- Видео 25
- Просмотров 558
Me Warrior UK
Великобритания
Добавлен 7 апр 2024
Myalgic Encephalomyelitis (M.E.), sometimes, and wrongly in my opinion, called Chronic Fatigue Syndrome (CFS) gets a bad press here in the UK, actually, it gets barely any press at all which is part of the problem.
When it does pop up it's generally described in relation to women and, as such, support groups, where ever they are, get dominated by women many of whom just don't tolerate men there. I have faced a lot of abuse from women on such groups.
The last study done in the UK published early findings that it was mainly a neurological disease mainly experienced by women. So sickened was I by their way of putting the study together I withdrew my support. I think they only had a 15% sample who were mean so, it was always going to be a women only thing.
My aim is to tell you, my viewer, what life with ME is like, I mean, really like. Please subscribe if you enjoy my videos
When it does pop up it's generally described in relation to women and, as such, support groups, where ever they are, get dominated by women many of whom just don't tolerate men there. I have faced a lot of abuse from women on such groups.
The last study done in the UK published early findings that it was mainly a neurological disease mainly experienced by women. So sickened was I by their way of putting the study together I withdrew my support. I think they only had a 15% sample who were mean so, it was always going to be a women only thing.
My aim is to tell you, my viewer, what life with ME is like, I mean, really like. Please subscribe if you enjoy my videos
ME Warrior UK Video 24 2024 10 04 Another Step Down
Following on from a recent virus, probably covid, my ME has gotten considerably worse. I still have to wait and see if it will ever improve now but I am not ready to give up hope!
Просмотров: 39
Видео
ME Warrior UK Video 20 The Weather
Просмотров 262 месяца назад
I am well aware that on nice, warm (or hot) sunny days 'I' feel better. Let's not get carried away, that means I feel better than I do on my worst days, it's easier to keep going is all, there is no cure, sadly. There is something about knowing there is so much right and wonderful in the world that puts my personal suffering into perspective. If I could, when the time comes, slowly slip away in...
ME Warrior UK Video 23 2024 09 13 Lack of Understanding
Просмотров 92 месяца назад
If everyone understood ME/CFS then it would be easier or, sometimes even 'possible' to pace it properly but, either they do understand and are not prepared to adjust, they don't understand so remain ignorant or, they do understand but, in reality, they only think they do. Maybe, like so many, they think it's just another mental health problem they can ignore.
ME Warrior UK Video 22 2024 09 06 Understanding the conflict in me
Просмотров 262 месяца назад
This one tries to explain how I try to talk a tightrope in life controlling my emotions when I am experiencing extreme exhaustion.
ME Warrior UK Video 21 2024 09 06 Living on 10%
Просмотров 412 месяца назад
This one this morning was really difficult. But, I feel it's important to show you how this condition treats me, and others, just trying to do something simple
Walk your Path
Просмотров 152 месяца назад
Yes, ME/CFS is pants, it changes our outlook on life. Don't though let it take your dreams, just get realistic
ME Warrior UK Video 19
Просмотров 413 месяца назад
Light & Sound - Two things I find zap my energy and yet, maybe I can best describe it as they fast forward my time and cripple my energy.
Philippines - What happens when I stop thinking
Просмотров 773 месяца назад
The video was from early on during my vacation in June. To say I pushed myself is an understatement. There was an experience with a waterfall and, I knew then, "I am not going to recover from this any time soon, if at all" I am not adding any intro or outro, no like and subscribe button, I want you to get how basic I feel right now.
ME Warrior UK Video 17
Просмотров 125 месяцев назад
Weather or not we need it. Yes, I am British and inevitably a video was going to come up talking about the weather. This mentions it as I find, for me, it has a profound affect on my symptoms. Wet, cool or cold weather and I feel awful, hot and sunny, I feel sort of better. Not better just, not as bad. It is difficult to explain but, I doubt I am the only one
18 May 2024
Просмотров 145 месяцев назад
Today is, sort of, a good day, an exceptionally rare good day. Very often I do find the sun and heat does stimulate some additional energy on occasion, but not always.
pushing myself too much
Просмотров 86 месяцев назад
It's all well and good my posting videos of my out and about but, I suffer afterwards so I am here trying a sit down approach
Pushing myself
Просмотров 36 месяцев назад
I decided to spend some time with the grandkids, all 4 of them and they are 12 & 14 so, they pretty much do their own thing, I just have to make sure I come back with the same 4 I left with! It means pushing myself beyond my usual limits which means there will be consequences
Trying out some sound enhancement
Просмотров 86 месяцев назад
I have been trapped holding my phone and doing videos in a lot of pain because I had nothing to hold the phone with. I was also trapped by lower quality front facing camera. This is the first video just concentrating on sound. It's a little rough but, that's to be expected at this stage. It also takes a lot of effort to concentrate on learning new things.
A Crash
Просмотров 56 месяцев назад
It is all well and good doing lovely videos where I am talking like I am in control, on top of the world but, to get there ... Times like this are what others generally do not see
Just another Saturday ... not resting
Просмотров 76 месяцев назад
Just another Saturday ... not resting
Day out at Chessington (Being an idiot)
Просмотров 296 месяцев назад
Day out at Chessington (Being an idiot)
This condition has no concept of timing
Просмотров 707 месяцев назад
This condition has no concept of timing
Having to break a 30 minute drive three times
Просмотров 47 месяцев назад
Having to break a 30 minute drive three times