Vlogmas Day 21~Will I Ever Walk Again? / About my Mystery Illness
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- Опубликовано: 15 сен 2024
- Welcome to vlogmas!
The elves had a party last night!
This vlog is about my Mystery illness which I developed in 2012 and left me in a wheelchair before the age of 40. Will I ever walk again?
Please join in with our vlogmas competition ~ identify a different Christmas song every day from the lyrics I give you and write your answer below. The person with the most correct answers at the end of vlogmas will get a prize.
** THE COMPETITION CLOSES ON 15TH JANUARY 2019 **
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I'd love to hear from you so leave any comments below or email me on fionalmccord@gmail.com
See you tomorrow! X
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Hi Fiona, firstly, I want to thank you for sharing your story. It can't be easy reliving an experience that obviously wasn't a positive one. I am a nurse & work for the NHS & agree with you that on the whole, it is a great institution. However, as a carer (I have 2 young sons with disabilities), I can totally identify with your upset/frustrations. I tend to find that although a lot of health professionals have undergone years of medical training, their people skills leave a lot to be desired! I am disgusted with the comments that were made to you regarding your weight & mental health, yet sadly I am not surprised. I think if these people could spend a day in your shoes, they would have a better understanding. It was sad to see you so upset on yesterday's vlog, but I admire you for being so honest & brave & it's great to see you back today with your fabulous, positive attitude (even though reliving your experience can't be easy). I look forward to watching you & your lovely family on your vlogs & my 2 dogs also get excited when your dogs make an appearance! Merry Christmas from my family to yours xx
Aw thanks so much for your comment and understanding. Having been a nurse myself I completely agree with you that training alone doesn't make a good doctor, their bedside manner is just as important. As you say, until you've been in our shoes, either with a personal disability or caring for people with disabilities, you can't possibly understand how it feels and should never make judgements. I'm so glad you and your dogs enjoy my vlogs and I can't tell you how much I appreciate your support! I really hope you and your family have an amazing Christmas x
Fiona you are an amazing person you have been through so much, you are so positive. bless you xxx
Aw thanks Carol x
Thank you so much for sharing this you truly are a posative brave lady xx
Thanks Susan, I really appreciate that x
I'm flabbergasted! Thank goodness you're a positive person x
Thanks Linda. I certainly had my down times but looking at where I am now compared to where I was there's so much to be positive about! X
Fiona, you are amazing and I am sorry that you had to go thru all the pain and suffering. I do hope that they will come up with a diagnosis so that you know what this illness is. Take care.
Aw thanks so much x
Thanks
You're welcome, I hope it answered your questions x
Hi Fiona. The song is Merry Christmas Everybody. Xxx
Right again Maria! X
Fiona you are really amazing I don't know you coped with all that pain and suffering, I really hope you find out what is wrong with you Have a very happy Christmas to you and your family xx
Thanks Jaqueline but I think it's my family who are amazing for getting me through it! Thanks very much for your support and I hope you have a fantastic Christmas x
Lovely to see you happy , unfortunately with the NHS it's a few bad apples that spoil their reputation, the majority of the Nurses and Doctors are really lovely, then you come up against one that thinks they are god and can be very arrogant.
You have been through so much , just look at how amazing and well balanced your girls are, they are a credit to you, so please don't have any mum guilt , they will be ready for the world because they know that things can go wrong , they haven't grown up in a bubble like some children. They will do well in life xx
Aw Yvonne, thanks so much ~ you brought tears to my eyes with that comment! You're so right about the NHS though, the majority of us wouldn't be here without them. It's a fantastic service and the idiots are far outnumbered by the people who really want to make a difference x
Awwww can't wait to see you antie Fiona xoxo
Me too, I've missed you all and still not met the puppy x
@@OurCRAZYLifeScotland I know you NEED to see him
Hi Fiona, Thank you for sharing. ❤
No problem, thanks for watching! X
I’m sorry for all the pain and anxiety you have had to go through. I had a similar experience at the dunfermline hospital. My husband knew there was something wrong with him and he was waiting for scans getting organised but we had to go up to A&E and they decided to put him up to a ward to see the lady doctor that was on duty. She said and I can’t forget her exact words, don’t think that coming up here on a Sunday will get your scan done quicker!!! Have you ever had a prostrate examination, well that was it alarm bells were put in motion. He only got 10months after that before it took him. Now a mistake has been made with my mother. She was diagnosed with leukaemia 4yrs ago and I was never told. She was getting ready blood checks when she was in her house but when she went into the home the district nurses were never told to carry on with the bloods getting taken. So for 2and 1/2 years she has not been monitored hence she is so ill now. The GP could only apologise as to there mistake. That’s not much good to my mum. We were given a few days and that was 6weeks ago. Mums heart must be strong and she’s eating and drinking so we just take a day at a time. So I don’t have much faith in hospitals !!! I’m glad that you have your life back again to a certain extent. Take care and stay positive well done Doris xx
Oh Doris, that is shocking! It's so sad to hear that mistakes like that are happening, they affect the family as well as the patient. What really frustrates me is that they get away with it, like an apology is going to make it all better! As a former nurse I find it disgusting how doctors can make flippant comments like she did to your husband and that consultant did to me. I'm so sorry that you lost your husband and I hope you get more time with your mum ~ I'm sure you will treasure every minute you have with her x
Hi Fiona, I watched your video with tears in my eyes; tears for you, and tears for me. I was in a similar situation 20 years ago. I have had M.E / C.F.S for 30 years. I walked for the first 10 years, but then for a variety of reasons it got worse and I had to start using a wheelchair, and then I was bedbound. Although I had had a formal diagnosis of M.E, my relapse was dismissed as psychological, and I had very inappropriate treatment in a psych ward. I am convinced that the fact that I have never recovered full use of my legs is because of the treatment on that ward. I was also spoken to in an unforgivable way - my doctor even called me a 'bitch'. Eventually I discharged myself (I was never sectioned), and went home, and tried to build a life for myself. I had to have counselling to get over my treatment in hospital, and it still gets to me sometimes. I was never well enough to put in a formal complaint. Thanks to my wonderful family and amazing friends I do have a good life now. I get out and about in my wheelchair as much as possible and am always busy. I have to have quiet days at home inbetween to recover, but I always have something to look forward to. I struggle with my weight; I'm currently a size 20. My weight came on when I started using the wheelchair, and comfort eating. I've gone from a size 12 to a 24 but have lost some weight with Slimming World. Obviously I don't have the neuropathy and spinal damage you have, but I relate to your experiences in hospital and your ability to adapt and overcome so much. On a positive note, I met the best physiotherapist I've ever had in 30 years this week. She really 'got' me, and my conditions and apologised for the way I'd been failed in the past. Sometimes, it's not just physical healing we need, but emotional healing from painful events in the past. May we both continue to find them on our journeys. Wishing you love and solidarity, Fran x
Hi Fran, thanks so much for sharing your story with me! I've never heard of anyone in a similar situation to me and I had goosebumps when I was reading this. It's ridiculous that so called health professionals can get away with treating people like that - they have no idea what effect their treatment has on us, either at the time or for years to come. I still feel physically sick when I think about it and a lot of the anxiety I suffer from stems from that time. I'm so glad you have the support of friends and family ~ I don't know where I'd be without mine. Keeping busy definitely does help as long as you have the 'down time' in between and I always try to have something to look forward to as well. I'm glad you have found a good physiotherapist and I hope you continue to improve. Thanks again for watching and sharing x
@@OurCRAZYLifeScotland What I find most upsetting about your story is that it is so recent. What happened to me in 1998 was outrageous enough; I was being treated like a hysterical attention seeker when CFS had been recognised and classified as a neurological auto immune disease by the World Health Organisation since 1992. To get the kind of treatment and attitude that you did in 2014 is unspeakable. I feel your anger and frustration, but I also feel your determination not to let that bitterness and grief keep you locked in the past. There IS life in a wheelchair; it may not be the life we'd choose, but it can still be a good life. Here's to creating that life as best we can. xx
Absolutely! Thanks so much, you're really helping and inspiring me with your comments x
Oh my god Fionawhat a fiasco they put you through,you should have sued them.you must have thought you were going mad!! Thank goodness the other hospital helped you to find out what was wrong. You seem to be a strong strong lady.I would definitely have sued them.Takecare x
Believe me, I tried to sue them! Unfortunately because I didn't get a formal diagnosis no solicitor would take it on because they could never prove it was the hospital to blame and not another symptom of my 'mystery illness'. Regardless of the outcome the care was shocking and I would never go back there. Thankfully the hospital I went to restored my faith in the NHS. Thanks for watching and commenting x
@@OurCRAZYLifeScotland I looked after my ailing dad for four years(bedridden) thecarers coming in to help were atrocious!! The care he received in respite was worse ,evev though he was placed there by the NHS so we sued them for neglect and won.I’m so sorry Fiona you must feel so betrayed by them.By the way Fiona l have three grown grandchildren 1 a nurse and 1 a sister 1 training to bea nurse who all feel the same way in fact the youngest one is thinking of looking elsewhere!!look after yourself my dear and take care x
It's disgusting that so called carers get away with it so I'm so glad you fought them and won. I have to say the nurses here at the moment are really good but they are so understaffed and there are just not enough nurses coming through the system and it's no surprise with the state of the NHS at the moment. I had always planned to go back to nursing until I became ill, but seeing it now I'm glad I can't! Take care x
FLIP!!! You’re a flippen superhero!!! I can see why you are always laughing you know what it’s like to be in HELL!! I’m gonna pray for you that you get feeling back in your legs and pain free in your mouth and feet and hands.
Aww thanks so much! I think my family are the real superheroes for being there and supporting me through it all. I've learned to live with it now and it definitely taught me to love life and enjoy every minute because everything can change so quickly. I guess that is the reason I try to laugh and smile and stay positive all the time x
The NHS is brilliant but it's some of the doctors and nurses who let it down. My father had stage 4 lung cancer and was in hospital and one of the nurses was so condescending towards me if I had any questions about my dads treatment and he treated me like I shouldn't bother him with questions. He was using all the technical names for conditions and medication but I knew what he was talking about and could ask the right questions. He asked if I was a nurse and I said no but I research every possibility with my father's treatment and care. He was nicer after that funnily enough. I have CFS and it's terrible. I have a few things wrong with myself but nothing as serious as yourself. My brother-in-laws dad has pernicious anemia and he's in a wheelchair too because of the length of time to be diagnosed. He was in hospital for 10 months and then went to rehab. He's living independently now and is out and about most days the same as yourself. Was something about 2012 as that was the year my symptoms started too. I hope you get the answers about your illnesses your looking for.
Yeah it's amazing how they treat you differently when they realise you know what you're talking about! Thanks for sharing your story, it's the 1st time I've heard of someone else ending up in a wheelchair due to pernicious anaemia. I really appreciate your support x
Absolutely shocking pure neglect no wonder ur peed off 😢😢
I know. They let me down so much and completely changed our lives. Thanks x