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For someone who has only struggled with this for 6 months (just seen a specialist last week ) it’s the worst pain I’ve ever felt pain in jaw cheeks head all left side of my face I’m on oxcarbazepine the carbazepine didn’t work well with other medication I’m on for Ménière’s disease for some reason but knowing there’s light at the end of the tunnel is helping massively glad your feeling better and fingers crossed it stays that way for you

How did your gamma knife surgery work out?? still pain free??

All flight attendants and pilots kicked off disabled people saying that they dont feel comfortable with us disabled people and we get kicked off the plane. Saying we are dangerous people. Like autism and sezuires that controlled by medication. Or physical condition as well.

I had many of the symptoms also the TMG, ouch! I slowly recovered with detoxification. I did a video on the links between MS and environmental toxins. Please take a look.

hello can you help me

Hi Marco, I think you are definitely on to something hear I would really appreciate it if you would give me more information about your theory? I’m going for the treatment soon and I’m not sure if I should do this before during or after treatment? If there is a way to get in touch please let me know Kind regards Leah😊

I had gammaknife 3 yrs ago suffered with tn for 35 yrs I was ready I did not get 😊 Lana Cain when they screwed the cage on hurt really bad the pressure from screwing the cage on,,,, but it does ease off the pressure this was done at Toronto Western hospital. The doctors neurosurgeons don’t expect any bedside manner. They were not very nice. They don’t tell you what they’re gonna do. They just start doing it anyway it took eight months before the gambit knife worked. I woke up one day the pain was gone, it’s been three years and still no pain. I would definitely do it again when the pain comes back. I’m on Lyra Carmine clonidine, amitriptyline, lorazepam baclofen, and I keep taking the drugs as I’m so afraid to terrible pain. Will come back minus from MS which I was diagnosed when I was 30 I’m now 65😂

True warrior- May God bless you

When I started having the pain I thought I had something like bone cancer in my face, the pain was so severe that I thought I was going to blank out. I went to the doctor and was given an epilepsy drug and that has stopped it, but the tablet is horrible.

Thank you for sharing , I’m due to go for this treatment in a few days

What positive advice Michael!! Thank You!! Keep Sharing!!!

Thanks for sharing Michael! I also hit my 20 year mark this year.

PPMS here for 30 years, only diagnosed 7 years ago. Other then vitamin D haven’t taken any drugs. They never thought my condition was bad enough, still walking but getting really hard. Going for 1st does of Octrevus this week. Little nervous but if it slows this bastard disease down I’ll be happy. Nobody around understands the weight we carry. So many times friends say are you better yet like we have the flue or something. I’m 67 and most of my friends have some sort of health issue. Couple are dealing with Cancer so things could be worse. Anyway hang in there. Know you’re not alone in the battle. 🙏👍

Keep staying strong brother ! I was diagnosed at 49 and went from a normal life to no walking by 50. Im on a great diet and work out daily. Im happening to ms not it to me 💪 Good video my friend 👍

I had a stroke n was so nervous to fly.

just subscribed when I saw the title of this episode as I am 18 years in to see what we have in common. I echo the concept of "everyone has something". We all have our challenges although for some they have a hangnail they are dealing with and we have MS ;-0 Last year I went to Scotland with a friend, her daughter and another family. At the end my friend confessed she really hadn't realized how much MS affected me and all the accommodations I needed. I am an EDSS 6 so can walk with a stick but can't stand around or run back and forth between restaurants to compare menus, wander about shopping, etc. I preferred the hop-on hop-off busses vs wandering as they did. I had a great time but was troubled by her remark. I guess those with full mobility don't really realize the challenges we face. She booked the hotels and none of them had lifts (elevators) as many don't in Scotland but she didn't think to book on the 1st floor- so someone had to take my carry-on up the stairs for me. I could handle my bag and purse and myself, etc. But- she was surprised when I said I also had to deal with their "somethings". She had motion sickness so we had to do things a certain way. She is also lactose intolerant so couldn't just pick the closest cafe. Her friend was overcoming a B12 deficiency so had her own challenges and was afraid of going over bridges, etc. We all have our "things". In the end they just thought my "thing" needed more accommodation than all of theirs. I guess you figure out your friends that way...

59 ppms. 9 months post hsct puebla hsct still worsening it seems. spirits a re good tho. writing music. glad our kids are not young

I hope someone else can relate with what I'm about to say. I can't afford insurance to go get checked. I'm going someone has advice for relief. I feel a strange numbness before the pain starts. The numbness feels like novacaine. I feel it behind my right front teeth and it spreads to my right jaw and up around my right eye and right cheek. Very rarely it's only the numbness, usually it turns into extreme pain. At first it was only once in a while, now it's everyday. The pain i feel is intense, like a 10/10 pain scale for the first 2 or so minutes and then comes down to like a 6 out of 10 for another 5 to 10 mins. If I right away get an ice pack and place it on it, it seems to shorten the duration, sometimes. The numbness around my right eye never truly goes away, it almost feels swollen but it doesn't look it. I'm hoping to get a better job soon that offers insurance. Until then I'm trying gaba (natural medicine) but I didn't know if it's helping, really.

Did it work ??

Did it work ?

Did you get better ?

thank you for sharing these encouraging words ❤

I have collateral a mass too. So I hope you get to feel better and me. Too. On your contend, that makes me happy. Somebody else got the same disease. John will

Thanks for the update. We're in year 3 of our daughters' treatment (Ocrevus) and your perspective is greatly appreciated.

Hi Michael. Thanks for the update. So glad you have found was to adapt, be resilient, and become creative to overcome and keep doing the best you can. Keep working on the consistency! They will become habits.

Hi Michael, I'm one of the GKnife success stories. I had severe Typical TN in 2009 and tried all the drug cocktails, herbal remedies, acupuncture/pressure etc etc....nothing worked. After 6 months I was referred to a neurosurgeon in San Antonio TX, and my 1st GKNife did NOT work. Had to wait a year for a stronger more targeted dose, and after 3 months I woke one morning to absolutely no pain! Weaned myself off all meds within a few days....and here I am now at age 79 in 2024, never having a pain or med since. I do have facial numbness on the L side that kicked in about a month after the pain stopped, but it's not noticeable, all facial muscles work fine for laughing, talking, eating etc., and there's never any pain. My actual GKnife sounds more pleasant than yours, as they gave me a Valium on admission for my nerves, MRIs have never bothered me, and my headframe screws did not pierce the skin, or leave any marks afterwards. A friend drove me to lunch and then home, and I went to work the next day. The quality of life came roaring back, and other than a mild case of Covid, I've never been sick since 2009! Do hope you do a post doc, so we can see how you've progressed. Good wishes to you.

What an amazing human being you are. Total inspiration ❤️

I have a lot of m. Yes. And I just put up with it, and I just enjoyed life and please, very for me. Thank you. John will cox 😊

Thanks for the information

I am there now ..4 weeks til O ...I feel excessively drained ...drained...frustrated... irritable

Try the following technique for instant trigeminal neuralgia pain relief: 1. Isolate where the pain is coming from 2. Locate the mirror image on the opposite side of the body 3. Massage the area on the opposite side of the body (you should notice tenderness) 4. Check the bad side to determine changes to your pain level 5. Continue until your pain is manageable ruclips.net/video/b6_5ca6jCDI/видео.html

Wow I am scared

I’m on 1200mg a day. I feel I’m getting close to doing surgery.

My wife had her first ocrevus infusion today she's come home with worse symptoms and more scanning of speech and like a bursitis pain in both hips extremely painful for her she's only had ms for 5mths doesn't seem to get better she's normally independent but becoming less independent through lack of mobility speech problems and involuntary head movements lirca never worked praying the ocrevus infusion works 😢

I have A-typical TN

Thanks! Does one tip the folks that push you in the wheelchair?

Good to hear frpm you again.....keep strong....i myself have MS which impacts my mobility.....i am currently looking into the HAL rehab to improve my walking...have you heard about the robot based physio?

So happens a burgeoning protocol of treatment for MS and Neurovascular Disease CCSVI Venous Angioplasty to fix mechanical Vascular issue and stem cell therapy to repair neurological damage caused by leaky narrow malfotmed Veins! #VagusNerve Keep in Mind! If you hadn't noticed apparently an Individual undertaking Venous Angioplasty treating CCSVI can require up to 3-4 treatments to notice any impact. Even if a miraculous outcome is noted Symptoms can return and an additional procedure may be a benefit! So happens a burgeoning protocol of treatment for MS and Neurovascular Disease CCSVI Venous Angioplasty to fix mechanical Vascular issue and stem cell therapy to repair neurological damage caused by leaky narrow malfotmed Veins! #VagusNerve

no worries, thank you for the update. Sometimes its heartening to know even what's going on in your life when things aren't all sunshine and roses. I feel like I could use a cruise right about now

If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely! Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #CCSVI Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!! Positively So called Multiple Sclerosis (M$) is/HAS been the Biggest at best one of BIGGEST scam of a sham autoimmune theory con jobs to have ever existed!!!

If you notice exhausting SymptoMS help facilitate Neurovascular Disease MS Research If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. Eliminating the cause of SymptoMS SO CALLED called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely! Diagnosis so called Multiple Sclerosis every Season change can see the introduction of new SymptoMS and possible heightening existing! #CCSVI Everything is great with so called Multiple Sclerosis depending what side of the Track you are on 10+ years fighting for the best possiblity eliminating the cause of the Symptoms! #CCSVI If only the availability Medical Scientific Clinical Trial Research! If you noticed..... Matthew - CCSVI and his Liberation Treatment Matthew FB Group: MultipleStenosisSociety t.co/PkskR16OXN Dr. Bill Code 2011 FB Group: MultipleStenosisSociety t.co/gWnhQ1AC6k Italy where the Medical intervention originated with Dr. Paolo Zamboni Professor of Vascular Surgery from Ferrara University Italy. Venous Angioplasty treating CCSVI liberates or frees blood flow alleviating often easing or eliminating Symptoms of Neurovascular Diseases. Iron is an essential element for blood production. About 70 percent of your body's iron is found in the red blood cells of your blood called hemoglobin and in muscle cells called myoglobin. Hemoglobin is essential for... FB Group: MultipleStenosisSociety t.co/JklA0Ve1q1 As much inflammation from Iron accumulation is a significant causative factor bringing free radicals response in the pathology of Multiple Sclerosis and Neurovascular Diseases in the recognized Medical condition CCSVI disease process! #CCSVI Venous Hypertension >microbleedings >IRON >inflammation >free radicals >neurodegeneration #multiplesclerosis M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration Keep in mind! Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI Cerebral micro-bleedings (CMBs) are small chronic brain hemorrhages that have many side effects. For example, CMBs can result in long-term disability, neurologic dysfunction, cognitive impairment and side effects from other medications May 17, 2019 t.co/rhmrQ9D4uG › full Many feel and KNOW so called Multiple Sclerosis is a vascular mechanical issue that should NOT be Solely Treated by Neurologists! #CCSVI #BloodFlowMatters Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY afflictionutoimmune vs CCSVI Treatment By Berukoff FB Group: MultipleStenosisSociety m.facebook.com/groups/493935520792751/perm MS Many feel and KNOW so called Multiple Sclerosis is a vascular mechanical issue that should NOT be Solely Treated by Neurologists! #CCSVI #BloodFlowMatters Important Debate Liberation MS Society Part 2 by Berukoff FB Group: MultipleStenosisSociety m.facebook.com/groups/493935520792751/permalink/1920670818119207/ Help facilitate NeurovascularDisease Research Collaboration! When Recognized Medical Condition CCSVI is Treated w/Venous Angioplasty MS Symptoms often Ease/Disappear!! Kathleen 2 years Angioversary t.co/VF3QFyuRDJ CCSVI Treatment vs MS Autoimmune t.co/VTtS6nckM1

Good to see you!❤❤

thank you

I was just wondering how you were doing, good to see you.

Hopefully new remyelination drugs will heal the lesions on our trigeminal nerves.

Thank you, these tips help very much.

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Maybe MSC therapy, might be the answer.

I have MS and trigeminal N. I am going for a consultation with a neurosurgeon to see if gamma knife is a good option for me. I am also taking gabapentin. Good to see the process!

Thank you, for doing this video!