SEPTEMBER LIVE STREAM - BREAKTHROUGH TREATMENT FOR SPMS?

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  • Опубликовано: 5 окт 2024
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    NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help educate others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!

Комментарии • 53

  • @BornAgainFarmGirl
    @BornAgainFarmGirl 8 дней назад +5

    I was just diagnosed with secondary progressive M.S. , 35 years of relapsing m.s. not to bad 😊.

  • @luclucyt5426
    @luclucyt5426 8 дней назад +3

    Watching from Athens Greece

  • @debbiewardcasey2362
    @debbiewardcasey2362 4 дня назад

    Watching from Peachtree City GA

  • @stonz42
    @stonz42 8 дней назад +2

    Thanks Dr B. I’m bummed by the latest studies of BTKIs. I was hoping to make the switch to a BTK from ocrevus for my RRMS. I’ve been on ocrevus for 2 years and doing well so far. However, I worry about the long term implications of being immunosuppressed.

  • @ninaremillong
    @ninaremillong 8 дней назад +6

    My audio is up as it can go and I can barley hear you

  • @jenie1016
    @jenie1016 8 дней назад +1

    Thanks again Dr Boster for an Awesome video 👍🔥🔥🔥

  • @leonawilliams8102
    @leonawilliams8102 7 дней назад

    Hi Dr Boster!!!🎉🎉🎉🎉🎉

  • @ldjt6184
    @ldjt6184 8 дней назад +2

    'Paltry' is the first word that came to mind regarding the efficacy of tolebrutinib to help people with MS.

    • @georgielol
      @georgielol 7 дней назад +1

      It's a lot better than "nothing".

    • @ldjt6184
      @ldjt6184 7 дней назад +1

      @@georgielol Yes, but are the side effects worth the paltry? That's what I'm not sure about. Always weigh the risks vs benefits.

    • @georgielol
      @georgielol 7 дней назад

      @@ldjt6184 That's up to every individual to decide. No drug is without side effects.

  • @ginnydercole1647
    @ginnydercole1647 7 дней назад

    I am so thankful my daughter found you! 😊

  • @winiomiszcz
    @winiomiszcz 4 дня назад

    Watching in Poland. Best wishes ! :)

  • @elizabeththomas7185
    @elizabeththomas7185 8 дней назад +1

    Sorry I missed your live stream because I was out with friends and one of my sisters!

  • @JoyceSteiner-f8e
    @JoyceSteiner-f8e 8 дней назад +1

    Had an episode yesterday. Woke up with less balance, made my way downstairs and got out to garage and let cats out. Using my cane, made it to the kitchen, poured my coffee. As I was preparing it for tomorrow, I felt suden weakness.. I dropped to the floor.. a roommate helped me back up and I stayed in my bedroom for rest of day
    Started feeling better. I let both my PCP and Neurologist know online.. the GP called me to hear what happened immediately.. they had me take my BP and oxygen levels.. BP had dropped to 97 over 63. Normal for me is 100/60.. he had me drink an ensure.. what causes this drop in BP?

  • @lanacullis429
    @lanacullis429 5 дней назад

    I noticed that you did not speak to the side effect profile in Hercules. When I look at the table I wonder about the increased rates of infection among those on the target drug. These seem significant to me mainly because as patients we are taught that infection can spike relapse occurrence. I wonder if you might follow up in the future with one of your short videos and discuss this quandary. Kindly, Lana

  • @carmenbailey1560
    @carmenbailey1560 8 дней назад +2

    Ontario, Canada

  • @jennifermontgomery7470
    @jennifermontgomery7470 4 дня назад

    Terrific presentation as always-many thanks. I’m now SPMS and would be very interested in using Tolebrutinib off label. I hope to be accepted to your clinic and see you in the near future!
    I do get up about 3x per night to pee, even if I have laid off fluids by mid afternoon -how on earth can I change that in order to improve sleep hygiene?

  • @GoobsfishinNstuff
    @GoobsfishinNstuff 5 дней назад

    North Carolina

  • @Jerusalem_Warrior
    @Jerusalem_Warrior 8 дней назад

    I'm ready to try. My MS is progressing relentlessly on Ocravus, and I'm dying of Crap Gap. I don't think my neuro from Hadassah is going to go for it, though. She already told me a while ago that the BTKIs aren't proving themselves in the trials. 🙄
    Best blessings from Jerusalem! May you and all our worldwide MS community be written and sealed for a good and sweet New Year! ⚖️ ✒ 📙 🍯 🍎 👑

  • @josephvered3991
    @josephvered3991 7 дней назад

    Hi from Israel thanks for this video wish you our happy new year

  • @izziizzimac3341
    @izziizzimac3341 7 дней назад

    I’m from Florida. Can’t wait.

  • @desiredecove5815
    @desiredecove5815 8 дней назад

    Love your specs Doc. 👓
    Looking smart : catching up on this educational livestream.
    Love the visual graphs comparing the different meds in the studies- ty for explaining these.
    😂no treatment after death- now that is the BEST explanation of when we stop treatment.
    Have a great night-
    #Sharingiscaring
    Giddyup
    😘

  • @michorote106
    @michorote106 7 дней назад

    I'm in new Jersey

  • @kayrosswog7572
    @kayrosswog7572 8 дней назад

    Been waiting for this and somehow I missed it live!😩

  • @brendagates9368
    @brendagates9368 8 дней назад +1

    Colorado

  • @melissapratt143
    @melissapratt143 7 дней назад

    Love your new glasses

  • @julielewis4779
    @julielewis4779 8 дней назад

    Can hear you, Winnemucca nv

  • @jenncarterkarim1080
    @jenncarterkarim1080 8 дней назад

    Misdiagnosed at first w/PPMS then NMOSD. There is some scarcity of some meds like rituximab here in the mid east...so Im wondering if Imuran or some other immunosuppr. meds you can recommend might be helpful? Thanks, Doc. Always try to catch your content. 😊

  • @JoyceSteiner-f8e
    @JoyceSteiner-f8e 8 дней назад

    Same about hearing you

  • @mirandafolland3440
    @mirandafolland3440 8 дней назад +1

    Can't hear you well enough to listen. Too bad.

  • @adamwlodarczyk3539
    @adamwlodarczyk3539 7 дней назад

    Australia

  • @Yllohyllod
    @Yllohyllod 5 дней назад

    Jump to 28:50 for the beginning of the video.

  • @JoyceSteiner-f8e
    @JoyceSteiner-f8e 8 дней назад

    I'm JJ, 70 year old female in So Cal

  • @RosanneW-ws5su
    @RosanneW-ws5su 8 дней назад

    Turn up volume

  • @caroleford6608
    @caroleford6608 8 дней назад

    Mississippi

  • @ldjt6184
    @ldjt6184 8 дней назад

    Audio is what too low, I'm straining to hear you even with both RUclips and system volumes turned up to the max.

  • @ahmeterwinog6295
    @ahmeterwinog6295 8 дней назад

    Hi Dr. Boster
    I missed your last live streams -_-.
    When it will be your October live stream? I want to join

    • @busygirl4474
      @busygirl4474 8 дней назад

      I’ve missed them lately

    • @ahmeterwinog6295
      @ahmeterwinog6295 8 дней назад +1

      @@busygirl4474 same due to work and need plenty of rest on weekends.

  • @karrinleecasper-bryan1685
    @karrinleecasper-bryan1685 7 дней назад

    Ok for me

  • @Roadwaymike
    @Roadwaymike 4 дня назад

    Pipe 307 what’s the deal?

  • @adamwlodarczyk3539
    @adamwlodarczyk3539 7 дней назад

    🔥

  • @ninaremillong
    @ninaremillong 8 дней назад

    Wyoming

  • @Tiffanyp1129
    @Tiffanyp1129 8 дней назад

    Florida

  • @theresa6837
    @theresa6837 8 дней назад

    Audio is not good at all and gave to volume up to 30!

  • @Keymax232
    @Keymax232 8 дней назад

    can't hear anything darn it

  • @kimdoss947
    @kimdoss947 7 дней назад

    Audio is on blitz

  • @karenchakey
    @karenchakey 8 дней назад

    No sound

  • @harmcity9934
    @harmcity9934 8 дней назад

    cant hear :(

  • @JoyceSteiner-f8e
    @JoyceSteiner-f8e 8 дней назад

    Sorry 97/53

  • @tflreborn3419
    @tflreborn3419 8 дней назад +2

    Audio fine through iPhone but low on PC.