OUR BABY WAS DIAGNOSED WITH A “LIFE LIMITING” GENETIC SYNDROME | OUR TRISOMY 18 STORY

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  • Опубликовано: 13 дек 2024

Комментарии • 2,3 тыс.

  • @menniekumalo3276
    @menniekumalo3276 7 месяцев назад +1293

    My niece also has Edward’s syndrome, we were told she won’t live long, and prepare for the worst. She turned 1 year last month. She is a miracle, even her Dr gets shocked every time my sister takes her for checkups. God is indeed God of miracles. We see his greatness daily!

    • @khwezimabunda
      @khwezimabunda 7 месяцев назад +31

      This is so powerful! Thank you for sharing this

    • @Nokukhanya.Khumalo
      @Nokukhanya.Khumalo 7 месяцев назад +13

      Thank you so much for sharing we bless the Lord Jesus Christ❤🙏

    • @rosiempembe
      @rosiempembe 7 месяцев назад +4

      ❤❤

    • @glenngwenya1084
      @glenngwenya1084 7 месяцев назад +13

      Thank you for sharing this massage it gives a lot of parents hope❤❤

    • @nwabisapbodlo3246
      @nwabisapbodlo3246 7 месяцев назад +10

      Wow that’s amazing. To happy more birthday for your niece 👏🏽 God is good ALL the time

  • @mapulemagdelene2558
    @mapulemagdelene2558 7 месяцев назад +268

    I was born with two wholes on my heart, I never thought I'd live long but im now 29 married with kids ...let's give God the 🖋 pen , and let him write the beautiful testimony , the God of impossibilies, nothing takes him by a surprise!!!!! His the beginning and the end of everything! He says submit everything to me and I the Lord will make ur paths right!

    • @motheowalerato701
      @motheowalerato701 7 месяцев назад +4

      Woooow❤❤❤ 🙌🙌🙌

    • @Bokamoso_Kaisara
      @Bokamoso_Kaisara 7 месяцев назад +3

      ❤❤❤❤❤❤❤

    • @ShalomHazel
      @ShalomHazel 7 месяцев назад +2

      🔥🔥🔥🔥🔥 Yuuuu

    • @gabobofanemonchwe4855
      @gabobofanemonchwe4855 7 месяцев назад +5

      My son was born with a hole as well , it was repaired last year and will be turning seven on the 6th of May 2024. We thank God for His mercies 🥺 ❤❤❤❤

    • @pulelady
      @pulelady 7 месяцев назад +3

      I’m sending you a big hug, may God continue to bless you with long life ❤

  • @Agnetha.K
    @Agnetha.K 7 месяцев назад +580

    Everyone deserves a husband like this. He's so attentive and so considerate, bless his heart 🥺❤️

    • @leratodyani1586
      @leratodyani1586 7 месяцев назад +5

      I agree hey🥰

    • @gabsilemtsweni628
      @gabsilemtsweni628 7 месяцев назад +3

      Thats true hey ,its a gift from God having a supporting partner

    • @stephaniebrown3712
      @stephaniebrown3712 7 месяцев назад +4

      She shall live and not die.
      He is the God of all flesh there is nothing too hard for Him to do
      His grace is sufficient
      I will continue to pray for your strength.❤
      🖤💛💚🇯🇲

    • @stephaniebrown3712
      @stephaniebrown3712 7 месяцев назад +2

      This is a beautiful story about a beautiful baby girl whose life is going to make a difference in this world 💖✨️
      VICTORY BELONGS TO YOUR BABY GIRL ✨️💖 I am bless and encouraged by your baby girl story

    • @nthabelengsethole
      @nthabelengsethole 7 месяцев назад +3

      Thank you for sharing your journey...trust in the Lord with all your heart ❤don't rely on your own understanding.

  • @kabelontobo303
    @kabelontobo303 7 месяцев назад +275

    When you get a chance, find yourself a prayerful spouse.

  • @missthuli6901
    @missthuli6901 7 месяцев назад +324

    GOD is more powerful than doctors. When my nephew was born, we were told he wouldn't live to the age of 1, 2 latest. He turns 22 this year and just graduated. Praying for you guys and your family 🙏🏾❤️

    • @cynthiahillian
      @cynthiahillian 7 месяцев назад +7

      Amen. We believe the report of the Lord!!!!

    • @neosjournal_
      @neosjournal_ 7 месяцев назад +3

      Glory be to God!

    • @motheowalerato701
      @motheowalerato701 7 месяцев назад +1

      🙌🙌❤❤

    • @mondetessa
      @mondetessa 7 месяцев назад +1

      Yooh Nkulunkulu uthembekile, thank you for sharing 🎉

    • @wishingyoupeace
      @wishingyoupeace 3 месяца назад

      Statistics are a set of numbers that are a true calculation but no doctor ever knows or will say where you will land because they can’t. They can only provide statistics.

  • @ketie_
    @ketie_ 7 месяцев назад +539

    Lebone will one day tell her story of how she beat every odd... Lebone is that girl!!! ❤...

  • @gracemabusela6432
    @gracemabusela6432 7 месяцев назад +243

    Not me sobbing right now. My daughter has the same. She's turning 7 in November. Seven years of literally trusting God for her next breath. I don't even want to start talking about schooling, peers etc. But that's when we experience the full grace of God❤ all the best guys

  • @natashahlongwane8037
    @natashahlongwane8037 7 месяцев назад +593

    I remember when my little brother was born fentse,my mom was told the he wouldn't be able to walk and he would not lead a normal life,my mom was shattered as the big sister i had to step in as young as I was at the time i had unbelievable faith and that's what the baby needed we took a journey,if i tell you the impossible happened when i began to train him how to sit and strengthen his back i believed with all my heart that he would walk and lead a normal today when i tell God is faithful he is walking and he is going to normal school till this i day i testify the goodness of the Lord..Trust in God family for nothing is impossible with God❤

  • @sinelizwinkwali9845
    @sinelizwinkwali9845 7 месяцев назад +172

    Since the clip dropped on IG, Lebone has been mentioned in thousands and thousands of prayers, one after another, and let me tell you that girl is fully covered by the blood of Jesus and surrounded by the Dream Team's prayers. We will continue to hold hands continuing to pray in support of the breakthroughs she's going to get through. In the name of Jesus, she will lead a normal life like her other siblings do. Stay blessed 🙏

  • @achobijanet4932
    @achobijanet4932 7 месяцев назад +208

    Lebone will live. Lebone will not die. Lebone will live and declare the goodness of God in the land of the living. Her entire body is perfected. Her heart, brain, bones, ligaments, and joints are perfected.
    Lebone will live and outlive her parents. I believe that so strongly. There's no fear in my heart about this.

  • @keolebilemmoke60
    @keolebilemmoke60 7 месяцев назад +418

    God really made a perfect choice for Lebone's Parents ❤

    • @Miss_Zimm
      @Miss_Zimm 7 месяцев назад +5

      I was literally thinking that too.

    • @keolebilemmoke60
      @keolebilemmoke60 7 месяцев назад +19

      @@Miss_Zimm right , I think their state of mind and strong faith in God is just making perfect sense to parent Lebone la ga Makhetha
      May our God continue to give the sttength ❣️

    • @Tshegohatso
      @Tshegohatso 7 месяцев назад +3

      amen ❤❤❤

    • @glenngwenya1084
      @glenngwenya1084 7 месяцев назад +3

      ​@@keolebilemmoke60I wish I can like your comment 50 times❤❤❤

    • @FindingNeli
      @FindingNeli 7 месяцев назад +11

      He knew when He knit Lebone in her mother’s womb. He is a Sovereign God.

  • @boitymellow
    @boitymellow 7 месяцев назад +292

    What a testimony "Her condition was hidden from us but God knew her form". Love and light to baby Lebone.

    • @Goodness222
      @Goodness222 2 месяца назад

      🥺 I understand what you mean. For an entire 9 months I went for scans because I wanted to know if my baby is healthy, and I would get a response that she is healthy and they couldn’t pick up that my baby girl has a Club hand syndrome and when I gave birth and looked at her hands I saw that my baby is disabled so that is true that her condition was hidden from us and everyone but God knew her form.

    • @_Palesa_M
      @_Palesa_M 2 месяца назад

      Mellow 🤍

  • @JamieleeSelamodi
    @JamieleeSelamodi 7 месяцев назад +83

    I saw an adult with Trisomy 18 , I have faith that Lebone will too live a full life into adulthood, doctors can say whatever but God has the last say

  • @leratomolele
    @leratomolele 7 месяцев назад +33

    am i the only one who felt the presence of the Holy Spirit whilst watching this. Ebenezer! ❤

  • @sweetnessgyamboe4897
    @sweetnessgyamboe4897 7 месяцев назад +214

    I can literally see the heaviness in Mr Makhs eyes. He is by all means trying to be strong for the family. The Lord will see you guys through!

  • @motlatsomoloi
    @motlatsomoloi 7 месяцев назад +233

    This is such a beautiful testimony. I’m 25 years and I have a 6 year old with Down syndrome. He has had a kidney related surgery and an open heart surgery. We were told that by the time he is 6 his one kidney that’s left in his body would start failing and he would have to go on dialysis and ultimately a kidney transplant. But God is so faithful and we can trust him. He hasn’t been to the hospital in 2 full years, he is happy and healthy, going to school, going to therapy, going to swimming and easily being the joy and light of our lives. God is our most trusted physician, a creator who makes everything perfect and a good father who gives us only good and perfect gifts and it is his report alone that we believe. I wish you all the best in your journey mom and dad. May God increase your capacity to raise your beautiful light and heal her in a way only He knows how to. ♥️

  • @sitdownswithsphiweLevenim6417
    @sitdownswithsphiweLevenim6417 7 месяцев назад +169

    your wife`s aura is so pure and peaceful man, love her so much

    • @neosjournal_
      @neosjournal_ 7 месяцев назад +2

      I know right🥹

    • @NtsikiManson
      @NtsikiManson 7 месяцев назад

      Chief Kgaogana le go rata basadi ba batho😂 next thing every woman you meet, Phetolo becomes the barometer you'll be referring to.

    • @sitdownswithsphiweLevenim6417
      @sitdownswithsphiweLevenim6417 7 месяцев назад +2

      @@NtsikiMansonI am not a man, I am a woman and a happily married woman at that🙄

  • @siyamthandaphiri9102
    @siyamthandaphiri9102 7 месяцев назад +12

    I have a daughter with down syndrome. She is 15 years now.God chose me for a reason same with you.Its great that this child has two parents that love each other and support one another. ❤

  • @starblack1323
    @starblack1323 7 месяцев назад +52

    Drs can be insensitive at times😢I remember in 2007 wen diagnosed with non hodgkins lymphoma my oncologist told me that I have 6months to live if I'm lucky🙄it's now 16yrs later and I'm still going strong..... We serve a living God and Lebone is gonna be a testimony that God is faithful afterall all things work together for good to those who trust the lord and are called according to His purpose 🙏

    • @violetphahlamohlaka8011
      @violetphahlamohlaka8011 7 месяцев назад +3

      The same spirit that raised Jesus from the Dead, it will completely heal Lebone in Jesus name

    • @motheowalerato701
      @motheowalerato701 7 месяцев назад +1

      Wow🎉🎉 Amen 🙏🙌❤❤❤

  • @fulufhelomatodzi649
    @fulufhelomatodzi649 7 месяцев назад +137

    I am a paediatrician and my heart is so touched. We need to change

  • @palesapalesa938
    @palesapalesa938 7 месяцев назад +216

    Being Christian demands you to go against the grain, when you face adversity your response is "thank you" not why me. Thank you guys for just showing the world what Christianity is what it means to walk with christ. Let God show himself strong the way he chooses to. Praying for Lebone ❤

    • @glenngwenya1084
      @glenngwenya1084 7 месяцев назад +5

      @palesa thank you for such a gentle Godly reminder I did that when I lost my girls I asked why me and I thought God allowed me to be a laughing stock and when people felt sorry for me I felt like I was really a certified laughing stock of my hood. Thank you❤❤❤

    • @palesapalesa938
      @palesapalesa938 7 месяцев назад

      @@glenngwenya1084 ❤️❤️

    • @palesapalesa938
      @palesapalesa938 7 месяцев назад +1

      ❤❤

    • @motheowalerato701
      @motheowalerato701 7 месяцев назад

      Amen🙌🙌

  • @claudinemofokeng4025
    @claudinemofokeng4025 7 месяцев назад +95

    ❤bana baka, le hapile moya waka. Authentic, selfless, gracious and full of God's love.
    Bon Bon wa Ouma. I love u with all my heart. May God's will be done in your life. Such LIGHT!!!?

  • @JenniferLange-tq5rr
    @JenniferLange-tq5rr 4 месяца назад +4

    My Baby Girl Matilda was diagnosed with T18 in the first trimester. We decided to continue the pregnancy and let her decide how far she wanted to go.
    Me made it through all the pregnancy and we had the most beautiful unassisted delivery. She was born in heaven 25 hours later! It was the most precious time 🩵 we love her very much.
    Hugging you

  • @duduzilemn6597
    @duduzilemn6597 7 месяцев назад +40

    "Termination was not an option." Your faith, guys, it just renewed me.

  • @khanyi_ng
    @khanyi_ng 7 месяцев назад +246

    I cannot imagine how hard it was for you to even record this video. This was painful to watch but what is comforting is the level of faith I see throughout the video. What I see here are parents who fully trust in the will of God, parents who have decided to find solace in God and His word where disappointment would have wanted to thrive. Oh dreamteam, there is truly a God in heaven who is bigger than a medical diagnosis and you will continue to testify, this is only the beginning of your testimony. ❤

  • @busisiwesibozo1731
    @busisiwesibozo1731 7 месяцев назад +230

    By the stripes of Jesus Christ we are healed. Lebone is healed, loved and designed for a purpose.
    When God created man He declared that it was “VERY GOOD”. Lebone is a very God design of God❤
    I am rooting for you Makhs family. Those who hope in the Lord will have renewed strength. You shall never lack strength because your hope is in the Lord❤

  • @nkolopk
    @nkolopk 7 месяцев назад +217

    You guys are about to be Pastors!! Are about to lead people!!! ..sometimes God prunes you 1st hand to not just speak out of knowledge but experience!!!
    His probably testing your Patience, your commitment, your ability in trusting in him enough!!!
    Might look tough now but I see this a training for the journey you about to take! Endure it,
    Love you guy❤

    • @reabetswem_
      @reabetswem_ 7 месяцев назад +6

      So true 🥰

    • @lalachidi6479
      @lalachidi6479 7 месяцев назад +4

      couldnt agree more

    • @rofhiwamashige4764
      @rofhiwamashige4764 7 месяцев назад +9

      You took the words right out my mouth,I was literally just thinking the exact same thing🥹

    • @Amahle361
      @Amahle361 7 месяцев назад +12

      You are sharing this, that's exactly what crossed my mind. I even said that, maybe they will be the Pastors of a church I will attend, as I have been without a church for two years now. Maybe nje I am waiting for them to start pastoring.

    • @MissNomps
      @MissNomps 7 месяцев назад +2

      Thought of exactly the same thing❤

  • @SimpleFaith-G
    @SimpleFaith-G 7 месяцев назад +34

    Lebone has already stolen my heart. She is a beautiful baby. Lebone will prove Medical Science otherwise. She is going to he living proof that we serve a wonderful God. I have so much faith for her. She has conquered this!! You guys are blessed to be trusted with her life. It only gets beautiful from here …. ❤️

  • @tamimaphangwa8161
    @tamimaphangwa8161 7 месяцев назад +26

    I had an unplanned c-section, the Dr said straight to my eyes that my baby's heart has stopped beating so you know what that means and I said No.. My baby was in NICU for 2 weeks coz she couldn't breath on her own.. Today my daughter is 13 months old and healthy.. God will see you through and baby Lebone will be healed ❤️

  • @Agnetha.K
    @Agnetha.K 7 месяцев назад +157

    "You need to do everything to protect your wife" the video barely started, and I'm already crying 😭

    • @RayOfLetsatsi
      @RayOfLetsatsi 7 месяцев назад +3

      Phetola really won here🥺😭

    • @nkosana_wongama
      @nkosana_wongama 7 месяцев назад +1

      I literally wanna copy&paste her prayers bc what a husband!!😭❤❤❤

    • @mammusomanale7598
      @mammusomanale7598 7 месяцев назад +2

      It’s so emotional, but their believe & strength are unmatched ❤️‍🩹

  • @Jesuslovesme137
    @Jesuslovesme137 7 месяцев назад +136

    And His disciples asked Him, “Rabbi, who sinned, this man or his parents, that he would be born blind?”Jesus answered, “It was neither that this man sinned, nor his parents; but it was so that the works of God might be displayed in him. - John 9:2-3

  • @Gwamza12250
    @Gwamza12250 7 месяцев назад +106

    I'm watching this and I'm crushed . Thinking that I've done abortion and then conceived and everyday guilt was eating me. Everyday I was worried about what ifs. I gave birth to a healthy baby boy. God I'm so sorry for everything I have done. People who love You to their core are being tested. Oh Lord I'm truly sorry forgive my deeds. God I pray for the Makhs and I ask you to show yourself to them God and baby Lebone in Jesus mighty name 🙏.

    • @Grow-at-home
      @Grow-at-home 7 месяцев назад +22

      God is faithful❤️ and the scripture says “ He is faithful and just to forgive our sins” if you have confessed God has forgiven you. He casts our sins into the deepest of seas never to remember it again. Satan wants you to feel defeated. Christ died for all our sins. You have victory in Christ. Don’t feel defeated. Use your testimony to encourage other woman. You brave for sharing. God heal you ❤️🌸

    • @LocalEdits_v8j
      @LocalEdits_v8j 7 месяцев назад +11

      God has forgiven you! It is now time you forgive yourself too, beating yourself into a mistake you made because you didn’t know better won’t make others have healthy babies, don’t get stuck in self condemnation, that is what the Devil wants, use it as learning lesson to glorify God & like Jesus said “go & sin no more”

    • @motheowalerato701
      @motheowalerato701 7 месяцев назад

      ❤❤❤❤

  • @Bazzooooka
    @Bazzooooka 7 месяцев назад +21

    I’m a better person after watching this. I could have watched you all day, as I stay up past midnight buried in my medicine books. As a Christian and future Doctor I must say this tugged at all my heart strings. Learning about the trisomies is all about passing an exam to us at this point, but thank you to your beautiful baby for changing that dynamic. I look forward to journeying with you . Glory to the living God

    • @Loralou4455
      @Loralou4455 7 месяцев назад +3

      Thank you for this, hopefully people like you will change the medical fields in terms of the compassion needed. Stay blessed and all the best 🙏🏽

    • @motheowalerato701
      @motheowalerato701 7 месяцев назад

      ❤❤❤

  • @LindyLanga
    @LindyLanga 7 месяцев назад +115

    “Lebone’s life has SO MUCH PURPOSE.” God is up to something wonderful and very special.

  • @fhumulanicathy
    @fhumulanicathy 7 месяцев назад +237

    She is a real Lebone in your family😭🙌🏽she came and changed your relationship with God.

    • @N.e.n.e.z
      @N.e.n.e.z 7 месяцев назад +2

      What does Lebone mean?

    • @Tshegohatso
      @Tshegohatso 7 месяцев назад +2

      Amen. Glory to God ❤❤❤

    • @ronellecandice1536
      @ronellecandice1536 7 месяцев назад +2

      😭😭😭😭🙏🙏

    • @nthubekhimakondo6384
      @nthubekhimakondo6384 7 месяцев назад +2

      @@N.e.n.e.zLebone means Lamp

    • @rebajardine9544
      @rebajardine9544 7 месяцев назад +5

      John9:1-4 keeps coming to my mind while listening to your story….
      ”While He was passing by, He noticed a man [who had been] blind from birth. His disciples asked Him, “Rabbi (Teacher), who sinned, this man or his parents, that he would be born blind?” Jesus answered, “Neither this man nor his parents sinned, but it was so that the works of God might be displayed and illustrated in him.“
      ‭‭John‬ ‭9‬:‭1‬-‭3‬ ‭AMP‬‬
      May Jesus walk with you on this❤❤❤

  • @lebogangmaphopha8934
    @lebogangmaphopha8934 7 месяцев назад +123

    Family...be strong we are in prayer with you. I gave birth to my son weighing 900g and drs said he will not live beyond 5months. It was not easy i would only cry i couldn't pray i couldn't do anything. He stayed in hospital 11 months. He underwent 8 operations. Today he is 13 very handsome boy, very intelligent....my prayer partner. Sometimes we go through things because of our callings as part of the training. Lebone is not going anywhere. She will grow to tell her story....she is a great woman of God. You are in our prayers The Makhs

    • @NeneShabangu
      @NeneShabangu 7 месяцев назад +7

      Wow what a testimony. Glory to Jesus
      Lebone will get to tell her story...you read my mind. She's a woman of God

    • @tumimasibi2366
      @tumimasibi2366 7 месяцев назад +7

      Man, this comment really touched me 😢you’re so kind and we thank God for the gift of life
      I see Lebone telling her story too. Thank you for sharing ❤

    • @MapuleXimba
      @MapuleXimba 7 месяцев назад +2

      That's so beautiful, Modimo wa metlholo. Praise God. May he grow for the Kingdom of God.

    • @MmeChuene
      @MmeChuene 7 месяцев назад

      Ay😅

    • @motheowalerato701
      @motheowalerato701 7 месяцев назад

      Woooow❤❤❤❤

  • @LadyK09
    @LadyK09 7 месяцев назад +18

    Your loyalty was definitely tested... God is truly going to honor that you stood in his word when it hurt the most 💯

  • @shivonewilson2321
    @shivonewilson2321 19 дней назад +1

    Bless you guys. Congratulations on baby Lebone
    ... My daughter was born with T13... this is so honest... your story sounds so similar to my experience.... I was so scary to admit her differences. She was still perfect to me... I wish I had watched this 5 years ago when i never heard aboout any of this stuff either... i never did the invasive test, but did a blood test that came but 1 in 4565 chance...termination was never a option... my daughter survived 23 days ❤

  • @thembinkosisijabulile3723
    @thembinkosisijabulile3723 7 месяцев назад +12

    This family just earned their self a subscriber. I have a Syndrome as well ,known as Ehlers Danlos Syndrome (EDS) I have the very rare one type 4 and 5. According to the doctors I wasn't gonna make it, my mom says she'd always check if I am still alive. She lived in fear that I would die any day, I just turned 26 last month and I've done beyond what was said about me I even graduated last year (BSc in Biomedical Scientist) the list is yet to get long because we serve a living God. When it comes to doctors we need to not view ourselves in a way they see us or what they say or how much they know, at the end of the day it's only God's will that matters. And somewhere in John He says "God chose us to come bare fresh fruits, that lasts long" I believe God chose Lebone to come and shine the light that she carries despite the diagnose and with God it gets better, I promise. ❤‍🩹❤

  • @setapartbutterfly9142
    @setapartbutterfly9142 7 месяцев назад +146

    1hr video and This is the most quiet I’ve ever seen Lerato, even ending the video he had no words. Reminds me of my husband during our journey and loss. As women we speak, we cry, and they just process in their own way.
    Praying for you guys and our beautiful Bon Bon on this journey.
    The World will know her, many will be healed through her story ❤️

    • @dianadoinglife
      @dianadoinglife 7 месяцев назад +2

      I watched your video last year. May God continue to heal you

    • @Mamaloy86
      @Mamaloy86 7 месяцев назад +2

      Thank you for sharing Lebon story may God give you strength through this, may God heal the little one ❤

    • @setapartbutterfly9142
      @setapartbutterfly9142 7 месяцев назад +1

      @@dianadoinglife thank you so much ❤️❤️

    • @motheowalerato701
      @motheowalerato701 7 месяцев назад

      🥺🥺🥺🥺

  • @Elle_Tee_MrsM
    @Elle_Tee_MrsM 7 месяцев назад +40

    I just want take the weight off of Leratos shoulders and give Phetola a hug. His strain is written all over his face and his silence is so loud. I know its not the same but Drs told us to come say our goodbyes to our dad. We refused and prayed hard he woke up and till today hes referred to as the Miracle man. The Drs & Nurses escourted him on the hallway with song, prayer and claps as he left all in disbelief. I have the same faith for you and your family. Regardless of how things go....GOD WILL ALWAYS BE GOOD. Keep the faith. We love you

  • @PatienceMajasi
    @PatienceMajasi 7 месяцев назад +81

    Lebone girl we love you. your aunties and uncles are here sending you love. We cant wait to celebrate birthdays with you. We thank GOD FOR YOUR LIFE.

  • @moocowtv
    @moocowtv 7 месяцев назад +17

    She has already stolen a piece of my heart..my new internet niece. We stand in agreement that she will live a long prosperous life. I pray for you guys..I pray that God continues to strengthen this family and that He continues to show you how amazing He is.

  • @frankytalks7941
    @frankytalks7941 7 месяцев назад +7

    She was full term and she is now 8weeks, that is a miracle on its own.
    Continue to be Lebone baby girl.
    I recall awaiting my NIPT results while pregnant, it was hard, could not even tell anyone we were pregnant as i was 39yrs at the time, the results came back negative but the process of do you prepare & accept or terminate its a hard conversation to have.
    My faith is renewed in uour testimony

  • @ntokozontsele8194
    @ntokozontsele8194 7 месяцев назад +105

    Praying for you family. I've experienced the same journey. It was twin pregnancy, born at 32 weeks. One twin (a girl) is diagnosed with Williams Syndrome, the other one (a boy) is normal. Good has been so good, they are 10 and both perfectly normally.
    Even though I'm still a special needs mom, I have never been so grateful for her. That child has saved me so much from myself in so many ways.
    Forgot to mention that, the week I delivered them, was the same week my mom started Chemotherapy, so I was so alone in this journey, and sadly she (my mom) passed away 18 months later.
    So nje, life has been giving me lemons but the girl played a huge role in my healing.
    So family, we are here to listen and support you. God is also good, He knows Lebone is exactly were she belongs, with you. You are the chosen ones, so consider yourselves special for being chosen. God has entrusted you with His precious treasure.
    We are special in God's eyes, because of these special beings ❤❤❤

  • @pinkysizani8753
    @pinkysizani8753 7 месяцев назад +54

    “Lebone’s healing doesn’t rest in my hands” I felt that🥹. The battle is indeed not ours but the Lord’s 🙏🏾

  • @siphelelemdakane
    @siphelelemdakane 7 месяцев назад +33

    Lebone is here to break all human protocols and be a living testimony of why Jesus is Lord!

  • @MathebaShibu-mz1nu
    @MathebaShibu-mz1nu 7 месяцев назад +13

    According to medical study Lebone was not even supposed to make it to full term but because God is the only one that knows the end from the beginning we got to meet this beautiful little ngwana,what a fighter she is ❤
    Ausi Pheto stay strong My love,Jehova Rapha will do what he said he will do .

  • @THErealOGse
    @THErealOGse 3 месяца назад +1

    You never think it'll be you. We lost our son July 18, he had a genetic issue where we knew we didn't have long after birth. I cherished every second and there weren't many.
    I find comfort in your story because I feel less alone watching stories like this.
    Cherish every second with your entire family. Know you're loved and your in our prayers.
    Pray for us if you could. I'd like to try again but I'm scared.

  • @mmatsie_tsotetsi
    @mmatsie_tsotetsi 7 месяцев назад +51

    For the fact that she made it to full term and she's 8 weeks it's a testimony on its own. God is able, he's a miracle worker and can do wonders. We will pray for you and Lebone❤

  • @sukithenjiwemwale426
    @sukithenjiwemwale426 7 месяцев назад +254

    The Great Physician will heal her in Jesus name

  • @MisuZama
    @MisuZama 7 месяцев назад +55

    When a man barely has words, you hear his heart. MrsMakhs, your witness to praying fervently reminds me of scripture saying "not by your own doing, so that no one may boast". In this moment, it's so difficult to understand God, but all we need do is TRUST & LEAN into Him. With prayer & supplication, giving thanks to God. He is sovereign. He is on the thrown. He knows you. He knows her. ... Mercy, Grace & Peace to you & yours ❤

  • @anesugweshe5978
    @anesugweshe5978 7 месяцев назад +8

    I have just confirmed that no prayer just goes....You prayed fervently and consistently during your pregnancy,and your daughter has complications but it is those prayers that are giving your strength!

  • @daphneyphoshoko3075
    @daphneyphoshoko3075 7 месяцев назад +4

    Our son was in icu for two weeks after giving birth to him,I couldn't take take him home which us traumatizing for my first pregnancy 💟doctors were telling us his not responding to treatment and he might be brain damaged. We prayed as family and by God's grace and mercy, his alive and healthy, yes his got autism but his an amazing boy. We love him just way he is ✨👑thank you for sharing your testimony inspiring.

  • @tumeloramolula8495
    @tumeloramolula8495 7 месяцев назад +72

    "if you love Lebone the way you love her, how much more do I love her?" God 🥺🥺🥺

  • @Tee-mz9nu
    @Tee-mz9nu 7 месяцев назад +36

    I don't know if it's ok to say this but Lebone has already started saving her purposes because already she has taught me to be grateful. Thank you Lebone for having such an impact. Stay strong mum and dad

  • @bopilaopila931
    @bopilaopila931 7 месяцев назад +42

    I am sitting here and it just blew my mind how many woman go through similar journeys with without this kind of support. Both of your are blessed to have each other. May God continue to cover your guys in his grace❤️and baby Lebone her life indeed is a testimony ❤️

  • @EvidenceofChange7
    @EvidenceofChange7 7 месяцев назад +10

    I honestly believe your prayers to God during pregnancy are what are keeping her today still... as much as she didn't come out healthy as per norm but those prayers are answered already because she has already bit the odds. I believe she'll be healed. She is healed. ❤

  • @Pulliefabulous
    @Pulliefabulous 7 месяцев назад +6

    So much strength and grace in this video 😍 as a paediatrician,Edward syndrome is so rare and complex. We are taught to break bad news as a protocol,it has to be direct and avoid confusion however we have to be present and supportive. I think Lebone’s Dr was thrown off,it’s a difficult diagnosis to pick up and get all the specialists in in a matter of hours. Faith takes over where medical science is uncertain because truly no one knows how long but God♥️

  • @maphuthegophaswana7788
    @maphuthegophaswana7788 7 месяцев назад +39

    This was sooo raw!! 😢... There are authentic couples, and there are The Makhs!... Shuu do we really deserve this? I appreciate this family so much... You guys are building a nation here

  • @ditebohoitumelengmolefe675
    @ditebohoitumelengmolefe675 7 месяцев назад +50

    "She's ours. We're proud of her" ❤❤❤

  • @palesamakhetha1169
    @palesamakhetha1169 7 месяцев назад +64

    Thank you for your honesty and your vulnerability fam. Too many of us as black families specifically attach shame to our "imperfect" children. This channel has been a ministry from day 1 and it's inspiring that even in this challenging time, you have both stood on integrity and shared even that which doesn't glitter. Lebone is a miracle and her purpose is great. Thank you for sharing her with not only us as her family, but with the world. Koena, Rakgadi loves you and couldn't be prouder of the life that God blessed our family with. Halala Koena.

    • @CbosEasyRecipes7
      @CbosEasyRecipes7 7 месяцев назад +1

      ❤️❤️❤️

    • @motheowalerato701
      @motheowalerato701 7 месяцев назад

      ❤❤❤❤

    • @serametlhaganeng1258
      @serametlhaganeng1258 2 месяца назад

      Gynecologist are going through a lot, our went through a lot during our 1st pregnancy, our son was diagnosed with IUGR, I have never been stressed like that in my life, my wife is a medical Dr, she was making things worse when she was explaining some of those experiences of fetal not growing in the womb, we prayed a lot, I stopped drinking that time, my wife was crying always she was admitted for a month, I was checking her everyday but the feeling of seeing her crying everyday was not nice, I was even afraid to take her calls. All our scans were abnormal, birth weight was 1.8kg but God answered our prayers,. Our son is healthy 19 months now even though we struggled about feeding, he was rejecting every milk, spitting, couldn't sleep flat, he was always on our chests for 7 months. He is very naughty and doesn't want to eat😂😂😂
      We are currently on 20 weeks pregnancy, we took blood month ago and last week our daughter was diagnosed with trisomy 18, our gynecologist and specialist are stressed again. We went to do scans yesterday and are normal, we checked everything, we waiting to do amnio fluid test, the needle one. We stressed a lot during our 1st pregnancy, I told my wife that we leave everything to God's hands, whatever results we accept.
      Lebone will be healed in Jesus Christ name, will put her in our prayers. God said I knew you before you were born, He is aware of your journey.

  • @Sarah-h3e6z
    @Sarah-h3e6z 2 месяца назад +1

    Trisomy babies are the best ..My son is 4yrs old and the journey has not been easy but God has been so so Faithful. ....mine is evwn worst bcz I'm rising him as a single mother...But the Love is so unconditional

    • @TheMakhs
      @TheMakhs  2 месяца назад

      Aaaaaw thank you for sharing this with us. What’s his name?❤️🤗. We thank God for carrying you

  • @pamelangwenya2547
    @pamelangwenya2547 7 месяцев назад +6

    You know while listening to this video ,am already seeing her, celebrating her birthdays, her 1st,2nd,3rd,4th, 5th, 10th ,21st birthday and many more birthdays because we serve a living God ❤who just wants us to keep believing in him.

  • @kagisomamabolo6775
    @kagisomamabolo6775 7 месяцев назад +48

    "Be strong and courageous...The Lord your God will be with you" Joshua 1:9

  • @skillscatalyst9949
    @skillscatalyst9949 7 месяцев назад +95

    Hi guys, i never comment on social media pages, but this story broke my heart. The first pic on this video brought nothing but pain and tears to me. I am a believer, and a mother of 3 girls. I had all my babies with natural birth, so i relate to everything including the refusal to go for scans because i also refused because i was told that if there was anomality they would not change that. So what's the point because i wasn't going to terminate. So i can understand the disappointment after praying so hard. For a minute i asked God why, and he took me to the story of Job. He did everything right but he still got tested...Job:13:15 says Though he slay me, yet will I trust in him: but I will maintain mine own ways before him. Hallelujah. God chose you guys, and this is part of your ministry especially because you are perfect storytellers. God wants to use you guys, and the journey has started... Such a beautiful name "Lebone". Light shall indeed shine on your path. Job22:28

  • @shantellfredericks
    @shantellfredericks 7 месяцев назад +30

    To: Lebone 💐
    Psalm 139:14 I praise you because I am fearfully and wonderfully made; your works are wonderful, and I know that full well.
    Love from Namibia 🇳🇦

  • @blessyJoyous
    @blessyJoyous 7 месяцев назад +2

    Lebone is indeed the light of the world. May God keep her for the world to see how our God is a miracle worker. We love you guys ❤❤❤

  • @MbusoMaphumulo-t9m
    @MbusoMaphumulo-t9m 7 месяцев назад +10

    When I was pregnant 2 years ago after they did the genetic testing I was told that my daughter has a high probability of having down syndrome. I then offered further test to confirm, but the Dr was adamant that she is more than likely to have down syndrome. I even remember I had to sign a disclaimer that the Dr had informed me of this. My daughter is now 2 years old and she doesn't have down syndrome. She has no health conditions that are serious in fact she is very healthy. My point is even the test's themselves can be wrong. It is my belief that you have a very gifted and special child, cherish your moments with her .My daughter's name Kganya Lebone

  • @Tshedza623
    @Tshedza623 7 месяцев назад +43

    She is so gorgeous my word 😭😭😭😭

  • @simphiwemabelane170
    @simphiwemabelane170 7 месяцев назад +51

    Go and tell them, "I am that, I am" He never fails family... 🙌🙏

  • @Nozipho_N
    @Nozipho_N 7 месяцев назад +44

    My brother's first child had the same condition, the Lord held us through ❤❤❤❤ I'm genuinely sending you love and prayers. I will put you guys in my 12 midday daily prayers. Jesus is till on the throne❤ I'm glad you are rooted in Christ ❤❤ I love you both and your family

  • @WordsPictures997
    @WordsPictures997 Месяц назад

    "... she's loved, she's ours, we're proud of her.... " 🙌 We're greatful for you family. May God keep holding you and showing Himself to you all ❤ Thank you for letting us in. Praying with and for you

  • @tshegofatsomothoagae7151
    @tshegofatsomothoagae7151 7 месяцев назад +4

    Mr Makhs, I see how strong you’re being for Mrs Makhs and the family. May the Lord continue to give you strength and comfort. Little Lebone is so precious ♥️

  • @luciamoshoeshoe8145
    @luciamoshoeshoe8145 7 месяцев назад +12

    Why do I feel God's presence and readiness to perform miracle in this whole situation? God is so strong please be strong parents our God makes a way where there is no way. In our thoughts and prayers ❤❤❤ the Light in Lebone's life is going to brighten up and change so many people's lives, watch the space.

  • @mhigama9820
    @mhigama9820 7 месяцев назад +53

    We speak life over your precious baby Lebone in Jesus name ❤

  • @caeligratia6706
    @caeligratia6706 3 месяца назад +1

    My brother has Trisomy 18. He just turned 2 and he's thriving 🤍 thank you all for sharing about your sweet baby girl!

  • @SuperSlindz
    @SuperSlindz 7 месяцев назад +29

    This has broken my heart and also healed me in so many ways. I lost my first baby 6 months in utero and my second born is autistic and non verbal. i had (have) a lot of questions and disappointments but watching you guys has been somewhat healing ❤❤
    I thank God for you and your precious baby and i pray that God sends you help from His sanctuary and grant you all the support you need ❤❤

  • @Andrea__Moodley
    @Andrea__Moodley 2 месяца назад +1

    I balled my eyes out. I lost my 11 day old baby last month, Zachariah was born in Mauritius, where my husband and I live. After we lost him, we thought if only we came to SA to deliver him, that could have saved his life but now I see that God knew his condition before we did. We prayed, our church prayed and God's will was done... I have to accept it 🙏🏼 I was searching for other parents who have had a trisome baby and Lebone story has really helped me. May The Lord be present, I love the part where you said you are proud of her ❤ God strengthen you all 🙏🏼🙏🏼🙏🏼

  • @TAKEOFFYOURSHOESPODCAST-re5sn
    @TAKEOFFYOURSHOESPODCAST-re5sn 7 месяцев назад +7

    when an experience takes you back to the cross , it has surely fulfilled its purpose.May God renew you strength everyday according to His word.

  • @ngubanezukiswa4557
    @ngubanezukiswa4557 7 месяцев назад +23

    My son was born with mild cerebral palsy, the journey has been tough but the Lord has been amazingly wonderful to us,coz our son is regaining his left hand strength he's 9 yrs old now. Will remember you guys in our prayers. May God strengthen you

  • @kyln9136
    @kyln9136 7 месяцев назад +17

    I went through a similar journey with Trisomy 13, it was back in 2010, but the video of everything that happened at birth doesn't fade from my mind. I understand what you are going through and my prayers are with you and with Lebone. In this life, we might never understand all things, but may you be encouraged in that God knows all things, and allowed this to be your journey, He will see you through it.

  • @bavuyisedweba6899
    @bavuyisedweba6899 7 месяцев назад +25

    Homies with extra chromies are literally the happiest people on the planet. Never met one of them who didn't exude joy. God has blessed you with the capacity to meet all her needs and that's all she needs. She's going to LIVE up to that beautiful name you gave her ❤❤

  • @Jubileerivombo1
    @Jubileerivombo1 7 месяцев назад +5

    Lebone is her name. She is already a light in our world. Above all, God is good. I love you fam so much Thank you to the Makhs for this vulnerable video.
    We pray for strength, speak life and health in the name of Jesus .❤

  • @charmainemoyo1072
    @charmainemoyo1072 7 месяцев назад +3

    Jehovah Rapha....Miracle worker....lover of our souls....Jesus have your way. lm in tears and blessing God for who He is and expectant of the miracle He wants to show us through Lebone's life.❤❤❤❤

  • @mukilegratitude3820
    @mukilegratitude3820 7 месяцев назад +43

    I can't wait for lebone to grow up and share her story. ❤️ May God give you strength to raise her.

  • @nosa9475
    @nosa9475 7 месяцев назад +24

    The fact that you you thought about your wife and her feelings after the baby was born and you protected her because you wanted her to think of the positives was very beautiful! Thank you guys for being vulnerable and sharing your story ❤️🙏✨

    • @zeebucie1875
      @zeebucie1875 7 месяцев назад +1

      She is so beautiful and perfect.God is good.
      Bhut Lerato you touched me so much when you said "God is good that even in pain and in confusion he shows up"thank you guyz for your testimony🫶🏾

  • @nokumonde6409
    @nokumonde6409 7 месяцев назад +18

    I cried throughout the entire video, there’s a beautiful verse that has been a comfort to me the past few days ethi Be still and know that I am God

  • @natooshzucherro7250
    @natooshzucherro7250 7 месяцев назад +4

    It took me 1 week to clicks play what a testimony, God is great and faithful in all he does. The way he want to reveal himself through this journey is a lifetime story that will carry us forever in Christ .it is well ❤

  • @buyisilemohale2881
    @buyisilemohale2881 7 месяцев назад +6

    He's still an UNCHANGING God! May He continue to strengthen you Makhs

  • @kananelomohlalisi4049
    @kananelomohlalisi4049 7 месяцев назад +39

    Sesotho se re "Lebitso lebe ke seromo". Lebone's name is so powerful to you and her life journey. She is the "Light" that God has purposefully placed in your life. We pray that the mercy of God will be shown through her life. Also it is a testament already of when God has brought a marriage for purpose, it will weather storms. His ways are not ours and the glory of God shall be shown through your lives. We are with you " The Makhs" and we are praying for you.❤

  • @ntsikidladla692
    @ntsikidladla692 7 месяцев назад +12

    Watching this made so emotional zange ndakhala kanje. and all this took me back when I gave back to our premature son he stayed in NICU for 2 months. Me and my husband we fully depended in GOD and we spoke God's word upon his life and God showed us grace and mercy. He's now 12 years health and very intelligent.
    So I know your pain Sisi continue trusting God he will most definitely make a way for you Family. We speak life upon Lebo e she is indeed the light to the world. We love you fam❤

  • @rumbiedongo3370
    @rumbiedongo3370 7 месяцев назад +9

    Psalms 34:1 (NLT) I will praise the LORD at all times. I will constantly speak his praises. God is good always

  • @NatashaMarere
    @NatashaMarere 7 месяцев назад +4

    This was too much for me to listen to because you guys are one of those couples I look up to ,and it breaks my heart understanding that you guys had to endure so much but it makes me so much happy that through all this you kept trusting God and seeing that Lebone is surrounded with so much love I believe and pray that God will heal Lebone and heal you guys and make you whole

  • @noluvombali6911
    @noluvombali6911 7 месяцев назад +8

    I need to commend Lebones mother for her bravery, her strength and testimony and not forgetting Lebones father for being there through it all and being the pillar of strength. Your faith and resilience is not of this world, and God is ministering through you. There is still more testimony that is coming with Lebone. God is indeed good, and all the time 🙏🙏🙏🙏🙇‍♀️

  • @shalatimachimana334
    @shalatimachimana334 7 месяцев назад +24

    “Lebone is loved and she is ours” We love baby Lebone and praying for you family 🤍🤍🤍

  • @mpumitshabangu17
    @mpumitshabangu17 7 месяцев назад +13

    “Le lesedi la lefatshe. Motse o hahilweng hodima thaba o sitwa ho pateha; 15 LEBONE le lona ha le ke be le hotetswe le kwahelwe ka nkgo, empa le bewa sedulwaneng sa lona, le kgantshetse bohle ba ka tlung. 16Lesedi la lona le ke le kganyetse batho jwalo, ba tle ba bone mesebetsi e metle ya lona, ba be ba tlotlise Ntata lona ya mahodimong.”
    LEBONE - something that illuminates
    LE _ BONE - A command to see
    THANK YOU FOR NOT HIDING YOUR LIGHT FROM US, WE SEE YOUR GOOD WORKS AND THERES NO OTHER WAY TO RESPOND BUT TO WORSHIP GOD.
    I LOVE AND ADORE LEBONE

  • @lebogangramela7093
    @lebogangramela7093 7 месяцев назад +31

    Me watching this as a medical dr really breaks my heart..we really need to work on our patient care😭

    • @Loralou4455
      @Loralou4455 7 месяцев назад +1

    • @RubaJust
      @RubaJust 7 месяцев назад +6

      Is it because you work with these patients daily that you see them as objects?

  • @Mindfulness_Beyondthemind
    @Mindfulness_Beyondthemind 7 месяцев назад +3

    Lebone La Bakwena is testament that we serve a LIMITLESS GOD!! May the joy of the Lord be your strength for when you are weak you are then strong

  • @ronicadutlo8075
    @ronicadutlo8075 7 месяцев назад +1

    Your faith & luv for each other is phenomenal,Lebone will keep on shining on your life & the rest of the world.