Emerging Therapies for Inherited Retinal Diseases

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  • Опубликовано: 29 дек 2024

Комментарии • 34

  • @msamackruth
    @msamackruth Год назад +5

    Can you help those with cone rod dystrophy

    • @AphOrg
      @AphOrg  Год назад +1

      Hi there! If you're looking for resources or services, you can call the APH ConnectCenter's I&R line at (800) 232-5463, Mon-Fri 8 AM - 8 PM. Our experienced representatives can provide free information on virtually any topic related to blindness and low vision.

    • @msamackruth
      @msamackruth Год назад

      Thanks

  • @jiezstv2040
    @jiezstv2040 Год назад +4

    Could be possible to combine gêne therapy and optogenetique to restore good vision for early or mild disease ?

  • @trucmaitran3469
    @trucmaitran3469 11 месяцев назад

    Thank you for the video. It’s helpful.🙏

  • @Hdwrguy
    @Hdwrguy 8 месяцев назад +1

    Looking forward to a cure for Stargardt's disease. My daughter struggles and we have hope for the future.

    • @j-manmarkus7591
      @j-manmarkus7591 7 месяцев назад +1

      God bless you both! I have a good friend whose eight year old daughter has it, too. I pray for a cure everyday!

  • @MingYau-l5j
    @MingYau-l5j Год назад +1

    Please provide all available options: clinically proven or trials in any countries to regain eyesight due to BCD - Bietti Crystalline Dystrophy. Thank you.

    • @AphOrg
      @AphOrg  Год назад

      Thank you for your interest in this topic! We'll take this into consideration when creating future content.

  • @SandraSarina
    @SandraSarina 3 месяца назад

    Question what about Stem Cell Care India? They work with RP patients and do stem cell therapy. Can they be trusted?

    • @AphOrg
      @AphOrg  3 месяца назад

      For information about specific therapies and the organizations that provide them, we recommend reaching out to the Foundation Fighting Blindness, our partners who presented this webinar for us. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org

  • @coolguy79jeffrey
    @coolguy79jeffrey Год назад +1

    does it help for CRVO patients?

    • @AphOrg
      @AphOrg  Год назад

      Hi there! For more information about what's covered in this webinar, please e-mail connectcenter@aph.org or call the ConnectCenter's I&R line at (800) 232-5463. Hours are Mon-Fri 8 AM - 8 PM ET.

  • @jay504814
    @jay504814 10 месяцев назад

    what is new research or clinical trials for Stargardt (ABCA4)? kindly provide some enlight on the topic. Thanks

    • @AphOrg
      @AphOrg  10 месяцев назад

      Hi there! We recommend reaching out to the Foundation Fighting Blindness, our partners who presented this webinar for us. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org

  • @topman5750
    @topman5750 Год назад +3

    I am affecting with x linked retinoschisis ,retina was detached and now filled silica oil to prevent future detachment,please find a aolution for the condition..god help us

  • @RamRK-ti9pf
    @RamRK-ti9pf 9 месяцев назад +1

    Is Cone Rod Dystrophy cured or prevented from complete blindness?

    • @AphOrg
      @AphOrg  8 месяцев назад +1

      Hi there! We recommend reaching out to the Foundation Fighting Blindness, our partners who presented this webinar for us. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org

  • @mac-macanka7765
    @mac-macanka7765 3 месяца назад

    Does it help glaucuma petient?

    • @AphOrg
      @AphOrg  3 месяца назад

      You can find resources about glaucoma on the VisionAware website: aphconnectcenter.org/?s=glaucoma&submit=
      For information about specific therapies, please reach out to the Foundation Fighting Blindness, our partners who presented this webinar for us. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org

  • @samsonyunited
    @samsonyunited 11 месяцев назад

    Any research being done for people who have had retina detachment and later have retina damage following treatment?

    • @AphOrg
      @AphOrg  11 месяцев назад

      Hi there! We encourage you to contact the Foundation Fighting Blindness, our partners who presented the webinar, as they keep most up-to-date on research that’s being done in this space. www.fightingblindness.org

  • @sannaslife6395
    @sannaslife6395 11 месяцев назад

    Any help for people who have optic nerve damage with remaining vision

    • @AphOrg
      @AphOrg  11 месяцев назад

      Hi there! VisionAware has a comprehensive section describing numerous eye conditions and may have information about your specific condition. aphconnectcenter.org/visionaware/eye-conditions/
      We also recommend reaching out to the Foundation Fighting Blindness, our partners who presented this webinar for us. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org

  • @ALex-yv8xw
    @ALex-yv8xw Год назад

    What about primary ocular histoplaamousis ?

    • @AphOrg
      @AphOrg  Год назад

      Hi there! For more information about the topics in this webinar, please call the APH ConnectCenter's toll-free I&R line at (800) 232-5463 (Mon-Fri 8 AM - 8 PM ET) or e-mail connectcenter@aph.org.

  • @DanGodin-v7x
    @DanGodin-v7x Год назад

    How does one get involved in a clinical trial? I have been diagnosed with Retinal Pigmentosis caused by the RHO gene. I am now apparently legally blind but not looking forward to complete blindness one day.
    I received more information on this link than Ive received from all of the doctors I have been to and for once I feel hopeful.

    • @AphOrg
      @AphOrg  Год назад

      Hi there! We suggest contacting the Foundation Fighting Blindness. You can find more information about them at www.fightingblindness.org/

    • @jt-cx1rz
      @jt-cx1rz Год назад

      @user-jl9ne5hc9z can you tell me where to test your gene at and when did you have your tested? I also have RP. Thks

    • @SandraSarina
      @SandraSarina 3 месяца назад

      I am also suffering from retina pigmentosa in a far on stage. I’m 60 now and I have a very small tunnel and they look very blurry in the centre of the eye I stumbled across. stem Cell Care India and they take On patients with retina pigmentosa and give them stem cell therapy . I made contact with them but I still have a lot of question marks can you advise me about this advanced therapy? Thank you

  • @amyahlquist3436
    @amyahlquist3436 8 месяцев назад

    Are they looking at the PRPH2 issues? The hardest part for me is not being able to fight this without treatment options I have already lost all of my night vision and it’s hard for me to read with all the spots I found out that I had this 2 1/2 years ago. I’m devastated.

    • @AphOrg
      @AphOrg  8 месяцев назад

      We recommend reaching out to the Foundation Fighting Blindness, our partners who presented this webinar for us. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org

  • @sharadjadhav4736
    @sharadjadhav4736 9 месяцев назад

    Does molecular hydrogen therapy helps curing retinal vasculitis or retinal diseases?

    • @AphOrg
      @AphOrg  9 месяцев назад

      Hi there! The Foundation Fighting Blindness, our partners who presented this webinar for us, might have the information you're looking for. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org