2024 - Audrey Thurm - Outcome Sets to Outcome Measures: Focus on Measures Assessing Neurodevelopment

2024 CCDS Scientific & Patient Symposium
Session 6: Core Outcomes & Clinical Readiness
Zahra Nasseri Moghaddam: Establishing a Core Outcome Set (COS) for CTD & GAMT Deficiency
• 2024 - Zahra Nasseri M...
Emily Reinhardt: The CreatineInfo Patient Registry: Updates and Utilizing the Core Outcome Set (COS) to Shape Future Surveys and Prepare for Clinical Trials
• 2024 - Emily Reinhardt...
Audrey Thurm: From Outcome Sets to Outcome Measures: A Focus on Measures Assessing Neurodevelopment
• 2024 - Audrey Thurm - ...
Heidi Wallis: Parents Advancing REsearch NeTworkS 2.0: Expand Community, Tools, & Engagement (PAReNts 2.0: ExCiTE)
• 2024 - Heidi Wallis - ...