Answering your GASTROPARESIS questions
HTML-код
- Опубликовано: 28 авг 2024
- Gastroparesis Awareness Month! Let me answer your gastroparesis (delayed gastric emptying) questions.
✩ Teespring MERCH: teespring.com/...
✩ EDS Etsy STICKERS: www.etsy.com/s...
✩ CBD Bloom Farms DISCOUNT (affiliate link): bloomfarmscbd.c....
✩ Fitbit Versa: amzn.to/33RQpnB
SUBSCRIBE TO MY CHANNEL ▶ bit.ly/2M4Ko0c
📸 Instagram ▶ / izzy.kornblau
⏰ TikTok ▶ / izzyk_dna
The views expressed in this video are my own and do not reflect the views of Mount Sinai Hospital.
✩ ✩ ✩ ✩ ✩ ✩
WHAT’S EHLERS-DANLOS SYNDROME?
The Ehlers-Danlos Syndromes (EDS) are a group of more than 13 genetic connective tissue disorders that affect the joints and ligaments, blood vessels, gastrointestinal tract, and autonomic nervous system, among others. The most common type of EDS is hypermobile EDS (hEDS), which used to be known at type III. Some of the most common symptoms and co-morbidities of hEDS include chronic joint pain, joint instability and dislocations, dysautonomia, and GI tract dysmotility.
MORE INFO ABOUT EDS:
🧬 www.ehlers-dan...
🧬 bit.ly/2N95xTE
MORE INFO ABOUT POTS:
💓 www.potsuk.org...
❤️ cle.clinic/2p1...
MORE INFO ABOUT GASTROPARESIS:
💚 mayocl.in/2BRQTuR
MORE INFO ABOUT MUSCLE TENSION DYSPHONIA:
🤍 bit.ly/2MLUYXI
FTC Disclaimer: This is not a sponsored video.
As an Amazon Associate, I earn from qualifying purchases. 
Кино
I had a pots awareness shirt on at school (I’m a senior in high school) I got sent to the office because they thought it was for pot as in weed.... I had to explain my chronic illnesses to them while they interrogated me and it was the worst experience ever. They were completely ignorant and uneducated about the situation. I wish more people knew about these things so we didn’t feel the need to hide or feel guilty because people dont understand or believe it.
At my gastric emptying study I told the tech I needed a second to stand up because of POTS and he thought I meant pot and he gave me the side eye. I had to explain to him that I was not talking about marijuana lol.
I see so many people who get accused of having an eating disorder which is absolutely horrible, but on the other hand as someone who has had gut issues their entire life and struggled with an eating disorder, unfortunately it also happens the other way around too. I’ve been brushed off as having an eating disorder and haven’t really been investigated fully. Gastroparesis has been bought up as a possibility recently after having issues for so many years.
A similar thing happened to me too- I had issues with disordered eating- especially around making myself throw up. While there was definitely a fair serving of bad body image stuff/disordered thoughts in there- we (now that I have an amazing Dr) think that one of the main triggers was actually having physiological GI issues that made me super nauseous and want to throw up/feeling better when I did- but then the food rules stuff took over and it became more about wanting to loose weight. Apparently that's super common- but still sucky because it can be so difficult to have your GI symptoms taken seriously when you have an ed/disordered eating- but a diagnosis/symptom management can really help with an easier ED recovery
my doctor recently mentioned gastroparesis as something i may have and just,,, left it.
he hasnt tested anything and im here freaking out bc as much as i want a diagnosis i really dont want a,,,(partly) paralysed stomach,,, yknow
My doctors have been doing that my whole life, i realized I have to fight for myself and push
Go ahead and get the test. You either have it or you don't, and it's better to know. I'm getting a gastric emptying test this Wednesday! My doctor is going to give me Mestinon to treat my POTS, but it also treats gastroparesis. If I do have gastroparesis, it's going to go away with the Mestinon. :)
@@Dulcimerist did you find out if you had it?
@@karengomez4182 I don't have gastroparesis anymore. Mestinon cured it.
@@Dulcimerist how long did you take it for? How severe was your gastroparesis?
Hi Izzy, I know this sounds crazy but I feel like we are friends even though we don’t know each other. I was diagnosed with Ibs, then GERD, then I got an upper endoscopy that showed gastritis and finally gastroparesis. It took almost 2 years to get a proper diagnosis and I probably took a year off of doing tests because I was so over it. Once I got diagnosed I didn’t do any research past the first time I looked it up because everything said people have it for a lifetime. And I just broke down crying. But I’ve decided to face it. I’m 21 and still feel pretty sick everytime I eat. I felt very alone for a long time but watching your videos helped me know that I am not crazy. It’s just very hard to understand it when you aren’t living it. Thank you so much for your videos and I hope we can get in touch. Also wondering if you have a support group for it. I definitely feel that hearing other people’s struggles with it helps me feel better about my own. A lot of the doctors would tell me that I am crazy and mental and I don’t have anything but I knew it wasn’t true. Thank you again
Sounds like my story but it only took 4 months. My current internist sent me to a gastroenterologist and actually came up with the diagnosis. It probably would have taken less time except I delayed the gastric emptying study by 2 months. My cause is hypothyroidism even though I'm on meds for it. Good luck on your journey.
Thank you for spreading awareness,
I have type 1 diabetes and for years I was told I had ibs. I am finally getting tested with gastroparesis. Thank you for your videos learning so much!
Early 2019, I developed SEVERE diarrhea. We spent 9 months trying to troubleshoot my issues. At around 7 months in, I started having an increasingly hard time with dizziness and weakness. I mentioned the dizziness to my neurologist and had a TTT the following week. The results were so bad my neurologist immediately made me an appointment with the cardiologist because he didn't feel comfortable addressing it. I mentioned the dysautonomia diagnosis to my GI-- it immediately clicked for him.
I was just diagnosed with EDS and GP this month. I have fibrous dysplasia (a rare bone disease) it took until 16 to get diagnosed with that because doctors told me it was "growing pains" and it took me until 24 to get diagnosed with EDS because I had an occupational therapist who was paying attention and pushed for me to go to a specialist! Bone and joint pain is something for sure earning my stripes 🦓
I am actually in the process of getting diagnosed with Gastroparesis. Originally it was more or less IBS issues but recently I am in a flare. I got lab work the other day which showed high markers for gastric/stomach issues especially gastroparesis. I have hEDS and POTS and I am also working towards a MCAS diagnosis. I am scared though as I have my first upper endoscopy on Thursday and am being tested for celiac disease through biopsies. Thank you so much for making these videos they make me feel less alone.
I do the thing about eating even if I’m not hungry as I feel like I need the calories too 😂 since gaining weight I’ve been better about it though as I’m clearly getting enough now
Thank you so much! This was just beyond helpful ❤️ I was diagnosed in that order as well ibs, gerd, then gp 😂 and now I’m still in recovery praying that one day I’ll be in remission
Thank you for spreading awareness. I have severe where it takes over 24 hours. I was diagnosed with Gastritis years before my gastroparesis diagnosis. The majority of my small intestine was removed due to a bowel obstruction due to my gastroparesis.
Thanks for sharing your story. I was diagnosed with Gastroparesis a few years ago and it's drastically changed my life. I have tried diets given to me by dieticians but I was still getting sick daily. Last year finally started listening to my body and now my diet is mostly liquid. I drink protein shakes and fresh squeezed juice daily. A few times a week I'll eat yogurt, pudding or jello. I might have a GERD reaction if I have citrus juice but I'm not getting sick daily like I was before. I take liquid supplements and vitamins and I exercise. Gastroparesis is something I have to live with but I'm not letting it take over my life. ❤️
Omg thank you for sharing! I just was diagnosed with gastroparesis but felt that this was possibly the cause due to my horrible symptoms. Do you mind sharing what kind of liquid vitamins you take?? Thank you again for sharing ❤️.
@@irenehill7713 I take liquid multivitamin from the Vitamin Shoppe. It's their brand. I also have Tropic Oasis mega premium multivitamin. I got this one from Amazon. You only need one but I got both to try. I take the liquid vitamins because it's better for absorption and digestion if you have gastroparesis. I also take high potency liquid iron. The brand is called Nova Ferrum. Best of luck to you!
@@shanerobinson4892 thank you soooo much for this information!!!!!! I will head to my vitamin shoppe today!! God bless ❤️
I'm I'm the process of trying to get diagnosed with Gastroporesis. I've had my first endoscopy and it came back totally normal. It was disheartening to hear that everything was normal and made me question my symptoms, but I know it's a good thing that other issues have been ruled out. Fingers crossed that my GI doctor is cool with more testing.
Did they run a gastric emptying test? They put radioactive dye in scrambled eggs or something like Ensure, and then they actually see via CT or X-ray to diagnose gastroparesis. Endoscopy is to check for GERD damage and ulcers.
I've never commented before but this video really hits home for me. I was diagnosed with gastroparesis at 12 after an upper endoscopy where the doctor could tell what I had eaten twelve hours before. I'd been having symptoms for 2 years already. I tried erythromycin and it didn't work and she wouldn't prescribe me anything anti-nausea. After about a year my symptoms were no longer constant. I had a GES when I wasn't having symptoms where the doctor said it was "near normal" and then she changed my diagnosis to IBS. She said to take IBGard and that she didn't want to see me again. Now at 15 I still have multiple week long periods where I can barely eat or even drink.I sucks not knowing what to say when people ask what is wrong with me. I feels like a lie to say I have gastroparesis even though I was diagnosed with it and IBS doesn't fit. When I was first diagnosed reading the wiki page on gastroparesis felt like an autobiography. Thank you so much for your videos, I can relate to a lot of what you've gone through.
Your videos teach me so much about what my kids and I are going through. Thank you! And I recently ordered my EDS hoodie and can’t wait for it to arrive. Soon will be ordering a gastroparesis one too!
thank you so much!!
I have lots of testing this month for my digestive system. Can't wait!
This is such a great video, THANK YOU!! Before I was diagnosed with EDS, hyperadrenergic pots and all the good staff 🤣, at one point in my life my "weird" symptoms were so bad that I couldn't even eat without throwing up and when I became unable to drink water, I was just diagnosed 3 times with bulimia and or anorexia, I cried so much and tried to convince my mom that that wasn't the case so we kept searching for answers. That was the worst experience in my teenage years, after months of vomiting none stop and so many appointments, finally an specialist said "severe acid reflux" thats the best diagnose I could have here in Chile 🇨🇱 (South America) because EDS is not really a thing and gastroparesis isn't either, you have to be really lucky to find someone in the health care community that knows about those things, anyway, acid reflux just doesn't seem to be the right thing, sadly because of covid19 I stopped trying to find the right answers. For now, the best I can do is to try to eat small portions, avoid fast food at all costs and wait a lot between meals and never eat late at night, I also try to track what I eat so I can realize what's not right for me and to know if I'm eating enough so I can stay healthy and my bad days can be a lot less frecuent. Thank you this video 😘
im wishing you the best and i really hope you will find a doc in Chile who is able to help manage your symptoms, even if they don't know the exact cause
@@IzzyKDNA thank you 😊
i suspect i have gastroparesis because i almost have no appetite and im nauseated all the time, especially after eating...and i feel full after two bites sometimes. this is very helpful!
Some of the most painful and symptom-inducing foods are MEAT. Chicken, beef, pork, whatever. I’m curious if other people have noticed this
at one point, i struggled a lot to digest protein in general. and then it stopped. i had to take enzymes to digest it though. I think it was HCL or something like that
Definitely! Poultry and pork are the worst for me, but particularly chicken. Deer and beef (93%) are the best meat choices for me.
Yes, I've noticed it as well.
@@user-ox5nh8kx1l chicken, for sure. Not that I know if I have this or not, but chicken sits hard. & boiled egg yolks, but ok if they are soft & jammy in a poached egg. & it's the protein in dairy that I can't deal with, not the lactose. lamb is my favourite.
I have been diagnosed with gastricparesis. I have been watching your channel to get information. Excellent videos.
My flares slowed down a lot by avoiding foods I know trigger me sometimes I do get nauseous. Pain is always there it comes and it goes been having stomach pain for 20 years.
Izzy I totally agree with everything that you're saying about gastroparesis. Here's how I identify it with my GI doctor. After I eat it is not my stomach that hurts my stomach is fine it's my gut that hurts as the food is getting digested because it doesn't contract like it's supposed to. they've given a medication and it helped helps like so much but yeah I think that's the differences your stomach doesn't hurt but your gut hurt I hope that helps somebody.
Our experiences definitely line up when it comes to anxiety, not being sure if it's a flare-up or worsening condition, and people assuming we have an ED. I don't have EDS but I'm pretty sure I have POTS. I was wondering, does improving/treating your POTS improve your gastroparesis? I only recently made the connection between the two and it actually gave me a lot of hope.
I got diagnosed with gastroparesis this year after years of GI issues. I also got misdiagnosed with IBS years ago and experienced years of friends gossiping about my eating to the point where I have issues eating around people at all.
Hey gastroparesis is annyoing I live with it since 2017 I’m so over it the nausea the constipation ugh the acid reflux
Thank you for sharing! I might have Gastroparesis and I am trying to learn as much as I can.
My dr thought gastroparisis but she ended up with functional dyspepsia. But we are still trying buspirone which should help with stomach emptying. It was “normal,” but by like 1%
Hi Izzy, thank you for making this video, I have been suffering with gastro problems for the last few years, but in June, my stomach just started not tolerating any foods, I started being sick more and only have a few foods I can "tolerate". Currently waiting for a gastro appointment, but thinking this could be gastroparesis as i have lost nearly 19 pounds in 5/6 weeks. your videos have been useful in helping me find some foods i can tolerate so am I not completely malnourished :)
with the pain i have with viseral hyperageesia everyone thought i had Gastroparesis but come to find out what i have gose with EDS plus i have all the symptoms for EDS and dont for get to mention i am only 12
The medication i have found that work for my stomach is Dicyclomine 10mg 4 times a day take it 30 mins before u eat and I have to take Promethazine for my Nausea is so bad I have to have these everyday
I literally have every symptom of this (Im not even gonna bother trying to spell it. I can't spell at all lol). I have eds and some other major diagnosis's but my doctor won't even bother to do anything when I mention it. She just ignores me. I don't have a very good doctor 😣 but my stupid insurance won't pay for a different one that's not 6 hours away. I hate having a doctor that doesn't listen
You could print off some educational materials for your doctor:
www.ehlers-danlos.com/2017-eds-classification-non-experts/
If your doctor refuses to treat your medical conditions, report the doctor. Complain to your insurance company that the doctor is refusing to do their job, and complain to the hospital or medical center that the doctor is affiliated with.
I love your videos! They have been so helpful, keep going x
I have a feeling that I have it,I can't get a diagnosis since I just got out of hospital and they said everything is fine, but I really have a strong feeling Im acidic so it's low-key possible.plus getting a diagnosis is so expensive here in my country
Alcohol kills me too. Coffee is undo-able still, when I was at my worst I couldn’t even tolerate water. I could only drink small amounts of flatish coke or Dr Pepper. Thank God for soda, it’s the only thing that kept any weight on as I had dropped below 100. Currently I’m on pantoprazole 40mg 2x a day, promethazine 25mg 2x, zofran 8mg dissolving tabs, baclofen 10mg 1x and Celebrex 400mg 1x. (These are the meds that help my stomach) I never really felt like I had GERD either but last year I ended up being hospitalized for vomiting blood (0/10 would not recommend) and then they put me on pantoprazole and any time I forget to take it, I end up vomiting. I’ve just now been able to reintroduce some meats into my diet after four years of it making me sick for at least three days straight.
Ps thanks for trying out that acupressure matt!💜 I had never heard of such a thing so thanks for introducing it! I have a skull-c2 fusion and it helps soooooo much with my neck muscles that are always tired, especially when I can’t get to PT to be dry needled!
I have gastroparesis, and my mother would always think I have an eating disorder. So I know what you are talking about.
I don't have gastroparesis as far as I know, but I have acid reflux and gastritis. Currently I am looking forward to having a surgery to fix my reflux, since I have esophagitis and it can lead to cancer soon. I will have an upper endoscopy this month and if everything goes well and it is not that bad I can have my surgery (if it is really bad my doctor says that it is not worth it to do the surgery now, but wait for the robot surgery that is coming to Brazil ~my country~ because it has better results, it is so cool) Your videos help me because the safe foods for gastroparesis are usually safe foods for gastritis, and I get more inspired to be healthier and take care of my body.
Thank you for spreading awareness for us, I really like your videos!
I think because I'm considered over weight is the reason I didn't have a gastric emptying test done by my GI doctor....I was diagnosed with Gerd and IBS and was told to change my diet and to take acid reducers. It wasn't until I was diagnosed with POTS and EDS years later that my cardiologist ordered a gastric emptying test and I was finally diagnosed with Gastroperesis. I still don't have a resolution though because I've been told to consume 150grams of protein to control my POTS and its so hard, even drinking it. I don't currently have a GI but hope to soon.
‘Functional’ is the term that has replaced ‘psychogenic’ in the medical terminology over the last couple of decades. So the primary difference between someone with a dx of ‘Functional Dyspepsia with delayed gastric emptying’ and a dx of Gastroparesis would be what their doctor believes is the core cause of the condition.
If their doctor believes it’s an ‘organic’ condition they’d likely be diagnosed with Gastroparesis.
If their doctor believes that their condition is psychogenic in nature (whether it actually is or not) they’d likely be diagnosed with “Functional Dyspepsia’
a beautiful and intelligent girl, quite knowledgeable
I was so thin as a teen and couldn’t hold food down no matter how hard I tried, people would make comments in the shops about how I needed a cheeseburger shoved down my throat, I over heard the teachers talking about me and saying how my parents should shove food down my throat because it was obvious I was anorexic and my parents took me to doctors and I was taken to a gastroenterologist who mocked me in front of my mother and said that I was just putting it on because I didn’t like her cooking.
I would try to eat but I couldn’t swallow my food and when I did, it wouldn’t stay down. I’d cry myself to sleep about it, because even the doctors weren’t on my side. My parents never accused me of having an eating disorder but they got frustrated because they didn’t know what was going on.
I’ve had a few bouts on and off over the years and I have weeks or days where I can’t or don’t eat, because I feel nauseous and full or can’t stomach food or choke a lot, and on my good days I over eat which probably makes it worse, so now I’m chubby 😂. Doctors think I eat all the time because I’m chubby but I just eat a lot when I can eat.
PLEASE MAKE A VIDEO ON MIGRATING MOTOR COMPLEX👍
I have hEDS, and sometimes if I have a BM where I suddenly need to go and have some cramping and bloating, I'll have blood trickle out at the end of the BM. Is this an EDS thing? Do others with EDS experience this? I had a colonoscopy, and I don't have any polyps or cancer stuff up there.
I'm in a really bad episode and I'm not yet diagnosed with gastroparesis but that is what we are talking about and going to test for in the next couple of weeks but my only safe food rn is avocados. Anything else hurts so much
Also, opioids can cause gastroparisis, but people need it for painful rare diseases. Also, my rare disease Klippel-Feil Syndrome can cause it and spinal cord diseases can cause it as well.
I might possibly have gastroparesis. I've been having nausea for months and it's made it very hard to eat. I've been trying different meds to try and help it but right now just waiting for a test to see. I've asked my doctors this but never really gotten a clear answer. What's the average life expectancy for someone with gastroparesis? If you know.
Thanks so much for the information!
Thanks for answering my question, Izzy!! The previous video you suggested was really helpful, hope you do make another one :D Now I’m wondering if waiting 3 hours and 45 minutes between eating to give the mmc pathway a chance to work is helpful for people with gastroparesis or if their mmc pathway response is weakened so that waiting the 3.45 hours doesn’t really make a noticeable difference. And if waiting that long does help food to move through your stomach that normally would make you sick, is that suggestive of gastroparesis or a different GI issue?
Yesterday I was diagnosed with Gastroparesis gastritis and today I was told I have H Pylori. Tell me there’s hope!!! I’m a nervous wreck.
It can certainly be scary to get a diagnosis! But just know that it's the first step to feeling better, as you can now start to manage your symptoms!
Hiw are u?
Mine was oatmeal...I was able to process 60% @ the 4hr mark.
Hi Izzy I've been watching you for awhile. I have Scleroderma which is an autoimmune disease and I have not a mild but a moderate case of gastroparesis .I just did the gastric emptying cast last week so now it's an official diagnosis. And it sucks cuz I already knew I had it before I seen it in writing.
hi! I was diagnosed with gastroparesis over a year ago and just in June I saw a rheumatologist and diagnosed with scleroderma. I never heard of it until my rheumatologist brought it up. and I never knew it could cause gastroparesis until my rheumatologist told me!
I have Gastroparesis and its really bad I can't even eat food much anymore 😩 and now I need a pacemaker put in to make my stomach to work and im Nauseated all the time and im in and out of the hospital all the time
hi izzy i've been watching you for awhile now but i've never really commented. ever since january i have had SEVERE heartburn and have had to go to the ER for stronger meds a few times. i was diagnosed with GERD, then IBS. but the diet and meds aren't working, and i'm wondering if it might be something else
I just have constant nausea all the time that the doctors cant figure it out. Is that a symtom of gastroparesis?
Yes, i have the near constant nausea as well as others
I've got idiopathic Gastroparesis and IBS-C and had ton of tests on my GI I get hiccups and sometimes I randomly hiccup a solid piece of food that was in my stomach up it's so gross!
It’s beyond crazy that you say some doctors think it’s anorexia because I’ve questioned myself multiple times. Is this just in my head? Am I crazy? Im not diagnosed yet but they’re thinking functional dyspepsia, I also think it’s interesting you said FD And gastric paresis are the same.
ohhh my god i had just the same kind of nausea before i started vomiting every time i eat!! i still don't have a diagnosis (GES in a week tho!!) but honestly i think gp would fit me so well...
I have GP too, and I think mine is more severe. I can’t handle raw vegetables of any kind (not even smoothie form!) it looks like you get a lot of fiber from your previous videos. How much, on average, do you consume?
My gastroparesis was caused by a complicated abdominal surgery.
Did you try Domperidone or Resolor etc? Domperidone works the best for me but it looses its effect after a few weeks/months and than I need a break.
Btw. I looove your Videos so much! I found your channel and I was so motivated to upload Videos as well for all German GP patients! ❤️
Have you had Celiac testing ? I was not expecting to be positive but an EDS specialist tested me recently and mentioned all Eds'ers should be tested
Thanks
I don't have this but I do have narcolepsy with cataplexy! 😬
This is so helpful thank you
😢 I just found out i have gastroparieis cant spell sorry.
Im 46 diagnosed with gerd as a young teen
I have pcos.
Im scared. I can't seem to eat anything. Does everyone has to have a feeding tube at some point?
I don't know what im doing its new and im suppose to see a nutritionist.
😢
I guess one could do a poor man's gastric emptying test by eating corn on the cob or similar & timing how long it takes corn kernels to show in one's poop?
Assuming one can eat corn....
That wouldn’t work because gastroparesis is not about the length of time from eating to pooping it. It’s just the amount of time it takes to leave the stomach to the small intestine
Plz help me😢
ive been having nausea for months and because of corona the doctors haven’t been working as quickly as they usually do i’ve gotten so many tests and still dont know what i have this nausea is killing me
I've been dealing with the same. What I found helpful is ginger ale or ginger tea.
Try colpermin it non prescription peppermint based, i have motility FD it works fairly well xx
I have Gastroparesis since January. I started to experience symptoms on Thanksgiving Day after only eating a small amount of food. I had been feeling nauseous for a couple of days prior. My Dad and I were with my girlfriend at The Golden Corral. I originally thought I had the stomach flu, but it lasted for longer than three weeks. Finally, at the beginning of December, I went to the hospital because I could neither eat nor drink anything. I found out my gall bladder had to come out because there was a fairly large stone blocking the neck, so nothing was getting in or out. So the Docs thought that was my problem, but a day or so after the surgery, I was still not able to keep anything down. I was in and out of the hospital in January, when they finally did, tried, to do a Gastric Emptying Study, which I failed after the first round of scans. They had been giving me Erythromycin in the hospital, which I realized was the only reason that I was successfully eating or drinking anything. I asked them to send me home with it, after telling them my realization. Fortunately, my insurance paid for it. I ran out of Erythromycin in April, and haven't been to see my GI since February. I have been almost back to normal for quite a few months. I am grateful, but not taking anything for granted because I know it could radically change at any point, because before my diagnosis, I had a couple of weeks where I could actually eat and drink food with no issues. I actually found this channel because I was trying to learn what kinds of food I should eat with Gastroparesis. I saw Izzy's "What I eat in a day with Gastroparesis" and that really helped me to rediscover my love for food.
❤
Is it possible for gastroparesis to cause upper GI bleeding?
What's EDS & POTS?
What is EDS
Hi Izzy,
I think you're really beautiful and had a question. Do you have a dietician and nutrionist to help you with gastroparesis. If so, would you recommend him or her to me? I was recently diagnosed and have run out of things that I can actually eat ha
Im sorry to bother you but Im just so lost and I need help. I have GP/delayed gastric emptying AND Anorexia. Im in constant pain to the point im stuck at home almost all week. I cant even get a job. My doctor has put me on over 6 different medications but none of them help. My latest one is "the last medicine option". Im losing weight fast and I just feel so hopeless. I feel like nobody understands how bad the pain is and how impossible it is to eat sometimes. Even my doctor wont listen. Im 20 almost 21. I dont know whether to ask for a feeding tube, surgical options, more tests, I dont know. Im at wits end and could really use guidance from anyone who might know what to do..
The tests ive had done are: upper GI scope and gastric emptying test (4 hour one) which all they told me was it was delayed but not how much. I got zero information..
You will get through this! Im praying you feel better
Have you ever suffered from SIBO Izzy? ♥️ I have many things Gastroparesis being one of the many I have a j-tube but struggling on elemental feeds right now x
No I haven't luckily! I was tested twice and came back negative but they treated me for it anyway and it did nothing lol. I'm sorry to hear that you've ben struggling on elemental feeds
I had an episode at Busch Gardens, ate the fair food (mistake) eventhough sometimes it happens with any type of food, and it was horrible. We were so far from the front of the park. I was nauseous, diarrhea, cramps and about to passout. I told my family I had to go to the car because of it, so I went by myself, made a stop to the first aid for some Tylenol. I have no idea how I looked to others, but probably very unwell. I finally got out of the park and had to wait for the pram to take me to my car, worst wait of my life. I was pacing, bent over and almost crying. It really makes me afraid to eat sometimes because anything can set it off.
i'm sorry to hear this. i completely understand that fear of having symptoms at any time any place
What happens when Gastroparesis is at its absolute worst?
most people require a feeding tube into another part of their intestines
By the way I love you I'm Jewish too but do you have a tube