Paige
Paige
  • Видео 41
  • Просмотров 13 486
AS SOMEONE WITH CYSTIC FIBROSIS ITS TIME TO STAND UP FOR OURSELVES!
Welcome to my channel! My name is Paige, I’m a wife and a mama, & I live with Cystic Fibrosis. This is my journey about being thankful for living with an incurable illness.
I hope to be able to help those going through similar situations by sharing my story & also having an outlet for people to come & take few minutes to take a break from whatever is going on in that very moment.
Grab yourself a cup of coffee ☕️ and Enjoy!
Social Media:
-Instagram: Paige: @paigecf94
Business Inquires: paige_cf_94@yahoo.com
Remember to “Like”, “Subscribe”, & “Share” to be up to date with new videos!
Просмотров: 45

Видео

PREGNANT WITH CYSTIC FIBROSIS | NEW DR | 20 WEEK HIGH RISK UPDATE W/BABY BOY | PLACENTA PREVIA
Просмотров 1022 года назад
Welcome to my channel! My name is Paige, I’m 27 years old. I am a wife, married to my best friend of 16 years and am newly pregnant. I live with Cystic Fibrosis, and this is my journey about being thankful for living with an incurable illness. I hope to be able to help those going through similar situations by sharing my story & also having an outlet for people to come & take few minutes to tak...
Pregnancy Journey: PREGNANT WITH CYSTIC FIBROSIS | HIGH RISK | PLACENTA PREVIA | MIRACLE BABY
Просмотров 1132 года назад
Welcome to my channel! My name is Paige, I’m 27 years old. I am a wife, married to my best friend of 16 years and am newly pregnant. I live with Cystic Fibrosis, and this is my journey about being thankful for living with an incurable illness. I hope to be able to help those going through similar situations by sharing my story & also having an outlet for people to come & take few minutes to tak...
Cystic Fibrosis Trikafta Side Effects | Chat with Me-Sunday Sit-down Vlog: The Joys of Having CF
Просмотров 2973 года назад
Good Morning! Grab your coffee and let’s have a Sunday Chat. My personal side affects I have had from Trikafta. Welcome to my channel! My name is Paige, I’m 26 years old, I live with Cystic Fibrosis, and this is my journey about being thankful for living with an incurable illness. I hope to be able to help those going through similar situations by sharing my story & also having an outlet for pe...
Work From Home | Morning Routing | Living A Minimalist Life w/Cystic Fibrosis: The Joys of Having CF
Просмотров 463 года назад
Good Morning! Grab your coffee and Enjoy while I take you along in my quick work from home routine. There will be many more of these to come. Welcome to my channel! My name is Paige, I’m 26 years old, I live with Cystic Fibrosis, and this is my journey about being thankful for living with an incurable illness. I hope to be able to help those going through similar situations by sharing my story ...
Catch Up|Engaged during COVID: 11 Month Trikafta Update | Cystic Fibrosis: The Joys of Having CF
Просмотров 883 года назад
Welcome to my channel! My name is Paige, I’m 26 years old, I live with Cystic Fibrosis, and this is my journey about being thankful for living with an incurable illness. I hope to be able to help those going through similar situations by sharing my story & also having an outlet for people to come & take few minutes to take a break from whatever is going on in that very moment. There will also b...
Cystic Fibrosis Trikafta Journey-Quick Update: 9 months on Trikafta & ENGAGED!-The Joys of Having CF
Просмотров 1123 года назад
Welcome to my channel! My name is Paige, I’m 26 years old, I live with Cystic Fibrosis, and this is my journey about being thankful for living with an incurable illness. I hope to be able to help those going through similar situations by sharing my story & also having an outlet for people to come & take few minutes to take a break from whatever is going on in that very moment. There will also b...
Cystic Fibrosis Trikafta Journey: 6 Month Update -The Joys of Having CF
Просмотров 5634 года назад
Welcome to my channel! My name is Paige, I’m 25 years old, I live with Cystic Fibrosis, and this is my journey about being thankful for living with an incurable illness. I hope to be able to help those going through similar situations by sharing my story & also having an outlet for people to come & take few minutes to take a break from whatever is going on in that very moment. There will also b...
Cystic Fibrosis Trikafta Journey-I’m BACK!...Where I’ve been: The Joys of Having CF
Просмотров 494 года назад
Welcome to my channel! My name is Paige, I’m 25 years old, I live with Cystic Fibrosis, and this is my journey about being thankful for living with an incurable illness. I hope to be able to help those going through similar situations by sharing my story & also having an outlet for people to come & take few minutes to take a break from whatever is going on in that very moment. There will also b...
DONT WORRY ABOUT THE UNKNOWN | ANXIETY | DONT BE SO HARD ON YOURSELF: The Joys of Having CF
Просмотров 425 лет назад
Welcome to my channel! My name is Paige and I am a 24 year old who lives with Cystic Fibrosis, and this is my journey about being thankful for living with an incurable illness. I hope to be able to help those going through similar situations by sharing my story & also having an outlet for people to come & take few minutes to take a break from whatever is going on in that very moment. There will...
HOPE | SO EXCITING | BREAKTHROUGHS | WE’RE GETTING SO CLOSE-The Joys of Having CF
Просмотров 515 лет назад
Welcome to my channel! My name is Paige and I am a 24 year old who lives with Cystic Fibrosis, and this is my journey about being thankful for living with an incurable illness. I hope to be able to help those going through similar situations by sharing my story & also having an outlet for people to come & take few minutes to take a break from whatever is going on in that very moment. There will...
Travel | Time For A Reset | Take Time For Yourself-The Joys of Having CF
Просмотров 565 лет назад
Thank you for stopping by! Welcome to my channel! My name is Paige and I am a 24 year old who lives with Cystic Fibrosis, and this is my journey about being thankful for living with an incurable illness. I hope to be able to help those going through similar situations by sharing my story & also having an outlet for people to come & take few minutes to take a break from whatever is going on in t...
DR APPT UPDATE VLOG | KEEING A CLOSER EYE | TRAVEL | The Joys of Having CF
Просмотров 835 лет назад
Welcome to my channel! My name is Paige and I am a 24 year old who lives with Cystic Fibrosis, and this is my journey about being thankful for living with an incurable illness. I hope to be able to help those going through similar situations by sharing my story & also having an outlet for people to come & take few minutes to take a break from whatever is going on in that very moment. There will...
What’s in my Wallet? Tory Burch
Просмотров 2,2 тыс.5 лет назад
Welcome to my channel! My name is Paige and I am a 24 year old who lives with Cystic Fibrosis, and this is my journey about being thankful for living with an incurable illness. I hope to be able to help those going through similar situations by sharing my story & also having an outlet for people to come & take few minutes to take a break from whatever is going on in that very moment. There will...
CHAT WITH ME: NO REGRETS | 65 ROSES DAY: The Joys of Having CF
Просмотров 445 лет назад
Forgive my math...54 years! Welcome to my channel! My name is Paige and I am a 24 year old who lives with Cystic Fibrosis, and this is my journey about being thankful for living with an incurable illness. I hope to be able to help those going through similar situations by sharing my story & also having an outlet for people to come & take few minutes to take a break from whatever is going on in ...
LUXURY DESIGNER HAUL: SET GOALS-WORK HARD | Louis Vuitton Neverfull | Chanel | Tory Burch
Просмотров 1015 лет назад
LUXURY DESIGNER HAUL: SET GOALS-WORK HARD | Louis Vuitton Neverfull | Chanel | Tory Burch
Car Vlog: Coffee | Easter | Goal? | Less than 30 days till Louis Vuitton?-The Joys of Having CF
Просмотров 525 лет назад
Car Vlog: Coffee | Easter | Goal? | Less than 30 days till Louis Vuitton?-The Joys of Having CF
Late Night Vlog: Doctor Update-Good News | Happy Easter-The Joys of Having CF
Просмотров 345 лет назад
Late Night Vlog: Doctor Update-Good News | Happy Easter-The Joys of Having CF
DITL Vlog: MORNING ROUTINE | CF EDITION | COFFEE | UP AT 4:30-The Joys of Having CF
Просмотров 695 лет назад
DITL Vlog: MORNING ROUTINE | CF EDITION | COFFEE | UP AT 4:30-The Joys of Having CF
What’s in my Wallet: Kate Spade | Organization/Safety Tips | CF Edition-The Joys of Having CF
Просмотров 2,1 тыс.5 лет назад
What’s in my Wallet: Kate Spade | Organization/Safety Tips | CF Edition-The Joys of Having CF
Vlog: Health Update | Decline? | Future Hospital Stay | Port? | Anniversary-The Joys of Having CF
Просмотров 445 лет назад
Vlog: Health Update | Decline? | Future Hospital Stay | Port? | Anniversary-The Joys of Having CF
UNBOXING: Kate Spade Wallet & Mini Target Haul-The Joys of Having CF(Cystic Fibrosis)
Просмотров 1315 лет назад
UNBOXING: Kate Spade Wallet & Mini Target Haul-The Joys of Having CF(Cystic Fibrosis)
DITL Vlog: Hospital Day 4-6 | The Last Time | Hair Wash/Style Tip-The Joys of Having CF
Просмотров 655 лет назад
DITL Vlog: Hospital Day 4-6 | The Last Time | Hair Wash/Style Tip-The Joys of Having CF
DITL Vlog: Hospital Day 2-3 Update, Anniversary, PICC Line,Coffee: The Joys of Having CF
Просмотров 1335 лет назад
DITL Vlog: Hospital Day 2-3 Update, Anniversary, PICC Line,Coffee: The Joys of Having CF
DITL Vlog: Hospital Admit Day! The Joys of Having CF(Cystic Fibrosis)
Просмотров 925 лет назад
DITL Vlog: Hospital Admit Day! The Joys of Having CF(Cystic Fibrosis)
Car Vlog: DIDN’T GO AS PLANNED | HOSPITALIZATION | WHATS NEXT
Просмотров 705 лет назад
Car Vlog: DIDN’T GO AS PLANNED | HOSPITALIZATION | WHATS NEXT
CAR VLOG: Body Positivity-Battles-YOU MATTER-You’re BEAUTIFUL:The Joys of Having CF(Cystic Fibrosis)
Просмотров 715 лет назад
CAR VLOG: Body Positivity-Battles-YOU MATTER-You’re BEAUTIFUL:The Joys of Having CF(Cystic Fibrosis)
VLOG: DAILY MUST HAVES | HOSPITAL BAG | MAKEUP | HAIR | The Joys of Having CF (Cystic Fibrosis)
Просмотров 815 лет назад
VLOG: DAILY MUST HAVES | HOSPITAL BAG | MAKEUP | HAIR | The Joys of Having CF (Cystic Fibrosis)
VLOG: “Live & Adventure” | TRAVEL | 90210 | 2019 Goals: The Joys of Having CF(Cystic Fibrosis)
Просмотров 325 лет назад
VLOG: “Live & Adventure” | TRAVEL | 90210 | 2019 Goals: The Joys of Having CF(Cystic Fibrosis)
CAR VLOG | COFFEE BREAK | IN THE MOMENT | RAW | NEW PHASE | The Joys of Having CF(Cystic Fibrosis)
Просмотров 335 лет назад
CAR VLOG | COFFEE BREAK | IN THE MOMENT | RAW | NEW PHASE | The Joys of Having CF(Cystic Fibrosis)

Комментарии

  • @beverlyromeo6199
    @beverlyromeo6199 2 года назад

    Congratulations on the baby I can't wait to see him I am so happy for you what are the chances of him having cystic fibrosis my son has cystic fibrosis but he has lots of other things going on with him too so he'll never have children but we were told when he was little that he probably wouldn't be able to have any children and even if he did they would have cystic fibrosis and now I know they can sort through the embryos and put back in all the healthy embryos we were going to the UW up in Madison and we see doctor Braun and we just love him we like everybody up there though it's too bad you have to drive 3 hours away I absolutely hate driving we are in Illinois and we had to get our insurance company to okay us to go over state line it is not easy dealing with insurance companies and I don't think they should dictate to us where we should go I think it should be our choice and who we see they have to pay the bill no matter what so I don't see what difference it makes where you go because once you're done having the baby why should you be forced to go to see those doctors when you were okay with your doctor I just don't get these insurance companies I just think they have too much control and I don't think they should why I look forward to seeing your future it looks beautiful ❤🙏

    • @BoPaige
      @BoPaige 2 года назад

      Hello: Thank you for the sweet message. My husband got tested and is not a carrier of the CF gene, so our baby has a very very slim chance of having CF, but will be a carrier. Dr. Braun is who I had up until now and he is phenomenal. The best doctor I’ve ever had. The insurance issues are always ongoing unfortunately so we always have to make the best of it. I used to go out of state to MN for a longtime and then found Dr. Braun. I went to Madison from the time I was diagnosed for a long time. Then to MN. Then back to Madison. My new doctor I’m sure will be good, since they associate with Madison, but your CF team becomes family. Many prayers for your son, and I hope he is doing well. ♥️

  • @shehaniesenanayake6360
    @shehaniesenanayake6360 3 года назад

    Please let me know what the name is this wallet is?

    • @BoPaige
      @BoPaige 3 года назад

      It is the Putnam Drive Cyra Wallet :)

  • @jacobfaber9603
    @jacobfaber9603 3 года назад

    Love it!!!

  • @jacobfaber9603
    @jacobfaber9603 3 года назад

    Thanks for the update!

  • @melvyns1975
    @melvyns1975 4 года назад

    I'm so excited to start mine,should b getting it in a week or so, pft's at 40% atm im hoping they go over 50, I've got a bit of scarring on my lungs so not setting my goal too high,im really hoping i can get a good night's sleep without sitting up coughing all night. You look really well,keep fighting

    • @BoPaige
      @BoPaige 4 года назад

      Thank you for the comment. I wish you all the best on your journey. I always said I don’t need the best numbers, just feeling better makes all the difference. One of my goals was to sleep without being propped up and I can honestly say I do sleep better. I still sleeper propped(more because for me it’s always been more comfortable), but not as propped. And waking up with no coughing jags in the middle of the night is very nice. Please keep me posted on your journey. I am so happy for you♥️

  • @beverlyromeo6199
    @beverlyromeo6199 4 года назад

    Congratulations that's awesome I have a son that's 26 years old and he's been unchaste tricaster about the same amount of time and I see a huge difference in his life he's doing wonderful I'm so glad to hear that you're doing so good ❤🙏

    • @BoPaige
      @BoPaige 4 года назад

      That is such wonderful news. Thank you for sharing. I wish your son all the best. ♥️

    • @beverlyromeo6199
      @beverlyromeo6199 4 года назад

      @@BoPaige thank you so much I call it a miracle drug it's definitely life changing for so many people ❤❤

  • @samanthakhandaker464
    @samanthakhandaker464 4 года назад

    Hey! Is this bad made of real leather on the outside? :-)

  • @willlindley2526
    @willlindley2526 4 года назад

    Glad to hear your doing well!

    • @BoPaige
      @BoPaige 4 года назад

      Thank you!

  • @mikeburzynski6880
    @mikeburzynski6880 4 года назад

    We want to see Bo in vids!!

  • @shalaynejennings4463
    @shalaynejennings4463 4 года назад

    Could you tell me how this has held up over time? I’ve had my eye on this one!😍

    • @BoPaige
      @BoPaige 4 года назад

      Shalayne Jennings I love this wallet. It has been a staple. I’ve used it almost a full 10 months now and still looks brand new! I hope you enjoy :)

    • @shalaynejennings4463
      @shalaynejennings4463 4 года назад

      Paige: The Joys of Having CF thanks so much! Hope you’re well🤗

    • @shalaynejennings4463
      @shalaynejennings4463 4 года назад

      One more quick question if you don’t mind..have you noticed any tarnishing on the hardware? I have an MK wallet similar in design and the hardware tarnished pretty badly

    • @BoPaige
      @BoPaige 4 года назад

      Shalayne Jennings I have not noticed any tarnishing. I’ve had some that wear on the zippers but this one has held up very well.

    • @shalaynejennings4463
      @shalaynejennings4463 4 года назад

      Paige: The Joys of Having CF great to know, thanks again!

  • @sadiobayne1642
    @sadiobayne1642 4 года назад

    Clearest what's-in-my-wallet video ever. Thank you!

  • @VirtuousladieLadie40
    @VirtuousladieLadie40 4 года назад

    Love this video learned something new! Thanks love ♥️

  • @NormalLifeGaming
    @NormalLifeGaming 5 лет назад

    Vetex is a pain in the ass in the UK at the moment, can’t have new drugs

    • @BoPaige
      @BoPaige 5 лет назад

      My prayer is that everything will work out when the time comes. Insurance is always the biggest battle with new meds/especially the extremely expensive ones convincing them to cover. I hope things work out for you with meds also!

    • @NormalLifeGaming
      @NormalLifeGaming 5 лет назад

      Paige: The Joys of Having CF cheers the CF trust (our charity) is doing massive campaigns right now to get the live saving drugs

  • @missoutdoorinfluencer4764
    @missoutdoorinfluencer4764 5 лет назад

    I came from mindys RUclips. Please keep up the inspiration. Your loved all from IOWA

    • @BoPaige
      @BoPaige 5 лет назад

      Thank you so much! 💖

  • @ronniecastro1731
    @ronniecastro1731 5 лет назад

    I also found you through Mindy and Larry . New subscriber

  • @Imperfectlives9257
    @Imperfectlives9257 5 лет назад

    Found you through mindy and Larry’s RUclips channel 💕 as a growing youtuber I just had to come check yours out . Much love and I have many friends with CF I will be sharing your videos for sure to them

    • @BoPaige
      @BoPaige 5 лет назад

      Thank you so much! I appreciate that...it means a lot 💖

  • @jessicacarrillo2602
    @jessicacarrillo2602 5 лет назад

    Looking forward to watching your videos!

    • @BoPaige
      @BoPaige 5 лет назад

      Thank you ♥️

  • @haleyice5890
    @haleyice5890 5 лет назад

    I’m new here 💜💜

  • @arroyobaby38
    @arroyobaby38 5 лет назад

    Enjoying your channel. Please keep the videos coming!! 😊😊😊

  • @beicheng5686
    @beicheng5686 5 лет назад

    Which color is your bag? It’s so pretty!

    • @BoPaige
      @BoPaige 5 лет назад

      Bei Cheng it is Rococo Pink:)

  • @blisssurround
    @blisssurround 5 лет назад

    How is this bag holding up? Am interested to know about its wear and tear. Tks in advance for sharing.

    • @BoPaige
      @BoPaige 5 лет назад

      blisssurround it has held up very well! Very good investment:)

    • @blisssurround
      @blisssurround 5 лет назад

      Thank you

  • @MadamMMStyleIcon
    @MadamMMStyleIcon 5 лет назад

    I agree with you. Work hard so you’ll be able to achieve your dream. That’s a very classic Louis Vuitton piece - Neverfull tote. 𝙹𝚞𝚜𝚝 𝚜𝚞𝚋𝚋𝚎𝚍. 𝙷𝚘𝚙𝚎 𝚢𝚘𝚞'𝚕𝚕 𝚛𝚎𝚝𝚞𝚛𝚗 𝚝𝚑𝚎 𝚕𝚘𝚟𝚎 𝚊𝚜 𝚠𝚎𝚕𝚕 & 𝚜𝚞𝚋 𝚋𝚊𝚌𝚔.💖💖 - 𝓜.𝓜

  • @norwoodtiffany
    @norwoodtiffany 5 лет назад

    Congratulations and May God continue to bless you! Yes working hard and being able to enjoy your items is such an amazing feeling as you know what you put into that. 💪🏾👏🏾👏🏾

  • @alyssawssinging4039
    @alyssawssinging4039 5 лет назад

    Hey

  • @brooklynjohnson739
    @brooklynjohnson739 5 лет назад

    Check out Christy Nicole she is a youtuber with CF also! Here is the link to her latest video ruclips.net/video/Cw3AOY_cZmk/видео.html

  • @WeAreLegendsLLC
    @WeAreLegendsLLC 5 лет назад

    Really enjoyed this video! Can't wait to see what else you post keep up the good work ☺️

  • @mikeashexperience9602
    @mikeashexperience9602 5 лет назад

    Dope Video! Sending blessing your way, Keep inspiring!🎒🙌🏻

  • @AbsoluteMdot
    @AbsoluteMdot 5 лет назад

    What a beautiful bag! I absolutely love Kate Spade and Coach.

    • @BoPaige
      @BoPaige 5 лет назад

      Thank you; Kate Spade is definitely one of my top favorites.

  • @anastasgiselle
    @anastasgiselle 5 лет назад

    thanks for the video!

  • @MonerPutul
    @MonerPutul 5 лет назад

    Nice😊

  • @NormalLifeGaming
    @NormalLifeGaming 5 лет назад

    I just make fun of my CF to find the light side of life

  • @NormalLifeGaming
    @NormalLifeGaming 5 лет назад

    Great video Paige. Keep spreading awareness of CF

  • @NormalLifeGaming
    @NormalLifeGaming 5 лет назад

    Keep up the good work Paige

  • @NormalLifeGaming
    @NormalLifeGaming 5 лет назад

    Great to another CF warrior on RUclips keep spreading that awareness