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Hi Steven, the best thing is to just stay healthy so eating a balanced diet, i was needed to focus more on diet due to the medication i was taking that made it difficult for me to tolerate fats and proteins

You are looking younger day by day

Hey. I am from India and i have achromegaly. I haven't gone to surgery yet due to lack of money. But i need to know what food n all i have to avoid till i remove my tumor

🌷🌷🌷💐🌹💍💍

Congratulations ❤️

Is this similar to gigantism?..

Hi - so how are you doing now???

Thank a lot for sharing with us my dear 🙏🏼

Did you find having acromegaly affected your ability to conceive normally?

Hii

After puberty, there is no vertical growth but only width of bones grows?

Hi no i haven't been, just bone width for me, it very common to gain height in adolescents with Acromegaly

Are u also growing vertically?

Thanks Rachel for your little slice of life. It’s very interesting. All the best and I hope you keep improving!

Your so adorable. The no sneezing is so you don't risk leaking any spinal fluid. After the complications from my surgery I was not supposed to sneeze for 5 months. I suggest looking away from light sources, and using the back of your finger to put a little pressure on the bottom of your septum when you feel like you need to sneeze. Distraction and deep breathing through your mouth help too. Mind over matter! You got this! (Also, please let your doctor know that you did sneeze, if they don't already know.)

Thank you for sharing your experience. I get octriotide injections every month and for many years did pegvisomant injections every other day (might go back to that soon, might not, waiting to hear what Stanford says about the fact that my remaining tumor seems to be growing after 7 years post surgery.) I'd love to hear how your doing. Sending you lots of positive energy. Keep fighting acro-sister!

Wow, you look and sound amazing - well done! Be aware, my daughter’s 6 week follow-up appointment ended up being six months - they kept cancelling (Newcastle upon Tyne). Don’t let this happen to you! 👍

Does this disease affect pregnacy ? I want to carry

Which type of injections do you take? Octreotide or Pegvisomant?

Hi dear.. Did Acromegaly affect your vision?

Good luck with everything. Thank you for the video

Brave lady, keep positive Rachel.

I clicked like but obviously I don’t like like the video. Really interesting and informative, hope your doing ok :)