I have Septo Optic Dysplasia. Which is a rare brain condition that caused me to be born totally blind, and it also caused me to be on the autism spectrum, and I have complex PTSD. I stim a lot due to being blind and autistic. Fun fact, the correct term for blind people who stim is called blind isms. I rock, shake my head, touch and explore everythying, sit with my head down, flap my hands sometimes, and I vocal stim a lot. People have tried to get me to sit up straight, to not touch things and to always keep my hands to myself, to sit still, the list goes on. It’s caused me to mask and limit myself to not do them at all, even though I like them and they benefit me. I’m trying to learn to unmask my differences and not feel inadequate and not be a perfectionist in order to fit in with society’s norms. Overall, I love myself. I love my uniqueness, and I love my blind isms and my autistic stimming. I need to just get out of my head, let go of the perfection, the restrictions and not think about who will judge me.
Great video Emily! Thanks! OT mom here 👋🏻 just wanted to add that toe walking can lead to other orthopedic issues down the line which is a reason for helping to minimize this stim. And as you said stims are great to help regulate the individual when used appropriately.
Loved the video,love listening to your knowledge and love listening to how your love and dedication is helping the boys have the best life they for them.❤️❤️❤️❤️❤️❤️❤️❤️
You can stem for many different reasons boredom and excitement like you said in your video sadness aggression. Lots of different reasons why and it’s not always understood. I’m still trying to figure out all my stims and why I do them.
I stim a lot, nail biting, hair pulling, rocking, teeth tapping, smoking, chewing my clothes or hair, holding a lighter or clothes peg 24hrs, chewing pencils or biros.... so many. I'm a 55 years granny. Xx
Great info Emily - you are so well informed on your kids behalf lovely mom! And a little aside - your make up is beautiful...eyes...😍 love from Scotland x
Emily, Just curious, have you had Sawyer’s feet checked by a orthopedic surgeon?? I had a friend who’s granddaughter walked a lot like Sawyer does! And after they took her to the specialist it was found her tendons were to short.. They did a little bit of surgery on one foot and then cast on both feet for a couple months,…And she no longer walks on her toes! I know your boys are different..But I thought I would let you know it fixed her from toe walking. Love y’all SO Much! And I only said something in hopes of helping!
This same thing happened with my friends son who was on the spectrum. Dr said that since they walk on their toes their tendons don't stretch and grow correctly and making them walk flat footed is painful. Hopefully Emily looks into an orthopedic surgeon. Would definitely benefit Sawyer.
Yes as others have pointed out the tendons are short from excessive toe walking. Surgical, Botox and casting options are great for the right candidates with the right therapies. I’ve seen too many children suffer through painful surgeries and not have the proper therapies to retrain the muscles and have to go through it all again.
This was so interesting to watch & see other children who are so much like my son. My son just turned 3 & he has a ton is stims. I definitely let him do it, but it does get tough when we're out in public & he's not aware of his surroundings while he's spinning😅 Thanks for posting such an informative video✨
Does Griffin flap his arms? My friends son used to flap his arms a lot and yes chew everything. They say flapping is why they call them Angelman kids. It's like they are flying.
Griffin sometimes flaps his arms but from what I know the person who discovered Angelman syndrome was named Angelman that is why it is called Angelman syndrome.
@@ItsOurWonderfulLife my friends son passed at age 16 of Angelman. Back then there was no center up in Denver. Things have come a long way with this chromosome disorder. They only way my friends son was diagnosed was because a doctor from another country happen to be at the hospital . He asked mikys doctor to see his patient. He took one look at Michael and said he has angelmans. God was good that day.
Hi I'm looking through your videos and I was just wondering did sawyer talk late was he non verbal for a period I'm curious my son is 2 and non verbal and wondering if he will progress to talking
My brother is a freshman in high school and is autistic. He has stims and his are like on a cycle new ones every couple of months it seems. Right now he is doing like a swallowing noise with his throat which gets tiring to hear after a while. But have definitely been there with the good days and bad. Sawyer may even develop new stims as he gets older as well!
![ROSÉ(로제) - APT. (Band VER.) (With. 이영지) [더 시즌즈-이영지의 레인보우] | KBS 241129 방송](http://i.ytimg.com/vi/IW8qaemx74g/mqdefault.jpg)
I have Septo Optic Dysplasia. Which is a rare brain condition that caused me to be born totally blind, and it also caused me to be on the autism spectrum, and I have complex PTSD. I stim a lot due to being blind and autistic. Fun fact, the correct term for blind people who stim is called blind isms. I rock, shake my head, touch and explore everythying, sit with my head down, flap my hands sometimes, and I vocal stim a lot. People have tried to get me to sit up straight, to not touch things and to always keep my hands to myself, to sit still, the list goes on. It’s caused me to mask and limit myself to not do them at all, even though I like them and they benefit me. I’m trying to learn to unmask my differences and not feel inadequate and not be a perfectionist in order to fit in with society’s norms. Overall, I love myself. I love my uniqueness, and I love my blind isms and my autistic stimming. I need to just get out of my head, let go of the perfection, the restrictions and not think about who will judge me.
Great video Emily! Thanks! OT mom here 👋🏻 just wanted to add that toe walking can lead to other orthopedic issues down the line which is a reason for helping to minimize this stim. And as you said stims are great to help regulate the individual when used appropriately.
You know, I write blogs about autism advocacy, independence, and acceptance. People like you are the reason why!
Loved the video,love listening to your knowledge and love listening to how your love and dedication is helping the boys have the best life they for them.❤️❤️❤️❤️❤️❤️❤️❤️
I loved that the add before you started was for disability services here in NSW,Australia!😊
You can stem for many different reasons boredom and excitement like you said in your video sadness aggression. Lots of different reasons why and it’s not always understood. I’m still trying to figure out all my stims and why I do them.
I stim a lot, nail biting, hair pulling, rocking, teeth tapping, smoking, chewing my clothes or hair, holding a lighter or clothes peg 24hrs, chewing pencils or biros.... so many. I'm a 55 years granny. Xx
Great info Emily - you are so well informed on your kids behalf lovely mom! And a little aside - your make up is beautiful...eyes...😍 love from Scotland x
Sawyer may benefit from noise canceling headphones. I got some for my autistic granddaughter and she even wears them to bed!!
So interesting!! YOUR WONDERFUL ❤️‼️
I notice that my stimms range from fidgeting my fingers to bouncing my legs. I have austim and ADHD.
Emily, Just curious, have you had Sawyer’s feet checked by a orthopedic surgeon?? I had a friend who’s granddaughter walked a lot like Sawyer does! And after they took her to the specialist it was found her tendons were to short.. They did a little bit of surgery on one foot and then cast on both feet for a couple months,…And she no longer walks on her toes! I know your boys are different..But I thought I would let you know it fixed her from toe walking. Love y’all SO Much! And I only said something in hopes of helping!
This same thing happened with my friends son who was on the spectrum.
Dr said that since they walk on their toes their tendons don't stretch and grow correctly and making them walk flat footed is painful. Hopefully Emily looks into an orthopedic surgeon. Would definitely benefit Sawyer.
Same with my nephew. They had to botox his tendons in his back ankles and they said wear heavy soled shoes. It helped him stop toe walking.
So usually the tendons arw ahort because of the tow walking.
I know this cause I'm going through it as an autistic adult 😅
Yes as others have pointed out the tendons are short from excessive toe walking. Surgical, Botox and casting options are great for the right candidates with the right therapies. I’ve seen too many children suffer through painful surgeries and not have the proper therapies to retrain the muscles and have to go through it all again.
Same thing with my cousin! He had to have the same surgery! & it fixed the problem!
Hi Emily I love your channel and all of your kids are adorable
EMILY THAT WAS VERY INTERESTING. TO NO THOSE THINGS. !!!
This was so interesting to watch & see other children who are so much like my son. My son just turned 3 & he has a ton is stims. I definitely let him do it, but it does get tough when we're out in public & he's not aware of his surroundings while he's spinning😅 Thanks for posting such an informative video✨
Does Griffin flap his arms? My friends son used to flap his arms a lot and yes chew everything. They say flapping is why they call them Angelman kids. It's like they are flying.
Griffin sometimes flaps his arms but from what I know the person who discovered Angelman syndrome was named Angelman that is why it is called Angelman syndrome.
@@ItsOurWonderfulLife my friends son passed at age 16 of Angelman. Back then there was no center up in Denver. Things have come a long way with this chromosome disorder. They only way my friends son was diagnosed was because a doctor from another country happen to be at the hospital . He asked mikys doctor to see his patient. He took one look at Michael and said he has angelmans. God was good that day.
Love you Emily
Hi I'm looking through your videos and I was just wondering did sawyer talk late was he non verbal for a period I'm curious my son is 2 and non verbal and wondering if he will progress to talking
Aws love your vids
My brother is a freshman in high school and is autistic. He has stims and his are like on a cycle new ones every couple of months it seems. Right now he is doing like a swallowing noise with his throat which gets tiring to hear after a while. But have definitely been there with the good days and bad. Sawyer may even develop new stims as he gets older as well!
I have adhd and I was stimming (chewing my chew thing):)
Emily, it’s STIM not STEM. 💗
As in “stim-u-lation”-is that right?
Please, stim not stem, but you and your family are wonderful!
It a stem
It is stem but spells stim
I have ASD
God Bless!!!
💜💜💜
Do either of your boys grind their teeth??
im 30 and autistic./adhd and i stim so much like sawyer and i have chewie necklace that i really like to chew.
Is stim about word for a tic?
No that’s different
ASD IS NOT A DISABILITY
It is a condition/symptom.
For someone who is ASD, like myself, at times I see neurotypicals - disabled.