My son is stage 5 at 22 years old with pkd. We found out he had it at 8 years old, and that's how we found out my husband had it. He began dialysis this month and it's just ...wicked that the world lets people get so ill before they can get help. He spends 24 hrs a week in dialysis. A living donor would give him a longer life. Thank you for raising awareness and encouraging solutions!
This video made my month. I lost one of my dearest friends to a PKD-related disease. Listening to Professor Weimbs interviewing Glenn Frommer along the bike path that I take to work every day was a merging of all things good. I love that Weimb's work is so promising and is focused on nutrition. Hoping to bike across the USA with my daughter in 2023. Save travels, Glenn! And Thanks!
Fantastic interview. Great messages. Thank you Dr. Weimbs for putting this together, and thank you Glenn for what you're doing to not only raise funds, but awareness.
Qué MARAVILLA!!!! GRACIAS!!!! por la labor encomiable que hacen por nosotros los que padecemos de PKD. Por supuesto, todos tenemos que cooperar para ayudarnos y llegar a la meta de encontrar un medicamento. Mi nombre es Irina Selton, yo tengo 60 años y tengo PKD, la heredé de mi mamá y en su lugar mi mami la heredó de mi abuelita. Yo estoy haciendo todo lo posible por alimentarme bien y llevar un estilo de vida saludable. Y me siento FELIZ, MUY FELIZ de que tengamos una comunidad que nos ayudemos. Ya me he comprado el KetoMojo y quiero comenzar con la dieta Keto y el KetoCitra. Yo estoy enfrascada en encontrar un nefrólogo y/o nutricionista que trabaje la dieta Keto para PKD para ser su paciente. Por favor, si alguien sabe de algún médico y/o nutricionista que trabaje con PKD, Keto para PKD en Suecia o España, por favor, yo agradecería que me informen. Aquí en Suecia los nefrólogos no están muy informados sobre PKD. GRACIAS INFINITAS!!!! ❤❤❤
Well done Glen on your journey to create awareness for pkd... I am in South Africa and this is just non existent over here.... I am stage 5 on dialysis for over 2 years now... I really wish I was given more info and knowledge back when I was diagnosed in the UK... no one told me about watching what I eat etc... It is only now that a supplement...penta sure dsl is available to help which is making a difference... such a pity I did not have all this knowledge while my kidneys were still partly functioning..anyway I am always positive and you keep up the great work your doing..maybe a trip to South Africa is somewhere on the cards 😊👍🙏
9:25 great point. I let this hold me back in life ,I am now 40 and wish I hadn't. I could of studied and got an easy on my body, well paying job.
Help others by spreading the word, Richard!
My son is stage 5 at 22 years old with pkd. We found out he had it at 8 years old, and that's how we found out my husband had it. He began dialysis this month and it's just ...wicked that the world lets people get so ill before they can get help. He spends 24 hrs a week in dialysis. A living donor would give him a longer life. Thank you for raising awareness and encouraging solutions!
This video made my month. I lost one of my dearest friends to a PKD-related disease. Listening to Professor Weimbs interviewing Glenn Frommer along the bike path that I take to work every day was a merging of all things good. I love that Weimb's work is so promising and is focused on nutrition. Hoping to bike across the USA with my daughter in 2023. Save travels, Glenn! And Thanks!
Thank you Don! Awesome that you take the same bike path to work and are planning to bike across the USA with your daughter.
Fantastic interview. Great messages. Thank you Dr. Weimbs for putting this together, and thank you Glenn for what you're doing to not only raise funds, but awareness.
Thank you Dwight!
Qué MARAVILLA!!!! GRACIAS!!!! por la labor encomiable que hacen por nosotros los que padecemos de PKD. Por supuesto, todos tenemos que cooperar para ayudarnos y llegar a la meta de encontrar un medicamento. Mi nombre es Irina Selton, yo tengo 60 años y tengo PKD, la heredé de mi mamá y en su lugar mi mami la heredó de mi abuelita. Yo estoy haciendo todo lo posible por alimentarme bien y llevar un estilo de vida saludable. Y me siento FELIZ, MUY FELIZ de que tengamos una comunidad que nos ayudemos. Ya me he comprado el KetoMojo y quiero comenzar con la dieta Keto y el KetoCitra. Yo estoy enfrascada en encontrar un nefrólogo y/o nutricionista que trabaje la dieta Keto para PKD para ser su paciente. Por favor, si alguien sabe de algún médico y/o nutricionista que trabaje con PKD, Keto para PKD en Suecia o España, por favor, yo agradecería que me informen. Aquí en Suecia los nefrólogos no están muy informados sobre PKD. GRACIAS INFINITAS!!!! ❤❤❤
Well done Glen on your journey to create awareness for pkd... I am in South Africa and this is just non existent over here.... I am stage 5 on dialysis for over 2 years now... I really wish I was given more info and knowledge back when I was diagnosed in the UK... no one told me about watching what I eat etc... It is only now that a supplement...penta sure dsl is available to help which is making a difference... such a pity I did not have all this knowledge while my kidneys were still partly functioning..anyway I am always positive and you keep up the great work your doing..maybe a trip to South Africa is somewhere on the cards 😊👍🙏
casually provided us a CE while riding at 10mph! Thanks