Thank you so much for sharing so much of your reality as a chronically ill, self-employed zebra! I've been following you on Insta for a while, but only just now made it over here to your RUclips. Your Instagram has been one of the major inspirations for me to start sharing my EDS life on my own RUclips channel, which is really something I feel like I need to do to be honest about my lived experience, I guess? I'm editing my first EDS-related vide right now, and it scares the crap out of me, but seeing your openness and warmth about chronic illness is both validating and inspiring to me to share more, as well. Thank you for all the work you do - it really does help people so much to see it!
Aww thank you so much Robin this is so lovely!! Sharing on youtube is super scary but theres such an amazing community here who im sure will love your content!! Sending loads of spoons and love and luck your way x
My daughter was recently diagnosed with POtS and I also suspect MCAS so that’s how I came across your channel. You have helped me understand what she needs and how she feels. I appreciate all that you share. I am following you on IG and will start following you on TikTok. When I am cleaning I tend to watch longer RUclips videos but I appreciate the short reels when I don’t have as much time.
Jenni, I had the vaccine yesterday, luckily with no side effects. I wasn’t hearing from my doctors about it, so rang them up and reminded them. The next day they called me to come in for the vaccination. Hound them until they take note. Good luck!
Tik tiock - no never look at it, my 13 yr daughter does. Instagram- I go thru phases- and right now have been off it- for 6 months now, for various reasons, but generally yes I do love it.
Can’t give u any vaccine tips as I’m sure uk and USA are entirely different. But I can relate to the stress- in Jan I started panicking about me and my mum- both hi risk (EDs/copd etc etc etc) as well as dad- copd and hub(heart issues).... we all did finally get our first shots- on diff days- I’m closest to second jab at 8 days left now. (And now worrying about the second jab supposed reaction 😂) but am soooo great ful we all got the appointment. Soooooo many people still way down on the list.
Thanks for sharing your experiences! I have similar experiences, hopefully the Dr.s can look into this. I am wondering when you over do it and are down for 2 or 3 days have you also gotten a fever during this time?
Thank you for making this spoony smile smile even in pain🦔🦔😚😇
Aww thats so lovely of you to say x
Thank you so much for sharing so much of your reality as a chronically ill, self-employed zebra! I've been following you on Insta for a while, but only just now made it over here to your RUclips. Your Instagram has been one of the major inspirations for me to start sharing my EDS life on my own RUclips channel, which is really something I feel like I need to do to be honest about my lived experience, I guess? I'm editing my first EDS-related vide right now, and it scares the crap out of me, but seeing your openness and warmth about chronic illness is both validating and inspiring to me to share more, as well. Thank you for all the work you do - it really does help people so much to see it!
Aww thank you so much Robin this is so lovely!! Sharing on youtube is super scary but theres such an amazing community here who im sure will love your content!! Sending loads of spoons and love and luck your way x
My daughter was recently diagnosed with POtS and I also suspect MCAS so that’s how I came across your channel. You have helped me understand what she needs and how she feels. I appreciate all that you share. I am following you on IG and will start following you on TikTok. When I am cleaning I tend to watch longer RUclips videos but I appreciate the short reels when I don’t have as much time.
Aww thank you so much Shawna and so glad my content is helping you support your daughter! Lots of love xx
Jenni, I had the vaccine yesterday, luckily with no side effects. I wasn’t hearing from my doctors about it, so rang them up and reminded them. The next day they called me to come in for the vaccination. Hound them until they take note. Good luck!
So glad you avoided any side effects! I did manage to hound them and get one but so frustrating we have to hound them! x
That rainbow look is gorgeous! It really made my day brighter. 🌈
Thank you so much definitely cheered me up too!
I ADORE your friday makeup
Thank beautiful! I wish i'd have got better photos of it! x
Keep up with the content. 👍☺💜
Finally back on track haha x
i have that same rainbow cardigan! super cute on you with the eyeshadow to match!!
Aww thank you so much x
Tik tiock - no never look at it, my 13 yr daughter does.
Instagram- I go thru phases- and right now have been off it- for 6 months now, for various reasons, but generally yes I do love it.
Tiktok scares me a little definitely one for the teenagers! Love instagram though, it had accidentally become my main platform.
@@ChronicallyJenni yes tik tok is not for me- only my daughter! I will get back on IG and check out your feed.
Can’t give u any vaccine tips as I’m sure uk and USA are entirely different. But I can relate to the stress- in Jan I started panicking about me and my mum- both hi risk (EDs/copd etc etc etc) as well as dad- copd and hub(heart issues).... we all did finally get our first shots- on diff days- I’m closest to second jab at 8 days left now. (And now worrying about the second jab supposed reaction 😂) but am soooo great ful we all got the appointment. Soooooo many people still way down on the list.
So glaf you all managed to get your vaccines!! x
@@ChronicallyJenni yes! Tho my mum needs her second one still, but she’s in a physical therapy rehab now and has to wait.
Thanks for sharing your experiences! I have similar experiences, hopefully the Dr.s can look into this. I am wondering when you over do it and are down for 2 or 3 days have you also gotten a fever during this time?
Hope your drs can look into that! I don't tend to get a fever exactly more pink hot cheeks x
I love it! walking together you look like two shy teenagers kissing secretly.
haha love that!
Me and mom are still waiting for the jab to.... nightmare!