@MrShinentwist You’re so right. Getting ready can be such a huge challenge that many people don’t understand. It’s like climbing a mountain sometimes. Thanks for sharing that, and for being part of this understanding community. 💖
@geraldinecurry7148 I totally get it, Geraldine. The struggle with just getting ready, especially the shower part, is real. I'm so glad this video resonated with you. Thank you for your kind words and support. Bless you too! ❤️❤️
I was recently diagnosed and having a hard time, both with accepting it, trying to get to know it and finding my triggers and boundaries. And also trying to get the nessacary help to be able to live with it, without breaking. Trying to find another place to live, because right now I live in a cold, cold apartment with neighbours who are verrrry loud all hours of the day and night and even if I could sleep, I couldnt, because its so cold and so noisy. They smoke too and the apartment building is so old, so it makes it so hard to breathe. I feel like Im in a constant flare and it feels inhumanly impossible to handle. Thank you, for showing me, Im not alone and letting me know, that the things I feel are real and `normal` for people who struggle with fibro.
I'm really sorry to hear about your recent diagnosis and the challenging circumstances you're facing. It's completely understandable that accepting, understanding, and managing fibromyalgia can be overwhelming, especially when dealing with such difficult living conditions. Living in a cold, noisy, and smoky environment can exacerbate your symptoms and make it incredibly hard to find relief. It's entirely normal to feel overwhelmed at times. Your feelings are valid, and you're taking important steps by seeking necessary help and considering a change in your living situation. Thank you for sharing your experiences and connecting with others who understand. Together, we can offer each other support and encouragement as we navigate this journey. Sending you strength and warmth during this challenging time. 💪❤️
I understand - there are days when I feel I’m losing the battle. We fight the battle on so many fronts. Magnesium salt baths help, getting out into the garden helps, baking sourdough helps. I have to pace myself and that takes a great deal of patience. We can do this. Proud of you for sharing the reality that is chronic pain. This too shall pass. My go to words.
Thanks so much for sharing your thoughts and what helps you on tough days. Chronic pain really does feel like a constant battle, and it's easy to feel like we're losing sometimes. Learning to pace ourselves definitely takes time, and patience is key. You're so right, we can do this. And this too shall pass is a great mantra to keep in mind. I appreciate your kind words and support. Let's keep sharing our experiences and helping each other through the ups and downs of chronic pain. Sending you lots of strength and positive vibes! 💪❤️"
Sorry to hear what your going through it's hard yes, I feel like it suspends your action while painful it's like the pain builds up to excruciating I had 2 of them go off at once I just go with it and find a breathing technique to try bring it down, a heat pad will help settle it I have a heatlamp that worked real good it reduced the pain not looking forward to summer it's worse
I was on the toilet when it happened it got me in 2 places very awkward and painful I couldn't stand up I had to let the pain die down before I could stand up my first experience. I wish you well if you can get a heatlamp it's really excellent for bringing the pain down just don't hold it too close to pain area hold it back a little further. Please get one either from a place that sells lamps or you could try the cooking facility that they use for cooking meat under heat lamp very strong heat maybe a cube of ice or icepack may work good luck.❤
Thank you so much for sharing this. I work full time, teach part time, own a business and still battle fibromyalgia every day. It's extremely hard but living with this illness can be done. We can do hard things! We are fibro warriors!
Your resilience and determination are truly inspiring! Balancing a full-time job, teaching part-time, and running a business, all while managing fibromyalgia is an incredible badass. Your message underscores an important truth: though living with fibromyalgia is challenging, it's definitely possible to lead a fulfilling life despite the illness. You're right - we can do hard things. Keep up the amazing work and continue to inspire others with your journey!
This was excruciating to watch...and I understand on every level. My current flare is almost unbearable, too. I see my rheumatologist this week...likely have lupus to add to my list. But at least I will know how to proceed. My dress up days are appointment days, too! Showering can sure be daunting. Bonus to shower AND get your own breakfast on the same day. Things most take for granted. Thank you for your showing your raw emotions and vulnerabilities. Chronic illnesses are all consuming and destructive and important for others to see, even though they don't understand. Amazingly, hope of a better tomorrow can keep us going. ❤
I'm truly sorry to hear that you're going through such a tough time with your current flare as well, and the possibility of lupus must be very stressful. It's reassuring that you have a rheumatologist appointment coming up, though, as having a clear diagnosis can help you navigate the path forward and access appropriate treatments. You're absolutely right about the little victories, like dressing up for appointments, managing to shower or making my own breakfast being so meaningful in the context of chronic illness. It's a perspective that most people may not fully understand, but those small achievements can be significant milestones for us. Thank you for your kind words about my video. I believe that sharing our raw emotions and vulnerabilities is essential, as it helps shed light on the daily struggles of living with chronic illness. Even if others don't fully grasp the extent of our challenges, it can foster empathy and awareness. Hope is indeed a powerful driving force. It's what keeps us moving forward, no matter how difficult things may seem at times. Sending you all my best wishes and hope for a brighter, better-managed tomorrow. Keep holding onto that hope. ❤️
I just spent almost 3 days in bed crying. It was so bad I couldn't even get up. Most days, I'm lucky to get 2 or 3 hours of sleep. Burning spasms can't touch me anywhere. It's just so painful I hate flare-ups. Oxo
I'm nearly 50 and was diagnosed with Fibromyalgia back in 1996 when I was 22 years old. Ive been absolutely devastated by it and, for me, it's been degenerative... gotten worse. I've also developed Lupus. Thank you for showing us the struggles we with this condition face. God bless you.
First off, thank you for sharing your journey. Being diagnosed with Fibromyalgia at such a young age, along with developing Lupus, is incredibly challenging. I'm so happy to know that my content resonates with you and sheds light on the struggles faced by those living with Fibromyalgia. It's so important that we share these experiences, not only to create awareness but also to support and uplift each other. If my content can bring even a little bit of comfort or validation, then I feel truly blessed. Sending you lots of strength and positive thoughts. God bless you too. Keep being the amazing person you are, and take care of yourself. ❤️
Thank you so much for recognizing the importance of sharing both the highs and lows. I truly believe that by being open about the tough days, we can help others feel less alone and more understood. Your support and kind words are a bright spot, reminding me why I share my journey in the first place. I'm taking things one day at a time, and messages like yours make it a bit easier. Sending you love and gratitude! ❤️🌼
I am so happy to have found this video! It was so good to hear someone else talk about making priorities of things to do in a day, doing things in stages, being exhausted after taking a sower, the disappointment and depression over not accomplishing anything.
I'm really glad that you found the video helpful and that it resonated with you! It's so important to hear that others are experiencing similar challenges. It can make a world of difference in feeling less alone in what you're going through. Managing daily tasks in stages and prioritizing what's most important can be a crucial strategy for coping with limited energy reserves. Exhaustion from seemingly simple tasks and the emotional toll of not meeting your own expectations are common struggles, and it's okay to feel disappointed or down about these things. Remember, it's also okay to adjust your expectations and be kind to yourself on harder days. Keep taking things one step at a time and celebrating the small victories. Each one is significant! Thank you for sharing how the video impacted you. Hearing feedback like yours motivates me to keep creating.
I relate to all of this. I had a terrible flare last week It was so bad I didn’t think it was going to stop but just like you it eased up slowly 🙏 praying for your testing! Emmy Dr tested me for that 8 months ago and I was negative so praying the same for you!
I'm so sorry to hear about your flare-up last week, but I'm glad it eased up for you. It's such a rollercoaster of emotions and pain, isn't it? Thank you for your kind words and prayers. It's comforting to know that there are people out there who truly understand and have gone through similar experiences. I'm happy to hear your test came back negative. Your prayers and positive vibes mean so much.
I understand everything you are going through. You have to pick hair washing or showering. Or making yourself breakfast or shower. You can’t do both- most people do not understand this.
It's so comforting (yet saddening) to know someone else understands the daily choices we have to make. It's the little things that most people take for granted, but for us, even deciding between hair washing and making breakfast can be a huge deal. The energy it takes, the pain we experience, it's a real struggle. Your understanding means a lot, and it's a reminder that we're not alone in this. Let's continue to support one another and raise awareness.
@@tt_looking_glassI also am sorry but glad that I’m not the only one goin thru this, feelin sick and crazy when my symptoms r worst. Not only do I have fibromyalgia but multiple debilitating conditions 😥 Im very happy that ur able to make ur breakfast. I now feel depressed bc I can’t even get up to make breakfast, not even coffee 😭 so I go many, many days w/o food bc Im unable to cook let alone go shopping, prepping the food and then cooking. Often times I go a week, sometimes even 2 weeks which obviously makes me even so much more weak. I’m supposed to have a caregiver bc I need help w/ dressing, showering, etc everyday but I don’t have one. So the only meals I get r crackers or cereal, whatever I was able to leave near my bed bc I can barely make it to the bathroom and that’s all I can manage. I have to go from my toilet to a shower chair left at my sink bc I have to rest from getting up from the toilet to getting to my sink before I can even wash my hands after using the bathroom. This f-n Fibro has cost me my marriage and add insult to injury as my doctors now won’t fill my fibromyalgia medication. Plz… Wud u b willin to call me and talk to me on the phone? I really need a friend especially one who knows what I’m going thru. I don’t have that friend at all. 🥺💔😭❤️🩹😞
I'm so sorry your health is so poor. I never meant to make you feel worse. Please understand that I have good days and worse days too. On my bad days, I can’t even pick up the camera, so you’ll never see my worst moments. When I am able to pick up the camera, I’m likely able to get something simple to eat. I also eat poorly because of the lack of energy to make myself food. I’m lucky I am married and my husband is a wonderful person who often brings me food in bed. I guess you could say he is my caregiver. When I’m alone and in a pretty bad flare, I order groceries online and fill a portable electric cooler at my bedside table with snacks and drinks. They are not proper meals, but they do keep me full until someone can bring me a meal. It sounds incredibly tough what you're going through, and I wish I could do more to help. Please know you’re not alone in this, and it’s okay to ask for help from anyone around you, even if it’s just for a little support. And always, always know that sharing your experience here is valued and appreciated. We're all here to support each other through the ups and downs. Sending you a big virtual hug and hoping for better days ahead for you.
Hi. I’m 54 and last year I finally got diagnosed with fibromyalgia after I started suffering with symptoms for two years. My family don’t understand what my flares are like and they don’t support me. Luckily, although I live alone, my partner is fantastic with me. I’m just trying to recover from a bad flare up which lasted a week. I feel so tired still. Morphine is what I have been prescribed to take occasionally for my night pains. It doesn’t seem to work too well but takes the edge off. I use a walker when I’m unwell at home, when I can walk. As you say, we can manage pretty well, even with minimal medication for long periods of time, but then we have quite long periods of time when it flares up and you just don’t have the energy to do anything along with the other effects of this chronic disease. Thank you for being so upfront and making me realise that I’m not the only one and I shouldn’t beat myself up about it. Today I managed to shower and went back to bed. tomorrow I shall wash my hair can finally get to some normality for me anyway.
It sounds like you've been through quite a lot with your fibromyalgia diagnosis and the challenges of dealing with flare-ups. It's tough when your family doesn't fully understand what you're going through, but it's awesome to hear that your partner is so supportive. Flare-ups can really knock you down, and it's frustrating when the pain relief doesn't work. It's a journey, for sure, and those good days can feel few and far between during a flare-up. But it's so important to celebrate those small victories, like managing to shower or wash your hair. Those moments are huge wins when you're dealing with so much. You are definitely not alone in this. There's a whole community out there that gets it and is here to support you. Don't beat yourself up over the tough days. You're doing your best, and that's more than enough. Here's to better days ahead. Hang in there!
Im wiped out from commenting on someone else’s comment but i kno what u mean. Bc of this epidemic in the US bc of people that took pain meds for fun that didn’t need ìt, the VA took pain meds away from almost all veterans at my VA that desperately needed them to get thru each day, excepted for those dying with stage 4 cancer and a few other exceptions. If I had my pain meds Id be able to do a lot more but since I don’t get them n e more of this my pain has gotten worse, I’ve gotten much heavier, which got even worse still. I’m so sick & tired of bein so sick & tired.
I’m so sorry to hear about the pain you're enduring and the struggle with getting the meds you need. It’s so frustrating and unfair that because of the actions of others, people like you who genuinely need these medications are suffering. I can’t even imagine how exhausting and disheartening it must be to face this on top of everything else. The whole situation with the epidemic and how it affects those of us who need pain management is just heartbreaking. I wish there was more that could be done to change this. It’s so important for us to keep sharing our stories and supporting each other, even when it feels like we’re barely making it through the day. Sending you all my strength and hoping you find some relief soon. Please keep reaching out here whenever you need to vent or share-your voice matters and we're all here to support each other. Take care and hang in there. ❤️
Thanks so much! It’s comforting to know that we’re not alone in this and that others really get what our days are like. Let’s keep supporting each other through it all. 😊💪
My husband is so far from understanding my fibromyalgia flare up days. I truly feel alone with this condition. Depression and loneliness take control of my mind and try to talk me into taking my own life. Thank you for sharing and I wish better times ahead for all of us.
Denise, I’m so sorry you’re feeling this way. Living with fibromyalgia is already so hard, and feeling misunderstood and alone on top of it makes it even heavier. Please know you’re not alone, even when it feels that way. Those dark thoughts lie, you matter so much more than this pain or this moment. Thank you for sharing something so vulnerable. You’re stronger than you realize, and you deserve support and kindness. If it ever feels too overwhelming, please reach out to someone who can help. Sending you so much love and hope for brighter days ahead. ❤️
I understand and pray for you, I'm going through a big one right now been in bed for 5 days so far. I appreciate you sharing this. Yes the tests and doctors is so frustrating. It's so hard to find doctors that understand.
I'm so sorry to hear you're going through such a tough time right now as well. Five days in bed is incredibly challenging. It's heartbreaking how difficult it can be to find understanding doctors. Sending you heaps of love and strength. Thanks for sharing your experience. 💜 Take care and hoping for brighter days ahead for you.
It's debilitating fibromyalgia. The pain threw out your body, fatigue, headaches It just goes on.i get pain in my chest where it feels like your having a heartattack but it's Aflare. I have good and bad days. I'm so sorry you are suffering ❤
I literally want to scream it through the computer screen for you to find doctor maggie! If you met her, your whole life would change, and I am looking forward to starting a program with her soon! Please find her videos and watch them as soon as you can,!!! She has helped SOOO MANY PPL WITH YOUR SAME SYMPTOMS!!!!
Your excitement is contagious! I'm definitely going to check out Dr. Maggie and her programs. It sounds like she has made a huge impact on so many people, and I'm really hopeful she could do the same for me. Thank you for the passionate recommendation, I'll dive into her videos right away! 🌟
Thank you so much for saying that. I totally get being hard on yourself, I’m the same way. But hearing that this video helped you take a step towards acceptance means everything. I’m actually writing a book on acceptance right now! I’ll be launching a free newsletter on Monday where you can stay updated on when the book is published (probably sometime in the new year). I’ve also got another book coming out soon filled with short stories and poetry about living with chronic illness. I’d love to keep you posted if you’re interested! You’re doing so great, keep going. 💛
@@tt_looking_glass Absolutely. I am sharing the video with family members and caregivers for some. It's funny how just hearing someone else describe exactly what you experience provided me with strength. Acceptance is a big part of it.I keep thinking it will pass and I will be able t0 do all the things I love again. I know better but I am so hard on myself!!
Oh, It's amazing that you're sharing the video with family members and caregivers, it can be such a relief for them to understand what we go through a bit more. Acceptance really is such a huge part of this journey, but like you said, it's tough when that little voice keeps saying "maybe it will pass and I can do everything I used to." I catch myself thinking that way too, and it’s such a hard habit to break. Just know you’re not alone in that, and it’s okay to have those feelings. I think just being aware of it is a sign of so much strength in itself. 💛 I think my book that is coming out around November would be a great gift for families and fried a to get a glimpse of what’s like to live in our shoes.
I understand. Some days are flare up days with pain and fatigue. So I force myself to workout on days when I am well enough. Have been a ballet dancer since little so I have a high pain threshold. I also take Gabapentin (didn’t like side effects of Lyrica). Don’t let it make you bedridden. Push through like you are doing. Prayers for you.
It’s amazing that you’ve found ways to keep moving even through the pain and fatigue. Being a ballet dancer must have taught you so much about pushing through and managing pain, but it doesn’t make the struggle any less real. Finding what works for you, like Gabapentin instead of Lyrica, is such a personal journey, and it’s so important to listen to our bodies and adjust as needed. Thank you for sharing your experience and encouragement. It’s a reminder that while we have tough days, we can still find strength within ourselves to keep going. Sending prayers your way too, and here’s to more days where we feel well enough to do the things we love! 💪💕
You are courageous and very #fibrofierce❤ As a fellow fibromite, I can relate to every step of your journey. Over the last two days, I managed to wash my hair and take a bath. It is indeed exhausting. Sending you warm, gentle hugs.
Thank you so much, Becca. Your words truly touched my heart. I know how hard it is to push through those small tasks that can feel like climbing a mountain when you’re in the middle of a flare. Sending you warm, gentle hugs right back. We’re in this together, and your support means the world to me. 💜
I’m so sorry you are going through this. I am the same age as you and feel that my pain is getting worse in Perimenopause. Do you find that too? Definitely more difficult to manage my emotions too. Now I have insomnia, more migraines, and unpredictable mood swings to go with the pain. I get this nerve pain that feels like I’m being electrocuted or that my whole body is hooked up to a T.E.N.S unit full force. Like razors in my nerves. No medication can touch it. Do you have nerve pain? I hope you are feeling better soon. Interest hugs from the U.S.
Hey there, first off, thank you so much for the kind words and support. I truly appreciate it. It's hard to go through chronic pain and even more challenging when life adds more to our plates. I am finding that all my symptoms are getting worse with perimenopause. I feel I'm just around the corner of full menopause and everything you mentioned has gotten worse with it. I can totally relate to the emotional ups and downs. As for nerve pain, I do experience some, but it might not be as intense as what you've described. Just know you're not alone in this, and I'm here, sharing and understanding. Sending you gentle hugs right back. Take care and stay strong! 💜
@@jenniferw1595 Great explanation of being (electrocuted) yes it kinda in a way makes you hold your breath as it longers on very painful, it kind of distorts your movements your breathing get a heat pad that really does work well 2 minutes in the microwave then place first on towel to let heat go through when heat dies down then you can put the pad itself on the area of pain till heat makes it comfortable enough to stop it in it's tracks, heat pad again you can give a little massage to the pain to get on top of it All the best❤️👍🤗🥰😊
I was diagnosed with fibromyalgia about 20 years ago before it became fashionable. I have a host of other chronic illnesses. I must say for someone with fibromyalgia how well you look 👍. Your hands general freedom of movement is amazing. The fact that you can lay in bed and hold a book up for an extended period of time is remarkable. I would go so far as to say if you washed your hair and put some makeup on you'd look pretty good! Fibromyalgia never goes away. It's like an overcoat of pain. It's not a case of were does it hurt, it's a case of where doesn't it. Sleep is no help, in fact if you sleep to long it just makes it worse! The only thing I find that helps it is ibuprofen and caffeine. I take the ibuprofen as tablets and the caffeine as coffee ☕ in the morning and pepsi max from lunch time onwards. I hope all you sufferers find relief. When I'm really bad I struggle to get out of bed let alone do a video about it!
I appreciate you sharing your experience, and I’m sorry to hear how much you’ve been through with fibromyalgia and other chronic illnesses. It’s a relentless battle, and I relate so much to what you said about pain being like an overcoat-it’s always there, weighing us down. Sleep being no help and the struggle to just get out of bed some days is something I know all too well. Thank you for the kind words about how I look in the video, but I know that what we see on the outside doesn’t always match what’s going on inside. I’m glad you’ve found some relief with ibuprofen and caffeine, we’ve all got to find our own little ways to get through the day. Sending you strength and hoping you find some peace in the midst of it all. 💜
I'm truly touched to hear that you're finding comfort in my content, especially during such a tough episode. It means a lot to me that you've taken the time to watch and reach out amidst your flare-ups. I'm sending you all the love and positive vibes right back, hoping for more manageable days ahead and that you find moments of peace and relief soon. Take care of yourself, and remember, you're not alone in this.
I am in active flare-up now. Im so stiff, and my joints hurt. It feels like i have chills. Fatique is not bad this time around. I've been in bed for days. I'm so tired of this...
I'm really sorry to hear that you're going through such a tough flare-up right now. It sounds incredibly challenging, and I understand how exhausting it is, both physically and emotionally. It's okay to feel tired and frustrated with these relentless symptoms, your feelings are completely valid. Although I know there's no one-size-fits-all solution, and you've likely heard a lot of advice already, sometimes small comforts can make a bit of difference. If you're able to, gentle stretches or warm baths might help with the stiffness. Even just changing your surroundings by moving to a different room or adjusting your bedding can sometimes help break the monotony of being in bed for days. Most importantly, please be kind to yourself during this flare-up. Allow yourself the rest you need without any guilt. Reaching out to your support system, whether it's friends, family, or online communities, can also provide emotional relief. It's okay to ask for help, even for the small things. I'm sending you lots of strength and hope for more comfortable days ahead. You're not alone in this, and it's okay to take things one day at a time. 💖
Wonderful video, I mean watching you in pain isn’t wonderful but I love how you explain things. This will be another video of yours I’ll share with my healthy at home adult family in the hope it’ll remind them there’s reasons I can’t do it all. Having a hot spring here, will be even hotter in summer, I don’t cope well at all in the heat, everything kicks up a few notches. Xxxx
It's great to hear that you found the video meaningful and that it resonated with your experiences. Sharing videos like this with your family is an excellent way to help them understand what you're going through and the challenges of living with Fibromyalgia. It can be tough for healthy family members to fully grasp the impact of chronic pain and flare-ups, so sharing content like this can provide valuable insights into your daily struggles. It's important for loved ones to have empathy and awareness of the limitations that chronic illnesses can impose, especially during challenging times like flare-ups or hot weather when symptoms can worsen. Your support system plays a crucial role in your journey, and efforts to educate them about your condition can lead to better understanding and support. Keep sharing and communicating with your family , and hopefully, it will lead to a more empathetic and compassionate environment for you.
I never use to leave my house without makeup on. Now, I CANNOT do it anymore. The tremors will make me stab myself in the eye with mascara or eyeliner. I HATE that! This f’ing disease is life changing! !!!!
Ugh, I totally get that frustration! Fibro changes everything. It’s like all the little things we used to do without thinking suddenly become huge hurdles. I’m so sorry you're going through this, especially when it’s something like makeup that used to make you feel good. I’ve definitely had moments where I just wanted to scream at this f’ing disease for taking things away from me. It’s okay to feel angry about it, honestly, I think we all do. Just know you’re not alone in this, and you’re still amazing, makeup or no makeup. Keep hanging in there. You’ve got a whole community behind you that gets it, and we’re right here with you through it all.
It's like, on these flare-up days, even the simplest tasks feel like a marathon. And when you say the bathroom feels miles away, I totally feel that. It's wild how fibromyalgia can make your own home feel like an obstacle course. Just know you're not alone in this. On days like this, I try to remind myself to take it one slow step at a time, even if it's just making it to the couch. Sending you strength and understanding. We'll get through these flare-ups together. 💪💜
It's incredible that you've developed a coping mechanism that allows you to carry on with your day despite the challenging symptoms of fibromyalgia. Everyone's experience with this condition is different, and finding ways to manage and adapt to your own symptoms is a significant achievement. It's also essential to continue listening to your body and seeking support when needed, as self-care and understanding are crucial aspects of living with fibromyalgia. Your resilience is inspiring!
Than you so much for sharing the reality of the fibromyalgia flair! This is exactly what I feel, sometimes am having panic attacks as well, all of the sudden, very heart to breathe. You are very brave to share this really hard times leaving with fibro😬 Its hard for people to understand what we are going through, sometimes they don't even take fibro seriously, like its all in my head, so you just trying to isolate yourself from people, because it make me feel guilty that something is wrong with me😢and am just making things up😶
I'm truly sorry to hear about your struggles and the additional challenge of panic attacks. Thanks a lot for sharing your experience. it's spot on with what I go through, especially those sudden panic attacks that make it tough to breathe. It's hard when others don't understand what we're facing, even brushing it off as if we are makin git up. So, we end up pulling back from people. Fibromyalgia is a difficult condition for others to understand because it's not visibly apparent in the way some other conditions are. The pain and emotional distress you're experiencing are real, and it's not something you're just making up.
I don't know about you, but my self I do everything I have to for myself because I don't have anyone to do it for me. You have to move no matter if you are hurting, don't feel sorry for yourself.
I admire your strength so much. It takes a lot to keep pushing through when you’re dealing with something as relentless as fibro, especially when you’re the one who has to get things done, no matter how much it hurts. You’re right, sometimes, we have no choice but to keep moving, even when it feels impossible. It’s not easy, but there’s a kind of power in knowing you’ve got yourself, no matter what. Thanks for sharing that determination,it’s a reminder to all of us to keep going, even on the hardest days.
I'm so sorry you’re going through this right now, Jackie. There’s nothing quite like that deep, relentless pain that makes even resting feel unbearable. It’s heartbreaking to know others are suffering too, but at the same time, it’s comforting to know we’re not alone in these moments. I hope this flare eases up for you soon and that you can find a bit of comfort. Sending gentle hugs and all the strength I can muster your way. We're in this together. 💔
Thank you from the bottom of my heart for your warmth and prayers. Your words give me strength and comfort during these trying times. It's people like you that make the journey a little easier to bear. Even if the tests show something, knowing I have support is invaluable. I'm hopeful too, and with support like you by my side, I feel stronger. Sending you the biggest virtual hug back! ❤️🤗
Seriously take a look at CIRS, it's about an inflammation mechanism stuck after an exposure to a biotoxin. I have a playlist to introduce people to it. Luckily after I have flare-ups, I don't remember that much 😆 It's really hard to see somebody go through that.
Thanks so much for the recommendation. I've heard a bit about CIRS, but I'll definitely check out your playlist to get a deeper understanding. It's great that we can share resources and support each other in this way. And I totally get what you mean about not remembering much after flare-ups. Sometimes, maybe that's a blessing in disguise? 😆 Thanks for your empathy and for reaching out. Take care and sending you positive vibes! 💜🌟
Thank you so much for the kind words and well wishes! Your support means a lot to me. Sharing our journeys makes it a bit easier knowing we have understanding souls out there.
I was initially diagnosed in 2013. Prednisone sort of worked but I ended up having a heart attack and 2 stents. Further diagnosis included Polymyalgia, PMR, Arthritis, Osteoarthritis (numerous prescriptions and pain killers with no success) and back to Fibromyalgia in 2023. Family Dr. prescribed Duloxetine and the results were astounding. Never felt better. I hope my story helps.
Thank you so much for sharing your journey with such openness. It's truly a testament to your resilience. Your experience highlights the often trial-and-error nature of finding treatment that works when dealing with chronic illnesses. I'm deeply sorry to hear about the severe side effects, like the heart attack, you experienced along the way. Hearing that Duloxetine has brought you significant relief is incredible. It's amazing how much of a difference the right medication can make when it comes to managing pain and improving quality of life. Your story is a powerful reminder to never give up hope in the search for effective treatments and to continuously advocate for care that truly addresses individual needs. Thank you again for sharing your story. It’s stories like yours that help to light the way for others in their darkest moments, reminding us all of the importance of perseverance, the value of innovative treatments, and the power of shared experiences. Wishing you continued health and well-being. 💖
🫂/🤗There should be a hug/care reaction button for videos. Thank you for sharing the honesty of a flare. I wish my family would watch this and understand x
Hey Angie! Oh, I completely agree - a hug/care reaction button would be perfect for videos like these! I love the emojis you found. Thank you for appreciating the honesty. Flares are tough, and sometimes sharing those raw moments can really help others feel seen and understood. I wish your family would watch and understand too. It can be so hard when those closest to us don’t fully get what we’re going through. Just know that this community gets it, and we’re here to support you. Sending you big virtual hugs! 🤗💜
Get a heatlamp its amazing its like a heatlamp that cooks meat and is very high temperature so be careful try usiñg a towel then put ot on pain area let heat ho through towel to warm it up as much as you can take be brave you'll be ok just carry on through your day dont keep thinking about it keep your heatlamp handy so no time is lost while thats happening put heatpad in microwave for 2minutes or 3 keep focus so make sure heatpad is with heatlamp at all times. The firs5 time i got it i did panic but i wasnt going to let it get in the way of my routine try to adjust your thinking align yourself
Hey Eileen! Thanks for the heat lamp tip. I never thought about using one like that! I’m a big fan of heating pads myself, I use them all the time to get through those tough pain days. But the heat lamp sounds next level.
That is a very interesting point. I had not had a major MCAS attack in 6 months and I just experienced an anaphylaxis reaction. Right about when we had a major weather change. Thank you for your insight.
@@tt_looking_glass Yes on march I had huge flare for about a month and it was the middle of the season between summer and winter, spent like 2k usd on medical test that all of them return normal but anyway my advice try to use the compression socks during those days, try low histamine diet and drink lots of water and be patience eventually we get better.
Being sick is soooo expensive. Yeah the compression stockings do help with the POTS but they hurt a lot because I get extra sensitive when I'm in a flare. I find that living with multiple chronic illnesses is all about choosing which symptoms you want to deal with because often when I do something to ease off one symptom it makes another one worse.
You are welcome! Thank you so much for watching and commenting. Welcome to the channel and to this community. Yes!!! Absolutely. Sickness is a huge Fibro flare trigger for me. I don’t even need to get supper sick, just the inicial fighting is enough to send me into a two week flare. I hope you are doing well and not fighting a flare. But is you are, I’m right here with you. Thinking of all the Fibro warriors out there. ❤️
It’s tough, isn’t it? Those flares are absolutely debilitating, and the way you describe the pain and sickness really captures the intensity of what it's like. It’s a relief when those moments pass, and having that light at the end of the tunnel can help us get through. Thank you for sharing your experience; it helps us all feel more connected. Stay strong!
Also, thank you so so so much for sharing these vulnerable moments...It truly helps with feeling less alone. I always say to my partner that I feel so alone as no one in my circle has any chronic health issues that interrupt their lives so often. Thank you ❤
It means a lot to me that my video resonated with you, and I'm truly touched to hear that it helps you feel less alone in your journey with chronic health issues. I completely understand what you mean about the mental aspect being the toughest part sometimes. It is so hard to deal with physical pain and the emotional toll it takes on us. It's incredibly comforting to have understanding and supportive partners like we do, and I'm grateful for mine too. Even though it can feel isolating when those around us don't have similar health challenges, it's important to remember that there's a whole community of people who can relate. This is why I share what I do on RUclips. It also helps me feel less alone when people comment with their stories. We're all in this together, and your words here show just how powerful it can be to share our stories and provide support for one another. Sending you lots of love and strength on your journey. ❤️"
Btw.. Dr Maggie discusses, in her videos, why so many doctors, including her OWN doctors were UNABLE to give her diagnosis or treatment to fully help her for her own autoimmune disorder, bc MANY DRS simply do not have the knowledge to help ppl bc they do not learn about nutrition or nutritional deficiencies in medical school, which are the ultimate causes of chronic pain and disease, and many Drs don't put symptoms together to figure out the cause and treatment of these kinds of diseases..but Dr. Maggie does!!!!
Thank you for your vulnerability. I wonder if your nervousness before your tests is the result of trauma, you've been through so much especially when you had the uvitus (wrong spelling sorry)? I remember how invasive those tests were for you. Anyway much love from Australia.
Thank you for your kind words and for following my journey. I really appreciate your support all the way from Australia! You're absolutely right; the nervousness before tests often comes from past experiences, and dealing with uveitis was very traumatizing. Some tests and procedures can be quite invasive, and they leave you with PTSD. I'm grateful for your understanding and empathy. It's people like you who make sharing these vulnerable moments worthwhile. Sending lots of love and warm wishes.
@@tt_looking_glass you're welcome, I could relate as I have had lots of medical stuff done lately and like you have been very anxious beforehand where in the past I would just roll with it. How is your flare now? Hopefully it's on the way out.
♥️ The flare has definitely eased off but it's still there. Hanging on. Relentless. I'm coping better and I'm able to do more things but I am getting pretty exhausted from dealing with pain levels that are higher than normal. It takes a lot more energy to do the same things when you are experiencing more pain.
live alone, have to get up dogs need food water, cats too. have not had a good day in recent memory. not been out of the house in over a month. try to find easy food cereal, but omg almost out of milk.
I'm so sorry to hear that you've been going through such a challenging time, and it sounds like you're carrying a lot on your shoulders. Taking care of your dogs and cats, especially when you're not feeling your best, can be quite demanding. Not having had a good day in a while and not being able to get out of the house for over a month is incredibly tough. Running low on essentials like milk can add to the stress. I wish there was someone who could be there to help you through this difficult period. If possible, maybe you can reach out to a friend or neighbour for some assistance with getting groceries or supplies? It's okay to ask for help when you need it. And when you're up to it, finding easy-to-prepare meals is a good idea to conserve your energy. I'm sending you virtual support and positive thoughts. I hope things start looking up for you soon, and you have brighter days ahead. Take care. ❤️🐾
@@tt_looking_glass THANK YOU FOR YOUR SUPPORT, I HATE TO ASK FOR HELP. THEY ALREADY KNOW WHAT IS GOING ON. NOBODY WANTS TO BECOME INVOLVED WITH CHRONIC ILLNESS. NOT THEIR PROBLEM. OK. THIS TO WILL PASS. ON ANOTHER ROUND OF DOXY SO CROSSING FINGERS FOR A BREAK.
Your strength is truly commendable. It's understandable that it can be challenging to ask for help, especially when dealing with chronic illness. People might not always understand the complexities of what you're going through, but please know that your struggle is valid, and reaching out for support is not a sign of weakness. I'm glad to hear you're on another round of treatment, and I sincerely hope it brings you some relief. You're right, this difficult period will pass, and I'm crossing my fingers for that much-needed break in your symptoms. Take care. ❤️🐾
I have what I call "Sledgehammer Days": Days when I wake up feeling like someone came in the night and beat me with a sledgehammer. I don't know how they get in and out undetected or how they manage to beat me without waking me, and somehow they never even disturb the dogs. But they sure do a thorough job on my body with that sledgehammer! It feels like I have "Apple Bruises" everywhere. You know the bruises you sometimes see on apples, where you touch the skin of the apple and it's beyond soft underneath, it's practically liquid? Like that. Bruises so heavy that they look black and feel like it's just liquid under the skin, and you can just imagine what those feel like from inside. Those Apple Bruises are everywhere, all left by the Sledgehammer people.
Oh wow, I totally get what you mean by "Sledgehammer Days." Those days are the absolute worst! It's strangely comforting to know someone else gets it, even if it’s something none of us would ever wish on anyone. Thank you for sharing this, it’s a perfect way to describe that intense, mysterious pain we go through. Love your sense of humour. 🤣
my back is really tight from the shoulders to the hips. Is that fibromyalgia? I've been to a million doctors and never get any answers. They just tell me I have anxiety and if I calmed down I would be fine.
It sounds like you're going through a really tough time with your back pain. It's frustrating when you can't get clear answers from doctors. While fibromyalgia can cause widespread pain, including in the back, it's often accompanied by other symptoms like fatigue, sleep issues, and brain fog. However, everyone's experience is different. Anxiety can amplify physical symptoms, but it's crucial that your doctors don't dismiss your pain just as a result of anxiety. It might be worth seeking a second opinion or consulting a specialist who has more experience with fibromyalgia and chronic pain conditions. You deserve to be heard and to get the right kind of help. Take care of yourself and don't give up on finding answers.
Nothing nice about January flare time nor the one on December 3rd. August 29th is named Katrina like January it means 3 weeks of hell. So whats that mean ? Little you can do except don't taunt it by pushing it in August. Apparently my doctor came up with a procedure that does stop flares in of itself. Not the two you've heard of and nothing on the same level as discussed. Yet zero flares with a top down treatment of epidural steroid and nerve block combined within the needle barrel. Axis vertebrae bilaterally and the S1 bilaterally. Flare killer ? Looking to be. Not for us though just for information purposes only.
It definitely would have contributed but this flare was already coming before it. I will pay more attention in the future. It got even worse when I varnished it. It was so bad and making me so sick that I had to put the table outside. It still is 1 month and the table is still out as every time we tried to bring it in I got a migraine and nausea.
Migraines, nausea, brain fog, burning skin, stomach cramps, hypersensitivity to scents, smell and light. Temperature instability, sharp needle feelings, sleeping problems... but I have so many diagnoses that is hard to tell what belongs to what.
I SO BADLY WANT TO SEND U DR. MAGGIE'S VIDEOS SO U CAN SEE WHAT SHE DOES AND U CAN HEAR/SEE THE AMAZING STORIES OF THE PPL WHOSE LIVES SHE HAS CHANGED WITH HER PROGRAMS..WE HAVE WASTED ENOUGH TIME FEELING LIKE COMPLETE SHIT!!!!!!
I hear you loud and clear! It really does feel like we've spent too much time feeling awful. I'm so ready for a change and can't wait to see what Dr. Maggie's programs are all about.
Is that your husband who was massaging u and running your bath? If so, unare very lucky to have him by your side..I hope u read my previous messages about Dr. Maggie..she is the answer to our PRAYERS...to get well
Yes, that was my husband! I'm incredibly lucky to have such a supportive partner who helps me through the tough times. I've seen your messages about Dr. Maggie and I’m definitely going to look into her work. Thank you for being so persistent and caring. It means a lot to have your support and encouragement! 💖
My DR just recommended LDN Low Dose Naltrexone for my fibromyalgia. I'm really interested in this medication and that's unusual for me since stay away from RX's I'm 41 and have had fibro since my early 20's ..i hope this will work👍🏽
That’s awesome! I’ve actually been taking LDN for almost 10 years now, and honestly, I can’t live without it. It’s been such a game-changer for me. I really hope it works for you too! I totally understand being cautious with meds, but fingers crossed this brings you some much-needed relief. Keep me posted on how it goes.
Thank you for your support. It's both comforting and saddening to know others experience similar struggles. I'm so glad to hear that Bowen Therapy has been beneficial for you! I've heard about it but haven't tried it yet. Maybe it's something I should consider. Sending you lots of love and strength back ❤️
People don’t understand how the idea of “getting ready” to go somewhere or have people over is just overwhelming
I know . 😢the getting ready. This video about the shower😢. Thank you all for this bless you.❤❤
@MrShinentwist
You’re so right. Getting ready can be such a huge challenge that many people don’t understand. It’s like climbing a mountain sometimes. Thanks for sharing that, and for being part of this understanding community. 💖
@geraldinecurry7148
I totally get it, Geraldine. The struggle with just getting ready, especially the shower part, is real. I'm so glad this video resonated with you. Thank you for your kind words and support. Bless you too! ❤️❤️
I was recently diagnosed and having a hard time, both with accepting it, trying to get to know it and finding my triggers and boundaries. And also trying to get the nessacary help to be able to live with it, without breaking. Trying to find another place to live, because right now I live in a cold, cold apartment with neighbours who are verrrry loud all hours of the day and night and even if I could sleep, I couldnt, because its so cold and so noisy. They smoke too and the apartment building is so old, so it makes it so hard to breathe. I feel like Im in a constant flare and it feels inhumanly impossible to handle.
Thank you, for showing me, Im not alone and letting me know, that the things I feel are real and `normal` for people who struggle with fibro.
I'm really sorry to hear about your recent diagnosis and the challenging circumstances you're facing. It's completely understandable that accepting, understanding, and managing fibromyalgia can be overwhelming, especially when dealing with such difficult living conditions. Living in a cold, noisy, and smoky environment can exacerbate your symptoms and make it incredibly hard to find relief.
It's entirely normal to feel overwhelmed at times. Your feelings are valid, and you're taking important steps by seeking necessary help and considering a change in your living situation.
Thank you for sharing your experiences and connecting with others who understand. Together, we can offer each other support and encouragement as we navigate this journey. Sending you strength and warmth during this challenging time. 💪❤️
I understand - there are days when I feel I’m losing the battle. We fight the battle on so many fronts. Magnesium salt baths help, getting out into the garden helps, baking sourdough helps. I have to pace myself and that takes a great deal of patience. We can do this. Proud of you for sharing the reality that is chronic pain. This too shall pass. My go to words.
Thanks so much for sharing your thoughts and what helps you on tough days. Chronic pain really does feel like a constant battle, and it's easy to feel like we're losing sometimes. Learning to pace ourselves definitely takes time, and patience is key. You're so right, we can do this. And this too shall pass is a great mantra to keep in mind.
I appreciate your kind words and support. Let's keep sharing our experiences and helping each other through the ups and downs of chronic pain. Sending you lots of strength and positive vibes! 💪❤️"
Sorry to hear what your going through it's hard yes, I feel like it suspends your action while painful it's like the pain builds up to excruciating I had 2 of them go off at once I just go with it and find a breathing technique to try bring it down, a heat pad will help settle it I have a heatlamp that worked real good it reduced the pain not looking forward to summer it's worse
I was on the toilet when it happened it got me in 2 places very awkward and painful I couldn't stand up I had to let the pain die down before I could stand up my first experience.
I wish you well if you can get a heatlamp it's really excellent for bringing the pain down just don't hold it too close to pain area hold it back a little further. Please get one either from a place that sells lamps or you could try the cooking facility that they use for cooking meat under heat lamp very strong heat maybe a cube of ice or icepack may work good luck.❤
Thank you so much for sharing this. I work full time, teach part time, own a business and still battle fibromyalgia every day. It's extremely hard but living with this illness can be done. We can do hard things! We are fibro warriors!
Your resilience and determination are truly inspiring! Balancing a full-time job, teaching part-time, and running a business, all while managing fibromyalgia is an incredible badass. Your message underscores an important truth: though living with fibromyalgia is challenging, it's definitely possible to lead a fulfilling life despite the illness. You're right - we can do hard things. Keep up the amazing work and continue to inspire others with your journey!
Thank you! 🥹
You are doing way too much and your body is telling you to slow down and take care of yourself.
This was excruciating to watch...and I understand on every level. My current flare is almost unbearable, too. I see my rheumatologist this week...likely have lupus to add to my list. But at least I will know how to proceed. My dress up days are appointment days, too!
Showering can sure be daunting. Bonus to shower AND get your own breakfast on the same day. Things most take for granted.
Thank you for your showing your raw emotions and vulnerabilities. Chronic illnesses are all consuming and destructive and important for others to see, even though they don't understand.
Amazingly, hope of a better tomorrow can keep us going. ❤
I'm truly sorry to hear that you're going through such a tough time with your current flare as well, and the possibility of lupus must be very stressful. It's reassuring that you have a rheumatologist appointment coming up, though, as having a clear diagnosis can help you navigate the path forward and access appropriate treatments.
You're absolutely right about the little victories, like dressing up for appointments, managing to shower or making my own breakfast being so meaningful in the context of chronic illness. It's a perspective that most people may not fully understand, but those small achievements can be significant milestones for us.
Thank you for your kind words about my video. I believe that sharing our raw emotions and vulnerabilities is essential, as it helps shed light on the daily struggles of living with chronic illness. Even if others don't fully grasp the extent of our challenges, it can foster empathy and awareness.
Hope is indeed a powerful driving force. It's what keeps us moving forward, no matter how difficult things may seem at times. Sending you all my best wishes and hope for a brighter, better-managed tomorrow. Keep holding onto that hope. ❤️
I just spent almost 3 days in bed crying. It was so bad I couldn't even get up. Most days, I'm lucky to get 2 or 3 hours of sleep. Burning spasms can't touch me anywhere. It's just so painful I hate flare-ups. Oxo
I'm nearly 50 and was diagnosed with Fibromyalgia back in 1996 when I was 22 years old. Ive been absolutely devastated by it and, for me, it's been degenerative... gotten worse. I've also developed Lupus. Thank you for showing us the struggles we with this condition face. God bless you.
First off, thank you for sharing your journey. Being diagnosed with Fibromyalgia at such a young age, along with developing Lupus, is incredibly challenging.
I'm so happy to know that my content resonates with you and sheds light on the struggles faced by those living with Fibromyalgia. It's so important that we share these experiences, not only to create awareness but also to support and uplift each other. If my content can bring even a little bit of comfort or validation, then I feel truly blessed.
Sending you lots of strength and positive thoughts. God bless you too. Keep being the amazing person you are, and take care of yourself. ❤️
I think that these vlogs are very important, they show the bad days and how you push through!
I hope you are doing ok ❤
Thank you so much for recognizing the importance of sharing both the highs and lows. I truly believe that by being open about the tough days, we can help others feel less alone and more understood. Your support and kind words are a bright spot, reminding me why I share my journey in the first place. I'm taking things one day at a time, and messages like yours make it a bit easier. Sending you love and gratitude! ❤️🌼
I am so happy to have found this video! It was so good to hear someone else talk about making priorities of things to do in a day, doing things in stages, being exhausted after taking a sower, the disappointment and depression over not accomplishing anything.
I'm really glad that you found the video helpful and that it resonated with you! It's so important to hear that others are experiencing similar challenges. It can make a world of difference in feeling less alone in what you're going through. Managing daily tasks in stages and prioritizing what's most important can be a crucial strategy for coping with limited energy reserves.
Exhaustion from seemingly simple tasks and the emotional toll of not meeting your own expectations are common struggles, and it's okay to feel disappointed or down about these things. Remember, it's also okay to adjust your expectations and be kind to yourself on harder days. Keep taking things one step at a time and celebrating the small victories. Each one is significant!
Thank you for sharing how the video impacted you. Hearing feedback like yours motivates me to keep creating.
I relate to all of this. I had a terrible flare last week It was so bad I didn’t think it was going to stop but just like you it eased up slowly 🙏 praying for your testing! Emmy Dr tested me for that 8 months ago and I was negative so praying the same for you!
I'm so sorry to hear about your flare-up last week, but I'm glad it eased up for you. It's such a rollercoaster of emotions and pain, isn't it? Thank you for your kind words and prayers. It's comforting to know that there are people out there who truly understand and have gone through similar experiences. I'm happy to hear your test came back negative. Your prayers and positive vibes mean so much.
I understand everything you are going through. You have to pick hair washing or showering. Or making yourself breakfast or shower. You can’t do both- most people do not understand this.
It's so comforting (yet saddening) to know someone else understands the daily choices we have to make. It's the little things that most people take for granted, but for us, even deciding between hair washing and making breakfast can be a huge deal. The energy it takes, the pain we experience, it's a real struggle. Your understanding means a lot, and it's a reminder that we're not alone in this. Let's continue to support one another and raise awareness.
@@tt_looking_glassI also am sorry but glad that I’m not the only one goin thru this, feelin sick and crazy when my symptoms r worst. Not only do I have fibromyalgia but multiple debilitating conditions 😥 Im very happy that ur able to make ur breakfast. I now feel depressed bc I can’t even get up to make breakfast, not even coffee 😭 so I go many, many days w/o food bc Im unable to cook let alone go shopping, prepping the food and then cooking. Often times I go a week, sometimes even 2 weeks which obviously makes me even so much more weak. I’m supposed to have a caregiver bc I need help w/ dressing, showering, etc everyday but I don’t have one. So the only meals I get r crackers or cereal, whatever I was able to leave near my bed bc I can barely make it to the bathroom and that’s all I can manage. I have to go from my toilet to a shower chair left at my sink bc I have to rest from getting up from the toilet to getting to my sink before I can even wash my hands after using the bathroom. This f-n Fibro has cost me my marriage and add insult to injury as my doctors now won’t fill my fibromyalgia medication. Plz… Wud u b willin to call me and talk to me on the phone? I really need a friend especially one who knows what I’m going thru. I don’t have that friend at all.
🥺💔😭❤️🩹😞
I'm so sorry your health is so poor. I never meant to make you feel worse. Please understand that I have good days and worse days too. On my bad days, I can’t even pick up the camera, so you’ll never see my worst moments. When I am able to pick up the camera, I’m likely able to get something simple to eat. I also eat poorly because of the lack of energy to make myself food.
I’m lucky I am married and my husband is a wonderful person who often brings me food in bed. I guess you could say he is my caregiver. When I’m alone and in a pretty bad flare, I order groceries online and fill a portable electric cooler at my bedside table with snacks and drinks. They are not proper meals, but they do keep me full until someone can bring me a meal.
It sounds incredibly tough what you're going through, and I wish I could do more to help. Please know you’re not alone in this, and it’s okay to ask for help from anyone around you, even if it’s just for a little support. And always, always know that sharing your experience here is valued and appreciated. We're all here to support each other through the ups and downs. Sending you a big virtual hug and hoping for better days ahead for you.
Hi. I’m 54 and last year I finally got diagnosed with fibromyalgia after I started suffering with symptoms for two years. My family don’t understand what my flares are like and they don’t support me. Luckily, although I live alone, my partner is fantastic with me. I’m just trying to recover from a bad flare up which lasted a week. I feel so tired still. Morphine is what I have been prescribed to take occasionally for my night pains. It doesn’t seem to work too well but takes the edge off. I use a walker when I’m unwell at home, when I can walk. As you say, we can manage pretty well, even with minimal medication for long periods of time, but then we have quite long periods of time when it flares up and you just don’t have the energy to do anything along with the other effects of this chronic disease. Thank you for being so upfront and making me realise that I’m not the only one and I shouldn’t beat myself up about it. Today I managed to shower and went back to bed. tomorrow I shall wash my hair can finally get to some normality for me anyway.
It sounds like you've been through quite a lot with your fibromyalgia diagnosis and the challenges of dealing with flare-ups. It's tough when your family doesn't fully understand what you're going through, but it's awesome to hear that your partner is so supportive. Flare-ups can really knock you down, and it's frustrating when the pain relief doesn't work.
It's a journey, for sure, and those good days can feel few and far between during a flare-up. But it's so important to celebrate those small victories, like managing to shower or wash your hair. Those moments are huge wins when you're dealing with so much. You are definitely not alone in this. There's a whole community out there that gets it and is here to support you. Don't beat yourself up over the tough days. You're doing your best, and that's more than enough. Here's to better days ahead. Hang in there!
Im wiped out from commenting on someone else’s comment but i kno what u mean. Bc of this epidemic in the US bc of people that took pain meds for fun that didn’t need ìt, the VA took pain meds away from almost all veterans at my VA that desperately needed them to get thru each day, excepted for those dying with stage 4 cancer and a few other exceptions. If I had my pain meds Id be able to do a lot more but since I don’t get them n e more of this my pain has gotten worse, I’ve gotten much heavier, which got even worse still. I’m so sick & tired of bein so sick & tired.
I’m so sorry to hear about the pain you're enduring and the struggle with getting the meds you need. It’s so frustrating and unfair that because of the actions of others, people like you who genuinely need these medications are suffering. I can’t even imagine how exhausting and disheartening it must be to face this on top of everything else.
The whole situation with the epidemic and how it affects those of us who need pain management is just heartbreaking. I wish there was more that could be done to change this. It’s so important for us to keep sharing our stories and supporting each other, even when it feels like we’re barely making it through the day.
Sending you all my strength and hoping you find some relief soon. Please keep reaching out here whenever you need to vent or share-your voice matters and we're all here to support each other. Take care and hang in there. ❤️
You described perfectly what our days look and feel like.
Thanks so much! It’s comforting to know that we’re not alone in this and that others really get what our days are like. Let’s keep supporting each other through it all. 😊💪
My husband is so far from understanding my fibromyalgia flare up days. I truly feel alone with this condition. Depression and loneliness take control of my mind and try to talk me into taking my own life.
Thank you for sharing and I wish better times ahead for all of us.
Denise, I’m so sorry you’re feeling this way. Living with fibromyalgia is already so hard, and feeling misunderstood and alone on top of it makes it even heavier. Please know you’re not alone, even when it feels that way. Those dark thoughts lie, you matter so much more than this pain or this moment.
Thank you for sharing something so vulnerable. You’re stronger than you realize, and you deserve support and kindness. If it ever feels too overwhelming, please reach out to someone who can help. Sending you so much love and hope for brighter days ahead. ❤️
I understand and pray for you, I'm going through a big one right now been in bed for 5 days so far. I appreciate you sharing this. Yes the tests and doctors is so frustrating. It's so hard to find doctors that understand.
I'm so sorry to hear you're going through such a tough time right now as well. Five days in bed is incredibly challenging. It's heartbreaking how difficult it can be to find understanding doctors. Sending you heaps of love and strength. Thanks for sharing your experience. 💜 Take care and hoping for brighter days ahead for you.
It's debilitating fibromyalgia. The pain threw out your body, fatigue, headaches
It just goes on.i get pain in my chest where it feels like your having a heartattack but it's
Aflare. I have good and bad days. I'm so sorry you are suffering ❤
I literally want to scream it through the computer screen for you to find doctor maggie! If you met her, your whole life would change, and I am looking forward to starting a program with her soon! Please find her videos and watch them as soon as you can,!!! She has helped SOOO MANY PPL WITH YOUR SAME SYMPTOMS!!!!
Your excitement is contagious! I'm definitely going to check out Dr. Maggie and her programs. It sounds like she has made a huge impact on so many people, and I'm really hopeful she could do the same for me. Thank you for the passionate recommendation, I'll dive into her videos right away! 🌟
Thank you for being able to share such vulnerability. I am very hard on myself and your video has helped me to take bigger step towards acceptance.
Thank you so much for saying that. I totally get being hard on yourself, I’m the same way. But hearing that this video helped you take a step towards acceptance means everything. I’m actually writing a book on acceptance right now! I’ll be launching a free newsletter on Monday where you can stay updated on when the book is published (probably sometime in the new year). I’ve also got another book coming out soon filled with short stories and poetry about living with chronic illness. I’d love to keep you posted if you’re interested! You’re doing so great, keep going. 💛
@@tt_looking_glass Absolutely. I am sharing the video with family members and caregivers for some. It's funny how just hearing someone else describe exactly what you experience provided me with strength. Acceptance is a big part of it.I keep thinking it will pass and I will be able t0 do all the things I love again. I know better but I am so hard on myself!!
Oh, It's amazing that you're sharing the video with family members and caregivers, it can be such a relief for them to understand what we go through a bit more. Acceptance really is such a huge part of this journey, but like you said, it's tough when that little voice keeps saying "maybe it will pass and I can do everything I used to." I catch myself thinking that way too, and it’s such a hard habit to break. Just know you’re not alone in that, and it’s okay to have those feelings. I think just being aware of it is a sign of so much strength in itself. 💛 I think my book that is coming out around November would be a great gift for families and fried a to get a glimpse of what’s like to live in our shoes.
I understand. Some days are flare up days with pain and fatigue. So I force myself to workout on days when I am well enough. Have been a ballet dancer since little so I have a high pain threshold. I also take Gabapentin (didn’t like side effects of Lyrica). Don’t let it make you bedridden. Push through like you are doing. Prayers for you.
It’s amazing that you’ve found ways to keep moving even through the pain and fatigue. Being a ballet dancer must have taught you so much about pushing through and managing pain, but it doesn’t make the struggle any less real. Finding what works for you, like Gabapentin instead of Lyrica, is such a personal journey, and it’s so important to listen to our bodies and adjust as needed. Thank you for sharing your experience and encouragement. It’s a reminder that while we have tough days, we can still find strength within ourselves to keep going. Sending prayers your way too, and here’s to more days where we feel well enough to do the things we love! 💪💕
You are courageous and very #fibrofierce❤ As a fellow fibromite, I can relate to every step of your journey. Over the last two days, I managed to wash my hair and take a bath. It is indeed exhausting. Sending you warm, gentle hugs.
Thank you so much, Becca. Your words truly touched my heart. I know how hard it is to push through those small tasks that can feel like climbing a mountain when you’re in the middle of a flare. Sending you warm, gentle hugs right back. We’re in this together, and your support means the world to me. 💜
I’m so sorry you are going through this. I am the same age as you and feel that my pain is getting worse in Perimenopause. Do you find that too? Definitely more difficult to manage my emotions too. Now I have insomnia, more migraines, and unpredictable mood swings to go with the pain. I get this nerve pain that feels like I’m being electrocuted or that my whole body is hooked up to a T.E.N.S unit full force. Like razors in my nerves. No medication can touch it. Do you have nerve pain? I hope you are feeling better soon. Interest hugs from the U.S.
Hey there, first off, thank you so much for the kind words and support. I truly appreciate it. It's hard to go through chronic pain and even more challenging when life adds more to our plates. I am finding that all my symptoms are getting worse with perimenopause. I feel I'm just around the corner of full menopause and everything you mentioned has gotten worse with it. I can totally relate to the emotional ups and downs. As for nerve pain, I do experience some, but it might not be as intense as what you've described. Just know you're not alone in this, and I'm here, sharing and understanding. Sending you gentle hugs right back. Take care and stay strong! 💜
@@jenniferw1595 Great explanation of being (electrocuted) yes it kinda in a way makes you hold your breath as it longers on very painful, it kind of distorts your movements your breathing get a heat pad that really does work well 2 minutes in the microwave then place first on towel to let heat go through when heat dies down then you can put the pad itself on the area of pain till heat makes it comfortable enough to stop it in it's tracks, heat pad again you can give a little massage to the pain to get on top of it All the best❤️👍🤗🥰😊
Some castor oil may help afterwards or coconut oil rubbed in, castor oil oil goes in deeper than any other oil.
I was diagnosed with fibromyalgia about 20 years ago before it became fashionable.
I have a host of other chronic illnesses.
I must say for someone with fibromyalgia how well you look 👍.
Your hands general freedom of movement is amazing. The fact that you can lay in bed and hold a book up for an extended period of time is remarkable.
I would go so far as to say if you washed your hair and put some makeup on you'd look pretty good!
Fibromyalgia never goes away.
It's like an overcoat of pain.
It's not a case of were does it hurt, it's a case of where doesn't it.
Sleep is no help, in fact if you sleep to long it just makes it worse!
The only thing I find that helps it is ibuprofen and caffeine.
I take the ibuprofen as tablets and the caffeine as coffee ☕ in the morning and pepsi max from lunch time onwards.
I hope all you sufferers find relief.
When I'm really bad I struggle to get out of bed let alone do a video about it!
I appreciate you sharing your experience, and I’m sorry to hear how much you’ve been through with fibromyalgia and other chronic illnesses. It’s a relentless battle, and I relate so much to what you said about pain being like an overcoat-it’s always there, weighing us down. Sleep being no help and the struggle to just get out of bed some days is something I know all too well.
Thank you for the kind words about how I look in the video, but I know that what we see on the outside doesn’t always match what’s going on inside. I’m glad you’ve found some relief with ibuprofen and caffeine, we’ve all got to find our own little ways to get through the day. Sending you strength and hoping you find some peace in the midst of it all. 💜
Thank you for your effort to do this. I am watching during an episode. One of many in months of flare ups. Sending u love
I'm truly touched to hear that you're finding comfort in my content, especially during such a tough episode. It means a lot to me that you've taken the time to watch and reach out amidst your flare-ups. I'm sending you all the love and positive vibes right back, hoping for more manageable days ahead and that you find moments of peace and relief soon. Take care of yourself, and remember, you're not alone in this.
I am in active flare-up now. Im so stiff, and my joints hurt. It feels like i have chills. Fatique is not bad this time around. I've been in bed for days. I'm so tired of this...
I'm really sorry to hear that you're going through such a tough flare-up right now. It sounds incredibly challenging, and I understand how exhausting it is, both physically and emotionally. It's okay to feel tired and frustrated with these relentless symptoms, your feelings are completely valid.
Although I know there's no one-size-fits-all solution, and you've likely heard a lot of advice already, sometimes small comforts can make a bit of difference. If you're able to, gentle stretches or warm baths might help with the stiffness. Even just changing your surroundings by moving to a different room or adjusting your bedding can sometimes help break the monotony of being in bed for days.
Most importantly, please be kind to yourself during this flare-up. Allow yourself the rest you need without any guilt. Reaching out to your support system, whether it's friends, family, or online communities, can also provide emotional relief. It's okay to ask for help, even for the small things.
I'm sending you lots of strength and hope for more comfortable days ahead. You're not alone in this, and it's okay to take things one day at a time. 💖
@@raqrod163 osteo bi flex is for joint's specifically
Wonderful video, I mean watching you in pain isn’t wonderful but I love how you explain things. This will be another video of yours I’ll share with my healthy at home adult family in the hope it’ll remind them there’s reasons I can’t do it all. Having a hot spring here, will be even hotter in summer, I don’t cope well at all in the heat, everything kicks up a few notches. Xxxx
It's great to hear that you found the video meaningful and that it resonated with your experiences. Sharing videos like this with your family is an excellent way to help them understand what you're going through and the challenges of living with Fibromyalgia.
It can be tough for healthy family members to fully grasp the impact of chronic pain and flare-ups, so sharing content like this can provide valuable insights into your daily struggles. It's important for loved ones to have empathy and awareness of the limitations that chronic illnesses can impose, especially during challenging times like flare-ups or hot weather when symptoms can worsen.
Your support system plays a crucial role in your journey, and efforts to educate them about your condition can lead to better understanding and support. Keep sharing and communicating with your family , and hopefully, it will lead to a more empathetic and compassionate environment for you.
I never use to leave my house without makeup on. Now, I CANNOT do it anymore. The tremors will make me stab myself in the eye with mascara or eyeliner. I HATE that! This f’ing disease is life changing! !!!!
Ugh, I totally get that frustration! Fibro changes everything. It’s like all the little things we used to do without thinking suddenly become huge hurdles. I’m so sorry you're going through this, especially when it’s something like makeup that used to make you feel good. I’ve definitely had moments where I just wanted to scream at this f’ing disease for taking things away from me.
It’s okay to feel angry about it, honestly, I think we all do. Just know you’re not alone in this, and you’re still amazing, makeup or no makeup. Keep hanging in there. You’ve got a whole community behind you that gets it, and we’re right here with you through it all.
ditto! you are not alone. too much to go outside right now. bathroom feels miles away
It's like, on these flare-up days, even the simplest tasks feel like a marathon. And when you say the bathroom feels miles away, I totally feel that. It's wild how fibromyalgia can make your own home feel like an obstacle course. Just know you're not alone in this. On days like this, I try to remind myself to take it one slow step at a time, even if it's just making it to the couch. Sending you strength and understanding. We'll get through these flare-ups together. 💪💜
I speak for myself when I say this I’ve gotten so used to these symptoms I can ignore them and go on with my day
It's incredible that you've developed a coping mechanism that allows you to carry on with your day despite the challenging symptoms of fibromyalgia. Everyone's experience with this condition is different, and finding ways to manage and adapt to your own symptoms is a significant achievement. It's also essential to continue listening to your body and seeking support when needed, as self-care and understanding are crucial aspects of living with fibromyalgia. Your resilience is inspiring!
Than you so much for sharing the reality of the fibromyalgia flair! This is exactly what I feel, sometimes am having panic attacks as well, all of the sudden, very heart to breathe.
You are very brave to share this really hard times leaving with fibro😬 Its hard for people to understand what we are going through, sometimes they don't even take fibro seriously, like its all in my head, so you just trying to isolate yourself from people, because it make me feel guilty that something is wrong with me😢and am just making things up😶
I'm truly sorry to hear about your struggles and the additional challenge of panic attacks.
Thanks a lot for sharing your experience. it's spot on with what I go through, especially those sudden panic attacks that make it tough to breathe. It's hard when others don't understand what we're facing, even brushing it off as if we are makin git up. So, we end up pulling back from people. Fibromyalgia is a difficult condition for others to understand because it's not visibly apparent in the way some other conditions are. The pain and emotional distress you're experiencing are real, and it's not something you're just making up.
I don't know about you, but my self I do everything I have to for myself because I don't have anyone to do it for me. You have to move no matter if you are hurting, don't feel sorry for yourself.
I admire your strength so much. It takes a lot to keep pushing through when you’re dealing with something as relentless as fibro, especially when you’re the one who has to get things done, no matter how much it hurts. You’re right, sometimes, we have no choice but to keep moving, even when it feels impossible. It’s not easy, but there’s a kind of power in knowing you’ve got yourself, no matter what. Thanks for sharing that determination,it’s a reminder to all of us to keep going, even on the hardest days.
I’m sad for you seeing the familiar pain. I’m in a flare right now and it even hurts all over to just lay in bed and wait for it to end.😢
I'm so sorry you’re going through this right now, Jackie. There’s nothing quite like that deep, relentless pain that makes even resting feel unbearable. It’s heartbreaking to know others are suffering too, but at the same time, it’s comforting to know we’re not alone in these moments. I hope this flare eases up for you soon and that you can find a bit of comfort. Sending gentle hugs and all the strength I can muster your way. We're in this together. 💔
Hope you're ok !
I’m doing much better. I appreciate your concern. ❤️
❤ hugs my friend. I hope your tests come back negative for the other autoimmune condition! Praying for you...and I hope this flare is gone!
Thank you from the bottom of my heart for your warmth and prayers. Your words give me strength and comfort during these trying times. It's people like you that make the journey a little easier to bear. Even if the tests show something, knowing I have support is invaluable. I'm hopeful too, and with support like you by my side, I feel stronger. Sending you the biggest virtual hug back! ❤️🤗
Seriously take a look at CIRS, it's about an inflammation mechanism stuck after an exposure to a biotoxin. I have a playlist to introduce people to it.
Luckily after I have flare-ups, I don't remember that much 😆 It's really hard to see somebody go through that.
Thanks so much for the recommendation. I've heard a bit about CIRS, but I'll definitely check out your playlist to get a deeper understanding. It's great that we can share resources and support each other in this way. And I totally get what you mean about not remembering much after flare-ups. Sometimes, maybe that's a blessing in disguise? 😆 Thanks for your empathy and for reaching out. Take care and sending you positive vibes! 💜🌟
Hope your feeling better thank you for sharing ❤
Thank you so much for the kind words and well wishes! Your support means a lot to me. Sharing our journeys makes it a bit easier knowing we have understanding souls out there.
I was initially diagnosed in 2013.
Prednisone sort of worked but I ended up having a heart attack and 2 stents.
Further diagnosis included Polymyalgia, PMR, Arthritis, Osteoarthritis (numerous prescriptions and pain killers with no success) and back to Fibromyalgia in 2023.
Family Dr. prescribed Duloxetine and the results were astounding. Never felt better.
I hope my story helps.
Thank you so much for sharing your journey with such openness. It's truly a testament to your resilience. Your experience highlights the often trial-and-error nature of finding treatment that works when dealing with chronic illnesses.
I'm deeply sorry to hear about the severe side effects, like the heart attack, you experienced along the way.
Hearing that Duloxetine has brought you significant relief is incredible. It's amazing how much of a difference the right medication can make when it comes to managing pain and improving quality of life. Your story is a powerful reminder to never give up hope in the search for effective treatments and to continuously advocate for care that truly addresses individual needs.
Thank you again for sharing your story. It’s stories like yours that help to light the way for others in their darkest moments, reminding us all of the importance of perseverance, the value of innovative treatments, and the power of shared experiences. Wishing you continued health and well-being. 💖
🫂/🤗There should be a hug/care reaction button for videos. Thank you for sharing the honesty of a flare. I wish my family would watch this and understand x
Hey Angie! Oh, I completely agree - a hug/care reaction button would be perfect for videos like these! I love the emojis you found. Thank you for appreciating the honesty. Flares are tough, and sometimes sharing those raw moments can really help others feel seen and understood.
I wish your family would watch and understand too. It can be so hard when those closest to us don’t fully get what we’re going through. Just know that this community gets it, and we’re here to support you. Sending you big virtual hugs! 🤗💜
Get a heatlamp its amazing its like a heatlamp that cooks meat and is very high temperature so be careful try usiñg a towel then put ot on pain area let heat ho through towel to warm it up as much as you can take be brave you'll be ok just carry on through your day dont keep thinking about it keep your heatlamp handy so no time is lost while thats happening put heatpad in microwave for 2minutes or 3 keep focus so make sure heatpad is with heatlamp at all times. The firs5 time i got it i did panic but i wasnt going to let it get in the way of my routine try to adjust your thinking align yourself
Hey Eileen! Thanks for the heat lamp tip. I never thought about using one like that! I’m a big fan of heating pads myself, I use them all the time to get through those tough pain days. But the heat lamp sounds next level.
I have noticed that change of season worst pots and mcas. Is like the body reajust and for us it takes more time and energy
That is a very interesting point. I had not had a major MCAS attack in 6 months and I just experienced an anaphylaxis reaction. Right about when we had a major weather change. Thank you for your insight.
@@tt_looking_glass Yes on march I had huge flare for about a month and it was the middle of the season between summer and winter, spent like 2k usd on medical test that all of them return normal but anyway my advice try to use the compression socks during those days, try low histamine diet and drink lots of water and be patience eventually we get better.
Being sick is soooo expensive. Yeah the compression stockings do help with the POTS but they hurt a lot because I get extra sensitive when I'm in a flare. I find that living with multiple chronic illnesses is all about choosing which symptoms you want to deal with because often when I do something to ease off one symptom it makes another one worse.
Yep! This is me!
Unfortunately, this is the reality of too m any people. Thank you for watching! I hope you enjoy my other vlogs. ♥️
Thank you for sharing. Do you find that if you start getting an illness/fight off an illness it triggers a fibro flair? Xx
You are welcome! Thank you so much for watching and commenting. Welcome to the channel and to this community. Yes!!! Absolutely. Sickness is a huge Fibro flare trigger for me. I don’t even need to get supper sick, just the inicial fighting is enough to send me into a two week flare. I hope you are doing well and not fighting a flare. But is you are, I’m right here with you. Thinking of all the Fibro warriors out there. ❤️
I know exactly how you feel…..when in a flare it’s horrific. The all over pain chills. Aching. Sick sick sick everywhere….but thank god it passes
It’s tough, isn’t it? Those flares are absolutely debilitating, and the way you describe the pain and sickness really captures the intensity of what it's like. It’s a relief when those moments pass, and having that light at the end of the tunnel can help us get through. Thank you for sharing your experience; it helps us all feel more connected. Stay strong!
Thank you ❤
You're welcome 😊 Thank you for watching. ♥️
I said those exact same words "I cant do this", while bawling to my partner just the other day. The mental part is much harder for me...what about u?
Also, thank you so so so much for sharing these vulnerable moments...It truly helps with feeling less alone. I always say to my partner that I feel so alone as no one in my circle has any chronic health issues that interrupt their lives so often. Thank you ❤
It means a lot to me that my video resonated with you, and I'm truly touched to hear that it helps you feel less alone in your journey with chronic health issues. I completely understand what you mean about the mental aspect being the toughest part sometimes. It is so hard to deal with physical pain and the emotional toll it takes on us.
It's incredibly comforting to have understanding and supportive partners like we do, and I'm grateful for mine too. Even though it can feel isolating when those around us don't have similar health challenges, it's important to remember that there's a whole community of people who can relate. This is why I share what I do on RUclips. It also helps me feel less alone when people comment with their stories.
We're all in this together, and your words here show just how powerful it can be to share our stories and provide support for one another. Sending you lots of love and strength on your journey. ❤️"
I know how you feel 😢😢
❤
Btw.. Dr Maggie discusses, in her videos, why so many doctors, including her OWN doctors were UNABLE to give her diagnosis or treatment to fully help her for her own autoimmune disorder, bc MANY DRS simply do not have the knowledge to help ppl bc they do not learn about nutrition or nutritional deficiencies in medical school, which are the ultimate causes of chronic pain and disease, and many Drs don't put symptoms together to figure out the cause and treatment of these kinds of diseases..but Dr. Maggie does!!!!
Thank you for your vulnerability. I wonder if your nervousness before your tests is the result of trauma, you've been through so much especially when you had the uvitus (wrong spelling sorry)?
I remember how invasive those tests were for you.
Anyway much love from Australia.
Thank you for your kind words and for following my journey. I really appreciate your support all the way from Australia!
You're absolutely right; the nervousness before tests often comes from past experiences, and dealing with uveitis was very traumatizing. Some tests and procedures can be quite invasive, and they leave you with PTSD.
I'm grateful for your understanding and empathy. It's people like you who make sharing these vulnerable moments worthwhile. Sending lots of love and warm wishes.
@@tt_looking_glass you're welcome, I could relate as I have had lots of medical stuff done lately and like you have been very anxious beforehand where in the past I would just roll with it.
How is your flare now? Hopefully it's on the way out.
♥️ The flare has definitely eased off but it's still there. Hanging on. Relentless. I'm coping better and I'm able to do more things but I am getting pretty exhausted from dealing with pain levels that are higher than normal. It takes a lot more energy to do the same things when you are experiencing more pain.
@@tt_looking_glass I can relate, when we are in pain everything is harder even thinking lol.
live alone, have to get up dogs need food water, cats too. have not had a good day in recent memory. not been out of the house in over a month. try to find easy food cereal, but omg almost out of milk.
I'm so sorry to hear that you've been going through such a challenging time, and it sounds like you're carrying a lot on your shoulders. Taking care of your dogs and cats, especially when you're not feeling your best, can be quite demanding. Not having had a good day in a while and not being able to get out of the house for over a month is incredibly tough.
Running low on essentials like milk can add to the stress. I wish there was someone who could be there to help you through this difficult period.
If possible, maybe you can reach out to a friend or neighbour for some assistance with getting groceries or supplies? It's okay to ask for help when you need it. And when you're up to it, finding easy-to-prepare meals is a good idea to conserve your energy.
I'm sending you virtual support and positive thoughts. I hope things start looking up for you soon, and you have brighter days ahead. Take care. ❤️🐾
@@tt_looking_glass THANK YOU FOR YOUR SUPPORT, I HATE TO ASK FOR HELP. THEY ALREADY KNOW WHAT IS GOING ON. NOBODY WANTS TO BECOME INVOLVED WITH CHRONIC ILLNESS. NOT THEIR PROBLEM. OK. THIS TO WILL PASS. ON ANOTHER ROUND OF DOXY SO CROSSING FINGERS FOR A BREAK.
Your strength is truly commendable. It's understandable that it can be challenging to ask for help, especially when dealing with chronic illness. People might not always understand the complexities of what you're going through, but please know that your struggle is valid, and reaching out for support is not a sign of weakness.
I'm glad to hear you're on another round of treatment, and I sincerely hope it brings you some relief. You're right, this difficult period will pass, and I'm crossing my fingers for that much-needed break in your symptoms. Take care. ❤️🐾
I have what I call "Sledgehammer Days": Days when I wake up feeling like someone came in the night and beat me with a sledgehammer. I don't know how they get in and out undetected or how they manage to beat me without waking me, and somehow they never even disturb the dogs. But they sure do a thorough job on my body with that sledgehammer!
It feels like I have "Apple Bruises" everywhere. You know the bruises you sometimes see on apples, where you touch the skin of the apple and it's beyond soft underneath, it's practically liquid? Like that. Bruises so heavy that they look black and feel like it's just liquid under the skin, and you can just imagine what those feel like from inside. Those Apple Bruises are everywhere, all left by the Sledgehammer people.
Oh wow, I totally get what you mean by "Sledgehammer Days." Those days are the absolute worst! It's strangely comforting to know someone else gets it, even if it’s something none of us would ever wish on anyone. Thank you for sharing this, it’s a perfect way to describe that intense, mysterious pain we go through. Love your sense of humour. 🤣
Take care of yourself!
Thank you so much. The worst is over but I’m still recovering from this flare. Thank you for watching and your support, it means a lot to me. ❤
❤❤❤
Thank you for the love and support. ♥️
Dr. MAGGIE ASAP!!!
Music is WAY TOO LOUD (for my flare up). Thank you for sharing.
Sorry about that. I hope your flare-up eases soon. ♥️
my back is really tight from the shoulders to the hips. Is that fibromyalgia? I've been to a million doctors and never get any answers. They just tell me I have anxiety and if I calmed down I would be fine.
It sounds like you're going through a really tough time with your back pain. It's frustrating when you can't get clear answers from doctors. While fibromyalgia can cause widespread pain, including in the back, it's often accompanied by other symptoms like fatigue, sleep issues, and brain fog. However, everyone's experience is different. Anxiety can amplify physical symptoms, but it's crucial that your doctors don't dismiss your pain just as a result of anxiety. It might be worth seeking a second opinion or consulting a specialist who has more experience with fibromyalgia and chronic pain conditions. You deserve to be heard and to get the right kind of help. Take care of yourself and don't give up on finding answers.
Marvin Ridges
Hey Bernie, not sure who Marvin Ridges is, but thanks for dropping by!
Nothing nice about January flare time nor the one on December 3rd. August 29th is named Katrina like January it means 3 weeks of hell. So whats that mean ? Little you can do except don't taunt it by pushing it in August. Apparently my doctor came up with a procedure that does stop flares in of itself. Not the two you've heard of and nothing on the same level as discussed. Yet zero flares with a top down treatment of epidural steroid and nerve block combined within the needle barrel. Axis vertebrae bilaterally and the S1 bilaterally. Flare killer ? Looking to be. Not for us though just for information purposes only.
Have you considered that the chemicals you sanded off of your table, could have caused this flare?
It definitely would have contributed but this flare was already coming before it. I will pay more attention in the future. It got even worse when I varnished it. It was so bad and making me so sick that I had to put the table outside. It still is 1 month and the table is still out as every time we tried to bring it in I got a migraine and nausea.
May I ask what are your symptoms of fibromyalgia in addition to generalized physical pain?
Migraines, nausea, brain fog, burning skin, stomach cramps, hypersensitivity to scents, smell and light. Temperature instability, sharp needle feelings, sleeping problems... but I have so many diagnoses that is hard to tell what belongs to what.
Wow！ so basically you include all these above symptoms under the title of “fibromyalgia”?
Yes
You are so brave !!
@jimmyching7293 and so are you! All of us living with chronic illnesses.
live 40 miles from town and store it almost kills me to go. and I am really down afterward
I SO BADLY WANT TO SEND U DR. MAGGIE'S VIDEOS SO U CAN SEE WHAT SHE DOES AND U CAN HEAR/SEE THE AMAZING STORIES OF THE PPL WHOSE LIVES SHE HAS CHANGED WITH HER PROGRAMS..WE HAVE WASTED ENOUGH TIME FEELING LIKE COMPLETE SHIT!!!!!!
I hear you loud and clear! It really does feel like we've spent too much time feeling awful. I'm so ready for a change and can't wait to see what Dr. Maggie's programs are all about.
Is that your husband who was massaging u and running your bath? If so, unare very lucky to have him by your side..I hope u read my previous messages about Dr. Maggie..she is the answer to our PRAYERS...to get well
Yes, that was my husband! I'm incredibly lucky to have such a supportive partner who helps me through the tough times. I've seen your messages about Dr. Maggie and I’m definitely going to look into her work. Thank you for being so persistent and caring. It means a lot to have your support and encouragement! 💖
My DR just recommended LDN Low Dose Naltrexone for my fibromyalgia.
I'm really interested in this medication and that's unusual for me since stay away from RX's
I'm 41 and have had fibro since my early 20's ..i hope this will work👍🏽
That’s awesome! I’ve actually been taking LDN for almost 10 years now, and honestly, I can’t live without it. It’s been such a game-changer for me. I really hope it works for you too! I totally understand being cautious with meds, but fingers crossed this brings you some much-needed relief. Keep me posted on how it goes.
Exactly what I go through. Huge hugs to you 🫂
I have been going to Bowen Therapy sessions. They help immensely. ❤
Thank you for your support. It's both comforting and saddening to know others experience similar struggles. I'm so glad to hear that Bowen Therapy has been beneficial for you! I've heard about it but haven't tried it yet. Maybe it's something I should consider. Sending you lots of love and strength back ❤️