![ASD by the Sea](/img/default-banner.jpg)
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ASD by the Sea
Великобритания
Добавлен 2 авг 2019
We are a UK Family of 4 living by the sea. Our son Max was diagnosed with ASD at age 5. Jake is currently on the waiting list to see if he has Aspergers. Claire is the happiest workaholic and Courtney is a grumpy teenager. The cats (Kitty Cat & Baby Cat) sometimes feature too!
We explore daily life with ASD and all of the ups and downs that brings. Our biggest goal is to one day sail the world...we LOVE the sea!
We explore daily life with ASD and all of the ups and downs that brings. Our biggest goal is to one day sail the world...we LOVE the sea!
Top 5 Tips for Autism Parents | ASD parenting | Do's and Don'ts of Autism | ASD | ASC
Ahoy there!
We are an ASD family from the South East of England. Finding our way through the web of life with ASD...
This is my TOP 5 TIPS for Autism Parents as of February 2023
Autism PARENTS Facebook group - asdbythesea
🎉Become one of our crew and support us- www.patreon.com/asdbythesea 🎉
Chat with us over on our Instagram Page - asdbythesea
Please SUBSCRIBE to our channel above (It's Free) and give this video a thumbs up - it's means so much and really helps us out ❤️
❤️ We LOVE reading all of your comments and we try to respond to as many as we possibly can!
All the Best
Jake, Claire & Max ❤️⚓💙
We are an ASD family from the South East of England. Finding our way through the web of life with ASD...
This is my TOP 5 TIPS for Autism Parents as of February 2023
Autism PARENTS Facebook group - asdbythesea
🎉Become one of our crew and support us- www.patreon.com/asdbythesea 🎉
Chat with us over on our Instagram Page - asdbythesea
Please SUBSCRIBE to our channel above (It's Free) and give this video a thumbs up - it's means so much and really helps us out ❤️
❤️ We LOVE reading all of your comments and we try to respond to as many as we possibly can!
All the Best
Jake, Claire & Max ❤️⚓💙
Просмотров: 90
Видео
Whole family with ASD | CHILD ASD UPDATE | ADULT ADHD | ASD BY THE SEA
Просмотров 162Год назад
Ahoy there! We are an ASD family from the South East of England. Finding our way through the web of life with ASD... In this video we give a well overdue update of whats been happening since our last video. 🎉Become one of our crew and support us- www.patreon.com/asdbythesea 🎉 Chat with us over on our Instagram Page - asdbythesea Please SUBSCRIBE to our channel above (It's Free) an...
Echolalia & Palilalia | What does Echolalia sound like | ONE YEAR LATER | ASD | Child Speech Delay
Просмотров 2,7 тыс.3 года назад
Echolalia & Palilalia - What are they? Our ONE YEAR LATER UPDATE!! ORIGINAL VIDEO - ruclips.net/video/X2rYmviw8RI/видео.html ❤️⚓️💙 Become one of our Patrons - www.patreon.com/asdbythesea ❤️⚓️💙 Ahoy There! ⛵️ We are a family of 4 from Kent, UK living with ASD by the Sea.... Max our son was Diagnosed at age 5 and Jake is currently on the waiting list for a test for Asperger's. Join us on our fami...
ASD plus ADHD? | Does my child have ADHD? | What's the difference?
Просмотров 904 года назад
In this video I talk about ADHD and our journey with it so far... Become one of our Patrons - www.patreon.com/asdbythesea Our Instagram Page - asdbythesea All the Best Jake, Claire & Max
30 MINUTES AT SCHOOL | ASD SCHOOL | PARENTING AUTISM | 30 MINUTES RESPITE
Просмотров 1124 года назад
30 MINUTES AT SCHOOL | ASD SCHOOL | PARENTING AUTISM | 30 MINUTES RESPITE Today Max goes back to School and we have a whole 30 minutes to ourselves....see what we get up to! :) Become one of our Patrons - www.patreon.com/asdbythesea Our Instagram Page - asdbythesea All the Best Jake, Claire & Max
ASD Family VLOG | ASD by the Sea S1E1 | Sailing plans | YouTubers | Patreon
Просмотров 724 года назад
ASD Family VLOG | ASD by the Sea S1E1 | Sailing plans | RUclipsrs | Patreon Join us for our first video after taking some time off. We have missed you! Give us a thumbs up and please SUBSCRIBE for more videos! Become one of our Patrons - www.patreon.com/asdbythesea Our Instagram Page - asdbythesea All the Best Jake, Claire & Max
ASD Weekly Vlog 120120 | Working ASD Family | McDonalds Trip | ASD by the Sea
Просмотров 1954 года назад
ASD Weekly Vlog 120120 | Working ASD Family | McDonalds Trip | ASD by the Sea Our First week back at work & school in 2020. Getting back into the swing of things! If you don't already, join us over on Instagram - asdbythesea JAKE & MAXS GAMING RUclips CHANNEL ruclips.net/channel/UCXB06DmTF5_RjtxLGDiWcvw JAKE & MAXS GAMING TWITCH CHANNEL www.twitch.tv/widdywat ★ ★ JOIN THE ASD BY ...
ASD Family Vlog | Sailing | CEX | Gaming | RAMSGATE MARINA | Passenger Travel Anxiety | Patreon | SW
Просмотров 1204 года назад
ASD Family Vlog | Sailing | CEX | Gaming | RAMSGATE MARINA | Passenger Travel Anxiety | Patreon | SW Ahoy There! ⛵️ We are a family of 4 from Kent, UK living with ASD by the Sea.... Max our son was Diagnosed at age 5 and Jake is currently on the waiting list for a test for Asperger's. Join us on our family adventures as we set sail on the biggest journey of all - life! In Today's video we head ...
POKEMON CENTRE LONDON | YO SUSHI | Max Tried something NEW!!!
Просмотров 1294 года назад
Pokemon Centre London | Yo Sushi | Max Tried something NEW!!! Ahoy There! ⛵️ We are a family of 4 from Kent, UK living with ASD by the Sea.... Max our son was Diagnosed at age 5 and Jake is currently on the waiting list for a test for Asperger's. Join us on our family adventures as we set sail on the biggest journey of all - life! In Today's video we head to the Pokemon Centre in London and Max...
Sony HDR - CX405 UNBOXING | Handycam | Best Camera for YouTube? | ASD By The Sea
Просмотров 5164 года назад
Sony HDR - CX405 UNBOXING | Handycam | Best Camera for RUclips? | ASD By The Sea Become one of our Patrons - www.patreon.com/asdbythesea Ahoy There! ⛵️ We are a family of 4 from Kent, UK living with ASD by the Sea.... Max our son was Diagnosed at age 5 and Jake is currently on the waiting list for a test for Asperger's. Join us on our family adventures as we set sail on the biggest journey of a...
Autistic Boy Does Weekly Shop | Shopping with ASD | Child Chooses Own food
Просмотров 3934 года назад
Autistic Boy Does Weekly Shop | Shopping with ASD | Child Chooses own food Ahoy There! ⛵️ We are a family of 4 from Kent, UK living with ASD by the Sea.... Max our son was Diagnosed at age 5 and Jake is currently on the waiting list for a test for Asperger's. Join us on our family adventures as we set sail on the biggest journey of all - life! In this video we let Max go shopping and choose his...
Signs of Autism | What does Autism look like? | How to tell if your child has Autism | Early Signs
Просмотров 4724 года назад
Signs of Autism | What does Autism look like? | How to tell if your child has Autism | Early Signs Ahoy There! ⛵️ We are a family of 4 from Kent, UK living with ASD by the Sea.... Max our son was Diagnosed at age 5 and Jake is currently on the waiting list for a test for Asperger's. Join us on our family adventures as we set sail on the biggest journey of all - life! ★★ ★ OUR HALLOWEEN EVENT PA...
How to be an AUTISM Parent | Our Top Tips | Living with ASD | Child with Autism
Просмотров 3224 года назад
How to be an AUTISM Parent | Our Top Tips | Living with ASD | Child with Autism Ahoy There! ⛵️ We are a family of 4 from Kent, UK living with ASD by the Sea.... Max our son was Diagnosed at age 5 and Jake is currently on the waiting list for a test for Asperger's. Join us on our family adventures as we set sail on the biggest journey of all - life! Today we discuss our top tips and advice to ot...
How To Go Out for Dinner with an Autistic child | ASD in Restaurants | Taking Max out to Eat
Просмотров 3504 года назад
How To Go Out for Dinner with Autism | Autism in Restaurants Ahoy There! ⛵️ We are a family of 4 from Kent, UK living with ASD by the Sea.... Max our son was Diagnosed at age 5 and Jake is currently on the waiting list for a test for Asperger's. Join us on our family adventures as we set sail on the biggest journey of all - life! In this video we show you what we need to do if we want to go out...
Echolalia & Palilalia | What does Echolalia sound like | Autism Awareness | ASD | Child Speech Delay
Просмотров 53 тыс.4 года назад
Echolalia & Palilalia | What does Echolalia sound like | Autism Awareness | ASD | Child Speech Delay
Autism and School | Hitting Others | Back To School Meltdowns | Mario Kart 8
Просмотров 9714 года назад
Autism and School | Hitting Others | Back To School Meltdowns | Mario Kart 8
After an Autism Diagnosis | What Support you will get | What changes? | Advice
Просмотров 3994 года назад
After an Autism Diagnosis | What Support you will get | What changes? | Advice
ASD Assessment | What happens in the Room | Hidden Mirrors! | ASD Results
Просмотров 1,2 тыс.4 года назад
ASD Assessment | What happens in the Room | Hidden Mirrors! | ASD Results
Bank Holiday with ASD | How we spend the Weekend | Indoor Play Centre & Food Shopping with ASD | BBQ
Просмотров 2644 года назад
Bank Holiday with ASD | How we spend the Weekend | Indoor Play Centre & Food Shopping with ASD | BBQ
ASD : Birth to Diagnosis | Autism Assessment | Is he just naughty? | Autism Awareness
Просмотров 1,6 тыс.4 года назад
ASD : Birth to Diagnosis | Autism Assessment | Is he just naughty? | Autism Awareness
ASD by the Sea -Introduction to our channel
Просмотров 9465 лет назад
ASD by the Sea -Introduction to our channel
Thanks for sharing. God bless you and your family. Thank your little fella for this information. Our little guy is 3 and we are just starting the journey. These videos you are posting are helping.
Thanks for sharing. It is brave and loving of your family. God Bless you.
Yes comercials tv shows what others say news radio musical toys videos good or inappropriate people just judge and don't understand. Delayed development also
Great video coverage I'm having this problem with my child right now what advice can you give me going forward to help her with speaking
What about a child who repeats his words or phrases. At the beginning of a sentence as though he can't get the sentence out-- but then does and it's an intelligent sentence?
My daughter is palilalic. But so far it's the only symptom of ASD, nothing else so far. Do you know if it's still enough of an indicator?
Oh man this is incredibly interesting. I learned that I whisper after I speak when I was in about 6th grade (my mom thought I knew so she didn’t tell me) and I’ve always wondered why I do it. I don’t realize I’m doing it most of the time, but people don’t typically comment on it unless they’re really close to me, like my best friend or my partner. It’s not surprising if it’s from ASD, I’ve never been diagnosed but my brother has. I don’t know how often I do it cuz I almost never catch myself doing it, but I know I do.
My daughter is 4 years old she totally improved in communication with the help of alternative medicine Doctor isibor herbs.!!!!
Could he be abused at school? Special needs kids are more likely to be abused. You need to look into it. I hope that isn't the case.
This has been very helpful. Now I know what I was doing that brought attention to myself at around age 6 or 7 when my friend’s teenage brother asked what I was whispering to myself, and my friend said matter of factly, “Oh she does that all the time.”
My son is 4 and recently started this thing where he tried to say what we say as we say it, same with tv shows or songs- It started when he liked songs and tried to sing them but didn’t know the words so would quietly sing what they sang as simultaneously as possible, with only a slight delay, & gradually became something he did with tv shows, then everyday conversations. He doesn’t always do it, but very frequently. Is this a form of echolalia?
My son is 5 and shows signs of both, he has trouble going to the toilet himself but his level of intelligence is off the scale, the school psychologist had said he had a strong case and CAMHS are reviewing it
My cousin has palilalia, and i have a weird form of it too. I didn't always think in words and speaking, even after i had learned to speak. I used to repeat things i heard others say (for example I'd say something a character in a moviehad said) because i didn't know how to form my own words for it to communicate the idea i was trying to get across or contribute to conversations At around 10 i learned to read, and somewhere between 14 and 16 i developed an internal monologue, not just thinking in feelings, concepts and senses(sounds, pictures/video, smells, and rarely textures) anymore. But it started originally as me whispering things to myself as a child, before i would begin to close my mouth make no sound and just move my tongue. I can think in words without moving my tongue now, but it's harder. I sometimes have a hard time discerning if i said something using my internal monologue or if i said it outloud sometimes, and separate to that i need to repeat what i said in my internal monologue to be certain that i thought those words correctly. Also i have a hard time thinking verbal thoughts while listening to and fully processing speech because of this. I use my internal monologue and hidden voice to help me process what people are saying, repeating their words. It can be hard for me to swith between listening and speaking because of this, im not planning what to say in response much i am just repeating what i heard to help process it. Communicating through text is way easier for me because it caters to my speak/listen thing and helps me process what people are saying better than hearing. Plus i get time to think about what i am saying and i don't have to try and remember what has already been said. Text is an accomodation for me.
Was happy to see your notification pop up , thought you’d given up on RUclips x
Thank you for the video, as someone who has APD, I can really resonate with echoing back what the other person said. I noticed that when I particularly am having speech delays during a conversation, I will repeat what they’re saying silently with moving my lips as minimally as possible, and it really helps me process the language. Because to you, I know now why I do that.
Oh man, this breaks my heart. My son goes through this.
My kid is 13, but only just got diagnosed with ASD. He didn’t have delayed speech as a toddler (if anything it was the opposite. Huge vocabulary, but slightly behind in a lot of motor skills), but he’s had palalia almost as long as I can remember. I remembered my little brother doing it and figured my kid would grow out of it, but he hasn’t. At first I thought it was a normal part of learning language. All this time I thought he never exhibited echolalia, but your descriptions make me think he did when he was little. But again, I assumed it was normal language learning. Like, if I said “let’s clean up” and he said “clean up!” I’d just say, “That’s right, we’re cleaning up. Clean up.” while putting blocks in the basket or whatever. It just seemed like typical toddler language learning to me. Even when he repeated words and phrases he already knew, it still felt like language learning. Like his brain was reinforcing the term. This is causing me to re-evaluate a lot, lol. I’ve already been looking at him and realized that a lot of the behaviors I thought were just things he does when he feels silly or different ones when he feels relaxed/sleepy, are actually him stimming.
Lovely seeing you back xx
What about when you repeat someone else's words from a conversation from years ago 🙃?
Good Question. I wonder if this is some form of delayed echolalia or a form of PTSD perhaps? Really interesting question. I am doing a degree in Psychology at the moment and we are on the subject of language so I will ask and see if I can find out a bit more and let you know :)
@@ASDbytheSea Thank you so much ☺️💚!!
My toddler would repeat the last word in a sentence ...
very very well spoken and it is genuinely so inspiring to see that you learned and grew so much to help your child
your videos are now helping me help my little brother (10) with ASD, my parents sadly don't have the time or just won't (because it IS emotionally tough to deal with) so i'm trying to find ways to help him navigate the world easier. i think i may be on the spectrum as well and the way my mother treated my behaviors growing up really confused me and isolated me further. i think this is why your videos mean this much to me personally, thank you so so so much for being the person you are.
Thank you so much. We have had a bit of a break from the channel but I feel really compelled to start producing more content :)
Wow...thanks for the very kind words. I am glad that we are helping others with our experiences - that was always the goal!
Was Max able to answer the questions he was asked by the examiner? When did max started speaking in sentences?
I am probably in denial that my child has some form of autism. He has echolalia and I have put it off for some time that he may be autistic as well. He seems to respond emotionally and he seems more at ease and tries to converse when he is in his comfort zone so I was not worried for a time. COVID lockdowns were no help as well since he was only over 18mos when it started. I still want to believe he is just very shy with echolalia as a speech delay rather than part of the spectrum. He has his own channel, Baby Savie, if you would like some reference on how he is.
I can see this comment is from 4 months ago. Apologies I have taken so long to get back to you - How are things now? Would love to know! :)
@@ASDbytheSea we have started face to face schooling! He has grown a lot in the behavior front. He still has a lot to catch up on speech-wise, but as baby steps go, he has been skipping and hopping. It pays to have a supportive therapist, a welcoming school, an encouraging family and a positive attitude from my son as well. His happy demeanor makes it easier for everyone to push through all the difficulties.
@@teptalk This is great to hear!! :)
Thumbs 👍 up! This video has helped me understand my child better!!!! Thank you for sharing!
I'm so glad! Hopefully there will be some equally helpful videos coming up soon :)
Using doctor Isibor Herbal treatment helped my child diagnosed with autism in less than 3 weeks so happy 😊😁 I can in contact with doctor Isibor natural herbal treatment on his RUclips channel
I still have palilalia today and I'm nearly 30. Lol. It's a bit annoying but I can't stop it from starting usually unless I'm focusing hard.
Thank you for this video.
My son keeps saying duppie duppie duppie he's six and I'm thinking this is a stim. I'm trying to get him tested because he's got alot going on making me think autisum. is this common? What would you even call this
Hi Shauna, I can see this comment os from 6 months ago - How are things now?
My 3-year-old is echolalic and has been for a while but I thought it was part of normal language development.
I'm almost eighteen and I still deal with this. No matter how many times I apologize and explain repeating something was involuntary, my parents always forget every time and call me out for being rude or mocking them. 😕
You may have tourettes instead of or along with ASD. If you're 18 and have involuntary speech, that's beyond most autism.
@@KeepTheGates it could also be anxiety
Your just slow in the head..
1:44 I am hearing myself explain this exact same thing to someone who dared to tell me my husband and I have no backbone. So many people think a good spanking is what mine need and oh on the contrary no--- I'm sure you all understand here. ❤ love to you all
Your right, your not supposed to spank the slow kids! Lol Sorry for your luck
Liked for the best advice ever at 4:30 !!!
I have both Echolalia and Palilalia annnnnnnnnnnnd I grew up in Deal! Subbed.
My son 2.6 years is echolalic. Understands all instruction but just do not seem to be able to express his wants with words and sentences. Just wanted to know, if it will ever taper off with time and any suggestions or directions on how we can teach him things more dynamically and technically
He's just slow.. hopefully he'll catch up. Sorry for your luck..don't spank the slow kids.. 🐌
@@KGB.83 what is wrong with you?
My friend has a daughter who is Down Syndrome and also Autistic she at times repeats everything people say. She also rocks sometimes and rubs her hands. She is a delightful person to be around but she has mood swings at times too. Is this all part of being Autism and Down Syndrome?
@@ASDbytheSea oh ok yeah she gets in her mood swings and rocks and at times bangs her head but not always
Try this it works on heaps of things..it's a cure..ruclips.net/video/jtNkoWzXD14/видео.html
How long to take improve his echolalia ? Means at what age he said his own words.
Same with my son, he repeats his own words loud than quieter
Thanks so much for posting this. It's such confirmation for me that I do know my son best. He's 2 and I started noticing things when he was an infant. He definitely expresses with echolalia. Thank you for mentioning the struggle with discipline and having what you said repeated back. It helps to know I'm not the only one who gets frustrated. My son does it with a smile on his face lol He has been evaluated in all areas and they have said there are a lot of "red flags" for Autism and that they will retest at 33 months. For now, we are going to start speech, in home stimulation specialist, and OT feeding. I feel with all of my heart that my son is Autistic. I've known since he was an infant when he would throw our hands off of him when we tried to touch him lovingly. To needing a very very specific routine for sleeping. Then being able to count on one hand how many times he made eye contact with me. It's a lot more now but he has only done it once while I'm holding him and never while breastfeeding. Etc. Anyways, I have a couple questions for you. Did your son use phrases in one situation that came from a different situation to express a need in another situation even though the word or phrase isn't obvious to the new situation. Lol I realize that's probably confusing. I'll give you an example. My son will repeat I know I know I know baby when he gets hurt or feels uncomfortable because we say oh I know I know baby when he gets hurt or feels upset. He also will say sit down baby when he sits down instead of just sitting down because I say to him sit down baby, but not at that exact time. Another thing he does is he will repeat the word vacuum over and over for a couple minutes when he sees the vacuum or just at other times, and he will do that many times over the course of a day or he will pick our plumber's name to do the same with. He also repeats phrases that seemingly have nothing to do with the situation Like he will say I pressed it when he didn't press anything. I have yet to decipher that one. It may be a delayed echolalia. Or he will flap his arms when he is upset or frustrated. Sometimes he runs to a corner to say no no no no for a bit when he's upset. He also will keep doing the same things over and over no matter how many times we redirect, explain, or tell him no. It's like he HAS to do them. Things like throw the lamp off of the side table, open the oven and stand on it, open the washer and throw something in it. When he does it, he gets all giddy lol I really related to the part when you said you thought you were getting somewhere with speech. My son just recently had a language explosion. Now I realize it's mostly just imitation. I mean, he will use a few words sometimes like the dog's name when he hears her bark and he definitely can say hi to his Dad. So I'm just wondering if any of this sounds familiar to you?
Thank you so much for sharing your life with me. You're such a fine person and such a dear mum. All the best for your family
Very good video. And what you said about advice especially (not necessarily wanted ...) advice from friends & family versus your gut feeling about your cild and medical professionals knowledge ist 100% true! Much love <3
I really love your video it gave me hope i have no idea my son is ASD high risk going out side with him was really hard because he would run away i feel bad not finding out on time he does not respond to his own name but hopefully one day he will
I love learning through the people who have personal experience.
People who have never lived it always think they know more than you do. Keep trying.
Thanks for sharing
I don't know if you will have the opportunity to read this comment but if you do I want to thank you for sharing your family's ASD journey. Your story is very similar to my own. You are right when you said no one understands what it is like to parent a child on the spectrum unless you have personally done so. My sons journey to diagnosis was a very rough time in our lives. Things have gotten better with time, therapy, support etc. But those years in-between were a struggle. So thanks again for sharing and reminding me where we came from and that we are our child's biggest supporters.
You are so courageous to tell your story. It can help so many parents. Thank you.
Giving you a big huggg💗💗💗💗💗💗💗💗💗💗💗💗💗💗
I used to do this when i was a kid and so did my little brother people just thought we were naughty or bad children. Btw we still do this to this day.
This is very helpful! Thank you for being so transparent. I do have a question..Did Max ever only repeat the last sound that he heard when you were talking to him? For example, lets say you were teaching him "water" but he only said "wa" ..so then you slow down and enunciate "wa-ter", and this time, he would only repeat the "ter" part. Was that something you experienced before he started repeating whole sentences? I've been doing some research and I cannot find anything on this and if this is something to be concerned with for a child who is a late talker (almost 2 1/2 yrs old). If anyone has helpful input, that would be great as well
HI Christina, Sadly this doesn't sound familiar so I wont be able to comment. Max always used the full words. Do you have a pediatrician or speech therapist? They may know the technical name for that which would enable you to do more research :) All the Best x
Thats normal for speech delayed toddler
I taught him to say i want "water" but the water part was in my language...he started saying i want water all in English by himself 😊