I have this condition. Treatment has been life-saving! I was developing anaphylactic allergies. Thank you for spreading the info. Mcas is likely fairly common, and tons of people have some mast cell mediated disease (like allergies or asthma), but not the whole thing. Treatment with antihistamines and a mast cell stabilizer has been so simple and transformative!
Thank you for your feedback! We're glad the info could help :) Hey would you like to download a copy of Dr. E's course series? We can send the link if you'd like
There's more certain and specific tests, but sometimes people and their doctors try this, if they don't have access to the proper testing. The ideal test is a particular urine prostaglandin, but the sample needs to be kept at a very particular temperature so not a lot of labs do it yet. Easier tests tend to be tryptase and histamine levels. Dr Becky Campbell has a book called The Histamine Reset Plan, which even covers the process of finding doctors and managing your health in the meantime. I've been lucky enough to see a MCAS specialist here in the UK, but it's been harder for family of mine in the States. Depends on where you live... I see a hematologist. More often it's treated by allergy and immunology. But, even a GP/primary care doctor could potentially help you look into it. They may not have heard of it, but I've found it's pretty easy to explain to a lot of clinicians. They know what mast cells are, and understand why they could cause issues
When I go inside Lush/Bath&Body stores I feel the onset of migraine. 😞 it also happens when I go in certain clothing stores. It’s always the smell that activates my migraine. Dr. E some say Hashimoto patients can experience this, mimicking MCAS.
I have Hashimoto and even post thyroidectomy due to papillary ca. I still experience flair ups, in my digging into this hashis have very similar triggers with mcas. I have become very sensitive to a lot of things. When I came to know about this, I just avoid coming in to stores that trigger my flares. I also avoid perfumes. I use scents that have natural/clean ingredients only, when it’s candles I use beeswax candles only. In a general sense I avoid stuff with harsh chemicals. In one instance, when I started using Invisalign for my crowding, I experienced eczema on my face ears neck. It’s the kind that is flaky dry hard and rough, and it was not getting any better. What I did, I fasted for 7 days with water only. The eczema went away and has not gone back. So suppose I have MCAS too, my body has always been at a tipping point. It couldn’t handle the build up of histamine in my body (in my learning, the gut is responsible for eliminating histamine out of the body), so due to leaky gut from hashis that also attack my gut because of gluten sensitivity and dairy allergy (I only knew about my this 2 years ago, so all my life I’ve been eating gluten&dairy). When I did that fasting, and consuming food/drinks that are safe since then, my body was able to recover on its own. I am super reactive to anti histamines. It doesn’t help, it gives me brain fog and dry eyes. My only option really is to heal my gut and go natural/clean with things I use for my body. I really appreciate your channel! Very informative!
I’m also serious about probiotics that are GF/DF. I stop taking quercetin, it’s not ideal for those taking thyroid replacement hormone. It’s a thyroid disruptor. It elevated (normalized) my TSH which is a big no for post thyroidectomy secondary to papillary ca. But I guess it’s safe for MCAS. I’m on a tight spot but hey I am alive and well! Thank God! 😂
I’m *lucky* in that I had completely unexpected anaphylaxis and I was easily diagnosed. It happened post COVID. What are your thoughts on Xolair while treating underlying symptoms?
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I have this condition. Treatment has been life-saving! I was developing anaphylactic allergies.
Thank you for spreading the info. Mcas is likely fairly common, and tons of people have some mast cell mediated disease (like allergies or asthma), but not the whole thing. Treatment with antihistamines and a mast cell stabilizer has been so simple and transformative!
Happy to know the information could help!
It's incredible to hear how treatment has made such a positive difference in your life!
You mentioned an episode that goes into more detail about belly health and the 5 R method - which one is that? Thanks!
Fantastic information. Best I've seen. Thank you.
Thank you for your feedback! We're glad the info could help :) Hey would you like to download a copy of Dr. E's course series? We can send the link if you'd like
So could you diagnose mcas by taking antihistamine tables for a while and see if there's an improvement in symptoms?
There's more certain and specific tests, but sometimes people and their doctors try this, if they don't have access to the proper testing.
The ideal test is a particular urine prostaglandin, but the sample needs to be kept at a very particular temperature so not a lot of labs do it yet.
Easier tests tend to be tryptase and histamine levels.
Dr Becky Campbell has a book called The Histamine Reset Plan, which even covers the process of finding doctors and managing your health in the meantime.
I've been lucky enough to see a MCAS specialist here in the UK, but it's been harder for family of mine in the States. Depends on where you live...
I see a hematologist. More often it's treated by allergy and immunology. But, even a GP/primary care doctor could potentially help you look into it. They may not have heard of it, but I've found it's pretty easy to explain to a lot of clinicians. They know what mast cells are, and understand why they could cause issues
When I go inside Lush/Bath&Body stores I feel the onset of migraine. 😞 it also happens when I go in certain clothing stores. It’s always the smell that activates my migraine. Dr. E some say Hashimoto patients can experience this, mimicking MCAS.
That's interesting! Have you found any strategies or coping mechanisms that help you manage these reactions when you have to go into those stores?
I have Hashimoto and even post thyroidectomy due to papillary ca. I still experience flair ups, in my digging into this hashis have very similar triggers with mcas. I have become very sensitive to a lot of things. When I came to know about this, I just avoid coming in to stores that trigger my flares. I also avoid perfumes. I use scents that have natural/clean ingredients only, when it’s candles I use beeswax candles only. In a general sense I avoid stuff with harsh chemicals.
In one instance, when I started using Invisalign for my crowding, I experienced eczema on my face ears neck. It’s the kind that is flaky dry hard and rough, and it was not getting any better. What I did, I fasted for 7 days with water only. The eczema went away and has not gone back.
So suppose I have MCAS too, my body has always been at a tipping point. It couldn’t handle the build up of histamine in my body (in my learning, the gut is responsible for eliminating histamine out of the body), so due to leaky gut from hashis that also attack my gut because of gluten sensitivity and dairy allergy (I only knew about my this 2 years ago, so all my life I’ve been eating gluten&dairy). When I did that fasting, and consuming food/drinks that are safe since then, my body was able to recover on its own. I am super reactive to anti histamines. It doesn’t help, it gives me brain fog and dry eyes. My only option really is to heal my gut and go natural/clean with things I use for my body.
I really appreciate your channel! Very informative!
I’m also serious about probiotics that are GF/DF. I stop taking quercetin, it’s not ideal for those taking thyroid replacement hormone. It’s a thyroid disruptor. It elevated (normalized) my TSH which is a big no for post thyroidectomy secondary to papillary ca. But I guess it’s safe for MCAS. I’m on a tight spot but hey I am alive and well! Thank God! 😂
awesome❤thanks
Thank you!
I’m *lucky* in that I had completely unexpected anaphylaxis and I was easily diagnosed. It happened post COVID. What are your thoughts on Xolair while treating underlying symptoms?
Hello, this is Dr. E's team! Unfortunately, Dr. E doesn't manage these comments, but I will make sure to pass along your question.
All that is my
❤❤
Thank you for this info & presenting it in a way that is accessible.
Happy to know the information could help! Would you like to learn more health info from Dr. E?