- Видео 1
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Zoe Actively Autoimmune
Великобритания
Добавлен 14 фев 2018
Self Catheterising: What I use & my tips
I share my experience at self-catheterising and also share products I found helpful. I self-catheterised for about a year due to chronic urinary retention (due to EDS) before I ended up needing an indwelling catheter, and now have a supra pubic!
Please note all advice I share is from me and not to replace advice from health care professionals. However if you wish to ask any questions about self catheters please email me on activelyautoimmune@gmail.com or DM me on @activelyautoimmune
Products I mention:
- Hospital sick bowl/pee pot - amzn.to/2M7TCYf
- Mirror - amzn.to/2MEdKAl
- Another mirror I have - amzn.to/2T7HUNH
Please note all advice I share is from me and not to replace advice from health care professionals. However if you wish to ask any questions about self catheters please email me on activelyautoimmune@gmail.com or DM me on @activelyautoimmune
Products I mention:
- Hospital sick bowl/pee pot - amzn.to/2M7TCYf
- Mirror - amzn.to/2MEdKAl
- Another mirror I have - amzn.to/2T7HUNH
Просмотров: 26 877
Thank you so much ❤
Very helpful! Thank you for your hint. Your video was the easiest to understand!
Thank you for honest video. Yes I'm nervous about my trains. I hope I can dig deep for some stoic feelings
This video is awesome. You were clear and concise. Gave the perfect amount of info and delivered it tactfully. This helped me a lot as I’m at the beginning of my straight cath adventure. Thank you for sharing your tips!
I jus had a app Tuesday I couldn’t pee at all I woke up one day with urinary retention I have to self catherize and I can’t do it I’m on day 3 now I did finally find where to put it in at but I’m so scared to slide it in I’ve been having my ex bf help me and it’s becoming a lot bc I don’t want to depend on someone to help me pee especially him I’m trying to get my sister to learn to maybe help me but these have definitely been the hardest days I’ve ever had. Lots of crying I’m super scared I’m scared I’m not gonna be able to do it myself. This video and the comments on the video made me feel better knowing others felt the same way as I do and I’m not alone. It’s very uncomfortable and it does cause some pain I am praying to be healed I have physical therapy Monday I don’t think I can do this.
Very useful, thanks...at the moment just trying to find the needle in a haystack....working through my problems
Thanks for the video really helpful. I've had my self catheterization demonstration today after having an accident at work this year. Sorry to ask I'm genuine. All the places of support have closed for new year. I have been supplied with the male catheters with bags fitted. Did you ever bye pass when starting catheterization. I repeat its my first day feeling really down. I just was shown a short video and it bypassed at the hospital first time. I was told not to worry at the hospital.
I’m so miserable. I tried to learn how to self catheterize a few months ago and I couldn’t do it. My urethra is in a funky place that is not easy to get to. I tried the test surgery for the MedTronic Interstim Device. That didn’t work. Before that procedure I had a Foley catheter for 5 weeks. It wasn’t painful or uncomfortable, but I hated wearing a urine bag strapped to my leg. I ended up with no other choice but to have a Suprapubic catheter implanted. I hate that too. I’m in constant pain and have constant bladder spasms. I’m going to have to find someone that will come to my home and patiently teach me how to self catheterize. I’m scared, sad, & worried that the rest of my life with this problem is going to be pure misery.
So glad i found your video ive just been given the catheters this week it was a very short appointment a quick demo with a model told what not to drink and sent away with size 10 and 12 and a mirror thats it, well i can't do it this is painful I asked for the bags and was told there for men more than women but they would ask, I find it fiddly annoying and painful,you also need three hands for the mirror,cath and your bits ive tried sitting no success then standing over the bath painfully successful and lying down couldnt do
Thank you, this video was just what I needed to see 🙏🙏🙏
thankyou so much for this videoo
Iodine cleanser hurts. What else can i clean w prior to insertion?
Where did u get the mirror pls share the link. Thank you
Could younput this proudct in discriptuon please. The size i have. Hurt
Hi i wondered. If you manged to find out the mirrors you show in the viedo and thank you for the viedo 😊
Very helpful and informative video. Thank you for sharing your experience with others of us who have similar conditions. 😊
Excellent information, thank you
❤Thanks so much!
I have physical anxiety that makes me clench. Breathing helps somewhat. Would I just slowly keep trying to relax while inserting? Thanks for your video. This is a newer problem of mine so I think I’ll need to do this.
Thank you so much!! This has helped me back inches. Especially that's it's harder then people think. And it's not easy at first. Pretty much all you said is me!! ☹️🤦🏻♀️
Thankyou, very informative
I had a nurse show this to me today vs a video but came across yours and I'm glad I did. You did a great job. Don't let it define you! I had a temporary ileostomy bag at one time . I' will gladly do this vs the pain of a stay in Cath! OMG that was horrible! Stay strong!
Excellent thank you. Love your humor. I call these hardships, “one of life’s little treasures.” Thank you for your help.
Thank you so much for this video it I so helpful, my Urologist told me a year ago that I need to self catheterize due to urine retention and recurrent uti. I kept avoiding it as it is so overwhelming 😪. Now I really don't have a choice because no matter how many antibiotics they give me it doesn't help coz retention causes infections my only solution is to self catheterize. Iam scared to do it but i will do it. I feel not so alone after watching this. Thank you so much for sharing
How did you order the supplies ? You are so beautiful by the way!!
How has the supra pubic been working for you?
Wow - I have IC and don’t catheterize; however, when I go in for a bladder lavage, they would use a catheter to insert the medication. IT HURT LIKE HELL ! Anyone who has to self catheterize has my upmost respect and compassion.
Very helpful and lovely accent
thank you so much! I'm making some decisions about continence and may give these a try. it's so helpful to know what things look like. also I'm a wheelchair user, so it's particularly helpful that you use it sat down. really grateful to you for this video. they should put it in the NHS website 😊😊❤🎉
I will learn tomorrow how to do it and Im so nervous and its made me feel Im not alone so THANK YOU so f much youre an angel
Thanks so much for your video!! I just got told I have to start self cathing and am overwhelmed. I've only tried once so far with no success. It was super painful and frustrating. Thanks for your honesty and bravety in posting this video!!
Thank you for your video. I have trouble finding the right hole. I have tried several different mirrors and it’s a challenge. I haven’t tried sitting on the floor but I am going to give it a go. I think it will be much easier to have the mirror on the floor instead of holding it under my thigh on the toilet. what is the name of the mirror you showed first. The one with the light. I have sensory and autonomic neuropathy so I’m unable to feel my way. Lol. Sometimes I am unable to get my size 10 to go in. I’m wondering if I’m having spasms. I had urodynamic study that showed my muscles don’t work. I have to cath sometimes 7 times a day and you are right it’s no fun.
It has helped me thank you!
Thought your video was SUPER DOPER gr8! I’m truly impressed with your life experiences and giving us gr8 advice plus showing me your tips & tricks. Learned a lot; so thx: Nikki
Thank you for sharing this video. I appreciate the information!
I had back surgery and over time my condition has worsened and it takes me a very long time to try to empty my bladder on my own, but now I have nighttime incomitance and a cath has been suggested to me and it has freaked me out, but now I am giving in to it to make my life better. Thank you for your video I don't feel so alone now. You are a brave person to share such a personal journey. Thank You.
My mom’s issues began after a lower back surgery as well. She started having a very hard time getting the urine going right after surgery. The dr said it was the anesthesia but obviously not. Two Years later, here I am learning how to do it for her. They must damage some nerve or something. I’m going to look into it!
Thank you, Zoe, your knowledgeable narrative is very easy to listen to and extremely helpful. cheers mate.
Who cares about the type of supplies you use to self cath and your rambling opinions and dumb stories? We need to SEE how it's done!!
We want to know what mirror works, what bag she is using to carry it, what comes in the box, you name it, because some folks actually have this disability. The computer animated videos you watched before this one wasn't enough? Your medical fetish fix would be better handled on a site that caters to that. Cough up that cash and get a membership.
Yes, this topic is hard to find with someone showing. Self cathing is much much harder for a female...females are usually too damn shy to show this.. female here. Why its so taboo still? Big question in my book. Im a female and i need to see how how other quad females do it. Majority either have the supra pubic hole added to their body, or the mitroffonoff procedure with a hole added inside the belly button to help make self cathing easier. Im too scared to go this route, so i am determined to do it, and have maneged, but to do it continuously for a day....ohh boy. I know the frustration of looking for "actual" real life, non medical, processes being shown with an open heart for non perverted people in need. It's a pity...but this will occur more and more as time goes on. Also, because most females are not in touch with their bodies, and America at least is very poor in opening the lines of topics such as this still, most are instructed to leave their bits alone and have one of the procedures i mentioned above. My urologists always tell me to get a SPC ... supra pubic catheter procedure... Why i dont do it, is because this is "easy" at MY expense...they are not getting cut, i am. Infections may or may not get fewer. The leaking opportunity is still there. So, why would i?? The mitroffonoff uses intestinal tissue which produces lots of mucus...which would come through the tube when inserted in the bellybutton... and smell kinda bad.. it all sounds ..sad. options for females are not good or body friendly.. guys have a wonderful external catheter (penis)... which they have to cathetereize.. no issue with insertions... but us females... especially ones that have a belly, fat, non flexible limbs, AND hard to see urethras due to their personal anatomies or lots of external and internal vulvas...have it considerably harder. The spasms can be taken care of though, with drugs(meds) but the other... brilliant engineering minds will have to develop something for females too. I have an indwelling one, that my body is tiring of after 8 years... i know i would need to venture into self cathing mode... searching for best ways to ease this process for me. God it's hard.
ruclips.net/video/TiTEm2JlCpA/видео.html
Also, if these replies will ever be absorbed by engineers looking to help females cathetereize...then please remember to include a hands friendly detail, because of female quadriplegics that have a hard time gripping and poking, extending or bending fingers, due to tone and inability to move muscles normally. Include something called touch free sleeve onto our catheters please as well, sampled here ruclips.net/video/ymZi00eP5rs/видео.html Also, easy to open packages, that have finger holes in the two plastic covers at the top...
Thank you for this video Zoe, and for being so candid about your experience. Obviously this is only for females. I hope your experience has improved with time.
This has been such a big help to myself, am new to all this and still trying to get my head around it.
Thank you so much for this video!
Thank you so much for making a video about this. It is so good to see a real persons opinion on the subject rather than medical videos. Makes me feel not so alone. Especially being young like myself. Hope your indwelling is going ok. I'm still self catherterising with lowfric and have been finding it hard very painful as I have chronic pain but have been persisting, sometimes not being able to at all with bleeding and my body literally rejecting it and sometimes my urethra grips for dear life in it's way out. But today I did it over the toilet without looking. I never thought I'd achieve that, I'm so proud of myself. Also been having ptns which may have help a tiny bit but not sure. Xx