Emerging Therapies for Inherited Retinal Diseases
HTML-код
- Опубликовано: 7 окт 2024
- The Foundation Fighting Blindness is the world’s largest private funder of retinal degenerative disease research. This webinar will highlight emerging therapies for inherited retinal diseases, including retinitis pigmentosa, Stargardt disease, and leber congenital amarosis.
Thank you for the video. It’s helpful.🙏
Looking forward to a cure for Stargardt's disease. My daughter struggles and we have hope for the future.
God bless you both! I have a good friend whose eight year old daughter has it, too. I pray for a cure everyday!
Can you help those with cone rod dystrophy
Hi there! If you're looking for resources or services, you can call the APH ConnectCenter's I&R line at (800) 232-5463, Mon-Fri 8 AM - 8 PM. Our experienced representatives can provide free information on virtually any topic related to blindness and low vision.
Thanks
Could be possible to combine gêne therapy and optogenetique to restore good vision for early or mild disease ?
I am affecting with x linked retinoschisis ,retina was detached and now filled silica oil to prevent future detachment,please find a aolution for the condition..god help us
Please provide all available options: clinically proven or trials in any countries to regain eyesight due to BCD - Bietti Crystalline Dystrophy. Thank you.
Thank you for your interest in this topic! We'll take this into consideration when creating future content.
Is Cone Rod Dystrophy cured or prevented from complete blindness?
Hi there! We recommend reaching out to the Foundation Fighting Blindness, our partners who presented this webinar for us. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org
does it help for CRVO patients?
Hi there! For more information about what's covered in this webinar, please e-mail connectcenter@aph.org or call the ConnectCenter's I&R line at (800) 232-5463. Hours are Mon-Fri 8 AM - 8 PM ET.
Question what about Stem Cell Care India? They work with RP patients and do stem cell therapy. Can they be trusted?
For information about specific therapies and the organizations that provide them, we recommend reaching out to the Foundation Fighting Blindness, our partners who presented this webinar for us. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org
Does it help glaucuma petient?
You can find resources about glaucoma on the VisionAware website: aphconnectcenter.org/?s=glaucoma&submit=
For information about specific therapies, please reach out to the Foundation Fighting Blindness, our partners who presented this webinar for us. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org
what is new research or clinical trials for Stargardt (ABCA4)? kindly provide some enlight on the topic. Thanks
Hi there! We recommend reaching out to the Foundation Fighting Blindness, our partners who presented this webinar for us. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org
Any research being done for people who have had retina detachment and later have retina damage following treatment?
Hi there! We encourage you to contact the Foundation Fighting Blindness, our partners who presented the webinar, as they keep most up-to-date on research that’s being done in this space. www.fightingblindness.org
Are they looking at the PRPH2 issues? The hardest part for me is not being able to fight this without treatment options I have already lost all of my night vision and it’s hard for me to read with all the spots I found out that I had this 2 1/2 years ago. I’m devastated.
We recommend reaching out to the Foundation Fighting Blindness, our partners who presented this webinar for us. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org
Any help for people who have optic nerve damage with remaining vision
Hi there! VisionAware has a comprehensive section describing numerous eye conditions and may have information about your specific condition. aphconnectcenter.org/visionaware/eye-conditions/
We also recommend reaching out to the Foundation Fighting Blindness, our partners who presented this webinar for us. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org
What about primary ocular histoplaamousis ?
Hi there! For more information about the topics in this webinar, please call the APH ConnectCenter's toll-free I&R line at (800) 232-5463 (Mon-Fri 8 AM - 8 PM ET) or e-mail connectcenter@aph.org.
How does one get involved in a clinical trial? I have been diagnosed with Retinal Pigmentosis caused by the RHO gene. I am now apparently legally blind but not looking forward to complete blindness one day.
I received more information on this link than Ive received from all of the doctors I have been to and for once I feel hopeful.
Hi there! We suggest contacting the Foundation Fighting Blindness. You can find more information about them at www.fightingblindness.org/
@user-jl9ne5hc9z can you tell me where to test your gene at and when did you have your tested? I also have RP. Thks
I am also suffering from retina pigmentosa in a far on stage. I’m 60 now and I have a very small tunnel and they look very blurry in the centre of the eye I stumbled across. stem Cell Care India and they take On patients with retina pigmentosa and give them stem cell therapy . I made contact with them but I still have a lot of question marks can you advise me about this advanced therapy? Thank you
Does molecular hydrogen therapy helps curing retinal vasculitis or retinal diseases?
Hi there! The Foundation Fighting Blindness, our partners who presented this webinar for us, might have the information you're looking for. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org