 20 years after the diagnosis! Early detection really is key, and your friend's story shows just how impactful that can be. Thanks for sharing Mark!
Sir, I absolutely agree with you when you said (or thought to yourself), " will you at least touch it?!". It feels degrading as if you are not important enough to be taken seriously. I have had 2 boughts of cancer (23yrs and 30yrs, but not dx until I demanded a biopsy). I went through hell the second time. I had every symptom there was, but they just blew me off. I very recently found a random lump in the apex of my deltoid region. Potential Sarcoma, based on my research (I am an RN, BSN, with very little faith in the medical field) Diagnostics, (MRI, CT, etc) very rarely find things on me, i e. Cancer, broken root in my tooth, vision issue in my left eye, etc. I am very frustrated at having to go through many months and years of going through diagnosis again. 😢😡
Thank you for sharing your experience Tee. It’s concerning to hear how challenging it’s been for you, especially with your background in healthcare. Sarcoma and similar conditions can be difficult to diagnose, but it’s concerning that your symptoms weren’t taken seriously, especially with your medical history. I hope you’re able to get clearer answers soon, and that the process is more straightforward this time. Please don't hesitate to contact our sarcoma specialist support line if you do need someone to talk to, for more info on how to contact them visit sarcoma.org.uk/supportline.
Doctors are like any profession. You have good and bad.
Great information.
God sends His word and heals us. I couldn't walk for three days Friday to Sunday. Monday l wanted to go to the hospital but on Sunday God gave me this verse "The prayer of faith will heal the sick'". I repeated the verse again and again and exactly at 12.a.m.Monday morning a divine power from above touched my legs and l started walking immediately. PRAISE the LORD GOD ALMIGHTY FATHER in the mighty name of JESUS CHRIST for healing me. My grandson Joseph Jacob was diagnosed with 4th stage cancer and was advised six months of chemo and started chemotherapy in the month of June. In the month of July before his blood test God gave this verse "But if the Spirit of him that raised up JESUS from the dead dwell in you, He that raised up Christ from the dead shall also quicken your mortal bodies by His Spirit that dwelleth in you." The blood test was perfect. Next when he went for the scan God gave this verse "Blotting out the handwriting of ordinances that was against us, which was contrary to us, and took it out of the way; nailing it to his cross; And having spoiled principalities and powers,he made a show of them openly triumphing over them in it. The scan report was cancer free. God sends His word and heals us. Please read your BIBLE and pray. Prayimg for the wonderful healing and good health of all dear sisters and brothers. With love and prayers.
Hello im 22 my sister is 8 years old , she’s diagnosed with soft tissue sarcoma … if she take the chemo etc….. and did the surgery, can she live after that normally or she will die 😢?
Hello there, I am sorry to hear about your Sister, I understand it will be a worrying time for you all. Please do feel free to contact our support line team on 0808 801 0401 or email supportline@sarcoma.org.uk who will be able to answer all the questions that you have. Best Wishes, Helen
🙏🏾🙏🏾🥰🥰❤️❤️
Praying for all the sick and suffering. God hears and answers prayers.
Wishing you all the best , hope your health improves, Enjoy your life , it’s to short , I’ll pray for you 🙏🏻❤️😘
This is so frustrating so i have had the ultrasound and had the MRI and thats it i have no results i may have fibrosarcoma but im on day 43 and noone has told me anything
Hello Julie, We are really sorry to hear this. Please contact us on the support line to talk things through. You can contact us on Freephone 0808 801 0401 (Mon - Fri 10am - 3pm) or email supportline@sarcoma.org.uk Best wishes, Carly - Support Line Advisor
Thanks so much sarcoma UK I rang and spoke to someone today and she was amazing and has helped so much and I feel like I am finally getting somewhere and knowing more where I am
Thank you for sharing x Went to the doctor last summer 23 with lump on the back of thigh, said it was lipoma. Went bk to doctor (different doc, because i moved) went to doctor on Wednesday this week (may 2024), she felt it and it was sore when she was pressing on it, then she measured it and it is 11cm long by 8cm width. Now am waiting to see specialist, am in the UK.
Hi Margaret, thanks for commenting. Did you know that we have a Support Line available to you for any questions you might have about your diagnosis and treatment. You would be very welcome to have a chat with our friendly specialists. There's some more info here: sarcoma.org.uk/supportline. Best wishes.
@@SarcomaUK Thank you so much, I really appreciate it 💜
"I AM WELL. THIS IS JUST PASSING THROUGH ME" Speak it into Your life is a start, middle and ending. Thank you for sharing
Wait i just relised this wasnt tommys channel
I have only just realised that my ex girlfriends cottage / studio is in the intro.
Small world!
I came to know about my friend that he is suffering from this disease near his lungs . Tumor will b removed. It is Very hurtful. Very painful to know how much he will suffer in term of pain and treatment. I m watching different stories on this since yesterday and my heart is bleeding for him .
I went through this almost 11 years ago in my Tibia (shin bone). I had to have most of the bone removed and replaced with a titanium prosthesis. The RNOH are brilliant. Looks like the cancer has returned and I'm awaiting a scan. My yearly x-ray looked very worrying but it is what it is. Good luck to anyone going through cancer.
Hello, my name is Sam and I am one of the Sarcoma UK nurses. I am sorry to hear you are awaiting a scan please do email us on supportline@sarcoma.org.uk or ring us 0808 801 0401 if you want to talk anything through. Take Care, Sam
Not sure about me , for the last couple weeks I have been having bone aches on my right arm. Something I have never felt before . It hurts , it gets aggravating at night … I have a dr appointment on Monday
Hi Vida, thank you for contacting Sarcoma UK. My name is Alison, I am one of the nurses on the support line. It is great you are seeing your GP today. Tell the GP just what you have said above. Our number is 0808 801 0401, if you want to chat before/after your appointment. Our phone line opens at 10am and closes at 15:00pm, Monday to Friday. Best wishes, Alison
People know their bodies better than any doctor. They know when something is off. Its sad when concerns arent addressed, or youre just brushed off until things bad enough to warrant correct testing.
Very informative and educational
Thank you.
Hi can i ask if there is any chances to survive the Leiomyosarcoma
Thank you for reaching out to us here at Sarcoma UK. Please feel free to contact our support line team on 0808 801 0401 or email: supportline@sarcoma.org.uk who will be able to answer your question in detail. Best Wishes, Helen, Support line team
TOMMYYYYY
Only Tommy could pull of a brown suit
Rest in peace technoblade may he live forever in our minds
CRIME BOY
thats our little crime boy
He'd better not mention he once tried to take down a government while he's there
Wooooo tommy!
No ur not gay
LES GOO TOMMYYY
do andrew had lump or swelling in his shin?
Hi Marco, Andrew didn't have either, but he had a great deal of pain which led to his diagnosis.
@@SarcomaUK tnk for the answer.. and it's so scary he didn't have swelling or lump..at least he had great pain..right?
That's right, Marco. He was in a lot of pain. A lot of people will notice a lump, but it's not always the case. It's always a good idea to get anything unusual - a lump or discomfort - checked out.
thanks for this im waiting to find out if i have liposarcoma now so this has helped thank you
Thank you for this infromation. I am in the process of being Refered to Royal Marsden for two one 9cm the other 5.5cm soft tissue masses in the abdomin. had an ultrasound which shows possible liposarcoma now being fast tracked. just so good to get the right information as you cant get peace of mind till the proper diagnosis so you know what you are dealing with thank you once again
Thank you for your kind comments. If there's any way that we can help, please do get in touch. We have friendly sarcoma specialists available for you on our Support Line. sarcoma.org.uk/supportline
in the process now with liposarcoma waiting to go to the royal marsdon london my sister died with the same when she was 47 i am 63 and have two masses wow just cant believe it at the moment. thanks for posting this we need all the info possible stay strong sending heartfelt love to you and your family blessings
Love you, Maddie!
what was the trail drug called ? i had ups sarcoma , immunotherapy drug keytruda worked for me very well.
My primary is an internist not a GP. Retired medical professional here. Socialized medicine can slow a diagnosis down. That’s why I do not want it in this country.
You're right Ellie, don't google it.I got pleomorphic liposarcoma and if you google that, you've had it! Not the case.
Rare for adults, “misdiagnosed”, forgotten cancer. Two surgeries, 33 radiation treatments later and now headed for complete body scan check - it is REAL!
Music is wrong. Brave and lovely man. 😢
Hi, Great video and channel. I am from the US, just got diagnosed with Sarcoma, and I am in the process of seeking treatment, will be happy to share my journey and experience with the network if my location is not an issue.
Hi Walid, thank you for your offer - you can get involved by sedning us your details here sarcoma.org.uk/shapeourwork Wishing you every success with your treatment. If we can help, our Support Line is here for you by email. sarcoma.org.uk/supportline
I am a 38 year old female who developed a tumor on my left thigh. I was able to see it in January of 2023 but had been experiencing pain and discomfort on my legs since July 2022. The tumor was removed on 12 june 2023, before chemotherapy or radiation could be done because l was misdiagnosed with a normal lipoma. But received my histopathology results yesterday and diagnosis is spindle cell sarcoma. How can l get help from UK specialists. Am in Zambia
Dear Sarah, I am sorry to hear that you have been given a sarcoma diagnosis, please do contact us directly on the support line and we will be able to help from there. Freephone 0808 801 0401, Text: 07860 058830 or Email: supportline@sarcoma.org.uk Best wishes, Helen, Support line team
Sometimes they are unable to do a biopsy on small gists like 1.0 cm.. then how do you diagnose ?
Good Morning, please do contact us directly on the support line where we can help to answers any questions that you have. Freephone 0808 801 0401 Text: 07860 058830 or Email: supportline@sarcoma.org.uk Best wishes, Helen, Support line team
Thank you for sharing your journey. Sending love and best wishes ❤
his strength amazes me ❤
Wanna find answers...perhaps start with putting patients on a restricted diet...even before treatment so they're acclimated, and not dealing with two major fronts. The dog and pony show isn't as funny as the perpetrators
You don't even look 21 lol 😂 let alone, to have been in a relationship for 21 years KUDOS 🎉🥳
thank god.....god bless Andrew....