Kyle Bryant on Living With Friedreich's Ataxia
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- Опубликовано: 27 авг 2009
- Kyle Bryant talks about living with Friedreich's Ataxia and efforts nationwide and at the University of South Florida to raise funds for the little-known yet life-altering neurological disease.
Almost reminds me of mild cerebral palsy, i have a friend with f.a. Shes one of the sweetest girls i know.
you inspire me..may help come to all of you who suffer from this soon
I also have FA , and now i will try Idebenone in high dosage to see if there is any change in the behaviour of FA. And by the way, treatments for FA are available in US labs , but they don't make it public. Human frataxin is available for sale in US labs. As you know, in FA there is not enough frataxin produced by the mythocondria of our cells. May God touch the hearts of those who have the cure and keep it hidden from the people who need it...
My name is also Kyle Bryant
@azilanaolim i thank to God, i have no pain. What kind of pain does your husband have? I wish you both a BETTER and HAPPIER new year !
i noticed when i was12 der was sumtin wrong wit me but i tuk no notice i taught it was all in my head....... i was badly bullied durin school bcoz of my speach and my balance .
wen i was 17 i was diagnosed with it ....
im now 20 i have a job and i study engineering
sure d condition is very hard 2 live with but if i cud turn bak time when i was in school id kick shit outta them bullies.......
I saw the movie The Cake Eaters. I just got aware of this disease, because of the movie. I have never heard of the disease before. I really liked her in the movie.I think she was convincing.
My mum had this condition..
I also see Dr Z for my FA as well.
Hey. i have FA and i have a high tolerance to pain is FA doing that?
yes its possible, as there is peripheral nerve degeneration as well, motor and sensory nerves can be affected, hence your higher tolerance for pain.
Has anyone ever seen Kristen Stewart's portrayal of a girl living with Friedrich's Ataxia in the movie The Cake Eaters? It's definitely a very convincing portrayal.
my father just passed away with fa u think i should get testing
Yes, it is a genetically transmitted disease.
@kylepyro991 i know d feelin man ............
@kylepyro991 my speach is fairly ok . my balance is fairly shit alright but ders no point in gettin down bout it it cud be alot worse i consider myself lucky .......enuf..