STILL SO PROUD OF YOU DADDY 1.5 K VIEWS so many more on Facebook where I share it constantly. This is also been shared by the Alzheimer’s Association and repeatedly when they go out and just talks and PBS is redness several times. I love you.
He has helped me for sure. My mother was recently diagnosed and I’m just beginning this journey with her. You fathers words of incouragement have given me some faith in what I’m about to embark on. So thank you for sharing this with others to help. I pray he is doing well and send love and light to you and your family. Bless you ❤️
My dad did qualify not to long after this, The morning of his death, I was alone with my best friend, my dad. He donated his brain to the university that he is speaking of right now. Dad gave everything he had while he was alive to help others when he was at this stage he had a friend that had Alzheimer’s and he would take him to lunch and he would have a business card with them and my dad would hand it to the waitress and say please direct all your questions to me my friend has Alzheimer’s, I was not surprised that he donated his brain after his death because that’s who he is. I miss him every day and I visit the site. Often
This scares the crap out of me. What an incredibly brave man. To have the ability to comprehend fully where the road he would be going down would lead him and not be crippled by fear and anxiety is amazing to me.
I'm sure he is.....crippled by fear and anxiety,ur just looking at a 6 minute clip of him talking,sharing this moment of still lucidity and awareness with u....u are not watching him 24.7,u dunno what is happening the other 23 hours 54 mins of the day. Who wouldn't be terrified,when u watch those videos of those late dementia victims,knowing what u will be in 2 or 3 years time.... knowing bit by bit a little more of ur personality,ur cognition is slipping away. No one should have to go through the end stages of dementia,it's cruel and pointless.
@@jemschmidt7893 my family from mother's side has had alzheimers for generations but somehow it has only affected the female sex only. My mom is going to have it if some miracle doesn't happen
@@jont2576 if I get it, I'm going to live as long as I can, then I want to die while I'm still cognitive. so I can at least know where I am and who I'm with when it happens.
Jax Mohnson Truly. I expected this interview to be interesting, but my expectations were blown out of the water. ...Probably better than any of Travis's interviews lmao
My father’s last words to me were I love you too. It was Christmas Eva 2019 I sat at his feet for about two hours saying I love you, daddy repeatedly, and finally he looked at me and said “ I love you too” that meant he heard me, it meant the world to me because saying, I love you and I love you too, was basically the law in our house. Whenever we separated, and we were going to see each other for five minutes or a week, we said I love you I love you too, now this came up at some funny times. There was a period of time when I was a teenager and a rotten one at that so when I walked out the door, I would say I love you in a scream and he would say I love you too, and that I slam the door, seriously it’s funny now because we laughed at it a lot. My dad went sailing with me and went skiing with me and went on vacations with me and did everything with me and the rest of the family under the sea and he was there for everything he helped me get ready for the prom and the winter formal she was just there all the time making sure that I was OK. I was a lucky girl. Sometimes loving somebody so much means there will be a lot of pain in the end, but that was not the case. I kept my promise to my dad. I helped him die, he told me that when I got to the point where there was just nothing but pain he wanted me to help him die. The good news is that in California hospice is very helpful and when it comes to the very end, they took him off of all of his medication’s and put him on Ativan 10 mg every two hours, so at 12 AM I called and they gave him 10 mg at 2 AM I called another 2 mg and 4 AM I called and they give me another 2 mg at 4:19 he took his last breath peacefully and that was on December 31, 2019. I felt my grandmother come for him a woman I never met. My dad described her to me and said that I was so much like her years earlier so when he died, I felt her presence for about 10 minutes and then I felt them leave and I think they went to be with my mother who was getting the news that her husband had died, my husband was with me within two minutes and like I said before dad had gone to UCSD every month to be studied ever since he got Alzheimer’s. So when my mom arrived, the nurse asked what funeral home are we supposed to call and she said oh no no funeral home donis to go to UCSD he’s donating his brain. I was surprised by this I didn’t know it but I wasn’t shocked because it made perfect sense, even after his last breath, he was giving some thing to help others. I’m very proud to be his daughter and it’s painful to have them gone. I feel like there’s something blocking the pain because it should be more but maybe it’s just that I know how fortunate I was to have a dad like him. I have systemic lupus, and we used to make jokes about who is going to make it to the pearly gates faster he won, but when I die, he will be waiting for me. He knows every secret and has forgiven me for all I miss him, and I love him.
Jenna, I'm so deeply sorry for your loss. I cried as I read your story. You're very fortunate to have had all these wonderful memories, even the not-so-great ones in the end. I'm glad you were there with him.
My mother deserves the credit for taking care of my dad for years. Every time something changed. She would change with it, and dad did not go into a home until about four months before he died. She did not want him in a home for very long, but it was safer for him to be in a home at that point because he was so tall you can tell kind of like the picture of him. He’s 6 foot two and in this picture he’s about 220 pounds 230 pounds baby, he just got too tall, and he could not be managed by one woman who was a little younger than he was. She was with him from the age of 17 married at 17 imagine that, and then they said till death do us part they meant it, and they went through some hell. I am one of the ones that put them through it when they were younger and I was a teenager, she’s an amazing woman, and she deserves all the credit for caring for him, and for making sure that he was able to do everything he wanted to do before he died. He wanted to be studied, and after he died, without my knowing he had donated his brain to the same college UCSD, so when they came to get him they said what funeral home is he going to and she said no no funeral home he’s going to UCSD he’s donating his brain and I just lost I cried because even in death he was giving and so was mom right there with him? I am proud to be their daughter I can’t imagine being anybody else’s.
Thank you so very much for sharing. Your mother sounds like a true careblazer and your father a true gentleman (in every sense of the word). Your loving words are a testament to their fantastic parenting. Unfortunately this insidious disease has taken a hold of my father and it’s absolutely heartbreaking to watch. I just hope that my stepmother has the same tenacity, courage, compassion and love for my father as your mother did for yours. Sending all my best wishes from England ❤
Thank you and Jenni and he was my best friend my entire life I was adopted at six weeks and my dad was my best friend then and he was my best friend at 4:19 AM when he took his last breath on December 31, 2019 I don’t know what you meant by your sincere condolences, but I’ll take him because he was such a good guy. When he got diagnosed, he made the choice to help others who had Alzheimer’s you would think he would run away is dead. He join me Alzheimer’s Association in San Diego. He reached out to his many people that he could, he had a friend at church who had Alzheimer’s so we took him out to lunch every week and had a card that he pull out of his wallet and show to the server that said my friend has Alzheimer’s please direct all questions to me. The entire time dad was sick, he would go to UCSD and get studied once a month and made mom promise to take him to the very end until the last six months they came to him when I was a little girl my cat died. I was four and my dad pick me up from school. He said honey we had to put the kitty to sleep and I said what does that mean? When am I gonna get my kitty back and he said well the kitty was put to sleep because the kitty was in pain and we didn’t want to kitty to suffer anymore, and then he went on to have a serious conversation with me about how we were kinder to people than we were to human beings. So when dad got sick, he asked me if I would help him die at the end. Well that’s a lot to ask of a daughter, and I immediately said yes, because no way was I going to watch him suffer the good news is that hospice took my dad off of all his medication‘s and put him on one and it was Ativan. And so all I had to do was ask for it because he couldn’t so at 12 o’clock I asked and at 2 AM I asked and at 4 AM I asked at 4:19 dad took his last breath so when mom got there the nurse asked what funeral home they were supposed to call and my mom said oh no funeral home daughters donated his brain to UCSD so call them he’ll come pick them up my dad be done breathing and he was still helping him very proud to be his daughter
Aggression is one of the symptoms of alzheimer's disease. As the brain loses function, sufferers lose their personality. They begin to lash out at things that would not have previously bothered them because they are losing the parts of their brain that are responsible for self-control and judgement. It isn't his fault.
Dad never had that very aggressive. His personality changed though in the very beginning when he talks about not tolerating the kids those are my kids and he adored those kids so I knew something was wrong and I happened to be working with people with Alzheimer’s at the time, so that’s when we decide to go to his doctor behind his back and beautiful thing is that you can go to your families doctor and tell them anything you want they just can’t tell you anything so dad got his diagnosis early because we were willing to wake up and realize something was wrong
No he isn’t. Sadly, dad died in 2019 on the last day of the year he was nonverbal at that point and in a ton of pain so thanks to hospice they took him off his medication and I kept a promise to my dad. He was not having a positive end of life experience, he was in tremendous pain so at 12:00 AM I called for his medication at 2:00 AM. I called for his medication and at 4:00 AM I called for his medication at 4:19 AM. My dad took his last breath and I said goodbye to my very best friend, and he is in my heart and soul forever and I visit this site often, thank you for your question. I don’t know if you notice me saying this, but after dad died the University that he’s talking about who is the recipient of his brain so that they could study a very seriously ill brain the last thing my dad ever said to me was I love you too in my family love you I love you too. Dad was not verbal the Christmas before his death. It was only a week before so I sat at his feet and said I love you dad repeatedly until he said I love you too and that was an incredible gift.
@@Frenite He was at the time of her writing this comment. That's what makes it even more sad. He has passed now. My condolences to you Jennifer, you are so strong to go through something like this. My nan is currently in the mid stages of dementia. We go and visit her whenever we can, and bring her happiness. it's sad.
My wife was diagnosed with Alzheimer's disease in 2018. She is still doing quite well, but does become extremely upset if I mention Alzheimer's. Unlike this amazing man, she is in total denial and thinks that if she refuses to accept the diagnosis, then it isn't true. Meanwhile, I have taken over all her medications and cook all the meals and handle all her finances. She seldom leaves home, which allows her to maintain the illusion that all is well. It is particularly obvious in public that she is not "normal" and this also upsets her.
God bless you buddy. My mama is similar, she has seemingly zero recognition of having any Alzheimer's, even in her later stages. I wish you the best man, please have some sort of support for yourself
God I hope this doesn’t happen to me. My greatest fear is losing myself and my memories . The thought of not being able to remember my parents , my dad . How nice and great of a father he was . Terrifies me.
I understand your fear. I'm a hyperchondric. I can fear having any disease. I have thought I have had everything from a brain tumor to muscle dystrophy. Hell in my early 20's I thought I had dementia. I have learned to realize. I may have anything. Worrying won't stop it. All it has ever done is ruin my life. While healthy.
@@Frenite I've just stumbled across the work of a music artist called The caretaker whose album series " everywhere at the end of time" portrays the process of dementia. so it have made me super curious about the topic
He does at age 85; in 2019 from Alzheimer's! That's a full life he had and hopefully he went peacefully!He donated his brain to science.How awesome is that?
My dad‘s last words to me were I love you too. That he said I love you too and I love you meant that he heard me say I love you and that was the biggest gift I will ever get in it happen to happen on Christmas Eve so it was a beautiful gift
Hey guys, I just came to the site and I saw how many people left comments and questions I will come back over the next few days. I answered a lot of questions and comments but I will try to get to all of them and it looks like there’s a lot, so please bear in mind I have systemic lupus, and in my eyes are very bad, dad and I used to joke about who was going to get to the pearly gates first? Dad one so I speak into a microphone forgive my spelling errors and my punctuation errors but I just can’t even see what I am saying I can’t see how it comes out, so please forgive me and I will try to answer all of you, you are all so sweet. I can read your comments using a magnifying glass.. I cannot, however hold that glass and type sucks to have lupus
Great way to raise awareness of the roadmap of most people like us who attract this disease into our beings... You are a true hero my friend and thank you for telling your story in such a clear and understanding way. Blessings, John (Diagnosed 2019 with PPA).
No one is immune to this disease! We need a cure fast! It is cruel to both the patient and the caregiver. Caregivers will need all the help they can get! Thank you for this video. It is very informative.
i miss him every day as do his grandkids and the rest of his family and friends. LOOK AT HIS BRAVERY. HE ALWAYS TAUGHT ME WE CANNOT CONTROL THE BAD THINGS THAT HAPPEN IN OUR LIVES, ITS WHAT WE DO WITH THOSE THINGS THAT MATTER. I WAS BLESSED TO BE ALONE WITH HIM WHEN HE TOOK HIS LAST BREATH. HE DID AND MY GRANDMA CAME FOR HIM I FELT HER. IT WAS SOFT AND WARM AND FINALLY PEACXE. WE HAD TO GIVE HIM PERMISSION TO GO. HE WILL CVOME FOR ME.
During the time that dad was sick with Alzheimer’s he was being studied by UCSD so I knew about that that once a month he was being one checked out studies when he died the nurse came in and asked my mom what funeral home he was going to and my mom said oh no, no funeral home Please make sure Don goes to UCSD just called them they don’t know what to do. He’s donating his brain so even after he died, he wasn’t done giving yet and that’s my daddy.?
This is freaky with the Fact that I am 28 and I have a lot of these symptoms like he was talking about the reading something and have to go back and re read it over and iver again.
My mamma fools most of her friends. She is undiagnosed but is having so much trouble with the here and now, Shopping, planning and problem solving are difficult. She is 77, we walk 2 miles per day and I am her only son trying to train as her caretaker. Great overall health but a broken brain. Lord help us all.
What a fascinating video. Strange that it can't be diagnosed earlier. Maybe it can be now. I've noticed a slight cognitive decline in my grandmother as she's gotten older. She has changed slightly, she can't deal with stress as easily and I think she's slightly more afraid of outsiders. Often when I talk to her I get the impression she doesn't have a clue what I am talking about, but she is quite deaf and doesn't have a hearing aid, so I think part of this at least is her masking that she can follow what I am saying. I can also be quite erratic, especially when I am around people I am comfortable with, so it could be a bit hard to follow what I am saying. Of course this could be to do with stress, she has chronic pain and hearing problems, and it's happened very slowly, and she is 81 years old, so I am not particularly worried. It's a terrible thing to happen to anyone and I hope she wont progress too much.
they really hit a milestone when it comes to alzheimers care. in the next even 5-10 years there gonna be more treatment options out there. hopefully sooner. im so sorry many of you who read this proly have a loved one. just gotta show love at this point and just keep praying hopefully science catches up with you. i know they have made some pretty amazing claims of future treatment
His wife, jane, my mother, jane hayen is the entire reason why my father was able to be studied even after his death she took him to San Diego once month to UCSD, where they did studies on him from the time that he was like this where he’s talking to you to the times when he became not so verbal and could not remember things The amazing thing, though was when my mom got to the home where he was and he was only in a home for a very short time. He was only in a home for about four months and that was because he was just too tall he couldn’t be managed at home and he couldn’t walk so mom stayed with him hayen night. She was just amazing but I was there when he died and I had to be, and mom had to not be. They say that the people that are dying pick the people that they will die with my mother could not except he was dying, even though it was very obvious she could not imagine the world without her husband after all she has been with him since she was 17 years old married at 17 and they stayed together until death did them part and even then I don’t think that part of them in anyway And their marriage makes me cry but anyhow, when they asked what funeral home they were going to take my dad to my mom said no funeral home take him to UCSD. God has donated his brain. I was doing pretty good not crying until she said that. I think God for him every day because he taught me how to die. I have systemic lupus, and I know how I’m going to die and it will not be dying gasping for air in front of my loved ones.
Damn. Fuck dementia. As of writing this i'm just a high schooler with no job, but, i just want to be a neurologist to just try to cure that terrifying disease.
You mostly have short term memory, long term memory in most cases remains, and or appears in flashes. Long term memory is really really strong, exactly why alzheimers patients can speak. God has created the brain, with such great functions...it's unbelievable
Dad was a spokesman for Alzheimer’s disease. He was very active with the Alzheimer’s Association, working with other people that had the disease that was much worse than him. Also going to Congress as a doctor and a patient and expressing the need for funding for a disease that was definitely going to take over our healthcare system as the boomers hit and we start getting Alzheimer’s disease it’s gonna be really bad so hopefully they will pull it together especially right now nobody is working together. It’s really sad. I’m glad dad didn’t see this. He did donate his brain to the very university that he talks about in this video.
Hardly any disease that medical marijuana doesn't help. Doing a show on this topic this friday morning 8amEST on blog talk radio. www.blogtalkradio.com/the-female-solution
Hey, if it works for somebody that’s great even if it helps with the pain in the very end dad died on December 31, 2019 at 4:19 AM. I helped him die. He asked me to and I did thankfully it was legal hospice is wonderful. I’m off all his other meds and they put him on Ativan every two hours, dad was nonverbal but was giving very clear cues that he was in pain. So at 12 AM I called for a dose at 2 AM. I called for another dose at 4 AM. I called for another Jose and at 4:19. My dad took his last breath. He was my best friend, and when you have a best friend, that’s your dad. It’s such a blessing what was very easy to help him because we had spoken about it so often. There was nothing left but pain he had done all he had to come here to do his work with the Alzheimer’s Association. He had worked with people that had the disease that was worse than him, and he had gone to Congress to ask for funding as a patient and doctor, I was very proud of him and I thought he had done all he could do on this earth but he wasn’t done. After he died, he donated his brain to the very university that he speaks about in this video. I hope I’m answering questions. I didn’t see all of this until now so I will come back. I’m speaking in a microphone because I can’t see, I have systemic lupus and I am dying too. And I’m fine with it. There comes a time in life where the pain becomes so bad that that’s all life is so fortunately I live in a two signature state and when I decide time is time and my doctors agree, I will go see dad. Thanks for all your questions people and comments you’re all really amazing very loving people
MY MOM AND I WENT TO DADS DOC BEHIND HIS BACK AND TOLD HIM ABOUT DAD AND HOW HE CHANGED, I KNEW HE HAD ALZHEIMERS. WE CRIED BEFORE DAD TOLD US. WHEN DAD TOLD ME I SAID DAD I WENT TO YOUR DOCTOR BEHIND YOUR BACK. WE CRIED AND WE HUGED AND I KNEW I WAS LOSING MY BEST FRIEND.
@@Frenite I'm not trying to speak for him, and i know this is a OOOOLD comment,but since people with alzheimer's usually live for 8 years and this comment is 3 years, probably
Yes, dad did die. I answered this question above, but I didn’t tell the story of the night. Did he died? I was the only one with him which was good because mom could not except that he was dying. He was at a point where he was dying of thirst, he was dying in pain. There was no good death for him so I kept a promise thanks to hospice by the way at 12:00 AM. I called for the medicine at 2:00 AM. I called for the medicine and at 4:00 AM I called for the medicine, that was free my father from this world and that body he died at 4:19 AM with just me in the room and I have to tell you I was grateful to be there and I was grateful to help him and I may have mentioned this, but he did donate his brain to the university that he’s talking about in this video he’s very sick brain I miss my very best friend every day and I’m proud to be his daughter. We used to joke about who was going to get to the pearly gates first because I have systemic lupus, and I am at the jumping off point now And I look forward to being with him if that’s what’s there. I struggle with after life thoughts but I believe if there’s a loving God then I get to be with my dad by the way there’s one more little story that’s kind of weird so just bear with me, my dad talk to me about my grandmother all the time I never met hier he told me that I raised my kids just like her. He said that she always lives on his side and his six brothers her kids could do no wrong. I was of the mind raising my kids that the world is hard enough so I want to be there, soft place to land and I am when dad finally died at 4:19 AM. I felt a presence in the room and it was a loving presence and I have no doubt in my mind that that was his mother. I felt them in the room for about 10 minutes and then they left, I found out because the nurse came downstairs that she had just gotten a hold of my mother and that would’ve been the time that my dad left with my grandmother and I believe in my heart that they went to be with her so that’s his final story, but in between he did so much for the Alzheimer’s Association went and spoke to Congress about getting money in funding for Alzheimer’s as a patient and as a doctor, one of my favorite pictures of my father is him standing in front of the capital wearing his purple Voice shirt over his white collared shirt it’s a beautiful picture. I wish I could post it here but I don’t know how thanks guys.
Hey guys, one more thing and then I’ll get to all your comments. I have to say this on behalf of my father, who took the time to go to Washington from California with the Alzheimer’s Association to ask for federal funding for this disease if the 2024 election does not go right And we do not get this stuff together. if we don’t have a working GOP and a working Democrat party there will be no funding for Alzheimer’s. I’ll let you decide what you think would be a working government. If you want funding for diseases like Alzheimer’s, you must vote at least for the guy that is not talking about himself all the time, even if you hate the other guy, the other guy wants to work for funding for programs. I ask only that you look at Joe Biden‘s posts and compare them to Donald Trump‘s posts every day until the election and then ask yourself who is going to fight for funding for programs like Alzheimer’s disease???
#viyahta how to get information about this man? i need to be able to speak or communicate with him, about his work.what did he do? i need help from him @viyahta
Kane&chloe that’s pretty amazing actually. That would mean he’s had it for 11 years. Granted the quality of life probably isn’t there but still proves education and intelligence improves outcome
I don't understand being lost. Can you not use gps to guide you home? Is it really that bad? I am really curious. I fear I have some symptoms of the disease. I wanna be prepared in case I get into the situation. I will never leave home without cell phone.
A lot of older people don’t really know how to use a GPS quite honestly, my parents don’t know how and they are in their early sixties. But I’m sure some do
Needs to talk with a priest about getting that demon cast out of his mind, and needs to stop watching ANY kind of porn. Needs to get in a group of other Christians.. needs to pray for deliverence. I saw a demon or some kind of spirit in his mind...
![[#2024MAMA] ROSÉ (로제), Bruno Mars - APT. | Mnet 241122 방송](http://i.ytimg.com/vi/dgGqD28J6aQ/mqdefault.jpg)
STILL SO PROUD OF YOU DADDY 1.5 K VIEWS so many more on Facebook where I share it constantly. This is also been shared by the Alzheimer’s Association and repeatedly when they go out and just talks and PBS is redness several times. I love you.
I see.
My condolences!
Does he have more videos of him talking about the illness?
This was clearly a smart man; sorry for your dad's struggle, and your loss.
And still, helping. An amazing dad you had!
🙏🤍
He has helped me for sure. My mother was recently diagnosed and I’m just beginning this journey with her. You fathers words of incouragement have given me some faith in what I’m about to embark on. So thank you for sharing this with others to help. I pray he is doing well and send love and light to you and your family. Bless you ❤️
My dad did qualify not to long after this, The morning of his death, I was alone with my best friend, my dad. He donated his brain to the university that he is speaking of right now. Dad gave everything he had while he was alive to help others when he was at this stage he had a friend that had Alzheimer’s and he would take him to lunch and he would have a business card with them and my dad would hand it to the waitress and say please direct all your questions to me my friend has Alzheimer’s, I was not surprised that he donated his brain after his death because that’s who he is. I miss him every day and I visit the site. Often
Rest in peace. 🙏
This scares the crap out of me. What an incredibly brave man. To have the ability to comprehend fully where the road he would be going down would lead him and not be crippled by fear and anxiety is amazing to me.
I'm sure he is.....crippled by fear and anxiety,ur just looking at a 6 minute clip of him talking,sharing this moment of still lucidity and awareness with u....u are not watching him 24.7,u dunno what is happening the other 23 hours 54 mins of the day.
Who wouldn't be terrified,when u watch those videos of those late dementia victims,knowing what u will be in 2 or 3 years time....
knowing bit by bit a little more of ur personality,ur cognition is slipping away.
No one should have to go through the end stages of dementia,it's cruel and pointless.
@@jont2576 I agree completely
I am not far from the age my mother was diagnosed. She her mother, and her mother all had early onset, in their 50's. it's terrifying
@@jemschmidt7893 my family from mother's side has had alzheimers for generations but somehow it has only affected the female sex only. My mom is going to have it if some miracle doesn't happen
@@jont2576 if I get it, I'm going to live as long as I can, then I want to die while I'm still cognitive. so I can at least know where I am and who I'm with when it happens.
Love from Travis's fans. Don seems wonderful. Rest in Peace.
Jax Mohnson Truly. I expected this interview to be interesting, but my expectations were blown out of the water. ...Probably better than any of Travis's interviews lmao
Respect
Mucho love, hope he is resting in peace somewhere watching his family from above.
@@HochMusiker Travis Scott
My father’s last words to me were I love you too. It was Christmas Eva 2019 I sat at his feet for about two hours saying I love you, daddy repeatedly, and finally he looked at me and said “ I love you too” that meant he heard me, it meant the world to me because saying, I love you and I love you too, was basically the law in our house. Whenever we separated, and we were going to see each other for five minutes or a week, we said I love you I love you too, now this came up at some funny times. There was a period of time when I was a teenager and a rotten one at that so when I walked out the door, I would say I love you in a scream and he would say I love you too, and that I slam the door, seriously it’s funny now because we laughed at it a lot. My dad went sailing with me and went skiing with me and went on vacations with me and did everything with me and the rest of the family under the sea and he was there for everything he helped me get ready for the prom and the winter formal she was just there all the time making sure that I was OK. I was a lucky girl. Sometimes loving somebody so much means there will be a lot of pain in the end, but that was not the case. I kept my promise to my dad. I helped him die, he told me that when I got to the point where there was just nothing but pain he wanted me to help him die. The good news is that in California hospice is very helpful and when it comes to the very end, they took him off of all of his medication’s and put him on Ativan 10 mg every two hours, so at 12 AM I called and they gave him 10 mg at 2 AM I called another 2 mg and 4 AM I called and they give me another 2 mg at 4:19 he took his last breath peacefully and that was on December 31, 2019. I felt my grandmother come for him a woman I never met. My dad described her to me and said that I was so much like her years earlier so when he died, I felt her presence for about 10 minutes and then I felt them leave and I think they went to be with my mother who was getting the news that her husband had died, my husband was with me within two minutes and like I said before dad had gone to UCSD every month to be studied ever since he got Alzheimer’s. So when my mom arrived, the nurse asked what funeral home are we supposed to call and she said oh no no funeral home donis to go to UCSD he’s donating his brain. I was surprised by this I didn’t know it but I wasn’t shocked because it made perfect sense, even after his last breath, he was giving some thing to help others. I’m very proud to be his daughter and it’s painful to have them gone. I feel like there’s something blocking the pain because it should be more but maybe it’s just that I know how fortunate I was to have a dad like him. I have systemic lupus, and we used to make jokes about who is going to make it to the pearly gates faster he won, but when I die, he will be waiting for me. He knows every secret and has forgiven me for all I miss him, and I love him.
Jenna, I'm so deeply sorry for your loss. I cried as I read your story. You're very fortunate to have had all these wonderful memories, even the not-so-great ones in the end. I'm glad you were there with him.
You are very kind
I'm in tears reading this. My dad had vascular dementia and died in 2021. I'm still in absolute pieces mentally.😔
I love you wherever you are. Made me tear up. Much love to you and your dad ❤
RIP mr Hayen. Your grandson is doing some stellar work! You'd be proud.
What's his grandson doing ?
@@inukprasad2692 heard he giving head behind the wendys for 10 bucks
@@allualex2606 Bruh
@@inukprasad2692 look top comment in this video
@@EI_Greko Not there anymore
My mother deserves the credit for taking care of my dad for years. Every time something changed. She would change with it, and dad did not go into a home until about four months before he died. She did not want him in a home for very long, but it was safer for him to be in a home at that point because he was so tall you can tell kind of like the picture of him. He’s 6 foot two and in this picture he’s about 220 pounds 230 pounds baby, he just got too tall, and he could not be managed by one woman who was a little younger than he was. She was with him from the age of 17 married at 17 imagine that, and then they said till death do us part they meant it, and they went through some hell. I am one of the ones that put them through it when they were younger and I was a teenager, she’s an amazing woman, and she deserves all the credit for caring for him, and for making sure that he was able to do everything he wanted to do before he died. He wanted to be studied, and after he died, without my knowing he had donated his brain to the same college UCSD, so when they came to get him they said what funeral home is he going to and she said no no funeral home he’s going to UCSD he’s donating his brain and I just lost I cried because even in death he was giving and so was mom right there with him? I am proud to be their daughter I can’t imagine being anybody else’s.
Thank you so very much for sharing. Your mother sounds like a true careblazer and your father a true gentleman (in every sense of the word). Your loving words are a testament to their fantastic parenting. Unfortunately this insidious disease has taken a hold of my father and it’s absolutely heartbreaking to watch. I just hope that my stepmother has the same tenacity, courage, compassion and love for my father as your mother did for yours. Sending all my best wishes from England ❤
“ I’ve learned how to learn” he said. Now THAT is a rare skill these days. My sincere condolences to whoever was blessed with that man in their family
Thank you and Jenni and he was my best friend my entire life I was adopted at six weeks and my dad was my best friend then and he was my best friend at 4:19 AM when he took his last breath on December 31, 2019 I don’t know what you meant by your sincere condolences, but I’ll take him because he was such a good guy. When he got diagnosed, he made the choice to help others who had Alzheimer’s you would think he would run away is dead. He join me Alzheimer’s Association in San Diego. He reached out to his many people that he could, he had a friend at church who had Alzheimer’s so we took him out to lunch every week and had a card that he pull out of his wallet and show to the server that said my friend has Alzheimer’s please direct all questions to me. The entire time dad was sick, he would go to UCSD and get studied once a month and made mom promise to take him to the very end until the last six months they came to him when I was a little girl my cat died. I was four and my dad pick me up from school. He said honey we had to put the kitty to sleep and I said what does that mean? When am I gonna get my kitty back and he said well the kitty was put to sleep because the kitty was in pain and we didn’t want to kitty to suffer anymore, and then he went on to have a serious conversation with me about how we were kinder to people than we were to human beings. So when dad got sick, he asked me if I would help him die at the end. Well that’s a lot to ask of a daughter, and I immediately said yes, because no way was I going to watch him suffer the good news is that hospice took my dad off of all his medication‘s and put him on one and it was Ativan. And so all I had to do was ask for it because he couldn’t so at 12 o’clock I asked and at 2 AM I asked and at 4 AM I asked at 4:19 dad took his last breath so when mom got there the nurse asked what funeral home they were supposed to call and my mom said oh no funeral home daughters donated his brain to UCSD so call them he’ll come pick them up my dad be done breathing and he was still helping him very proud to be his daughter
Travis helps me like Don Hayen has helped over 75,000 people. Thank you,. both of you, for sharing an intimate part of your life
Travis???
@@Jennafromcalli I think he's talking about Travis Hayen? Must be one of your sons/daughters/newphews.
No there is no Travis Hayen
Aggression is one of the symptoms of alzheimer's disease. As the brain loses function, sufferers lose their personality. They begin to lash out at things that would not have previously bothered them because they are losing the parts of their brain that are responsible for self-control and judgement. It isn't his fault.
May b if so read my comments on the first section or connect I sure can help
Dad never had that very aggressive. His personality changed though in the very beginning when he talks about not tolerating the kids those are my kids and he adored those kids so I knew something was wrong and I happened to be working with people with Alzheimer’s at the time, so that’s when we decide to go to his doctor behind his back and beautiful thing is that you can go to your families doctor and tell them anything you want they just can’t tell you anything so dad got his diagnosis early because we were willing to wake up and realize something was wrong
I NISS YOUR LAUGH AND SMILE, I MISS LAUGHING WITH YOU FOR NO REASON GETTING THE GIGGLES AT THE TABLE FOR NO REASON AT ALL I MISS YOU DAD
John Gaines Is he still alive?
No he isn’t. Sadly, dad died in 2019 on the last day of the year he was nonverbal at that point and in a ton of pain so thanks to hospice they took him off his medication and I kept a promise to my dad. He was not having a positive end of life experience, he was in tremendous pain so at 12:00 AM I called for his medication at 2:00 AM. I called for his medication and at 4:00 AM I called for his medication at 4:19 AM. My dad took his last breath and I said goodbye to my very best friend, and he is in my heart and soul forever and I visit this site often, thank you for your question. I don’t know if you notice me saying this, but after dad died the University that he’s talking about who is the recipient of his brain so that they could study a very seriously ill brain the last thing my dad ever said to me was I love you too in my family love you I love you too. Dad was not verbal the Christmas before his death. It was only a week before so I sat at his feet and said I love you dad repeatedly until he said I love you too and that was an incredible gift.
@@Frenite He was at the time of her writing this comment. That's what makes it even more sad. He has passed now. My condolences to you Jennifer, you are so strong to go through something like this. My nan is currently in the mid stages of dementia. We go and visit her whenever we can, and bring her happiness. it's sad.
Best Dad ever
It he still alive?
Bless his soul and the participation in this video what a wonderful man.
SO PROUD OF YOU DADDY
John Gaines Is he still alive?
check my info
@@Frenite he died nye 2019 :(
I'm sorry for your loss but he looks like a great person and a strong fighter. I'm curious though, how developed did his Alzheimer's disease get?
My wife was diagnosed with Alzheimer's disease in 2018. She is still doing quite well, but does become extremely upset if I mention Alzheimer's. Unlike this amazing man, she is in total denial and thinks that if she refuses to accept the diagnosis, then it isn't true. Meanwhile, I have taken over all her medications and cook all the meals and handle all her finances. She seldom leaves home, which allows her to maintain the illusion that all is well. It is particularly obvious in public that she is not "normal" and this also upsets her.
God bless you buddy. My mama is similar, she has seemingly zero recognition of having any Alzheimer's, even in her later stages. I wish you the best man, please have some sort of support for yourself
What a great human with such a strong sense of self. Being that selfless just to make a difference is touching. God bless you and your family ❤️
Thumbs up in chat for Travis and his Grandpa! 👍
God I hope this doesn’t happen to me. My greatest fear is losing myself and my memories . The thought of not being able to remember my parents , my dad . How nice and great of a father he was . Terrifies me.
I understand your fear. I'm a hyperchondric. I can fear having any disease. I have thought I have had everything from a brain tumor to muscle dystrophy. Hell in my early 20's I thought I had dementia. I have learned to realize. I may have anything. Worrying won't stop it. All it has ever done is ruin my life. While healthy.
He died on December 31, 2019.
May he rest in peace. He seemed to be a very intelligent and kind man.
At what age? Of what cause?
George Beard He died at age 86 due to complications of Alzheimer’s.
@@Frenite I've just stumbled across the work of a music artist called The caretaker whose album series " everywhere at the end of time" portrays the process of dementia. so it have made me super curious about the topic
@George Beard I just briefly skimmed over that album. It’s amazing how the music portrays each stage of Alzheimer’s.
So lovely for him to be concerned about others less fortunate than him🙏
He does at age 85; in 2019 from Alzheimer's! That's a full life he had and hopefully he went peacefully!He donated his brain to science.How awesome is that?
Those last two sentences are profound. Thank you for sharing with us.
My dad‘s last words to me were I love you too. That he said I love you too and I love you meant that he heard me say I love you and that was the biggest gift I will ever get in it happen to happen on Christmas Eve so it was a beautiful gift
Hey guys, I just came to the site and I saw how many people left comments and questions I will come back over the next few days. I answered a lot of questions and comments but I will try to get to all of them and it looks like there’s a lot, so please bear in mind I have systemic lupus, and in my eyes are very bad, dad and I used to joke about who was going to get to the pearly gates first? Dad one so I speak into a microphone forgive my spelling errors and my punctuation errors but I just can’t even see what I am saying I can’t see how it comes out, so please forgive me and I will try to answer all of you, you are all so sweet. I can read your comments using a magnifying glass.. I cannot, however hold that glass and type sucks to have lupus
R.i.p travis grandad
Very wise man. Gone now, but we will be all gone soon.
Great way to raise awareness of the roadmap of most people like us who attract this disease into our beings... You are a true hero my friend and thank you for telling your story in such a clear and understanding way. Blessings, John (Diagnosed 2019 with PPA).
No one is immune to this disease! We need a cure fast! It is cruel to both the patient and the caregiver. Caregivers will need all the help they can get! Thank you for this video. It is very informative.
i miss him every day as do his grandkids and the rest of his family and friends. LOOK AT HIS BRAVERY. HE ALWAYS TAUGHT ME WE CANNOT CONTROL THE BAD THINGS THAT HAPPEN IN OUR LIVES, ITS WHAT WE DO WITH THOSE THINGS THAT MATTER. I WAS BLESSED TO BE ALONE WITH HIM WHEN HE TOOK HIS LAST BREATH. HE DID AND MY GRANDMA CAME FOR HIM I FELT HER. IT WAS SOFT AND WARM AND FINALLY PEACXE. WE HAD TO GIVE HIM PERMISSION TO GO. HE WILL CVOME FOR ME.
Thanks Uncle Bob was a good man!
This interview is so awesome!
May his memory be a blessing.
During the time that dad was sick with Alzheimer’s he was being studied by UCSD so I knew about that that once a month he was being one checked out studies when he died the nurse came in and asked my mom what funeral home he was going to and my mom said oh no, no funeral home Please make sure Don goes to UCSD just called them they don’t know what to do. He’s donating his brain so even after he died, he wasn’t done giving yet and that’s my daddy.?
My grandpa is died tonight :'(
I WILL PRAY FORM HIM L.O.L.
8 years late but im sorry :(
Took care of dad with Alzhiemers. He was gentle and mangeable. If I had researched it during, I would of been an emotional wreck
Thank you for sharing this.
I miss you daddy
Deseo en verdad que Dios lo acompañe en este camino Dr Heyen y pueda tener la mejor calidad de vida posible. God Bless You.
Any tough man will not be tough through Alzheimers! This disease turned my world around!
Bless his sweet spirit.
This is freaky with the Fact that I am 28 and I have a lot of these symptoms like he was talking about the reading something and have to go back and re read it over and iver again.
what a beautiful soul
My prayers go out to you!
aww, he's lovely
i cant believe he just died in 2019 and must’ve had alzheimer’s for twenty years
I cant even imagine. God bless him. To know what's to come...what a nightmare
My mamma fools most of her friends. She is undiagnosed but is having so much trouble with the here and now, Shopping, planning and problem solving are difficult. She is 77, we walk 2 miles per day and I am her only son trying to train as her caretaker. Great overall health but a broken brain. Lord help us all.
When you get through an Alzheimers death, YOU KNOW YOUR STRONG!
Humility personified .....
You have my sympathy sweet pea!
What a fascinating video. Strange that it can't be diagnosed earlier. Maybe it can be now. I've noticed a slight cognitive decline in my grandmother as she's gotten older. She has changed slightly, she can't deal with stress as easily and I think she's slightly more afraid of outsiders. Often when I talk to her I get the impression she doesn't have a clue what I am talking about, but she is quite deaf and doesn't have a hearing aid, so I think part of this at least is her masking that she can follow what I am saying. I can also be quite erratic, especially when I am around people I am comfortable with, so it could be a bit hard to follow what I am saying. Of course this could be to do with stress, she has chronic pain and hearing problems, and it's happened very slowly, and she is 81 years old, so I am not particularly worried. It's a terrible thing to happen to anyone and I hope she wont progress too much.
Rest In Peace ❤️
they really hit a milestone when it comes to alzheimers care. in the next even 5-10 years there gonna be more treatment options out there. hopefully sooner. im so sorry many of you who read this proly have a loved one. just gotta show love at this point and just keep praying hopefully science catches up with you. i know they have made some pretty amazing claims of future treatment
His wife, jane, my mother, jane hayen is the entire reason why my father was able to be studied even after his death she took him to San Diego once month to UCSD, where they did studies on him from the time that he was like this where he’s talking to you to the times when he became not so verbal and could not remember things The amazing thing, though was when my mom got to the home where he was and he was only in a home for a very short time. He was only in a home for about four months and that was because he was just too tall he couldn’t be managed at home and he couldn’t walk so mom stayed with him hayen night. She was just amazing but I was there when he died and I had to be, and mom had to not be. They say that the people that are dying pick the people that they will die with my mother could not except he was dying, even though it was very obvious she could not imagine the world without her husband after all she has been with him since she was 17 years old married at 17 and they stayed together until death did them part and even then I don’t think that part of them in anyway And their marriage makes me cry but anyhow, when they asked what funeral home they were going to take my dad to my mom said no funeral home take him to UCSD. God has donated his brain. I was doing pretty good not crying until she said that. I think God for him every day because he taught me how to die. I have systemic lupus, and I know how I’m going to die and it will not be dying gasping for air in front of my loved ones.
Rest-In-Peace Don.
Very helpful and informative video.
Alzheimers is so hideous! I love my seniors who suffer through this plague!
Here for Travis
He loses his memory but he remembers losing his memory…
Damn. Fuck dementia. As of writing this i'm just a high schooler with no job, but, i just want to be a neurologist to just try to cure that terrifying disease.
Thank you for share this! We all are vulnerable.
How does he remember this
You mostly have short term memory, long term memory in most cases remains, and or appears in flashes. Long term memory is really really strong, exactly why alzheimers patients can speak. God has created the brain, with such great functions...it's unbelievable
Beautiful man so kind
My dad was diagnosed last month.....
I am only 17.
Scyntax fuck off
How are you know you must be 27 now ?
@Scyntax You will pay for that oneday
I go through this every day.. I forget everything, where I am, what I'm doing.. I'll forget what I'm even writing about in a sec
Lol You wrote exactly what I was thinking.
don't worry buddy everyone gets a crisis
@@xaqt1 ;p
@@4c00h troll mode
I wonder what Dr Hayen would think of recent developments regarding diagnosing dementia with advance imaging and drugs for plaques
God damn.. I cant remember things from last chapter and im 22..
😢 it's a global problem i guess, how are you now
Great man
Amazing guy. Needs to be the spokesman for Alzheimers.
Dad was a spokesman for Alzheimer’s disease. He was very active with the Alzheimer’s Association, working with other people that had the disease that was much worse than him. Also going to Congress as a doctor and a patient and expressing the need for funding for a disease that was definitely going to take over our healthcare system as the boomers hit and we start getting Alzheimer’s disease it’s gonna be really bad so hopefully they will pull it together especially right now nobody is working together. It’s really sad. I’m glad dad didn’t see this. He did donate his brain to the very university that he talks about in this video.
It would be nice to get some kind of a follow up? I'd like to know more about his progression.
Why? It ain't going to be getting better. You know where it ends up.
@@ewtwetrwerwteet May he rest in peace.
Exercise and the Mediterranean diet helps to prevent the illness.
this runs in our family
I'm sorry.
My beautiful friend died of Alzheimers!
No 🧢
I am so sorry it’s the long goodbye, and I was fortunate because my father kept most of his personality of the way until the last two months
Have we moved forward from only diagnosing 100% at stage 4???
I heard that medical marijuana slows down this terrible disease.
Hardly any disease that medical marijuana doesn't help. Doing a show on this topic this friday morning 8amEST on blog talk radio. www.blogtalkradio.com/the-female-solution
I'm a traditional MD. Cannabis helps because it fights inflammation. Both CBD and THC are helpful
Hey, if it works for somebody that’s great even if it helps with the pain in the very end dad died on December 31, 2019 at 4:19 AM. I helped him die. He asked me to and I did thankfully it was legal hospice is wonderful. I’m off all his other meds and they put him on Ativan every two hours, dad was nonverbal but was giving very clear cues that he was in pain. So at 12 AM I called for a dose at 2 AM. I called for another dose at 4 AM. I called for another Jose and at 4:19. My dad took his last breath. He was my best friend, and when you have a best friend, that’s your dad. It’s such a blessing what was very easy to help him because we had spoken about it so often. There was nothing left but pain he had done all he had to come here to do his work with the Alzheimer’s Association. He had worked with people that had the disease that was worse than him, and he had gone to Congress to ask for funding as a patient and doctor, I was very proud of him and I thought he had done all he could do on this earth but he wasn’t done. After he died, he donated his brain to the very university that he speaks about in this video. I hope I’m answering questions. I didn’t see all of this until now so I will come back. I’m speaking in a microphone because I can’t see, I have systemic lupus and I am dying too. And I’m fine with it. There comes a time in life where the pain becomes so bad that that’s all life is so fortunately I live in a two signature state and when I decide time is time and my doctors agree, I will go see dad. Thanks for all your questions people and comments you’re all really amazing very loving people
MY MOM AND I WENT TO DADS DOC BEHIND HIS BACK AND TOLD HIM ABOUT DAD AND HOW HE CHANGED, I KNEW HE HAD ALZHEIMERS. WE CRIED BEFORE DAD TOLD US. WHEN DAD TOLD ME I SAID DAD I WENT TO YOUR DOCTOR BEHIND YOUR BACK. WE CRIED AND WE HUGED AND I KNEW I WAS LOSING MY BEST FRIEND.
John Gaines Is he still alive?
@@Frenite I'm not trying to speak for him, and i know this is a OOOOLD comment,but since people with alzheimer's usually live for 8 years and this comment is 3 years, probably
@@xaqt1 I actually know he died December 31, 2019.
Yes, dad did die. I answered this question above, but I didn’t tell the story of the night. Did he died? I was the only one with him which was good because mom could not except that he was dying. He was at a point where he was dying of thirst, he was dying in pain. There was no good death for him so I kept a promise thanks to hospice by the way at 12:00 AM. I called for the medicine at 2:00 AM. I called for the medicine and at 4:00 AM I called for the medicine, that was free my father from this world and that body he died at 4:19 AM with just me in the room and I have to tell you I was grateful to be there and I was grateful to help him and I may have mentioned this, but he did donate his brain to the university that he’s talking about in this video he’s very sick brain I miss my very best friend every day and I’m proud to be his daughter. We used to joke about who was going to get to the pearly gates first because I have systemic lupus, and I am at the jumping off point now And I look forward to being with him if that’s what’s there. I struggle with after life thoughts but I believe if there’s a loving God then I get to be with my dad by the way there’s one more little story that’s kind of weird so just bear with me, my dad talk to me about my grandmother all the time I never met hier he told me that I raised my kids just like her. He said that she always lives on his side and his six brothers her kids could do no wrong. I was of the mind raising my kids that the world is hard enough so I want to be there, soft place to land and I am when dad finally died at 4:19 AM. I felt a presence in the room and it was a loving presence and I have no doubt in my mind that that was his mother. I felt them in the room for about 10 minutes and then they left, I found out because the nurse came downstairs that she had just gotten a hold of my mother and that would’ve been the time that my dad left with my grandmother and I believe in my heart that they went to be with her so that’s his final story, but in between he did so much for the Alzheimer’s Association went and spoke to Congress about getting money in funding for Alzheimer’s as a patient and as a doctor, one of my favorite pictures of my father is him standing in front of the capital wearing his purple Voice shirt over his white collared shirt it’s a beautiful picture. I wish I could post it here but I don’t know how thanks guys.
One more question how did you know when my dad died? That’s fascinating you might know us let me know I always come back here.
I am afraid and sad.
R.I.P
Hey guys, one more thing and then I’ll get to all your comments. I have to say this on behalf of my father, who took the time to go to Washington from California with the Alzheimer’s Association to ask for federal funding for this disease if the 2024 election does not go right And we do not get this stuff together. if we don’t have a working GOP and a working Democrat party there will be no funding for Alzheimer’s. I’ll let you decide what you think would be a working government. If you want funding for diseases like Alzheimer’s, you must vote at least for the guy that is not talking about himself all the time, even if you hate the other guy, the other guy wants to work for funding for programs. I ask only that you look at Joe Biden‘s posts and compare them to Donald Trump‘s posts every day until the election and then ask yourself who is going to fight for funding for programs like Alzheimer’s disease???
Please don’t voice your opinion of our political situation in the comments .
I love you soo much daddy😊
Holy shit watching this on acid is fucking crazy dude
he is smart
Was he the same from lous theroux series?
#ChrisFley Thanks Uncle Bob was a good man! @MontanaMax
#viyahta how to get information about this man? i need to be able to speak or communicate with him, about his work.what did he do? i need help from him @viyahta
#Adam Murphy Any tough man will not be tough through Alzheimers! This disease turned my world around! @Vietta Robinson
Alzheimer's Help A person who said she were his daughter commented that she could be found on Facebook if you search for the name Jenny John Gaines.
how to get information about this man? i need to be able to speak or communicate with him, about his work.what did he do? i need help from him
How is this man now?
He passed away
@@LisaNix2 that's a shame 😢
Is he still alive?
Just recently passed away
RIP
@lilmissCYT how old is your dad?
😮
who is this travis everyone is speaking on
Think he's still alive in 2016?
Juicy B0ys HE IS STILL ALIVE HES MY DAD JENNY AT GITFIDDLEJOHNNY@gmail.com
Juicy B0ys how is he now? Hope he's still kicking its ass! 🥊
Kane&chloe that’s pretty amazing actually. That would mean he’s had it for 11 years. Granted the quality of life probably isn’t there but still proves education and intelligence improves outcome
@@Jennafromcalli is he still ok ?
@@Internet_Guy99 He died on New Year's Eve last year. Spent 11 years living with dementia.
Don't feed the troll.
He speaks better than Joe Biden
Shut up
Human can have problems with ram managment
I don't understand being lost. Can you not use gps to guide you home? Is it really that bad? I am really curious. I fear I have some symptoms of the disease. I wanna be prepared in case I get into the situation. I will never leave home without cell phone.
A lot of older people don’t really know how to use a GPS quite honestly, my parents don’t know how and they are in their early sixties. But I’m sure some do
@flyingpowerlogitech 67
having a daughter come back to live at his age would set me off too.......pathetic
HMO President?? SO...he gets to Heaven, and St. Peter's says: you can stay for three days-then Go to HELL! (A drug rep. told me that one years ago.)
Needs to talk with a priest about getting that demon cast out of his mind, and needs to stop watching ANY kind of porn. Needs to get in a group of other Christians.. needs to pray for deliverence. I saw a demon or some kind of spirit in his mind...
I DO hope you're being Sarcasatic. If not-Lenin needs to kill more Romanovs!
What
The imaginary man in the sky isn’t real buddy
Religion won't stop any disease at all you twat