Real Families: Diving Deep into the World of Autism in Make Me Normal
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- Опубликовано: 28 июн 2019
- What is it like not to understand the world you live in? What happens when the simplest daily tasks lead to anxiety, frustration and even violence?
Make Me Normal is a film about another world: the autistic world. Autism is a condition of the mind that affects the way you communicate with the world around you. In Britain, over half a million people have autism. There is no cure.
In the film, four of the most able students at Spa School in London take us on a moving journey into their world, to show us what it is like to grow up with autism. Filmed over several months, with unique access to one of Britain’s largest state schools for children with autism, Make Me Normal follows these students as they learn to live with their condition.
Moneer (12) has a form of autism called Asperger’s Syndrome. When he loses his mother to cancer, the school’s struggle to help him deal with his feelings and to manage his violent behaviour, is on a knife-edge. Roxanne (12) just wants to be a normal teenager but her realisation that autism is for life is extremely painful. Roy (18) is desperately trying to make sense of the world during his last year at school, but what he really wants is a girlfriend. And Esther (18), our guide, has a special gift for explaining the autistic world.
Real Families brings you stories of modern day family life from around the world through the eyes of children, parents, and parenting experts.
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I am 22 years old, soon to be 23, with highly functioning autism.
I want to let people know it is possible in some way to live independently.
It takes a lot of work, energy and dedication and I applaud everyone with autism and PARENTS with autism.
We're all fighters.
Same
@@Isabellefarmer98450q⁰ⁿ❤
Hey you beautiful people! Just want to say thank you for all the love you're showing Moneer in the comments, he grew up and became me! If you have any questions feel free to ask, I am also in contact with Roxanne too. Love all of you, seriously. The world is a lot more understanding now, it still has miles to go, but we're getting there. keep being amazing! I became an actor in the end, who would of thought? (But I will play an astronaut one day lol). Love you all x
Hi moneer I suffer with autism as well and I struggled with it for years to how old are you now
Hello, Moneer! I'm autistic as well. I love Star Wars and when I saw you in this documentary, it really resonated with me. I just subscribed to your channel.
Hi Moneer! My mom also passed away when she was 51. I feel for you. I’m happy to see you’ve come a long way since the difficult times shown in this documentary. 💜
I’ve always wondered how the kids in this episode turned out. I wish there had been a school like this when I was growing up (I’m also autistic).
How is Roxanne nowadays?
I hurt for Roxanne because she seems almost too self-aware and sensitive.
My heart is broken for the little boy that his mother died.😢
This video's description of autism is very different from what autism is actually like. They also aren't trying to understand the kids! The first step to helping kids is to get to know them!
This video is awfull. I totally agree with you
Absolutely. I hate the pathologising language used in the video description and in the video itself. As an autistic person it makes me very sad. Things have improved a bit since this was made, but we still have a long way to go before autistic people are fully accepted for who we are.
27:06 I just want to give him a hug.
Not only did his mother died but also his routine changed and that was obviously affecting him.I can't imagine how confusing and overwhelming that was for him.
No matter how bad you think you got it.. theirs always people in a worse situation.
Wow, when I say that to a therapist they say that is an extremely dismissive attitude, it is like saying one persons struggle isn't important because others have it worse.
You are fighters! I got diagnosed with ADHD last year at the age of 30... and I've realized that I've been masking (or at least trying to) my whole life... I've been through a LOT due to my "not-diagnosed ADHD"...!
Neurodivergent people need to know that they are "broken", "stupid", "lazy", or "weird"... we are (as you've put it so beautifully) FIGHTERS!
I have high functioning autism, but I don’t see my autism as a problem. Most of my traits I see as positives, such as excellent memory and focus on certain things.
autistic tech girl 1990 same! I also love how i can think very visual because of my autism it really comes in handy for like puzzles and maths
Same here! I see it as nothing more than a way of being that the world doesnt always get
I am very smart with a high iq and I have low functioning autism sometimes my eyebrows and eyelids twitch
When they told Roxanne she has this "problem" no wonder she's having trouble dealing. She may be different and have have some difficulty in certain areas, but it kinda came across like they were saying she was the problem. Would NEVER use that word.
Same here, I am also really smart, my IQ is 137 and i am usually the best in most of my classes including P.E, probably more so as it is my fav lesson
Every person with austism is different , likes n communicates n repeats stuff n but still loves giving great hugs !!!
Every person without autism is also different. So?
Omg! This film is helping me cope so much! My 3 yr old daughter was diagnosed moderate to severe autistic last month. At the moment she is non verbal, still in diapers, can’t feed herself, no eye contact, etc. Seeing these teenagers gives me so much hope for my daughters future! Each kid shown on here has their own story, own personality, own interests and as a parent that’s beautiful to see, the ups the downs all of it! Im so excited for my daughter and the future now. Thank you so much for this documentary! Roy was awesome! Total cutie! These kids do have emotions and do understand things but at their own pace and in their own way! Above all though they are trying and that’s what we’re all really doing when it comes down to it! I feel we as a society owe it to these precious children to educate all people about autism and about understanding! I totally Hated when they said or inferred these children in the film don’t feel for others and don’t form lasting bonds with people, etc. it’s just not true and each of these kids proved it quite convincingly for me at least!
The boy with aspergers (don’t remember his name). I know exactly how he feels. I’ve been there myself. What’s really worrying me is how the adults treat him. The want good but they are making it SOOOOO much worse. It’s making so many big scars. What they’re doing wrong is forcing him, getting very mad at him. Don’t do that. Cooperate with him instead of making teams and attacking him! I actually feel scared when ppl get angry at me. Just even saying no to me is terrifying! I didn’t realize it util I admitted it to myself. (Btw some of them also has ticks)
Dogs have ticks to I like dogs but I blink like that if you mean like that I am non verbal i use asl you to?
No i do not use asl :)
Moneer Elmeseek is his name. He’s now grown up and is an actor. Look him up online. Hope this helps :)
Never heard anybody say so much of some of the exact things I'm thinking, I thought I'm the only one that thinks like this and now I'm pretty much a mute because ever when I just tried to speak I was always right away told to "stop it" and "when will you just learn to be normal!" 😧
That's horrible. I know it hurts because I've experienced it myself but take yourself back. You're perfect just how you are. This world needs to hear YOUR voice.
🗿🗿 hello I like speak to by words on phone because i am non verbal to i say hello to you also use asl do you?
I have autism, I just wrote a whole paragraph posted it and deleted it again... I can't with myself 🤦🏻♀️
What a lovely, kind and calm headteacher.
I’ve not watched the whole thing yet but from what I have seen it seems to be really negative. I’m autistic and it’s not all bad at all. I know everyone is different but there are so many positives that come with autism too. Yes I have seizures, autistic meltdowns and selective mutism when I have sensory overload but I am also above average intelligence, have a special interest in psychology which is going to help with my future career of being the therapist I never had and I’m also really good at puzzles and seeing life in a different way
I think sometimes the goal isn’t to make it seem like the “outbursts” are characteristic of autism but to educate those who don’t know that before you judge the kid “misbehaving” In the store...maybe there’s something else there.
I dont have autism but this sounds just like me, i could talk about human behaviour for hours
Thanks for uploading this. I have been looking everywhere for this episode
I know the school means well, but this is not the way to help. I have aspergers myself, so that’s why i’m saying this. I’m older now, and i’m on med’s. And i’m actually doing very good recently because the school i got to started listening to me and tried to help me in the way that i think is best for me. It’s working very well for me. A part of it is doing it in my tempo, ni forcing, no saying don’t, and treating me like a normal person. Cuz we are. That’s at least what we feel. When i was in a "special school"... it was terrible. It was like i was a show, someone who hasn’t developed, i was the focus at all time. I was probably smarter than those specialists🙄 it’s a joke, but i’m stupid. Treat them like normal adults, and don’t force them to do anything. It has consequences, but forcing them just makes it worse and leaves a scar. Thank you for coming to my ted talk.
Roxanne is gorgeous! ❤ And I can sense that she has a great heart as well!
I don't care for the title "Make Me Normal" although I know what it is to struggle with that word; with that world of "Normal". Needing and wanting to fit in with a Nerotypical brain or society so badly. But as someone with autism my biggest break though came from realizing that I'm not "normal" and even though being so might make things easier for me... I don't want to be normal simply because it's not who I am. I don't want my autism taken from me!
Finally someone else in this comment section gets it. Most people here are just like “I my cousin’s brother-in-laws son is autistic, so I totally know everything”.
Well, since everyone with autism is different no one will ever know everything about autism. That is true. Everything I know about autism I learned from myself or friends who have it and what helps me/them. Sometimes it can help others to share this info but I hope I don't come across as a know-it-all because what helps me might not help someone else who is on the spectrum. I think what helps people the most no matter who they are in life is to be accepted for who they are :) Thanks for the reply and have a happy week!
@@raea3588 I worry about that too sometimes. Have a happy week yourself!
You still be a unique individual without the autism. You'd also likely have lived a happier life.
I non verbal I say it in my head that what makes me upset Over again I angry when that happen but I can use asl to talk with my people so that’s good
Great documentary!!!!
My heart goes out to Moneer, love him to bits
Why don’t they just find out what’s making him so angry and do whatever they can to fix it instead of constantly trying to nip it in the bud all the time? It’s no wonder Meniere’s getting so violent and defensive. I’d have done the exact same thing!
Preach! Actually fix an issue rather than just conceal the results. It’s like taking pain medication for a broken leg but not putting it in a cast. Instead of trying to manage your feelings, manage what’s causing them.
Maxixe314
THANK YOU!! And if he can’t say what he’s feeling, have him write it or use art or some form of communication, or something?
@@dontmindme.imjustafraidofe9327 No, thank you! Someone actually gets it for once and it really makes my day.
I appreciate you :) Its crazy looking back on myself back then, I really appreciate you showing some love and understanding to the kid i used to be. Keep being amazing! x
The filmmakers seemed to do the best with him, he climbed into his safe space/bin & was able to speak freely. They aren't even attempting to communicate with him, besides saying "do you want to talk? no? ok." And when he said everyone thinks he's crazy I just about started crying. They are REALLY letting that poor kid down, he seems really sweet in between his outbursts.
Why have all these autism documentarys got to be about CHILDERN with autism - what about us adults who've got it?
Bit of a late reply but Chris packhams documentary is good. Focuses a bit on children but it's good
I have autism I get very angry at times and I like this it is like me I use sign language at times my friends learn sign language or download a app so they know what I say I hate how people think of autism and me I need routine I need my routine i have imaginary friends to help me deal with my days
The specialty subjects that people like Roy get involved with are not strange. People like Roy make great historians.
Did you know Albert Einstein was Autistic?
@@nightshade897 Absolutely. Along with people like Bill Gates, Dan Akroid, Mark Zuckerberg, Leonardo De Vinci, and so many more highly successful people in history.
@@frenchjr25 my point exactly, autism isn't a disability the people who cant understand that are disabled.
it is
@@nightshade897 Maybe not for some very high functioning individuals but it most certainly is for most. My son is autistic and life is extremely difficult for him, sometimes unbearable to the point he begs me to kill him.
Don't worry about not fitting in "normal" world - This is Your normal(: .
An aspie🇫🇮
They are good kids
I have got autism and people need to understand the life with autism I would love to have a day without autism
I love each of them. Their emotions are very normal really.
The documentary has aged poorly. The teachers know eff all about autism and the kids deserve a lot better. Glad to see Moneer has turned out pretty cool!
These kids are truly intimidating.
WHY
I hope they find themselves and grow to enjoy who they are ,they can enjoy life even with autism. They can have a normal life with friends ,jobs many can live independently.
34:33 i feel like that song is for kindergarten kids? We are not babies either. We are no different inside. Ofc this is from my perspective. Might not resonate with others with autism? Idk
I find this scene quite disturbing for some reason, like they're inside singing an innocent song while the girl is being filmed having a meltdown outside, it just doesn't fit right
Jade Marshall I didn’t like it either, she is not a circus animal to be gawked at, she was really distressed and it shouldn’t have been filmed because of her privacy
Since this school is a special need school, of course, a school in special need, in general, are going to make the lesson easier and tend to not push harder. since i have been to the same school as them. My experience in special need school is great for people who need help with the socializing, but the mainly Issue is education. To my opinion, any school in SEND should find the right level individually in student instead of altogether Also, this school have CHANGED SO MUCH. It has been a lot calmer and better. I'm glad that this school changed throughout the year. I want to let the new generation students find the right level in educational. At least the Internet taught me everything such as maths, English and etc...
@@gainedchameleon9697 i would have gone mad I went to a camp like that and ah everybody hated it it was torture not fun
Its too disturbing with the contrast between the singing and Roxannes meltdown
it would be nice if they showed when this was made.
It was made in 2005 by channel 4 UK
Very interesting video!
I have high functioning autism spectrum. So this documentary applies to me. I don't like being around people that repeat same words or same sentences it's very annoying. They give me stress and anxiety. I'm a picky eater, I've got touch and smell and taste sensitivity.
High functioning means you aren't affected that much or can live normally at least
Nothing's normal!
you can even see me at 2:33 im in the white t shirt walking with nathan in the red arsenal shirt
I’m a mixture moneer and Roxanne. I have the behavior problem like anger, frustration, ect. I have a poor degree of empathy and high demand of honesty and integrity like moneer but I also self harm like Roxanne. I’m self aware like Roxanne. I like moneer like if I say finish its final if I have to go back then that tells me that you want me to your work for you. When Roxanne got cross with Simon because he was working with her new friend Liam I’m the opposite of that if Simon was working with me and I’m Roxanne that’s when I get cross it’s completely embarrassing that your taking my time away from my friend (that’s how I loss friendships in the past) also to tells that your want me to do your work which is being lazy. Hands down I had to deal with deaths in my family like moneer. Moneer will tell you that hates the disability and anything and everything that’s apart of it but I think that Roxanne does too.
Some deep thoughts.
My son talks but he has anger outbursts. He is sensitive to loud noises.
The sensitivity might be making him more prone to the outbursts. Does he have a place in the house he can go to to calm down with little to no light and things that he finds soothing?
@@raea3588 yes he does.
Which specific one was he diagnosed with Aspergers or High-Functioning Autism?
I like that they're fully verbal and can express their self.
I like that you can read and express yourself... yeah your comment is literally that insulting to us autistic people as mine about you reading.
This is a really weird things to say? Lmfao
I have many holes in my wall because of my autism but I haven't made one in a while because I have I stuffed animal for that reason for throwing at my wall door and ceiling
I’m not trying to minimise their disabilities but some aspects of their disabilities make them so loveable.
It’s so, so sad to see how much distress some of them are in.
I now also wanna be in a documentary 🥺
Does Roxanne have tics? I mean those showing middle finger and swearing.
Moneer in this is basically Harry Potter in book 5.
Constantly angry cos no one believes him: check
Everyone thinks he's crazy: check
Headteacher misunderstands him and witholds vital info from him: check
Has epic meltdown and totals headteacher's office: check
Oh wow. I haven't even thought about my son dating. I just get sad because his identical twin isn't autistic. I feel like he will always feel different to his brother.
But that doesn’t make sense. Why is that we have decided that it’s sad that the autistic child isn’t the same as his brother? Why isn’t it sad that the other child is different from the autistic one instead? It’s arbitrary. If autistic people were in the majority then documentaries would be made about “those weird kids who make eye contact and are never passionate about things but just like to talk”. It’s just a matter of perception.
@@maxixe3143 just don't want him to feel any different or like his brother is the normal one. It's not true they both are unique in their own way.
You're a momma who wants the best for both of your boys and you understand there are stigmas out there that says one is different. Your message to your sons is that they are both unique and amazing beings. But your concerns are perfectly understandable and it would be odd if you didn't have them because you love your babies
@@raea3588 Thanks so much. Its rough but I'll do anything and everything for my babies.
@@kristinayoung6535 I may have misinterpreted what you had said earlier and for that I apologize. I bet your sons are both very lucky to have you!
15:17
Why is the headteacher not trying to show Roxanne better ways of behavior? For example, if she thinks that Simon is taking away her friend:
1. Finding a way to manage her emotions so she will not lash out
2. Asking Simon "Do you want to take my friend away?"
Telling Roxanne "You don´t understand that because of your autism" might be true, but it does nothing to make Roxanne better understand or learn better behaviors. It just puts her down.
In my opinion this is a bad school because they do nothing to teach the autistic students how to behave better. And the headteacher seems to not believe in the potential of autistic students, for she focuses mainly on their challenging behavior and how they aren´t normal.
I'm autistic and is my sister and brother as well
Roy is so funny and sweet
I have mild autism and I'm 10 in year 5 for the 6 years in primary school I never had a friend
Oh damn, real JVC VHS tapes. It's been a while.
This was broadcast in 2005. VCRs were outdated even then.
I’d love to be friends with Roxanne we would get on very well
I have autism and I have bad anger and memory loss and have bad spelling and also can have bad attacks of anxiety
This must be a long time ago. Superdrug hasn't looked like that in years
at 12:45 you can see the date on which the movie was released which would probably mean this documentary is from that time, if I am right it says 2004 or maybe 2003
I meant 12:35
I think cause it's children they had to wait?
@@elizabethhalt2096 what?!
I swear I read that when filming children they need to wait until they're adults to submit it to social media or something. I might be wrong tho
There is no such thing as normal!!!
Do you want to be autistic? I doubt it
@@daleburrows2662 rather be myself as an autistic instead of someone who sees neuro difference as a bad thing.
Lmao I relate with the man obsessed with labels being perfectly straight. I’m like that too. 😂
me but with my hair
Strange?? Yea, different. Smart af 💯💯💯💯
I have autism non verbal 🗿
I really wanted to meet ray, i was that fascinated i was copying him hahaha
Roy doesn’t understand he’s scaring the girl 😂😂😂😂
Did the narrator say that Roxanne is 30?
13 lol
My biggest struggle is living in a world where Neurotypicals get to decide the rules.
Most of those rules are entirely unnecessary.
As a kid I would use to hit a lot. I got programs to control my outbursts. I am a lot better at controlling my anger.
what is normal anyway n who wants to be normal. normal is boring. I have 2 fun loving wild adorable autistic boys n I wouldn't want them any other way.
13:33 the star wars guy LITERALLY pushed the kid and said something like " Dont watch it all at once get out the way" like wtf?
The reason i came to this video is cause im a kid, and i have autsim.
Me too.
2:24 and be so much better at things u couldn't even understand
I love y'all very much it's not your fault that you were born like that always lift your head up do not let nobody put you down cuz God love you very much do not let nobody put you down because God love you very much and always love yourself it's not y'all's fault and God going to always be with you all because it's not your fault love you very very very much
I think it's really sad that you've had this experience. I don't think God showed you hate or discrimination I think people who called themselves Christians or religious did :( They taught you some twisted way of what the love of Jesus is. I'm so sorry! Every part of who I am knows that Jesus loves you exactly for who you are. Whatever you are. I don't care!...He made you. The world or something that called itself church gave you that hate and those nightmares and the discrimination not the Jesus I know. The Jesus I know proves otherwise by saying right in His word that you are worth something! Simply because you breathe. I'd like to pray for you. That these lies and pain humans have caused will go away so that you will have a chance to see how much love God really has for you and it can be your choice not something this world tells you you should or shouldn't become or do. Blessings.
Uh what
There is millions of different symtoms that mix it's a mixed bag not a damn lifestyle
i was a pupil at the school at the time of this documentary i didnt like what they did and how they chose to basically and apparently exploit the people involved
You were treated way better than when I was at school. I couldn't even go to the bathroom on my own. I had to walk to the bathroom with either a teacher or a staff member.
Not too impressed with this school. Many wrong approaches to the students. Heartbreaking for them.
I can speak about Star Trek for hours on end.That doesn't make me strange or obsessive,does it?🤔
Not with me
The 12-year-old might also have ADHD
Esther will be now 35 nearly 36 roy will also 35 nearly 36 roxann will be 27.nearley 28 Liam will also be 27 nearly 28 monier will be 26 nearly 27. Simon will be 26 nearly 27 Harry will be 27 nearly 28
Someone needs to explain to Roy about friend zoning 🙄
I have Autism
26:53 LOL this made me laugh soooo much but it’s sad I know how he feels
I have autism
Me to
We are all different and we are all on different sides of the spectrum
@@wanderingcommenter303 what
We are all different even if we aren't on the spectrum at all.
Monneer isnt a bad kid really
I appreciate you :)
How old are you now moneer
Some of these kids really do have autism, but I can see a few in this video...2 girls namely...that do understand what is wrong and are just manipulative.
I cant understand English accents AT ALL.
This is an understandable accent. You haven't yet seen the real british accent😅😅
Wher ye froom
Warm regards from Brazil 🌷❤️🐠🌴🥥🏖️🐠💐🌼🐛🦋🍋🐵🍄🌻🌺🐝🌳🦔🐿️🐥🐳
Please help me and my autism (and my dog) immigrate to the UK
I think yall ate uniqe
WHAT
did u know Albert Einstein was Autistic?
Roxanne might also have Tourette’s
i think the lad might have it cos he is having like facial tics like twitching his eyes
@@pearlkelly6337 yeah maybe
No, not everyone with tourettes swears.
Swearing is a rare form of tourettes.
Most people with tourettes don't swear. She doesn't have it
Just because my autism is an inconvenient to you does mean am changing the world was literally built for neruo typical people
Ion like this it’s negative…
Yea the intro had me like 🫣
Bro British 💀
This is ALL A LIE
This video is so ableist
They feel so patronized and misunderstood that it enrages them.
Im autistic and will always be alone with no girlfriend ever cause I can't drive and no woman wants to date a guy that can't drive and lives with his mother.