Thank you for your video I am just prior to surgery I had an MRI taken yesterday and just got a phone call by my Doctor today to push up my next appointment to tomorrow my Kienbock’s disease is at stage 4 so I guess the race is on for surgery
hi. I am about to get my surgery for my keinbock disease and was wondering how long was the actual surgery. I've seen most of your videos on this and it gives me home. thank you
I am in stage 1 apparently right now and its been about 4 months since my wrist has been hurting. How long were you in pain before you went into stage 3? I am sorry this happened to you . I kind of know how you feel . I always wanted to play baseball and play in the MLB. I need to get surgery
sorry to hear that but you should get treatment asap Stage 1 isn't so bad. due to misdiagnosis I waited 3 years for the correct treatment. stay strong!
I know how you feel I have stage 4 and had the surgery but I'm still suffering pain to this day 3 years on have you still got pains how are you coping with the Kinebocks ?
Just been diagnosed with advanced stage 3a keinbocks disease I'm 21 so my doctor doesn't want to replace the bone with a mechanical one. Also my ulna is already to small for it to be reduced at all so I don't know what type of surgery to go for. He's talking about a wrist fusion but I just can't deal with that. Any advice would be appreciated
Which surgery did you have? was it the radial bone flap? My husband's lunate has a fracture and he has Kienbocks. we are trying to figure out which surgery to go with. None of them sound promising on Range of Motion, which is a huge concern for him Thanks!
Im very afraid im 24 my hand doctor said thay i may have this disease based of my x rays and ordered an MRI. My pain is very mild but i feel a bit of tingling in the uppfer middle of my wrist closer to my fingers but my lunate in both hands looks irregular. But they didnt say collapsed per say. I just cant imagine myself with a wrist disease im software engineering student and goalkeeper and basketball player
Hey I just had that surgery about 2 months ago and they just took the cast off but I can't move my hand like I used to it before, did that happen to you?
Hi there, thank you for posting a blog regarding your story. Like you I dedicate most my life into sport (badminton), my wrist has been hurting for 1.5 months now. And have been told by my surgeon that I have early stages of Kienbock will need to take out part of Radius. I am wondering if you have an email we can exchange conversation? I am really worried about movement after the surgery.
good morning all,, i just found out i had keinbock stage 3 on the right hand . i resently had sergery on the thumb for tendaitic and thats when i started hurting worse i was just waundering if i could use this as a work related injury ,im a custodian 16 years i love my job and work very hard at what i do ,so work comp dr, said its not related but i think other wise ,could you help me figure this out thanks for you help
when i had my surgery in Feb of 2013, they cut my radius bone in to and shortened the bone and placed a titanium plate and 9 screws. my surgery was filmed, but they refuse to let me watch it for some reason. i do happen to have pics of the x-rays though.
+We Can Be The Greatest I feel awesome. I have complete range of motion and have no restrictions as of now. I am just a few weeks shy of the 3 year anniversary of my surgery, and my wrist feels better than it was when I was younger. I really appreciate you taking the time to ask about it, and I hope you have progressed as well as I have.
hey i just wanted to know what type of procedure did u get done and what were your results. im 29 years old and was diagnosed that i have kienbocks disease yes its the lunar (lunate) bone that gets damages through a fracture and blood supply is lost and deterioration of the bone its painful and the range of motion to the bone becomes limited and painful when doing daily activities as well as when you lift anything above 5-10 pounds it sucks being an active guy and being handy cap with out really being handy cap you become imoble yeah i have been bumbed out lately and my insurance provider here in southern California has recomended a carpelectomy or a( prc) a procedure im compleately against if it aint broken dont fix it. is what i believe im gonna get a lunate transplant done instedi was thinking bout doing stem cells as well to see ehat my out come would be idk. but yeah would love some feed back on how it was and how you are now .
+spartan27 Hello, sorry to hear about your diagnosis. I am not qualified to give you any medical advice. I had a vascularized bone graft, so far so good but still limited mobility. Try to get as many doctors' opinions as possible, the decide. If you don nothing it will get worse! I posted more updates , including my full story with detailed photos: www.wecanbethegreatest.com GET BETTER SOON AND STAY IN TOUCH!
hey!! sorry to hear about your diagnosis. I was diagnosis yesterday I am in a lot of pain and I have a year old boy it's so hard. could you please tell me you personally experience after surgery? how long was the healing process??
I had my surgery in 2011 but i had a proximal row Carpectomy they removed three bones. recovery was a bitch though and i didnt have anything put into my wrist, two years later i had another emergency surgery where the removed the fourth and final bone from the proximal row and did a major clean up of the bone fragments floating around as well as a tissue graft to cushion the empty space where the bones used to be and stop the rubbing and ware of the bones that are there now but arent meant to go together. Now its been 5 years since my diagnosis and I'm still feeling pain and seeing further deterioration. I'm telling you this only so that you will be careful, Kienbocks is a very mysterious disease that doctors are not fully researched in, there is a lot we don't know yet about it, I am learning that the hard way, that even though I've had surgery still lost a lot of the use and I'm still seeing further damage and having pain even 5 years later, and I too was stage 3b. I recommend getting periodic x-rays every year just to make sure things are still okay.
I just had the same three bones removed last week. I'm still in a lot of pain from the recovery. I'm more worried about the stiffness and and shooting pains that are going through my hand and into my wrist. Did you have anything like this?
Yes recovery was very hard, and bone surgery of any kind is worse. If the pain persists or gets worse check with your surgeon, i had an issue with my cast being too tight and not enough padding near my incisions so it was always rubbing and causing me pain, i called and made an appt and had a new cast put on that felt much better. Just take it easy make sure you are resting your wrist as much as possible and take your meds on time something that i discovered which helped so much with pain and sleeping etc is i bought a small bean bag pillow to rest my arm on and because it moulded to my arm it made things much more comfortable for me . Unfortunately kienbocks is an ongoing disease, even with surgery we will never fully be rid of it. And sometimes we see people get it in their other arm as well from over compensating so always take things easy. And like i mentioned before make sure you get periodic xrays if you still have pain a year from now, as recovery will take you a while, especially if it was your dominant hand like me If you guys have anymore questions for me email me at shanti.xox@gmail.com and i will be putting out some short videos to my channel about my kienbocks
Well i have about 5 bean bag pillows in my bed lol my right hand is the one that was operated on and if im on my right side i squish the bean bag pillow beside my head pillow to raise my wrist a little but still letting the pillow mould to my wrist so its not stiff. Same goes for my left side i use the pillows to raise my arm comfortably and if im on my back it depends how i feel but again a squishy pillow helps a lot because i can fix it into different shapes and positions until im comfortable. For me putting my arms on my stomach is painful because the bending of the elbow sometimes makes my arm numb and i get uncomfortable pins and needles. If you still have your cast on its going to be a rough ride of figuring out what works.
Flexin Sexy how is ur wrist now ? X did they misdiagnose you at first I have had wrist pain for 4 months now not getting better seems a lot worse in the morning x
Guys I have posted more updates for you, including my blog with detailed photos: www.wecanbethegreatest.com or email me on kgkasiakg@gmail.com for any questions you may have
hi I've got Kinebocks Disease too I was stage 4 had a piece of bone from my hip too put in my hand I had a metal plate put in but then had it out coz of swelling do you still have pain and swelling in your hand as I do?
+We Can Be The Greatest I've been in pain with it a while my hand is fused now only can move the fingers they just keep giving me pills but they don't work just make me fall asleep all the time lol but it's nice to talk to someone who has the same thing
Thank you for your video I am just prior to surgery I had an MRI taken yesterday and just got a phone call by my Doctor today to push up my next appointment to tomorrow my Kienbock’s disease is at stage 4 so I guess the race is on for surgery
Thanks for this video! I have this in my left wrist as well, and I am meeting with my surgeon on Oct 8 to discuss surgery options. Keep us posted!
+Rebekah Galbraith how are you doing?
Not great. My surgery isn't until Feb 3rd, and the waiting is killing me. I am in a lot of pain.
Thanks for the video! I was just diagnosed with this and going to meet with the surgeon tomorrow. I also have a torn ligament.
+Jenny and Betto Herrera let me know how it went, fingers crossed for you.
thank you for the explanations on this i will be having this done also stage 3 im in but just dont no how long i should hold off im really scared
How are you doing now so many years later?
hi. I am about to get my surgery for my keinbock disease and was wondering how long was the actual surgery. I've seen most of your videos on this and it gives me home. thank you
I am in stage 1 apparently right now and its been about 4 months since my wrist has been hurting. How long were you in pain before you went into stage 3? I am sorry this happened to you . I kind of know how you feel . I always wanted to play baseball and play in the MLB. I need to get surgery
sorry to hear that but you should get treatment asap Stage 1 isn't so bad. due to misdiagnosis I waited 3 years for the correct treatment. stay strong!
+Evelio Varela it hurt for about 3 years :-( seem to be getting better but no full ROM. Make sure you get proper treatment, good luck.
I know how you feel I have stage 4 and had the surgery but I'm still suffering pain to this day 3 years on have you still got pains how are you coping with the Kinebocks ?
Just been diagnosed with advanced stage 3a keinbocks disease I'm 21 so my doctor doesn't want to replace the bone with a mechanical one. Also my ulna is already to small for it to be reduced at all so I don't know what type of surgery to go for. He's talking about a wrist fusion but I just can't deal with that. Any advice would be appreciated
Get better soon!
Which surgery did you have? was it the radial bone flap? My husband's lunate has a fracture and he has Kienbocks. we are trying to figure out which surgery to go with. None of them sound promising on Range of Motion, which is a huge concern for him
Thanks!
Im very afraid im 24 my hand doctor said thay i may have this disease based of my x rays and ordered an MRI. My pain is very mild but i feel a bit of tingling in the uppfer middle of my wrist closer to my fingers but my lunate in both hands looks irregular. But they didnt say collapsed per say.
I just cant imagine myself with a wrist disease im software engineering student and goalkeeper and basketball player
I'm in stage two and had radial surgery in 2002 and you need surgery at stage 2 on
So i have been diagnosed.. when can u drive.. im still in shock
How many days did it take for the swelling and pain to start decreasing? I’m day 2 post op.
Hey I just had that surgery about 2 months ago and they just took the cast off but I can't move my hand like I used to it before, did that happen to you?
Hi there, thank you for posting a blog regarding your story. Like you I dedicate most my life into sport (badminton), my wrist has been hurting for 1.5 months now. And have been told by my surgeon that I have early stages of Kienbock will need to take out part of Radius. I am wondering if you have an email we can exchange conversation? I am really worried about movement after the surgery.
Julzz thanks for your comment shoot me an email at contact@flexinsexy.com
good morning all,, i just found out i had keinbock stage 3 on the right hand . i resently had sergery on the thumb for tendaitic and thats when i started hurting worse i was just waundering if i could use this as a work related injury ,im a custodian 16 years i love my job and work very hard at what i do ,so work comp dr, said its not related but i think other wise ,could you help me figure this out thanks for you help
when i had my surgery in Feb of 2013, they cut my radius bone in to and shortened the bone and placed a titanium plate and 9 screws. my surgery was filmed, but they refuse to let me watch it for some reason. i do happen to have pics of the x-rays though.
+Dave Morrison they took a photo of mine but I wasn't allowed to see - bummer! How do you feel now?
+We Can Be The Greatest I feel awesome. I have complete range of motion and have no restrictions as of now. I am just a few weeks shy of the 3 year anniversary of my surgery, and my wrist feels better than it was when I was younger. I really appreciate you taking the time to ask about it, and I hope you have progressed as well as I have.
+Dave Morrison that's awesome to hear I'm still to see full results so far not bad but limited rom
i just had the same surgery... how do you feel now? years later?
hey i just wanted to know what type of procedure did u get done and what were your results. im 29 years old and was diagnosed that i have kienbocks disease yes its the lunar (lunate) bone that gets damages through a fracture and blood supply is lost and deterioration of the bone its painful and the range of motion to the bone becomes limited and painful when doing daily activities as well as when you lift anything above 5-10 pounds it sucks being an active guy and being handy cap with out really being handy cap you become imoble yeah i have been bumbed out lately and my insurance provider here in southern California has recomended a carpelectomy or a( prc) a procedure im compleately against if it aint broken dont fix it. is what i believe im gonna get a lunate transplant done instedi was thinking bout doing stem cells as well to see ehat my out come would be idk. but yeah would love some feed back on how it was and how you are now .
+spartan27 Hello, sorry to hear about your diagnosis. I am not qualified to give you any medical advice. I had a vascularized bone graft, so far so good but still limited mobility. Try to get as many doctors' opinions as possible, the decide. If you don nothing it will get worse! I posted more updates , including my full story with detailed photos: www.wecanbethegreatest.com
GET BETTER SOON AND STAY IN TOUCH!
hey!! sorry to hear about your diagnosis. I was diagnosis yesterday I am in a lot of pain and I have a year old boy it's so hard. could you please tell me you personally experience after surgery? how long was the healing process??
Diana Kirkwood Check out my website for more detail. I'm nearly 6 months post op and not a bad range of motion but not 100%
I had my surgery in 2011 but i had a proximal row Carpectomy they removed three bones. recovery was a bitch though and i didnt have anything put into my wrist, two years later i had another emergency surgery where the removed the fourth and final bone from the proximal row and did a major clean up of the bone fragments floating around as well as a tissue graft to cushion the empty space where the bones used to be and stop the rubbing and ware of the bones that are there now but arent meant to go together. Now its been 5 years since my diagnosis and I'm still feeling pain and seeing further deterioration. I'm telling you this only so that you will be careful, Kienbocks is a very mysterious disease that doctors are not fully researched in, there is a lot we don't know yet about it, I am learning that the hard way, that even though I've had surgery still lost a lot of the use and I'm still seeing further damage and having pain even 5 years later, and I too was stage 3b. I recommend getting periodic x-rays every year just to make sure things are still okay.
sorry to hear that. yeah I'm prepared for the worst and kind of got used to pain by now. falling on ice the other day didn't help.
I just had the same three bones removed last week. I'm still in a lot of pain from the recovery. I'm more worried about the stiffness and and shooting pains that are going through my hand and into my wrist. Did you have anything like this?
Yes recovery was very hard, and bone surgery of any kind is worse. If the pain persists or gets worse check with your surgeon, i had an issue with my cast being too tight and not enough padding near my incisions so it was always rubbing and causing me pain, i called and made an appt and had a new cast put on that felt much better. Just take it easy make sure you are resting your wrist as much as possible and take your meds on time something that i discovered which helped so much with pain and sleeping etc is i bought a small bean bag pillow to rest my arm on and because it moulded to my arm it made things much more comfortable for me . Unfortunately kienbocks is an ongoing disease, even with surgery we will never fully be rid of it. And sometimes we see people get it in their other arm as well from over compensating so always take things easy. And like i mentioned before make sure you get periodic xrays if you still have pain a year from now, as recovery will take you a while, especially if it was your dominant hand like me
If you guys have anymore questions for me email me at shanti.xox@gmail.com and i will be putting out some short videos to my channel about my kienbocks
Well i have about 5 bean bag pillows in my bed lol my right hand is the one that was operated on and if im on my right side i squish the bean bag pillow beside my head pillow to raise my wrist a little but still letting the pillow mould to my wrist so its not stiff. Same goes for my left side i use the pillows to raise my arm comfortably and if im on my back it depends how i feel but again a squishy pillow helps a lot because i can fix it into different shapes and positions until im comfortable. For me putting my arms on my stomach is painful because the bending of the elbow sometimes makes my arm numb and i get uncomfortable pins and needles. If you still have your cast on its going to be a rough ride of figuring out what works.
Shayleigh Xo thanks for sharing your story I'm over a year in now and all seems good :-)
How is it now I’m only 18 and scared af I need surgery in November
Same I need surgery soon I’m 23
Hi. I have the same problem with my wrist, but surgery is not done yet. Can you write more, how you feel now?
+Edvinas Daujotas any news on your condition? I am slowly regaining range of motion.
I have the same thing, I had my surgery couple months ago
plz help me my left hand kienbock deases last 4year my hand pain lot
Surendra Raut any way you can see a doctor about it?
how do u feel now?
hey good luck and Ill post an update soon
How long was ur wrist pain full for before ur surgery x
Sarah And John over a year for sure
Flexin Sexy how is ur wrist now ? X did they misdiagnose you at first I have had wrist pain for 4 months now not getting better seems a lot worse in the morning x
Sarah And John yes they kept misdiagnosing and refused to operate said it was a lost cause.
Sarah And John it's perfectly fine now
Guys I have posted more updates for you, including my blog with detailed photos: www.wecanbethegreatest.com
or email me on kgkasiakg@gmail.com for any questions you may have
hi I've got Kinebocks Disease too I was stage 4 had a piece of bone from my hip too put in my hand I had a metal plate put in but then had it out coz of swelling do you still have pain and swelling in your hand as I do?
+Kelly Marie no pain or swelling just pain in certain positions or if strained. what does your doc say
+We Can Be The Greatest I've been in pain with it a while my hand is fused now only can move the fingers they just keep giving me pills but they don't work just make me fall asleep all the time lol but it's nice to talk to someone who has the same thing
Got some question on the surgery. Could you kik me pls😁 trevorBTHS