Dr. K im really sorry to hear what you have gone through . I hope someday you can heal from your trauma ❤😢. Personally speaking , experience does make one understand pain better but also just having empathy and compassion towards another being is equally important. At this moment my fibromyalgia is flared up ! Everyday I’m feeling pain in places I haven’t felt before! I was doing so well in my health but just recently I feel really low again . My PTSD is effecting my health again . I just think little things can contribute to these setbacks
The stigma attached to pain and all that goes along with it is unbelievable. I have heard so many health care specialists say "Pain never killed anyone." I say many people have lost their lives due to pain. (Suicide and loss of quality of life are just two examples of how pain kills)
Any health care specialists who says pain never killed anyone is severely mistaken and way off base. Work in an ER for just 90 days and you will realize that statement is false now from an experiential point of view. Trigeminal Neuralgia is a condition they have nicknamed it the suicide disease because the pain is so horrific some terminate their lives to get relief. You are absolutely right. No one should ever judge someone who drinks or takes drugs of any kind to sooth their pain,. It's unbearable to have 24 a day pain with no relief and no improvement for months or years. I went through that and it's miserable and people need to know you can turn it around especially now that we can activate your original blueprint from conception to regenerate and repair everything in the body for the price of a cup of coffee a day. Does that make sense?
I fight day by day Not to kill me because of 'mental pain', why should your physical pain Not kill you? I'm 30y+ old and feel Like 60y old. I think it's No other Thing with physical pain. Greetz from Germany.
Our culture is one of guilt. You're flawed if you show any of your flaws. Are you guilty of overcomsumption of calories? You're a pariah. It doesn't matter if your consumption is on a par with skinny folks, YOU are bad if YOU are fat, no matter what. Same thing with pain. I have been lucky in the doctors I've discovered. I bend over backwards to make sure THEY are not endangered by prescribing ME meds. In september it became obvious that someone was stealing my pain medicines from my desk at work. Reluctantly I spoke with the SRO (I'm a teacher) and he investigated and discovered exactly nothing. Subsequently I had a disciplinary hearing for having the temerity tp bring my prescription medications to work. Turned out that it wasn't actually a policy I broke, but once it was clear that there was no policy about the meds, after forcing me to allow them to jot down every detail on the label of my pain meds, they said, "Well, aren't you in violation of the regulation that says you can't work whilst high?" (paraphrasing a lot).... and I told them that it was a violation of my rights that they demanded access to my prescription label on penalty ofbeing fired, only to imediately discriminate against me saying that wasn't it an infraction to come to work while being treated for intractible pain (coupled with significant malabsorption).
We all understand pain that is needed to grow or that is productive - childbirth being extreme in productive and understandable, yet limited in time, kind of pain that is necessary - but any other kind of pain means something destructive to the body - it’s within our very biology to be physically and mentally destroyed by pain… for without it, we would have accidentally died out - all living beings would have - no matter how much we can with our intelligence find ways to try and avoid pain, negate it, ignore it… we’re not going to win against innate biology on this one
I live with chronic pain. I live with a genetic disorder. I’m tired of being judged by residents and fellows. They judge me for being opioids. I am grateful to have been referred to a wonderful physical medicine doctor. He is doing nerve injections in my ankle and trigger point injections in my back. I have scoliosis that causes muscle spasms and arthritis in my spine. I am in pain from the moment I get up until I go to bed. I have medical PTSD. No one understands what I go through. Medical appointments are so hard due to my medical PTSD.
I am so sorry you live with chronic pain from a genetic disorder. Being judged has got to be so egregious and just adds to your already intolerable pain situation. All humans are wired to get relief and self sooth. We see baby's in utero who are self soothing by sucking their thumb or fingers, it's natural. You are fortunate you were referred to a wonderful doctor.Nerve injections, do you know with what? You might want to try the patches that turn off pain receptors that are non transdermal and non invasive, have you use them?
@@LoveMoneySecretsTV I get lidocaine and steroids for both nerve injections and the trigger point injections. They do help for a couple of weeks. My next set of nerve injections is this week to help calm my nerve pain in my ankle. A fellow I had a few months ago at cardiology was very judgmental towards me due to being on opioids. I’m hoping that fellow isn’t there this coming week because I just can’t deal with the judgement. I haven’t tried those patches. My pain management doctor put me on lidocaine patches which helps to an extent. My primary care doctor just increased my opioid dose so I can get the relief I need. I am so grateful for her. I don’t know what I would do without her. I messaged my physical medicine doctor last week told him my pain was getting worse. He told me not to worry about things and that he would take care of me. I am so lucky to have him and my primary care doctor.
Unfortunately, that's often true, and women are dismissed as being hysterical and over reactive. Sad and when that happens women need to be taught to move on to find someone who will acknowledge her, see her and understand her so she can get the help that is her God given right.
@@agbobier2657 I have powered thru Tons of time at my job. I use to work very physical jobs and would be hurting and exhausted, BUT the bills HAD to be paid! I no longer work, but Ohhh, I remember those days all Toooo clearly!😨
Hi doctor I have chronic illness and I am on Pain management for my chronic back pain due to my scoliosis. My doctor is very awesome he understands my pain. I'd never wish any of my chronic illness and chronic pain on my worst enemy cause chronic back pain sucks.
I'm so sorry you have chronic back pain, I had that too from when I got hit by a bus in 2017. I'm completely pain free now, and I've had many people with scoliosis who within a couple months their pain is gone and their spines straighten out over the next 12-18 months through cellular repair with patches I use as a tool. For the price of a cup of coffee, it's affordable and is organic and non transdermal. You might want to try them out.
I also have back pain that is chronic. I have scoliosis. I have two 15 degree curves along with my spine bing completely twisted around on itself. All the bone,muscles, and nerves are also twisted around on themselves. I am now needing trigger point injections since the pain is so severe. It definitely limits my life and what I can do.
I have suffered severe back pain due to a botched back surgery. My pain is worse than it was before my surgery. After months of going back to my surgeon and telling him something was not right. He looked me in the eye and told me to find a new doctor because he was tired of fooling with mel. A few days later he called and said my xray showed 2 of my screws had backed ouy and need to be removed. I went back and had them removed. He then told me that should fix your pain but it didn't. I have been suffering with this severe pain for almost 7 yrs. now. I found a new dcotor and he said you need to go back to your original surgeon and thats all he had to say. What are people like me suppose to do. I want off of these pain meds, and I want to be able to sleep in bed instead of s zero gravity recliner. I want to be able to get out and enjoy life. I am 69 and have no problems other than my back pain. Why do doctors just shove you away instead of getting to the bottom of the problem?
Severe pain for 7 years due to a botched back surgery, OUCH I have had several people with that similar experience, One is a 92 yr old now 93 who his back pain went from a level 10 to 15 unbearable excruciating couldn't sleep for days after surgery until he came to me for patches that tun off pain receptors and other patches that regenerate nerves, bone, tissue and provide cellular repair. I talk about it on my channel.
I broke my hip in two places and my femur last September. I have a rod the entire length of my femur and it’s screwed into my hip. I have never heard of a screw unscrewing before. Did your pain get a little better after they put the screws back in place? My surgeon said it would be 12-18 months before I started to feel real improvement. Also that leg is now shorter than the other which causes another set of pain problems. I hope you find some relief someday. I also have other chronic pain issues so from one pain warrior to another I’m right there with you. 💜💕
@@sherigilmore9141the annoying thing is they don’t listen. I have told them more than once about things and what I thought was wrong. They gaslit me but I was right.
Some might trivialize dentistry, but as a young child I was petrified of the dentist until I think the age of 16 when surprisingly I got my first job at a dental office and worked in the dental profession as a receptionist and dental assistant . I was able to always have such extreme compassion and understanding of my patience’s apprehensions and make them feel more comfortable because of my experiences. It also made me more comfortable later on down the road with dentistry for myself.
You have a heart of compassion, your patients are fortunate to have you. What a great asset and ambassador for that office and those who come in contact with you. It took a lot of courage for you to go into that profession. Remarkable. BRAVO!
Direct acute experience…I really support Physicians experiencing drug withdrawal in order to KNOW what acute withdrawal means, how it powerfully it changes somebody. The risk is the reward…can you afford the reward?
I Really don't wish Pain on ANYONE, but I have to agree, I wish my doctors felt what I felt...And the people that are fighting Against opiots (for whatever their reasons) just wish they could feel it for 5mins, to Understand...I've been on opiots for the last 5 years but my doctor Refuses to increase my mgs... I understand doctors are scared for multitude of reasons, but he shouldn't be prescribing it at all if he doesn't understand that's how they work, you have to increase over time for them to even be affective. But anytime I mention it I get looked at like im just trying to catch a high or even worse, run into the possibility of getting cut off completely cuz thats in the pain contract- CANT ask for increase-- so I just suffer instead. What alot don't understand is that suicide rates are going up, not because people want to die, but cuz they can't get any relief!! For example- I DO NOT want to die, but I DONT want to LIVE IN PAIN either! It's not Living! Really really shitty position to be in. I wish I could meet you in person, you are such a compassionate man, a Very good doctor & you're very knowledgeable! 💞 Plus INCREDIBLY HANDSOME 🥰 But I love that you make these videos for Everyone to understand 💞
It's truly mind-boggling to think that a medical doctor could feel OKAY about leaving his patient to SUFFER in incredible PAIN!??😡 At that point the doctor has LOST his humanity and needs to get OUT of the 'healing' business. 🙏
I suppose we need to consider the restrictions DEA placed on primary care doctors regarding dosage and length of time opiates are prescribed. Many have referred to pain management clinics to avoid prescribing all together. I know those limits were increased recently but doctors still hesitate as their license is on the line. Where does 'do no harm' fit in? This is truly catastrophic for so many of us. With proper medication we could have even a portion of life back. My meds have not been adjusted for 5 years this month. I wish they could feel it, no longer able to work, go anywhere, the depression....omg, etc. The clinics are the worst, imo. Not to exaggerate but they feel like slaughter houses. People, humans in tremendous pain, lined up like livestock. It's like the assumption exists for everyone you're drug seeking. Then I think of how it began....the AMA decided chronic pain was under treated which opened the doors to unethical practices. I have no answers but this is not working. I don't have enough money to privately pay for the Ketamin, I'd like to try it. Sorry to ramble on but this situation is killing us slowly.
@@kathylewis2484 I completely agree! I've been doing ketamine infusions the last 5 years up to last year, $300 a pop for 1 hour... all I can say about them is I'm 100% Pain FREE During the infusion itself but as soon as the hour is up All the pain comes back... best way to explain it is, I always say "I feel like a tooth", like novacaine they numb your gums with before doing a root canal. It's great while it lasts but unfortunately it isn't long. So idk if it's really worth it, they say it helps with lots of other things like PTSD, Anxiety, Insomnia, ect...but my PTSD (From getting shot Aug 15,2017) hasn't gotten any better, or the Anxiety I've had since 11years old, or the Insomnia...Being a Dual-Diagnosis patient doesn't make any of it any better cuz now im "stuck" to pick which ailment I want to get help with...Chronic Pain tops the list tho cuz if it wasn't for the little amount I do get I probably would have ended things Years ago... it Really does suck & my heart breaks for you. I know all too well how debilitating it really is. I'm not working either & not getting any kind of help, cuz I Want to go back to work someday...and I know alot of people tell me I'm a pothead (cuz of my pic) and I used to be, but I really don't even like weed anymore. Some strains actually make my pain Worse! I just wish this world & it's "Rules" wernt so challenging for those of us just trying to get thru the day. And for once not have the thoughts that I'll sleep when I die, or I'm wasting air others could be breathing being productive part of society, just wish that I wasn't a burden to any1 near me that hears my cries when the physical pain gets so excruciating. 🥺😥
I completely concur with you. My GP worked at a clinic which would not prescribe opioids to ANYONE. She ended up with trigeminal neuralgia. Because of experiencing first hand, that which her patients were suffering with, she left the clinic and now practices at one which does allow prescription of opioids. We had a very candid conversation in which she pointed out that opioid overuse is obviously concerning, but creating an environment which disables a patient’s ability to LIVE is just as, if not more toxic and detrimental.
P.s. I’m really sorry to hear about your own experience:( I think it’s purpose was to make you an even more incredible Dr and advocate than you already are:) your patients are very fortunate to have you on their team:)
A co-worker was sent to the company doctor for a repititve motion injury over the course of months, which later was diagnosed as fibromyalgia. He told her she was holding stress and needed to tell people off sooner. She looked him in the eye and told him to eff off. Good for her!
It starts with their philosophy. Chiropractors believe the body can heal itself. I’ve never met one that cured any patients my specific genetic conditions. It ends up being them versus us, stuck in a victim-persecutor dynamic. Nobody can heal that way being gaslit by their own Dr with power over them like Dr Kaveh mentioned. Hits your identity to core. Now sure, muscle tension could cause some pain, but if the drs, the ones supposed to help us, weren’t so busy disbelieving her fibromyalgia to begin with, maybe she wouldn’t be so tense. Ha! 😒🤯 Good for her for not allowing them to gaslight. 💪
I had a 10cm tumor removed yesterday. Very thankful for the various painkiller options I have been given. As a patient, I appreciate being given options.
10 cm tumor, OUCH that must have been painful, yes very thankful for the various painkillers. I must say anesthesiologist are very skilled at managing pain reduction and invaluable while going through surgery and recovery. It's important to now your options. Dr Kaveh is masterful and brilliant at that, isn't he?
You are lucky to have received various painkillers....I was given 15 hydrocodone tablets @ 5mg following a toe fusion....a titanium plate and screws were inserted into my big toe. It was excruciating and after the 3rd day I couldn't take it and called my doctor. I was told to take 2 pills. Well I ran out by the weekend and had to call the oncall number......the physician met my husband with a script for 10 pills.....I am so over allowing the so called doctors to treat me without adequately treating my pain. I can barely move due to osteoarthritis in my lumbar. The pain is constant but doctors tell me the pain shouldn't be that bad. So again you are lucky and I'm glad you didn't have the experience I've had. Take care🤗
I've had around 13 surgeries. Last 2 were 12 hrs long each, 6 months apart. The most positive experience was receiving functional pain management in the hospital and knowing that every day the surgical pain would get better. Then back home same old. This is no way to live.
I had surgery 16 months ago my surgeon had had a similar surgery and took time to show me what my scar would look like and relate to me on a personal level!!
@@Straighttalk95 I have thank you.... I had a displaced midshaft radial fracture because I have a ram and he slammed my arm in a wall ... I was terrified when I found out I needed surgery but Thanks to him ( dr karl bowman ) and his team It was a easy and non traumatic... my anesthesiologist was amazing and had a since of humor and super kind ( kind of reminds me of dr kaveh ) and the nurse antithesis was amazing ... I just hope I can stay out of the or in the future.. sending positive vibes to you and thank you for the comment 🥰🥰
@@theshowlifeyoungs-Gabrielle ooh goodness the ram did all that damage?? You poor dear . It’s good to hear that your arm is healing and you are pain free . What you have gone through would give anyone PTSD.. it’s a lot to deal with . Keep strong 💪🏻
I'm so sad that I missed the live stream of this today! I just had my adrenal gland removed last week for Subclinical Cushing's Syndrome. I read that Cushing's requires *aggressive* pain management. With my previous surgery (24 years ago), my surgeon told me that I was an obese waste of life (at 35.2 bmi) and he if it wasn't for his numbers, he really didn't care if I died on the table. They had to wake me up on the operating table, but they were apparently done with my procedure. After that, none of the pain medicine they gave me put a dent in my pain. I was screaming too loud to go to recovery, so they put me straight on the elevator and stuck me in a room by myself for about 6-7 hours until I finally stopped screaming. No one checked on me. AND no one offered any more pain meds, even for home pain management. I think the less-than-charming surgeon's comments and possibly(?) high cortisol inflated my pain levels then. Thanks to your videos, I had the courage to advocate for myself (I had to do a LOT of advocating to get my diagnosis). This time I requested ketamine for pain, and it was so helpful! :) My doctors made sure that I wasn't in pain through my recovery. I've had so much medical gaslighting (since 8 years old with knee pain) and throughout my weight struggles. Thank you for helping me get through this really important surgery without dragging my PTSD along with me, or at least not most of it. Already my daily nausea/vomiting seems to be gone! You are amazingly kind and compassionate. Sending you so much gratitude. Thank you. ♥
I am beyond appalled that a doctor actually saud that vile, nasty, cruel statement to you!!!😠 and shocked to the core about them throwing you in a room without us in medication or even once checking in on you!? Where and when did this horrendous crime against you occur?? You MUST report it to the medical board!!!!!!!! #UNBELIEVABLE😠
@@gloriamaryhaywood2217 Thanks Gloria! This was at Swedish in Seattle, WA and about 24 years ago. I'm sure way too much time has passed now. I don't even remember the name of the surgeon. They did give me pain medication in the operating room, it just didn't work!?? At the time, I didn't think anyone would listen and I didn't know where to complain, other than to my doctor, who just brushed it off. I assumed all doctors felt the same way about me. :( I'm now in AB, Canada and I'm finding my doctors to be kind and understanding, with a few (older) exceptions. Dr. Kaveh's videos, though, *really* helped me to advocate for myself for my surgery last week. All of my doctors listened to my concerns and promised that would never happen to me again. :)
@@opheliariver3225 Ohhh, I am beyond Thrilled for you, hun!!!!!!😊😍 👊 Just reading about your horrendous experience (and at the hands of frigging 'medical professionals' no less!?) had my damn blood Boiling!!!!!!😠 We often wonder about who they allow to join our police force, BUT it's mind-boggling that some of our health care providers are just as Dangerous for the folks who end up trusting them with their very lives!!?😨 So very happy to hear that you are no longer subjected to that horrible and inexcusable treatment!!!!🙏..💜Sending Big Hugs!
@@opheliariver3225 Thank Heavens you are now in good ad caring hands!!! I am so very relieved to know this!!!💜 Wishing you all the BEST from here on out!!😊
I have tears in my eyes watching this because that's all I have ever wanted in a doctor - someone who can feel my pain and empathize with my experiences. I am struggling with PTSD, anxiety, and depression due to being molested by my cousin from ages 3 to 15. Additionally, I have osteogenesis imperfecta and Ehlers-Danlos syndrome. Recently, I was informed that there is a discrepancy between my brain development and my chronological age. Furthermore, I have been diagnosed with a left atrial septal aneurysm, left atrial appendage, along with a hole in my heart, and a mildly enlarged aorta. The aneurysm measures 3.8 cm, which is concerning to me. I am curious why the doctors have chosen to monitor the aneurysm rather than treating it immediately and instead want to observe its progression over the next year. I will need to have it checked annually for the rest of my life and may require bypass surgery in the future. I wish I could communicate directly with you because I believe you are the doctor I have always hoped for. It took medical professionals 30 years to identify the genetic disease and an additional year to diagnose the remaining conditions. You're the most caring, compassionate doctor I can see.
I have the same, I'm a mix of Ehlers and Marfan and have been in pain for 47 years. Waiting on genetic results but the pain is unrelenting. When I'm asked where it hurts, I say everywhere. Head to toe. For years not only was my pain disregarded but so was my crystal clear physical deformities. The doctors solution? Antidepressants. There's only so long you're told you have depression and not a real problem before you actually develop depression from the gaslighting and willful ignorance. Getting to a clinic that knows and understands this spectrum of disorders is like finding an oasis in the desert. But, even then pain persists. It never goes away and no one, other than those with this, can understand what scoliosis, foot, leg and chest deformities feels like. My aorta was also exactly 3.8 on one measurement, but I am very very tall so told its normal, so far. I hope you find relief soon.
Yeah, I have gone from being 5ft 3 to 5 ft and continue to shrink. Thank God my endocrine doctor recommended palliative care because I'm on adequate pain control that helps tremendously.
Doctors are too busy judging to treat my osteoarthritis. I had to tell one doctor that after all the medical procedures I've endured if I was going to become addicted I would be already. He had never seen me before but was refusing to prescribe me additional pain meds following a surgery. I told him I didn't appreciate being categorized as a candidate for opioid addiction. I had 4 surgeries within 3 years and have no opioids in my possession. That's not typical of an addict. We need to make our government aware of the lack of care from doctors.
They know but it doesn't fit their narrative for what they are trying to do. I'm a retired RN and I cant get through to Drs. I'm ready for the Rapture. I'm so tired of fighting it.
Also not being able to do normal things like getting dressed before going to work putting my shoes and just walking again changes my life in so many ways .Almost at my 2 month after hip replacement.Bless you all!
@@paulajackson8416 definitely in that building strength and with walker but soon you will be using a cane and if u stay on ur meds properly you will be in less pain.Especially before you rehab.By my second week I remember crying and my therapist laughed and said it’s been 2 weeks I really just pushed to get back to semi normal but by a month you won’t believe the abilities to walk will come back and staying up and about every hour is very important yet grueling but it will be worth it especially since you know the pain of bad hips.Get r done do your excersizes every day and you will be there.Here’s to a new life with no more pain.Plan on hiking and swimming this and yea getting back to work.Can’t forget that lol.Good luck and god bless.Get r done
Thresholds of pain vary widely, and the truth is no one will ever feel the pain you are exactly feeling other than you. That's why you are an expert on your own body beyond anyone else. You have lived and felt everything since conception. Also some people are in terrible pain, and they don't complain or say a word to anyone and you can't tell by their face either because they don't even grimace. If you bluetooth to them with your ANS you can feel some of the pain but really it goes undetected and this happens a lot more than you think. You might benefit from patches that turn off pain receptors for the price of a cup of coffee, Does that make sense?
I agree I can get stuck with a large needle (16 gauge) and not flinch or carry 5 gallon buckets of water and 50 lb ags of feed with a fractured radius ( which later required surgery because it was displaced)
It's interesting to me how people who have been through the same trauma can process it totally different. When I was a witness to seeing something, my granddaughter's mother was with me. She was so unaffected by it, and I've been traumatized for yrs. I think maybe it's because of being ASD. I cried for so long, and felt so upset by what people can do to each other. It repeats over and over in my mind. I wonder if the person who would choose anywhere but the USA to give birth has seen the scary health care in some other countries. I'm personally always grateful when the plane touches down on my home soil. A lot of people died for our freedoms here. It does scare me, though, how women's healthcare is slowly being taken away. In that regard, I can understand not wanting to be here if you're in a state where you need a certain procedure to save your life you can't get one. I'm not sure if the "A" word is allowed here. YT has censored me so much it's ridiculous, yet violent, horrible videos are shown every day.
Yes there is sa very wide spectrum of how people who have beeb through the same trauma process it totally different and yesterday I had a brain profiler on my channel and we talked about that and precisely how in one person it's obvious to everyone and in the other it's undetectable and yet the individual is still suffering in both cases, yet expression is vastly different.
How long does one suffer to have quality of life. I have bulging disc's, crohns disease, thyroid disease, rheumatoid arthritis and I suffer severe anxiety. When is enough enough? I want quality of life, not quantity. Most drs have no compassion, sympathy, empathy, bedside manners etc... I'm exhausted mentally and physically 😢✌🏻🙏🏼
I too am a pain warrior of many years. Fibromyalgia started in high school and I’m 61. I have fought till I don’t have the energy or mental energy to do it. I’m tired of insurance companies dictating how to treat me. One common pain medication my insurance needed to review my case and it took 6 weeks to say I could fill the prescription. 6 weeks can feel like a lifetime. I hope you are doing okay and I understand you. From a friend…💐💜💕 I’m not adding the rest of my medical ailments. Not necessary
@@tammyhanson7843 I understand, I left out fibro simply because it's just another ailment they don't treat buy I feel your pain. It's heartbreaking. The Dr's caused an epidemic handing out narcotics, them double dipped to send you to rehab under their name. The hospital that disgusted me and put me through hell us Geisinger medical center!!! Ugh!! It's heartbreaking! I just want quality of life, quantity means nothing to me!! 🤬🤔🙄🤨🙏🏼❤️
@@Jenna-Rooyou’ve been through a lot, me too. Gentle air hug 🫂. I love the saying, “people can only meet you as deeply as they’ve met themselves.” I wonder if they feel exhausted resisting our truths all day long, refusing to listen to us because they haven’t experienced it and lack empathy to relate. I also think they assume we are all dumb and unhealthy with metabolic syndrome stuff, using BMI or labs to shame and blame. Honestly, it’s helped me to see them as little psychopaths, looking at us as the helpless victims paying for their mansion and Mercedes. I’m kind a jerk like that because I have the same amount of education and was extremely successful before I got sicker and obtained correct diagnoses, didn’t get the right help, as you also mention. Fibro is like hEDS, they think it’s just all in our head, but they found the cause of fibro, it’s real. And with hyper mobile EDS, they just haven’t isolated the gene and developed a diagnostic test yet. That’s because they don’t believe it’s real so no researchers or drs want to focus on it, also charities don’t really lobby for funding or do any research, just pretend to be fighting for us while making money off the very community it supposedly serves by hosting expensive conferences where all the drs get paid lots to talk lip service but do nothing to get the diagnosis properly supported by medical community and SSDI. It’s like MS, that diagnosis was abandoned like 50 years before it got recognition.
Thanks for this recovering from my second hip replacement and I lived with pain working and putting off taking care of myself and my dr would just prescribe ibuprofen I understand but the pain was horrific.They almost make you have to get the surgery instead of putting a bandage on it .And paying for pain management is a joke also.Paying for me to keep coming back that’s all.Anyways been watching you a while back and appreciate your honesty.Love to all!
Tammi, a second hip replacement, that's serious and the pain was horrific I'm sure both times and continues to be. I can't imagine what you are going through, even though I got hit by a bus and suffered a brain injury, neck and spine injury and leg injury and here I am totally pain free and regenerated and restored feeling better than before. I sense people like you who have had a hip replacement are traumatized from that experience and having to go through a second is re-traumatizing and dreadful. I hope you have pain relief now, have you tried patches that turn off your pain receptors? I use them in my practice, I talk about them on my channel. You might want to check them out.
@@LoveMoneySecretsTV Actually feel like I been leased a new life.I also had back surgery while my husband died 6 weeks in my recovery and also dealing with my son who had been bed ridden due to Gillian Barre…The year and half later losing my son ..I remember I had to find a new doctor in between my back surgeries and my hip surgeries he wanna tell me my pain was due to losing my husband well I already knew what was wrong I had X-rays done prior to seeing him and after my back surgery I get that but it’s not always the case..Yea it’s all traumatic I just think I’m here by the grace of god and no pill will give you hope and faith.Anyways thanks always.Appreciate always
It's so true that no one understands your pain until they experience the kind of pain you have. But when a doctor doesn't believe me, it makes me feel like they're calling me a liar. It was comforting to watch this. Thanks doctor for sharing
Unfortunately where I live, the doctors have to follow state guidlines. That means the state comes first, and the patient gets treatments that the state recommends. As a result of this I am put in a situation in which I must be my own doctor. My state - appointed doctor has power and control issues and last time I visited him, he ordered me out of his office because I had visited a 'private' doctor. (no co-pay) full price. (The state doctors have a $30 co-pay.) This was the third time he exploded in anger towards me. I've pretty much given up on him. Thanks for your videos, I watch every one that comes up in my feed and enjoy them, hsving some prior medical backgrond. Live long and prosper ! -Gabriel of Norway.
Gabby the doctor who exploded is not professional and apparently has some PTSD and possibly other things going on with him and he's not well. Men who explode in anger with out impulse control have been shown to oftentimes have low testosterone levels.There's studies out of UCLA and Japan to support this and we see this a lot in brain health as we scan people. Honor yourself and find a doctor who resonates with you. You might also want to look into patches to regenerate your body at the cellular level, I use them in my practice and I educate teach and train about them and health and wellness on my channel. I always share our educational site (nothing to buy just to learn). Does that make sense?
Same in the US. If you can't afford to pay out of pocket for your doctor's visits, then you are faced with doctors who decide by looking at you whether they are willing to bother arguing with insurance providers about payment for tests and procedures. It doesn't matter that you are having health problems. These insurance doctors don't have to answer to patients directly. The customer service person told me that I don't get to talk to, nor ask the credentials of the doctor who denied me requested tests.
The PTSD component is very real & adds a new layer of complexity. The emotional trauma of helplessness, even if temporary, can feel life altering on a cellular neurological level. Trauma is held in the mucous membranes. This is why people need to allow themselves to have a good long cry. You went through a shock to your cellular system. Crying, sweat (all the body fluids) is necessary to process such extreme experiences. It will help to alleviate built-up anxiety & inflammation. Compassion is critical at the onset of new injury/disease. Feeling supported by healthcare & family is a game changer.
My rheumatologist cut every one off pain killers when govt cracked down. Everybody had to just go cold turkey and im still suffering. Advil gave me an ulcer which ended up having stomach surgery due to blockage. Have had Juvenile rheumatoid arthritis since 9. Given nothing since..😢
Unacceptable! They need to experience the same pain level. People who have never had addiction issues need help in their seventies. That does not mean they are drug addicts. A Dr from a foreign country was so frustrated and said, “America has everything available and still refuses to treat their people who are in pain”
@@paulajackson8416most of the pain management drs in Arkansas are from foreign countries and their attitudes about pain management are different and are not compassionate. Well one of them owns several of the " pain centers" in this State. Its not good.
As a nurse who has also been a patient - some individuals are more empathetic than others. Experiencing pain gives one a completely different perspective. My experience also allowed me to see that there is certainly not one way to experience a particular malady. I agree with what you say.
I agree with you too and you are a far better professional because of your experience and relatability. I want more people like you on my team. Your experience is your super power, I agree with what you say and you might want to check out the organic nanotechnology non transdermal patches I use to help your patients. It's a game changer. I have a lot of education on my channel if you are interested. I love your handle ICHope1 brilliant name, feels divinely inspired, wouldn't you agree?
Many years ago i learned a very important lesson. I had contracted TB and was in a hospital. My roommate was a beautiful young woman who was terminal any yet was one of the most positive and and cheerful people I had ever met.It was obvious she was in tremendous pain and yet was always upbeat and never complained. One day I asked how she was able to be so happy all the time. Her answer has stuck with me over the years. She said you can get up everyday and be dying with cancer or you can be living with it, the choice is entirely yours. This has helped me many times. Now that I am facing a similar situation I am so grateful to her for such wisdom. While this doesn't exactly address what you are saying I hope this women has resonated with others. I know it has given me a better outlook on life.
I think not just doctors but all medical staff. After my first time serious knee injury surgery & coming off anthesia I was told by an attending nurse to stop crying, "it will bother other patients" the audacity to say such a thing! I was shocked. She definitely lacked sympathy and understanding
I have a Chordoma brain tumor that was "supposed" to kill me 25 yrs. Ago. It has recurred recently. I was born with this thing, and have devekoped multiple painful conditions over the years like Sjogren's, degenerative joint and disc disease, along with neuralgia and diabetic neuropathy. Hence, I live in pain, in spite of being seen by a pain management specialist. When severe, acute pain occurs in addition, I am often treated with open judgment and left to suffer with no intervention. My life is limited and pain and some opioid meds.will be part of it until the end. Providers seem to be more concerned about politics and the DEA than with a patient's unnecessary suffering. Thanks for the.care you provide and the candid information. As a disabled R.N. I am appalled at the current state of Healthcare in our country. Thanks again. Sandra Qualls 20:5020:5020:50
I'm a disabled RN too. I'm ashamed nowadays that I was ever a part of the medical profession altho I always advocated for my patients. Their pain was whatever they said it was and I did my best to get them relief. Now drs dont want to hear it and then they can only view one at a time. I have several conditions that cause pain.
@@FaytheInGod I worked as a nurse likewise and it is sad. Governmental restrictions have them in a difficult position,2016 is a year always remembered because all medical professionals know that at any time the availability of any medicine may not be possible. This year recently again they have been told to down their dosages and it is not the doctors but the relationship between US and other nations and producers of many medicines including narcotics. Still I think about those who have nothing in other places that I have been and the surgeon has to do his job without any anesthesia.❤
I personally believe if these doctors would band together & stand up to them things would change. The government doesn't have medical degrees. They aren't treating patients. It's more than sad to me. It's infuriating.
@@FaytheInGod indeed is a very shaky world we live in but like your handle name it will be handled by the highest of powers and that is where we have put our trust. Great handle and these things were foretold. Every hour can be sometimes all we can focus on because everything else is so much to put on ourselves isn’t it?
Thanks for talking about pain. I have used opiates for a bad back for years. My tolerance to pain medications is very high. I have trouble with my Md prescribing a certain amount of opioids but not wanting to increase pain medication. My Md is afraid that I will stop breathing. At least that’s the excuse that I get. What you are doing is great! Thank you! Mike
I understand your frustration but your doctor is RIGHT. Doesn't matter a bit HOW high your tolerance is when it comes to pain medication! If you started low and had to build up to get the same amount of relief, the over-dose amount needed to Kill you NEVER changes!! So your doctor knows exactly what he's talking about!!
I stopped complaining about pain with my drs since I realized they were not listening to me at all and not just pain any other symptoms were the same. I know I am old and until few years ago my health wasn’t that bad but when I had COVID and developed long COVID symptoms including pain, fatigue etc, since that day until today no one ever listen to me mayba I am “crazy” I know that sometimes the pain is so excruciating that blocked my mind I because I am alone in my journey I started a movement and then another it could take few hours but I am able to start moving around a little bit easy. And I believe that sometimes people needs to experience pain other to understand also having empathy that most of the drs i know are lacking of. All my drs now are very cold they are more concerned about any liability than trying to find out what’s wrong with you as I recently found out one dr made a mistake and I didn’t know that I should never said t
Posted it in another video as well: After an op with having cut all intestines (stomach and intestines) i got 2 paracetamol. I was just about calling 911 in hospital because the nurse didn't wanna get the doctor for pain medication. They were told not to by the doctors. But sorry...a doctor should know even from the books that cut through inner organs need opioids at least 😅
At least!!!! Paracetamol is a good painkiller but not for severe or major surgery and especially those like myself who have had an opiate addiction and paracetamol doesn't work at all for me. I hope you heal fast and well ❤
I think it's vitally important to discuss specific pain management post op with surgeon before the operation. And if they're too wishy washy, consider a different doctor. I'm to scared to get a knee replacement because of this.
The nurses were told to do gymnastics with us instead of more pain meds, to get the air out of the belly (they blow you up for that op) which causes the main pain, which is true indeed, but maaann you can do those stupid gymnastics after giving proper meds at first 😀. So nurses thought, no doctor said gymnastics first. Imagine having to get up then and do gymnastics with the nurse. I trusted at first, thought they are experienced, but of course went through hell. That's when I threatened to call 911 if I didn't get a doctor soon. Got one and meds. But I still wonder what the 911 operator would have said .. someone calling from inside a hospital. 😀
You, Sir are one of the few and rare doctors who have compassion and empathy. Thank You ❤. I finally got a diagnosis of Lupus, Sjogren’s Syndrome Raynaud Phenomenon Mixed Connective Tissue Disease and Rheumatoid Arthritis. As upsetting as it was to hear this I am grateful that they have a diagnosis for my pain. I survived colon cancer with an original doctor who said that there was nothing wrong with me. I had to find my own surgeon who immediately knew I had cancer. I have had to advocate for myself and it is so frustrating when a doctor dismisses a patient. Thank You for teaching us to advocate for ourselves. Much love and blessings to you and your family.
So sorry you know what we know about pain & the struggles to get it managed. We may not die from pain but some days I worry the anxiety of poorly managed pain CAN cause us to have heart attacks and for some suicidal thoughts.
I’m in so much pain right now that it’s not going to end well if god does not intervene fully~ I am a new senior that doesn’t have transportation. I am in a place where there is no real help and even if I go by ambulance, I have no means to get back 17 miles. The people in this area are very sick because of poor healthcare services and they can’t help me.
I don’t need my doctors to know exactly what I’m going through. In fact I wouldn’t wish my suffering on anyone. That being said I need them to hear me and when I tell them I am suffering and can’t live like this, I need my doctors to try and help me find a way to live with it. Being gaslit, being left to suffer, being treated like you aren’t worth helping…it makes the pain and everything worse. I was in the ER recently and got diagnosed with a DVT and the ER doctor came back in after he told me what was wrong and said that I seemed really scared earlier. I told him I was. I told him I had already had a hard time getting help from doctors and every time I get a new diagnosis I get more scared because I truly don’t have a doctor helping me. I am severely anemic because of a fibroid and now that I have a DVT I can no longer take birth control so the horrible pain and bleeding is going to restart. I told my doctors and asked for help. How was I going to manage the pain and bleeding from the fibroid now that I can’t take NSAIDs and I’m on a blood thinner. They basically told me to just bleed out and they don’t care at all about the pain. It is so painful and I can barely breathe because of the anemia and they acted like I was talking about a paper cut. My doctors have never cared about my pain. I don’t remember a time when I wasn’t in pain. I get treated like I don’t deserve help
So very sorry, hun!!💔 Can you change doctors? You truly NEED Somebody to advocate for you in big way! Do you have somebody in your family or a close friend who can speak up loudly for you??🤔
I have a great Pain doctor at Stanford, but I know some doctors who don't have a clue what chronic pain is and don't even care if people live with chronic pain. Unfortunately, there are a lot of doctors out there who have no empathy; they lost all their humanity. .
I live in a building that is full of residents of Mount Sinai, I would say they are some of the most rude people, full of themselves, I share elevators rides with them and they are just rude, I always wonder how do they manage to turn into caring doctors once they step inside the hospital! You are great Dr. K, but the majority there doesn’t care at all!
Thank you... I appreciate your kindness. I live in chronic pain from head to toe. Botched neck surgery in 2006. Couldn't the right size plate so they put an adult small. I'm small... I was almost normal under pain mgmt. I'm now stuck just living in claustrophobia in my body bc I can't afford it . I see 18 specialtists. RA, patio, and PsA, plus, plus, plus. Chosyochondrytis in ribs...Ugh I can't seem to gain weight and barely can get through a shower.
@@MedicalSecrets thank you. I was always very active. I played soccer and coached my kids... I was a teacher. Still are in touch after all these years. I am still a Happy person. Love to giggle. Best SA helps me most. Oh, did I mention seizures... Seeing all of these specialized doctors, no help from pain. The government is behind this... All for the love of money. Thank you for your kind heart. You were raised right 😊😇😊
I have not only been in chronic low back pain, but spasms, for 7 years this month. I was an extremely empathetic Nurse for well over 40 years. I lost my career after slipping on a wet floor, without warning 'signs'. I've grieved from loosing my purpose in life. This 'slip and fall' robbed me - not only from my beloved career, but my life is not my life anymore. I've had no relief, even though I live near all of the Boston Hospitals. I have no relief. It is traumatic.
I try and warn my hard-headed SIL about how quickly and severely life can change. She is 57 years old and always picking up crap wayyyy toooo heavy! I have a slipped disc and sciatic nerve damage. Thank Goodness the disc slips back in usually in a couple days on its own bc it is Painful as all get out!! Yes, that ONE Slip completely and forever changed your life.💔 It's very scary to realise how easy it truly is to completely lose our quality of life!?😓
I've been fortunate to have an excellent pain doctor and anesthesiologist for 17 years. It's a trust relationship, he believes me he trust me, I trust him I believe in him. I don't expect him to completely understand nor do I expect him to experience pain but I do expect him to believe me. I know it's extremely rare to have a good pain doctor/Anesthesiologist to dispense the proper pain meds, I can tell you for sure I would take a gun to my head if I did not get help with pain so pain does kill. Pain changes, changes the composition of your brain your thoughts your feelings it just changes you ~chronic pain in my opinion, is no way to live at least I do get a little relief with the medication I'm on. I realize it's a rarity to have a good pain management situation that's why I'll probably never be able to leave the city I'm in but, that's OK.
@@MedicalSecrets oh wow, I never expected you to read this😅 thank you so much ~you're one of the good ones! I do have a great anesthesiologist/pain management doctor he's very strict and I'm a little bit afraid of him but he's damn good!! I Suffer from CRPS auto immune, and hemicrania continua, fibromyalgia + more- I always say, I'm too young to be this old!!
I have had ME/CFS for over 35 years I'm never out of pain and have a struggle to get pain relief I'm largely bed bound have severe abdo problems had 3 major abdo ops never out pain nearly go crazy pain ruined my life I used to be a nurse I can't remember not having pain and so weak and ill.Thinking of all who suffer❤❤❤❤
I´ve had an epidural fail on me two times in hospital after my feet were crushed and one of them amputated as a result of a traumatic work accident. They spent hours each time troubleshooting while I was fully suffering from my extremely damaged body. Even though things are definetely better now, I am still in pain, especially phantom/nerve pain. I think I have always been able to have compassion for other people suffering, but it is true that now when I know what real pain is, my compassion for other people are one a very different and more real and understanding level
Yeah, my mom had _severe,_ trigeminal neuralgia, and when would have to go the hospital, it could...frustrating. For example, a while back she fainted/fell, and we didn't know why, so they took her to the ER. Turns out she had a bowel obstruction, and had to put in an NG tube up one of her nostrils(which absolutely terrified my mother, and understandably so.) So this guy, who looked like he was 18 or 19, came down from surgery(he was a surgery resident) and started explaining the process of installing the NG tube. My mother told him that she had TN, and was scared about what it would like, and how long it had to be in(he said just a few minutes, misunderstanding what she was asking.) When my mom told her about the TN he(without even looking at her) said, "oh yeah, that's fine. The procedure not that bad, and most people tolerate it pretty well. You just may have a but of discomfort with TN." My mother and I looked at each other like, "are you fucking kidding me? "A bit of discomfort"? Regardless, he starts putting it up her nose, and she is clearly in sheer agony, but if finally gets all the way in there. She ended up having it in there for 2 or 3 days, and said it was like having shards of metal grating against her nose, throat, even into her mouth and tongue(on top of the usual cackling, stabbing/shooting electrical pain, the "thousands of bees stinging the entire inside of my mouth and tongue" pain, the "feeling like somebody was spilling lava all over her face, mouth, and throat, etc.) People, including doctors, just have no idea in regards to the severity of her pain. Granted, you can't expect a doctor to be an expert in everything, and know what every patient is experiencing, or what their life is like, but it can be extremely frustrating. You really have to be your own(or someone elses) advocate in the hospital. We have been lucky enough to have some great nurses who really helped her, understood how much certain things hurt for her to do, and were just advocates for her too though.
I had active TN for 11 years. I don't know how your poor mother managed with that procedure but just thinking about it makes me nauseated. Doctors generally don't understand how bad it is.
I am very sorry for your mom's TN pain and this bad experience in the hospital. I also have Trigeminal neuralgia, anesthesia dolorosa, hemifacial spasm, occipital neuralgia and multiple cranial nerve disorder bilateral and medical PTSD. Your mom's experience is exactly why I have not obtained much needed treatment over the past 7 yrs for many medical conditions caused by a genetic condition and other chronic conditions. You are sooo correct about it being necessary to advocate for yourself. It is the only way esp in the sad US healthcare system.
I was just in the hospital and my pain wasn't treated. There wasn't any compassion and I told them that their response would be different if they experienced this. About 15 minutes and a threat of a report to administration, they helped. We have to be our own advocates!!!
I think if a doc truly has compassion, they don't have to feel the type of pain their patients feel. Docs know what pain feels like from their own lives - they are not immune to diseases, accidents, headaches, etc. My gyn oncology surgeon is a man, yet he showed more compassion to me than any other doc has.
I had a Dr. who was a great Dr. but with a terrible bedside manner and thought pain meant you were drug seeking. Which I told him many times what i thought about his short falls. This was in the 1980's so this has been going on for awhile now. He was an avid racing bicyclist and one day he got hit by a car. Terrible accident but it totally changed him. He told me personally how much he now understood what i had been saying all along and was sorry for it. He became a much better Dr. It is always best to tell your Dr. what they good be doing better at.
Chronic pain after chemo.I was diagnose with colon cancer. I have severe fibromyalgia in right leg, below knee. Left foot and severe in my finger tips. If this chronic pain doesn’t go away I will never celebrate! My pain is so bad! My doctor understands and we are trying to lessen the pain. Pain level 10 every day is killing me. RN for 44 years. Love your videos!
So very sorry. It sounds like nerve damage to me? I underwent aggressive chemo treatments and it was nothing short of BRUTAL! Thank Goodness I never truly suffered nerve damage. But I did develop SEPSIS which came close to killing me! #UGH. Here's praying you and your doctor are able to find relief for the Worst of your pain.🙏💜
Insurance companies rule docs. I have severe chronic pain...I can't get help. I've seen 15 docs and have been put in the catalog of doc shopping....even tho I've never asked for drugs. Thinking about going to Canada for the MAID program.
Don't go to drs who take insurance! I have a naturopath and I pay her Cash! She and I manage my health and there is no one telling her what she can and can't do! It's the only way to stay healthy!
I underwent a high epidural when I was getting a C section. I was completely paralyzed. Then nurses thought I fainted but didnt interrupt the anesthesiologist who was training. The third time he pulled back my eyelids he realized what was happening. There's more to this story. The next day he came to my room and told me I had a near death experience and wanted to know what I experienced. I did experience a lot.
I used to be on the go all the time from working, being a girl’s softball coach, being on the board of a youth baseball/softball league, gardening, taking care of a household with 4 kids & was happy & fulfilled. The last 10 yrs have been extremely difficult because I was diagnosed with a rare autoimmune disease, fibromyalgia & neuropathy which is debilitating plus last year I was diagnosed with degenerative spinal disease with fluid pockets on my spine with herniated disks! I’m on gabapentin, pregabalin & duloxetine which helps me somewhat function but causes severe brain fog that interferes with my daily life & still deal with pain!! I’ve been getting epidural steroid injections which are a bandaid & my back Dr is saying surgery is next if the injections don’t help which they aren’t really. I’m terrified of having surgery on my spine so I’m looking into finding a holistic MD to try alternative methods. I don’t like taking opioids but I have asked for them but just for when the pain is so bad I can’t sleep & none of my drs will prescribe any unless I see a pain management specialist but the closest one is over a 5 hour drive from where I live!!
The opioid crisis has MD's performing abdominal surgery and sending a patient home with 5 lousy vicodin tabs. I am a R.N. that graduated in 1991. Seen all of med/surg pains, and lung patients coughing and so short of breath they were ordered morphine nebulizers. We were taught to medicate pain and now the pendulum has swung the other way. My husband has had chronic pain for 25 years and his meds were cut to the point that instead of being able to do normal things, he's stuck in bed 20+ hours a day, from his severely undertreated pain. I'm also a chronic pain patient from 28 yrs of nursing,( can u say blown discs? Sure I knew ya could!) Also go to the ED 15 yrs ago and get a shot of opioids to stop the 3 day migraines. Now you get IV nausea meds and fluids a that are contraindicated in a person with increased ICP. I actually went home worse!😢
I certainly would not want my doctor to be suffering the way I am when I am sick or in pain. I definitely WOULD like him/her to have an objective understanding of what it is like, how it affects my functioning, and especially its causes and treatments.
I have had Neuro pain since 2001 which was improperly diagnosed as FM and I was put on Methadone for 10 years. And that’s just the beginning. I should be the wisest person if experience shows us the wisdom and compassion to love ourselves first and the unlimited empathy for others. I thank you for all your ideas ans what you share with us. Marcie
I worked in a mother/ baby unit at a major medical center in the Midwest. I will never forget how some of the students and residents would treat some of the women. I felt some of our patients were total hero's for what they were doing. Months and months on end. In bed holding on for all they had. I cried as much all day long when we lost a baby. So sad.
I have CRPS, Gastroparesis and a bunch of other iatrogenic diseases. I recently had a hospitalisation due to starvation keto acidosis/ hypoglycaemia and acute renal failure due to dysphagia. I haven’t been able to eat / keep food down for over a month. Whilst in hospital they gave me a new injury : extravasation of my left limb (both upper and lower arm ) while they let POTASSIUM run into my tissue OVERNIGHT. I hobbled down from my room in the hospital and sat in the stairwell crying and screaming into my neck pillow. Thankfully a doctor saw me and acted with compassion. I could have lost my arm .!!!!!!!!! I have CRPS in both arms. They should have put a PICC line in. I can’t trust doctors and nurses anymore. I’m going to die from something treatable because my trust has been destroyed for the last time.
OMYGOSH! I'm shattered and broken jusr reading this, sweetie!💔 You NEED a patient advocate in the Worst kind of way! Please check with the hospital where you had the surgery. In some cases the patient advocate dept is truly a god-send in helping patients! Praying and sending you a Warm and Healing Hug!!!🙏
Many years ago I had a finger removed and I was given shots for pain, which worked wonderfully immediately.The next day the area of my hand where the finger was removed was thrombing like hell so I asked for another shot but the nurse said I couldn't have any more per doctor's orders but that I could have a pain pill instead. So I took the pill and the pain started slowly subsiding a little, but then I got sick from the pill and my head started throbbing. I was sick with a migraine all day. They did nothing.
Compassion in practice is worth it's weight in gold. I have been blessed to be the patient of an amazing doctor. Recently, my anxiety got out of control. My Dr. saw me without an appt & and sat down with me and made it a point to remind me that she is always there, even when not in sight.
The worst pain for me was/is not strong pain but a pain I could bear without medication...but after weeks of this pain all day every day it was so exhausting. To find a doctor who understands this was a journey. And still it's sometimes hard that a doctor understands but I know better what to say.
Regarding chronic back pain now that I’m older, I postponed a hip replacement and am referred back to the orthopaedic surgeon to sign the consent form in outpatients on the 24th of May. Because the position of the hips has been like that for over a decade now, it’s causing unbearable pain to the entire spinal cord and spinal nerves branching out compromising the internal organs, specifically the heart and worked out why staff couldn’t find anything saying that it’s all anxiety related and attention seeking. It frustrates me. But at least I found out how to relieve the pain naturally by making people laugh by dark humour. But most of the time because of my brain injury, I say out the wrong thing most of the time and people are laughing at me. I’m laughing all the time and it relieves the pain drastically because it releases oxytocin. 😅😊
I’m a chronic pain patient with severe intractable pain, that gets lessened with medication. *I have my spine fused from T4-L1* so basically my whole spine is stiff like I have a board nailed into my back, but whenever I go to see a doctor for pain its as if I need to beg them for help and even so, they’re unwilling to give a therapeutic dosage like they had 10 yrs ago. Now I’m basically bedbound most days because the pain is too great and they don’t give out therapeutic dosages anymore. Don’t get me started on being forced to choose between anxiety and pain- I can either take benzos or opioids but not both any longer. So I chose to help my pain even if my anxiety needs treatment. This world is CRAZY! I feel doctors should have to feel the level of pain we do just so they believe us.
another example..."you've never lost a child". ( death of a baby). Understandable. But I have a mother's heart, and it caused me to work without pay. If researched,support is healing. Trauma is having no one believe you and your team is fighting for your (mine) life). Trauma is very difficult to put anything into words or questions, just like on this chat. You don't have time, but a doc of mine gives me 40 min to an hr visit. it takes that long to get the full story. This can happen with any conversation on occasion. You dove deep into my fave subject I often speak about. You are the greatest!
I had Covid-19 and Long Covid I can only talk for my experiences. Many symptoms coming at you once and it does not stop. There are many that have taken their lives. I Was on ventilator 4 months in a medically induced coma. My Doctors and Nurses were superb. I could hear my Nurses and Doctors during coma. I had to learn how to talk to write to walk. I do not put this on here for pity. I share it to help others now. I am in support groups for long covid. I will help with anyone that has family member in coma. For me I can say it helped when medical staff would talk to me.This was during quarantine.
OMGOSH... I have been saying this for YEARS. Doctors and medical practices don't have a CLUE what our chronic pain, or post-op pain is like. Therefore, they downplay it and don't effectively manage your pain. In their defense, the practices that they work under, forbid them to do that. I've always said that certain doctors need to go through the same experiences patients do so they can truly truly understand with a patient goes through and deals with. We are patients, not addicts!!!!
100% spot on Doc! After my first back surgery failed to relieve my pain the surgeon's response was, "what did you do to ruin MY surgery?!" As if I failed him. Fortunetly I found a seperate surgeon who was able to stabilize my lower spine. He made it clear that to much time has transpired for it relieve the pain, but that he would do his best to keep it from getting worse. Which is what I was looking for. After I recovered I turned my focus towards pain management. It's to long of a story to go further,but that first surgeon was a jerk.
I really want to try k😂etamine yet worried I will be looked at like I'm crazy. I have more than one ailment. Crohns disease, ptsd from childhood, thyroid disease, rheumatoid arthritis, chronic pain from crohns disease and bulging discs in my back. ive proudly worked in home health/private care and loved my job. It took years but finally i couldn't lift my patients and im mentally and physically exhausted. I've almost given up and just want to be calm, feeling healthy and I want understanding! Please help me dr! ❤😢✌🏻
I have been gaslighted for my pain for six plus years... diagnosed as fibromyalgia. Thank you Dr.K for this ❤❤❤i wish i had a doc like you around just to talk sometimes about my pain..who can see through it. I wish you were around 😢 Because of gaslighting now i have anxiety disorder 😢
There’s one thing we must all remember about Pain. There is no upper limit. once upon a time the worst pain I ever experienced was childbirth. Later in life. I experienced pain that was dozens of times worse. Knowing that the pain will end eases it considerably.
Feeling pain is so important. I've wanted to be a doctor for a while, but I've been considering DO instead of MD after my foot amputation. Aside from being rural (where DOs are very useful), viewing the patient in a wholistic way is one of the most important things to me. Along with being compassionate and understanding to each individual situation. It's what I value when choosing my healthcare team. It's what I value for my future in medicine. Pain gave me so much perspective on the medical field. A doctor who genuinely understands you, or at least tries, is a hard find. I want to be that person for someone one day. You are very inspiring to me in that way, because you seem to be that person for people.
2 months ago i had a leg surgery for varicose vein removal. I woke up during surgery. It was longest and the most horrible 3 minutes of my life. They put urinary catherer without lidocaine, and i felt everything. This was torture beyond belief. The clinic instead say sorry for Your suffering, they gave me tripple doze od midazalam do i forget. I remembered this after 2 months and cried like a baby. I do not wish this to happen to my worst enemy. I wish the anasthesiologist could feel the same pain like i did.
A useful quote about compassion is this by Pema Chödrön: “When we practice generating compassion we can expect to experience our fear of pain. Compassion practice is daring. It involves learning to relax and allow ourselves to move gently toward what scares us. In cultivating compassion, we draw from the wholeness of our experience, our suffering, our empathy, as well as our cruelty and terror. It has to be this way. Compassion is not a relationship between the healer and the wounded. It is a relationship between equals. Only when we know our own darkness well can we be present with the darkness of others. Compassion becomes real when we recognize our shared humanity.” I think that the power differential between doctors and patients can serve as a barrier, unless the practitioner is willing to remove it by going out of their way to operate on a human to human basis. Still, that willingness is quite rare, particularly given all of the perks that come with power. In particular, I would appreciate more willingness on the part of the doctor to say “because I haven’t experienced what you’re experiencing, I can’t fully know what you’re going through”. It’s amazing how much grace I will allow for error when-at the very least-that admission has been made.
This definitely hits home ... I have chronic pain, and I'm in pain every day of my life. I agree that if a person/DR/insurance company people hasn't felt (whatever kind of) pain, they really don't know how the pain is impacting a person's life. They don't know what it's like if they haven't experienced it. Pain from dementia is totally different than, for example, muscular pain or joint pain, at least IMO. Maybe there are DRs out there who really do understand, but around here there are very few.
My husband has hardcore medical ptsd from being mistreated while sick with covid-19. He's also been treated like a drug addict and a drug seeker for the last 20 years though he has fibromyalgia, costocondritis and nerve damage in his leg from the catheter being wrapped around his leg when he was on the vent with covid. He rarely gets anyone to even listen to him due to his cognitive issues due to covid unless I attend his appointments with him. It's almost like he has to have a witness for them to care at all about him. On the other hand, I have multiple sclerosis and my doctors, for the most part, bend over backwards to make sure I'm medicated appropriately and I don't get treated poorly. Make it make sense.
Wow you hit the nail on the head everything in this article is true. I suffer from fibromyalgia, chronic fatigue syndrome reflex sympathetic dystrophy, arthritis, been accused of drug-seeking behavior because I have so much pain issues everything in your article is is what I've been through. I think doctors should have to go through different types of pain so they can understand what we're going through maybe if they went through some of the pain make it better understand what's a patient's going through.
I just wanted to tell you Dr Kaveh, we appreciate you and what you do for us. I am on a continual learning journey, I must say you have given me better understanding.
Three things: While I do agree u can grow to understand other pain more, there are limits. Even if you have same thing, person experiences, pain tolerances, manifestation etc can make it completely different. This means you always should be compassionate and humble and not try to pretend you completely get it like I have had deadly rmc migraine and person thought experience with light headache made then qualified to understand … migraine pain and symptom really can vary. So education is important but only if it humbles you and makes you understand there is even more you don’t know not give u overconfidence 2. I have several neuroduvergences communicatin disorders etc and this means I have extra Trouble communicating and being taken seriously. Lack of eye contacting, fidgeting, mixing up words, etc often taken up as clue that somebody lying or is stupid for example. Markers of anxiety, neuroduvergences, and being out of it often are what people taught to look in for liar or other negative trait. And communicating can be hard especially if sick or ptsd or cultural or language or other barrier. We need to admit to this abd admit we have biases and admit we may misunderstand or patient misunderstand us. I also can withstand tremendous amount of pain abd more of certain kinds so this means doc doesn’t take me seriously. I have literally twisted my ankle over 90 degrees from where it should be and they saw it and didn’t think it was serious bc laughing and smiling I. Was 3. Pain is complex it’s not all the same. You can have emotional, itchiness, stabbing, deep, pulsing and millions. Other types. Pain tolerance can go up and down bc of focus mood etc. your resistance ti different types of pain may be different and may be different than others. I can stand great deal of stabbing and hitting pain but sunlight can hurt me so much or noise. But that fluctuates too. We need to talk more about complexity of pain and tolerance
I had a THR in 2007. I fell on my hip post op and X-ray showed all good with the joint. I still had massive pain, I could not drive due to negotiating foot pedals sent pain straight up to hip. This was for four years. When I told doc I was out of meds he put in my chart a drug seeking pt. I then went to pain mgmt, and was treated. Four years to the month I needed a revision, I was squeaking when walking. MRI could not determine what was wrong, they could not even read it. My cup had popped out, rotated 180 degrees and cracked. After a thicker cup was put in was pretty good, but the revision injured my back. Now on cannabis waiting to see what the L hip will do going forward. Thank you for your information. ✌🏻
My mom was a physician, a Professor Emeritus of Pediatrics and a Pediatric Clerkship Director for many years, she would joke that in addition to taking the Hippocratic Oath, graduating physicians should be required to have their femurs broken.
Yrs ago a pain specialist (anaesthetist) at a large teaching Hosp in Toronto Canada said he had all new residents tape a sml round object (dried pea, pebble etc) in their shoe in same spot for a week. He felt it gave a sml taste of what chronic pain felt like. I thanked him for this. Key is basic empathy and compassion. Any effort to me to incr this in health care as a whole is valuable incl these videos. Thank you.
Dr. K im really sorry to hear what you have gone through . I hope someday you can heal from your trauma ❤😢. Personally speaking , experience does make one understand pain better but also just having empathy and compassion towards another being is equally important. At this moment my fibromyalgia is flared up ! Everyday I’m feeling pain in places I haven’t felt before! I was doing so well in my health but just recently I feel really low again . My PTSD is effecting my health again . I just think little things can contribute to these setbacks
I appreciate your kind words. I'm so sorry to hear about your flare. I hope you feel better soon 🙏
@@MedicalSecrets thank you Doc ! By the way , you are the best ❤️💯
Absolutely I was an abuse case for the first 4 years of my life and time has taught me a lot
@@theshowlifeyoungs-Gabrielle I’m so sorry to hear this , wishing you healing and peace . You are a fighter to have overcome all that trauma. 👍🏻👏🏻💪🏻
@@Straighttalk95 He really is the best anesthesiologist I have ever come across, hands down!
The stigma attached to pain and all that goes along with it is unbelievable. I have heard so many health care specialists say "Pain never killed anyone." I say many people have lost their lives due to pain. (Suicide and loss of quality of life are just two examples of how pain kills)
Any health care specialists who says pain never killed anyone is severely mistaken and way off base. Work in an ER for just 90 days and you will realize that statement is false now from an experiential point of view. Trigeminal Neuralgia is a condition they have nicknamed it the suicide disease because the pain is so horrific some terminate their lives to get relief. You are absolutely right. No one should ever judge someone who drinks or takes drugs of any kind to sooth their pain,. It's unbearable to have 24 a day pain with no relief and no improvement for months or years. I went through that and it's miserable and people need to know you can turn it around especially now that we can activate your original blueprint from conception to regenerate and repair everything in the body for the price of a cup of coffee a day. Does that make sense?
Send me this
Amen,it’s a stress on the whole body
I fight day by day Not to kill me because of 'mental pain', why should your physical pain Not kill you?
I'm 30y+ old and feel Like 60y old. I think it's No other Thing with physical pain. Greetz from Germany.
Our culture is one of guilt. You're flawed if you show any of your flaws. Are you guilty of overcomsumption of calories? You're a pariah. It doesn't matter if your consumption is on a par with skinny folks, YOU are bad if YOU are fat, no matter what.
Same thing with pain. I have been lucky in the doctors I've discovered. I bend over backwards to make sure THEY are not endangered by prescribing ME meds.
In september it became obvious that someone was stealing my pain medicines from my desk at work. Reluctantly I spoke with the SRO (I'm a teacher) and he investigated and discovered exactly nothing. Subsequently I had a disciplinary hearing for having the temerity tp bring my prescription medications to work. Turned out that it wasn't actually a policy I broke, but once it was clear that there was no policy about the meds, after forcing me to allow them to jot down every detail on the label of my pain meds, they said, "Well, aren't you in violation of the regulation that says you can't work whilst high?" (paraphrasing a lot).... and I told them that it was a violation of my rights that they demanded access to my prescription label on penalty ofbeing fired, only to imediately discriminate against me saying that wasn't it an infraction to come to work while being treated for intractible pain (coupled with significant malabsorption).
Pain no gain is an awful cliche. I get no gain from my pain!!
Well said!
We gain experience of pain which is a teacher, wouldn't you agree?
When you are in physical therapy, you can say mild pain get some gain. But it needs to be within reason. Not off the charts.
We all understand pain that is needed to grow or that is productive - childbirth being extreme in productive and understandable, yet limited in time, kind of pain that is necessary - but any other kind of pain means something destructive to the body - it’s within our very biology to be physically and mentally destroyed by pain… for without it, we would have accidentally died out - all living beings would have - no matter how much we can with our intelligence find ways to try and avoid pain, negate it, ignore it… we’re not going to win against innate biology on this one
@LoveMoneySecretsTV It's a lesson I prefer not to learn, because it is not a positive one. There is no virtue in needless suffering.
I live with chronic pain. I live with a genetic disorder. I’m tired of being judged by residents and fellows. They judge me for being opioids. I am grateful to have been referred to a wonderful physical medicine doctor. He is doing nerve injections in my ankle and trigger point injections in my back. I have scoliosis that causes muscle spasms and arthritis in my spine. I am in pain from the moment I get up until I go to bed. I have medical PTSD. No one understands what I go through. Medical appointments are so hard due to my medical PTSD.
I have the medical PTSD as well. God bless and prayers your way! ❤🙏🏼
I am so sorry you live with chronic pain from a genetic disorder. Being judged has got to be so egregious and just adds to your already intolerable pain situation. All humans are wired to get relief and self sooth. We see baby's in utero who are self soothing by sucking their thumb or fingers, it's natural. You are fortunate you were referred to a wonderful doctor.Nerve injections, do you know with what? You might want to try the patches that turn off pain receptors that are non transdermal and non invasive, have you use them?
@@LoveMoneySecretsTV I get lidocaine and steroids for both nerve injections and the trigger point injections. They do help for a couple of weeks. My next set of nerve injections is this week to help calm my nerve pain in my ankle. A fellow I had a few months ago at cardiology was very judgmental towards me due to being on opioids. I’m hoping that fellow isn’t there this coming week because I just can’t deal with the judgement. I haven’t tried those patches. My pain management doctor put me on lidocaine patches which helps to an extent. My primary care doctor just increased my opioid dose so I can get the relief I need. I am so grateful for her. I don’t know what I would do without her. I messaged my physical medicine doctor last week told him my pain was getting worse. He told me not to worry about things and that he would take care of me. I am so lucky to have him and my primary care doctor.
Same here.
Same boat but different issues. The gaslight is real
I've lived with this body longer than any doctor has! I know what's normal for me.
Amen!
Dr. Kaveh, Thank you for sharing your knowledge. Learning so much and questions not in textbooks. Lp
Women get ghosted and misunderstood because we power thru! We’re good at multi-tasking, even in pain!!😮
Unfortunately, that's often true, and women are dismissed as being hysterical and over reactive. Sad and when that happens women need to be taught to move on to find someone who will acknowledge her, see her and understand her so she can get the help that is her God given right.
Many times women power through because we have no choice.
Absolutely! We still have to cook and clean!
Agree I know this all too well
@@agbobier2657 I have powered thru Tons of time at my job. I use to work very physical jobs and would be hurting and exhausted, BUT the bills HAD to be paid! I no longer work, but Ohhh, I remember those days all Toooo clearly!😨
Hi doctor I have chronic illness and I am on Pain management for my chronic back pain due to my scoliosis. My doctor is very awesome he understands my pain. I'd never wish any of my chronic illness and chronic pain on my worst enemy cause chronic back pain sucks.
Same here. It takes away having a normal life. It sucks.
It definitely limits you. 😢
I'm so sorry you have chronic back pain, I had that too from when I got hit by a bus in 2017. I'm completely pain free now, and I've had many people with scoliosis who within a couple months their pain is gone and their spines straighten out over the next 12-18 months through cellular repair with patches I use as a tool. For the price of a cup of coffee, it's affordable and is organic and non transdermal. You might want to try them out.
I also have back pain that is chronic. I have scoliosis. I have two 15 degree curves along with my spine bing completely twisted around on itself. All the bone,muscles, and nerves are also twisted around on themselves. I am now needing trigger point injections since the pain is so severe. It definitely limits my life and what I can do.
I have suffered severe back pain due to a botched back surgery. My pain is worse than it was before my surgery. After months of going back to my surgeon and telling him something was not right. He looked me in the eye and told me to find a new doctor because he was tired of fooling with mel. A few days later he called and said my xray showed 2 of my screws had backed ouy and need to be removed. I went back and had them removed. He then told me that should fix your pain but it didn't. I have been suffering with this severe pain for almost 7 yrs. now. I found a new dcotor and he said you need to go back to your original surgeon and thats all he had to say. What are people like me suppose to do. I want off of these pain meds, and I want to be able to sleep in bed instead of s zero gravity recliner. I want to be able to get out and enjoy life. I am 69 and have no problems other than my back pain. Why do doctors just shove you away instead of getting to the bottom of the problem?
Severe pain for 7 years due to a botched back surgery, OUCH I have had several people with that similar experience, One is a 92 yr old now 93 who his back pain went from a level 10 to 15 unbearable excruciating couldn't sleep for days after surgery until he came to me for patches that tun off pain receptors and other patches that regenerate nerves, bone, tissue and provide cellular repair. I talk about it on my channel.
I think because they are lazy. I don’t think they want anything more difficult than strep throat to treat.
Doctors lack compassion
I broke my hip in two places and my femur last September. I have a rod the entire length of my femur and it’s screwed into my hip. I have never heard of a screw unscrewing before. Did your pain get a little better after they put the screws back in place? My surgeon said it would be 12-18 months before I started to feel real improvement. Also that leg is now shorter than the other which causes another set of pain problems. I hope you find some relief someday. I also have other chronic pain issues so from one pain warrior to another I’m right there with you. 💜💕
I hear you and I am at the conclusion that Dr's are at a loss. They f-ing just don't know. Thus, they just shrug us off as chronic complainers.😢
@@sherigilmore9141the annoying thing is they don’t listen. I have told them more than once about things and what I thought was wrong. They gaslit me but I was right.
Some might trivialize dentistry, but as a young child I was petrified of the dentist until I think the age of 16 when surprisingly I got my first job at a dental office and worked in the dental profession as a receptionist and dental assistant . I was able to always have such extreme compassion and understanding of my patience’s apprehensions and make them feel more comfortable because of my experiences. It also made me more comfortable later on down the road with dentistry for myself.
Well said!
You have a heart of compassion, your patients are fortunate to have you. What a great asset and ambassador for that office and those who come in contact with you. It took a lot of courage for you to go into that profession. Remarkable. BRAVO!
Experience is a great teacher and can help us have empathy for others.
Yes Expeience is a great teacher well said.
Direct acute experience…I really support Physicians experiencing drug withdrawal in order to KNOW what acute withdrawal means, how it powerfully it changes somebody.
The risk is the reward…can you afford the reward?
I Really don't wish Pain on ANYONE, but I have to agree, I wish my doctors felt what I felt...And the people that are fighting Against opiots (for whatever their reasons) just wish they could feel it for 5mins, to Understand...I've been on opiots for the last 5 years but my doctor Refuses to increase my mgs... I understand doctors are scared for multitude of reasons, but he shouldn't be prescribing it at all if he doesn't understand that's how they work, you have to increase over time for them to even be affective. But anytime I mention it I get looked at like im just trying to catch a high or even worse, run into the possibility of getting cut off completely cuz thats in the pain contract- CANT ask for increase-- so I just suffer instead. What alot don't understand is that suicide rates are going up, not because people want to die, but cuz they can't get any relief!! For example- I DO NOT want to die, but I DONT want to LIVE IN PAIN either! It's not Living! Really really shitty position to be in. I wish I could meet you in person, you are such a compassionate man, a Very good doctor & you're very knowledgeable! 💞 Plus INCREDIBLY HANDSOME 🥰 But I love that you make these videos for Everyone to understand 💞
Would be mildly amusing to temporary inflict pain on a doctor that's gaslighting you and make them feel it for a half hour though. 😢
Well said! Thank you!
🕊🫶
It's truly mind-boggling to think that a medical doctor could feel OKAY about leaving his patient to SUFFER in incredible PAIN!??😡 At that point the doctor has LOST his humanity and needs to get OUT of the 'healing' business. 🙏
I suppose we need to consider the restrictions DEA placed on primary care doctors regarding dosage and length of time opiates are prescribed. Many have referred to pain management clinics to avoid prescribing all together.
I know those limits were increased recently but doctors still hesitate as their license is on the line.
Where does 'do no harm' fit in? This is truly catastrophic for so many of us. With proper medication we could have even a portion of life back. My meds have not been adjusted for 5 years this month. I wish they could feel it, no longer able to work, go anywhere, the depression....omg, etc.
The clinics are the worst, imo. Not to exaggerate but they feel like slaughter houses. People, humans in tremendous pain, lined up like livestock. It's like the assumption exists for everyone you're drug seeking.
Then I think of how it began....the AMA decided chronic pain was under treated which opened the doors to unethical practices.
I have no answers but this is not working. I don't have enough money to privately pay for the Ketamin, I'd like to try it.
Sorry to ramble on but this situation is killing us slowly.
@@kathylewis2484 I completely agree! I've been doing ketamine infusions the last 5 years up to last year, $300 a pop for 1 hour... all I can say about them is I'm 100% Pain FREE During the infusion itself but as soon as the hour is up All the pain comes back... best way to explain it is, I always say "I feel like a tooth", like novacaine they numb your gums with before doing a root canal. It's great while it lasts but unfortunately it isn't long. So idk if it's really worth it, they say it helps with lots of other things like PTSD, Anxiety, Insomnia, ect...but my PTSD (From getting shot Aug 15,2017) hasn't gotten any better, or the Anxiety I've had since 11years old, or the Insomnia...Being a Dual-Diagnosis patient doesn't make any of it any better cuz now im "stuck" to pick which ailment I want to get help with...Chronic Pain tops the list tho cuz if it wasn't for the little amount I do get I probably would have ended things Years ago... it Really does suck & my heart breaks for you. I know all too well how debilitating it really is. I'm not working either & not getting any kind of help, cuz I Want to go back to work someday...and I know alot of people tell me I'm a pothead (cuz of my pic) and I used to be, but I really don't even like weed anymore. Some strains actually make my pain Worse! I just wish this world & it's "Rules" wernt so challenging for those of us just trying to get thru the day. And for once not have the thoughts that I'll sleep when I die, or I'm wasting air others could be breathing being productive part of society, just wish that I wasn't a burden to any1 near me that hears my cries when the physical pain gets so excruciating. 🥺😥
I completely concur with you. My GP worked at a clinic which would not prescribe opioids to ANYONE. She ended up with trigeminal neuralgia. Because of experiencing first hand, that which her patients were suffering with, she left the clinic and now practices at one which does allow prescription of opioids. We had a very candid conversation in which she pointed out that opioid overuse is obviously concerning, but creating an environment which disables a patient’s ability to LIVE is just as, if not more toxic and detrimental.
P.s. I’m really sorry to hear about your own experience:( I think it’s purpose was to make you an even more incredible Dr and advocate than you already are:) your patients are very fortunate to have you on their team:)
A co-worker was sent to the company doctor for a repititve motion injury over the course of months, which later was diagnosed as fibromyalgia. He told her she was holding stress and needed to tell people off sooner. She looked him in the eye and told him to eff off. Good for her!
It starts with their philosophy. Chiropractors believe the body can heal itself. I’ve never met one that cured any patients my specific genetic conditions. It ends up being them versus us, stuck in a victim-persecutor dynamic. Nobody can heal that way being gaslit by their own Dr with power over them like Dr Kaveh mentioned. Hits your identity to core. Now sure, muscle tension could cause some pain, but if the drs, the ones supposed to help us, weren’t so busy disbelieving her fibromyalgia to begin with, maybe she wouldn’t be so tense. Ha! 😒🤯 Good for her for not allowing them to gaslight. 💪
I had a 10cm tumor removed yesterday. Very thankful for the various painkiller options I have been given. As a patient, I appreciate being given options.
10 cm tumor, OUCH that must have been painful, yes very thankful for the various painkillers. I must say anesthesiologist are very skilled at managing pain reduction and invaluable while going through surgery and recovery. It's important to now your options. Dr Kaveh is masterful and brilliant at that, isn't he?
You might want to try patches to turn off pain receptors, I carry them in my practice
You are lucky to have received various painkillers....I was given 15 hydrocodone tablets @ 5mg following a toe fusion....a titanium plate and screws were inserted into my big toe. It was excruciating and after the 3rd day I couldn't take it and called my doctor. I was told to take 2 pills. Well I ran out by the weekend and had to call the oncall number......the physician met my husband with a script for 10 pills.....I am so over allowing the so called doctors to treat me without adequately treating my pain. I can barely move due to osteoarthritis in my lumbar. The pain is constant but doctors tell me the pain shouldn't be that bad. So again you are lucky and I'm glad you didn't have the experience I've had. Take care🤗
@LoveMoneySecretsTV What kind of patches and do they work? I've tried otc ones but they don't work
I've had around 13 surgeries. Last 2 were 12 hrs long each, 6 months apart. The most positive experience was receiving functional pain management in the hospital and knowing that every day the surgical pain would get better. Then back home same old. This is no way to live.
I had surgery 16 months ago my surgeon had had a similar surgery and took time to show me what my scar would look like and relate to me on a personal level!!
Awww I’m glad to hear you had a good surgeon and who could relate to your experience. I hope you have healed from your surgery ❤
@@Straighttalk95 I have thank you.... I had a displaced midshaft radial fracture because I have a ram and he slammed my arm in a wall ... I was terrified when I found out I needed surgery but Thanks to him ( dr karl bowman ) and his team It was a easy and non traumatic... my anesthesiologist was amazing and had a since of humor and super kind ( kind of reminds me of dr kaveh ) and the nurse antithesis was amazing ... I just hope I can stay out of the or in the future.. sending positive vibes to you and thank you for the comment 🥰🥰
@@Straighttalk95 I now have a 8 hole plate and 6 screws in my arm but life is perfect and for the most part pain free
@@theshowlifeyoungs-Gabrielle awww sweetie , it’s good to hear you are pain free .
@@theshowlifeyoungs-Gabrielle ooh goodness the ram did all that damage?? You poor dear . It’s good to hear that your arm is healing and you are pain free . What you have gone through would give anyone PTSD.. it’s a lot to deal with . Keep strong 💪🏻
I absolutely do believe all pain management Dr's should feel Exactly what we feel its just not right to be treated that we are Exaggerating.
You recovered. Most of us do not get a day off ever.
You are such an empathetic doctor. Wish we had more like you! Take care! 😊❤
So do I ❤
I'm so sad that I missed the live stream of this today! I just had my adrenal gland removed last week for Subclinical Cushing's Syndrome. I read that Cushing's requires *aggressive* pain management. With my previous surgery (24 years ago), my surgeon told me that I was an obese waste of life (at 35.2 bmi) and he if it wasn't for his numbers, he really didn't care if I died on the table. They had to wake me up on the operating table, but they were apparently done with my procedure. After that, none of the pain medicine they gave me put a dent in my pain. I was screaming too loud to go to recovery, so they put me straight on the elevator and stuck me in a room by myself for about 6-7 hours until I finally stopped screaming. No one checked on me. AND no one offered any more pain meds, even for home pain management. I think the less-than-charming surgeon's comments and possibly(?) high cortisol inflated my pain levels then.
Thanks to your videos, I had the courage to advocate for myself (I had to do a LOT of advocating to get my diagnosis). This time I requested ketamine for pain, and it was so helpful! :) My doctors made sure that I wasn't in pain through my recovery. I've had so much medical gaslighting (since 8 years old with knee pain) and throughout my weight struggles. Thank you for helping me get through this really important surgery without dragging my PTSD along with me, or at least not most of it. Already my daily nausea/vomiting seems to be gone! You are amazingly kind and compassionate. Sending you so much gratitude. Thank you. ♥
I am beyond appalled that a doctor actually saud that vile, nasty, cruel statement to you!!!😠 and shocked to the core about them throwing you in a room without us in medication or even once checking in on you!? Where and when did this horrendous crime against you occur?? You MUST report it to the medical board!!!!!!!! #UNBELIEVABLE😠
@@gloriamaryhaywood2217 Thanks Gloria! This was at Swedish in Seattle, WA and about 24 years ago. I'm sure way too much time has passed now. I don't even remember the name of the surgeon. They did give me pain medication in the operating room, it just didn't work!?? At the time, I didn't think anyone would listen and I didn't know where to complain, other than to my doctor, who just brushed it off. I assumed all doctors felt the same way about me. :(
I'm now in AB, Canada and I'm finding my doctors to be kind and understanding, with a few (older) exceptions. Dr. Kaveh's videos, though, *really* helped me to advocate for myself for my surgery last week. All of my doctors listened to my concerns and promised that would never happen to me again. :)
@@opheliariver3225 Ohhh, I am beyond Thrilled for you, hun!!!!!!😊😍 👊 Just reading about your horrendous experience (and at the hands of frigging 'medical professionals' no less!?) had my damn blood Boiling!!!!!!😠 We often wonder about who they allow to join our police force, BUT it's mind-boggling that some of our health care providers are just as Dangerous for the folks who end up trusting them with their very lives!!?😨
So very happy to hear that you are no longer subjected to that horrible and inexcusable treatment!!!!🙏..💜Sending Big Hugs!
@@opheliariver3225 Thank Heavens you are now in good ad caring hands!!! I am so very relieved to know this!!!💜 Wishing you all the BEST from here on out!!😊
I dont think they have to feel pain, just good listeners.❤
Yes, I agree!
Getting most to listen is next to impossible.
I have tears in my eyes watching this because that's all I have ever wanted in a doctor - someone who can feel my pain and empathize with my experiences. I am struggling with PTSD, anxiety, and depression due to being molested by my cousin from ages 3 to 15. Additionally, I have osteogenesis imperfecta and Ehlers-Danlos syndrome. Recently, I was informed that there is a discrepancy between my brain development and my chronological age. Furthermore, I have been diagnosed with a left atrial septal aneurysm, left atrial appendage, along with a hole in my heart, and a mildly enlarged aorta. The aneurysm measures 3.8 cm, which is concerning to me. I am curious why the doctors have chosen to monitor the aneurysm rather than treating it immediately and instead want to observe its progression over the next year. I will need to have it checked annually for the rest of my life and may require bypass surgery in the future. I wish I could communicate directly with you because I believe you are the doctor I have always hoped for. It took medical professionals 30 years to identify the genetic disease and an additional year to diagnose the remaining conditions. You're the most caring, compassionate doctor I can see.
I have the same, I'm a mix of Ehlers and Marfan and have been in pain for 47 years. Waiting on genetic results but the pain is unrelenting. When I'm asked where it hurts, I say everywhere. Head to toe. For years not only was my pain disregarded but so was my crystal clear physical deformities. The doctors solution? Antidepressants. There's only so long you're told you have depression and not a real problem before you actually develop depression from the gaslighting and willful ignorance. Getting to a clinic that knows and understands this spectrum of disorders is like finding an oasis in the desert. But, even then pain persists. It never goes away and no one, other than those with this, can understand what scoliosis, foot, leg and chest deformities feels like. My aorta was also exactly 3.8 on one measurement, but I am very very tall so told its normal, so far. I hope you find relief soon.
Yeah, I have gone from being 5ft 3 to 5 ft and continue to shrink. Thank God my endocrine doctor recommended palliative care because I'm on adequate pain control that helps tremendously.
Doctors are too busy judging to treat my osteoarthritis. I had to tell one doctor that after all the medical procedures I've endured if I was going to become addicted I would be already. He had never seen me before but was refusing to prescribe me additional pain meds following a surgery. I told him I didn't appreciate being categorized as a candidate for opioid addiction. I had 4 surgeries within 3 years and have no opioids in my possession. That's not typical of an addict. We need to make our government aware of the lack of care from doctors.
They know but it doesn't fit their narrative for what they are trying to do. I'm a retired RN and I cant get through to Drs. I'm ready for the Rapture. I'm so tired of fighting it.
Also not being able to do normal things like getting dressed before going to work putting my shoes and just walking again changes my life in so many ways .Almost at my 2 month after hip replacement.Bless you all!
Two weeks and 3 days from my second hip replacement. It does eventually get better. I’m not there yet.
Sending you love and healing energy!
@@paulajackson8416 definitely in that building strength and with walker but soon you will be using a cane and if u stay on ur meds properly you will be in less pain.Especially before you rehab.By my second week I remember crying and my therapist laughed and said it’s been 2 weeks I really just pushed to get back to semi normal but by a month you won’t believe the abilities to walk will come back and staying up and about every hour is very important yet grueling but it will be worth it especially since you know the pain of bad hips.Get r done do your excersizes every day and you will be there.Here’s to a new life with no more pain.Plan on hiking and swimming this and yea getting back to work.Can’t forget that lol.Good luck and god bless.Get r done
Pain is different for different people as well. I can stand a lot more pain than my husband can. 😊
Thresholds of pain vary widely, and the truth is no one will ever feel the pain you are exactly feeling other than you. That's why you are an expert on your own body beyond anyone else. You have lived and felt everything since conception. Also some people are in terrible pain, and they don't complain or say a word to anyone and you can't tell by their face either because they don't even grimace. If you bluetooth to them with your ANS you can feel some of the pain but really it goes undetected and this happens a lot more than you think. You might benefit from patches that turn off pain receptors for the price of a cup of coffee, Does that make sense?
@@LoveMoneySecretsTV what are these patches?
I agree I can get stuck with a large needle (16 gauge) and not flinch or carry 5 gallon buckets of water and 50 lb ags of feed with a fractured radius ( which later required surgery because it was displaced)
@@theshowlifeyoungs-Gabrielle That's a very high threshold of pain tolerance. Wow and so how are you doing now?
I hope you didn't damage your radius....
Compassion is such a beautiful word! Great video!
It's interesting to me how people who have been through the same trauma can process it totally different. When I was a witness to seeing something, my granddaughter's mother was with me. She was so unaffected by it, and I've been traumatized for yrs. I think maybe it's because of being ASD. I cried for so long, and felt so upset by what people can do to each other. It repeats over and over in my mind.
I wonder if the person who would choose anywhere but the USA to give birth has seen the scary health care in some other countries. I'm personally always grateful when the plane touches down on my home soil. A lot of people died for our freedoms here. It does scare me, though, how women's healthcare is slowly being taken away. In that regard, I can understand not wanting to be here if you're in a state where you need a certain procedure to save your life you can't get one. I'm not sure if the "A" word is allowed here. YT has censored me so much it's ridiculous, yet violent, horrible videos are shown every day.
Yes there is sa very wide spectrum of how people who have beeb through the same trauma process it totally different and yesterday I had a brain profiler on my channel and we talked about that and precisely how in one person it's obvious to everyone and in the other it's undetectable and yet the individual is still suffering in both cases, yet expression is vastly different.
@@LoveMoneySecretsTV Interesting, I'll check out your channel! Thanks!
How long does one suffer to have quality of life. I have bulging disc's, crohns disease, thyroid disease, rheumatoid arthritis and I suffer severe anxiety. When is enough enough? I want quality of life, not quantity. Most drs have no compassion, sympathy, empathy, bedside manners etc... I'm exhausted mentally and physically 😢✌🏻🙏🏼
I too am a pain warrior of many years. Fibromyalgia started in high school and I’m 61. I have fought till I don’t have the energy or mental energy to do it. I’m tired of insurance companies dictating how to treat me. One common pain medication my insurance needed to review my case and it took 6 weeks to say I could fill the prescription. 6 weeks can feel like a lifetime. I hope you are doing okay and I understand you. From a friend…💐💜💕
I’m not adding the rest of my medical ailments. Not necessary
@@tammyhanson7843 I understand, I left out fibro simply because it's just another ailment they don't treat buy I feel your pain. It's heartbreaking. The Dr's caused an epidemic handing out narcotics, them double dipped to send you to rehab under their name. The hospital that disgusted me and put me through hell us Geisinger medical center!!! Ugh!! It's heartbreaking! I just want quality of life, quantity means nothing to me!! 🤬🤔🙄🤨🙏🏼❤️
Sorry for the typos lol
@@Jenna-Rooyou’ve been through a lot, me too. Gentle air hug 🫂. I love the saying, “people can only meet you as deeply as they’ve met themselves.” I wonder if they feel exhausted resisting our truths all day long, refusing to listen to us because they haven’t experienced it and lack empathy to relate. I also think they assume we are all dumb and unhealthy with metabolic syndrome stuff, using BMI or labs to shame and blame.
Honestly, it’s helped me to see them as little psychopaths, looking at us as the helpless victims paying for their mansion and Mercedes. I’m kind a jerk like that because I have the same amount of education and was extremely successful before I got sicker and obtained correct diagnoses, didn’t get the right help, as you also mention. Fibro is like hEDS, they think it’s just all in our head, but they found the cause of fibro, it’s real. And with hyper mobile EDS, they just haven’t isolated the gene and developed a diagnostic test yet. That’s because they don’t believe it’s real so no researchers or drs want to focus on it, also charities don’t really lobby for funding or do any research, just pretend to be fighting for us while making money off the very community it supposedly serves by hosting expensive conferences where all the drs get paid lots to talk lip service but do nothing to get the diagnosis properly supported by medical community and SSDI. It’s like MS, that diagnosis was abandoned like 50 years before it got recognition.
Thanks for this recovering from my second hip replacement and I lived with pain working and putting off taking care of myself and my dr would just prescribe ibuprofen I understand but the pain was horrific.They almost make you have to get the surgery instead of putting a bandage on it .And paying for pain management is a joke also.Paying for me to keep coming back that’s all.Anyways been watching you a while back and appreciate your honesty.Love to all!
Tammi, a second hip replacement, that's serious and the pain was horrific I'm sure both times and continues to be. I can't imagine what you are going through, even though I got hit by a bus and suffered a brain injury, neck and spine injury and leg injury and here I am totally pain free and regenerated and restored feeling better than before. I sense people like you who have had a hip replacement are traumatized from that experience and having to go through a second is re-traumatizing and dreadful. I hope you have pain relief now, have you tried patches that turn off your pain receptors? I use them in my practice, I talk about them on my channel. You might want to check them out.
@@LoveMoneySecretsTV Actually feel like I been leased a new life.I also had back surgery while my husband died 6 weeks in my recovery and also dealing with my son who had been bed ridden due to Gillian Barre…The year and half later losing my son ..I remember I had to find a new doctor in between my back surgeries and my hip surgeries he wanna tell me my pain was due to losing my husband well I already knew what was wrong I had X-rays done prior to seeing him and after my back surgery I get that but it’s not always the case..Yea it’s all traumatic I just think I’m here by the grace of god and no pill will give you hope and faith.Anyways thanks always.Appreciate always
@@tammiwoodbury4545 Wow Tammi you have been through a lot! Yes the grace of God for sure!
It's so true that no one understands your pain until they experience the kind of pain you have. But when a doctor doesn't believe me, it makes me feel like they're calling me a liar. It was comforting to watch this. Thanks doctor for sharing
Unfortunately where I live, the doctors have to follow state guidlines. That means the state comes first, and the patient gets treatments that the state recommends. As a result of this I am put in a situation in which I must be my own doctor. My state - appointed doctor has power and control issues and last time I visited him, he ordered me out of his office because I had visited a 'private' doctor. (no co-pay) full price. (The state doctors have a $30 co-pay.)
This was the third time he exploded in anger towards me. I've pretty much given up on him.
Thanks for your videos, I watch every one that comes up in my feed and enjoy them, hsving some prior medical backgrond. Live long and prosper !
-Gabriel of Norway.
Gabby the doctor who exploded is not professional and apparently has some PTSD and possibly other things going on with him and he's not well. Men who explode in anger with out impulse control have been shown to oftentimes have low testosterone levels.There's studies out of UCLA and Japan to support this and we see this a lot in brain health as we scan people. Honor yourself and find a doctor who resonates with you. You might also want to look into patches to regenerate your body at the cellular level, I use them in my practice and I educate teach and train about them and health and wellness on my channel. I always share our educational site (nothing to buy just to learn). Does that make sense?
Same in the US. If you can't afford to pay out of pocket for your doctor's visits, then you are faced with doctors who decide by looking at you whether they are willing to bother arguing with insurance providers about payment for tests and procedures. It doesn't matter that you are having health problems. These insurance doctors don't have to answer to patients directly. The customer service person told me that I don't get to talk to, nor ask the credentials of the doctor who denied me requested tests.
The PTSD component is very real & adds a new layer of complexity. The emotional trauma of helplessness, even if temporary, can feel life altering on a cellular neurological level. Trauma is held in the mucous membranes. This is why people need to allow themselves to have a good long cry. You went through a shock to your cellular system. Crying, sweat (all the body fluids) is necessary to process such extreme experiences. It will help to alleviate built-up anxiety & inflammation. Compassion is critical at the onset of new injury/disease. Feeling supported by healthcare & family is a game changer.
You are such a compassionate and formative man. Really nice to hear you talk about your experiences and procedures.
If we only had a doktor like you ❤❤❤❤
My rheumatologist cut every one off pain killers when govt cracked down. Everybody had to just go cold turkey and im still suffering. Advil gave me an ulcer which ended up having stomach surgery due to blockage. Have had Juvenile rheumatoid arthritis since 9. Given nothing since..😢
I'm going through the same with advil. It's the only over counter that helps.
Unacceptable! They need to experience the same pain level. People who have never had addiction issues need help in their seventies. That does not mean they are drug addicts. A Dr from a foreign country was so frustrated and said, “America has everything available and still refuses to treat their people who are in pain”
@@paulajackson8416most of the pain management drs in Arkansas are from foreign countries and their attitudes about pain management are different and are not compassionate. Well one of them owns several of the " pain centers" in this State. Its not good.
As a nurse who has also been a patient - some individuals are more empathetic than others. Experiencing pain gives one a completely different perspective.
My experience also allowed me to see that there is certainly not one way to experience a particular malady.
I agree with what you say.
I agree with you too and you are a far better professional because of your experience and relatability. I want more people like you on my team. Your experience is your super power, I agree with what you say and you might want to check out the organic nanotechnology non transdermal patches I use to help your patients. It's a game changer. I have a lot of education on my channel if you are interested. I love your handle ICHope1 brilliant name, feels divinely inspired, wouldn't you agree?
Many years ago i learned a very important lesson. I had contracted TB and was in a hospital. My roommate was a beautiful young woman who was terminal any yet was one of the most positive and and cheerful people I had ever met.It was obvious she was in tremendous pain and yet was always upbeat and never complained. One day I asked how she was able to be so happy all the time. Her answer has stuck with me over the years. She said you can get up everyday and be dying with cancer or you can be living with it, the choice is entirely yours. This has helped me many times. Now that I am facing a similar situation I am so grateful to her for such wisdom. While this doesn't exactly address what you are saying I hope this women has resonated with others. I know it has given me a better outlook on life.
None of my doctors have any idea of the physical, PTSD, and depression I endure at 81 years.
I think not just doctors but all medical staff. After my first time serious knee injury surgery & coming off anthesia I was told by an attending nurse to stop crying, "it will bother other patients" the audacity to say such a thing! I was shocked. She definitely lacked sympathy and understanding
I love your work, keep it up!
I have a Chordoma brain tumor that was "supposed" to kill me 25 yrs. Ago. It has recurred recently. I was born with this thing, and have devekoped multiple painful conditions over the years like Sjogren's, degenerative joint and disc disease, along with neuralgia and diabetic neuropathy. Hence, I live in pain, in spite of being seen by a pain management specialist. When severe, acute pain occurs in addition, I am often treated with open judgment and left to suffer with no intervention. My life is limited and pain and some opioid meds.will be part of it until the end. Providers seem to be more concerned about politics and the DEA than with a patient's unnecessary suffering. Thanks for the.care you provide and the candid information. As a disabled R.N. I am appalled at the current state of Healthcare in our country. Thanks again.
Sandra Qualls 20:50 20:50 20:50
I'm a disabled RN too. I'm ashamed nowadays that I was ever a part of the medical profession altho I always advocated for my patients. Their pain was whatever they said it was and I did my best to get them relief. Now drs dont want to hear it and then they can only view one at a time. I have several conditions that cause pain.
@@FaytheInGod I worked as a nurse likewise and it is sad. Governmental restrictions have them in a difficult position,2016 is a year always remembered because all medical professionals know that at any time the availability of any medicine may not be possible. This year recently again they have been told to down their dosages and it is not the doctors but the relationship between US and other nations and producers of many medicines including narcotics. Still I think about those who have nothing in other places that I have been and the surgeon has to do his job without any anesthesia.❤
I personally believe if these doctors would band together & stand up to them things would change. The government doesn't have medical degrees. They aren't treating patients. It's more than sad to me. It's infuriating.
@@FaytheInGod indeed is a very shaky world we live in but like your handle name it will be handled by the highest of powers and that is where we have put our trust. Great handle and these things were foretold. Every hour can be sometimes all we can focus on because everything else is so much to put on ourselves isn’t it?
@@jenjenf1996 yes it is and it's rolling out andplaying exactly asforetold! I'm keeping my eye on the sky and my focus on God!
Thanks for talking about pain. I have used opiates for a bad back for years. My tolerance to pain medications is very high. I have trouble with my Md prescribing a certain amount of opioids but not wanting to increase pain medication. My Md is afraid that I will stop breathing. At least that’s the excuse that I get. What you are doing is great! Thank you!
Mike
I understand your frustration but your doctor is RIGHT. Doesn't matter a bit HOW high your tolerance is when it comes to pain medication! If you started low and had to build up to get the same amount of relief, the over-dose amount needed to Kill you NEVER changes!! So your doctor knows exactly what he's talking about!!
I stopped complaining about pain with my drs since I realized they were not listening to me at all and not just pain any other symptoms were the same. I know I am old and until few years ago my health wasn’t that bad but when I had COVID and developed long COVID symptoms including pain, fatigue etc, since that day until today no one ever listen to me mayba I am “crazy” I know that sometimes the pain is so excruciating that blocked my mind I because I am alone in my journey I started a movement and then another it could take few hours but I am able to start moving around a little bit easy. And I believe that sometimes people needs to experience pain other to understand also having empathy that most of the drs i know are lacking of. All my drs now are very cold they are more concerned about any liability than trying to find out what’s wrong with you as I recently found out one dr made a mistake and I didn’t know that I should never said t
Posted it in another video as well: After an op with having cut all intestines (stomach and intestines) i got 2 paracetamol. I was just about calling 911 in hospital because the nurse didn't wanna get the doctor for pain medication. They were told not to by the doctors. But sorry...a doctor should know even from the books that cut through inner organs need opioids at least 😅
At least!!!! Paracetamol is a good painkiller but not for severe or major surgery and especially those like myself who have had an opiate addiction and paracetamol doesn't work at all for me. I hope you heal fast and well ❤
I am so sorry that you had to suffer. That is just awful that they are not giving opiates after open abdominal surgery. That’s just torture.
I think it's vitally important to discuss specific pain management post op with surgeon before the operation. And if they're too wishy washy, consider a different doctor. I'm to scared to get a knee replacement because of this.
My goodness, I'm sorry you had that experience. Were you eventually able to receive appropriate pain medications?
The nurses were told to do gymnastics with us instead of more pain meds, to get the air out of the belly (they blow you up for that op) which causes the main pain, which is true indeed, but maaann you can do those stupid gymnastics after giving proper meds at first 😀. So nurses thought, no doctor said gymnastics first. Imagine having to get up then and do gymnastics with the nurse. I trusted at first, thought they are experienced, but of course went through hell. That's when I threatened to call 911 if I didn't get a doctor soon. Got one and meds. But I still wonder what the 911 operator would have said .. someone calling from inside a hospital. 😀
You, Sir are one of the few and rare doctors who have compassion and empathy. Thank You ❤. I finally got a diagnosis of Lupus, Sjogren’s Syndrome Raynaud Phenomenon Mixed Connective Tissue Disease and Rheumatoid Arthritis. As upsetting as it was to hear this I am grateful that they have a diagnosis for my pain. I survived colon cancer with an original doctor who said that there was nothing wrong with me. I had to find my own surgeon who immediately knew I had cancer. I have had to advocate for myself and it is so frustrating when a doctor dismisses a patient. Thank You for teaching us to advocate for ourselves. Much love and blessings to you and your family.
So sorry you know what we know about pain & the struggles to get it managed. We may not die from pain but some days I worry the anxiety of poorly managed pain CAN cause us to have heart attacks and for some suicidal thoughts.
Absolutely, so well said!
Doc, sorry to hear that, but we thank you very much for everything that you have study hard, and sharing with us!, I really enjoyed your videos 🙏
I’m in so much pain right now that it’s not going to end well if god does not intervene fully~ I am a new senior that doesn’t have transportation. I am in a place where there is no real help and even if I go by ambulance, I have no means to get back 17 miles. The people in this area are very sick because of poor healthcare services and they can’t help me.
I don’t need my doctors to know exactly what I’m going through. In fact I wouldn’t wish my suffering on anyone. That being said I need them to hear me and when I tell them I am suffering and can’t live like this, I need my doctors to try and help me find a way to live with it. Being gaslit, being left to suffer, being treated like you aren’t worth helping…it makes the pain and everything worse.
I was in the ER recently and got diagnosed with a DVT and the ER doctor came back in after he told me what was wrong and said that I seemed really scared earlier. I told him I was. I told him I had already had a hard time getting help from doctors and every time I get a new diagnosis I get more scared because I truly don’t have a doctor helping me.
I am severely anemic because of a fibroid and now that I have a DVT I can no longer take birth control so the horrible pain and bleeding is going to restart. I told my doctors and asked for help. How was I going to manage the pain and bleeding from the fibroid now that I can’t take NSAIDs and I’m on a blood thinner. They basically told me to just bleed out and they don’t care at all about the pain. It is so painful and I can barely breathe because of the anemia and they acted like I was talking about a paper cut.
My doctors have never cared about my pain. I don’t remember a time when I wasn’t in pain.
I get treated like I don’t deserve help
I'm so sorry you're going through this. I hope you find doctors that do care! I can't believe the world we live in... ☹
@@sonriendooothank you
So very sorry, hun!!💔 Can you change doctors? You truly NEED Somebody to advocate for you in big way! Do you have somebody in your family or a close friend who can speak up loudly for you??🤔
@@gloriamaryhaywood2217
Thank you and no I don’t have anyone
I have a great Pain doctor at Stanford, but I know some doctors who don't have a clue what chronic pain is and don't even care if people live with chronic pain. Unfortunately, there are a lot of doctors out there who have no empathy; they lost all their humanity.
.
I'm so happy to hear about you positive experience with your pain doctor here at Stanford!
I wish I was in the bay area and could see you for medical services. You are an amazing human being.
I live in a building that is full of residents of Mount Sinai, I would say they are some of the most rude people, full of themselves, I share elevators rides with them and they are just rude, I always wonder how do they manage to turn into caring doctors once they step inside the hospital! You are great Dr. K, but the majority there doesn’t care at all!
Thank you... I appreciate your kindness. I live in chronic pain from head to toe. Botched neck surgery in 2006. Couldn't the right size plate so they put an adult small. I'm small... I was almost normal under pain mgmt. I'm now stuck just living in claustrophobia in my body bc I can't afford it . I see 18 specialtists. RA, patio, and PsA, plus, plus, plus. Chosyochondrytis in ribs...Ugh I can't seem to gain weight and barely can get through a shower.
I'm so sorry to hear about that. I hope that you can find healers to help you in your journey 🙏
@@MedicalSecrets thank you. I was always very active. I played soccer and coached my kids... I was a teacher. Still are in touch after all these years. I am still a Happy person. Love to giggle. Best SA helps me most. Oh, did I mention seizures... Seeing all of these specialized doctors, no help from pain. The government is behind this... All for the love of money. Thank you for your kind heart. You were raised right 😊😇😊
I have not only been in chronic low back pain, but spasms, for 7 years this month. I was an extremely empathetic Nurse for well over 40 years. I lost my career after slipping on a wet floor, without warning 'signs'.
I've grieved from loosing my purpose in life. This 'slip and fall' robbed me - not only from my beloved career, but my life is not my life anymore.
I've had no relief, even though I live near all of the Boston Hospitals.
I have no relief.
It is traumatic.
I try and warn my hard-headed SIL about how quickly and severely life can change. She is 57 years old and always picking up crap wayyyy toooo heavy! I have a slipped disc and sciatic nerve damage. Thank Goodness the disc slips back in usually in a couple days on its own bc it is Painful as all get out!!
Yes, that ONE Slip completely and forever changed your life.💔 It's very scary to realise how easy it truly is to completely lose our quality of life!?😓
I've been fortunate to have an excellent pain doctor and anesthesiologist for 17 years.
It's a trust relationship, he believes me he trust me, I trust him I believe in him. I don't expect him to completely understand nor do I expect him to experience pain but I do expect him to believe me.
I know it's extremely rare to have a good pain doctor/Anesthesiologist to dispense the proper pain meds, I can tell you for sure I would take a gun to my head if I did not get help with pain so pain does kill. Pain changes, changes the composition of your brain your thoughts your feelings it just changes you ~chronic pain in my opinion, is no way to live at least I do get a little relief with the medication I'm on. I realize it's a rarity to have a good pain management situation that's why I'll probably never be able to leave the city I'm in but, that's OK.
I'm so sorry for what you have had to experience. I'm also so grateful to hear about interesting relationship you have with your doctor 🙏
@@MedicalSecrets oh wow, I never expected you to read this😅 thank you so much ~you're one of the good ones!
I do have a great anesthesiologist/pain management doctor he's very strict and I'm a little bit afraid of him but he's damn good!! I Suffer from CRPS auto immune, and hemicrania continua, fibromyalgia + more- I always say, I'm too young to be this old!!
I have had ME/CFS for over 35 years I'm never out of pain and have a struggle to get pain relief I'm largely bed bound have severe abdo problems had 3 major abdo ops never out pain nearly go crazy pain ruined my life I used to be a nurse I can't remember not having pain and so weak and ill.Thinking of all who suffer❤❤❤❤
I have that too with fibromyalgia, chronic lyme and a generalized whole body dystonia. It's not fun....
You are so precious. A "Dr. Welby" of this age. Wish more Drs were the same.
I´ve had an epidural fail on me two times in hospital after my feet were crushed and one of them amputated as a result of a traumatic work accident. They spent hours each time troubleshooting while I was fully suffering from my extremely damaged body. Even though things are definetely better now, I am still in pain, especially phantom/nerve pain. I think I have always been able to have compassion for other people suffering, but it is true that now when I know what real pain is, my compassion for other people are one a very different and more real and understanding level
Yeah, my mom had _severe,_ trigeminal neuralgia, and when would have to go the hospital, it could...frustrating.
For example, a while back she fainted/fell, and we didn't know why, so they took her to the ER. Turns out she had a bowel obstruction, and had to put in an NG tube up one of her nostrils(which absolutely terrified my mother, and understandably so.)
So this guy, who looked like he was 18 or 19, came down from surgery(he was a surgery resident) and started explaining the process of installing the NG tube. My mother told him that she had TN, and was scared about what it would like, and how long it had to be in(he said just a few minutes, misunderstanding what she was asking.)
When my mom told her about the TN he(without even looking at her) said, "oh yeah, that's fine. The procedure not that bad, and most people tolerate it pretty well. You just may have a but of discomfort with TN."
My mother and I looked at each other like, "are you fucking kidding me? "A bit of discomfort"?
Regardless, he starts putting it up her nose, and she is clearly in sheer agony, but if finally gets all the way in there. She ended up having it in there for 2 or 3 days, and said it was like having shards of metal grating against her nose, throat, even into her mouth and tongue(on top of the usual cackling, stabbing/shooting electrical pain, the "thousands of bees stinging the entire inside of my mouth and tongue" pain, the "feeling like somebody was spilling lava all over her face, mouth, and throat, etc.)
People, including doctors, just have no idea in regards to the severity of her pain. Granted, you can't expect a doctor to be an expert in everything, and know what every patient is experiencing, or what their life is like, but it can be extremely frustrating. You really have to be your own(or someone elses) advocate in the hospital.
We have been lucky enough to have some great nurses who really helped her, understood how much certain things hurt for her to do, and were just advocates for her too though.
I had active TN for 11 years. I don't know how your poor mother managed with that procedure but just thinking about it makes me nauseated. Doctors generally don't understand how bad it is.
I am very sorry for your mom's TN pain and this bad experience in the hospital. I also have Trigeminal neuralgia, anesthesia dolorosa, hemifacial spasm, occipital neuralgia and multiple cranial nerve disorder bilateral and medical PTSD. Your mom's experience is exactly why I have not obtained much needed treatment over the past 7 yrs for many medical conditions caused by a genetic condition and other chronic conditions. You are sooo correct about it being necessary to advocate for yourself. It is the only way esp in the sad US healthcare system.
I was just in the hospital and my pain wasn't treated. There wasn't any compassion and I told them that their response would be different if they experienced this. About 15 minutes and a threat of a report to administration, they helped. We have to be our own advocates!!!
I think if a doc truly has compassion, they don't have to feel the type of pain their patients feel. Docs know what pain feels like from their own lives - they are not immune to diseases, accidents, headaches, etc. My gyn oncology surgeon is a man, yet he showed more compassion to me than any other doc has.
Dr.K I wish we could clone you!!!
😂😂 Have a great rest of your day. THANK YOU I learn something every time I watch you and pass it on. 69yow❤
I had a Dr. who was a great Dr. but with a terrible bedside manner and thought pain meant you were drug seeking. Which I told him many times what i thought about his short falls. This was in the 1980's so this has been going on for awhile now. He was an avid racing bicyclist and one day he got hit by a car. Terrible accident but it totally changed him. He told me personally how much he now understood what i had been saying all along and was sorry for it. He became a much better Dr. It is always best to tell your Dr. what they good be doing better at.
Chronic pain after chemo.I was diagnose with colon cancer. I have severe fibromyalgia in right leg, below knee. Left foot and severe in my finger tips. If this chronic pain doesn’t go away I will never celebrate! My pain is so bad! My doctor understands and we are trying to lessen the pain. Pain level 10 every day is killing me. RN for 44 years. Love your videos!
So very sorry. It sounds like nerve damage to me? I underwent aggressive chemo treatments and it was nothing short of BRUTAL! Thank Goodness I never truly suffered nerve damage. But I did develop SEPSIS which came close to killing me! #UGH. Here's praying you and your doctor are able to find relief for the Worst of your pain.🙏💜
Insurance companies rule docs. I have severe chronic pain...I can't get help. I've seen 15 docs and have been put in the catalog of doc shopping....even tho I've never asked for drugs. Thinking about going to Canada for the MAID program.
Don't go to drs who take insurance! I have a naturopath and I pay her Cash! She and I manage my health and there is no one telling her what she can and can't do! It's the only way to stay healthy!
I underwent a high epidural when I was getting a C section. I was completely paralyzed. Then nurses thought I fainted but didnt interrupt the anesthesiologist who was training. The third time he pulled back my eyelids he realized what was happening. There's more to this story. The next day he came to my room and told me I had a near death experience and wanted to know what I experienced. I did experience a lot.
I used to be on the go all the time from working, being a girl’s softball coach, being on the board of a youth baseball/softball league, gardening, taking care of a household with 4 kids & was happy & fulfilled. The last 10 yrs have been extremely difficult because I was diagnosed with a rare autoimmune disease, fibromyalgia & neuropathy which is debilitating plus last year I was diagnosed with degenerative spinal disease with fluid pockets on my spine with herniated disks! I’m on gabapentin, pregabalin & duloxetine which helps me somewhat function but causes severe brain fog that interferes with my daily life & still deal with pain!! I’ve been getting epidural steroid injections which are a bandaid & my back Dr is saying surgery is next if the injections don’t help which they aren’t really. I’m terrified of having surgery on my spine so I’m looking into finding a holistic MD to try alternative methods. I don’t like taking opioids but I have asked for them but just for when the pain is so bad I can’t sleep & none of my drs will prescribe any unless I see a pain management specialist but the closest one is over a 5 hour drive from where I live!!
The opioid crisis has MD's performing abdominal surgery and sending a patient home with 5 lousy vicodin tabs. I am a R.N. that graduated in 1991. Seen all of med/surg pains, and lung patients coughing and so short of breath they were ordered morphine nebulizers. We were taught to medicate pain and now the pendulum has swung the other way. My husband has had chronic pain for 25 years and his meds were cut to the point that instead of being able to do normal things, he's stuck in bed 20+ hours a day, from his severely undertreated pain.
I'm also a chronic pain patient from 28 yrs of nursing,( can u say blown discs? Sure I knew ya could!) Also go to the ED 15 yrs ago and get a shot of opioids to stop the 3 day migraines. Now you get IV nausea meds and fluids a that are contraindicated in a person with increased ICP. I actually went home worse!😢
I certainly would not want my doctor to be suffering the way I am when I am sick or in pain. I definitely WOULD like him/her to have an objective understanding of what it is like, how it affects my functioning, and especially its causes and treatments.
Yes, I appreciate the nuance. I'm so sorry to hear about what you have been struggling with though
I have had Neuro pain since 2001 which was improperly diagnosed as FM and I was put on Methadone for 10 years. And that’s just the beginning. I should be the wisest person if experience shows us the wisdom and compassion to love ourselves first and the unlimited empathy for others. I thank you for all your ideas ans what you share with us. Marcie
I worked in a mother/ baby unit at a major medical center in the Midwest. I will never forget how some of the students and residents would treat some of the women. I felt some of our patients were total hero's for what they were doing. Months and months on end. In bed holding on for all they had. I cried as much all day long when we lost a baby. So sad.
I have CRPS, Gastroparesis and a bunch of other iatrogenic diseases. I recently had a hospitalisation due to starvation keto acidosis/ hypoglycaemia and acute renal failure due to dysphagia. I haven’t been able to eat / keep food down for over a month.
Whilst in hospital they gave me a new injury : extravasation of my left limb (both upper and lower arm ) while they let POTASSIUM run into my tissue OVERNIGHT.
I hobbled down from my room in the hospital and sat in the stairwell crying and screaming into my neck pillow.
Thankfully a doctor saw me and acted with compassion. I could have lost my arm .!!!!!!!!!
I have CRPS in both arms.
They should have put a PICC line in.
I can’t trust doctors and nurses anymore.
I’m going to die from something treatable because my trust has been destroyed for the last time.
OMYGOSH! I'm shattered and broken jusr reading this, sweetie!💔 You NEED a patient advocate in the Worst kind of way! Please check with the hospital where you had the surgery. In some cases the patient advocate dept is truly a god-send in helping patients! Praying and sending you a Warm and Healing Hug!!!🙏
Many years ago I had a finger removed and I was given shots for pain, which worked wonderfully immediately.The next day the area of my hand where the finger was removed was thrombing like hell so I asked for another shot but the nurse said I couldn't have any more per doctor's orders but that I could have a pain pill instead.
So I took the pill and the pain started slowly subsiding a little, but then I got sick from the pill and my head started throbbing. I was sick with a migraine all day. They did nothing.
Compassion in practice is worth it's weight in gold. I have been blessed to be the patient of an amazing doctor. Recently, my anxiety got out of control. My Dr. saw me without an appt & and sat down with me and made it a point to remind me that she is always there, even when not in sight.
Oh my goodness! She sounds like such a compassionate healer. I am so happy that you have someone like that in your life 🙏
@@MedicalSecrets Absolutely. How did you know my Dr. is a she?
Thank you for speaking about your experiences! We can feel them speak through you and your approach.
The worst pain for me was/is not strong pain but a pain I could bear without medication...but after weeks of this pain all day every day it was so exhausting. To find a doctor who understands this was a journey. And still it's sometimes hard that a doctor understands but I know better what to say.
Regarding chronic back pain now that I’m older, I postponed a hip replacement and am referred back to the orthopaedic surgeon to sign the consent form in outpatients on the 24th of May. Because the position of the hips has been like that for over a decade now, it’s causing unbearable pain to the entire spinal cord and spinal nerves branching out compromising the internal organs, specifically the heart and worked out why staff couldn’t find anything saying that it’s all anxiety related and attention seeking. It frustrates me.
But at least I found out how to relieve the pain naturally by making people laugh by dark humour. But most of the time because of my brain injury, I say out the wrong thing most of the time and people are laughing at me. I’m laughing all the time and it relieves the pain drastically because it releases oxytocin. 😅😊
Pain during a procedure is not good. It can affect the procedure and the patient! Makes me not wanting to go through another painful procedure.
I’m a chronic pain patient with severe intractable pain, that gets lessened with medication. *I have my spine fused from T4-L1* so basically my whole spine is stiff like I have a board nailed into my back, but whenever I go to see a doctor for pain its as if I need to beg them for help and even so, they’re unwilling to give a therapeutic dosage like they had 10 yrs ago. Now I’m basically bedbound most days because the pain is too great and they don’t give out therapeutic dosages anymore. Don’t get me started on being forced to choose between anxiety and pain- I can either take benzos or opioids but not both any longer. So I chose to help my pain even if my anxiety needs treatment. This world is CRAZY! I feel doctors should have to feel the level of pain we do just so they believe us.
another example..."you've never lost a child". ( death of a baby). Understandable. But I have a mother's heart, and it caused me to work without pay. If researched,support is healing. Trauma is having no one believe you and your team is fighting for your (mine) life). Trauma is very difficult to put anything into words or questions, just like on this chat. You don't have time, but a doc of mine gives me 40 min to an hr visit. it takes that long to get the full story. This can happen with any conversation on occasion. You dove deep into my fave subject I often speak about. You are the greatest!
I wish you could teach doctors how to feel like you, but sadly what you have cannot be taught.
You’re phenomenal
I had Covid-19 and Long Covid I can only talk for my experiences. Many symptoms coming at you once and it does not stop. There are many that have taken their lives. I Was on ventilator 4 months in a medically induced coma. My Doctors and Nurses were superb. I could hear my Nurses and Doctors during coma. I had to learn how to talk to write to walk. I do not put this on here for pity. I share it to help others now. I am in support groups for long covid. I will help with anyone that has family member in coma. For me I can say it helped when medical staff would talk to me.This was during quarantine.
OMGOSH... I have been saying this for YEARS. Doctors and medical practices don't have a CLUE what our chronic pain, or post-op pain is like. Therefore, they downplay it and don't effectively manage your pain. In their defense, the practices that they work under, forbid them to do that. I've always said that certain doctors need to go through the same experiences patients do so they can truly truly understand with a patient goes through and deals with. We are patients, not addicts!!!!
100% spot on Doc! After my first back surgery failed to relieve my pain the surgeon's response was, "what did you do to ruin MY surgery?!" As if I failed him. Fortunetly I found a seperate surgeon who was able to stabilize my lower spine. He made it clear that to much time has transpired for it relieve the pain, but that he would do his best to keep it from getting worse. Which is what I was looking for. After I recovered I turned my focus towards pain management. It's to long of a story to go further,but that first surgeon was a jerk.
Thank you for this video! 😊
I respect your channel so much!! I value your content and how you speak it to us all!
Thank you for the kind comments. I hope you learned something new to advocate for your health 🙏
I really want to try k😂etamine yet worried I will be looked at like I'm crazy. I have more than one ailment. Crohns disease, ptsd from childhood, thyroid disease, rheumatoid arthritis, chronic pain from crohns disease and bulging discs in my back. ive proudly worked in home health/private care and loved my job. It took years but finally i couldn't lift my patients and im mentally and physically exhausted. I've almost given up and just want to be calm, feeling healthy and I want understanding! Please help me dr! ❤😢✌🏻
I have been gaslighted for my pain for six plus years... diagnosed as fibromyalgia. Thank you Dr.K for this ❤❤❤i wish i had a doc like you around just to talk sometimes about my pain..who can see through it.
I wish you were around 😢
Because of gaslighting now i have anxiety disorder 😢
There’s one thing we must all remember about Pain. There is no upper limit. once upon a time the worst pain I ever experienced was childbirth. Later in life. I experienced pain that was dozens of times worse. Knowing that the pain will end eases it considerably.
I'm so sorry about what you've gone through. Anything you could share to help others would be much appreciated I'm sure
Feeling pain is so important. I've wanted to be a doctor for a while, but I've been considering DO instead of MD after my foot amputation. Aside from being rural (where DOs are very useful), viewing the patient in a wholistic way is one of the most important things to me. Along with being compassionate and understanding to each individual situation. It's what I value when choosing my healthcare team. It's what I value for my future in medicine.
Pain gave me so much perspective on the medical field. A doctor who genuinely understands you, or at least tries, is a hard find. I want to be that person for someone one day. You are very inspiring to me in that way, because you seem to be that person for people.
2 months ago i had a leg surgery for varicose vein removal. I woke up during surgery. It was longest and the most horrible 3 minutes of my life. They put urinary catherer without lidocaine, and i felt everything. This was torture beyond belief. The clinic instead say sorry for Your suffering, they gave me tripple doze od midazalam do i forget. I remembered this after 2 months and cried like a baby. I do not wish this to happen to my worst enemy. I wish the anasthesiologist could feel the same pain like i did.
A useful quote about compassion is this by Pema Chödrön:
“When we practice generating compassion we can expect to experience our fear of pain. Compassion practice is daring. It involves learning to relax and allow ourselves to move gently toward what scares us. In cultivating compassion, we draw from the wholeness of our experience, our suffering, our empathy, as well as our cruelty and terror. It has to be this way. Compassion is not a relationship between the healer and the wounded. It is a relationship between equals. Only when we know our own darkness well can we be present with the darkness of others. Compassion becomes real when we recognize our shared humanity.”
I think that the power differential between doctors and patients can serve as a barrier, unless the practitioner is willing to remove it by going out of their way to operate on a human to human basis. Still, that willingness is quite rare, particularly given all of the perks that come with power.
In particular, I would appreciate more willingness on the part of the doctor to say “because I haven’t experienced what you’re experiencing, I can’t fully know what you’re going through”. It’s amazing how much grace I will allow for error when-at the very least-that admission has been made.
This definitely hits home ... I have chronic pain, and I'm in pain every day of my life. I agree that if a person/DR/insurance company people hasn't felt (whatever kind of) pain, they really don't know how the pain is impacting a person's life. They don't know what it's like if they haven't experienced it. Pain from dementia is totally different than, for example, muscular pain or joint pain, at least IMO. Maybe there are DRs out there who really do understand, but around here there are very few.
My husband has hardcore medical ptsd from being mistreated while sick with covid-19. He's also been treated like a drug addict and a drug seeker for the last 20 years though he has fibromyalgia, costocondritis and nerve damage in his leg from the catheter being wrapped around his leg when he was on the vent with covid. He rarely gets anyone to even listen to him due to his cognitive issues due to covid unless I attend his appointments with him. It's almost like he has to have a witness for them to care at all about him.
On the other hand, I have multiple sclerosis and my doctors, for the most part, bend over backwards to make sure I'm medicated appropriately and I don't get treated poorly. Make it make sense.
You, being there With him, is the ONLY Protection he has over NOT getting treated like CRAP again!!
Wow you hit the nail on the head everything in this article is true. I suffer from fibromyalgia, chronic fatigue syndrome reflex sympathetic dystrophy, arthritis, been accused of drug-seeking behavior because I have so much pain issues everything in your article is is what I've been through. I think doctors should have to go through different types of pain so they can understand what we're going through maybe if they went through some of the pain make it better understand what's a patient's going through.
I just wanted to tell you Dr Kaveh, we appreciate you and what you do for us. I am on a continual learning journey, I must say you have given me better understanding.
Three things:
While I do agree u can grow to understand other pain more, there are limits. Even if you have same thing, person experiences, pain tolerances, manifestation etc can make it completely different. This means you always should be compassionate and humble and not try to pretend you completely get it like I have had deadly rmc migraine and person thought experience with light headache made then qualified to understand … migraine pain and symptom really can vary. So education is important but only if it humbles you and makes you understand there is even more you don’t know not give u overconfidence
2. I have several neuroduvergences communicatin disorders etc and this means I have extra Trouble communicating and being taken seriously. Lack of eye contacting, fidgeting, mixing up words, etc often taken up as clue that somebody lying or is stupid for example. Markers of anxiety, neuroduvergences, and being out of it often are what people taught to look in for liar or other negative trait. And communicating can be hard especially if sick or ptsd or cultural or language or other barrier. We need to admit to this abd admit we have biases and admit we may misunderstand or patient misunderstand us.
I also can withstand tremendous amount of pain abd more of certain kinds so this means doc doesn’t take me seriously. I have literally twisted my ankle over 90 degrees from where it should be and they saw it and didn’t think it was serious bc laughing and smiling I. Was
3. Pain is complex it’s not all the same. You can have emotional, itchiness, stabbing, deep, pulsing and millions. Other types. Pain tolerance can go up and down bc of focus mood etc. your resistance ti different types of pain may be different and may be different than others. I can stand great deal of stabbing and hitting pain but sunlight can hurt me so much or noise. But that fluctuates too. We need to talk more about complexity of pain and tolerance
I had a THR in 2007. I fell on my hip post op and X-ray showed all good with the joint. I still had massive pain, I could not drive due to negotiating foot pedals sent pain straight up to hip. This was for four years. When I told doc I was out of meds he put in my chart a drug seeking pt. I then went to pain mgmt, and was treated. Four years to the month I needed a revision, I was squeaking when walking. MRI could not determine what was wrong, they could not even read it. My cup had popped out, rotated 180 degrees and cracked. After a thicker cup was put in was pretty good, but the revision injured my back. Now on cannabis waiting to see what the L hip will do going forward. Thank you for your information. ✌🏻
I'm wishing you the best in your healing journey 🙏
Thank you. Your information helps so many. 🙏🏼
My mom was a physician, a Professor Emeritus of Pediatrics and a Pediatric Clerkship Director for many years, she would joke that in addition to taking the Hippocratic Oath, graduating physicians should be required to have their femurs broken.
My own pain was put down to hypochondria all my life. Finally once I turned 60 I was diagnosed with Ehlers-Danlos Syndrome. I'm a doctors kid.
Yrs ago a pain specialist (anaesthetist) at a large teaching Hosp in Toronto Canada said he had all new residents tape a sml round object (dried pea, pebble etc) in their shoe in same spot for a week. He felt it gave a sml taste of what chronic pain felt like. I thanked him for this. Key is basic empathy and compassion. Any effort to me to incr this in health care as a whole is valuable incl these videos. Thank you.