I had my first encounter with the disease 30 years ago and after seeing so many drs, eventually paid out of pocket for a specialist eith many that I did not have, I decided to tey on my own by just listening to my body. Looking back was I did something like pacing the first year - did not feel better really, except fir I did not have to push all the time. Changed my diet and got to a point of health I did not even know was possible after 4 months. Because I did not know what the illness was really I went in and live an overfilled life and had a few relapses over the years. Struggling with severe long covid now and I have to prioritise my health once again. After 4,5 years I am starting to see the light again. Still a long, long way to go, but I am doing it. Toby your program seems to be the closest to my own experience and your you-tube videos kept me sane through this journey. Thank you very much.
Thanks again for your words of wisdom Toby as everyone is so true and to hear those recovery stories is great for anyone who is suffering as I once was too. I still have my highs and lows but I listen to my body and no longer push myself and rest when my mind and body tells me to do so. Please do not put your faith in Doctors as very few of them recognise CFS and refuse to diagnose you with it as there is no quick fix it pill so you are better to get someone like like Toby's help as he and his clients have gone through the hard yards and come out the other side. Happy New Year to you all and believe there is hope for a better life because there is if you put in the time & effort and get the right help😊
👍 yes your so right!! We listen to the doctors and do what they say, believing them! We need to learn and do our own research..I find that I’m the one actually telling the healthcare professionals all about it and they’re amazed…they need to know more about fibromyalgia, pots and chronic fatigue etc..Thank you for your videos and teaching us about baseline as I struggle with that. I’m learning though, constantly learning and I’m glad because I know so much more about my health conditions now so I can help myself!
It's such a shame. It's only when I came across your channel that I finally understood that I was going through repeated push -crash cycles. And in the end following your advice has got me to the stage where I am enjoying my life. I won't say I can do anything I want because I want to be superman🤣🤣🤣🤣. But if people could be given your advice from the beginning, we'd help people recover. I see young people on the news recently dying of CFS, and wonder how many have suicide on their death certificates. I certainly got to that stage after years of suffering.
@ezza1236 in most cases, it is due to the digestive system completely collapsing. Whitney Dafoe is an example of someone with very severe ME/CFS. He has to be tube fed directly into his intestines. Others are like him, where a nasogastric (ng) tube is no good, since the stomach doesn't process the food. Unfortunately there are some who have starved to death due to complete shutdown of the digestive system. Whitney Dafoe's Dad is actually a research scientist, & due to his adult son's severe illness, is dedicating many hours of research into the condition. I personally don't believe all ppl with a diagnosis of ME/CFS share the same condition. My sister was diagnosed with 'CFS' about 10yrs ago, but she admits now it was a false diagnosis. She has chronic fatigue & chronic pain, but she doesn't have ME/CFS.
Sir, some people here allege that ME/CFS patients are going to die by the illness itself? Is that true? Are there such clinical cases and how often it happens?
I had my first encounter with the disease 30 years ago and after seeing so many drs, eventually paid out of pocket for a specialist eith many that I did not have, I decided to tey on my own by just listening to my body. Looking back was I did something like pacing the first year - did not feel better really, except fir I did not have to push all the time. Changed my diet and got to a point of health I did not even know was possible after 4 months.
Because I did not know what the illness was really I went in and live an overfilled life and had a few relapses over the years. Struggling with severe long covid now and I have to prioritise my health once again. After 4,5 years I am starting to see the light again. Still a long, long way to go, but I am doing it.
Toby your program seems to be the closest to my own experience and your you-tube videos kept me sane through this journey. Thank you very much.
Thanks again for your words of wisdom Toby as everyone is so true and to hear those recovery stories is great for anyone who is suffering as I once was too. I still have my highs and lows but I listen to my body and no longer push myself and rest when my mind and body tells me to do so. Please do not put your faith in Doctors as very few of them recognise CFS and refuse to diagnose you with it as there is no quick fix it pill so you are better to get someone like like Toby's help as he and his clients have gone through the hard yards and come out the other side.
Happy New Year to you all and believe there is hope for a better life because there is if you put in the time & effort and get the right help😊
👍 yes your so right!! We listen to the doctors and do what they say, believing them! We need to learn and do our own research..I find that I’m the one actually telling the healthcare professionals all about it and they’re amazed…they need to know more about fibromyalgia, pots and chronic fatigue etc..Thank you for your videos and teaching us about baseline as I struggle with that. I’m learning though, constantly learning and I’m glad because I know so much more about my health conditions now so I can help myself!
It's such a shame. It's only when I came across your channel that I finally understood that I was going through repeated push -crash cycles. And in the end following your advice has got me to the stage where I am enjoying my life. I won't say I can do anything I want because I want to be superman🤣🤣🤣🤣. But if people could be given your advice from the beginning, we'd help people recover. I see young people on the news recently dying of CFS, and wonder how many have suicide on their death certificates. I certainly got to that stage after years of suffering.
The deaths from ME/CFS are exactly that. Not suicide.
@@lifesong8484What you mean...?!? Am I going to die by CFS...?!?
And how do you know that?
Dying of cfs LOL omg mate
@ezza1236 in most cases, it is due to the digestive system completely collapsing. Whitney Dafoe is an example of someone with very severe ME/CFS. He has to be tube fed directly into his intestines. Others are like him, where a nasogastric (ng) tube is no good, since the stomach doesn't process the food. Unfortunately there are some who have starved to death due to complete shutdown of the digestive system. Whitney Dafoe's Dad is actually a research scientist, & due to his adult son's severe illness, is dedicating many hours of research into the condition. I personally don't believe all ppl with a diagnosis of ME/CFS share the same condition. My sister was diagnosed with 'CFS' about 10yrs ago, but she admits now it was a false diagnosis. She has chronic fatigue & chronic pain, but she doesn't have ME/CFS.
@@lifesong8484@lifesong8484 What do you believe to be worthy of a diagnosis of CFS?
Thankyou Toby as always….So so true and helpful ❤️
Thank you Toby❤. I need to dig deeper what my biggest issue is at this point and see if I can direct myself there😊
Great video. Do you have web page that shows your program cost US $. If so could you include link of cost page?
Sir, some people here allege that ME/CFS patients are going to die by the illness itself?
Is that true? Are there such clinical cases and how often it happens?
@@minavonwolf1681 It's extremely rare for ppl to die from ME/CFS.
I've had CFS for 40 yrs; I'm just treating the symptoms.
Nervous system dysregulation, vagus nerve. Check this out.
Same, 💕🙏
The ME/CFS Society of Qld also will tell you you're best to not exercise or work because it's dangerous for ME/CFS sufferers to exercise or work.