♿️ MY WHEELCHAIR IS CAUSING ME PROBLEMS
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- Опубликовано: 2 авг 2024
- IN THIS VIDEO IM DISCUSSING WHAT IM LOVING AND HATING ABOUT MY WHEELCHAIR. IM DISCUSSING WHEELCHAIR SEAT ANGLES, AND BROCHURE WEIGHT VS REAL WEIGHT. ITS A REAL EYE OPENER AND MAY SHOCK YOU….
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After suffering my spinal cord injury i have really had to adapt in life. So Im showing you my disability lifestyle to raise disability awareness. As a disabled woman and a woman in a wheelchair who is paralysed, I thought it would be interesting for you to see, and hopefully give you some inspiration and motivation so that you can live more independently. wether you are paraplegic or quadriplegic I hope that I can help you. The wheelsnoheels message is “so no one has to feel alone.”
I have lots of interesting disability videos, a lot of videos on how to cope with a disability and living life in a wheelchair, wether you are a girl boy woman or man. i have some paraplegic exercise videos, and advice. its important to keep your fitness levels up as much as possible as this can when physically and mentally with depression.
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•this video is just how I do it. there may be other ways which for for you. I cannot accept any responsibility for the actions you take after watching this video. You should always speak to a trained certified, medical professional first before undertaking any new activities.
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I’d love to know, what are you loving, and what are you hating about your wheelchair? Ive been struggling so much with pain, and I really feel my seat position is contributing quite a lot. Hopefully I can get something sorted. I am on the wait list to be assed by wheelchair services. So I will keep you posted.
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Videos to check out next:
How to choose a manual wheelchair
ruclips.net/video/CTrI-QwgTdw/видео.html
Common mistakes made when choosing a wheelchair
ruclips.net/video/3VLGaeLYa3Q/видео.html
Rigid vs folding
ruclips.net/video/l9T2ZtXxXZQ/видео.html
I love the color and the larger than average wheels but I wish the backrest came forward supplementary
I am 6'4" and my feet are set out in front of me quite a bit and in always pushing my feet off, or I have to do many things from the side. That's my biggest hate, I like that it folds up for travel and it's been pretty durable. Thanks for another great video Gem!❤️
Hey double check this post! You accidentally put “assed” instead of “assessed” but I know what you meant 😂
I’m wondering if when they tilt your seat as the front comes up, may take care of your long leg problems with just that change too 🤷🏼♀️
Things I love about my chair: my Frog Legs Phase 2 caster forks and casters and SoftWheels for their suspension aspect, and my cushion (previous cushion caused a lot of pressure sores,) my Surgke LT handrims with thumb guard, my gel foot plate panel for when I am not wearing my AFOs, the height of my back, the fact that it is hard shelled, and foam inserts for my spinal support, my flip down handles (they have definitely reduced unwanted "help" or "kidnapping/moving," how lightweight and responsive it is, the color
Things I am not fond of/don't work for me anymore: I lost a lot of weight due to medical issues and my chair is, simply too big for me now. I can fit a water bottle on each side of me in between me and the side guards, I am sliding all over the place.. speaking of side guards, they are just too loose and flimsy. The legs and tapper are too wide as well and as much as I love my back I need it to have more lateral support, and possibly a removable headrest for my bad days and a deeper bucket. I have since lost most of my hand function, so that I NEED some detatchable power assist (NOT in the wheels, I need the suspension of my SoftWheels and it has to be able to get wet.) My doctor and I tried all the way through the appeal process to get me a Smart Drive MX2+ but insurance would not cover it as it is classified as a "convince accessory."
Gem my advice is simple - do a swap around! Use your NHS one during the day (I assume it’s still upstairs) as this will be have fitted properly to suit your needs. The other advantage is that you’ll get free maintenance and when it’s worn out you’ll get it replaced. You’ll be surprised at how well you can manage the other chair and it will help with pain by putting less stress on your body.
I've had my quicky neon 2 folding chair for about 6 months now, as an ambiltory user I find it great. Its light enough for me to load into the car myself, having removable wheels is a bonus. I do wish I'd had a bit more of a try with a shorter back rest as i do find i want to extend my push stroke back a little further than it allows. I like the removable foot plates as it allows me to get closer into tables and makes the chair more usable around my small flat.
I had a great consultation with my wheelchair dealer who gave me a comprehensive look at all my options and helped me to choose the things i wanted.
I love watching your videos, they are so informative. I wish I'd found your channel earlier, as i may have made some diffrent decisions on the setup of my chair.
I really appreciate your videos like this, as it’s made me realise how unsuitable my NHS wheelchair is! And also helped me understand that I don’t just have to accept a standard NHS chair if it’s not suitable. I don’t actually really use my NHS manual chair as it just doesn’t meet my needs at all, so tend to just use my electric one that I bought privately. But watching your videos has made me realise that I need to get back in touch with wheelchair services and tell them my wheelchair isn’t working for me, so thank you for that xx
Im glad it helps. Im on the wait list for WCS, I think there is quite a back log as you can imagine :( But the sooner you get it touch, the better
When I first got my WCS wheelchair is was too heavy and big and went back the next day. I then had a consultation whit them and got a decent folding off the shelf wheelchair. However i was having problems with it so I wrote out a letter telling them about the problems and detailing what i would like to have and the reasons why, I ended up getting a nice rigid wheelchair. Tell them off your problems and why you need a better chair and hope for the best.
Yup it's definitely worth asking for a review if it's not meeting your needs. Even if it's not been 5 yrs. If it causes pain or isn't providing support etc. Sometimes they can adjust it or add a support. Like they added some foam lumbar support rolls to mine - simple velcro and foam!
Hi Gem, don't forget, rigid wheelchairs are often able to get smaller than foldable wheelchairs, and are lighter!
But they aren't as easy to het into smaller stowage spaces for travel.
@@ChrisPage68 most are even smaller than foldable wheelchairs. Cuz you take off the wheels and the frame is way smaller. The back can be folded flat.
I avoided for soooo long having any kind of additions to my wheelchair like lateral side torso supports, or either side of my hips to stop them flopping outwards too. I thought it'd make me look 'more' disabled. Since getting my powerchair which came with all sorts of options that I didn't even know were a thing like a backrest that 'hugs' me to keep me stable. And the benefit is so huge, defintiely nag wheelchair services til you're comfy and not just comfy in the appointment, don't be afraid to ask to go out and about with some trial seating options before you commit. They have to give you enough seating support FREE! On top of the voucher. My backrest is a J3 and the cushion is super thick to help my long legs and has built up sides and middle to channel my legs. Don't be afraid to make some noise, you can do this!
I don’t have my wheelchair yet (waiting for insurance approval before ordering my first one!) but one thing I trialed that I’m really happy about is a higher, curved backrest. I get a lot of back pain when sitting when not supported, and the trial chair was by far the most comfortable chair (as in, including non-wheelchairs lol) I’ve sat in for years.
I am not in a wheelchair no do I know any close family or friends who are in wheelchairs but I still watch all of your videos
You're always helpful to me in one way or another Gem. This is a good topic for me now as I am arranging for a possible replacement, an angled seat should make all the difference in the world. Not only to reduce the stress and strain on my core region but to keep my lowers from sliding around.
Gem you have a way way of pointing out tips unlike all the PT's/Technicians I've met combined.
I'm finally getting my first wheelchair after one year and half of administrative fight for it. Bit soon to say what I like and hate about it but I'm so excited !
Your channel I've helped me being patient and confident (as one can be) through it. Thank you a lot !
Fantastic video Gem! Thank you so much for all the help you have given me over the past year, you're a great asset to the disabilities world! Keep up the awesome work 👍👍💪💪😁😎❤️!
I have an RGK Sub4 with an ergonomic seat and it is so much comfier than the standard 90° seat, I don't have the pain in my back like I had from the WCS chair. The shear range of options to customise my chair was amazing, including the taper of the frame at the front to support my leg position.
My frame is about 3.5 kg and even with the wheels on is still very light. I love my adjustable push handles too and so far the only thing I struggle with is positioning one of my legs securely on the footplate.
Hi Gem, I absolutely love this video you highlighted some really key points about wheelchair prescription.
As an Occupational Therapist I think it is really interesting that no one has talked you about the positioning points you mentioned. Maybe consider seeing if there is a wheelchair and seating specialist who may be able help you get the position you want with you next chair.
It's also really interesting watching weigh your wheelchair. Most people don't consider the weight of add on's such bags, grips, cushions etc. It can all add up to make your light chair very heavy.
Best of luck for the new wheelchair, can't wait to see what you get.
The fold down handles are a must for me. Reduces the changes of random muppets trying to push me! And I feel like it gives off a more independent look? Im not sure re my back height, it's quite high but then I don't have a good core and use wheelchair for looOoong shifts at work. So maybe good to keep the support!? I struggle most with feet position, I end up sort of on tip toes at times. A friend had same issue also with her Kushall K and said the wheelchair assessment hadn't taken the cushion height into account on measurements. But it means my calves get sore! My favorite thing though is my e-motion wheels, I'm incredibly grateful I got them through access to work!
Just got fitted for my first wheelchair a few days ago I have been waiting years and I can’t wait for the independence it will provide me.
wondering when you getting your new wheelchair. love to see all the process of you choosing and also show other options of chairs too when u go for shopping wheelchair.
Great video Gem. I live in the U.S. so had to convert 14 kilos to lbs....yikes 31 lbs! My rigid with cushion is around 8 kg. First get rigid frame for weight and ride. Lovely difference to folding. You will also love the dump and leg positioning you discuss for maneuverability and stability. Be careful not to get too much dump. That can also lead to problems. Not sure if offered there, but love my TiLite. On my 3rd one and no complaints. Keep us posted!
I also love most things about my wheel chair. I dislike the extended foot plate and would like my feet tucked further back at 90 or less. I am thinking that I would like a lower back but am not sure how my body would deal with it. It is about mid back now thoracic area, and I am an ambulatory user. I love the freedom of my removable arm rests. Sometimes I really need them and sometimes I love not having them there. Also my seat back adjusts and I just love that! I have a ti light rigid frame ultra light. It is light enough for me to lift in and out of the boot of my car. I am looking in to push rim covers. I love yours and I think they would make my daily walks much better. Peace and blessings to you.
I've found that whether you're getting your second chair ever or you're on your 10th, there is always something to tweak to make it a bit better. I definitely have my list going for my next chair. It may be a U.S. thing, but the seating position we typically call the "dump" of the chair. My first chair was a 2" difference in height or "dump" from the front to the back of the seat. I have pretty good core strength as well so didn't need that much, but was talked into a 1" dump for my current chair. I've found that isn't quite enough for me to feel completely secure at speed, so my next chair will definitely be 1.5.
Great video, I spent a day changing the wheel height and the balance point, it's changed my chair completely, the hospital never mentioned it. Oh I forgot, check your tyre pressures it makes so much difference.
This is so interesting and very well explained.
I have a powerchair (Permobil M3). It was my first custom powerchair and it's definitely been a learning experience. I love the turning radius. I have a small apartment and i'm always on public transportation and in small spaces (in non covid times) and I can go into an elevator forward and then turn 180 degrees so I'm facing the door and it's easier to get out. I had a scooter before this and that was a BIG change. I'm actually not loving the suspension? I feel like it makes the ride MORE bumpy. I'm wondering if a front wheel drive chair next time would help some of that. The flip back armrests are great if I need to pick something up from the floor or I'm transferring in a tight space but they have this weird quirk of sort of starting to cave in if you put a lot of pressure on them and I have spasticity so there's always a lot of pressure on them. I love the power features - elevate, recline, tilt, and elevating legrests. It really helps with my pain to be able to change position throughout the day.
I'd love to see you do a collab with a powerchair user about the process of choosing a powerchair!
i've driven front wheel, rear wheel, mid wheel (6 wheels) and a powerfootball chair, for suspension and turning I'd reccommend the mid wheel drive although i did like my permobil front wheel one :)
Loved this video SO much! Absolutely brilliant with so much useful content for people looking to get their first chair or even their next one 👍 I’m waiting for my third chair and my seat position was one of the things I discussed at length. Not sure I’ve got it right but we’ll see. Mine is adjustable (Kuschsll K Series 2.0) so at least I can change it if I need to. I’ll keep an eye out to see what happens when you speak to wheelchair services. Well done again, great video!! 👏👏👏
Im so glad you enjoyed it. Im sure one day ill get the right chair lol
Gem Hubbard you are so right about think of the seat position.. an OT is best to look at you to evaluate your position for your seat to work right! I live in the US but I think from the sound of it OT's work the same.. I am a long time fallower first time to comment :) I have been disabled all my life with cerebral palsy.. Can you do a video about how to have a car, but also getting government help with the chair? My Chair is paid for but how do you have a car and still insurance pays for your chair. Sure enjoy your videos my new friend :)
I don’t have a spinal cord injury but because of how tired my body gets very easily from my EDS, I prefer to have my wheelchair pretty much set up as if I didn’t have full core stability, I sit pretty angled because it’s more comfortable for my hips and pelvic area along with conserving my energy as the chair itself helps me stay upright. I also have tapered front of my chair because my hips and SI joints can’t really handle it when my legs fall out to the sides which they do if I have a full width footrest unless I sit and actively hold my legs together or use a belt around my thighs... But omg is your chair heavy! I have a Panthera U3, so rigid frame, and mine weighs around 8,4kg or so, and I think that’s including the standard wheels (I have Spinergy though) and with the chair in it’s standard off the shelf setup with push handles and anti tippers and side guards so as far as I know, the only added weight is your cushion. I have tried a Panthera X which is their carbon fiber chair and it does indeed weigh about 2,1kg when lifting it in and out of a car, and about 4kg with the wheels on, then of course add cushion, it’s indeed super light and I call it the paper roll for a reason lol As far as I’m aware today, Quickie Xenon is the lightest foldable chair, supposedly weighs about 7-9kg with the wheels on. I’m personally no fan of foldable chairs because they feel wobbly, I prefer my wheelchair to be as solid as is humanely possible so solid frame and reinforced y shaped footrest (which is also required for FreeWheel anyways) is my thing, had foldable footrests for a while on my first chair and even though the chair was a rigid frame, the footrests made the whole chair feel wobbly and the footrests felt like rabid bats under my feet. Panthera X was amazing to try, but I’d personally not want to have one because they’re super sensitive to impact on a small area so should you fall backwards you could crack the whole chair, or if it’s dropped while taking it in or out of a car etc... It’s very sturdy when it comes to getting around and such and twisting motion and such, but cracks like an egg from blunt force or even just from doing a pressure relief and putting a bit too much weight on the footrest while doing so... I just wouldn’t feel safe having a Panthera X for that reason, even with being ambulatory, I’d be rather screwed if my chair breaks in such a way where it can’t even be used at all. At least with my U3 which is in metal, it’s easier to fix, it can still keep its structural integrity even if something might be broken on it (depending of course what and here and how badly) and it’s less likely to just crack like an egg or snap in half compared to the X. Oh, one thing you might want to look at for comfort: foam wedges on your backrest! It’s a game changer completely! I have them on my U3 and it helps so much along with my seat dump, before the wedges I would kinda fall to the side a bit when tired, with the wedges I sit a lot more straight and it feels more like the backrest is safely cradling my back (and that’s another thing I do, I sit quite deep into the backrest so it really supports me and isn’t just a stop on the back that prevents me from falling out of the chair backwards. I should try to make a video about my wheelchair someday when I’ve washed it a bit, right now it’s so muddy and yucky I don’t even bring it further into my flat than the huge Devlon doormat I have just inside my door, if it hadn’t been so dirty at the moment I would have likely used it inside right now as well because I hurt my knee pretty badly last night and putting weight on that leg is painful and feels wobbly since even with a knee brace on :(
I'm very pleased with my catalyst xv5. I'm an ambulatory user. I had to buy mine outright because insurance would only pay about $135 chair. Everything on my catalyst is adjustable or easily replaceable or customizable. It's only 18 lbs, without the wheels and foot plates, but with casters on. I'm going to buy food spoked wheels that accept bike tires and new hubs next month.
I looked online at the chair. It looks like you should be able to adjust the height of the back of the wheelchair to increase the dump so it isn't at a 90 degree angle anymore. Where the axle pins go in looks like it may be able to be moved up, which will allow the frame to lower. May be able to help until you are able to get one that works better for you.
Thank you so much
@@Wheelsnoheels So my wife does this on her chair. The front wheels are in the lowest holes, the back wheels are in the highest holes, thus giving her a bit of tilt. However, you should also be aware that it has two effects. It does make the chair more stable--I can push the chair at a fair speed over rough ground and it won't tip her over on her face. On the other hand it makes the chair harder to turn, because the chair "wants" to be in the casters backwards position. If she stops without applying the brakes the casters turn 180 degrees and the chair moves backwards a few centimetres.
On another note, you might be able to get inserts to hold your thighs tighter. Again, my wife has this (and other inserts) on her chair.
I'm currently shopping for my next chair, priorities stem from problems with my current chair and are:
weight
transportability and storage
adjustability (Centre of gravity, footplate height because sometimes ya girl wants to wear heels)
customisation options (colour, pushrim type)
durability/warranty
actually fitting me properly rather than being 2inches too wide on both sides and an inch too deep
I am disabled and overweight. I got overweight from the depression over losing mobility. People always assume it's my weight that has me bound to my chair and that one day I'll walk again. A video with any advice on how to talk to these people or how to exercise or diet properly with a spinal injury would be great.
Hay check out this other channel called Wheels2walking. He has some work out videos that may help: ruclips.net/video/VXf32thaXlI/видео.html
For a more gentle start Yoga with Adrien has some seated yoga 👍🏻
Things I love: Its Super easy to fold, very light, and VERY pretty.
Things I don't love: its manual, the rear tippers stick out but I am not experienced enough to go without, and i dont have much lap so it feels like there is no where to put stuff. (,my belly is too big for your basket in lap trick.)
Hello Gem
If you are ever thinking of replacing your manual wheelchair, I can highly recommend "RGK Wheelchairs Ltd". I have been a client of theirs for a long time, and I am currently using my third RGK 'chair. They are very helpful, and they know what they are talking about. Most of their consultants who do the initial measuring and fitting of the chairs are wheelchair users themselves. The company customer care, attention to detail, and aftercare is the best I have ever experienced. The company is based near Wolverhampton, but they have reps who (under normal circumstances) visit you for a consultation and measure up at your home. I have to check what arrangements they have in place at the moment.
Take, for example, the chair I have now. It's a custom measured, rigid frame chair with a folding backrest. On delivery, I discovered a significant mistake in one of the measurements, which was enough to cause significant problems. I discussed the issue with the company, who accepted their error, and agreed to replace the frame free of charge. The result is that this is the best wheelchair I have ever had. I completely rely on my wheelchair for my independence, so this is very important to me. The rep I dealt with is amazing at his job. If you would like his name please let me know.
One important detail that you might find helpful is that there is the option of an ergonomic seat on this chair. It's brilliant! It creates a slight bucket in the seat, that pushes you back into the seat slightly, and improves your posture. This is a great relief for back problems.
I will advise you that these wheelchairs are not cheap (these things never are, right?) My chair came in at around £4,500.
They offer a couple of extra lightweight options, one of which is called the Sub 4. This is (on average) a chair with a frame only weight of below 4 kilo. I personally have a slightly heavier titanium frame (a Maxlite), but it suits me well.
I hope this is helpful information. Seriously, this company is excellent, in my humble opinion.
Definitely second that. And my Tiga FX fits into an overhead locker in an aeroplane! My advisor from RGK was excellent. Attentive to all the details you picked out in the video
I can't recommend RGK enough! Before Christmas I got a sub4 and I was having some discomfort with my foot plate when pushing and they came out and adjusted it for me. You could also get a assessment from RGK they come and access you at home
Hi Gem thanks for the information sat Hi to the family have a day love from TEXAS
I love my color and lighter than other manual. I love my seat cushion. I love my casters for the snow. What I do not like: back rest, width, height, and foot plate.
as a non wheelchair user i enjoy your videos i find them informative
Hi gem I know this isn't your normal content but could you do a video about your pets love to see more of them xx keep up the amazing work
I have a Tilite; my APT was so mindful of my scoliosis and my hip dislocations, and he made the recommendation right out the bat for a lower seat dump. The downside is that I have to put a lot more effort and be a lot more cautious with my wheelies, because I'm much tippier with my weight in the back.
He also recommended a seat cushion with the legs sort of pre-molded into the contours (the middle of the seat is higher to create a separation) to keep them in place. Something like that might be good for your legs, Gem. Mine is the Acta-Embrace through Permobil, which I believe does sell through the UK!
Thank you, Ill look into that.
I love the colour of mine and that it’s comfy to sit in but I struggle with the weight of it and dislocating my shoulders every single time. Love the foldable handles too. Actually looking at a power chair but haven’t found a way to transport it
I’m not a wheelchair user but I love your videos 😊
I completely agree with your assessment of your chair. I did SO much research on mine for fit. I had 2 ill fitting chairs before my current one. I got front seat taper with a V front down to 10 inches and it DOES hold my legs in a much better position. I also have 90 degrees on my leg position but in order to get that I have an 80 degree front angle. It really does make my chair super tiny and WAY more easy to fit places and reach things. I do have a good dump to my chair and feel like I'm sitting IN it and not on top of it, supports my upper body well. I also have a solid back on my chair, about the same hight as yours. The solid back I have is a Roho Agility ACTIVE back. It wraps around my sides a bit and I feel like you would really benefit from that as much as I have. I do have a Tilite ZR which is likely heavier than you would want but it is a fantastic chair. I wish I could post a pic of my chair and my positioning in it. I am actually quite tall and thin like you (and have EDS also)!! I LOVE helping people make decisions on new chairs so if you ever want to chat about it (I' in the US though) maybe you can hit me up. Not sure where to leave an email for your to reach me.....?
Thank you so much. Yep I definnatly would like to look into a better back rest. Like you said. You can always email me some pictures if you like. gem@wheelsnoheels.co.uk :)
T-10 para 36 yrs (in US but love traveling). It looks like you can adjust to get dump. Lower back ht, raise front ht, or both. In any event try to experience before choosing. new chair. I personally like big dump, it makes chair feel like extension of my body. Note that rigid is usually lighter than folding, but still compact with pop off wheels and folding back. I also love Smart Drive power assist, especially on cobblestones in Europe. I am 73 but very active and independent. You likely cannot get taper seat in folding but narrowest width possible + contoured seat cushion and keeps my legs together. Having your legs as tucked as possible helps with backbreaking leans and tight spaces. Good luck, but always something!
I’ve been looking into wheelchairs a lot and RGK make a foldable rigid wheelchair (tiga fx and octane fx). Their order forms discuss all the issues you are describing.
Same goes for the Küschall Champion SK (different mechanism though).
Not having side guards! One of mine was broken on a plane after I had it for days, so it had to come off. I never got round to replacing it, I ended up removing the other. I've literally never caught clothes in the wheels. Dirt has been a little bit of an issue, but if I think about clothing more carefully it is manageable.
What I love about my wheelchair is that it functions. What I do not love is that I got it for free from a dumpster and so it is not adjusted for my body, it is actually kind of broken, and I have no way to adjust it or fix it, as my insurance would only adjust/fix a chair that I got from them, not from the literal garbage.
RGK do a sub 4kg frame, even with the add ins (wheels etc) it is still massively more light than others. My partner uses a quickie helium which is light but the rgk is incredible, also it’s really easy to steer/manoeuvre. A folding chair is always heavier than a rigid, the height adjustable handles add a lot, as opposed to the fold down plastic ones. We are DEFINITELY getting an RGK next, they are a great company that’s owned by a wheelchair user and also most of the sales people are wheelchair users so they fully understand the options and reasons.
I got the Montion Composites helio A7 I like it. I also got a new power chair last year.
I made quite a few mistakes with my first couple of (self bought) chairs... but thankfully that meant when I finally got seen by WCS, I actually knew what I was talking about - and they listened! Up here in Scotland, we don’t have the voucher system, so it’s basically take what you’re offered, lol. Thankfully I got given a purple Quickie Argon 2, which I love. I don’t think it has very much of a seat bucket, but I can still walk a little so that’s okay.
One mistake I did make through... they measured my leg length while I was wearing my AFO on my left leg. I don’t wear it all the time so I ended up having to raise the footplate later on. I’m not sure what the solution is though... if I have the footplate lower the left leg’s fine, but if it’s higher and I’m wearing my AFO then that leg is higher up 🤦🏻♀️
Both my feet tend to ‘bounce up’ and refuse to stay flat on my footplate. They default to pointing down like a strange ballet move. The AFO stops one leg doing it, but I don’t really want to end up with two AFOs! At the moment I just resort to glaring at my legs and telling them to behave 😂
I think OT’s and Wheelchair Services should have a mock frame they can adjust while you’re sat in it. I heard you mention a tapered frame, if you have long legs (like me) most frames do not support that as option. When I had my passive chair I had the foot rest at a larger angle and had really bad knee problems (I have CP), I now have an active chair at 90 degrees and 84 degrees dump on the seat to backrest which is helping my posture so no more back and hip ache!! The only thing I would change for next charge is the frame material, I’d go full carbon, but my Kuschall K2.0 frame is pretty light already (7kg + 3.6kg for wheels), so might not be worth the price hike.
I am going through the process of getting another wheelchair right now!
I love the ride of my current wheelchair (TiLite Aero Z) and I love the colors. I think the seat angle is good too. What I don't like is that I have a rigid backrest that is way too high (T11 injury), I feel like I'm forced to lean too far back, and my legs are unsupported because the chair is too wide for me. It's also extremely heavy, and awkward to put into my car by myself.
You sound like your in a similar situation to me. I hope you can get somethig sorted
I got a private one from Bromakin a k-series 2.0 and they were absolutely amazing. All the staff came out to look at my 90 degree seat because they thought it was so weird and got me to try one with quite a bucket and it was so much better!
It’s absolutely perfect for me and I think just having knowledgable people talking me through the options and letting me try absolutely everything they had helped. I’m grateful for the WCS one but I really feel like it was a rushed job and you can only ask for what you know about.
I use Bromakin too 🥰
My wheelchair with all the junk I carry is over 32 lbs. This can vary at any time. I think I got it right the first time. As a t10 complete i sit in a bit of a pocket, my feet are straight up and down if not tucked in a tad. I like my turning radius as is. My backrest is very similar to yours, possibly and inch or two higher as i have a tall torso. But i never feel uncomfortable as is and i can reach around just fine. At one time i felt i was getting a bit tired, i couldn't wheel like i usually do. One day i had to go over a small bump and noticed my front wheel didnt spin. Odd. So i checked and found both of my front wheel bearings were near frozen solid ! After replacement it felt like i had a new chair! So opposite of you, i actually like my chair and do not want to replace it. It's a quickie gpv model. Course it is steel and I'm not exactly a lightweight. So I push a lot. I have mentioned this before but the one modification I did was switch to spinergy wheels or rims. I was stunned by the change in the way the chair feels and rolls. As if I was wheeling a 2 pound chair. Also, I have to have my pipe like removeable armrests. I rely on them a lot for learning way over to my left or right or just as armrests. I have no idea how one gets by without them. Hope you find what you need...
I went from quickie helium to rgk octane sub 4 this year. Jesus what a difference. Frame weight from 9.5kg to under 4kg is massive.
Ive heard fab things about that. So in total with wheels etc, would that be about &-8kgs?
I have an RGK Tiga Sub 4, and before that I had a folding Karma Ergo Live - the difference has been like going from a hatch back to a sportscar! I love the weight of my RGK chair, it has prevented my joints dislocating as much. I also love the bucketed seat as it feels so much more stable, and I also love that it has been custom made for my body so it looks and fits great
Oh that sounds fab, thats exactly the type of thing I need
@@Wheelsnoheels I have a fixed frame, but you can get ones that fold so you can put them in plane overhead lockers, they're so so good and the reps are wheelchair users themselves, so they just get it
I've got a Quickie Qri aluminum rigid chair in candy purple colors (paid out of pocket). I'm only a part time chair user so my experience is limited. I was on my own with measurements and chair options, also didn't get to demo any chairs. Considering that I did do pretty well with getting a decent fit on the first/only shot.
One of my side guards got heavily dented during transit, so I did have to fix that myself with a hammer. I'm only about 5'2"/158cm standing, so I'm much lower to the ground in my chair with 22" MAG wheels. I might put the some cash away toward spoked wheels. My backrest is just the standard upholstery, so I might also invest in a rigid back. Next time I might shorten the depth of the seat by about an inch just for the little bit of extra room behind my knees. The frame is about 22 lbs/10kg maybe closer to 30lbs/13kg with everything attached.
No push handles since I don't like being pushed, but I might reconsider later down the line. The backrest folds down, so transporting it isn't much of a hassle, even more so since most people I travel with own trucks/vans.
I do really my chair so far, just small adjustments I could make to make it even better. I also thought about getting light up casters. If people are gonna stare, might as well make it fun right?
I absolutely love having a lot of dump in my wheelchair (butt so much lower than knees) it absolutely makes me feel more secure and I stay upright when I'm relaxed. If you want to test out what level of dump you want you could try what I did with my first chair and just build up the under knees portion under your cushion with a bit of triangular foam or even folded towel. I did that to get a feel for what is comfortable for me and it was super helpful in being able to show my seating specialist that yes I really did want that severe a dump I've already used it and its excellent for me.
Thats a fab tip thank you
My next chair, I'm getting a bigger dump and a titanium instead of aluminum frame - I need it lighter, and we've already increase the dump as much as we can in the chair I have, and I still feel like my legs are sliding forward off the chair, and I fall forward if I relax. Thankfully, I'll be getting a new cushion and backrest soon that ought to at least somewhat alleviate the problem (Roho quadtro to "increase" the dump, may end up getting a wedge to raise the front of the seat even more, and Java backrest because it's tall enough for the support I need but the shell is short enough that it won't get in the way of anything, since I'm really short, and probably a shorter seat back frame because my handles are too tall the way they are), as well as getting a footrest that's actually the right height for me (the one it came set up with was far too low, and I'm in the process of getting that remedied).
I love the color (TiLite's ocean blue metallic), the monotube frame (a dual tube actually wouldn't even come close to fitting in my vehicle, and the fact that the center of gravity can actually be changed (my first two, it couldn't, which really messed up my shoulders). I also love that the width and seat depth are perfect for me - all the other chairs I had used, the seat was way too deep and either too wide or too narrow, so it was constantly digging into the back of my legs and forcing a continuous posterior pelvic tilt, as well as my clothes sometimes getting stuck in the wheels, and it was parallel to the ground, so I could never keep anything on my lap without pointing my toes big time to raise my knees. I really, really love finally having a chair that I can tuck my feet back while them still staying on the footplate, as opposed to only my toes still being on it when my feet were where I wanted them. Also, I really love the luggage forks I got on mine - I still have yet to use them for a suitcase (the last time I flew was September 1st, about 3 weeks before I got my chair), but they have come in handy for lots of other things, like grocery and laundry baskets.
I still have yet to weigh my chair (TiLite Aero Z, my first custom chair built specifically for me), so I'm not entirely sure how much lighter it is than my last one (Ki Mobility Catalyst 5 that I inherited from a relative), but my last one was 33.8lbs, so approximately 15.3kg, and my current one is a fair bit lighter - enough to notice, but still not as much lighter as I was hoping for.
Your tips for choosing a wheelchair and mistakes to avoid videos were insanely helpful when I was preparing for my very first seating evaluation back in July, because they gave me quite a comprehensive list of questions/categories to address at the evaluation itself (I went into my evaluation with about 6 pages of notes addressing various components). So thank you for that.
I will also be able to get a new wheelchair this year. I'd like the chair to have a lower backrest (current one is breast spine high) and the axis of the pushing wheels will not be directly under the backrest. I feel more comfortable having it below my thighs instead of the butt. It also sounds very interesting to look for an other dump. Unfortunately, I will have to stay with a folded chair as I own a Chair Topper to get around with the chair in my car.
I’m a L2-L3 and was put in a quickie2. I have been in it almost a year......I just ordered a new chair. I used a totally different company this time.
My chair in today is 12.5kg I like that mine is strong and has cool design on the front as it is a Ti lite like how it drives but wish it folds more as it is rigid frame and wish it was also lighter by a few kg.
Yep we all have dreams of getting a uber wheelchair, then realise we made mistakes and added on a ton of weight. When i got my wheelchair from WCS I got to try out several wheelchairs and talked to the people and reps etc for 2 hours getting the wheelchair just as it wanted it with a few changes. Then had another hour with them when I got the wheelchair making sure it fitted, even had it checked out and parts replaced due to a car crash with no problems. Now it fits like a glove and has been bombproof.
I had neon 2 since summer 2017 it been ideal but the footrest and breaks haven’t been sturdy as I use my foot when I need to get in right and put my pants up but I’m getting a rigid tilite t very soon.. I prefer rigid than folding as rigid are sturdy enough
I was born with Spina bifida, never needed a wheelchair until a few years ago, and I have to say, I am shocked by the weight of your chair esp with the high-end wheels. my latest chair is a mid-grade chair, it started at 14Kg, and I stripped as many parts off as possible; gotten it to 11.8 kg, and hoping to take it down farther with new wheels.
A lot of things come with experience. Just shame such an expensive experience. lol
I have a Q700m Sedeo Pro powered wheelchair. I like most it but I really dislike the gap between the seat cushion & back cushion. Also do not like the fact the centre mounted footplates won't stay up they keep falling back down. Also the weight is pretty annoying at 205kg. lol Really difficult to transport and of course the price tag (starts at £7000 plus. Mine £11.5 thousand but I haven't got like sip & puff etc which really expensive.)
What I like: spider trac 6 wheel suspension, gyro stability, the speed, mid wheel, very easy to use on public transport (not planes too big for planes lol)
We have NOT liked the removable side guards my husband has on his chair as they are tall like yours. We have to detach and store them when flying, when packing the car,... so we plan to go with a much lower, folding side guard on his next chair.
He has enjoyed his "Natural-Fit Handrims" as they fill the gap between the tire and the handrim so your fingers get caught less often. The material also feels more pleasant.
I find his tiny plasticy scissor breaks loud and hard to unlock, so more to come on that.
Thanks for what you do!
- Jordan, Birmingham AL, USA
I definitely need to get the wheelchair service out to do some maintenance and change some stuff.
Wanting my handles up one inch (for people to push me).
It's definitely slightly too large - it's my first chair I assume they added a wee bit extra space thinking I'd gain weight, despite it meaning I can be more active (when covid isn't a B).
I dislike how soft my back is though, I have had to keep fiddling with the tension of it.
I'd definitely get a bigger bucket on mine as well. I think it's only 4° but I definitely at times feel I need a bit more.
I definitely want side guards instead of my handles because the amount of bruises I get from my arms... Omg
Biggest bug bear, the velcro straps on my back, come out from under the fabric so if I'm bare armed I get scratched up from it. And if I wear wool etc I'll get stuck to it.
I definitely love my chair it's a folding chunky boi but there's a few things I'd do differently when I get a new one.
I have individual foot plates and at a big angle out because my knees freeze otherwise.
I'm currently on the waiting list (have an appointment next week) to get e-motion wheels. Which will hopefully help me pushing.
Im glad I did some research before i had my appointment to get my chair. I think I managed to get it comfier than I would have without the knowledge.
But I definitely didn't know what i wanted/needed until a few months after I got my chair. When niggles started to become grudges against the chair.
I hope you can get them sorted. Im still waiting for WCS. x
Looks like your rear seat height can be lowered, so that the wedge increases. Your back should be more supported with that too. It took me 2 years to get the right adjustments, and measurements, but it makes such a big difference! And no one told me what the best measurements were, I just had to figure it out on my own. I have a Quickie Helium, and found it to be my perfect first chair to figure out the best seating position. What helped me get familiar with my chair, was just to take it apart bit by bit and see what each component is for, oh and the manual is pretty handy too...
Thank you, Im sure shauno will enjoy tinkering with it...
My most common complaint is the side guards coming loose and pushing against the inside of the wheels! Now I’m a big guy, and I get that, but the chair fits well from the manufacturer and shouldn’t do this! (Quickie argon 2)
After thirty-three years, my current chair has the back measured properly. My five previous chairs were all too narrow and too tall when the therapists measured for the cushions, while the wheelbases were too wide.
Wcs said there wasn't much choice ,so I ended up with a standard self propelled chair,which was sooo heavy...after struggling for 3yrs,I had another assessment and was told "oh we dont use that chair now as the wheels are too far back and cause back pain!".
New wcs chair is still clunky looking but I wasn't told I could get anything else :/
people always assume that the weight given on a product is the actual weight, it's the item plus accessories
Hi I am new to your RUclips channel I do really love it I do understand you exactly I am in wheelchair awell so how are you doing today and is it ok to ask what days you uploded so I can look out for it I hope you doing well
My wheelchair weighs 24 kg. :| It doesn't feel easy or safe popping full wheelies, but ok just lifting the castors enough to get over obstacles. I feel that weight going uphill...
It is generally robust. The arm-rest supports are a profiled shape rather than round tube; would make fitting any accessories more awkward..ltd what I manage to buy on 'leboncoin'. It took me 18 months to get any allowances...it's about 8 months now since I asked for a powered chair..still waiting. Fortunately strong corticosteroids have given me a bit of strength and endurance back for now; though my condition seems generally progressive.
Feel your pain so much being MISSOLD a 'lightweight chair'. Now I grant you my upper body and hand strength has probly improved over the years, BUT.... long story short, learning to drive in my twenties, purposely requested a lightweight chair, otherwise I was never going anywhere in my car on my own was I?... got a 'lightweight' chair, passed test soon after; had the forethought to do a tester in 'safe circumstances' before risking getting stranded, got my dad to put my chair in the car. Drove a safe distance away from home, with assurances I would see him shortly when I came wheeling home, to give him my keys to go and get my car... already long story short, had to ring him in the end, so breathless I was practically hyperventilating!... think I had got as far as disconnecting one wheel; which was wedged on my foot!
Hi Gem, do you think when you go through the process of finding your next chair will you share the journey in a video ? ❤️
Yes for sure I would. :)
The back doesn't necessarily neds to be at the hight of the injury unless you're a kid still growing.
However the position of the seat plays an important part, the more flat the seat is the more imbalance you can have with sitting.
My seat is higher on the front than back so I'm always positioned well against the backrest for stable seating (unless I'm deliberately slouching).
Just about everyone I know, and there are many, have low backs.
Yep, I think I said that in the video. It doesn't necessarily have to be at injury hight. Its personal preference. 😌 Thank you for sharing your experience with the seat position, this is something I am looking into changing.
In the Netherlands few wheels are made with a 90 degree seating, basically none for paras (including Spina Bifida and Cerebral Palsy) unless you disregard everything and force the manufacturer to make it 90 degree.
Most are between 5 and 10 degree hight difference between the front and back so that gives you something to work with I hope.
And don't forget the soft roll casters for your next wheels. Between the seating angle at a few degrees and the soft casters hopefully you should be a bit more comfortable.
My feet are now so bad I cannot bear to put them on my footplates. A few weeks ago my powerchair had to go to the mobility shop and I was given a spare powerchair with no footplates. I have asked the mobility company to look after my powerchair until my feet are sorted out.
i bought a lightweight wheelchairs that my wife could load it into the car/van we are using that day. the only issue that i have noticed is that the wheels seem hard to push than the heavier one had borrowed from my inlays. i have looked into getting some aftermarket springer (sp) wheel sets to improve hopefully the ease of pushing the chair. are yours aftermarket or did you boy them with the chair?
they are kind of pricy.
1:12 It was actually in the other corner, but I'm sure we can all see it.
I have a Top End Terminator. I like it for inside, because of how light and maneuverable it is, but for outside I do not like it. I feel too...vulnerable...?
From all my research it seems users are forever chasing a moving target. Most disappointing is that health care, insurance and governments treat wheelchairs as this item that should be an all encompassing solution. So begrudgingly in their minds you only need one every five years. (In your case) Do those folks walk in the same pair of shoes for five years straight?
I just watched a vid on HOC chairs and the users experience getting one. It was very informative.
Im the 6'4" wheelchair user . Its so hard to find a good wheelchair for my 38 inch inseam (good for nothing) legs . I dont do the hard skirt guards because I , too , like to do a full wheel grab when needed . I get the soft cloth skirt guards . I had to have my back above my level of injury (T-11) because there is no bone on the outside of my spine there and it is very susceptible to heat or cold . I prefer spoked wheels to mags . I do with someone could make a brake that doesnt stick out from the frame , Ive hit my thumbs on them too many times .
I use the Jay 2 active cushion . It holds my legs in place and stops them from flapping around . Im a complete para
Compact scissor brakes are completely out of way when wheeling.
@@susanborsky9436 I had those and they broke in the first 3 mnths . Got the new scissor brakes and they stick out from under the frame
Dear gem . So sorry that you are having these problems . I have noticed that your back rest is very short . Also that you don’t have recliner foot and leg rests . If you had a longer back rest would that improve and help with your waist and hips . Also having recliner foot and leg rest reduces the risk of thrombosis .I’m in a wheelchair and have both of these things .However you do risk having a heavier wheelchair . You don’t seem to have any neck support. Love your blogs and vlogs . I hope i have helped . David foster .
I love my seeting ancle: it goes down and then it ends at 90° if that is understandle. I love how the frame comes close together by my legs: like you said, it keeps my legs together. I hate the handle bars. They are not straith like yours but they go out a bit. So I bump in to thinks. i hate the folding backrest. Well, I don't hate it, I hate that after half a year it starts to come loose. I have to let it repair every year and thats not ok. But it's the only way it will go in my parents car so... If your interested: its a tilite tra. Hope your able to reed my English.
I have a TiLite Aero Z and don't know the "true" weight but my brother can lift it (wheels and cushion and all) with one hand. I plan to bring it to my doctor's office which has a wheelchair scale on my next appointment. I do want Spinergy wheels instead of the TiLite Shadow.
It's 35 lbs
I have just a ordinary clinical will chair that does not give any support for my back I have degenerative disc disease as well as arthritis in my lumbar anthracitic I also have arthritis in both hips I have multiple sclerosis which is why I have a wheelchair so honestly I like a wheelchair that actually fits my body and offers back support lumbar support and is easy to get in-and-out of my vehicle by myself
I have MS myself, my first chair i got was just like yours and ti went back the next day as been unsuitable. I wrote a letter saying what the problem's where and what I needed and why. I ended up with a ridged chair built for me, a Qukie Life-R ok not a superduper one but it fits like a glove and easy to use. Talk to your OT, PT and WCS about it and get a better chair.
I think the lighter the wheelchair the easier to push theory isn’t correct. I have 5 wheelchairs. My first was a 300 lbs power wheelchair that I hated from the moment I got it. Then I got a basic hospital type manual wheelchair, which was awful but better than my power wheelchair. Note: I have very little grip strength, but with gloves and the right hand rims I can still self propel my manual wheelchair. Then I got a TiLite TRA, then a TiLite ZRA. My current wheelchair is a WCMX (full suspension) Box Wheelchair (a sport wheelchair). My Box Wheelchair is heavier than either of my TiLite’s, but it’s easier to push and more comfortable to sit in all day. Having a little camber makes it easier to push, but if you go with to much camber your wheelchair is wider and harder to get through doorways. I like a lot of seat dump, legs tucked back, 4° camber, a very low backrest, and no push handles (I hate when strangers try to push my wheelchair), but I do have a SmartDrive that I control with the Switchcontrol Buttons. I was also told to keep your shoulders in alignment the longest finger on your hand should be able to touch the center of your back wheel when your are sitting in a full upright position. I have impingements and tendinosis in both shoulders due to my rear seat height being to high on my first TiLite wheelchair. Permobil (TiLite) has a free to download manual wheelchair setup guide that goes over all the different adjustments for ordering a custom manual wheelchair.
I am a powerchair user, I do not like the weight, it about 170Kg, so when I am in it, I have problems with the cheaper lift or lightweight ramp that is only rated t about 200kg. I also like the weight because the COG is very low, so it very hard to get it to fall over, powerchair is not fun if they fall over. as you need a few people to get it back upright.
I like your wheel chair pink is one of my favourite colours It reminds me of bubblegum. I was like your personality everything your hair everything you could be a mom to me. In a good way. What’s your cats name in the background please? House cats are my favourite animal.
Thats why I don't add a bunch of accessory crap to my chair.
Thankfully she doesn't have a bunch of accessory crap on hers. lol
@@ecologist_to_be Those handrim covers? Usually a couple of bags too. lol.
First of all let me start off by saying I love your videos I live in America my name is Caleb I’m 6‘6“ tall I’ve been in my wheelchair for four years now and my wheelchair is now extension of my body and I just don’t even really think about it one thing I would say I don’t love about my will chair is the fact that I feel like it’s too big for me it’s like they just assume since I’m a bigger guy that I needed this massive chair and I often feel my body getting fatigued from having to straighten myself back up in the seat
Gem I think I need new tyres on my wheelchair I have seen some on the market and my local bike shop dealer says he could change it over for me something which needs to happen soon I don’t think they will go through another year,how do you replace tyres on your wheelchair?
I prefer my rigid wheelchair as the frame doesn't flex when I go over uneven ground. And plus I'm 6 foot tall, so the standard chairs don't fit me.
My ot got me my custom made chair that has 26 inch wheels as the standard 24 inch wheels are far too small for me to get a good push. Due to my disability I need to be sitting up quite high, so this helps a lot.
I'm up for renewal and my doctors want me to get either a power pack or something like your baetec, and I was wondering, are you able to set up yours yourself, or do you need help?
When you say "set up yourself" do you mean attach the batec to my wheelchair independanly, before I go out? If thats what you mean, then yes I am, its so easy and you dont need a lot of strength. There are three vids on my channel all about the batec showing how I attach it. Its amazing btw. life changing. :)
@@Wheelsnoheels that sounds great
what the brand wheel chair u use???
My crutches weigh exactly the same! 3 or 4 kilos.
Hi Gem, as always, a good presentation. Just one little suggestion. Using a ring light is not recommended for people who wear glasses. Makes weird reflections. I saw a video that recomends the lighting to be high up, or off to the sides to minimise reflections off the lenses.
Doesn't really bother me seeing the light.
This is going to be my new chair (I hope)
Motion Composites Veloce Manual Wheelchair 43cm 17" width ultra light carbon fibre folding frame, hydroformed crossbrace, hydroformed crossbrace maximizes frame rigidity
Newton Ultra Caster 6" Soft Roll Composite
One Piece Angle Adjustable Flip Up Footplate Angle Adjustable Straight Carbon Fibre Back Cane Clamp On Height Adjustable Push Handle Adjustable Tension Active Mesh Back Upholstery Newton Gravity Ultralight 24" Wheel
Pneumatic HP Tyres
Newton Airgrip Handrims- Fuschia-Narrow Position 14" Full Length Flip Back Armrest
Anti Tippers
WC-19 Transit Tie Downs
think ied like to try a mobility scooter
I’ll start with the fact that I am ambulatory, so I am a part time user. However all of my body is disabled and painful so I need a lot of support like headrest, arm rests, good cushion, etc that makes shopping for the right one really hard.
I love that my wheelchair is comfortable and electric. I have a manual too, but then someone has to push me. My electric is so heavy whenever we travel I have to take the manual (unless we drive which I don’t do well with long car rides). If we flew with my electric we can’t just rent a car, I have to pay for an expensive transport to get my chair anywhere. We try to go to Disneyland annually and it’s somewhere I definitely need my chair, my manual is more painful and I want to see what I want to see. I can’t speak loud I sound like a frog, so I can’t yell out I want to see that. Also the lack of a head rest gets so hard at the end of the day.
I would love a foldable electric with a headrest and rubber tires or at least not the solid painful tires. If anyone knows of one please let me know.
I honestly felt very pushed by the salesman and he didn’t show me any options just the one he thought was right. It was expensive and insurance paid it all so I thought it was good. I was all new to this. I’m half British so I am not good at saying that’s not right I need to see others. I would rather thank him for his time and offer him a proper cup of tea. I’m not good at any of this and not truly knowing what I need doesn’t help.
I also want to say thank you for your videos I have learned so much through them.
when you are able to go to go on holiday can you do a jet2 holidays vlog
There is no way I would be able to manage on a daily basis in my chair if the back rest was the height of my Spina Bifida spine defect. Back rest height and all other issues are personal to everyone
My wheelchair causes incredible pain in my knees.
For controlling your legs, there are things called "adductor", not "abductor". One for each side. Hope that helps.
Thank you, Ive also seen leg straps to hold them together.
@@Wheelsnoheels if you lower the footrest on your chair it will help. You don’t need a strap if the footrest is positioned correctly.