Meniere's Disease Warrior !!
Meniere's Disease Warrior !!
  • Видео 375
  • Просмотров 81 521
Try to be kind
Yes I know we always seemed to see the same questions. Usually they are from different new people. That doesn't mean us who have been dealing with Meniere's need to snap at them. Remember we were new once too. Just be kind. If you can't scroll by.
Also groups are not made for one person. They are for everybody. Some people it's all about them. Believe me it's not !!
Просмотров: 32

Видео

Loving It !!
Просмотров 389 часов назад
That's right loving these new hearing aids. OMG the sounds I am hearing. Able to talk with people without saying what a 100 times. It's just so amazing !!
Common Questions
Просмотров 8111 часов назад
We always see the same questions. Usually the are from new people which cool. So I thought I would make vide answering some of the common questions asked.
Don't Diagnose Others !!
Просмотров 5713 часов назад
Seriously we should never tell someone what they have based on them describing symptoms. I saw comment where literally someone diagnosed someone else. Not a good idea at all. Always tell them to talk to there doctor. You could be causing more harm then good.
Acting with Kindness
Просмотров 3718 часов назад
We all want others out side of the Meniere's and vestibular community to try to understand and show kindness and compassion towards us. But what about us ? In groups sometimes we don't show any kindness or compassion with people with that have the same condition. We attack them because they don't think the way we do. I'm not saying everyone does this but there are a few. Also Anonymous posts th...
Wish I did this 5 years ago
Просмотров 13821 час назад
So many people have been asking me how I like my new hearing aids. They are Oticon cross. I know it's early. Only 4 days but I love them. All the sound I am hearing again. Tinnitus is better. Hearing my wife and grandkids is the best !!
I got my Hearing Aids
Просмотров 151День назад
Yesterday I got my new hearing aids and wow what a difference !! I'm so happy to hear so much better and to hear on my left side again as well. Sounds I haven't heard in years I now can hear. While it will take time to get use to them it's probably the best thing I have done in a few years.
Terrible Tuesday
Просмотров 115День назад
What a day !! Vestibular Migraine with pain, aura, vertigo and loud tinnitus. Probably a mix of Meniere's and Vestibular Migraine. It was such a long day. Plus running around with a 4 yrs old grandson. I'm to old for that crap. Only kidding !! I love my grand kids !! But somedays no matter what it is you have push through. Tomorrow will be better. I get me hearing aids !! YAY !!
You got to try !!
Просмотров 10814 дней назад
I know all to well about giving up !! Yes I have been there myself many times. Not being able to live life the way you use to. But it doesn't mean stop living. I can't do a lot of what I use to but I keep going. You never know when a breakthrough will happen and help use all.
Lack of Sleep
Просмотров 7914 дней назад
Sleep !! It is so important for us as we get brain tired very fast. The last two days because of very little sleep have been horrible. Vertigo, Tinnitus ,off balance You name it I had it the last few days. Try to rest and sleep when you can.
People have lives
Просмотров 9014 дней назад
Yes people have lives !! Last week a made a video about a person who because I didn't respond the they wanted or fast enough for them decided to trash me. Well they did it to one of my vestibular friends yesterday. Since I made the video last week I heard they have done it to other people as well. We all have lives besides dealing with Meniere's. Demanding attention when you want it isn't okay ...
Can screens trigger an attack
Просмотров 8821 день назад
Yes screens can trigger attacks. It's happened to me !! I talk about some ways they may help dealing with screens
Compassion
Просмотров 6321 день назад
Compassion it's something we all need and should show as well as caring and love. Surprisingly there are a few that don't understand it. Even some you want everyone to be compassionate to them but don't show to anyone else. Remember it only takes one word to tear someone down.
That's why !!
Просмотров 8421 день назад
Why ?? I know I post a lot of video's in groups. But there is a reason why. Some people may not have seen it or it might be helping someone on that day. It's what it's all about. Helping others !!
Fight or Flight
Просмотров 102Месяц назад
We have all heard of Fight or Flight. Even been in situation where it was fight or flight. Yesterday I was in a that very position of Fight or Flight. In the video I describe what lead up to and what happened !! Lets just say I fought !!
Not everything works for everyone !!
Просмотров 76Месяц назад
Not everything works for everyone !!
Not a good idea to diagnosing yourself
Просмотров 58Месяц назад
Not a good idea to diagnosing yourself
Thinking outside the box
Просмотров 50Месяц назад
Thinking outside the box
Don't Fall For It
Просмотров 64Месяц назад
Don't Fall For It
Let it in & Let it out
Просмотров 51Месяц назад
Let it in & Let it out
Not always going to happen
Просмотров 90Месяц назад
Not always going to happen
Hard work pays off
Просмотров 112Месяц назад
Hard work pays off
Keep Helping each other
Просмотров 43Месяц назад
Keep Helping each other
Ozempic
Просмотров 147Месяц назад
Ozempic
I'm only human
Просмотров 102Месяц назад
I'm only human
Handicap Placard
Просмотров 61Месяц назад
Handicap Placard
The First Year
Просмотров 99Месяц назад
The First Year
Thinking & Obsessing
Просмотров 85Месяц назад
Thinking & Obsessing
Stress can be a trigger
Просмотров 91Месяц назад
Stress can be a trigger
Live the way you want
Просмотров 107Месяц назад
Live the way you want

Комментарии

  • @melissakepley6913
    @melissakepley6913 День назад

    The uptick of new patients is unbelievable, but we understand. The Virus is a real game changer in the past 4 years - tons of new cases. On a bright note, early happy birthday!!!

  • @JoyandGlowWellness
    @JoyandGlowWellness День назад

    Love it!! 🥰 Happy about your hearing 🩷

  • @cloud9sg
    @cloud9sg 2 дня назад

    I discovered it seemed the ease up during colds is that the runny nose actually decongested the sinuses. I once tried cinnarizine (first gen antihistamine) for my nausea and dizziness, it worked but i was so drowsy and then after the med wore off the symptoms came back even worse.

  • @celestelenoir8468
    @celestelenoir8468 3 дня назад

    Thank you for this. I was diagnosed a month ago and recently joined the group. Every time I open my FB app, there's a scary post from the group and I've been terrified of what my future holds. Your calm demeanor and matter-of-fact delivery have made me feel a little better. I'll definitely check out more of your videos.

  • @JulietMartin-jb8gk
    @JulietMartin-jb8gk 3 дня назад

    So true. You have no idea communicating on line of what that person’s health history is. A lot of us have more than one chronic illness so you could do harm. Their doctor will look at the whole picture. A lot of meds and supplements people suggest to use I can’t but you must know if you want to try anything….run it by your doctor first.

  • @elisehanslirod
    @elisehanslirod 4 дня назад

    In reference to my medical condition, I would like to bring to your attention that I was initially misdiagnosed by our company doctor, who is a ENT. Instead of recognizing Meniere's disease, I was simply diagnosed with dizziness, which unfortunately led to the loss of my job. Despite having three separate diagnoses from reputable ENT and neurology specialists confirming Meniere's disease, the company doctor's oversight has had significant consequences for my professional standing.

  • @inthedaysstillleft1257
    @inthedaysstillleft1257 4 дня назад

    Cute dogs! Life is better with dogs:)

  • @inthedaysstillleft1257
    @inthedaysstillleft1257 4 дня назад

    Thank you for sharing this! I hope you feel better soon! I find that loss of sleep is a flare factor for Meniere's.

  • @rianasteyn5218
    @rianasteyn5218 4 дня назад

    You know what I'm done wirh explain what I'm going through to people. I just live my life and if they really care they would understand. ❤

  • @rianasteyn5218
    @rianasteyn5218 4 дня назад

    I drink my decafe coffee and I enjoy that.

  • @friend4437
    @friend4437 5 дней назад

    Dave they think you are crazy and drs are quick to prescribe ssri

  • @CornCobb07
    @CornCobb07 5 дней назад

    What brand & type of hearing aids? Cross or Bicross?

  • @ritasmith5415
    @ritasmith5415 6 дней назад

    That’s why it’s important to show the bad days as well as the good. Sometimes climbing Mt. Everest might put you in bed for a week.

  • @rianasteyn5218
    @rianasteyn5218 6 дней назад

    I'm really glad for you ❤

  • @judibeth6483
    @judibeth6483 7 дней назад

    Every time you said “Whoaaaa” I had a big smile on my face 😊

  • @JulietMartin-jb8gk
    @JulietMartin-jb8gk 7 дней назад

    Thanks Dave. You give me hope❤

  • @alexrc7333
    @alexrc7333 7 дней назад

    In good time! It'll be for the best, cheers!

  • @friend4437
    @friend4437 7 дней назад

    Any issues with your neck

  • @PeachPlastic
    @PeachPlastic 8 дней назад

    I had no idea they made hearing aids that double as earphones for things like digital media! Do you get any funny interferences with your tinnitus (if you're experiencing any)? And can you wear them at a concert, too? I remember how inconvenient the ones my grandma had were, and then I became really discouraged when I read that, allegedly, you were supposed to start training your brain to adjust to hearing aids when the hearing loss was still in its beginning stage. They basically said that you couldn't regain long lost frequencies. I guess those were either false news, or research and technology have improved a lot since! These are exciting news and I'm so happy for you; I'll look into it! One request I have for you would be to please put product names, as well as terminology like the name of the procedure you're going to get, into the info box? I couldn't catch some of them and it's important to get the spelling right if you want to look things up. :)

    • @menieresdiseasewarrior5949
      @menieresdiseasewarrior5949 8 дней назад

      I have only had them a few days. but I notice my tinnitus as really calmed down a lot

  • @PeachPlastic
    @PeachPlastic 8 дней назад

    I can't believe this channel exists. I was diagnosed in the early 2000's as a rare (very young) case. There was nothing about it on the internet! And if there was, it was like a one-paragraph encyclopedia entry with no real information. No real people were talking about the experience. Menière's runs rampant on my maternal grandmother's side of the family tree; it stole a decade of my life by way of extreme vertigo attacks, and by being used as a guinea pig for all sorts of contemporary medication. The long-term effects continue to affect me. Sigh.

    • @menieresdiseasewarrior5949
      @menieresdiseasewarrior5949 8 дней назад

      @@PeachPlastic I’m happy you found my channel. In 2017 not a lot of people were talking about Meniere’s either.

  • @inthedaysstillleft1257
    @inthedaysstillleft1257 9 дней назад

    Just completed post-labyrinthectomy vestibular therapy. It was so very helpful to have heard your advice, and it helped me persevere. You have my heartfelt thanks. I am walking confidently indoors and out, and have resumed driving and daily fitness exercises and swimming. The therapist said I don't need to continue the exercises, but I am concerned I could lose my progress, so I still complete one full set of the exercises daily. It has been over 2 months since my surgery. May I ask, did you continue the exercises after completing vestibular therapy? If not, did you lose any of the progress? Many thanks!

    • @menieresdiseasewarrior5949
      @menieresdiseasewarrior5949 9 дней назад

      @@inthedaysstillleft1257 after a while I did. But I did a lot of walking and walking in rough surfaces.

  • @alexrc7333
    @alexrc7333 9 дней назад

    In good time! Rooting for you MD warrior!

  • @fliiguy9582
    @fliiguy9582 9 дней назад

    I did my phone hearing 3 days ago and everything seemed like it went good but he said he would need my last paysub before he can make a decision? Do you think thats a good sign ill be approved or just something they need no matter anything? And how did your money come? Check or on card? Because they never asked about a card or account number or anything, im just so nervously because i been denied twice already

    • @menieresdiseasewarrior5949
      @menieresdiseasewarrior5949 9 дней назад

      Looks like they just want to make sure you're not working now. Good sign. I had it direct deposited into my checking account

  • @vikrantsingh-uf8xm
    @vikrantsingh-uf8xm 9 дней назад

    Thanks a lot for sharing this video and congratulations on getting your hearing back. Sir I watched one of your old videos and you had Labyrynthectomy in your left ear. With hearing aides is it possible to get hearing back in ear which has been operated with Labyrynthectomy? Please clarify . I too had Labyrynthectomy and operated ear is totally deaf.

    • @menieresdiseasewarrior5949
      @menieresdiseasewarrior5949 9 дней назад

      @@vikrantsingh-uf8xm yes. BiCross hearing aids. That’s what I have. All the sounds go into my right ear.

    • @vikrantsingh-uf8xm
      @vikrantsingh-uf8xm 7 дней назад

      Hello sir. Hope your hearing aides has improved your quality of life. How is your experience with it? Do you now go out and communicate with your friends and neighbours? Do you travel now? ​@@menieresdiseasewarrior5949

    • @vikrantsingh-uf8xm
      @vikrantsingh-uf8xm 2 дня назад

      @@menieresdiseasewarrior5949 Hello sir. Can you please share your views that with cochlear implant can we hear from the ear which had Labyrynthectomy? Sir I had Labyrynthectomy this 9 August but I am very anxious and afraid of being bilateral after it. I cannot concentrate on my recovery and vestibular rehabilitation. Can you please tell according to the research how many people get bilateral Meniers

  • @judibeth6483
    @judibeth6483 10 дней назад

    I’m so happy you love the Oticon. I have a Phonak (not cross fit) power aide and am very happy with it. Btw, the part that goes into your ear is the dome (I know you love when I correct you 😂). For me it always took about 2 weeks to get used to a new hearing aide. Enjoy hearing ❤😊

  • @JulietMartin-jb8gk
    @JulietMartin-jb8gk 10 дней назад

    I’m so glad you love your hearing aids. I hope the pollen and your dizzies get better soon.❤

  • @inthedaysstillleft1257
    @inthedaysstillleft1257 10 дней назад

    Thank you so much for sharing this! I had my labyrinthectomy in June this year, and am hoping to get a hearing aide soon. My hearing in the other ear is not quite bad enough to qualify for Medicare to cover the hearing aide. I am trying to decide if it’s worth the cost, without insurance coverage.

  • @MargaretSiemers
    @MargaretSiemers 10 дней назад

    I am so very happy for you! I had to have a Cochlear implant 5 years ago and I understand what a difference hearing after not being able to for a good while is.

  • @AMlogoworldchannel
    @AMlogoworldchannel 10 дней назад

    I have MD like symptoms 6/7 yrs vertigo tinnitus in both ear and hearing loud sound feels like vertigo feeling nervous while driving

  • @JulietMartin-jb8gk
    @JulietMartin-jb8gk 11 дней назад

    Hope you are having a winning Wednesday and that your hearing aids work great♥️

  • @rianasteyn5218
    @rianasteyn5218 11 дней назад

    Morning Dave. Yes thats terrible to feeling like that. Really hope en believe you feel better now. That's sound that you have a migraine attack too. I know that feeling. Good luck and God bless.

  • @KatherineWalker-wy5tu
    @KatherineWalker-wy5tu 12 дней назад

    Hey there Dave, So sorry for a Terrible Tuesday. I'm praying for you that better days are a head for you. This has been a terrible month for me. I'm right there with you. Take care 🙏🤗

  • @mycrazylife2go
    @mycrazylife2go 12 дней назад

    I hope you’re feeling better.

  • @alexrc7333
    @alexrc7333 12 дней назад

    Hope you feel better. Cheers!

  • @cindyglass5827
    @cindyglass5827 12 дней назад

    ... feel for You ! ~ This Summer for Me has been 'extremely' Brutal : ( I smiled when I saw your video title, My day was Horrible today too ... Yes, All the BEST for Wed : )

  • @karenpettit9316
    @karenpettit9316 12 дней назад

    Hi Dave. Tough day here, too. I pray your symptoms from this episode resolve soon.

  • @avihana2002
    @avihana2002 12 дней назад

    I’m sorry you had a painful day, Dave. I had a pretty awful day today myself. I’m wondering: do you take a medication specifically for migraines? If so, does it help you? I hope you can have a restful night. 🙏

    • @menieresdiseasewarrior5949
      @menieresdiseasewarrior5949 12 дней назад

      @@avihana2002 I don’t anymore. It was the first one in years !!

    • @avihana2002
      @avihana2002 12 дней назад

      @@menieresdiseasewarrior5949 thanks for your reply!

    • @cindyglass5827
      @cindyglass5827 12 дней назад

      @avihana2002 ... today was Bad for me too, Feel for you : ( I get ya' & All the BEST for Wed : )

  • @vikrantsingh-uf8xm
    @vikrantsingh-uf8xm 13 дней назад

    Hello sir. Sorry to know about your Meniers becoming bilateral. How is your hearing now? Do tou use hearing aids? Can you communicate,walk , do daily chores, go for walk etc?

    • @menieresdiseasewarrior5949
      @menieresdiseasewarrior5949 13 дней назад

      @@vikrantsingh-uf8xm im getting hearing aids this week. I manage okay

    • @vikrantsingh-uf8xm
      @vikrantsingh-uf8xm 13 дней назад

      Sir I had Labyrynthectomy this month. Please share againHow often Meniers get bilateral?. Can patient who get bilateral after Labyrynthectomy walk and hear?​@@menieresdiseasewarrior5949

    • @vikrantsingh-uf8xm
      @vikrantsingh-uf8xm 10 дней назад

      @@menieresdiseasewarrior5949 Hello sir. I too had Labyrynthectomy this 9 August 2024. It's just 20 days. Immediately after Labyrynthectomy I started to have wet feeling, sensation, fullness in my other unaffected ear. Is it normal did you have the same feeling after your surgery. What might it be? Are these post surgery adaptation symptoms?Please share.

    • @menieresdiseasewarrior5949
      @menieresdiseasewarrior5949 10 дней назад

      @@vikrantsingh-uf8xm It could be. You would be better off calling your doctor and asking them.

  • @chunkeymonkey58
    @chunkeymonkey58 14 дней назад

    I love this video! Thank you! Also this change in life is redemptive suffering.

  • @KatherineWalker-wy5tu
    @KatherineWalker-wy5tu 14 дней назад

    I am so sorry you went through this, I think I know who this person is. Yes, very rude but had good intentions in the beginning. I'm praying that he has a "come to Jesus moment" and he finds peace.

  • @JulietMartin-jb8gk
    @JulietMartin-jb8gk 14 дней назад

    My symptoms are always worse when I don’t sleep for a few days. It’s a vicious cycle for me. Hope you get some good sleep tonight. ❤

  • @JulietMartin-jb8gk
    @JulietMartin-jb8gk 14 дней назад

    Love the drawings! So happy those faces. I became garbage real quick with said person. I wish him well though❤

    • @menieresdiseasewarrior5949
      @menieresdiseasewarrior5949 14 дней назад

      @@JulietMartin-jb8gk you’re not the only one. I have heard personally from so many people about him since the video. All he wants is attention. I’m convinced of that

    • @JulietMartin-jb8gk
      @JulietMartin-jb8gk 14 дней назад

      @@menieresdiseasewarrior5949 Well I’m glad to know I’m not the only one. I kept thinking I handled the situation wrong but I tried to be very sympathetic and I was until he decided I wasn’t.

    • @menieresdiseasewarrior5949
      @menieresdiseasewarrior5949 14 дней назад

      @@JulietMartin-jb8gk Yeah that's what he wants sympathy !! Believe me I have caught him on a few posts. One post he said he was driving a car at 2 am. The next post he's said he couldn't walk to the mailbox. He told me he was walking a mile a day in message he sent me. The day he posts how he couldn't walk in a donuts shop.

    • @JulietMartin-jb8gk
      @JulietMartin-jb8gk 14 дней назад

      @@menieresdiseasewarrior5949 Yes I’ve heard all that too. I guess I was easily fooled. I will never not help someone though even if it turns out to be not good. You never know who may need you and if you help even one person it’ll be a win.

    • @JulietMartin-jb8gk
      @JulietMartin-jb8gk 14 дней назад

      Yes! He does get sympathy. It’s just never enough!

  • @kanteshc7214
    @kanteshc7214 14 дней назад

    Sound Pharmaceuticals is please to Announe that thePhase 3 clinical trial involving SPI 1005, a navel anti inflammatory for the Treatment of Meniere's Disease (STOPMD-3) has been completed. Date: 31.07.2024 - Seattle

  • @KatherineWalker-wy5tu
    @KatherineWalker-wy5tu 15 дней назад

    Thank you for all you do. I have learned a lot from you and others on the group as well. I'm glad you are continuing your RUclips videos. People are going to be the way they are just do what Jesus did, dust your sandels off and keep moving. Praying for better days for you🙏❤️ take care

  • @alexrc7333
    @alexrc7333 15 дней назад

    This videos are much needed. I still can't accept the fact I won't be able to do the things I used to, the fact that this is gonna be the baseline from now on. Gonna try with therapy. Have a great weekend!

  • @alexrc7333
    @alexrc7333 18 дней назад

    Lack of sleep makes things worse, that's for sure, but going to bed and feel like rocking on a boat does not help at all. Thank you for sharing.

    • @menieresdiseasewarrior5949
      @menieresdiseasewarrior5949 18 дней назад

      @@alexrc7333 rocking doesn’t help either I know. I hate it

    • @alexrc7333
      @alexrc7333 17 дней назад

      @@menieresdiseasewarrior5949 The ups and downs of vesribular disorders. Have a great week pal, cheers!

  • @vikrantsingh9204
    @vikrantsingh9204 18 дней назад

    Hello sir. Can you please tell how long you had menieres before going for labyrinthectomy.

  • @willp9226
    @willp9226 19 дней назад

    Your story sounds similar to mine. (I recall the sweating episodes.) Except, I noticed something wrong several years before the massive attack occurred. I'd experienced many smaller duration attacks over the years, that seemed like food poisoning that included vomiting. I'd thought it was food poisoning from a restaurant, even though it dawned on me, that it would be hard to get food poisoning that often. So what else could be the problem? Most GPs don't know much about Meniere's Disease. And none diagnosed it until I had a major attack with massive vertigo and massive vomiting sessions. Still, it took an ENT to diagnose MD. Plus, there were many other signs, such as my balance and spatial orientation wasn't very good over those years and I couldn't understand why. Fatigue and brain fog was and still are major symptoms. I get the big four symptoms often (Tinnitus, Ear Fulness, Hearing Loss, Vertigo & Vomiting). Tinnitus all of the time, some level of ear fulness that ramps up when an attack is near, along with hearing loss. Usually there's a degree of vertigo that ranges in intensity when there's no attack, that hits mind-warping velocity during an attack. In addition to this, I have migraines with aura's, where I temporarily lose most of my eyesight. Some doctors say there's no connection to MD, some think there is a definite connection.