Cervical Instability in Ehlers-Danlos Syndrome and POTS
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- Опубликовано: 23 авг 2024
- Ross Hauser, MD explains the approach used at Caring Medical Regenerative Medicine Clinics for treating cervical instability and its various debilitating manifestations. With patients suffering from conditions caused by disabling chronic neck instability due to Ehlers-Danlos Syndrome and/or suffering from POTS, Prolotherapy can be a life-changing treatment. Since 1993, our clinic has been helping patients get properly diagnosed and treated for EDS and chronic pain that it causes.
If you have specific questions about your case for Dr. Hauser and our other providers about your case, please reach out to us directly through email: drhauser@caringmedical.com.
If you would like our team to review your case and possibly help you in our office, you can reach out to our team: www.caringmedi...
Or call to speak with Dr. Hauser's team directly: 239-308-4773.
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*DISCLAIMER: As with any medical treatment, no guarantees or claims of cures are made as to the extent of the response to treatment that every person experiences. The video represents only the featured person/people’s experience or opinion. Every therapy/treatment has patients who experience varying levels of success and failure. Results may not be the same from patient to patient, even with a similar diagnosis, as the body’s internal status is unique to each individual patient.
Thanks to bensound.com for the music. Thank you for watching!
This is really interesting. I suffer from EDS, POTS, and mast cell but one thing that stood out is the bone in my neck and how much it hurt growing up, as well as my inward curve in my spine. I’ll definitely be keeping this video in mind. Thank you
Thanks Dr. Goldblum
Good to know I'm not alone in this experience
I'm going for Genetic Testing for EDS, pots and mast cell. Been diagnosed with fibromyalgia starting to think I was misdiagnosed
This is very interesting... this is very interesting to me as someone who has hEDS and suspects CCI. Thank you Dr. Hauser!
Thank you for your kind words all.is.grace. :) If you would like to see Dr. Hauser for your case, you can submit your case for review and we will let you know if you sound like a good candidate for our clinics. We wish you all the best in health!
In the exact same boat hello fellow zebra
Can it cause muscle waste ?
@@RobdeKlerk-qg6lc not that I'm aware of...but I'm not an expert on all the things... Just my own experience.
@@allisgrace1313 Thanks ,
Where are you? I’m in northern Ontario, I have EVERY symptom of cervical instability , but my doctor does not “seem” to think so...I’ve become depressed, no energy, I used to be active, I love walking, but due due to the unbalance, i rarely ever go walking...I loved hiking, sadly I don’t do it because of my weight gain, I’m desperate for help.....I cry most days...I’ve prayed so hard for healing, I can’t give up on praying.. here in Canada we don’t have the machines to do these testing, I asked. So where does this leave me? I’ve seen an ENT, she looked in my ears as though any family practitioner would. I waited 14 months to see an ENT, you couldn’t imagine my joy when I was finally able to see her, only to leave there in tears and with a 128.00 bill for blood work, in addition, gas, food, meals. There was no MRI. I had an audiology test the day prior, that concluded I had “slight” hearing loss in my left ear. At the same time of these tests, the “bongining” or drumming/honing” as I like to describe them (never experienced ringing or piercing sounds) was more active in my RIGHT ear when she did the hearing test in my left ear, so the tests she performed, I felt were “distracted” by these noises coming from my right ear! 2 years ago, I backed up into a tree, banged my head on the head rest...it hurt ALOT, but I drove home feeling extremely tired, I just wanted to sleep, next day my entire head was hurting, mostly my neck. I assumed it was simply from the impact, so I did not see a Dr. And the pain eventually went away. Then came this virus, lockdowns, etc., which delayed everything. Finally, I was able to see an ENT March 25. As mentioned, I left there in tears feeling discouraged, desperate, and more depressed than ever. Her recommendation was to start taking Lipoflavinoids and to call the Canadian Hearing Society to “get counselling”, I had faith in the system. But I don’t believe a councillor can help me. Please HELP!
Hi Angelle, So very sorry to hear about everything you've been going through for the past couple of years since your accident. We would be happy to review your case and see if it sounds like we can help you here. We do treat patients from Canada, although we understand it is not feasible for everyone to travel nor can we accept every case. But here is a link to our case intake form for cases like yours and you can submit it for review if you would like our help: www.caringmedical.com/neck-patient-candidate-form/
We wish you all the best in healing and finally finding a doctor who can get to the bottom of your cervical instability so you can get on with your life!
Really interesting. I've heard this theory before, but always thought that it could not be cured by dealing with the neck joints that I have had a problem with since my teens.
I do not have EDS, just hypermobility and probably genetic factors related to hyperadrenergic POTS. Now at 50 my spine & neck are way more unstable than in my teens. I was told to stop stretching etc. decades ago, but I think it's the age and collagen changes that made this much worse. Not only for the neck but for the blood vessels and blood pressure regulation.
Now of course I understand that these things are linked (fight/flight syndrome). Intriguing, not that I could get any of these treatments in my country.
Thanks, this is very informative. I'm 47, and only just realizing I probably have h-EDS (I'm waiting to talk to a geneticist in a month). I don't think I have POTS (although I often get fairly lightheaded when I get up), but I have scioliosis that starts in my neck, a bit of a bulge in one of my discs, and a ton of neck pain. If the vertebrae in the neck are out of place, would that usually lead to instability, or could the pain be something else?
I have stenosis from my C2 all through to my C7 I’m 70 and have major digestive issues when I was young my body was beyond most ppl movement even as teenager I could pop my hip out of place many tests and loads of ideas but no resolving of pain and issues it 😊
oh no - we are sorry to hear this!
Interesting I’m finding info on this here. I’m in Fort Myers. Met you when you first moved here. Hi, from your Lotus Blossom Clinic friends.
If there's Spondylolisthesis of C-3,4,5, is your therapy appropriate?
Wow I cant believe I stumbled upon this. If only I weren't so far away. Do you offer consultations over the phone?
Been struggling with "anxiety and panic disorder" for almost 3 years with pretty much every symptom of POTS. Also have seen chiropractors semi recently who kept telling me I have issues in my neck including reverse cervical curve and misalignment in my upper cervical spine
Hi Steve, Yes, let's discuss your case with our team. Cervical instability, especially upper-cervical, is one of our specialties. We treat patients who travel here from all over the world for treatment because they are becoming disabled and want a more curative treatment, instead of barely "managing" pain and symptoms. Cervical issues eventually become completely debilitating for many people. We see patients who have been struggling with it for decades prior to coming in, but glad that you have found it sooner than that. Still, 3 years is a long time to be struggling with anxiety, POTS, and other cervical-related issues. Sorry that you have been going through all of that. We would love to help you! Please reach out to us directly to discuss your case privately: info@caringmedical.com or through our CaringMedical.com site or call our team directly at 708-393-8272.
Thank you. I wish you were on the east coast! My daughters neck is locked right now
You're welcome, patandemy. Sorry to hear about your daughter. We treat patients who travel here from the east coast, but we do understand that travel is not feasible for everyone. Hope that she can get relief from a provider locally. If you feel that you would like our team to review her case and possibly see her as a patient here in the future, you are welcome to reach out to us directly through our website. Wish you and your family all the best in health!
@@CaringmedicalProlotherapy Thank You very much. It will be heavy on my mind for the future. We see a pediatric chiropractor although she’s older, have been since she was young. It helps but it’s a temporary fix. Atlas and Axis subluxation is a issue. We’ve gone to PT to strengthen the area. It took a few visits to ‘unlock’ her
Thank You so much.
What about instability via retrolisthesis and straightening of the lordosis?
I love learning
We are glad we could help!
Interesting. Diagnosed "hypermobile" my pregnancy at 40 causedy joints to crumble. Both knees (which are now sliding apart, get hung up and make my viens pop on my feet) both shoulders (left shoulder has almost 2 inches of bone ground off) and my neck..all crumbling. 15 drug allergies, so far. Mast cell is understatement. My lungs collapse when intubated. I have asthma that is hereditary. Surgeries have to be a case of "surgery to I die". 45 min is all my assinged anesthetist wants me under for. San diego naval advanced ortho team told me they have never seen arthitis like mine, outside of theory in a textbook. They placed the chance of being born like me 1 in 10 mil. I am a complex, hot mess of strange. The 10 plus royal bloodlines in my family tree....my doc thinks that is a factor. My appendix grew inside my body for months..until it was almost 5 inches long and wrapped around my colon. I almost died.. It looked like an alien. This is not for sissies. San diego Naval docs sent a message to me "Please tell patient SDNO thinks she is tough and brave." My son did inherite it. He does not have it as bad...his heart scan was good. I have never had a heart scan. I am a complex bundle of weird.....
I’m in San Diego also. Are you still in the area and if so did you find any good local doctors to help? Thanks in advance
Great video!!
I am just now learning about ehlers danlos syndrome. And i literally have every single symptoms. Every one.
I have all these symptoms and I cant believe my doc has said my symptoms arent linked to my cervical instability
Could EDS cause Epilepsy? I have both, and I read that researchers are learning towards the idea that they are comorbities with each other.
As a hEDS patient, I'm starting to feel some POTS like symptoms (increased heart rate when standing, some dizziness, difficulty breathing). I really think I might have a similar problem like the one associated in the video (As a hEDS patient). Are you reachable over the phone? I'm out of the US that's why. Plus am I too young for such a treatment? Thank you.
Hi Marco, Thanks for reaching out and sorry that you are experiencing increasingly worse symptoms from joint instability. We do treat patients who travel here from outside the US, including teenagers/young patients, but we understand travel is not feasible for everyone. Sorry we do not have referrals outside of our office. You may want to check out our EDS videos and webinars on our playlist, if you wanted more in-depth information about our approach to testing and treatment for hEDS. ruclips.net/video/ex3xOUydzo4/видео.html
We wish you all the best in health and healing! Hope you can find the help you need locally. If you feel that you'd like to be seen in our office in the future, please reach out to us directly. Take care, Marco.
Hi caring medical, are you able to inform me of any clinic in the UK that helps to resolve upper cervical instability with prolotherapy? If you are aware of any practitioners
Hi Free From Crohn's & Colitis, Glad that you found the video helpful. We do not have a clinic in the UK and actually treat a good amount of patients from the UK because there are not specialty clinics there for Prolotherapy to C1-C2, tho we completely understand that not everyone can travel for medical care, especially right now. We can only speak from our experience and the treatments we've incorporated into our practice to see complex patients with cervical instability. If you are interested in our opinion on your case in the future, feel free to reach out to us through our website or email. Wish you all the best in health.
hello everyone i have Hypermobility Ehlers-Danlos syndrome and i’m polling other people with eds on whether they think we should change The NPRS to 1-15 for patient of eds please tell me what you think
so cervical instability can cause POTS syndrome?
Yes it can. If you have questions about your case specifically and want to see Dr. Hauser as a patient, our clinical team would be happy to talk more about your symptoms. You can fill out a case intake form on our site: www.caringmedical.com/head-neck-specialist-visit/
@@CaringmedicalProlotherapy I was told this as well. It’s my understanding in causes autonomic dysfunction with misalignment.
I suffer from hEDS and get so much neck pain and pressure in the base of my head. Once I was feelin my neck for swelling and as I gingerly touched one side of my neck I felt and heard a vertabrea pop into position. I could immediately feel some swelling go down, but it was so painful. Like getting electrocuted all over my head.
I also have a schmorl's node that get ignored but causes a great deal of discomfort. I just am repeatedly told i shouldn't be able to feel it and they do not cause pain. Dr's always ignore I am hyperaware due to my hEDS.
Hi DepressinglyOptimistic 2020, So very sorry to hear about the pain you're dealing with and the mental and emotional stress of your doctors ignoring or not believing you. Sounds a lot like many of our EDS patients who tell us they were told things like this for years. Just awful! One of our patients, Stefanie recently discusses this in her video talking about before and mid-treatment series: ruclips.net/video/xbQq_lVP64Y/видео.html
If you would like our team to review your case and see if you are a good candidate for our clinics, we would be happy to help. We're also hosting an EDS webinar on Facebook Live on July 21st, if you are interested in a Prolotherapist's perspective on treating EDS. We know EDS presents many challenges, and we hope that you find the best tools and treatments for you to navigate your journey. Wish you all the best in health!
@@CaringmedicalProlotherapy Thank you
Intresting, I am hurting so bad. Where are you guys located?
As for the cervical neck what do you think about neck pain that crunches and clicks when I feel it beside c3 vertebrae, feels like a crunching sensation when pressing down on it and could this benefit this problem?
Hi ChaosCreationsTV, Great question and sorry to hear that you're having pain and crunching symptoms! Crunching/clicking sounds are indicative of spinal instability. The neck is one of the primary areas we specialize in and in our office we can see the spine in motion using Digital Motion X-ray which shows the specific vertebrae moving and where the instability is coming from, as well as any curve correction that may be necessary to alleviate a person's symptoms. Then we tailor a Comprehensive Prolotherapy treatment to each patient's needs. If you would like our team to review your case in more detail and see how we may be able to help you, we would be happy to do that! To discuss your case, please email us directly through our CaringMedical.com site or info@caringmedical.com. You can see a lot more about cervical instability and the associated symptoms and treatments on our website too. Hope we can help you soon. Take care for now. :)
How are u doing now? I have the same symptoms
Haven’t got any prolo treatments to my cervical spine yet but i will in the future, I haven’t been bad actually, i had prolo injections of my occipital tendons tho and that helped, but not the cervical yet but honestly i haven’t had any issues really with my neck but ill still get treatments eventually because i want to tighten the ligaments fully👌👌
Omg. Thats exactly what my neck x-rays look like. I have no curve in my neck and i suffer with pain every day.
We are so sorry to hear that you are in pain every day Maria. We would love to hear more about your case, give us a call at 239-308-4773 or email info@caringmedical.com. Wishing you all the best!
I'm currently having the prolotherapy treatment in my neck. I have EDS. My doctor hasn't mentioned trying to fix the curve. My neck is very straight. Does that thing you hung around your neck have a name? I could discuss it with my doctor.
Hi genegirl, Thanks for reaching out! You would first ask your doctor about correcting the curve and see if they have their own suggestions based on knowing your case. We utilize cervical/head/chest weights which are all individualized to patients, based on the needs and how they are progressing with treatment. Wish you all the best with your Prolotherapy treatments!
Do you know of anyone in Australia that can help me with EDS please 🙏
Wow, I have a lot of these symptoms. I have Ehlers Danlos but I also have CMT and hip dysplasia... things can be rough sometimes. I would say that I feel fatigued 80% of the time
Hi Between The Magic, Thanks for sharing and we totally understand how rough it can be for people with EDS. It takes a lot of strength, courage, and trouble shooting to do some basic things that people without EDS take for granted. We love our EDS patients. Hope the videos help you better understand your condition and maybe even some possibilities for you and your healthcare team to consider. If you feel that you may need our center in the future, please feel free to tell us more about your case: www.caringmedical.com/conditions/prolotherapy-eds-hypermobility/#get-help-now
Take care. We wish you all the best in health!
@@CaringmedicalProlotherapy do you work with CMT patients as well? Unfortunately I’m in a smaller area and have a hard time finding drs that know about these two diseases
Sadly I’m in Uk 🇬🇧 I’d love this treatment
Omg. I have all the symptoms. how do I contact him?
Hi Sirri, We would be happy to talk with you about your case and see how we can help. You can complete a case intake form to tell us more about your specific symptoms and history on your case here on our site: www.caringmedical.com/head-neck-specialist-visit/ There is all of the information on our Florida office location if you would like to see Dr. Hauser there. We look forward to helping you soon!
I want a movie where a dude in a job like this is played by Jeff Goldblum.
LOL that would be pretty interesting
So it's can be treatable
Hi bisma, yes it is.
What kind of doctor can do these procedures?
A Prolotherapist! Dr. Hauser is a Board Certified Physiatrist - performing Prolotherapy!
True story.
Hi would you be able to see someone from Australia via video, for diagnosing purposes?
Hi Kristopher, Thanks for the question. We do have patients from Australia who we see for testing and treatment, yes. We have a detailed case review process to make sure that this sounds like an ideal fit and help patients plan for how long they'd need to stay or if they're able to leave and come back for treatments, etc. If it is feasible for you to travel and you would like us to review your case in more detail, feel free to talk with us more about your case: www.caringmedical.com/neck-patient-candidate-form/
We wish you all the best in health!
Ive been seeing a chiropractor for a year now and between him and my doc i have osteoarthritis in my C4-6. I have been seening my doc for joint pain in my hand and wrists. Went into my chiropractor and told him what was going on. He suggested it might be ehlers danlos. Im doing my due diligence on what this is and stumbled across this video. Everything makes sooo much sense now. Is there a starting point to see if this is what I might actually have. Any advice would be most welcomed.
Robin we are so glad you stumbled onto our page! We’d love to help you. Dr. Hauser is very great at what he does which is why so many travel from all over the globe to see him. We would absolutely love to hear more about your case and help you get a diagnosis. Please reach out to us directly
What about someone with rods in the back?
I have this I believe
Do you recommend any neck weights that I could buy online? I follow a RUclipsr who came to your clinic and she mentioned some neck weights in one of her videos that she recommended and I think was prescribed at your practise. Kind regards. Holly 💛
Hi Holly - the weights that we use for our patients are specific to them and their needs. We would not want to suggest any if we had not first done an exam as not all individuals need the same weights. Please reach out to us directly and we can help you get scheduled for an exam and consult!
Does this work for eds if you have spinal fusion t2-L3 from scoliosis
This is a great question - we have treated many with EDS and Prolotherapy could be a great treatment option for you! We have a lot of information on our website about EDS and hypermobility disorders if you'd like to research further! caringmedical.com/prolotherapy-news/prolotherapy-ehlers-danlos-syndrome/
Is there any help in Oregon?
We cannot provide referrals to other providers, especially if we have not seen the individual ourselves. We can recommend that you research Prolotherapy providers in your area and start there!
How do I get treatment for this in Brisbane Australia, a Orthopediadic Surgeon? a pshyiotherapist?
Hey Sean any update?
I have Ehlers Danlos and pots I’ve had all kinds of injections & therapy nothing has helped
We would love to help you! We have treated patients with EDS along with pots - there are patient testimonies on our website if you’d like to look there.
But give us a call - someone from our clinical team can learn more about your case, we’d love to help you on your road to healing!
I have fibro and moderate to severe me/cfs, suspect pots and heds due to being very hypermobile. Also have mild form of spina bifida (oculta) sadly Dr doesn't think a referral for diagnosis is needed, or see a connection in any of this (also ADHD) so I continue to deteriorate slowly due to pacing. I fit most of the symptoms on cranial instability and searching for hope I guess. 😅
If anyone has an idea for how I could be taken seriously or how to get appropriate support as I know I'm not the only one in this position.
Hello, i was wondering if you guys could send me a link to the cervical curve restorer? My neck is military and is one of the reason why my CCI is so bad. Thanks!
Hi Jamie, Yes, sounds like a lot of the cases we help here. We do a mix of Prolotherapy and curve restoration with adjustments and individualized weight protocols once the neck ligaments are strong enough. There's more about our program and the various tests here if this helps: www.caringmedical.com/hauser-neck-center/ Wish you all the best in health! If you want our team to review your case in more detail, feel free to reach out directly through our site where you can upload any reports and symptoms, and expand on the history of your condition. Take care for now.
Which doctor do i need to go to for this.
Someone like Dr. Hauser! We are accepting new patients and would love to learn more about your case, give us a call at 239-308-4773 or email info@caringmedical.com
Am I going to end up with a stroke from this?
Hi can cervical instabilities makes us have palpitations left chest pain and low cardiac output
Hi hunter man, Thank you for the question. Yes, one video where that is addressed in more detail is this one: ruclips.net/video/VrJiJ0-LkoM/видео.html
Also, may want to check out the 3-part vagus nerve impairment/cervical instability webinar series in our playlist section, if you would like to really dive deep into this topic. Wish you all the best in health!
Can you have cervical instability without Eds
Hi Maira Hussain, Yes, this is the majority of cases we treat. EDS is not as common on its own as cervical instability which is extremely common. We have webinars and playlists on our channel about cervical instability. It is just very common for people with EDS to have cervical instability as one of their main pain/symptom-causing areas, and we treat a lot of EDS patients. But for the whole population, it is a rare genetic condition.
I have cervical pain .. and post nasal drip through one side for months .. intense pulling pain in back of head once leaning it’s oke .. can post nasal drip hapapen due to cervical instability? Chronic fatigue too ..iam worried its only in one side ..pls give any suggestion..
Me too
This totally sounds like a cranial CSF leak. Worth looking into this. The pulling pain in the back of the head is a classic CSF leak symptom as well as the nasal drip of transparant liquid.
There is lots of information to be found online as well as in Facebook support groups about CSF leaks. Good luck!
What a legend
Anyone who have actually had such injections in their neck/spine and seen good results?
Hi NS, We have a playlist with some patients who wanted to share their experience on our channel, if you wanted to hear directly from them: ruclips.net/p/PLa5ku0Xx5Qp3puPv8h5BOyTBpqHgYhS1R
Can I pleassseeeeeeee seeeeee himmmmm
Hi Alexandra, Yes, we can schedule you to see Dr. Hauser. If you would like to discuss your case more in detail, please email us directly at info@caringmedical.com or through our CaringMedical.com site. Hope to help you soon!
@@CaringmedicalProlotherapy where are you located?
@@dianalauren4910 Hi Diana, Dr. Hauser practices in our Fort Myers, Florida location. We also have a location in Chicagoland. We would be happy to talk with you about your case: info@caringmedical.com.
You are good in researching but you are not good in expanding your business ? Why you dont open your clinic all over globe
Especially in india
Dr. Hauser is very great at what he does and he cannot be in more than one place at a time!