You should see an ophthalmologist preferably a neuro-opth., blurriness and a dimming in my left eye was my first sign 30 yrs ago that I now recognize as MS. I saw an optometrist and he said my vision was perfect, gave me some dry eye drops and sent me on my way! Along my MS journey I have lost the vision in the same eye twice more, with lasting damage each time even with IV steroids. Don't wait get to a Dr. that can help ASAP!!! Sending a "feel better hug" your way.
Hi Neil, they should have sent you to a ophthalmologist. I had some eye problems recently and the optician phoned the hospital and I seen a specialist the next day. You keep fighting, good to hear from you.
Hi Neil,Definitely sounds like O.N. I've had it quite a few times. It starts out that way and it gets dimmer and it is painful. How are you today? So sorry the mobility is declining,hopefully the hospital can put you on the walking deug Ampyra we call it here in the states. Cheers to better days!
Hi Avril, I just can’t explain the vision problems. The other night, it was pretty bad (right eye) I’d say 7 out of 10 bad. But then, literally no more than five mins later it completely corrected itself. Just can’t explain it. I’m currently sat outside on the patio in the lovely sunshine writing this message to you. It’s amazing how the sun ☀️ picks up your mood a little. Love listening to all the lovely birds singing as well.
I have Optic Neuritis since August 2018 starting in left then right. Left eye is completely blurred and the right slightly. It gets really bad after hot shower or stepping outside in the heat. Not confirmed, but believe I have Nystagmus, because my eyes cross as well. Neither eye has gotten better since then. This was determined through a special eye test by my Neurologist. The test involved sitting in front of a monitor with some type of electrodes attached to my head and starring at an image for a certain amount of time. This measured the latency in each eye. I still suffer with it, and even went temporarily blind Christmas Day. The blurriness is annoying, I live with it every day. Push for the right test!
Hi Michele, I’m sorry your having to deal with this, it sounds just horrible. My blurred eye is only slight, but after having perfect sharp vision for years it’s quite disturbing for me. This morning I contacted my MS nurse, so I’ll see what she has to say when I get a call back.
You should see a Neuro-opthamalogist. Your symptoms sound like it could be optic neuritis. I had headaches and eye pain felt like a strain and then lost some vision in my right eye and it was optic neuritis. Had to have 3 rounds of IV steroids to help. You could be having a relapse as well stemming from your cold. Sending you get well vibes!
Thanks you so much Michelle. Hopefully your vision was fully restored after the steroids. I contacted my MS nurse this morning and I’ll be getting a call back in the next day or so. See what she has to say. Take care.
I have had a blurry right eye for almost a year now. The first time I went they said dry eyes and then a few months ago I had a curved optic nerve in my right eye. The veil is the perfect description and it comes and goes.
Hi Neil , so sorry you’re feeling these weird symptoms, hopefully your eyes are just having a mini flare from the virus you had. Best to get this checked out with your ms team though , it’s your eyes and you don’t want to risk things . Eye issues are so scary , I’ve had my fair share of weird things happening in the past. I’ve been so ill these past few weeks with a nasty flu virus, and yes in response to your last message it makes your ms go into mega over drive .... oh the joys hey ! Take it easy , hope you bounce back from this asap , take it easy, Grace :)
Thank you Grace, and it’s always so lovely to hear from you. I’m terribly sorry to hear you’ve been poorly and it’s flared up your symptoms. Fingers crossed you’ll be feeling much better very soon. x. My eye is a mystery, the other night it was very blurry, 7 out of 10 blurry but the weird thing is literally five mins later it corrected itself. I have contacted my MS nurse and left a voice mail, she always aims to get back to me in a couple of working days so it will be Mon/Tue now. I’m currently sat outside on my patio in the beautiful warm sun just listening to the birds singing. I’m trying to recharge my batteries, I just feel the need to be sitting in the sunshine. look after yourself.
Thanks Neil , I’ve been feeling the extra stiffness & aches due to this stupid recent flu bug so I’m just taking things slow. Snap , I’ve been sat in the garden soaking up some sun , I saw a robin today😊 . Hope you’re ms nurse can give you some advice next week. Try not to stress too much either , cos that’s gonna make you go downhill. Do something to make you feel happy , watching a good film with a bowl of ice cream or popcorn always makes me feel good lol ! Look after yourself, Grace :)
Thanks Grace, I’m still sat in the garden. Aren’t Robin’s just the most beautiful birds .. at the moment just sitting here is making me feel happy. Have a lovely weekend. 😊
I've had optic neuritis three times in my right eye and once in my left eye, its very aggravating. In fact the third one in my right eye is what led to my MS finally getting diagnosed. But if you can still kind of see out of your eye, that is a good thing. I hope things with your eyes get better soon. Mobility issues suck too with mine getting worse slowly, haven't fallen yet, but I completely understand with the leg pain and stability issues.
Hey Jay, the blurred eye isn’t anywhere near bad but it’s enough to worry me. I’ve contacted my MS nurse today so see what she says. Sorry to hear your mobility is getting worse, not good. If it wasn’t for my upper body strength I would be falling all the time. The strength in my arms always save me. Take care matey.
Hi again Neil :) One of the reasons they sent me for my first MRI is, I lost part of my vision in my left eye. I had it for weeks but by the time I saw the hospital ophthalmologist it had cleared up. Nothing was found with the eye tests. I'm back to the ophthalmologist today because I'm going through a period of extreme vertigo when I turn my eyes to the right of me. I'm not expecting them to find anything but its good that I'm going whilst I'm still symptomatic.
Hello again Jan😊 .. Oh I see, in that case it makes complete sense now. I expect they were looking for signs of Optic Neuritis, something I’m recently dealing with myself since having a cold virus back in early March. Unfortunately mine hasn’t cleared up though. Nothing was found on my eye test either.
@@NeilBradleyMS Hi Neil, I'm sure they put you through the mill at the eye clinic but did they give you an Amsler Grid test? If not, you can download one and do it at home. My field tests came back normal and this time I refused to have my pupils dilated because they've already done it twice and I'm so sensitive to light that dilating my eyes makes me feel quite sick. The Amsler Grid test had one shadow spot right in the middle on my left eye. I'll be seeing the neurologist on Monday.
Hi Jan, I’ve just Googled the test and tried it out. When focusing on the dot in the centre, I can see everything with my bad eye but it appears to be ever so slightly wavy. My good eye is fine. Teresa on the other hand who has a lot of trouble with her eyes, was unable to see the dot with her right eye, and it was very wavy etc. The other eye is ok. She is under the hospital with her vision though. Thanks for that, very interesting. I hope your visit goes well on Monday.
@@NeilBradleyMS Thanks Neil, though I'm dreading my visit.... I hate hospitals! Both you and Teresa should shade the areas that are wavy and for Teresa, the central invisible dot and take that along to your eye specialists.
My left eye did that. Yes that is what it is called. Every day cover your left eye daily to make sure it does not get worse. Mine was blurred and on day three I had almost lost all my sight in the life eye and did not realize it until I covered my right eye. So just check it daily.
Thanks Jessica, I don’t think this is Optic Neuritis as I have no brain MS activity and never have done, I’m just spinal. It came on with a cold virus but doesn’t seem to get better. I’m reluctant to mention it to my MS nurse because I think once you have that label, everything is MS. Hmm, I’ll give it some thought.. I might mention it in an email to her when I chase up my referral. Thanks for the message.
@@NeilBradleyMSThe eye thing is not in the brain but in the Optic nerve. So even though you have never had a brain MS attack as of yet does not mean it can't attack your eyes.
Thanks Jessica, this morning I contacted my MS nurse, I’m waiting for a call back so it will be interesting to see what she has to say. Appreciate your thoughts.
Hi again. I agree with others here. I could be a flare triggered by the cold you had. My left eye is the one that gets affected. It did get slightly blurry twice in one week but it went away in a matter of mins both times at the start of the virus (with flu like symptoms) my son and I had. Told my neurologist and he made a note of it but didn't give it much merit. Hope you feel better soon.
Hi Jayleen, thanks for this. My right eye has been effected and it’s very random. It can blur for several hours at a time and then in a matter of minutes recover. I can’t explain it. I’ve contacted my MS nurse on Thursday last week (left a voice mail) but as yet she’s not called back. I just want to rule everything out including Optic Neuritis.
Hi Neil Sounds like the old Optic Neuritis I've had it before and it is another symptom of MS but that is what it sounds like. I've had it many times and can take a few weeks to go. I know you said it doesn't seem like that but sure it is. Take care my friend 😉
Thanks Adrian, I’m beginning to wonder if it is. I’ve never had any brain MS activity though, so I’m not sure. I’ve contacted my MS nurse today as I’m still having problems with it.
Hi Neil, I'm watching this now & I get blurred vision at the snap of a finger & it can disappear just as fast, it's so frustrating, The consultant said its optic nuritis, I have eye drops cos it feels really dry too, it bugs the hell out of me, eye tests are stupid cos my eyes change all the time so I could get more glasses but still not be able to see in them, my nurse wants me to see a specialist but I've said no for now, my heads not right with izzy passing away, I've also been told I have low mood depression caused by the pain plus I asked if I needed all these pills and they said yes, my teeth are snapping off, I've been told that's with Ms and medication, I may be coming off Rebif soon as apparently you can only take it if you can walk so many metres and I can only walk about 2 without tipping or falling over so I think their gonna try me on something else soon, I wont miss injecting cos it kills me, I've had blood tests done and liver test for some reason. I've told them that I haven't rung them when I've felt like I'm relapsing cos i dont see the point cos they cant do anything anyway so I have to tell them in future, they said theres only so many pills and meds for Ms and I've been on or am on most, but that doesn't bloody help me does it cos I'm still left in pain, she asked if I had suicidal thoughts, I always say no but this time I said yes cos I'm that fedup, I've got banging headaches every day and I'm spending a fortune on dry eye drops cos it's like looking through a net curtain sometimes it can happen just coming out of a shop, I keep getting spasms in my right side, I was trying to sew something & stabbed myself repeatedly about 6 times before I could stop it & move my arm, I'm having to drink tea with 2 hands incase my hand jumps and I spill it and I've had 3 falls plus I took Izzy to the vets cos I was really worried about her she had lost tons of weight and was acting weird, the vet said she couldn't find anything alarming so she gave me flea & worm treatment, that was Tues, I flead her wed and wormed her fri and she was dead Monday morning at 8.00 Kate found her and was hysterical and Dave came home from work, she was still ok at 5.30 when Dave went to work, she was in her cube bed, I was sobbing , it was a horrible day, I dont know why she died, she would have been 10yrs old in August, nuz her brother had tried to wake her and realised she had gone and he started vomiting everywhere, I think it was shock so I had to put her in another room and I sat down crying and her mum Mia came up to me with dark eyes and just sat cuddled into me, she knew so cos I was upset & stressed out my Ms kicked in & I lost my voice & couldn't stop shaking, I made her all nice to bury her and while Dave & Kate were outside I vomited all the way through it so it's been a shit 2wks, yesterday was the first day I haven't cried but I feel so down! Pain is making me ratty, I've got tons of things that need doing but no energy to do it with, I bet you feel better after me ranting on lol sorry Neil, I just feel that You & Teresa understand more after what you went through with Molly, your Animal lovers like us. Anyway I'm goin, hope you feel better soon hun, try not to worry about your eye, but do tell your nurse about it though, get some vitamin C, B & D down you while these bugs are goin round, give my love to Teresa xxxx love Sue xxxx
Thank you Sue, I know you’ve had a terrible time of it with Izzy passing away. I didn’t realise she was still so young at ten years old. Yes we are animal lovers and it’s very quiet around here without any pets. Tree and I just don’t feel strong enough to have any pets now and look after them properly. Thanks for the info about the eye, I decided this morning to ring my MS nurse. Take care. Xxx
My first symptom (2002) was Optic Neuritis, at that time I had no idea it was caused by MS.That 15 years before my DX. Yeah if that is what you're dealing with it can be very scary. Mine lasted maybe two weeks. So sorry about your mobility as well. : ( It is good just hearing from you, sucks it's not on a positive note however. Any change in our health and this MS just complicates matters, is it the MS, if so will it go away, when will go away, or is it a virus, or is it a "bug", is it just me getting older...? Take care bro, hope to hear from you again soon.
Thanks Lee, yes I’ve asked myself all those things recently. I’m still having trouble with it so I’ve took control of the situation and contact my MS nurse this morning.
Sorry to hear this, like others have mentioned, it sounds like Optic Neuritis. Mine presents like that, also with some pain in the eye. I am actually in a flare with it right now, just finished steroids a week ago.
Hi Laura, sorry to hear you’re in a flare.. hopefully it won’t be long and the steroids will start to kick in and do their thing. Weird thing is, my eye can restore to perfect vision again for several hours, then it will blur again. It’s very random. I also get a minor pain in my eye but I feel it’s because I’m straining to see properly. Getting the odd headache as well, again I think it’s all connected.
I try to maintain the same attitude, but sometimes it sure is difficult and at times I feel I’m loosing the battle. Not feeling to bad today though. Take care.
Hi Ian, thanks for asking. Yesterday was a really good day with my vision and I really thought I was over the worst. But today has not been so good again. Mobility is rubbish as well, legs are literally like jelly, I’m bumping and falling in to everything. Using a crutch around the house at the moment I’m so unsteady. Fed up of it all to be honest. How’s things with yourself?
@@NeilBradleyMS I'm the ying to your yang I think. My health is good at the mo, my legs and hands have been a little weak but not too bad really. I cycled about 9 miles the other day and I haven't cycled for years so that could explain some of my weakness. Generally though I'm good. I was a bit worried for you as I have been expecting a I'm feeling better video from you the past few days but it never came 🤔. I hope you are not letting this stress you out! Stress is MS fuel mate and I don't want to be seeing you fueling the beast or I'm gonna have to come and sort you out 😁 I'm not that far away from you! It won't be long till your back to normal ish so keep doing your exercises mate and just relax!
Good to hear your health is on the up at the moment .. I used to cycle everywhere in my younger days. I've thought about trying it out again, but I honestly don't think I'd be able to balance on a bike now. I don't actually feel stressed out, I tend to get quite down when I see my mobility worsening almost on a daily basis (like now). Then when I have a bit better day, it's like WOW fantastic and I feel great, it's always short lived though. I am keeping up with the exercises everyday, but at the moment however hard I try they don't seem to be improving things. So where about's in the UK are you Ian?
@@NeilBradleyMS is your balance problem your legs or your inner ear? Reason I ask is some days I'm a bit wobbly on my legs but I ride motorbikes every day and that is absolutely fine. I think I'm wobbly because my feet and leg muscles are not working properly but once I'm on a bike it doesn't matter. You should try it but I guess it depends on your leg strength to stop and to pedal. I'm in sunny Leicester mate 😁🎗️🧡
My MS Sunny Leicester!🌞 Well, you are pretty close. I’m in Long Eaton, pretty sure you will have heard of it. Nothing wrong with the inner ear, it’s weakness in my muscles, back, hips, thighs, quads even my ankles feels weak. So pretty much from lower back down is knackered lol. 🤔
Have you thought about getting referred to your local hospital eye clinic a&e? they could check it out for you and let you know if it is optic neuritis or would it could be. As it being your eye I would say you may need steroids to help with clearing it up. As I did when I had Optic Neuritis.Hope they manage to help you.
Thanks Tara, I felt my eye was starting to get better this last day or so. But it’s blurred again today so I’ve contacted my MS nurse and left a voice mail. She’ll be calling me back in the next day or so.
Ii Neil! I found it interesting that although you have better than 20/20 vision, and your optician says you have no issues, despite self-suspected optic neuritis, your tests came back okay. Perhaps the optic neuritis can be picked up better by a neuorologist? Always, always carry on chasing things up Neil, because as I have learnt over the years, it's the only way things get done.
Hi Dean, I think perhaps in a later video I do talk about when I visited the Neuro Ophthalmologist (at the hospital) who confirms it's Optic Neuritis. I think I made a video about it, hmm I've done that many now I can't actually remember. But yes, you're quite right about the chasing.
Shhhh, not so loud Neil...someone is asleep!! . Hello you two, just checking in. I had exactly that and Opticians checked my eyes and they were perfect. I put it down to the medication, it did go after 3 weeks, I think it is Pregabalin... again. I hope the Professor gets down to what is going on. You can't stay like this without a diagnosis. Chase them up and hopefully he may have some idea of any more investigations or simply a diagnosis. I hope you two are well. Look forward to your next video and I hope you will be feeling better. Oh by the way, you had better not get an early appointment!!! 😂😂 Best wishes, Mark
Hey Mark, good to hear from as always. Ha ha 😆 Careful, she read your message before me, ya cruising! Lol. I’m still really struggling with my eye and it’s no better. It’s stressing me out quite a lot to be honest and getting me down. I’ve been on Pregabalin since 2012 when I started with burning nerve pain in my legs. Recently though I’ve stopped it and I haven’t taken it since the end of Feb. It can have some horrible side effects. I’ve spoke to my MS nurse and she thinks it could be Optic Neuritis and is going to speak to my consultant and get back to me. Hopefully won’t be too long. Thanks for checking in, I trust all is as well as can be with yourself?
You should see an ophthalmologist preferably a neuro-opth., blurriness and a dimming in my left eye was my first sign 30 yrs ago that I now recognize as MS. I saw an optometrist and he said my vision was perfect, gave me some dry eye drops and sent me on my way! Along my MS journey I have lost the vision in the same eye twice more, with lasting damage each time even with IV steroids. Don't wait get to a Dr. that can help ASAP!!! Sending a "feel better hug" your way.
Thank you Rona, good advise. I’ve contact my MS nurse this morning and left a voice mail. She’ll be calling me back in the coming days.
Hey Neil! Sounds like Optic Neuritis...comes and goes sometimes.
Hi Neil, they should have sent you to a ophthalmologist. I had some eye problems recently and the optician phoned the hospital and I seen a specialist the next day. You keep fighting, good to hear from you.
Thanks Paul, I’ve contacted my MS nurse this morning and left a voice mail so she’ll be calling me back in a few days.
Hi Neil,Definitely sounds like O.N. I've had it quite a few times. It starts out that way and it gets dimmer and it is painful. How are you today? So sorry the mobility is declining,hopefully the hospital can put you on the walking deug Ampyra we call it here in the states. Cheers to better days!
Hi Avril, I just can’t explain the vision problems. The other night, it was pretty bad (right eye) I’d say 7 out of 10 bad. But then, literally no more than five mins later it completely corrected itself. Just can’t explain it. I’m currently sat outside on the patio in the lovely sunshine writing this message to you. It’s amazing how the sun ☀️ picks up your mood a little. Love listening to all the lovely birds singing as well.
Yea,that's not Optic Neuritis. I'm sorry you are having bouts with the eye but relieved to hear it is clearing up and a sunny day to enjoy!!
I have Optic Neuritis since August 2018 starting in left then right. Left eye is completely blurred and the right slightly. It gets really bad after hot shower or stepping outside in the heat. Not confirmed, but believe I have Nystagmus, because my eyes cross as well. Neither eye has gotten better since then. This was determined through a special eye test by my Neurologist. The test involved sitting in front of a monitor with some type of electrodes attached to my head and starring at an image for a certain amount of time. This measured the latency in each eye. I still suffer with it, and even went temporarily blind Christmas Day. The blurriness is annoying, I live with it every day. Push for the right test!
Hi Michele, I’m sorry your having to deal with this, it sounds just horrible. My blurred eye is only slight, but after having perfect sharp vision for years it’s quite disturbing for me. This morning I contacted my MS nurse, so I’ll see what she has to say when I get a call back.
Good to see your update - thanks- well done for exercising 🤗
You should see a Neuro-opthamalogist. Your symptoms sound like it could be optic neuritis. I had headaches and eye pain felt like a strain and then lost some vision in my right eye and it was optic neuritis. Had to have 3 rounds of IV steroids to help. You could be having a relapse as well stemming from your cold. Sending you get well vibes!
Thanks you so much Michelle. Hopefully your vision was fully restored after the steroids. I contacted my MS nurse this morning and I’ll be getting a call back in the next day or so. See what she has to say. Take care.
I have had a blurry right eye for almost a year now. The first time I went they said dry eyes and then a few months ago I had a curved optic nerve in my right eye. The veil is the perfect description and it comes and goes.
I’m convinced sometimes they just don’t know Patty. Do you ever get that feeling.
Neil Bradley all the time
Hi Neil , so sorry you’re feeling these weird symptoms, hopefully your eyes are just having a mini flare from the virus you had. Best to get this checked out with your ms team though , it’s your eyes and you don’t want to risk things . Eye issues are so scary , I’ve had my fair share of weird things happening in the past. I’ve been so ill these past few weeks with a nasty flu virus, and yes in response to your last message it makes your ms go into mega over drive .... oh the joys hey ! Take it easy , hope you bounce back from this asap , take it easy, Grace :)
Thank you Grace, and it’s always so lovely to hear from you. I’m terribly sorry to hear you’ve been poorly and it’s flared up your symptoms. Fingers crossed you’ll be feeling much better very soon. x. My eye is a mystery, the other night it was very blurry, 7 out of 10 blurry but the weird thing is literally five mins later it corrected itself. I have contacted my MS nurse and left a voice mail, she always aims to get back to me in a couple of working days so it will be Mon/Tue now.
I’m currently sat outside on my patio in the beautiful warm sun just listening to the birds singing. I’m trying to recharge my batteries, I just feel the need to be sitting in the sunshine. look after yourself.
Thanks Neil , I’ve been feeling the extra stiffness & aches due to this stupid recent flu bug so I’m just taking things slow. Snap , I’ve been sat in the garden soaking up some sun , I saw a robin today😊 . Hope you’re ms nurse can give you some advice next week. Try not to stress too much either , cos that’s gonna make you go downhill. Do something to make you feel happy , watching a good film with a bowl of ice cream or popcorn always makes me feel good lol ! Look after yourself, Grace :)
Thanks Grace, I’m still sat in the garden. Aren’t Robin’s just the most beautiful birds .. at the moment just sitting here is making me feel happy. Have a lovely weekend. 😊
Your video just reminded me that I have not had a regular eye exam in almost 2+ years!
Wheew! Just scheduled for an eye appointment. lol
Nice one 👍
I've had optic neuritis three times in my right eye and once in my left eye, its very aggravating. In fact the third one in my right eye is what led to my MS finally getting diagnosed. But if you can still kind of see out of your eye, that is a good thing. I hope things with your eyes get better soon. Mobility issues suck too with mine getting worse slowly, haven't fallen yet, but I completely understand with the leg pain and stability issues.
Hey Jay, the blurred eye isn’t anywhere near bad but it’s enough to worry me. I’ve contacted my MS nurse today so see what she says. Sorry to hear your mobility is getting worse, not good. If it wasn’t for my upper body strength I would be falling all the time. The strength in my arms always save me. Take care matey.
Hi again Neil :)
One of the reasons they sent me for my first MRI is, I lost part of my vision in my left eye. I had it for weeks but by the time I saw the hospital ophthalmologist it had cleared up. Nothing was found with the eye tests. I'm back to the ophthalmologist today because I'm going through a period of extreme vertigo when I turn my eyes to the right of me. I'm not expecting them to find anything but its good that I'm going whilst I'm still symptomatic.
Hello again Jan😊 .. Oh I see, in that case it makes complete sense now. I expect they were looking for signs of Optic Neuritis, something I’m recently dealing with myself since having a cold virus back in early March. Unfortunately mine hasn’t cleared up though. Nothing was found on my eye test either.
@@NeilBradleyMS Hi Neil, I'm sure they put you through the mill at the eye clinic but did they give you an Amsler Grid test? If not, you can download one and do it at home.
My field tests came back normal and this time I refused to have my pupils dilated because they've already done it twice and I'm so sensitive to light that dilating my eyes makes me feel quite sick. The Amsler Grid test had one shadow spot right in the middle on my left eye.
I'll be seeing the neurologist on Monday.
Hi Jan, I’ve just Googled the test and tried it out. When focusing on the dot in the centre, I can see everything with my bad eye but it appears to be ever so slightly wavy. My good eye is fine. Teresa on the other hand who has a lot of trouble with her eyes, was unable to see the dot with her right eye, and it was very wavy etc. The other eye is ok. She is under the hospital with her vision though. Thanks for that, very interesting. I hope your visit goes well on Monday.
@@NeilBradleyMS Thanks Neil, though I'm dreading my visit.... I hate hospitals!
Both you and Teresa should shade the areas that are wavy and for Teresa, the central invisible dot and take that along to your eye specialists.
My left eye did that. Yes that is what it is called. Every day cover your left eye daily to make sure it does not get worse. Mine was blurred and on day three I had almost lost all my sight in the life eye and did not realize it until I covered my right eye. So just check it daily.
Thanks Jessica, I don’t think this is Optic Neuritis as I have no brain MS activity and never have done, I’m just spinal. It came on with a cold virus but doesn’t seem to get better. I’m reluctant to mention it to my MS nurse because I think once you have that label, everything is MS. Hmm, I’ll give it some thought.. I might mention it in an email to her when I chase up my referral. Thanks for the message.
@@NeilBradleyMSThe eye thing is not in the brain but in the Optic nerve. So even though you have never had a brain MS attack as of yet does not mean it can't attack your eyes.
@@NeilBradleyMS oh an a regular eye doctor will not be able to tell you if it is. I had to go see an Optic Neurologist. Who did some test to confirm.
Thanks Jessica, this morning I contacted my MS nurse, I’m waiting for a call back so it will be interesting to see what she has to say. Appreciate your thoughts.
@@NeilBradleyMS Your welcome! Got to look out for one another where we can.
Hi again. I agree with others here. I could be a flare triggered by the cold you had. My left eye is the one that gets affected. It did get slightly blurry twice in one week but it went away in a matter of mins both times at the start of the virus (with flu like symptoms) my son and I had. Told my neurologist and he made a note of it but didn't give it much merit. Hope you feel better soon.
Hi Jayleen, thanks for this. My right eye has been effected and it’s very random. It can blur for several hours at a time and then in a matter of minutes recover. I can’t explain it. I’ve contacted my MS nurse on Thursday last week (left a voice mail) but as yet she’s not called back. I just want to rule everything out including Optic Neuritis.
Hi Neil
Sounds like the old Optic Neuritis I've had it before and it is another symptom of MS but that is what it sounds like. I've had it many times and can take a few weeks to go. I know you said it doesn't seem like that but sure it is. Take care my friend 😉
Thanks Adrian, I’m beginning to wonder if it is. I’ve never had any brain MS activity though, so I’m not sure. I’ve contacted my MS nurse today as I’m still having problems with it.
Hi Neil,
I'm watching this now & I get blurred vision at the snap of a finger & it can disappear just as fast, it's so frustrating, The consultant said its optic nuritis, I have eye drops cos it feels really dry too, it bugs the hell out of me, eye tests are stupid cos my eyes change all the time so I could get more glasses but still not be able to see in them, my nurse wants me to see a specialist but I've said no for now, my heads not right with izzy passing away, I've also been told I have low mood depression caused by the pain plus I asked if I needed all these pills and they said yes, my teeth are snapping off, I've been told that's with Ms and medication, I may be coming off Rebif soon as apparently you can only take it if you can walk so many metres and I can only walk about 2 without tipping or falling over so I think their gonna try me on something else soon, I wont miss injecting cos it kills me,
I've had blood tests done and liver test for some reason.
I've told them that I haven't rung them when I've felt like I'm relapsing cos i dont see the point cos they cant do anything anyway so I have to tell them in future, they said theres only so many pills and meds for Ms and I've been on or am on most, but that doesn't bloody help me does it cos I'm still left in pain, she asked if I had suicidal thoughts, I always say no but this time I said yes cos I'm that fedup, I've got banging headaches every day and I'm spending a fortune on dry eye drops cos it's like looking through a net curtain sometimes it can happen just coming out of a shop, I keep getting spasms in my right side, I was trying to sew something & stabbed myself repeatedly about 6 times before I could stop it & move my arm, I'm having to drink tea with 2 hands incase my hand jumps and I spill it and I've had 3 falls plus I took Izzy to the vets cos I was really worried about her she had lost tons of weight and was acting weird, the vet said she couldn't find anything alarming so she gave me flea & worm treatment, that was Tues, I flead her wed and wormed her fri and she was dead Monday morning at 8.00 Kate found her and was hysterical and Dave came home from work, she was still ok at 5.30 when Dave went to work, she was in her cube bed, I was sobbing , it was a horrible day, I dont know why she died, she would have been 10yrs old in August, nuz her brother had tried to wake her and realised she had gone and he started vomiting everywhere, I think it was shock so I had to put her in another room and I sat down crying and her mum Mia came up to me with dark eyes and just sat cuddled into me, she knew so cos I was upset & stressed out my Ms kicked in & I lost my voice & couldn't stop shaking, I made her all nice to bury her and while Dave & Kate were outside I vomited all the way through it so it's been a shit 2wks, yesterday was the first day I haven't cried but I feel so down! Pain is making me ratty, I've got tons of things that need doing but no energy to do it with,
I bet you feel better after me ranting on lol sorry Neil, I just feel that You & Teresa understand more after what you went through with Molly, your Animal lovers like us.
Anyway I'm goin, hope you feel better soon hun, try not to worry about your eye, but do tell your nurse about it though, get some vitamin C, B & D down you while these bugs are goin round, give my love to Teresa xxxx love Sue xxxx
Thank you Sue, I know you’ve had a terrible time of it with Izzy passing away. I didn’t realise she was still so young at ten years old. Yes we are animal lovers and it’s very quiet around here without any pets. Tree and I just don’t feel strong enough to have any pets now and look after them properly. Thanks for the info about the eye, I decided this morning to ring my MS nurse. Take care. Xxx
My first symptom (2002) was Optic Neuritis, at that time I had no idea it was caused by MS.That 15 years before my DX. Yeah if that is what you're dealing with it can be very scary. Mine lasted maybe two weeks. So sorry about your mobility as well. : ( It is good just hearing from you, sucks it's not on a positive note however. Any change in our health and this MS just complicates matters, is it the MS, if so will it go away, when will go away, or is it a virus, or is it a "bug", is it just me getting older...? Take care bro, hope to hear from you again soon.
Thanks Lee, yes I’ve asked myself all those things recently. I’m still having trouble with it so I’ve took control of the situation and contact my MS nurse this morning.
Basically like heat intolerance but illness intolerance. Strange stuff MS shows us. Hope your feeling better Neil.
Hi Jared, yes indeed. I’m not feeling too bad today thanks, apart from this blurry eye which is becoming quite distressing.
@@NeilBradleyMS That would be distressing. That is similar to my first symptom that started my MS so I would likely think some activity happened.
Sorry to hear this, like others have mentioned, it sounds like Optic Neuritis. Mine presents like that, also with some pain in the eye. I am actually in a flare with it right now, just finished steroids a week ago.
Hi Laura, sorry to hear you’re in a flare.. hopefully it won’t be long and the steroids will start to kick in and do their thing. Weird thing is, my eye can restore to perfect vision again for several hours, then it will blur again. It’s very random. I also get a minor pain in my eye but I feel it’s because I’m straining to see properly. Getting the odd headache as well, again I think it’s all connected.
There has to be a way to beat MS. I will beat it. Don't quit fighting bro.
Good luck friend, I like your attitude💪
@@NeilBradleyMS It's the only attitude to have, in my opinion. Thank you.
I try to maintain the same attitude, but sometimes it sure is difficult and at times I feel I’m loosing the battle. Not feeling to bad today though. Take care.
Hey Neil. How are you doing mate? Any improvement on the old peepers??
Hi Ian, thanks for asking. Yesterday was a really good day with my vision and I really thought I was over the worst. But today has not been so good again. Mobility is rubbish as well, legs are literally like jelly, I’m bumping and falling in to everything. Using a crutch around the house at the moment I’m so unsteady. Fed up of it all to be honest. How’s things with yourself?
@@NeilBradleyMS I'm the ying to your yang I think. My health is good at the mo, my legs and hands have been a little weak but not too bad really. I cycled about 9 miles the other day and I haven't cycled for years so that could explain some of my weakness. Generally though I'm good. I was a bit worried for you as I have been expecting a I'm feeling better video from you the past few days but it never came 🤔.
I hope you are not letting this stress you out! Stress is MS fuel mate and I don't want to be seeing you fueling the beast or I'm gonna have to come and sort you out 😁 I'm not that far away from you!
It won't be long till your back to normal ish so keep doing your exercises mate and just relax!
Good to hear your health is on the up at the moment .. I used to cycle everywhere in my younger days. I've thought about trying it out again, but I honestly don't think I'd be able to balance on a bike now. I don't actually feel stressed out, I tend to get quite down when I see my mobility worsening almost on a daily basis (like now). Then when I have a bit better day, it's like WOW fantastic and I feel great, it's always short lived though. I am keeping up with the exercises everyday, but at the moment however hard I try they don't seem to be improving things. So where about's in the UK are you Ian?
@@NeilBradleyMS is your balance problem your legs or your inner ear? Reason I ask is some days I'm a bit wobbly on my legs but I ride motorbikes every day and that is absolutely fine. I think I'm wobbly because my feet and leg muscles are not working properly but once I'm on a bike it doesn't matter. You should try it but I guess it depends on your leg strength to stop and to pedal. I'm in sunny Leicester mate 😁🎗️🧡
My MS Sunny Leicester!🌞 Well, you are pretty close. I’m in Long Eaton, pretty sure you will have heard of it. Nothing wrong with the inner ear, it’s weakness in my muscles, back, hips, thighs, quads even my ankles feels weak. So pretty much from lower back down is knackered lol. 🤔
Have you thought about getting referred to your local hospital eye clinic a&e? they could check it out for you and let you know if it is optic neuritis or would it could be. As it being your eye I would say you may need steroids to help with clearing it up. As I did when I had Optic Neuritis.Hope they manage to help you.
Thanks Tara, I felt my eye was starting to get better this last day or so. But it’s blurred again today so I’ve contacted my MS nurse and left a voice mail. She’ll be calling me back in the next day or so.
Ii Neil! I found it interesting that although you have better than 20/20 vision, and your optician says you have no issues, despite self-suspected
optic neuritis, your tests came back okay. Perhaps the optic neuritis can be picked up better by a neuorologist? Always, always carry on chasing things up Neil, because as I have learnt over the years, it's the only way things get done.
Hi Dean, I think perhaps in a later video I do talk about when I visited the Neuro Ophthalmologist (at the hospital) who confirms it's Optic Neuritis. I think I made a video about it, hmm I've done that many now I can't actually remember. But yes, you're quite right about the chasing.
Shhhh, not so loud Neil...someone is asleep!! .
Hello you two, just checking in. I had exactly that and Opticians checked my eyes and they were perfect. I put it down to the medication, it did go after 3 weeks, I think it is Pregabalin... again. I hope the Professor gets down to what is going on. You can't stay like this without a diagnosis. Chase them up and hopefully he may have some idea of any more investigations or simply a diagnosis. I hope you two are well. Look forward to your next video and I hope you will be feeling better.
Oh by the way, you had better not get an early appointment!!! 😂😂 Best wishes, Mark
Hey Mark, good to hear from as always.
Ha ha 😆 Careful, she read your message before me, ya cruising! Lol.
I’m still really struggling with my eye and it’s no better. It’s stressing me out quite a lot to be honest and getting me down.
I’ve been on Pregabalin since 2012 when I started with burning nerve pain in my legs. Recently though I’ve stopped it and I haven’t taken it since the end of Feb. It can have some horrible side effects.
I’ve spoke to my MS nurse and she thinks it could be Optic Neuritis and is going to speak to my consultant and get back to me. Hopefully won’t be too long.
Thanks for checking in, I trust all is as well as can be with yourself?