The Patients Association
The Patients Association
  • Видео 70
  • Просмотров 81 033
Knowing your rights and accessing support as a patient
As a patient living with cancer or a blood disorder, especially if you are from an underserved community, you are not only dealing with your medical condition, but you may also face non-medical issues, such as worrying about everyday essentials like healthy food, household bills or housing. All these things can have a negative impact on your health.
Our report, Improving health equity for patients living with cancer and/or blood disorders, explores how social and economic factors affect the health of people living with blood disorders and cancer.
To support you, we've developed a fact sheet and an animation based on insights and ideas from patients living with cancer or a blood disorder an...
Просмотров: 155

Видео

The importance of listening in medical care - a Fireside chat with Dr Rageshri Dhairyawan
Просмотров 108День назад
"Doctors aren't listening, and it is making us unwell". In her book, 'Unheard: The Medical Practice of Silencing', Dr Rageshri Dhairyawan takes us on a journey to show how not listening to patients has been ingrained in medicine since its inception. Join our Chief Executive Rachel Power, in a fireside chat with Dr Rageshri Dhairyawan, as they discuss the importance of engaged listening and its ...
How to get the most out of your appointment | Patients Association
Просмотров 196День назад
We’ve launched a new animation and guide to help you feel more prepared and confident when managing your care. They cover what to do before, during, and after appointments, with tips on communicating with healthcare professionals, sharing important information, and avoiding issues. These resources were co-designed with patients from diverse backgrounds to ensure they’re practical and useful.
Empowered patients: accessing help and healthcare rights | The Patients Association
Просмотров 14День назад
Living with cancer or a blood disorder can be challenging-not just medically, but in many other aspects of life. If you're from an underserved community, you may also face additional concerns, such as affording healthy food, managing household bills, or securing stable housing. These everyday challenges can have a direct impact on your health and wellbeing. This video is designed for all patien...
Patients Association, CQC and Healthwatch England: Share for Better Care Webinar
Просмотров 2353 месяца назад
Patients' experiences can provide vital lessons for the health and care sector, helping it understand what is working and what needs improvement. However, only some know how to speak up about their care, and health and care services could be better at telling people how they can provide feedback and why this matters. In this webinar, the Patients Association, Care Quality Commission and Healthw...
Palantir's Foundry platform guide for patients
Просмотров 1 тыс.4 месяца назад
Palantir's Foundry platform guide for patients
The role of data in joining services around patients
Просмотров 1715 месяцев назад
In the final webinar for Patient Partnership Week, we looked at the role of data in improving patients' experience of care. We also discussed the need for the NHS to be transparent about how it uses patient data, especially in terms of who it shares data with and how it secures patient records. On the panel were Rebecca Llewellyn, Federated Data Platform Programme Delivery Director at NHS Engla...
Effective communication strategies for informed patients
Просмотров 2535 месяцев назад
Letters arriving after an appointment, not knowing who to call to find out where you are on a waiting list, and simply feeling anxious because you're unclear about your care all these topics were discussed at the Effective communication strategies for informed patients webinar during Patient Partnership Week. Chaired by our Chief Executive Rachel Power, the panel were: Miriam Levin Director of ...
Empowering patients as equal partners in care
Просмотров 1795 месяцев назад
Chaired by our Chief Executive Rachel Power, in this Patient Partnership Week webinar we discussed epistemic injustice. Epistemic injustice is a philosophical concept that describes how we can be discriminated against when our credibility is unfairly reduced when we speak. This form of injustice is a real concern for the Patients Association because its consequences in healthcare are negative a...
Barriers to care faced by those with cancer and blood disorders
Просмотров 3505 месяцев назад
In this Patient Partnership Week webinar we heard from patient Ram Paul, John James OBE Chief Executive at the Sickle Cell Society, and Alfie Bailey-Bearfield, Head of Health Improvement & Influencing at Pancreatic Cancer UK. They reflected on the experiences of many patients who experiences barriers to care because of where they live or the communities they belong to, and what can be done to b...
In conversation with the Patient Safety Commissioner 2024
Просмотров 1875 месяцев назад
We were delighted to welcome back Dr Henrietta Hughes, Patient Safety Commissioner, to Patient Partnership Week. In this wide-ranging conversation, Dr Hughes discusses with our Chief Executive Rachel Power the work on Martha's Rule, how important it is that health professionals listen to patients, and her consultation on Principles of Better Patient Safety. Our thanks to Novartis, Eli Lilly and...
Implementing shared decision making in practice
Просмотров 6025 месяцев назад
Beginning the Patients Association's third Patient Partnership Week, we were delighted to welcome patient and member Jess Plant, brain surgeon and Chief Medical Officer at University Hospital Southampton Mr Paul Grundy, and Patients Association Trustee Prof Alf Collins, formerly NHS England’s National Clinical Director for personalised care to discuss the benefits to patients and the health sys...
The six principles of patient partnership
Просмотров 1,7 тыс.5 месяцев назад
The six principles of patient partnership capture the key elements needed to ensure health and care systems put patients at the centre of everything they do. When put into practice, they help improve patient safety, offer cost-effective services, and ensure services meet patients’ needs, and, therefore, achieve better results for patients. This short animation explains why they're so important.
What is shared decision making?
Просмотров 1,4 тыс.5 месяцев назад
Shared decision making is when a patient and healthcare professionals work together to make choices about your medical treatment, the medicines you take and any operations you have. In this short animation we explain what shared decision making is and how you can make it happen when you're seeing your doctor or other health professional. The animation supports written information we have one ou...
Active involvement in shared decision making
Просмотров 3655 месяцев назад
Chair of the Board of Trustees of the Patients Association, Julie Thallon, and Trustee Professor Alf Collins, former National Clinical Director for personalised care at NHS England, discuss shared decision making what it is, how patients can practice it, and answer questions from the audience.
Patients Association Annual General Meeting 2024
Просмотров 50 тыс.5 месяцев назад
Patients Association Annual General Meeting 2024
SILVER animated social graphic
Просмотров 126 месяцев назад
SILVER animated social graphic
Untold Patient Stories
Просмотров 3618 месяцев назад
Untold Patient Stories
Untold Patients Stories
Просмотров 2688 месяцев назад
Untold Patients Stories
Understanding changes in primary care: digital access
Просмотров 24910 месяцев назад
Understanding changes in primary care: digital access
Empowering Patient Participation Groups in Hertfordshire and West Essext
Просмотров 71010 месяцев назад
Empowering Patient Participation Groups in Hertfordshire and West Essext
Expanding access and improving experiences; the future of diagnostic testing for patients
Просмотров 23311 месяцев назад
Expanding access and improving experiences; the future of diagnostic testing for patients
Understanding the changes in primary care: the new Pharmacy First service
Просмотров 30111 месяцев назад
Understanding the changes in primary care: the new Pharmacy First service
Ensuring patient and family concerns are central to recognition and management of acute illness
Просмотров 253Год назад
Ensuring patient and family concerns are central to recognition and management of acute illness
Understanding changes in primary care your wider general practice team
Просмотров 173Год назад
Understanding changes in primary care your wider general practice team
Changes in primary care, understanding the role of the reception team
Просмотров 371Год назад
Changes in primary care, understanding the role of the reception team
What is next of kin?
Просмотров 355Год назад
What is next of kin?
Patients Association & BBK complaints webinar
Просмотров 467Год назад
Patients Association & BBK complaints webinar
Spotlight on patient partnership in elective surgery
Просмотров 100Год назад
Spotlight on patient partnership in elective surgery
Social prescribing: what's in it for patients?
Просмотров 278Год назад
Social prescribing: what's in it for patients?