I had the same thing: neurological impairment of vision (and other neurological issues) with no explanation. I actually had an ordinary MRI which proved to be normal. I've recently been diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS), which is a genetic disorder. They aren't sure precisely what causes hEDS but similar conditions are caused by faults in the formation or transportation of collagen, which makes up a lot of the connective tissue. I'm not a medic and these conditions are not well understood medically anyway - so this is tenuous - but it does seem to be probable in my case that the hEDS is the cause of the neurological issues including those with my vision. If anyone does have any further information I would be very interested too! As far as I can make out there are several possible ways in which EDS could cause cortical visual problems. Though none of them are particularly well researched and it remains unclear. Instability of the cervical spine, putting pressure on the brainstem and certain nerves, does seem to be a known cause of visual disturbance, and it is the one I've come across the most evidence for (search Video: The neuropathology of lax ligaments - the spine, neck and head in EDS : Presenter Dr Fraser Henderson, Director of Neurosurgery, Doctors Community Hospital, Maryland, USA. It's necessary to sign up to the society to view it but I believe it is free). There's also some very limited evidence for differences in brain structure in EDS (I would guess - and it is a complete speculation - that this is a result of the role of connective tissue in the developing brain) though I haven't come across anyone who has looked into that with regard to the visual processing system (there has some research been done regarding whether there is a physical cause for the higher frequency of depression/anxiety in people with EDS, which resulted, I think in the conclusion that there probably were brain structure reasons behind it). I have the impression there are quite a few things which can cause the brain to be all alive and functioning but not connected up correctly, not just the type of disorder I've got. I have also been trying to work out if there is anything in the literature as to whether the myelin sheath is known to be affected in EDS, and what the consequences would be if it is, but so far I have not found any comments on that. Of course, it could also be plain chance but that is less likely! What I was told before they diagnosed me with Ehlers-Danlos syndrome, was that brain damage can sometimes result from unobserved events, such as a stroke in the womb, so it is worth considering how much evidence there is in any particular case as to the definite absence of injury-caused damage. I hope that gives some helpful pointers as to what sort of thing could be going on, anyway. :-)
Cherry Foster also wouldn’t I have more symptoms is I had EDS. I have stiff joints but when I stretch out regular they become more flexible than normal in a short amount of time.
This is my new world with my daughter.
Thank you for the explanation. Much appreciated.
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Hi my son is suffering with the same condition. I would like to meet up for his treatment.. can you guide me through.
Hii..My son is also suffering with the same.. Please let me know, if you found any treatment in India..
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This is the way ive been left untreated for years abnormality front.right temporal occipitol region say no more
I have it(just diagnosed a lot of people say it is caused by brain damage, that doesn't apply to me, so what caused it?
I had the same thing: neurological impairment of vision (and other neurological issues) with no explanation. I actually had an ordinary MRI which proved to be normal. I've recently been diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS), which is a genetic disorder. They aren't sure precisely what causes hEDS but similar conditions are caused by faults in the formation or transportation of collagen, which makes up a lot of the connective tissue.
I'm not a medic and these conditions are not well understood medically anyway - so this is tenuous - but it does seem to be probable in my case that the hEDS is the cause of the neurological issues including those with my vision. If anyone does have any further information I would be very interested too!
As far as I can make out there are several possible ways in which EDS could cause cortical visual problems. Though none of them are particularly well researched and it remains unclear. Instability of the cervical spine, putting pressure on the brainstem and certain nerves, does seem to be a known cause of visual disturbance, and it is the one I've come across the most evidence for (search Video: The neuropathology of lax ligaments - the spine, neck and head in EDS
: Presenter Dr Fraser Henderson, Director of Neurosurgery, Doctors Community Hospital, Maryland, USA. It's necessary to sign up to the society to view it but I believe it is free).
There's also some very limited evidence for differences in brain structure in EDS (I would guess - and it is a complete speculation - that this is a result of the role of connective tissue in the developing brain) though I haven't come across anyone who has looked into that with regard to the visual processing system (there has some research been done regarding whether there is a physical cause for the higher frequency of depression/anxiety in people with EDS, which resulted, I think in the conclusion that there probably were brain structure reasons behind it).
I have the impression there are quite a few things which can cause the brain to be all alive and functioning but not connected up correctly, not just the type of disorder I've got. I have also been trying to work out if there is anything in the literature as to whether the myelin sheath is known to be affected in EDS, and what the consequences would be if it is, but so far I have not found any comments on that. Of course, it could also be plain chance but that is less likely!
What I was told before they diagnosed me with Ehlers-Danlos syndrome, was that brain damage can sometimes result from unobserved events, such as a stroke in the womb, so it is worth considering how much evidence there is in any particular case as to the definite absence of injury-caused damage.
I hope that gives some helpful pointers as to what sort of thing could be going on, anyway. :-)
Cherry Foster I don’t have EDS as in not even that flexible
Cherry Foster also wouldn’t I have more symptoms is I had EDS. I have stiff joints but when I stretch out regular they become more flexible than normal in a short amount of time.
@@cherryfoster4926 I think its connected with working memory also.
great