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Live with Dr. Meredith Warner - Fibromyalgia
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- Опубликовано: 18 авг 2024
- Dr. Meredith Warner, founder of Well Theory, discusses fibromyalgia - what causes it, what it feels like, and what you can do to combat it naturally.
For more information about the supplements mentioned in this video, shop our site at the link below!
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Fibromyalgia has robbed me of my life, the chronic pain the tiredness the flare-ups leave me feeling frustrated, ive suffered this for 18yrs i try my best to cope everyday its so hard, the longer this has being going on theres times i can't sleep, i feel hopeless as a mother it really does hurt ive all these things, God bless to anyone suffering from this awful diease, 🙏🌹🇮🇪☘️
@@fionamort5837 ❤️🇨🇦
It is very hard for family and friends to stay compassionate when you have Fibro.
Chronic tiredness and chronic fatigue cause depression in my view, not the other way around . Sufferer for more than 20 years 😢😢
I sure hope so
For me? Add frustration over inability to complete regular tasks because repetitive motions cause stiffness.
I turn down psyche drugs. I tried them but useless for me. I can use understanding, music, even volunteer work to distract me from what is making me frustrated or growing hopeless.
Once I lost my grandmother, aunt, then dad, a great therapist is helping to ease the gap.
Agreed
I agree too! When I'm able to sleep we and have the energy to get stuff done I feel so much better and less depressed
i am a fibromyalgia patient since long times. May I beg Attention to all the fibromyalgia patients according to my experiences ; its a Emotional disorder deasege. Now i am telling about the treatment. (1) Medifation. (2) Exercise. (3) Good relation with everybody.( 4) Be Happy feeling all the time.( 5) keep the body Alkalain, eat organic foods. Socialising, go to the Nature, try to good sleep and lastable lets go we share with each others about our experiences. Need a very good friendship. Thanks
Unless you have Fibromyalgia, you will never understand. You can try to understand and think you understand but no you really don’t understand the pain we people with Fibromyalgia have.
So true Melissa!! My favorite saying: "you don't get it until YOU get it!"
Yes I agree, because we look alright, people think we’re ok. No one understands your pain. The fatigue is awful as well, I know I should exercise, when you’re in heaps of pain it’s hard to get motivated, It’s a bit of a vicious circle. Any way I’m watching all I can on this nasty disease. Take care ,and good luck to you and every fibromyalgia sufferer out there.
100%
I have fibromyalgia and it took them two years to diagnose. I have sleepiness so bad if I don't keep moving I could literally fall asleep standing up. I have almost everything on the list. It's awful because people don't see it and they think your fine. 😢
Wow, your the only person I've heard saying they can fall asleep standing. I do that all the time which of course next is I fall. I've told doctors and nobody has ever given me an answer. Thanks for sharing that.
Take b12 an complex b
Move excercise take an anti inflammotory before going out cbd drops 5mg thrice a day helps knit sew
thanks to Janet G travail in the 1950s she solve the problem of fibromyalgia it is PTSD cured with megadoses of TLCs she also made a monumental statement as she was treating World War II veterans Korean War veterans don't go to war and there will be no battle fatigue shellshocked combat stress dope dealing opioid crisis painkillers no need for orthopedic and neurosurgeons jot replacements hip replacement spinal surgeries prefrontal lobotomies electroshock therapy Dr. Frankenstein-ism sense 1800s when sperm donor started to deliver egg donors babies meaning sons fathers grandfathers delivering their own rape and incest babies in slaughterhouses. I know what to thinking it still blows my mind that it has not been question by anyone except for me so 1st time in history pregnancy is a sexually-transmitted disease fatal to females whereas me Y chromosome testosterone have a built-in natural immunity guess what I can't get mad 1 female to change your mind definitely males want change their minds because we know we are always guilty!
Falling asleep at my com??? 20 yrs old in my dream job ...NOT ANYMORE!!!!!
BINGO !. My very own brother tells me I'm crazy. If he had to walk in my shoes, he'd have given up before now.
I’m 65 & have had OA & fibromyalgia for 35 yrs. Fibro has worsened w/age. In the beginning, my Dr claimed my pain was arthritis. Sd I hadn’t lived w/OA long enough & it was referred pain. Soon after, I took an arthritis class for 6 wks. A reference book was included & at the end it had a small paragraph about fibro. I couldn’t blv it! It was me! I sent back to my Dr w /the book & asked for a referral to a rheumatologist. The rheumatologist listened to me & gave me my 1st trigger point test. He said I had OA & fibro. I pretty much have all the symptoms. I have been on disability since I was 29 yo. There are days, weeks, months when I hate my life. I believe it’s possible the brain could be the cause cuz I can’t sleep normally. I almost never have REM sleep cuz I tend to wake up too soon. Restless leg syndrome is worse than ever. So, that messes up sleep, also. Now, due to dry mouth my teeth are cracking & breaking off at the gum line. I’ve never heard of this till recently. Thank god for antidepressants, as well as pain meds. I’m an organ donor & have asked that drs study my body for fibro after my demise. I will fight this forever. God bless to all.
What causes Fibromyaĺgà?
Who the hell knows what causes fibromyalgia!
You are not alone. I've had it since I was a toddler. It was manageable until almost 30. Dad was about my age too when he developed it. Grandma had it too. Dad didn't get all of the symptoms grandma and I did.
Well, I can do simple things. I just have to be aware of what I am doing. Delayed pain and flare-ups if I do too much. Osteoarthritis hit me at puberty. Tendonitis and Bursitis became a constant threat.
And Lupus. Sjogrens Syndrome. Secondary.
Yes, the flu. A bad case of the flu. Pain level escalated. Everyday, all of the time. No days without pain.
You should see if you are having bouts of Sjogren’s Syndrome. Then can come and go and effects the teeth. Vitamin D and B’s may help. Prayer as well. Good luck.
YoDiva - thanks for the suggestion my dry mouth may be caused be Sjogren’s Syndrome. I take numerous meds, some of which can cause dry mouth, especially the fibro drug Savella. I have problems developing drug side effects from presc. I have tried all the meds drs throw at me, but due to a high incidence of acquiring side effects I have to stop taking them. The side effects have run the gamut, from extreme onslaught of severe depression to being unable to pee. It’s been a wild ride. Thanks again for taking the time.
I’m literally crying as I watch this. I’m 51 and feel 80. I have 3 amazing kids that need an active Mama. It’s daily torture and a huge source of stress and feelings of inadequacy. I was diagnosed about 10 yrs ago and I still don’t know if I believe it. I’m a nurse of 30 yrs. I’ve had 2 spinal fusions d/t DDD. If I work in my yard as I normally would’ve I’m bedridden for days. No exaggeration. I was a competitive dancer of ballet tap jazz…for about 25 yrs. So it’s especially maddening and disheartening as I slowly but surely give up small functions daily. What can I do?? You’ve described me like you’ve been spying on me!! Im stressed. Scared. Depressed (sometimes). Dead weight. Hopeless (most times). Summer is here and this is my time. It’s still hell.
That is such a tough condition and we really appreciate how difficult it can be for those suffering to manage it. We can offer suggestions to help manage the symptoms of pain, poor sleep, fatigue, and stress. It will likely require stacking of supplements to help you find some relief.
Nerve Pain: Our Nervous System Multi is a great option to help support any nerve pain. For extreme cases, we recommend stacking it with Alpha-Lipoic Acid.
www.thewelltheory.com/product/nervous-system-multi/
www.thewelltheory.com/product/alpha-lipoic-acid/
General Pain Relief: Delta-8 THC Gummies www.thewelltheory.com/product/cbd-delta-8-gummy/ and/or
PEA Supplement www.thewelltheory.com/product/pea-palmitoylethanolamide/
Sleep & Stress Support: Delta-8 THC Gummies
If you are against trying the Delta-8 gummies, we have a CBD + Tart Cherry gummy
www.thewelltheory.com/product/repair-cbd-sleep-gummies/
Topical Pain Relief:
Delta-8 THC Tension + Pain Relief Cream: D8, Menthol, Arnica, - www.thewelltheory.com/product/delta-8-pain-cream/
Fatigue and Brain Fog - B-Complex www.thewelltheory.com/product/b-vitamins-energy-gummies/
Brain Booster Energy - www.thewelltheory.com/product/energy-brain-booster/
Stacking is known to be the most effective way to get the results needed from natural supplements. We do understand that it may not fit your budget so if that’s the case, our Nervous System Multi is a great bang for your buck. It has Omega-3, Resveratrol, and other ingredients to support detox pathways in the body.
We always suggest speaking with your physician when trying new supplements. We can’t give medical advice.
5:12
I got diagnosed last week after a horror winter. I feel so powerless and sad. I cant work much, struggle to pay my bills. And there is no support from the government.
I am 37 and it sometimes feels like life is over. I am single and often also think " who would wants to be with me when i am so sick"
Any loving message is appreciated. Xxx
That is such a tough condition and we really appreciate how difficult it can be for those suffering to manage it. We can offer suggestions to help manage the symptoms of pain, poor sleep, fatigue, and stress. It will likely require stacking of supplements to help you find some relief.
Nerve Pain: Our Nervous System Multi is a great option to help support any nerve pain. For extreme cases, we recommend stacking it with Alpha-Lipoic Acid.
www.thewelltheory.com/product/nervous-system-multi/
www.thewelltheory.com/product/alpha-lipoic-acid/
General Pain Relief: Delta-8 THC Gummies www.thewelltheory.com/product/cbd-delta-8-gummy/ and/or
PEA Supplement www.thewelltheory.com/product/pea-palmitoylethanolamide/
Sleep & Stress Support: Delta-8 THC Gummies
If you are against trying the Delta-8 gummies, we have a CBD + Tart Cherry gummy
www.thewelltheory.com/product/repair-cbd-sleep-gummies/
Topical Pain Relief:
Delta-8 THC Tension + Pain Relief Cream: D8, Menthol, Arnica, - www.thewelltheory.com/product/delta-8-pain-cream/
Fatigue and Brain Fog - B-Complex www.thewelltheory.com/product/b-vitamins-energy-gummies/
Brain Booster Energy - www.thewelltheory.com/product/energy-brain-booster/
Stacking is known to be the most effective way to get the results needed from natural supplements. We do understand that it may not fit your budget so if that’s the case, our Nervous System Multi is a great bang for your buck. It has Omega-3, Resveratrol, and other ingredients to support detox pathways in the body.
We always suggest speaking with your physician when trying new supplements. We can’t give medical advice.
@@welltheorybymeredithwarner that is incredibly kind of you to write me this!! Thank you
I hear you, I’m in the same position as your self. I just came across Dr Warner’s video which I believe will help. I’m just finding out all I can regarding fibromyalgia, I’m recently diagnosed. I wish you well. 💕 I hope we can get some new ideas on how to manage this awful disease. And most of all some pain relief.
This was the most informative video that I have seen on fibro in years! I have been on this journey for about 30 years now. I have evolved over the years to embrace a more natural lifestyle. I eliminated medications, walk 2 miles per day and cleaned up my diet. My big takeaway from this presentation is to add the primrose oil and Q 10. Thank-you doctor!
Exactly what I was going to say and yes, thank you Dr. Warner.
Have you tryed gliuithinone or nac do you have hypomobility
I've had great fibro pain relief from taking liquorice tincture. Any studies? I've been able to discontinue all other pain meds... 1:44:32
@@kyracreaney1627 because it lowers blood cortisol but can higher blood pressure though most with this have low
@@Truerealism747 I tried nac, it wasn’t great. It gave me headaches after awhile.
I was told that fibromyalgia was not an inflammatory disorder so this is news to me! Thank you Dr.. I've been suffering for 22 years with it along with chronic fatigue and PTSD but it's ten times worse now and affecting my mind very much becoming scary as well as embarrassing! I've trIed everything and nothing works. I take 6X650mgs Tylenol a day which just takes the edge off and makes me sleepy. Even 50mgs CBD has no effect. I have no family left, can't do anything so I live a lonely life. Doctors haven't been able to help me very much and even tried psycotherapy. Will probably not want to live too long. My heart goes out to all the suffers looking for help.
Have you tryed Q10 magnesium b vitamins glutathione hypomobility? Linked what age are you I've had it since b1997
@@Truerealism747dr said glutamate gives more pain, is it the same as glutathione
Please try to engage in a hobby. In my town, the Library does a free craft class once a month.. which is hard to start when you are already depressed, I know. But find something to live for to distract from the bad thoughts. A water class is very helpful for gentle activity. Childhood onset, and I'm 62. God Bless.
Pregablin is the treatment. PTSD is a neuroendocrine disease. I have that too. Fibromyalgia is caused by mcas. I take Zyrtec Montelukast, Metformin.
@@lauriekline178 I've had mcas but ime not getting allergies now.found out yesterday my irons high in my blood so got to ask my Dr for haemecremotosis test as this can cause fybromyalgia it's pain now worst symptom I have hsd Asperger's trying to get better testing for eds do you have all these things .would it still be mcas without sinus issues and skin issues
I have fibromyalgia but my pain and exhaustion has drastically decreased since I lost 63 pounds by cutting down on processed foods, added sugars, and started watching my sodium intake. I also drastically changed what I drink. Now I primarily drink water, then coffee (black), tea or infusions (no added sugars), and milk. No energy drinks and hardly ever a soda. My fasting glucose dropped from 113 to around 86-96 (although I'm trying to drop that further). My kidneys had taken a sharp decline last year to an EGFR of 59. That jumped to an EGFR of 84 by eating mostly plant based/ lean meats. My energy has skyrocketed. I went from a BMI of 35 to a BMI of 24. My heart rate went from 73 to 59 beats per minute. My cholesterol went from 230 to 188. But I ate too much beef before my last test and it went back up to 215 because of high LDL. I'll try not to do that again 🤕. I have learned that the more I weigh, the more I hurt and the less energy I have. I was told inflammation has nothing to do with fibromyalgia but I don't think that's the case. My flare ups happen if I get really upset or stressed. Which I know raises cortisol and causes inflammation. I don't have a flare up as the stressors are active but when the stress is over. Consequently, my kidney issues likely stemed from too many NSAIDS while trying to fight the pain and from a bout of Covid (since I had a lot of issues that made me more susceptible to Covid). So dropping my stress and changing my diet really made a huge difference in my managing fibromyalgia.
Same, 30 yrs fibro. Healthy diet, stress reduction, therapy around dealing with past trauma and stress huge positive effect. It's a discipline many are not willing to have. Worth it.
Immflamation definitely plays a huge roll. I’ve been on Celebrex but now that I have a fatty liver I was told to stop taking that and Advil and my pain level is higher
Since I can't take the side effects of the drugs, I take 6 x 650 mg Tylenol a day (the max) but it just takes the edge off and of course does nothing for exhaustion.
Let's not forget that children can suffer from fibromyalgia. I've suffered from fibromyalgia and, chronic fatigue since childhood. The pain can become excruciating, anti-inflammatory can help. Though, I have found exercise helps fibromyalgia and, this is recommended to me by doctors.
So sorry to hear you’ve suffered from childhood, it makes me sad to think kids have this debilitating pain.
I am 68 years old. I have suffered with this since I was a child and what you're saying they all say? It's in your head and I tell them of course. It's in your head because your head your brain controls your all your systems in your body and the doctor looked at me and went oh my God I. Guess you're right. I took all their drugs and all their pills and all it did was make me fat and more miserable. I stopped taking them several years ago. I am on a very strict diet and as. Long as I stick to my diet I am feeling better. I do have bad days just like everybody else but I control it better without any drugs. I take supplements and food real food no processed. Thank you for putting this video out you absolutely hit it on the nail
Glad you finally found what works for you!
This video brought me to tears. Your compassion and genuine interest in understanding this profoundly disabling disease inspires hope. I hope you feel the love and gratitude flowing to you from myself and countless others.
Me too!!! I couldn’t believe it. It was like she was inside my body and using it as a teaching tool on the disease. I also have R. A. and even the things she shared on that was spot on. Her patients are blessed to have her. ❤
Ditto!! You can tell she truly cares and understands this mess of a disease. I got it after mono (EBV) 25 years ago & it's been RUINOUS to the life I was building. If only I could've found a Dr. Meredith Warner back then!!
I've had fibromyalgia for over 20 years. As I get older the more I hurt. Flare ups are the worse. I am so glad I came across your video it is so informative. Thank you for this video.
Same for me too .
take 5 to thrive otherwise the neuromuscular decay won't go away unless you help yourself help eliminate long-term pain I've been saying for 25 years
@@needles1975What is 5 to Thrive?
@@needles1975 5 a day?
Fibro is a Neurological disorder. Mine stems from both Traumatic and Mental like abuse, substantial drug and alcohol to self medicate. The mind thinks our body is misfiring neurons which leads to Nerve degeneration. I had no clue until it was diagnosed by a Rheumatologist. Great video. I am a research fiend. Also muscles and tendons may lead to Neoropathy. I have Nerve Damage in my neck and lower lumbar. I have a book about Fibromyalgia and Neuropathy. Not an expert because it presents different in others.
It’s caused by a overactive immune system. Stop storytelling. Immune system runs the brain.
We need a doctor that actually has fibromyalgia over a period of time. I will not watch doctors that don't know what they are talking about. I've read all this in research books!!! Bah! Long term sufferer. I fight every day. At 69 yrs old i am slowly losing that fight. 🇦🇺
For the first time, I have hope! I've had CFS and fibromyalgia (and osteoarthritis, and degenerative disc...) for decades, but have been diagnosed for 11 years. I'll soon be 64 years old and have been so sad thinking my life is nearly over, and here I am disabled, can't tolerate 15 minute car rides, let alone travel or anything fun. And I do mean ANYTHING fun! The diet and supplement advice you give, looks really promising! Now, if I can just keep the faith until the changes kick in... Thank you SO much!
please post how your doing -
I’m 73 and have your same diagnoses for 20 years now. I hate to say this but my pain level increases with every year that passes. The same pain med that used to help does little now.
I have same as you but being through breast cancer with having a mastectomy and now I’ve got a stoma from about year and a half ago in pain everyday like you on morphine and other high meds my body has been through so much I’ve been bedbound since last nov not nice 😢
Just thought I would say hi to you
Hello mature ladies who's bodies have been thru so much, Im in there with you and just wanted to say Hi, you're not alone in having the difficulties. Riding in a car is hard. The driver has the stearing wheel to hang on to plus, their body is in tune with the breaking and rate of acceleration... Our bodies have to anticipate, tense up and balance as the driver turns corners etc. Take pillows to cushion yourself from the hard door and the console really helps me. especially for long rides. The cusion type airplane neck support pillows are very helpful too. Walgreens has a good one for $12 that's supportive and can go in the washer and dryer. I have 3 and wear them around rhe house too. It's better than the hot cervical collar I have to use when I strain neck tendons. I hate it especially sleeping in it, but sometimes it's necessary to jump-start the neck healing. "Biofreeze" roll-on is a good product too.
We're at that age where mass produced foods replaced true whole foods and the environmental pollutants, chemtrails in the sky and the advancement of 5G has increased our load of exposure to microwave and EMF (electro-magnetic frequencies) that are reportedly creating a heavier level of "dirty electricity" like a fog all around us.
Its the cellular phone, devices, modems, routers, electronic pciture frames, smart fridges, devices and cell towers in general that have increased so rapidly. Its hard in the body and we're swimming in it.
Look in to the subject of "EARTHING"... It has to do with being grounded with the earth. Simple things like putting your bare feet in the grass, touch trees, etc... for even 15 mins a day can be beneficial. The more the better tho. We are no longer grounded with the earth as much as we need to be, and again, the GMO foods aren't nutrient dense enough to help us repair properly. We are kind of like the canaries in the coal mines, or the test dummies for this rapid technology. When a body is young it can with stand the assaults better w/o feeling the affects, but I fear the younger generations may be in for a sever problems with lack of nutrition and not enough contact with the ground. There's too much concrete plus the rubber shoes that cut off the contact wirh the earth. Ppl used to work their gardens and spend time in touch with the ground, but all the bending and heavy work (bags of potting soil) digging, weeding, etc, is very difficult for me now. I miss the small gardending I enjoyed b4. Wld love to grow a small veg- herb and flower mixed garden!! Too sick to keep up with it for now, maybe again some day. I love watching things bloom open and weeding is pretty good therapy and gives me a sense of accomplishment. The earth is good medicine.
But if ur not gardening, look into rhe subject of "EARTHING"... People at the beach get the same benefit by walking barefoot in the sand and being in the water... Others get benefits by putting fee, hands, (or body) in the grass or soil. Be mindful of ants especially fire ant hills! Touching trees is like a conduit. Also, limit exposure to microwave and EMF when u can. Maybe put your phone on Airplane mode, or turn your routers off during sleep... its better if your phones and devices aren't near u when you're trying to sleep. I know its hard to do. We need our old school analog clocks and phone lines back, at least for the bedrooms. Digital and faster speed downloads may cost everyone their health. Be aware of the TV in the bed room habit too.. Even when it's turned off it's still recieving a signal. That's why if you live alone or no one will care, u can turn the routers off at night. My husband likes need to sleep with the TV on, so it's not an option for me.
These are some of the types of suggestions when reading about "EMF Mitigation" and "Earthing" topics ... If we have an alarm panic button system and old style clock, etc... maybe we can remove at least some of hours of the dirty electricity exposure.
Sorry this is so long, but I wanted to plant the subject of Earthing here incase it will be of help or interest to anyone. There are good vids and websites on these topics once u start looking for them. Wish you all better days and nights ahead.
Thank you😊
Is this happening in the whole world? Or only in countries with highly processed food? All the chemical pesticides in our food? Chemicals in our cars, couches, mattresses, clothes, drinking cups...? This is a LOT of suffering people!
I wonder why myself, food can be a huge factor while dealing with fibro
I've lost 113 lbs. So far and it has honestly helped my Fibro and CFIDS.
You must be so proud of yourself, congrats 👏🎉
I’m sure weight loss will help me too. Good for you, well done 👍
Why the heck is there so much suffering and so little research for 100 yrs..tired of suffering
Because all food industries and the gmo promots the syndrome 😢
Because there’s probably not enough money in it.
Diagnosed with FM at 19 yrs old;Now 53, I was on high pain meds until my doc retired...went thru major withdrawal but made it😊 Pain was still there & I chose alcohol (a shot of Vodka when I would've taken meds) I now have liver cirrhosis & have been hospitalized most of last year...Looking at a 3 mo to 3 yr life expectancy...FM IS A HORRIBLE DISEASE!!!!!¡!!!
At this point I'd take what I've gone thru with cirrhosis over 30+ yrs of FM!!!!
Are you ok now ?
Thank you for this and speaking out for us who suffer daily.
Thank you. I AM long term suffered of this and often not believed by my own family. It is real crummy disease to have along with systemic mastosytosis. I had a mediator release test run by a Certified L.E.A.P. nutritionist ( yep,very expensive) She wrote a diet and counseled me for about two years. I was allergic to many of the fibro drugs/supplements I was taking. It was the best thing I could have done as my very gifted rheumatologist was needing new ideas. Now, I am in less pain off the long chain fatty acids and avoiding food and chemical sensitive triggers. Next, I am hoping to get a pharmacogentics test run to develop a prescription path forward. Thank you for validating the miserable disease. I think my son is developing this too.
Cheryl
take 5
I had early childhood onset. Allergies galore. Just be aware that between having everything but lettuce and beef totally removed from my diet for many years. I became very seriously malnourished. Along with the Proton Pump Inhibitors, I wasn't even digesting what I did get to eat.
Thank you for this. Fibromyalgia is extremely expensive most of us can’t afford all these supplements and different diets. Most of us don’t work, are lonely because of unawareness. Fatigue I can almost guarantee majority of people have never felt, it feels like you have 10 buses on your body before even get up. There are days I cannot even hold my head up. It is extremely debilitating and that needs to be addressed by doctors in a VERY SYMPATHETIC manner. We lead dreadful lives. I was a nurse for 37 years I am no unreliable, my fibro is unpredictable, sensory overload so even going out becomes a painful experience, crowds loud music, talking overloads my senses even going to the library is a no go zone for me. It would be great if you had a few fibro people with you to explain their pain, all would be different. We can experience numerous different pains at the same time, burning, shooting, knife pain, tingling pinching, nerve pain saying fibro is painful is an understatement intense ongoing pain and where I am at it is constant no let up. I now have adrenal insufficiency heart failure coronary artery disease i have had a left knee replacement, L3,4 and S1 fusion, C2,3 cage. Of course we try to be positive we don5 want to be like this, i have to tell my family how i am feeling so they can help most drs say we just complain all the time but in fact we are making our family aware by communicating. Thanks again for teaching on this and the research you have put into this😊
What an incredible presentation. Thank you for sharing. Living with pain and fatigue is disabling, but high functioning people can hide their suffering well. We have to make decisions regarding any activity is it important enough to lose two or three days of life afterwards? Personally, I managed well until the brain fog became debilitating and that’s when depression became severe.
I hope more doctors watch.
Brain fog came from your medications
Lisa,not necessarily. I got brainfog before I took any medication,more than 40 years ago when nobody knew what Fibro is.
In my experience, my pain was very much connected to facia, our connective tissue. Personally, in 2016 I was in constant pain, had restless leg syndrome and suffered from terrible sleep patterns, extremely stressed, with previous traumas, including physical accidents and injuries. I was far from physically fit, using my muscles was exhausting. I treated my facia through fascia blasting, (there are tools for this, seriously), increases water intake, used far infrared heat, removed foods that caused inflammation, including sugar. This therapy was work, like exercise and hurt terribly at first, but I manipulated the facia, broke up scar tissue which freed the facia from my muscles, nerves and blood vessels. My mobility was improved. I am now super fit, no pain, no exhaustion. I even manipulated the fascia on my scalp, which improved blood flow and helped to improve my memory and my moods. Again I feel like I reversed my age by 20 years or more. I can control pain this way, when I feel the pain coming back, I adjust my diet and get out my fascia tools and get to work.
Thank you, thank you thank you for this very encouraging comment! I have been battling some issues with pain since a work related injury and I’m just trying to educate myself about all the issues as well as the resolutions. I refuse to give up on my health. Iron sharpens iron… so thank you for your insight.
What are the tools you used for the fascia? Did you try soma therapy?
Are you hypermobile fascia problems come with this I've found
@@Truerealism747 I’m not sure what you mean exactly. Hyper noble means double jointed, correct? Are you asking if this causes it or do I have it? Neither.
@@SmartRob yes if you have it yes it's linked to fybromyalgia
Forced to retire from Nursing at only 52 because of Fibro, Degenerative Disc and Joint Disease, among other things, after a year’s wait for an appointment to a well-known Rheumy, he immediately referred me to a Neurologist friend of his who had written 4 books on chronic pain. After trial and error with medications over several months, we found what worked uniquely for me. I had a life again. For three years, I enjoyed my grandchildren, could work in the yard somewhat (my favorite hobby), cook, be a wife to my husband, etc. I had begun to live again!
THEN… the government decided that our medications that brought relief were bad. My Neurologist was retiring about this time, and he reassured us that they would leave us be, as chronic pain patients were well-documented in the need and efficacy of certain meds.
He was wrong. They came after everybody. I heard of wounded combat veterans committing suicide because they could no longer get the meds that controlled their pain. My life was turned upside down. Pain clinics sprung up everywhere, suddenly as a lady in my late 60s I suffered the degradation and humiliation of peeing in a cup, they counted my meds, and the chronic pain community was thrown into a tailspin.
Today, I see an interventional Anesthesiologist and have occasional invasive procedures to keep my chronic back pain at bay. He has me on a low dose med that barely touches the pain, but it’s because the government tells him how to practice.
Where is the outrage? Why did the government get involved? Certainly, some bad actors (both doctors and drug seekers) were eliminated early on, but those of us who blossomed on a responsible med regimen are suffering.
😥Finally this page popped up about what I'm suffering from . My God it is painful. Many of the symptoms mentioned I'm having. My whole body hurts. My fingers and joints are painful, my feet. Back pain now mobility issues. Suffer from fatigue badly. Dont sleep well. I'm peri menopausal. Constant over heating. Have 2 -3 fans on to cool down . And a hernia . I am watching this video but I feel like you have very valuable information about my condition and some solutions.
I’ve suffered from Fybro fo over 30 years About 12 years ago I found and amazing Dr who has helped me so much
What is your doctor's name?
I suffer with fibro😢 about 18 yrs or so 😣 its awful ,osteo arthritis , neuropathy , ibs, brain fog i always say im like dori on nemo but 10xs worse😂 i was taking oxycotin and oxycodone quit taking and it did help with the brain fog and forgetfulness difficult consentrating 😊 i was on that for a long time and honestly i told my pain dr i was just getting ammune to it and it not working 😮 so im glad im off it 😊
Also exhausted all the time
I go get groceries and im just done afterwards , i do however try to keep moving as my oain lessens with movement BUT!!
if i over do it though i begin to hurt badly !! And once i lay down or sit down i feel like a diesal truck ran me over 😢
All i know is i need to write down more of these natural ways as i am trying more natural ways of dealing with this difficult thing called fibro 😢 and flare ups are no joke ,and feeling as if im on fire its just awful😒 i could write a book with everything i go through in a day 😐😣 but im going to try !! To sleep😂😂 anyone who deals with this knows exactly why i put😅😅 because i know sleep isnt going to come quickly and if it does its not very long lasting 🤷😳
For me the brain fog is probably the worst and not sleeping I had septic shock which I was in hospital for three months and after that I started suffering with lots of pain and restlessness leg sometimes I can’t sleep for days even sleeping tablets don’t work it’s been hard lately
I feel the same ❤❤❤
@@sharonjohanna7261 i feel for you ❤️
What a doctor! So well educated and explaining things in an understandable way and not dismissing all those horrible symptoms as "being only in yr head". I believe, in the future there will be a biomarker for this. Until then we must educate ourselves and advocate for our very real and painful situation.
Thank Hippocrates 4000 years ago Janet G Travell MD 1940s ... Wonderful news fibromyalgia is a function of life and living deadly deprivations of life supports and is potentially deadly PTSD Postpartum Traumatization Stress Decay treated with megadoses of R&R's rest restorative tenderness loyalty and compassion TLCs embodied in breast-feeding + thanks to alchemy we have 7 categories mental health medicines which address the mental health neurotransmitter depletions when mothers are under duress.
Serendipity 40 years family Doctor 10,000 families in my care ; mothers and children, grandmothers and children, great-grandmothers and children 10 to 1 fathers and children, minuscule grandfathers and children, >200,000 face-to-face encounters, always knew the cure for cancer was already built-in just requires self-care optimization maximizing built-in wound repairing mechanisms with 5 TLCs per day basic life supports survival of the fittest predator versus prey nourishment embodied in breast-feeding.
Don’t forget you're human, you are not an octopus with 8 arms, you only have 2 hands, arms to legs and can only do one task at a time.
Take 5TLCs per day R&R's don't be superwoman you gonna crash if you don't get off the frontlines and get some help from other family members
Behooves you to take care yourself get others to help Become your own doctors, Self-help, self-care, Self healthcare, Self healthcare insurance all for free treat your own PTSD. self-Insurance healthcare, tenderness, loyalty , compassion , and ingredients cooked into “the cure for cancer”!
SLEEP; 8-10 plus 1 hour naps cure for deadly sleep deprivation.
NUTRITION; multivitamins, trace elements minerals, copper zinc magnesium lithium.
TRUST TRUTH Mother Nature replenishes depleted neurotransmitters; mindfulness clears out all fears, doubt, and drama.
MUSCLE maintenance and regenerative care; walking, stretching, flexing, range of motion, running, jumping, playing, getting down and up off the floor, yoga, dancing, and most importantly Acupuncture Needling!
TIME; Allowing Mother Nature cure-all’s to work her best, while you rest, wake-up refreshed! Smell the roses, watch clouds stars go by, watch leaves on trees way that you; saying Hi!
I had a gastro doctor tell me that I shouldn’t tell anyone that I had Fibromyalgia since it wasn’t a real disease! I was so shocked! He said other doctors would think I was crazy! SMH
I hope you changed Drs ☝️
@dr.Meredith Warner,.. you discribed my whole life.. in a nutshell, from toddler till now.. I’m almost 65. Thank you for this info. Happy dokters know now, it’s sérieux , and not fantasie. God Bless.
I can guarantee you pain is the cause if my depression. I was the happiest go getter ever. I had my son and my body went insane! I loved being a mom and I am married I was by no means depressed until my pain started and I couldn’t get anyone to help me or even take me seriously.
I was recently diagnosed with fibromyalgia and rheumatoid arthritis. Was put on gabapentin and heard horrible things and now I’m scared about taking it but I can’t sleep at all.
I have had fibromyalgia for many decades. I was put on 2400 mgs of Gabapentin. For several years I had unbearable terrifying dreams. I was afraid to even try to sleep. I cut my Gabapentin in half and the dreams stopped. I read about this side effect online and the kind of dreams people described were exactly like mine. So much worse than a typical nightmare. Good luck.
I too was known for my bubbly personality, my sense of humor and passion for life. After decades of ever worsening pain I became depressed and suicidal. I have no hope. I have tried sooo many things. Nothing helps except morphine which I can’t have. I can’t wait to die!
I find heat in a dry sauna helps me loads, it seems to get right to my bones and really helps me sleep better!
Going to a stand up tanning bed helps my Fibromyalgia, also deep tissue massages.
Does fibromyalgia ever cause a tingling along the side of your face, cheek & neck? Does it affect your inner ear?
. Mine is the same but get tingling in feet and arms and hands and numbness.. Told it was flybromygia.. Other problems
💗Thank you for being you 💗 we allllll appreciate your work, understanding and intelligence, but most of all your giving a 💩about us. Sorry, I know that was crude, but if you’ve suffered for years beating your head against a brick wall because you’re not taken seriously, and made to feel stupid, there’s absolutely no other way to say it.
You’re an amazing human being. 🌸
Need more doctors like you. Thank you.
I was diagnosed a year ago and I suffered so long... I am in Canada 🇨🇦. We are lucky that all the tests and specialists are free. I suffered for a long, long time before it was discovered. I still have lots of pain, but: I can put a name on it! I have an appointment with chiropractor tomorrow, he helped and helping a few people who have fibromyalgia... I had a double 🧠 brain aneurysm in 2007... it got worse, but I had it before. I am a strong woman who was going to fight any pain// that one:: I can't.
My dentist was amazed Anda dumbfounded with how much pain I can endure... fibromyalgia is another kind of beast . Thank you for talking about it. I think that I had 1 or 2 things in the test that I didn't have.
Soooooo validating! So much symptoms and suffering in crisis. The fibromyalgia FLARES feel like entire body is in a giant Vise and being tightened to the max. And the Fatigue is a brutal pain that is indescribable. And all those meds you mention, I've taken. So many side effects, either immediately or after a time taking. And now with bad neighbors upstairs and bad apt management, almost no sleep....so in extra hell reality for 2 years. Gabapentin...Great for pain and anxiety, and about an hour later headache starts coming on and intensifying, and find my fingertips pressing all over head to break up pain. Flexeril was great for quite a while for sleep, pain and anxiety....then started causing RLS. Lyrica caused severe rash....then had to take prednisone torture...then daily antifungal from systemic fungal from that, that made me sooooo ill. Antidepressants cause RLS, even with micro dose. Many meds cause severe nausea and joint paint and headaches and stiffness. Cymbalta helpful for fatigue and pain but causes RLS. Melatonin makes me very ill....tried different forms different times. So much to say!! On disability, can't keep up on supplements, etc. Haven't been able to try CBD. I'm always suicidal. Quality of life is hell, but my personality and how I look, people don't understand the torture of Fibromyalgia's symptoms no matter what I say in explaining. I am alone most always. No car is a hell from lack of funds. A poor cat needs me so I'm stuck staying alive. The only thing I can take to be able to walk and turn my head and not have extreme headache and belly bloating etc etc is Clonazepam and Tramadol. Then can only take Ibuprofen liquid gel capsules for short periods and with acid pill to keep from crisis inside. And bladder is affected from not sleeping which makes it impossible to sleep. I have Hoshimotos and Sarcoidosis and a loooooong list of every kind of symptoms. Can't take any form of magnesium because it causes spasms, even in small amount. Can't take Calcium....that is even worse. Exhausted from research for decades. I do try to avoid artificial sweeteners cause I felt it made me worse. I do prefer not to eat most all day. So fasting is good. Plus can't afford everything and don't want to eat, and I'm overweight still. I'd like to not eat at all most the time, but blood sugar ends up making me shakey, so try to eat something nutritional. Positive attitude.....Not possible, but I try. I just broke down and spent some money on me, cause the cat has gotten all the money. I got fish oil and B12 spray by Garden of Life, and D3 with K2 by NOW, and Pancreatin by NOW. I won't be able to keep up with financially affording to continue or get all the supplements you recommend that I know about and have tried. I was tested for Sjogrens but Reumotologist thinks the dry eye and mouth etc is the Sarcoidosis, which I had been diagnosed years ago with symetrical bumps of dark blue red bumps on body, and biopsied and sent to all the organ specialists. Had to take prednisone for months and it was a hell and then had to take the fungal pill again. I finally quit the prednisone and discovered the enzyme serrapeptase when bumps returning. IT WORKED! Can't keep up with that supplement either for skin bumps and Fibromyalgia either cause money. I have to use strong RX steroid cream for skin bumps. I hope this info is helpful for someone. This video was so great! Thanks a bunch!
I was diagnosed with fibromyalgia 25 years ago. The fatigue is unbearable for me. I have noticed there seems to be a correlation between having had mononucleosis and being diagnosed with fibromyalgia!
Me too - never the same after mono
Thank you for this information. It is quite frustrating to obtain this knowledge and not have a doctor who can help you. I bring information like this to my primary care doctor and she is of no help. I appreciate you explaining and providing some items to try to help with the issues. Maybe one day I will take a trip to Baton Rouge to obtain a better, detailed plan for me.
Sorry but many people are being misdiagnosed with fibromyalgia because some doctors can't diagnose correctly.
I was misdiagnosed with fibromyalgia for so many years because some doctors didn't listen to me, nor took me seriously. Nor read my labs properly.
I got finally the diagnosis of Scleroderma. After years of having those tests positive but the rheumatologists didn't read them properly and always dismissed me. 😢😢😢
Please fight and advocate for yourself!
Fibromyalgia must not be used as a diagnosis.
Really??? Ooh whauw
Ciao. Anche a me hanno detto che ho fibromialgia ma qualcosa dentro di me mi dice che non è questa. Ho pensato che potrei avere sclerodermia. Non ho la pelle ruvida ma ho le labbra che hanno fatto decine di rughe e la bocca e diventata più piccola. Lei come si è resa conto di avere sclerodermia? Che esami specifici ha fatto?
@@raditabona4913 The most typical antibodies for Scleroderma are Scl-70 and Centromere B antibody, also ANAS antibodies any rheumatologist should order.
I got too later and scleroderma complete panel which include around 7-9 antibodies but the most common are Scl-70 and Centromere B antibody.
I hope you don't have Scleroderma but if it's the case it's important to be correctly diagnosed and begin as soon as possible treatment.
*It's important to get both antibodies. Scl 70 will be positive for diffuse scleroderma and Centromere B antibody for Limited Scleroderma.
Both antibodies are very specific.
Blessings 🙏🏼
Your so spot on Dr, thank you so much for highlighting all this for people disbelieve you just because you look ok, it makes me so angry
My first symptoms began in the late 70’s-early 80’s. My doctor ran every test he could think of, but nothing showed up, so he declared I had a negative form of rheumatoid arthritis, whatever THAT means….
I had to quit work and it was not considered a disability at the time. By the time it was finally considered disabling, I had been off work for more than the required time of ten years. I have all of the things you mentioned, except migraines. My daughter has Fibro, and she has migraines.
Due to allergies, the only med I can take is Tramadol, which is frowned on, but I cannot make it without pain medication, and many of those, plus any over the counter, I cannot take.
Right now, I am treading water hoping someone will take this condition seriously and come up with a better solution!
I've just began taking your supplements for inflammation. After 5 months of constant pain, I'm beginning to feel relief. Thank you so much 💗
That's great to hear! I may try some, as well. I just found her on RUclips today.
Every medication that has worked , only does so for a few months. Also gluten free, vegan and hrt.
It’s like my body goes into quiet mode and then wakes up when it gets used to the difference.
Whoa, I'm impressed.😁 Puberty really triggered most of my symptoms. Then right around 30, like dad, sleeping didn't calm down the pain. I developed early OA in my teens. Started getting bursitis and tendinitis even though in good shape. Had to stop running at 15 because of delayed stiffness.
Fibro has auto immune markers? Why is research not leaning that way more.
It will be recognised in time .
I was 1st diagnosed with hypermobility, then 2 years later I was diagnosed with fibromyalgia. I can take the pain etc but not the fatigue. I can't make plans because of the fatigue & feel like my life is always on hold.
I know that feeling, I can’t plan or make arrangements, I hate being so unreliable.
I have been living with chronic pain for more than Eleven years has not been easy and I often am feeling alone and lonely as well as misunderstood. Hearing you talk is giving me hope and strenght to someday find a Doc. like you!
Here in Germany it seems like no one wants to help or even diagnose me!
Neurologists say I've to visit a Rheumatologist and Orthpedician for a exclusion diagnosis but I really am not interested in ppl. who are only interested in making currency but are not really listenening and therefore not helping.
I would love to be able to just visit you for a diagnosis. Also the medical insurance company is telling me that I am not suffering enough and that chronic pain diagnosis is not enough for them to pay for meds (even tho they have to by law but that is another fight I've not much energy left for).
Anyways many many thanks for your work!
Most health, peace, love and happiness to each and everyone! As well as most grateful gratitude and agency!
One Love!
Always forward, never ever backward!!
☀️☀️☀️
💚💛❤️
🙏🏿🙏🙏🏼
I’m very thankful for your presentation. It’s so hard here, in the Cincinnati area, to even get an appointment with a rheumatologist. My insurance coverage doesn’t require referrals but every specialist does, more and more. The rheumatologists that work in a local hospital group, university hospital, told me that my referral didn’t matter; my symptoms sound like fibromyalgia and they don’t see fibromyalgia patients! What? Amazing, right? I got really upset about that. My neurologist referred me but that didn’t matter. I tried another rheumatologist and she was ok and referred me to another Dr whose specialty is Fibromyalgia. This next referral…not accepting any new fibromyalgia patients. It’s just a game we have to play.
I have the same problem here in Sal
Ok let me try this again. The rheumatologists here in Salt Lake City, Utah don't accept referrals for fibromialgia patients either. They will only see you if you have rheumatoid arthritis. It is really frustrating. I was diagnosed back in 2006. I had suffered with chronic fatigue for many years. When I was around 22 years old i developed tmj and I was also struggling with depression. In 2005 my mom who lived in Germany passed away. About 6 months later my usual every day pain turned into monster pain. I felt like my muscles had turned to lead and I could hardly move. About 2 years later I finally went to a pain specialist. He prescribed me Lyrica and methadone. The methadone helped somewhat so I could continue working. My pain level usually went from around a 9 to about a 7. I still had to miss a lot of work. Because of FMLA my job didn't fire me. That is until 2017..... the day before my birthday, after 24 1/2 years they finally fired me.
Now I'm disabled, still in pain and it's still quite severe. I'm exhausted, don't sleep well, am still depressed, don't have a car anymore etc. Whenever I asked my pain doctor if there was anything new or if I could do anything else the answer is always no. I haven't watched all of this yet but it is the first time in a long time things make sense. I'm finally feeling a little excited to find out more.
@petrahinkley5489 fired at 24 1/2 years. Sounds like they didn't want you to make full pension (at 25 years) I'd get a lawyer if you lost out. Hope this video is helpful for you. And me 😊 I've suffered the same amount of time. It can be unbearable at times.. Back to the vid 🙏
7 minutes in I realized that several issues were due to my fibromyalgia! I'll be listening for help. Thank you.
Thanks for this video my family thinks im crazy, when they hear me say I hurt all the time
I had a very extreme traumatic injuries and that is when the horrible wide spread pain began and after 12 years of no reilf I was diagnosed with Fibromyalgia, and in my early 20's I was diagnosed with Epstein Barr Virus
The one area of of Fibromyalgia that is the hardest to control for me is the Fibro headaches they can last for 3 to 4 days and they are extremely debilitating.
Hello!! Did your injury happen in your neck?
I have been diagnosed with PFS for 20+ years. Was finally referred to a rheumatologist and he diagnosed me with fibro. I also meet the markers for CFS. I also have OA. Flare ups are getting worst and making me wonder if I am going to get to a point where I will be bed bound. I work two days a week and every other weekend and have started having to call off. It sucks. Pain is 24/7. I have a heating pad on when I am in bed. It still doesn't help. I suffer from ptsd and mild depression. Thank god my husband is awesome and best friend is understanding
I have CFS/ME and i didn't get mine through an illness (well one that gave me symptoms anyway)
I had severe depression and stress from work. Covid didn't help matters with stress (worked a lot of overtime)
I felt my body decline slowly until it just broke and i ended up in a wheelchair, unable to walk without passing out etc.
Totally agree, as a clinician, that CFS is often preceded by a viral infection. Mono is a big one. Great channel. Thank you!!
This doctor is a blessing. The very best video on fibromyalgia. The knowledge and support is much needed. Finally a doctor who cares and understands. And does the research. I will be following her and getting her books.
I was diagnosed with fibromyalgia , by an orthopedic surgeon , when I was sent, by Social Security, for reevaluation. I have degenerating discs and osteoarthritis, too. I am sensitive and have become resilient. I'm not frail. I have chronic pain. I'm having radio frequency ablation for lower back pain. I'm 66.
The best video to watch explains very well. I'm Sr lab medical technology. I'm was diagnosed at 22 years old. Know 56 years old went to 5 different hospitals here Miami,FL no Dr's knew what i had until i saw a rheumatologist But, Dr's don't know where comes from. That is why they don't know how to treat it the fibromalgia is so sad. I am just getting worse. Is very hard for people to understand. Government should give more funds for research. Ty 😊
Dr Meredith, you are the first person explaining all my symptoms and it makes me feel so much better that I am not lazy because I am always tired.
Thanks for your dedication in helping all of us.
I am staying in South Africa and the doctors do not have answers for me.
Amelia De Lange
CBD have proved very effective in treating fibromyalgia but the doctors won't talk about this, they will always refer you to the big pharm med.
Look up albovegateway
...On Instagram, I get mine from them works well for me.
After 30 years of diagnosis of cfs and fibro amd having my own study published in Journal of Musculoskeletal Pain in 2000. I did as a lay person after starting and doing support group at local hospital 23 years starting in 1993. Way before internet. Am so glad you are now promoting many suppliments. I started taking after my own research and they help. In all the years I had been on every drug you can name. They all gave problems or quit working after time. I have severe fibro and cfs. Worse after menopause tho estrogen patches helped from 40 to 55. Now take coq10 and NADH and msm and mg. D with k. Astralagus. All the mushrooms you mentioned. Hyaluronic acid helps alot.Take suppliments liposomal if can works better. Ginseng Korean panax. B- complex and NAC. Lutein for eyes at 70. Sounds like alot but with good diet keeps me out of bed 75% of time. Well worth it. Thanks for info. Most uptodate Info I have heard. Wish ampligen would get green lite. Thanks again.
Earlier I said I was having problems w/my teeth cracking & breaking off at the gum line. I don’t blame fibromyalgia. I take the fibro drug Savella. I also take many others. I think it helps somewhat. However, it causes hot flashes and severe dry mouth. I ‘m sure the Savella is the cause of severe dry mouth. After years of this, it’s taking a toll on my teeth. I’d like to have dental implants , but can’t really afford. Thank goodness the damage is relegated to my back teeth so the missing teeth aren’t noticeable. I used to care about my appearance & wear makeup. But, fibro has relieved my desire to improve my looks. Don’t have the energy to apply makeup anymore. Nor, do I get my hair cut & styled. I’ve gained so much weight over the years that elastic is my best friend. If I sound vain, I don’t care. With fibro, what was once important, no longer is. My uniform of the day is pj pants & a tshirt. I’ve never said this out loud, but I go weeks between showering. You guessed it, I live alone. I just want others to know you are not alone. Fibro robs us of a life we should be living. And if I hear one more person say it could be worse I’ll scream. You’re not alone. That’s all.
I talked to a woman who used to work for the pharmaceutical company who created the first drug used for fibromyalgia. She was saying they had a drug they were trying to use for depression, but it didn’t work very well for depression, so they determined what it worked for, clustered those symptoms together, and called it fibromyalgia! The drug company created fibromyalgia! It was not a diagnosis before that.
Also, many people find relief from fibromyalgia and many other things (arthritis, IBS, UC, Chrohns, cystic acne, eczema, MS, alzheimers, diabetes, cancer, etc) by cutting sugar, grains, processed food, and processed seed oils from their diet. Fasting can also help. The underlying issue with these, and many, if not all, chronic disease is insulin resistance.
My opinion …Drs don’t take it seriously because if you present with pain they can’t find a cause for they class you as drug seeking …or making it up to get drugs
Or we are labeled as hypochondriacs!
I just found your presentation today and it is one of the most informative I have seen on Fibromyalgia. I have been experiencing what was diagnosed as Fibro since 2009. I was diagnosed with AIHA and CLL (Leukemia) in Aug 2008. The course of treatment for the AIHA was large doses of steroids which did resolve the AIHA problem. As for the CLL, I was put in a Watch and Wait category, receiving my 1st treatment in 2013. However, after being treated with the steroids in 2008, I found myself in pain that I had not encountered prior to my diagnosis and treatment. I don't know if the steroids triggered it, or was it a traumatic event for me emotionally? Of course I was surprised with the diagnosis but I didn't "feel" traumatized, etc. In January 2009 I struggled to walk and even get dressed due to the pain. Then I found my current doctor who diagnosed me with Fibro and prescribed injections of glutathione with ATP. After 6 months of injections, things were much improved! However, in the past 2 years, I am now 73, things have been getting worse. While my CLL is not "active", it is still a factor. I have tracked my pain level and my corresponding WBC, which is often near or slightly higher than the upper limit on my CBC tests. Once my WBC count gets to around 12, my pain level and other fibro symptoms increase until I can get my count down, with or without antibiotics, usually Amoxicillin. So, there appears to be a correlation between the pain, etc and the increase in WBC count.
I am really interested in trying the supplements to see if they can help. Thank-you again for educating us. I wish I could make an appointment with you! Do you do virtual/telephone appts at all to discuss the supplements if one has any questions or concerns? Of course, I would pay for the visit even if my insurance didn't cover it. Thanks again for your great advice!
Dr. Warner does offer telehealth appointments if you live in Texas, Mississippi, or Louisiana.
Wow, Joyce, my wbc has been all over the place. When it gets to between 13 and 15 my body and mind are just sooooo exhausted. Why have NO doctors told me my wbc could be up because of fibromyalgia? This is insane. Your post has made me feel so much better because when my wbc is high, my imagination takes off. This just makes matters worse and more exhausting. Thank you. 😊 God bless.
Please try suppliments I have been on all she mentioned for over 20 years they do help, not a cure. I have degree in Health Education and fibro and cfs for 30 years did get way worse after menopause. Start small and work up give each 30 days to help every day! If not will not get the desired response from them. Cant just take once and awhile must commit to taking them. Keeps me out of bed more then half time I used to be down and out alot. Got both at 38. Was formerly active and in Air Force. Good luck hope your having a good day.
YES YES YES!!
That is me!! 11 yrs ago I went to Cleveland clinic in Cleveland Ohio and seen a Rheumatoid doctor and she prescribed Cymbolta and in one week my pain went away, but migraines was still terrible. I started lyerica 2 times a day. It was helpful. I have bad days on occasion. Lymphnoids are inflamed on and off. I recall having Hepatitis 34 years ago and took antiphiron for 7 months and I have never been the same. I overcame Hepatitis, but have so much going on I do well to push myself to accomplish what I do. please help me. I am getting meds to get me through, but I believe I'm getting worse and my family doctor is just medicating me.
hello you take lyerica no help you Please tell me
So many heartbreaking FM stories - I don't know how so many doctors continue to poo-poo us away!! My son starts med school *this week* and if his school doesn't teach this well, he got a good education from his MAMA!
Dr. Warner first let me say that you are, in my opinion, one of the most intelligent doctor's on YT. I can honestly say that my fibromyalgia was triggered by a traumatic surgery outcome and it also triggered PTSD. Whether FM may be latent in the body and brought on by stress or trauma, perhaps we will know one day. Thank you for your intense research and humbling desire to help your patients and people in general. 💕
Thank you so much for your kind words!
The very best presentation i've seen...yes i have it and will try the many suggestions. I also have hashimoto's and a vestibular schwannoma (which may have an inflammatory component?)
Thank you!!
I did hyperbaric oxygen helpful therapy it was the most helpful thing I have done to help my symptoms
Thank you so much Dr Warner. This was very helpful.
Very informative. Rare that I come across much new info. One thing I wonder is if you have considered that some people actually have Ehlers-Danlos Syndrome. You did have several mentions about connective tissue and EDS patients deal with many of the same comorbidities. Especially, the most common form, hypermobile, which has not yet had its gene(s) isolated. Is this something that you have done any research on?
Going to be 88 soon enough so if I get to 90 without a wheelchair I'll be o.k....
Lot of traumatic events but I smile and people say I do not react at all since I am smiling.
I look very vibrant when I feel like hell. I was always told I was special but I am average. People notice me and approve. Affirmations help us all.
I was once run over by a truck and I just stood up brushed myself off and acted as if nothing happened.
I DO NOT REACT.
I often wonder about that lack of emotion to the most extreme stimulus.
Supression of emotions at an early age?
Am almost totally deaf.
This my story. I’ve had fibromyalgia since my teens. This is real and a curse! I did have a diagnosis. My family and current Dr does not believe me. That alone will cause depression. I’m looking for validation. This is NO JOKEIm 60 years old
Do not worry about validation We have all been told its in our heads -do what you need to do now --to lessen your pain Change your lifestyle There are many things you can control Trying to change what people think is not one of them Look after yourself because no one else will
@@lisamac8503 I hear you. I get by. My sensitivities are great. My upper back into my neck drive me to feel like I’m a lunatic.
I don't think anyone that doesn't have fibro believes it's real
Very good information Dr.
I was in a bad car wreck more than 50 years ago, it left me with bad fibromyalgia
You're Awesome! Thank You & GOD Bless you for Caring!
I have re-watched this video 3 times. I cried so hard the first 2 times. I'm in michigan and feel like I have been a number and not a person. So wish I could just have 1 appointment with you.
There is no way I can exercise or I will be so sore and inflamed that I cannot move for 2 days !
This was a wonderful presentation. Very enlightening
We're glad you enjoyed it!
, I wish more Drs would be as interested in fibromyalgia as you are . Thank you . 🙏
Me too 💕
15 yrs here diagnosed with fibro, I am on no medication but do take vitamins , eat organic foods , little to no dairy, low carbs , very little refined sugar I eat berries , no sugar alcohols, no white bread, flour, cookies, crackers baked good unless I use almond flour, I avoid all bad oils, no alcohol, I try to eat all Whole Foods . Yes intermittent fasting vitD3, fish oil, vit b1, vit k2-7 and CoQ10. Cinnamon, ginger, turmeric, magnesium. For pain epsom salt baths and or magnesium supplement, hot
Cold pack therapy , chiropractic when needed, CBD THC HYBRID , very rare Advil use. I do have a lot
Of pain after reducing inflammation however
Die to costochondritis which is scary .
Dx at 20. 45 now. Last 5 years has been debilitating. Bed ridden. Hypersensitive to EVERYTHING. SIGHT, SOUND, SKIN, TEMPERATURE, THOUGHT, EXERSION, ANXIETY, ETC..
That is such a tough condition and we really appreciate how difficult it can be for those suffering to manage it. We can offer suggestions to help manage the symptoms of pain, poor sleep, fatigue, and stress. It will likely require stacking of supplements to help you find some relief.
Nerve Pain: Our Nervous System Multi is a great option to help support any nerve pain. For extreme cases, we recommend stacking it with Alpha-Lipoic Acid.
www.thewelltheory.com/product/nervous-system-multi/
www.thewelltheory.com/product/alpha-lipoic-acid/
General Pain Relief: Delta-8 THC Gummies www.thewelltheory.com/product/cbd-delta-8-gummy/ and/or
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Sleep & Stress Support: Delta-8 THC Gummies
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@@welltheorybymeredithwarner Thanks so much for the suggestions.
I’m a medically retired RN. I have had fibro for twenty years. I also have a rare asthma. But only in the last few years. Have I received any help from doctors for my fibro. They often try to take me off my amitriptylin. I’m on a small dose. But that helps so much more than most things. I gave up getting any real help with it. Thank you for the information. It was all helpful.
Thank you for watching!
I was just recently diagnosed with fibromyalgia. However, I also have psoriatic arthritis and osteo. So you can absolutely have autoimmune disease with fibromyalgia. It is a much different overall widespread pain that I have with just the psoriatic or even the osteo. Mine was triggered by several major unexpected surgeries. One of the surgeries being traumatic causing PTSD. Within 6 months of that surgery, the fibromyalgia symptoms blew up.
I have been diagnosed with fibromyalga and psoriatic arthritis. I am 66 years of age and just retired. The pain and lack of energy have changed my whole life...do you have any recommendations? I'm onto my 4th lot of medication to try and find something that helps. 😢
@@lisalangford6468 I apologize, I just now got notification of your comment. I'm sorry that you have to go through this too! I'm also in my 60s. I'm very sensitive to most medications, and most NSAIDS cause my legs and feet to blow up. However, there's one called mobic. I do better with that but I can only take it 3 days a week because of kidneys. I have not had any luck with most dmards. The mobic really does help. And I also just take Tylenol. Some days I just can't do much of anything. Other days are better. I try to take advantage of those. I'm not technically retired, but my husband has health issues and I have to also take care of him. I find the heat and humidity really aggravates my symptoms too. I hope you can find some answers!
Thank you so much for replying. I am now taking CoQ10 and Evening Primrose and have found huge relief with this. Fibromyalga is such a debilitating disease and when you add arthritis it is a life changer. I wish you well and hope that you get some relief and happiness ❤️
@@lisalangford6468 Aqq
I am so relieved by everything you said about Fibromyalgia, thank you!
I wish I could go to you .But ŵe live in South Africa.
I have ĺong history. Don't know spesificlý. It feels like my whole life.
I am close to 63.. i have tried everthing, but I still suvere pain and totally tired. Yes, we have a swimming pool It we could heat it . But it is very expensive. So I have no way of exercize. My warm bed , medication and heat . So I cannot go into the pool. I am mostly in bed!
I am on a stricit diet also ; I suddenly have Diabetics and
OSteo athritis..My doctor thinks that is it started. If I could tell my history , you might understand
But I will not do that to you.
My Gynecologist was not good.
My second and last baby I gave birth "naturally".She was 10pounds.
I had a epidural that did't help and actually made it do much worse.
I coudent go in labor myself with both babies. I was given every meds, before things start to happen. It was very long. My baby went into distress, so I had to turn on Oxygion for hours. By the time things started , they couldn't help to get her to move. In the end staff started pulling her out. The Gyni still missing... He was just about there to stitch me up.
Ï was in terrible pain and keeping on bleeding. After going to several gynies , They found how badly I was totallý torn apart.
On the age of 29 I had to go for a hestorrectomy, they tried to fix my bladder , Colon , and tried to make me a vagina.
Sincr then I had 3 prolapses and back for surgery
I am trying to not let it happen again. But Had to go for a colony etc. Because I kept on being constipated bleeding. After that I was sent for more tests; MRI's and more. They then founded that my colon was totallly stretched out.
We think it is due to the fact that my pubic floor is basicly gone. And there was nothing they could do about it.
I suffered severe pain.
So.after years with excrutianig psin My dentist did a x-Ŕay and found that I had no joint and every nerve and other tissue was gone
I was refered to a surgion. He did cut my face open almost the way
It is done for a facelift.It was the most terible things I went through.
Good to hear of your positive information. Stay strong
Thank you! This covers it very well. Hope we get a cure soon . Gentle hugs to all with fibro and or CFS .i believe trauma has a lot to do with it.
I have started on GlyNAC then looking to go on Benfotiamine and maybe other supplements to see if that might help, though do I have Fibro or is it in my head? May I add Dr Warner is very well informed we need more of these Doctor's in the World!
Thank you for the medical information. Much appreciated.
Im here to tell you from experience when you have fibromyalgia if you get some of those so called shots that supposed to block or stop pain those shots make your pain a lot worse
Hi Nancy, would that be a steroid shot?
Extremely helpful video!
Dear Dr. Merideth
My pennies worth being a UK citizen, my experience with myself was shoulder and neck pain or maybe discomfort. Visited a physiotherapist to try and relieve what issues I had, during the procedure the physio brought up 'fibro' this was about 10 years ago. I was very sceptical having never heard of this condition until then, still sceptical today as I was diagnosed with health anxiety. In a nutshell I suffer from Depression and Health Anxiety and the reason being here is as of today I have be suffering from severe Headaches, pain in the arm similar to Tennis elbow, mood swings, tinnitus, difficulty sleeping and lethargic for most of the day. Anyway I am due to see a Neurologist to hopefully rule out anything wrong with my headaches, my headaches feel at some point my head is going to explode.
Thank you.
First how do we find doctors who want to and can help us? And second, how do we get around all the insurance gate-keeping? I've been sick off and on for 6 months. Had Mono in 1977, but not allowed to rest/recover. Can't remember the last time I slept for long than 4 hours in a stretch. Sleep disturbance is high.
We would recommend looking for a Functional Medicine physician in your area who would be willing to work with you on natural means of managing your pain.
www.ifm.org/find-a-practitioner/
Wow ! Thank you so much for the information. It helped me allot!
I have chronic shoulder and neck pain. I believe it's because when I was young I was good at gymn😢astics on the bars, swinging all the time.
Another cause for my pain is that I slouch which obviously puts strain on my spine.
Thank you for your caring knowledge.❤❤❤
Tender points are no longer used for diagnosis (as of 2021), although many physicians still use them, ACR uses the WPI (wide spread pain index).
I've had it for 20 years , and you have to get really good sleep, eat healthy foods , and drink a lot of fluids . Joint aches , muscles are sore , feels like you have the flu , I have a terrible immune system that exaggerates, goes overboard on fighting my illness and actually makes me seriously Ill 😢
Wow, so much information that’s great thank you so much
Had Epstein bar virus 16 years ago when I was 43....yes 43 lol, but, it took me a year to recover. As soon as I started getting out and around again, fibro symptoms showed up. My doctor took two years before he diagnosed me with severe fibro. I am 59 now and I can say this is a confusing and difficult condition to have. An incidious disease. It is so difficult to not have a doctor think that one is hypochondriac. I mean I have to care about myself and make sure that something "new" isn't something serious. The doctor who diagnosed me did not think that, but, others do though.
Serendipity 40 years family Doctor 10,000 families in my care ; mothers and children, grandmothers and children, great-grandmothers and children 10 to 1 fathers and children, minuscule grandfathers and children, >200,000 face-to-face encounters, always knew the cure for cancer was already built-in just requires self-care optimization maximizing built-in wound repairing mechanisms with 5 TLCs per day basic life supports survival of the fittest predator versus prey nourishment embodied in breast-feeding.
Don’t forget you're human, you are not an octopus with 8 arms, you only have 2 hands, arms to legs and can only do one task at a time.
Take 5TLCs per day R&R's don't be superwoman you gonna crash if you don't get off the frontlines and get some help from other family members
Behooves you to take care yourself get others to help Become your own doctors, Self-help, self-care, Self healthcare, Self healthcare insurance all for free treat your own PTSD. self-Insurance healthcare, tenderness, loyalty , compassion , and ingredients cooked into “the cure for cancer”!
SLEEP; 8-10 plus 1 hour naps cure for deadly sleep deprivation.
NUTRITION; multivitamins, trace elements minerals, copper zinc magnesium lithium.
TRUST TRUTH Mother Nature replenishes depleted neurotransmitters; mindfulness clears out all fears, doubt, and drama.
MUSCLE maintenance and regenerative care; walking, stretching, flexing, range of motion, running, jumping, playing, getting down and up off the floor, yoga, dancing, and most importantly Acupuncture Needling!
TIME; Allowing Mother Nature cure-all’s to work her best, while you rest, wake-up refreshed! Smell the roses, watch clouds stars go by, watch leaves on trees way that you; saying Hi!
I must apologize for the behaviors of doctors over the past 40 years back in the 70s and 80s when I went to medical school I assumed healthcare was going to be free public health services to mothhers and children, grandmothers and children, great-grandmothers and children, fathers and children, elderly sick wounded handicap disabled drug abused beaten battered tortured shot up doped up Vietnam vets blown up into bits and pieces suicidal homicidal mainlining painkillers methamphetamine PCP Angel dust date rape drug Quaaludes guess what we humans this is animal planet thanks to Americanism females have created an interspecies food chain children at the bottom called infanticidal that our DNA. We kill and eat our babies and by the way it blows my mind that there's only 2 of us get everyone believes everyone is a unique entity and yes we are but we are still 1 species 1 DNA permanently corrupted millions of years inbreeding incest baby killing carnivore-ism cannibalism child cruelty.
theree's no such entity as Epstein-Barr virus there are viruses but we cannot precisely single out the trillions of viruses in around us we are made of this is blue planet we are blue planet we live in blue planet blue planet is us we are what we eat not matter what you think yes we've been bamboozled by our own leaders our own family members don't blame me
@@needles1975 😅