Parenting in general is hard. Being a parent of children with special needs is even harder. When my autistic daughter melts down, I try to remember “she’s not giving you a hard time, she’s having a hard time.” I break down crying a lot too and I appreciate you showing that vulnerability.
Emily have you considered talking to a professional? You have so much on your plate for one Mom to handle that it really is no wonder that you’re struggling. I mean none of this in a bad way but I have been in a similar place and it SUCKED. You can use a video conference so you don’t have to leave home if you don’t want to. I’m sending you the biggest virtual hug along with many prayers and love.
@jodi I agree. Mom's can only handle so much. I've been seeing a therapist since February of last year to help with the passing of my dad, co-parenting and any other issues. I would highly recommend it to anyone!
I agree with this so much. I'm a special needs mom of two & a single mom. So at times I literally feel like I'm drowning. Therapy has kept me afloat because life is so hard sometimes. 💖
You. Are. Not. Alone. We are all here supporting you and carrying your mommas heart. It’s so tough. As the mom of a 30 year old with high functioning autism I can say that any conventional type of “discipline” did not work at all. Ever. We just had to find our own way through that jungle. Parenting our kids is just so hard sometimes. I can say that meltdowns are definitely communication. My son is much more verbal now and I’ve asked him what he felt inside when he was having a meltdown. He said it was frustration and confusion mostly. In other words communication! It was less lonely when I was younger knowing there were others “by my side” even if I didn’t know them. I hope I can give you the same strength and offer understanding. You are SO strong Emily. You are wonderful.
When my friend found out her first born son had autism (we live in the U.K. & she also really had to fight for a diagnosis to get him help, it was really awful - both struggling), she was heavily pregnant (& had had a difficult pregnancy). He would have the biggest meltdowns, would stop walking in the middle of the road on the way to school, he’d just drop out of nowhere & would lay on the ground, kicking screaming - frightening because it was a busy road on school mornings, she found it so hard to pick him up while pregnant, & it would reduce her to floods of tears because she didn’t know how to get him up / keep him safe / calm him down & knew that if this was how he started his morning off, he’d have a bad day at school. She got help from a local autism group who helped put her in touch with local autism charities. She was told to keep a diary of what was going on before his meltdowns - for instance, walk in his shoes for just 5-10 minutes. He was poorly one week & her husband was off work, so she took the same route to school. Noise & light. They were his triggers. The noise leading up to the road (cars, sirens, zebra crossing beeps to signal it’s safe to walk across the road..& the morning sun beaming over the rooftops - it was sensory overload. She started getting him used to sunglasses, & also to headphones with relaxing music! It took a little while but he soon got used to it. She sobbed with relief when he done a full week of walking to school with no meltdowns. Don’t be scared to take advice, so many of you beautiful mums are in this together. Sawyer expresses himself by having these meltdowns because he doesn’t know any other way, but it’s a big learning curve for both of you. You’ll find your way & adapt as time progresses hun. Fab news about Griffins meds!! What a relief ❤️ xx
The best thing you can do is for yourself. You truly need to see a therapist to help you learn to cope better. Anyone who has gone through what your dealing with and have dealt with in the past year needs some kind of therapy. You have a wonderful, blessed life and need to learn to mourn the losses and move forward to enjoy what you have. You need to take care of yourself the way you take care of you kids.
Hi Emily Please read all of this. I had some Ideas that might help you, you may already be aware of these but please pick and choose what you think would be helpful. The hyper/very active thing could be from dysregulation and adrenaline, I have found sensory integration therapy really has helped with both sensory overload/underload and dysregulation in general, I also say this because toe walking is a sensory seeking behavior for proprioceptive input. I have found finding ways of non-verbally communicating- like sign language or AAC devices is really helpful (I know you will probably already be looking into speech therapy), It might help both your boys understand the world. Meltdown are at the point where you have lost control, Its scary from the inside too. Also its us having a really really hard time, enough that we would hurt ourselves or those we love. In terms of discipline showing and positively reinforcing the behavior you want is the best way to go. Have a look into PBS (positive behavior support) for him as it looks at you holistically and why behaviors might be happening. Also trying to find some positive handling training so you can keep yourself safe. Social stories, visual timetable and some medical equipment to practice doctors visits or anything is can be really helpful for all kids not just autistic ones. As far as for yourself, Please contact your local careers organization and find yourself some professional mental health help. Being a full time career is hard, you need to look after yourself before you can look after anyone else. Please find some restbite care, you need time away from the children and your own space. As an Autistic person, and a person who has high support needs this advice is from my own experience and you may or may not find it helpful for your wonderful children. I know that challenges that Autism can bring, I live them every day. But I also know I would be me if I wasn't Autistic. When cannot communicate it is so frustrating. When I go into sensory overload it can be physically painful in a specific way. When I have meltdowns Its the most terrifying thing, 10 x worse than panic attacks, for me in a panic attack I can control my breathing in a meltdown I can do nothing and just have to wait it out. Not understanding social situations is hard. Not communicating or interacting in the neurotypical way can be hard. Being so overwhelmed in seemly mundane situations. not being able to manage a school environment. Having to have someone around 24/7. Having poor executive functioning skills. Not automatically being able to read people. Being forced to mask (look Nero-typical) to fit it socially is exhausting, draining and has ruined my mental health. However I have really observant, I can use my special interests to help people, I notice patterns without trying, I have synethesia, I think outside the book, I can learn lots of things quickly, I care about people (in my own way) deeply and feel there pain (I don't know how to express it but I feel it), I can find pitch easily, I can mimic accents well (echolalia gave me that), I persevere, I have a deep sense of justice, I challenge people perceptions and finally I am me. Learning to be me was the best thing I could have done for my mental health and learning to live with and embrace all of me (including being autistic) is part of that. Learning to live as an Autistic person, not trying to do things the Nero-typical way but finding my own way. Sawyer will never be Nero-typical, and yes being autistic in a nero-typical world is hard, yes being autistic in general is hard, yes your child that you love being autistic is going to be stressful and painful at time, Yes dealing with your child in distress is going to be upsetting but I want to assure you that it's not the end of the world and we can bring beauty to this world in a way that other can't. If you got to the end Thank you. You are a mom who is trying to do her best for her wonderful children, look after yourself.
Hang in there Emily. Just remember that “conventional” discipline methods like time out do not (generally) work with kids with disabilities/special needs. Like @16smileyface1 eluded to, when kids with disabilities have a meltdown/act out, it is the “disability driving the train”. And EVERYTHING is communication, especially for kiddos with little to no verbal communication. So when he has a meltdown, it is the only way he is able to communicate “mom, something is scary/different/wrong/hurts/whatever”.
Said so very well!!! It’s the autism behind the meltdown. Our precious kids are communicating their fright and their inability to understand the situation.
I understand what yall are saying but you can not let that sort of behavior go. You have to show them/teach them that it is not ok and there are more appropriate ways to express themselves and its NEVER ok to hurt your Momma!!! Therapy teaches this as well.
@@neahorton5351 Yes I agree that therapy can often help children with Autism and/or other disabilities communicate (verbally and/or non verbally) in a more socially appropriate and “ healthy” way. That said, it all depends on the degree of involvement (in this case, meaning how much the disability or disabilities affect the child’s cognition), then yes it can be successful taught. Some kiddos are able to learn more appropriate ways of expressing themselves, while others cannot.
@@ericae6822 I do totally get what you're saying. I just feel like parents do not discipline any more and that's why we have entitled children running amuck. It's our job as parents to instruct lovingly. 😊
I know this video is a couple years old but I just got my guys diagnosis and it’s been so crazy realizing that’s what is going on with my little. He is 4. And he is DIFFICULT. I needed to see this. I break down and cry constantly. Thank you so much. You’re awesome.
Autism is hard, but I believe we are given these precious kids for a reason. You’re not alone. I wish I could talk to you about getting services. We have never been able to any for my son. It’s been so frustrating.
I understand what you are going through, my 5.5 year old daughter is autistic too. Once you get him approved for services see if he can qualify for respite care and habilitation services. When my daughter is having a meltdown I put her in her bedroom and tell her she can come out as soon as she has a calm body and nice words. Of course with age she understands that concept, but when she was around 3, life was hell. We had more bad days than good. If he is having a hard time with understanding what you are asking of him I HIGHLY suggest sign language. When my daughter would hit I would sign and say “no, hurts” and it clicked, and helped us SO MUCH. Hugs and prayers for you, you aren’t alone even if you feel like it sometimes. God doesn’t give you more than you can handle, you and Will were hand picked by God himself to be special needs parents...because he knew you two would take AMAZING care of them ❤️
Praying that ur house in New York sells. Look at the repairs you have done as one less thing to do when a house inspection is required again. I am sure the people who wanted to buy it are just as upset with not being able too, as u are that it fell through. You got this Emily.
You are a fantastic mum and person. I have a grandson who has Autism and totally understand what your family is going through. He is 14 years old now and has learnt to under stand his condition more and control his melt downs. It is so tough, not easy, plus you also have other children going through different stages. Just know, you are amazing, it will get easier as they get older and your are loved by your precious family. Stay strong and keep smiling.
I`m a mom of 4 ... 2 have 2 very different forms of Autism one being extremely low functioning one being Mild ... You are doing a wonderful job with them
Your such a sweet, and patient mom. You want to make sure all your kids are ok, and get the best. Listen even kids without autism have meltdowns. Please dont cry😢 as if you failed, or it's your fault. Just move on tomorrow will be a better day. We all have good, and bad days. Kids are no different.
Take a deep breath and take baby steps into the world of special needs children...Unfortunately I wasn’t able to carry full term in the 4 times I was able to conceive....I love your videos and your beautiful children, and would welcome any child...I’m so sad that I don’t have a child to be with me through life💔 I was going to adopt a Down syndrome child but the adoption didn’t take place and it was so hard to recover from, the pain was almost as hard as my miscarriages..now I’m 54 and I’m too old to keep up with young children. I often think maybe I could adopt an older child, that dream hasn’t ended yet! You all are in my prayers as you start this new journey😁♥️🎄🙏🏻
U can do this...I have been in ur spot an just felt like giving u.p..somewhere deep down us autism mothers pull everything together an keep pushing thru ...u can do this emily... I have faith in u!!
Emily I feel for you. I went through hard stuff with my kids when they were younger and my daughter is 37 now and still going through it. I lost my 2 sons one was 24 and the other was 30. Love you guys
Its hard to discipline an ASD kiddo knowing they wont fully understand. But we do it because the behaviour is not ok and its the behaviour we discipline. It gets DIFFERENT and it will get DIFFERENT as Sawyer gets older. They genetics testing is to see if he has Fragile X or a depletion on a Chromosome.. it won't change him but it can change the treatment if you know what depletion you have. Or he may not even have a depletion at all. My girl is genetically fine. But still a level 2 ASD person. HUGS Emily..you are going through an extremely emotional upheaval and stress time. Be kind to yourself. Give yourself permission to Have that one hour bath, break down.. scream..yell what ever. You have to take care of you also so you can in turn take care of the family Big hugs from one Autism Mama to Another xx it gets DIFFERENT.
I know for me i can be "bouncing off the walls" as a result of being anxious and overwelmed. Its an autism thing sometimes. I can also be really difficult to deal with when overwelmed or scared. So I can also be a "challange" to deal with. I feel really awful afterwards about how i behaved. But in the time im just so freaked out it is hard to regulate my behaviour.
My mom said that when I was diagnosed with autism at age two she would feel like wanting to cry and she had tried everything she could think of: time-outs, taking things away, rewarding, talking, compromising, yelling and even sometimes putting me in my room or spanking…she had tried it all. Finally she just had to think: parenting a two year old or any child is hard work. Especially when they have autism or any other disability. I need to remember that he’s 2 and I’m 32. He sees the world differently than I do. He’s not giving me a hard time. He’s having a hard time. And then she would go deal with me and the situation at hand when she was calmer and felt more motivated. And she still says that now even while I am 20, have matured and don’t have that many meltdowns anymore. When a meltdown or a road block does occur: he’s not giving you a hard time. He’s having a hard time” but that don’t mean you ain’t going to love him any less. Another she learned from the last 20 years of parenting is this: God put children with disabilities on this planet for a reason: to teach us patience and how to love and show empathy and take care of someone and put others before ourselves.
Just take it one day at a time. My autistic son is 11 and he has melt down all the time. Just talk calmly with him and just help him through the melt down. Take deep breaths in and out to relieve the stress.
I have 2 double transplanted boys and an autistic girl so I totally get how life can be so dam hard, my mum had also just been diagnosed with terminal lung cancer and wont see the end of this year so life REALLY sucks right now 🤦♀️love to everyone ❤
My heart hurts for you. You have had very, very, very difficult year. How can a “higher power” give one so much to handle. Sorry I know you lean on your faith to get you by, but how much can one person be expected to handle. Hopefully things will become more manageable as we begin 2021.Wishing you the best.❤️❤️❤️
Bless you!!!! We only have one child and he has autism, diagnosed at 17 months. He is now 8. We were offered genetic testing but declined getting it done. He's our miracle child who we adopted at birth( we struggled with infertility). Autism is hard with one child, can't imagine having 6! Hopefully you can get him aba therapy, it's been a godsend for us! You're an amazing Mom to all of your kiddos! Just curious, what do you do for work? Aren't you a nurse? Hang in there🥰🥰🥰
You must have been SO frustrated at hospital - why cant people just join the dots?!! You did exactly right handing over to Will & going out with the others - decompress required. Be kind to yourself Emily - you & Will are a great team - with such a beautiful family. Love from Scotland x
LabCorp has received a patent on a method for diagnosing autism spectrum disorders. The method, invented by David Michael Margulies and Mark Firman Bear of Massachusetts, involves taking a tissue or body sample from a subject and then conducting a test to identify variant sequences in the subject's genetic code, which may signify "the presence or an increased risk of developing autism spectrum disorders." Testing can be done on children and fetuses, according to the patent. The method is stated to aid in the diagnosis of five autism spectrum disorders, all of which fall under the umbrella of pervasive developmental disorders: autistic disorder, Asperger's disorder, childhood disintegrative disorder, Rett's disorder, and nonspecific pervasive developmental disorders. The method claims to have multiple applications, each of which provides insight into the biological basis of autism spectrum disorders through different lenses. First, the testing of a body sample and the finding of variant sequences could lead to comparison with known variant sequences linked to autism spectrum disorders, which could lead to a more definitive diagnosis. In similar cases, entirely new variant sequences may be found, and their link to autism spectrum disorders may be analyzed. In some more detailed applications of the method, a subject's nucleic acids from specific gene sequences may be analyzed for mutations or variants linked to autism spectrum disorders, which may provide information on the development and expression of the disorders. Comparison of these nucleic acids could be done between samples obtained from subjects known to have autism spectrum disorders, and subjects without. Currently, diagnosis of autism spectrum disorders is based almost entirely on behavioral observation. Subjects must display six of 12 symptoms within the three categories of social impairment, communication impairment, and "a restricted repertoire of activities and interests" in order to be diagnosed, as outlined by the American Psychiatric Association's Diagnostic and Statistical Manual of Mental Disorders. According to the patent, misdiagnosis occurs frequently and, as such, definitive diagnostic testing is needed to identify these disorders. The original patent was filed in March 2014, but LabCorp was assigned the divisional patent in December. Maybe with this test it will help you with the state for financial help for your children. You would have medical proof to back you up with doctors.
I do fill for you. I cryed when you cryed i no its hard and at the dr. You had a melt down ! I have had a melt down today on new years day today life is hard i am telling you that is alot of 💰 cant aford it .. I no hope it sells soon . ir will help i am praying. For you !! That dr office. I no was. Bad. So sorry hugs today and days to come.
Emily,you got the medicine for Griffin.That’s great! One worry gone😊 Do the services people,Pt,ot etc or paediatrician give you any help with helping you managing sawyer’s meltdowns and his autism in general.I don’t know what’s available there,but help for you is important.You’re an awesome mum and you say you know nothing but you know the most important thing and that is you know Sawyer.I don’t know but maybe the paediatrician can advise you on getting support for you. I’m glad you have social media and people who can share their experiences.Praying for you and for things to go smoothly. You know Harrison is going to call them “fingers” forever now!!! Harrison and Wynn are going to be a great loving support to their twin brothers as the all grow up.You are bringing up you kids so beautifully.
I'm so sorry. I don't have any advice. I pray that you get whatever help you need whether that be with the kids or for yourself. Please be sure to take care of yourself.
YoLonda Warren children with autism were hidden away, killed, or left in forests. They existed, I promise. They were just labeled as “weird kids” if they were even allowed in society. Now, we have more tools to diagnose children and services to help them.
Autism has always been with us but now the increased awareness has led to more diagnoses. My daughter is autistic and I’m convinced my mother in law is as well, though she is not diagnosed. Emily has other family on the spectrum too. It’s largely a genetic condition.
What happened with your dad? I watched a few videos when he was still helping you, but missed why he was suddenly out of the picture. Hope it’s ok to ask.
So, that could be why you have one with autism and another with Angelman syndrome? Because it is on chromosome 15, both of them? www.spectrumnews.org/news/study-clarifies-link-between-15q-duplication-and-autism/
I enjoy reading about your family life. You always seem to b stressed. Can the children not leave u alone while you talk. I know free expression is the in thing but you seem to b interrupted every time you r talking. It's hard to follow what you r saying when you talk so fast I gather you do this to get everything in before the children take over. Best of luck with the final selling of your home
Please don’t get frustrated with the boys disability because doing that make them feel bad when they’re older I know because I’m disabled and first hand experience it affects disabled person’s mental health
@Captain Sloth, very good point. I think vloggers often forget that children hear everything they say on these vlogs when they talk in front of them on the camera and it can cause a lot of problems for the kids.
Im sad their life is so hard. I use to watch everyday but I had to unsubscribe when the twins were like 3. To much grown up crying and stress thats im trying to escape
NO ABSOLUTELY NOT Kate flip flops to much some sometimes she acts like she understands all about autism an other time she acts like she knows nothing about autism at all who she needs to reach out to is ROCK'N STIMS they are fantastic with their son who has autism
Parenting in general is hard. Being a parent of children with special needs is even harder. When my autistic daughter melts down, I try to remember “she’s not giving you a hard time, she’s having a hard time.” I break down crying a lot too and I appreciate you showing that vulnerability.
And actually being the special needs child is even harder
Emily have you considered talking to a professional? You have so much on your plate for one Mom to handle that it really is no wonder that you’re struggling. I mean none of this in a bad way but I have been in a similar place and it SUCKED. You can use a video conference so you don’t have to leave home if you don’t want to. I’m sending you the biggest virtual hug along with many prayers and love.
@jodi I agree. Mom's can only handle so much. I've been seeing a therapist since February of last year to help with the passing of my dad, co-parenting and any other issues. I would highly recommend it to anyone!
Agreed, she needs help.
I agree with this so much. I'm a special needs mom of two & a single mom. So at times I literally feel like I'm drowning. Therapy has kept me afloat because life is so hard sometimes. 💖
@@ACoolMom Thank you for being brave enough to say that! I believe Emily needs our support.🥰
You. Are. Not. Alone. We are all here supporting you and carrying your mommas heart. It’s so tough. As the mom of a 30 year old with high functioning autism I can say that any conventional type of “discipline” did not work at all. Ever. We just had to find our own way through that jungle. Parenting our kids is just so hard sometimes. I can say that meltdowns are definitely communication. My son is much more verbal now and I’ve asked him what he felt inside when he was having a meltdown. He said it was frustration and confusion mostly. In other words communication! It was less lonely when I was younger knowing there were others “by my side” even if I didn’t know them. I hope I can give you the same strength and offer understanding. You are SO strong Emily. You are wonderful.
When my friend found out her first born son had autism (we live in the U.K. & she also really had to fight for a diagnosis to get him help, it was really awful - both struggling), she was heavily pregnant (& had had a difficult pregnancy). He would have the biggest meltdowns, would stop walking in the middle of the road on the way to school, he’d just drop out of nowhere & would lay on the ground, kicking screaming - frightening because it was a busy road on school mornings, she found it so hard to pick him up while pregnant, & it would reduce her to floods of tears because she didn’t know how to get him up / keep him safe / calm him down & knew that if this was how he started his morning off, he’d have a bad day at school.
She got help from a local autism group who helped put her in touch with local autism charities. She was told to keep a diary of what was going on before his meltdowns - for instance, walk in his shoes for just 5-10 minutes. He was poorly one week & her husband was off work, so she took the same route to school. Noise & light. They were his triggers. The noise leading up to the road (cars, sirens, zebra crossing beeps to signal it’s safe to walk across the road..& the morning sun beaming over the rooftops - it was sensory overload. She started getting him used to sunglasses, & also to headphones with relaxing music! It took a little while but he soon got used to it. She sobbed with relief when he done a full week of walking to school with no meltdowns.
Don’t be scared to take advice, so many of you beautiful mums are in this together. Sawyer expresses himself by having these meltdowns because he doesn’t know any other way, but it’s a big learning curve for both of you. You’ll find your way & adapt as time progresses hun.
Fab news about Griffins meds!! What a relief ❤️ xx
The best thing you can do is for yourself. You truly need to see a therapist to help you learn to cope better. Anyone who has gone through what your dealing with and have dealt with in the past year needs some kind of therapy. You have a wonderful, blessed life and need to learn to mourn the losses and move forward to enjoy what you have. You need to take care of yourself the way you take care of you kids.
Hi Emily Please read all of this. I had some Ideas that might help you, you may already be aware of these but please pick and choose what you think would be helpful. The hyper/very active thing could be from dysregulation and adrenaline, I have found sensory integration therapy really has helped with both sensory overload/underload and dysregulation in general, I also say this because toe walking is a sensory seeking behavior for proprioceptive input. I have found finding ways of non-verbally communicating- like sign language or AAC devices is really helpful (I know you will probably already be looking into speech therapy), It might help both your boys understand the world. Meltdown are at the point where you have lost control, Its scary from the inside too. Also its us having a really really hard time, enough that we would hurt ourselves or those we love. In terms of discipline showing and positively reinforcing the behavior you want is the best way to go. Have a look into PBS (positive behavior support) for him as it looks at you holistically and why behaviors might be happening. Also trying to find some positive handling training so you can keep yourself safe. Social stories, visual timetable and some medical equipment to practice doctors visits or anything is can be really helpful for all kids not just autistic ones.
As far as for yourself, Please contact your local careers organization and find yourself some professional mental health help. Being a full time career is hard, you need to look after yourself before you can look after anyone else. Please find some restbite care, you need time away from the children and your own space.
As an Autistic person, and a person who has high support needs this advice is from my own experience and you may or may not find it helpful for your wonderful children. I know that challenges that Autism can bring, I live them every day. But I also know I would be me if I wasn't Autistic. When cannot communicate it is so frustrating. When I go into sensory overload it can be physically painful in a specific way. When I have meltdowns Its the most terrifying thing, 10 x worse than panic attacks, for me in a panic attack I can control my breathing in a meltdown I can do nothing and just have to wait it out. Not understanding social situations is hard. Not communicating or interacting in the neurotypical way can be hard. Being so overwhelmed in seemly mundane situations. not being able to manage a school environment. Having to have someone around 24/7. Having poor executive functioning skills. Not automatically being able to read people. Being forced to mask (look Nero-typical) to fit it socially is exhausting, draining and has ruined my mental health.
However I have really observant, I can use my special interests to help people, I notice patterns without trying, I have synethesia, I think outside the book, I can learn lots of things quickly, I care about people (in my own way) deeply and feel there pain (I don't know how to express it but I feel it), I can find pitch easily, I can mimic accents well (echolalia gave me that), I persevere, I have a deep sense of justice, I challenge people perceptions and finally I am me. Learning to be me was the best thing I could have done for my mental health and learning to live with and embrace all of me (including being autistic) is part of that. Learning to live as an Autistic person, not trying to do things the Nero-typical way but finding my own way.
Sawyer will never be Nero-typical, and yes being autistic in a nero-typical world is hard, yes being autistic in general is hard, yes your child that you love being autistic is going to be stressful and painful at time, Yes dealing with your child in distress is going to be upsetting but I want to assure you that it's not the end of the world and we can bring beauty to this world in a way that other can't.
If you got to the end Thank you. You are a mom who is trying to do her best for her wonderful children, look after yourself.
Hang in there Emily. Just remember that “conventional” discipline methods like time out do not (generally) work with kids with disabilities/special needs. Like @16smileyface1 eluded to, when kids with disabilities have a meltdown/act out, it is the “disability driving the train”. And EVERYTHING is communication, especially for kiddos with little to no verbal communication. So when he has a meltdown, it is the only way he is able to communicate “mom, something is scary/different/wrong/hurts/whatever”.
Said so very well!!! It’s the autism behind the meltdown. Our precious kids are communicating their fright and their inability to understand the situation.
I understand what yall are saying but you can not let that sort of behavior go. You have to show them/teach them that it is not ok and there are more appropriate ways to express themselves and its NEVER ok to hurt your Momma!!! Therapy teaches this as well.
@@neahorton5351 Yes I agree that therapy can often help children with Autism and/or other disabilities communicate (verbally and/or non verbally) in a more socially appropriate and “ healthy” way. That said, it all depends on the degree of involvement (in this case, meaning how much the disability or disabilities affect the child’s cognition), then yes it can be successful taught. Some kiddos are able to learn more appropriate ways of expressing themselves, while others cannot.
@@ericae6822 I do totally get what you're saying. I just feel like parents do not discipline any more and that's why we have entitled children running amuck. It's our job as parents to instruct lovingly. 😊
@@neahorton5351 Totally agree that it is a fine line.
I know this video is a couple years old but I just got my guys diagnosis and it’s been so crazy realizing that’s what is going on with my little. He is 4. And he is DIFFICULT. I needed to see this. I break down and cry constantly. Thank you so much. You’re awesome.
Autism is hard, but I believe we are given these precious kids for a reason. You’re not alone. I wish I could talk to you about getting services. We have never been able to any for my son. It’s been so frustrating.
I understand what you are going through, my 5.5 year old daughter is autistic too. Once you get him approved for services see if he can qualify for respite care and habilitation services.
When my daughter is having a meltdown I put her in her bedroom and tell her she can come out as soon as she has a calm body and nice words. Of course with age she understands that concept, but when she was around 3, life was hell. We had more bad days than good. If he is having a hard time with understanding what you are asking of him I HIGHLY suggest sign language. When my daughter would hit I would sign and say “no, hurts” and it clicked, and helped us SO MUCH.
Hugs and prayers for you, you aren’t alone even if you feel like it sometimes.
God doesn’t give you more than you can handle, you and Will were hand picked by God himself to be special needs parents...because he knew you two would take AMAZING care of them ❤️
Praying that ur house in New York sells. Look at the repairs you have done as one less thing to do when a house inspection is required again. I am sure the people who wanted to buy it are just as upset with not being able too, as u are that it fell through.
You got this Emily.
You are a fantastic mum and person. I have a grandson who has Autism and totally understand what your family is going through. He is 14 years old now and has learnt to under stand his condition more and control his melt downs. It is so tough, not easy, plus you also have other children going through different stages. Just know, you are amazing, it will get easier as they get older and your are loved by your precious family. Stay strong and keep smiling.
I`m a mom of 4 ... 2 have 2 very different forms of Autism one being extremely low functioning one being Mild ... You are doing a wonderful job with them
Your such a sweet, and patient mom. You want to make sure all your kids are ok, and get the best. Listen even kids without autism have meltdowns. Please dont cry😢 as if you failed, or it's your fault. Just move on tomorrow will be a better day. We all have good, and bad days. Kids are no different.
Take a deep breath and take baby steps into the world of special needs children...Unfortunately I wasn’t able to carry full term in the 4 times I was able to conceive....I love your videos and your beautiful children, and would welcome any child...I’m so sad that I don’t have a child to be with me through life💔 I was going to adopt a Down syndrome child but the adoption didn’t take place and it was so hard to recover from, the pain was almost as hard as my miscarriages..now I’m 54 and I’m too old to keep up with young children. I often think maybe I could adopt an older child, that dream hasn’t ended yet! You all are in my prayers as you start this new journey😁♥️🎄🙏🏻
U can do this...I have been in ur spot an just felt like giving u.p..somewhere deep down us autism mothers pull everything together an keep pushing thru ...u can do this emily... I have faith in u!!
I have autism too, high functioning I am 16
You work hard sweetie, you'll be ok.
Emily I feel for you. I went through hard stuff with my kids when they were younger and my daughter is 37 now and still going through it. I lost my 2 sons one was 24 and the other was 30. Love you guys
Its hard to discipline an ASD kiddo knowing they wont fully understand. But we do it because the behaviour is not ok and its the behaviour we discipline. It gets DIFFERENT and it will get DIFFERENT as Sawyer gets older. They genetics testing is to see if he has Fragile X or a depletion on a Chromosome.. it won't change him but it can change the treatment if you know what depletion you have. Or he may not even have a depletion at all. My girl is genetically fine. But still a level 2 ASD person.
HUGS Emily..you are going through an extremely emotional upheaval and stress time. Be kind to yourself. Give yourself permission to Have that one hour bath, break down.. scream..yell what ever. You have to take care of you also so you can in turn take care of the family
Big hugs from one Autism Mama to Another xx it gets DIFFERENT.
Yay so glad you got the medicine for Griffin, praying your house sells and goes thru well, you guys are doing great xx
Autism is very hard...I have 2 Nonverbal Children...I just remember to take everything one day at a time sometimes hour by hour!!!
Bless you..🥰
I know for me i can be "bouncing off the walls" as a result of being anxious and overwelmed. Its an autism thing sometimes. I can also be really difficult to deal with when overwelmed or scared. So I can also be a "challange" to deal with. I feel really awful afterwards about how i behaved. But in the time im just so freaked out it is hard to regulate my behaviour.
My mom said that when I was diagnosed with autism at age two she would feel like wanting to cry and she had tried everything she could think of: time-outs, taking things away, rewarding, talking, compromising, yelling and even sometimes putting me in my room or spanking…she had tried it all.
Finally she just had to think: parenting a two year old or any child is hard work. Especially when they have autism or any other disability. I need to remember that he’s 2 and I’m 32. He sees the world differently than I do. He’s not giving me a hard time. He’s having a hard time. And then she would go deal with me and the situation at hand when she was calmer and felt more motivated. And she still says that now even while I am 20, have matured and don’t have that many meltdowns anymore. When a meltdown or a road block does occur: he’s not giving you a hard time. He’s having a hard time” but that don’t mean you ain’t going to love him any less. Another she learned from the last 20 years of parenting is this: God put children with disabilities on this planet for a reason: to teach us patience and how to love and show empathy and take care of someone and put others before ourselves.
Just take it one day at a time. My autistic son is 11 and he has melt down all the time. Just talk calmly with him and just help him through the melt down. Take deep breaths in and out to relieve the stress.
I have 2 double transplanted boys and an autistic girl so I totally get how life can be so dam hard, my mum had also just been diagnosed with terminal lung cancer and wont see the end of this year so life REALLY sucks right now 🤦♀️love to everyone ❤
All I can say is I really wanna hug you. Parenting sucks sometimes we all get it. Much love
My heart hurts for you. You have had very, very, very difficult year. How can a “higher power” give one so much to handle. Sorry I know you lean on your faith to get you by, but how much can one person be expected to handle. Hopefully things will become more manageable as we begin 2021.Wishing you the best.❤️❤️❤️
Your aloud to cry. Hang in there guys. We love u 💜
Your a great mom .
All that money on repairs and the sale falls through again. I am so sorry Emily.
Bless you!!!! We only have one child and he has autism, diagnosed at 17 months. He is now 8. We were offered genetic testing but declined getting it done. He's our miracle child who we adopted at birth( we struggled with infertility). Autism is hard with one child, can't imagine having 6! Hopefully you can get him aba therapy, it's been a godsend for us! You're an amazing Mom to all of your kiddos! Just curious, what do you do for work? Aren't you a nurse? Hang in there🥰🥰🥰
You must have been SO frustrated at hospital - why cant people just join the dots?!! You did exactly right handing over to Will & going out with the others - decompress required. Be kind to yourself Emily - you & Will are a great team - with such a beautiful family. Love from Scotland x
I am sending you a virtual hug!!!
The chromosomes thing could be any of the chromosomes and can be deletion or duplication.
Dusty’s is 15 and 11 effected.
Praying for the house to sell
Hugs to you Emily! ❤️❤️
You are wonderful
LabCorp has received a patent on a method for diagnosing autism spectrum disorders.
The method, invented by David Michael Margulies and Mark Firman Bear of Massachusetts, involves taking a tissue or body sample from a subject and then conducting a test to identify variant sequences in the subject's genetic code, which may signify "the presence or an increased risk of developing autism spectrum disorders." Testing can be done on children and fetuses, according to the patent. The method is stated to aid in the diagnosis of five autism spectrum disorders, all of which fall under the umbrella of pervasive developmental disorders: autistic disorder, Asperger's disorder, childhood disintegrative disorder, Rett's disorder, and nonspecific pervasive developmental disorders.
The method claims to have multiple applications, each of which provides insight into the biological basis of autism spectrum disorders through different lenses. First, the testing of a body sample and the finding of variant sequences could lead to comparison with known variant sequences linked to autism spectrum disorders, which could lead to a more definitive diagnosis. In similar cases, entirely new variant sequences may be found, and their link to autism spectrum disorders may be analyzed.
In some more detailed applications of the method, a subject's nucleic acids from specific gene sequences may be analyzed for mutations or variants linked to autism spectrum disorders, which may provide information on the development and expression of the disorders. Comparison of these nucleic acids could be done between samples obtained from subjects known to have autism spectrum disorders, and subjects without.
Currently, diagnosis of autism spectrum disorders is based almost entirely on behavioral observation. Subjects must display six of 12 symptoms within the three categories of social impairment, communication impairment, and "a restricted repertoire of activities and interests" in order to be diagnosed, as outlined by the American Psychiatric Association's Diagnostic and Statistical Manual of Mental Disorders. According to the patent, misdiagnosis occurs frequently and, as such, definitive diagnostic testing is needed to identify these disorders.
The original patent was filed in March 2014, but LabCorp was assigned the divisional patent in December. Maybe with this test it will help you with the state for financial help for your children. You would have medical proof to back you up with doctors.
“ don’t eat all of them mom” haha too cute
I do fill for you. I cryed when you cryed i no its hard and at the dr. You had a melt down ! I have had a melt down today on new years day today life is hard i am telling you that is alot of 💰 cant aford it .. I no hope it sells soon . ir will help i am praying. For you !! That dr office. I no was. Bad. So sorry hugs today and days to come.
See’s Candy is the best. Have a great year.🎉
Emily,you got the medicine for Griffin.That’s great! One worry gone😊 Do the services people,Pt,ot etc or paediatrician give you any help with helping you managing sawyer’s meltdowns and his autism in general.I don’t know what’s available there,but help for you is important.You’re an awesome mum and you say you know nothing but you know the most important thing and that is you know Sawyer.I don’t know but maybe the paediatrician can advise you on getting support for you. I’m glad you have social media and people who can share their experiences.Praying for you and for things to go smoothly. You know Harrison is going to call them “fingers” forever now!!! Harrison and Wynn are going to be a great loving support to their twin brothers as the all grow up.You are bringing up you kids so beautifully.
You are not alone I have a two year old son with autism and it can be hard
It gets better Im a mum of 4 all with asd and adhd and add,
✨🎉HAPPY NEW YEAR✨🎉and don't forget "YourWonderful"🙏💖
You have the cutest kids.
Beautiful house sometimes life ant fair
You are doing a fantastic job! Don’t forget to look after “you” though; you can’t pour from an empty glass 😊🤗
I'm so sorry. I don't have any advice. I pray that you get whatever help you need whether that be with the kids or for yourself. Please be sure to take care of yourself.
I am older and l don’t remember anyone as a child that had Autism. Why do so many children have it now?
YoLonda Warren children with autism were hidden away, killed, or left in forests. They existed, I promise. They were just labeled as “weird kids” if they were even allowed in society. Now, we have more tools to diagnose children and services to help them.
Autism has always been with us but now the increased awareness has led to more diagnoses. My daughter is autistic and I’m convinced my mother in law is as well, though she is not diagnosed. Emily has other family on the spectrum too. It’s largely a genetic condition.
Oh no sorry hugs u tightly so sadly bout Sawyer Autism
You haven't done a grocery haul or any haul in a long time girl! LoL!
Gosh I wish I could give you an epic hug xx
Have you joined spark they are doing research on autism. I have level 2 severe autism
is there a baby gate by the fire place ???????
Yes because griffin was getting into it
Chocolate Carmel in the frig is delicious cold I love the dark
What happened with your dad? I watched a few videos when he was still helping you, but missed why he was suddenly out of the picture. Hope it’s ok to ask.
They had a falling out/disagreement and that's all she's said. I don't believe she'll talk anymore about it.
@@jazzyj4765 thanks! I wasn’t sure if it was in a video that I missed. Totally okay if she doesn’t want to talk about it.
@@kejana51 it's in a video she filmed 3 months ago called I need to get something off my chest. She speaks about it vaguely.
So, that could be why you have one with autism and another with Angelman syndrome? Because it is on chromosome 15, both of them? www.spectrumnews.org/news/study-clarifies-link-between-15q-duplication-and-autism/
Would be interesting for all people with either one of them, to check their other kids?
I would recommend reachig out to the RUclips channel ROCK'N STIMS both parents are fantastic with their son who has autism
I enjoy reading about your family life. You always seem to b stressed. Can the children not leave u alone while you talk. I know free expression is the in thing but you seem to b interrupted every time you r talking. It's hard to follow what you r saying when you talk so fast I gather you do this to get everything in before the children take over. Best of luck with the final selling of your home
Please don’t get frustrated with the boys disability because doing that make them feel bad when they’re older I know because I’m disabled and first hand experience it affects disabled person’s mental health
Funny you said this. I was thinking the same thing if the twins were to see this one day. Poor girl needs to reach out for more support.
I think it’s sometimes sad that the parents think their life is so hard think about their child’s life of how they have to live their life struggling
@Captain Sloth, very good point. I think vloggers often forget that children hear everything they say on these vlogs when they talk in front of them on the camera and it can cause a lot of problems for the kids.
You tell your kids that you fill their stockings?
I will pray and for your house to sell
Maybe take a break from RUclips and social media and focus on your family and your own mental health.
Yes time out is all you can do you have. To correct bad behaviours. If. You dont more. Act outs will happen ! Maybe worse behaviors. Happen you no !!
Im sad their life is so hard. I use to watch everyday but I had to unsubscribe when the twins were like 3. To much grown up crying and stress thats im trying to escape
Reach out to Kate on finding Coopers voice
NO ABSOLUTELY NOT Kate flip flops to much some sometimes she acts like she understands all about autism an other time she acts like she knows nothing about autism at all who she needs to reach out to is
ROCK'N STIMS they are fantastic with their son who has autism
@@jodysmith8048 I completely disagree with you