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Life on the mend
Австралия
Добавлен 1 апр 2014
If you like practical organisation, organic beauty and answers to health problems, than this is the channel for you. I am here to give you encouragement to do what needs to be done and grace when it cannot be done. I am here to motivate you to want better. Most of all I am here to bring God glory and to point people who have lost hope, to hope in him.
-DISCLAIMER- This RUclips channel will occasionally contain affiliate links, which means I receive a small commission on a purchase (without additional cost to you) if you buy something through my links. The purpose of this channel is to educate viewers and sharing everything I know about health, beauty and organisation, and that sometimes includes recommendations. I do believe in and personally use the products I mention in my videos. I will never promote a product I haven’t tried or think that you’ll benefit from. If you do purchase through my affiliate links, thank you so much for your support.
- Jessica Hearsey
-DISCLAIMER- This RUclips channel will occasionally contain affiliate links, which means I receive a small commission on a purchase (without additional cost to you) if you buy something through my links. The purpose of this channel is to educate viewers and sharing everything I know about health, beauty and organisation, and that sometimes includes recommendations. I do believe in and personally use the products I mention in my videos. I will never promote a product I haven’t tried or think that you’ll benefit from. If you do purchase through my affiliate links, thank you so much for your support.
- Jessica Hearsey
MyBirthStory|BabyNo.4|AutoimmuneDiseases|HighRiskDelivery|Postpartum recovery|SpecialCareNursery|
This is the story of my giving birth to my fourth beautiful baby, Auden. We finally made it to the end of my complicated and high risk pregnancy (Adrenal insufficiency, Hashimotos and Graves disease and several bleeding episodes, covid and bronchitis) only to be hit with more serious problems. Auden was sent to the special care nursery and I was stuck in hospital for the longest week in my life...
Music
Song: TheFatRat - Rise Up (Vlog No Copyright Music)
Music provided by Vlog No Copyright Music.
Video Link:

• TheFatRat - Rise ...
Music
Song: TheFatRat - Rise Up (Vlog No Copyright Music)
Music provided by Vlog No Copyright Music.
Video Link:

• TheFatRat - Rise ...
Просмотров: 343
Видео
ThirdTrimesterPregnancyVlogPart3|High-riskpregnancy|Nesting|induce labourNaturally|
Просмотров 113Год назад
This is my final pregnancy Vlog before baby comes. enjoy. Music Song: Justhea - Be With Me Music provided by Vlog No Copyright Music. Creative Commons - Attribution 3.0 Unported Video Link: • Justhea - Be With... #NoCopyrightMusic #VlogMusic #VlogNoCopyrightMusic Song: SKANDR - Love Me Better Music provided by Vlog No Copyright Music. Video Link: • SKANDR - Love Me ... #NoCopyrightMusic #VlogMu...
ThirdTrimesterVlog Part 2| MyFears|Cleaning/organisingForBaby| Postpartum prep|HighriskPregnancy
Просмотров 97Год назад
This is a long video in which I do a lot of talking and organising. I am 35/36 weeks pregnant in this video. I talk about my fears of birth and postpartum. Music  Everything Will Be Okay by Beau Walker soundcloud.com/beauwalkermusic Creative Commons - Attribution-ShareAlike 3.0 Unported - CC BY-SA 3.0 Free Download / Stream: bit.ly/3z3SjOI Music promoted by Audio Library  • Everything Will B....
Self Care Reset| Living with chronic illnesses|Chatty video| third trimester pregnancy|
Просмотров 144Год назад
This is something I like to do after I have had a flare up or just need a mental and physical reset. I was recovering from my worst ever gallbladder attack at 36 weeks pregnant. Warning- it is a very chatty video. Music  Song: Niwel - Broken Love Music provided by Vlog No Copyright Music. Video Link:  • Niwel - Broken Lo...
ThirdTrimesterVlogPart1|stillrecovering|getting ready for baby|Highrisk pregnancy|Autoimmuediseases
Просмотров 92Год назад
ThirdTrimesterVlogPart1|stillrecovering|getting ready for baby|Highrisk pregnancy|Autoimmuediseases Part 1 of my third trimester vlog. This is a very chatty video as I was still recovering and couldn't do much. I pack my hospital bag and nappy bag. Music Song: Hotham - Love Me Back Music provided by Vlog No Copyright Music. Creative Commons - Attribution 3.0 Unported Video Link:  • Hotham - Lo...
SecondTrimesterVlog| Baby things|Bleeding at 27 weeks| Covid again| High risk pregnancy|
Просмотров 139Год назад
This was a scary time in our lives. We are doing okay now but I wasn't sure (when filming this) if I was even going to get a third trimester. not only do I have to deal with Adrenal insufficiency, thyroid disease ect but now we have all these other sicknesses as well. - Music- Song: Hotham - Love Me Back Music provided by Vlog No Copyright Music. Creative Commons - Attribution 3.0 Unported Vide...
WHAT I EAT IN A DAY|20weeksPregnant|Trying to combat steroid weight gain while still eating healthy|
Просмотров 80Год назад
I'm going to be honest. I am struggling a bit with weight gain. The amount of steroids I am on is to blame. Still I try my best to eat healthy and to eat good fats because my baby deserves it. I can handle a few more months of weight gain.
Merry christmas 2022
Просмотров 60Год назад
Ginger bread cookies 1 cup gf plain flour (we ran out so we used some self raising, they were a little puffy 3/4 tapioca flour 1 1/2 tsp baking powder 1/4 tsp ginger 1/4 cinnamon 1/8 ground nutmeg 1/8 ground cloves 1/4 salt 2 tbls nuttelex 1 egg 1/4 cup date syrup 1 1/2 vanilla extract monk fruit icing 2 tbls non fat milk -music - ruclips.net/video/DfzjnHFvNLw/видео.html&ab_channel=Syncman'sNoC...
Simple Baby Gender Reveal| Our predictions were correct|Fail layer cake|
Просмотров 34Год назад
This cake was a complete disaster. But also not. I am convinced my husband can fix anything. I bake a third layer, off camera, and this one worked so much better. I think I did something wrong when doubling the mixture the first time. I didn't show the decorating or icing of the cake because I was a complete emotional wreck by this point. How we did it. My Brother (Thanks Tim) took the envelope...
UnfilteredPregnancyMorningRoutine|Family of 5|PregnancySkinCare|Living with autoimmune diseases
Просмотров 84Год назад
This is a very typical Saturday morning routine for me. Everything shown in this video is what I do everyday. Obviously somedays I have the kids with me and on school days, I don't. some days I take more care with with my hair and some days, I just don't care. This was one of those days. I have Adrenal insufficiency, Hashimotos and graves disease. I take thyroid extract and PTU, prenatal probio...
Fiji Vlog| Travelling in the first trimester| Pregnancy|
Просмотров 822 года назад
This is a few snippets of our holiday to Fiji (Beachcomber Island) We had several forced rest days in which we did not film at all (due to pregnancy and my Autoimmune diseases.) We spent 6 days on the island. These are the memories that I would like to remember. Enjoy. -Music- Track: Chile Artist: ASHUTOSH Free Download: ashutoshmusic.fanlink.to/chile Song: Lichu - Sunshine Music provided by Vl...
First Trimester Vlog | High risk pregnancy| Adrenal insufficiency| Thyoid disease
Просмотров 2512 года назад
This is a recap of my first trimester. This is the first time I have been medicated while pregnant. 4th baby. - Music- Song: Arensky & Luminoiz - The Same (feat. Anna-Sophia Henry) Music promoted by Vlog No Copyright Music. Video Link: ruclips.net/video/u8b_OfGSgIs/видео.html Song: LiQWYD - Love Music provided by Vlog No Copyright Music. Creative Commons - Attribution 3.0 Unported Video Link: r...
The moment I found out i'm pregnant|High risk pregnancy|Autoimmune diseases|Here we go again|Baby#4
Просмотров 1512 года назад
The moment I found out i'm pregnant|High risk pregnancy|Autoimmune diseases|Here we go again|Baby#4
Kitchen organisation\\cleaning |Kmart chair hack|Naming our alien baby| CLEANING MOTIVATION |
Просмотров 682 года назад
Kitchen organisation\\cleaning |Kmart chair hack|Naming our alien baby| CLEANING MOTIVATION |
Health update|Thyroid Disease|Autoimmune|RareDiseases|
Просмотров 2952 года назад
Health update|Thyroid Disease|Autoimmune|RareDiseases|
Another rare diagnosis...Feeling discouraged...
Просмотров 5632 года назад
Another rare diagnosis...Feeling discouraged...
10 minute Mummy Makeup|Quick natural looking makeup for everyday|
Просмотров 542 года назад
10 minute Mummy Makeup|Quick natural looking makeup for everyday|
Oops. Every curly girl has done this i'm sure
Просмотров 402 года назад
Oops. Every curly girl has done this i'm sure
PostCovidWorkoutSeries\\Leg+BootyWorkout\\RealisticWorkout\\AdrenalInsufficiency\\AutoimmuneDisease
Просмотров 692 года назад
PostCovidWorkoutSeries\\Leg BootyWorkout\\RealisticWorkout\\AdrenalInsufficiency\\AutoimmuneDisease
PostCovidWorkoutSeriesEpisode2\\AbWorkout\\Realistic\\AdrenalInsufficiency\\AutoimmuneDisease
Просмотров 592 года назад
PostCovidWorkoutSeriesEpisode2\\AbWorkout\\Realistic\\AdrenalInsufficiency\\AutoimmuneDisease
PostCovidWorkoutSeriesEpisode1\\ArmWorkoutWithWeights\\AdrenalInsufficiency\\ Autoimmune\\Realistic
Просмотров 532 года назад
PostCovidWorkoutSeriesEpisode1\\ArmWorkoutWithWeights\\AdrenalInsufficiency\\ Autoimmune\\Realistic
Intro:PostCovidWorkoutSeriesEpisode1\\RealisticWorkouts AutoimmuneDisease\\AdrenalInsufficiency
Просмотров 492 года назад
Intro:PostCovidWorkoutSeriesEpisode1\\RealisticWorkouts AutoimmuneDisease\\AdrenalInsufficiency
IsolationSeriesDay10|AdrenalInsufficiency&Covid|My Story|AutoimmuneDisease|
Просмотров 2222 года назад
IsolationSeriesDay10|AdrenalInsufficiency&Covid|My Story|AutoimmuneDisease|
Isolation series day 6,7&8|Adrenal Insufficiency&Covid recovery|symptoms|Bedrest|
Просмотров 992 года назад
Isolation series day 6,7&8|Adrenal Insufficiency&Covid recovery|symptoms|Bedrest|
IsolationSeriesDay5|HomeCovidTest|NotDoingGreat|Adrenal Insufficiency & Covid|Autoimmune disease|
Просмотров 512 года назад
IsolationSeriesDay5|HomeCovidTest|NotDoingGreat|Adrenal Insufficiency & Covid|Autoimmune disease|
Isolation Series Day3|Covid&AdrenalInsufficiency|DITLVlog|FullBlown Covid|NYResolutions?|books|Craft
Просмотров 862 года назад
Isolation Series Day3|Covid&AdrenalInsufficiency|DITLVlog|FullBlown Covid|NYResolutions?|books|Craft
Isolation Series Day2|Covid&AdrenalInsufficiency|DITL Vlog|CovidSymptomsStarting|Autoimmune disease|
Просмотров 802 года назад
Isolation Series Day2|Covid&AdrenalInsufficiency|DITL Vlog|CovidSymptomsStarting|Autoimmune disease|
IsolationSeriesDay1|Covid&AdrenalInsufficiency|DITLVlog| Skincare/Cleaning/preparing|Autoimmune
Просмотров 782 года назад
IsolationSeriesDay1|Covid&AdrenalInsufficiency|DITLVlog| Skincare/Cleaning/preparing|Autoimmune
HealthUpdate|Adrenal Insufficiency| 2 years post diagnosis| Things that have changed in my health|
Просмотров 5972 года назад
HealthUpdate|Adrenal Insufficiency| 2 years post diagnosis| Things that have changed in my health|
Relationships&AdrenalInsufficiency|MyStoryHowIMetMyHusband|HowIManageSymptomsWithAI|
Просмотров 3142 года назад
Relationships&AdrenalInsufficiency|MyStoryHowIMetMyHusband|HowIManageSymptomsWithAI|
Thanks for sharing... So useful to hear about your journey and that there can be light at the end of the tunnel. 💪⭐
Thanks for sharing your experience, it is realey hard to find so usefull informations for people with AI aboyt pregnancy.
You shold check Lyme Borreliosis, which mimics many many diseases. I perfectly understand you, I have symptoms that mimic many sides of one illness and I do not fin one box of an illness. I perfectly know all the symptoms you describe
Very helpfull thank you...I have secondry with overlapping Addisons symptoms...interesting you were prescribed Aldosterone.xc
Mine is over active adrenal causing high aldosterone which is horrible also headaches dizziness depression feel horrible daily
Hydrocortisol Fluronaff? <- what’s this one? Insulin intolerance test
Fludrocortisone. Insulin intolerance test done in the hospital to measure my body’s response to stress. I think they did blood cortisol test before, during and after to confirm diagnosis.
I’m living through this rn unfortunately 😢 It’s taken me 6 months to get an appointment with an Endocrinologist and I feel like I’m dying everyday. The joint pain, hair loss, loss of appetite, brain fog , low BP and sugar crashes have me scared to death. I’m so weak I can rarely get out of bed. My appointment is September 11th, please pray that I make it until then.
Yeah, I was told I had Addison’s disease in the hospital six months ago I’m not on any medication and it is very difficult very I gotta go in for another cortisol test I am afraid to start the medication because I know I will have to depend on it for the rest of my life and I was hoping that my adrenals might reverse where I don’t have to take the medication but I don’t know but thanks for putting your input in medication I appreciate that I was wondering how much it would be
I know. I felt the same way. I was against all medication for several years but this is the type of disease that you can’t get away with without medication. Taking the steroids was the best thing I did to get my life back. Before that it was impossible to live. Now I just take the tablets and try not to think about them and the fact that I need them for life. Trust me.Life is better with them.
I agree about not fitting into 1 box! 📦
I got Addison’s disease and I drink salt in my water all day. I really don’t know how much salt I need or I really how much water I should be drinking.
I have stage 3 adrenocorotical carcinoma. One in one million get it. Yay me!!!!
And you’re absolutely right I do need to make friends with those who have the same disease I have because they know what I’m going through. Nobody knows unless they’re going through it it’s horrible. It’s turned my life upside down just want to be normal and be able to function every day normallyso your interviews I’ve watched a couple of them and you really have helped me just by listening to you on one of your videos that you take medication and you’re doing better. I’m trying to prevent that but I just want to live a normal life and get better.
I appreciate your video because I’m not on any medication and I was diagnosed with Addison’s disease and it’s horrible when you’re not able to function normal you have to lay down because your head and you’re so exhausted and you feel horrible and you can’t just live normal trying to prevent from having to take the medication but I don’t know it looks like I might have to take itI’m trying to prevent that but I just pray that whatever’s the best God Almighty will let me know. Thanks for your video.
Steroids gave me my life back.
Believe me, I know exactly what you’re talking about. I got Addison’s disease and I would like to just go spend some time with my daughter but I can’t drive and can’t take the stress. I’m just wore out and it affects my brain and my energy and very very drained, so I do know what you’re talking about. It’s because you can’t don’t have the energy can’t function. It’s really sad because I just wanna be back normal and you can’t when you have these problems.
Hopefully you can look into some natural things to help yourself. I had anxiety, panic attacks, adrenal immune disease and end up with Addison’s disease but I do think that you should try to find something natural take for anxiety and panic attacks
I think you need to keep your thyroid, and you can help heal your thyroid naturally just look it up. The thing is I wouldn’t get rid of my thyroids either. I think you’re smart keep them you got enough to deal with it with your Addison’s disease
Thank you so much for your interview because I got Addison’s disease and I’m not on any medication and I am trying to prevent it and it’s not easy. It’s really really hard and I don’t know if I will end up on it but I really appreciate your interview. It helped me out a lot, thank you. God bless you and take care of yourself eat good meat and vegetables and fruits and make your own homemade ice cream. You can do it in a way that’s very healthy. God bless you. I hope you stay well.🥰❤️
You can take frozen bananas and use heavy cream with Kiefer and mix it together and it’s like vanilla ice cream and it taste delicious to me and you won’t have all that sugar and you won’t gain weight from it. I’m sure it’ll be a lot better for you than any store bought ice cream that is really not good for you.
Another issue with this disease, it is complicated by also having PTSD. When I become stressed, it is very difficult to normalize my body. Stress is not a continuum for me. It is calm or Pressing on the gas at 500 mph. Instant acceleration of my symptoms. Full blown panic attacks and major struggles to return to stability. I am so grateful for your post.
I have not been diagnosed formally, am taking hydrocortisone. Still going thru testing. Everything you have talked about is exactly what I experience. It can be so difficult, especially the exhaustion and social issues you talked about. Hearing this was so beneficial for me. Thank you. Thank you!!!
Thank God for letting me watch this video. I’ve had 2 miscarriages and I also have MTHFR - C677T homozygous. I do my own research on internet and also got advice from my doctor. But it seems there is no surefire method. I was really desperate when I had 2 miscarriages and no doctor gave me an accurate explanation of my situation. Some doctors say that the MTHFR gene is not related to miscarriage, but according to many researchs, everyone who has recurrent miscarriages has this gene. Along with that, I also see a lot of information about using methods such as lovenox injection and baby aspirin, and still not successful. After I saw your video, I decided to try on Serrapeptase. I understand the suffering of those who experience recurrent miscarriages. And the desperation when the doctors couldn't help, they just tried and tried. If so then I personally might try it either way. I will update with more information after I get pregnant.
I have Addison’s disease and I’m not having any medication. It is a nightmare so tired all the time can’t function just tired of being tired and exhausted. When I do get a little bit of energy to do something it means the world to me I just wish I could get better.
Thanks for this video. I know it's from awhile ago. I had a pituitary tumor and ended up with many permanent conditions after. 2 years later I am having ALL of your symptoms. I now have celiac and hoshimotos, diabetes insipidus and I suspect addison's disease. Waiting on my endo now. What ever happened with the MRI of your pituitary?
LOVE your channel. thanks
Im 19 years old with border line adrenal insufficiency 😢 ...
I'm so glad you're okay and so sorry for all you went through! I hope the medical field becomes far more educated on adrenal insufficiency soon!
Rice flour is NOT gluten free. It does not contain gliadin (the form of gluten we actually hear about), but does contain a different form. Don't trust me. I always suggest you do the research for yourself.
What blood test convinced the Doctors?
💜🙏. Thank the Lord for brighten days ahead. Step by step.
I'm so sorry about all the arguing going on around you. It only makes your stress & symptoms worse. It's a very "bad" situation to be living in. The illness is bad enough but having to deal with people fighting around you can drive you to insanity. I will pray for you so God can somehow get you away from all this & give you His peace in your heart. So sorry😢. God bless you! 🙏 From someone who deeply understands! 🌹
I liked so much what you had to say! I have secondary adrenal insufficiency & my Endocrinologist, my Primary Care doctor, & my husband are very supportive. Friends & family don't understand & unfortunately I have lost friends because of this illness. I certainly know & can empathize with your symptoms. Many of the symptoms you described I also have. I wish that you & I would be able to be friends & support one another. I wish you all the best & pray that you have more days that are positive & filled with more energy. I can't get out of bed on most days, no matter how much I try. I get up just to go to the bathroom & back to bed😢. There's a lot of brain fog & difficulty concentrating. I have to make lists for everything I need to do. Well, enough of my symptoms. I hope that anyone who suffers from this illness & is reading this will learn to accept their limitations & be kinder with themselves. This illness has taught me a lot about life & myself. May God help all of us who suffer with this disease. My ❤ goes out to you! Rose 🌹
So true. This health challenge has taught me a lot and I am still learning after 24 years diagnosed. Every so often I get reminded how much my life has changed from my previous life socially and entertaining family and friends. I have made adjustments but I occasionally get sad about it. ❤
How much hydrocortisone did you start taking.
I've been going through adrenal fatigue (HPA axis stress dysfunction.) it's been horrific. This is a sixth year and I'm finally coming out the other side. No help from doctors, I had to find out things myself. crazy covid didn't help. Thankfully I didn't get the clotshot in my already struggling body. I have to take things very slow. it's been a crazy ride and cost me a fortune trying to get my body back. I'm using cannabis in coconut oil now and I'm finally feeling good again. I still get bad shaky days but they are getting less and lasting less. I probably will never fully get my strength back but I'm 77. so expected. I will admit there were times, because it went on and on, that I didn't care if I'd died, it was so horrible. But I am better so be strong, LOVE YOUR BODY especially when it is struggling. Treat it as you would a sick child, with tender love. it will respond accordingly.❤❤❤
I have been diagnosed with Addison's for over 10 years, but had it for way longer and hospitalized with severe adrenal crisis and followed by coma. These were near death experiences. I have had numerous crisis' since and can't count them all, some were an ambulance ride and hospitalization. And some I learned to recognize the symptoms early and head the crisis off at home. The doctors won't treat you anyway and I have nearly died in front of them and they just watch your blood pressure. I am on stress doses of Hydrocortisone now due to pain from arthritis. I can say that even though you are on HC that you still have debilitating symptoms of Addison's. I have to balance my own electrolytes because I produce zero Aldosterone. And zero all the other hormones made by the Cortex. I have a good doctor 5 hours drive from here, so he can't help me in the ER. I am trying to educate my doctors and ambulance, hospital and ER with literature for that very purpose from the National Adrenal Disease Foundation. All kinds of things can put me into a crisis, like being out in the cold for an hour, or family trouble, or loud noise. I turned off the buzzer on my dryer because it sends adrenaline through my body. The list goes on, worry or fear. Or good things like being with my grand kids. It is all stress and I can take very little. I can not work and do the things I use to do like garden. This disease is all encompassing. Some people say they can life a relatively normal life after getting on steroids. I don't see how. I have zero production of hormones, from the cortex. I have to be my own doctor as my doctor who cares for me is so far away. I like connecting with others who have the disease so I can learn and better take care of myself. Thank you for sharing your life.
I can relate to understand everything you said. ❤You sound like you have an extremely challenging case. That makes managing it a full time job ❤
A job That is exhausting and confusing in itself with absolutely no rhyme or reason.
I have unspecified adrenal insufficiency that's chronic. I had the and still have some hyperpigmentation. Anyhow, so making new friends and explaining can be difficult to get across. Like recently my new friends have said oh I get really tired. Maybe I should get checked. I think I have what you have. I don't wish it on anyone. I'll ask them. Have you ever had your hormones checked and they say no? I'm supposed to be on HR since I had a hysterectomy or partial hysterectomy or I'm supposed to take B12. Tada... I encourage them to go to the doctor
I’ve had 4 miscarriages and I too have MTHFR. I’m on lovenox and aspirin currently. Do you think Serrapeptase will help me or the Lovenox and aspirin should be good?
Sounds like hypercalcemia from hyperthyroidism
MTHFR homozygous c677t here. I just ordered and am in the process of ovulating. Do you think I should start now or wait? I have had 5 miscarriages in 2 years after having healthy pregnancies with no issues. Thoughts?
I assume you mean to start the serrapeptane? I would start as soon as possible. Not a doctor though but I think the longer you are in it the better.
I just wanted to thank you for sharing this information with the MTHFR community.i truly believe because I added serrapeptase to my morning supplement regimen, I carried my baby girl to term. My pregnancy was perfectly healthy with no bleeding complications. I ended up having a c section because of a triple nuchal chord but otherwise nothing MTHFR related. I took it up until the day before I gave birth. Thank you again… I cannot be more grateful!
Once I made the connection between me taking serrapeptane and no miscarriage I just wanted to share it with the world. I’m so happy to hear of your baby and carrying to term.
Thank you. This is really so very helpfull. I think i have had about 3 adrenal crisis. Before i was diagnosed. And one since. Its all a learning curve. That we have to manage and figure out on our own. Its great to hear your experience. Thank you lovely❤❤❤❤
Hi from the UK. Thank you so much for making this video. Newly diagnosed. Very up n down. Sorting out my diet. Yes i think it will take a while to get the dose right. And i believe we know our bodies best. How we feel. And what dose of meds suits us. As we are all differrent. With differrent health issues. Ages ect. Listen to our bodies. Reduce stress. Lots of good food. Water and sleep and rest. And dont push ourselves. Be kind to ourselves. Rest when your body tells you. Good days bad days. I have Addisons.xx❤❤❤
Interesting, this sounds very similar to my symptoms and experiences which im currently trying to figure out, I also have hormonal deficiencies and its strange but i also have red hair
I know this is old- but going through this video now and I'm trying to find information out there about adrenal insufficiency and pregnancy, and seeing this is so encouraging to me. It's a season of rest for me too and it's been so hard and I haven't had much help or guidance from my endocrinologist, but knowing that it's okay to rest and seeing you make it through this pregnancy gives me so much hope.
Yes, rest for us is a must. I'm always willing to answer any questions you may have in regards to my pregnancies and Adrenal insufficiency. (I now have 4 kids) Are you medicated?
@@JessicaHearsey That would be so helpfulf! Yes I was on 20mg of Hydro before pregnancy, and the first trimester I didn't really have many issues. At week 13 I started to crash and had to go up to 25mg. But since then my capacity has been so limited. So I'm not sure if it's normal pregnancy, AI, or one of my other health issues (although it does seem to get better with steroids). I had another crash a few days ago (at 15 weeks), but I'm scared to keep upping my dose. I've been taking 27.5mg and feel a bit better, but my endocrinologist has been little help. Their advice was to try to avoid increasing my dose at all costs, but that I could if I absolutely had to. They just told me to "do my best" so I've just been lost with figuring out my dosing and knowing if I'm taking too little or too much 😬
What other symptoms are you having that gets better with steroids? I think of was taking 30 minimum daily. Sometimes more in the third trimester. This did make me gain quite a bit of weight but life was so much more manageable. Avoiding upping dose can be dangerous because as my endo explained to me that I would be naturally making/ needing more cortisol during pregnancy anyway if I did not have this disease so your body needs it.
@@JessicaHearsey I am worried about weight gain- particularly because I had a bad bought of infections and illnesses right before pregnancy that caused me to updose for months and I gained a lot then too. I had finally gotten back to my normal dose , started losing weight, and then got pregnant 😅 But I'll feel super out of it (sort of dissociated), have heart palpitations, nausea, diarrhea, extreme fatigue, brain fog, shakiness. But my endocrinologists don't seem to know much- so it's hard to know what to do.
It sucks that this is our reality. All you can do is up your dose and see how that makes you feel. The doctors can’t tell you how much to take because everybody needs different amounts and metabolises the medication differently. I came to the mindset that yup I am going to gain weight but I am going to do the best I can to be healthy (exercise and eat well) and then everything else is outside of my control, it is temporary and I am going to chose to be okay with it. It still sucked though. Those feelings of out of it… I describe it as not really feeling that I am there. What I found was that it can be helped with steroids but mostly it was a dip in blood sugar levels not because of anything I did or ate or didn’t eat, just another side effect of disease.
Trying to look up pregnancy info with adrenal insufficiency is impossible! Thank you for this. Hearing what you had to get your dosage too helped me a lot. My doctor basically thinks my dose just needs to stay the same- but I'm really struggling. Looking forward to going back and watching all your older pregnancy videos like this now!
I had my hormones tested and came out with a very low cortisol reading - I was originally diagnosed with hypoadrenalism and given hydrocortisone. But I didn't take the medication at all because I was worried about side effects - a year later I was tested again and the cortisol levels were normal. It turned out the hypoadrenalism was caused by a medication I was taking at the time - certain medications suppress ACTH. This was opioid induced and then resolved when I stopped taking the painkillers.
Unrelated but u could be young Nicole Kidman’s twin. Crazy!
Smoothie recipe?
I had a Dex test for cortisol and it came back as 1 (4. is low on the scale) today, I had the ATCH testing with BP done before and after the test (and blood draws) I was wondering if or how much your BP changed ? For example, my baseline BP was 99/66 (Before the IV injection) end of the test it was 109/69. So, clearly, it did go up but is this a normal/average/low/high result for ATCH test? If you could toss in your 2 cents it would be greatly appreciated.
Hi! Please, tell me what is your medication. (The transcription is incorrect, and I didn't understand. English is my 2nd language.) Thanks a lot 🌹
Yeah I think its a tragedy that main stream medicine has totally dropped the ball with thyroid and adrenal issues, in a backward way its encouraging to read the comments of other sufferers as I thought I was the only person with weird health issues and the rest of humanity was way healthier than me! I'm 58 I had adrenal issues my whole life and its ruined my health and also my life its takes everything, relationships, jobs and careers! I personally don't believe stress causes adrenal insufficiency I think that's absolute bullshit I think you are either lucky or unlucky you're born with bad adrenals like I was or you are not, I know lots of people who have very stressful lives and they revel in it they are not sick in anyway whereas if your adrenals are bad then you cannot cope with any kind of stress, not physical chemical or emotional, you can have all the spa days you like but it won't make one tiny bit of difference, you can be as healthy as you like but it will not make any difference whatsoever I know I tried everything and I just end up where I started, lifestyle changes are a good thing for overall health but if you think its going to fix your adrenals issues then I'm sorry to tell you that going to be disappointed, it won't! I believe the only thing that will "help" with the problem is firstly talk to a professional endocrinologist never a General Practitioner GP's are not suitably trained in this area of medicine, they couldn't spot an adrenal crisis from a mile away! If you are trying to deal with this through your family doctor then you are just wasting your time in most cases unless you are very lucky so that route is a bit of a long shot IMOP Its like all things if I had a heart problem I would insist on being referred to a specialist cardiologist someone that specialises in that subject because its far too complex for your average GP First you need a full work up by a "good" endocrinologist and figure out exactly whats going on and that's what I am trying to do now as I am tired of trying to self medicate because as Ive gotten older I can no longer cope as well as I used to so I need to get this fixed! I have symptoms of Addisons & Cushing's so could be cortisol insensitivity I never had black gums or fat belly, I do have very small amount of belly fat that I cant shift plus some fatty tissue at the back of my neck, I sometimes have a rounded puffy face but not always comes and goes, also I have skinny legs, I have GERD, IBS, Candida flare ups, eczema, hypothyroidism, depression, brain fog, libido all over the place, I have sore sandy eyes, I have earwax issues blocking my ears all related so I'm told, also my memory sucks and I'm getting the heart pumping thing every time I climb the stairs or lift something heavyish! Sorry to hear so many people suffering and more importantly not getting treated properly it's tragic that lives are wasting away when I believe this is fixable! Take care you guys x